Hepatitis C Survivor Stories
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As part of our Hepatitis C education and patient advocacy mission, here you’ll find survivor stories that have been shared to benefit others with Hepatitis C. These stories provide a realistic frame of reference for Hepatitis C patients. One that comes from direct experiences – your direct experience and that of other survivors.
If you have chronic Hepatitis C and you are visiting this site, you are a Hepatitis C survivor. This is true regardless of whether or not you have eradicated the virus from your system.
Other survivors could benefit from knowing your personal experience with this disease. What have you done? What have you learned? What do you wish you had done differently? What is most important for others to know?
Please consider that your personal story could be exactly what others need to read to get them through – even if you don’t think there is anything particularly special about it.
Click here to share your own story.
When I went to the hospital, I thought I was having a heart attack as the pain was under the sternum bone. They took blood & they told me I had Hepatitis. I thought it was a death sentence & I was scared. To my surprise Humana sent me to a doctor who prescribed me Epclusa, I took it for 84 days religiously & 12 weeks after my last dose I went for a blood test & the test didn't pick up hepatitis. I really thought there was no cure, but Epcluca is a wonder drug. Thank you, Humana, for a second chance at life!
I got Hep C in ‘69 from blood transfusions that saved my life, got very sick and yellow 6 weeks after the transfusions, was sick for months. Had a wonderful doctor who read me the riot act : eat healthy, no alcohol, no fried food and be careful with all drugs and meds., only when strictly needed and then some. Life threw me many curveballs health wise, had many mayor surgeries and mysterious illnesses that had everybody baffled, despite it all I kept going. Then I had mysterious auto immune problems, could not digest my food, my skin broke out in rashes that drove me crazy, the way it itched, my dermatologist ended up sending me to a Homeopathic MD who declared after 2 hours that it was due to my liver, he gave me 6 viles of tiny pills and in two days the itch was gone and did not return. That was in ‘91 approx. and Hep C suddenly started to exist, so far it had been “ no a, no b “ Then I came down with breast cancer…. The wonderful doctor who did the surgery did not dare put me on chemo keeping in mind my history. He sent me to a Chinese MD, it cost me an arm and a leg but she got me over it and I have been cancer free for 30 years. But also she insisted that it was my liver that real bothered my health. Then I came down with autoimmune thyroiditis, not much to do about that … back to my wonderful Chinese MD who again got me over it drinking the most horrible brews, but considering the alternative… I kept having my ups and downs, health wise, there would be months of being down in the dumps and then I would be OK again. I don’t remember when I went on Milk thistle but that was at least 35 years ago, it saved my liver from bigger harm. It was not till 2001, in Spain, that I was finally diagnosed with HepC genotype a1 with a 8000000 viral load and was sent to a Hepatologist. He said that under the circumstances I was doing amazingly well and that he did not recommend the at that time available treatment, bless his heart! The next years were not easy, I had 3 life threatening surgeries with organ failures but somehow I pulled through, they called me the styrofoam lady who always floats and never goes under. Then the better treatments came on the market, Harvoni etc., but somehow I did not qualify because I was not sick enough ….really !! I was a medical nuisance because of all the special cleaning that had to be done after my surgeries. It was not until I had a tiny, teensy heart attack that landed me it the cardiac unit and they had to shut that down after my catheterism that showed everything was clean and fine where they finally said enough was enough already and that my Hep. C needed to be treated. Even then, somehow, it was not bad enough to qualify for the free treatment until I mentioned the liquen I had on my legs and back, that apparently was severe enough….. finally !! They put me on Epclusa for 3X 28 days for free. With the very first pill my head stopped hurting for the first time in 50 years ….for only about 12 hours but that was already wonderful. The first 28 day were fine and the viral load had gone down drastically, the second 28 days were not as easy and the third 28 day wrung me out, but little by little I recovered. Not being in the US and not having my wonderful Chinese MD I have resorted to a wonderful local acupunturist and Ayurveda specialist, they keep me healthy. My skin is still very much an issue but I can live with it. The Covid vac. gave me horrible reactions, so now I need not get them officially. I am a lot healthier than most people my age (80) I am active, ride my bike, swim, walk, do Pilates, read, write and play Bridge and am very great full I can share this with you all. God Bless !!
My father had Hep C for years and always got the run around. His primary doctor for years had student interns that kept running tests and telling him that he had Hep C and he should go see someone, which he never did. My wife is now a PA and helped me understand that he should have been treated and cured years ago. This is what she shared with me that I wish anyone dealing with Hep C knew. I brought this to his doctor and asked him to just follow this Hep C algorithm of ordering labs and giving him a script of Epclusa since it was covered under his Humana insurance. It took a while to get it because he was denied because the doctor wrote it for 90 days which gave a quantity limit denial, when it should have been for 84 according to the pharmacy. He paid $5/month for 3 months and has been Hep C free since covid. https://www.hcvguidelines.org/sites/default/files/full-guidance-pdf/AASLD-IDSA_HCV-Guidance_TxN-Simplified-Tx-No-Cirr_e.pdf
Diagnosed 2013 treatment immediately after liver biopsy showed F3 and my viral load was 90,000,000 which shocked my doctor. Sovaldi/RIBA for 6 months. I worked everyday. Towards the end I became anemic but pushes on. Afterwords although super appreciative of curing my HCV symptoms began to emerge that were mostly musculoskeletal. Then my breathing,ongoing liver, cardiovascular,now kidneys, etc... After treatment an MRI showed AVN in both hips and marrow reconversion which is a natural process but not when medication caused issues. Sensitivity to light,noise,and especially temperature. Basically after almost a decade of searching for answers and relief my path took me to the Mayo Clinic in Jacksonville Florida (I’m in Melbourne) Floriduh! So they’ve helped me discover many issues with my blood. Rheumatologist,Orthopedic,Immunologist,Pulmonologist, etc…. All agree the HCV and factors regarding years infected , viral load, genotype, etc along with the medication ruined my immune system. Fibromyalgia,Sjogrens, Arthralgia, Myalgia marrow edema, effusion’s leaking out of all bones imaged. COVID vaccine had a startling effect on me and I cannot get vaccinated. I had a severe reaction of inflammation, blood clots, necrosis or desquamation on all fingers. My toes still burn and I still get petechiae on my stiff sore knuckles. Mentally? Well I was working 55 hrs a week as a surgical technician and medical records manager and Safety Manager and a million other jobs plus I owned my own business cleaning surgery centers. OCD unstoppable with hobbies (drums and collecting seashells) I still do the shells but can’t drum. My older brother diagnosed with schizophrenia and having delusional infestation and has scarred himself for over two years. My oldest brother has stage 4 lung cancer and colon cancer and my dad is slowly dying of prostate cancer and I’ve been his caretaker along with my mom who needs more then I can give. My identical twin led the same path as me as far as health so we suffer together. We raised his daughter together when his wife (her mom) bailed after 1 1/2 years. She is 29 now and absolutely beautiful,intelligent,independent woman who keeps us grounded. Weed a small few friends and family that’s what we got. That’s everything and that’s enough for me to keep pushing through it all. I’m not a religious person at all. I was but escaped all forms of indoctrination and fantastical stories. I live in reality here and now and I do see through all the BS,that there’s no shortage of, we are fortunate to be here in this place at this time. In fact I think there’s another rocket launch ? this week which is awesome that we get to see so closely. Our grown baby girl works for a fossil museum and cares for all the reptiles including the alligators ?. Raised by two twin hippies she loved the shell trips and took to it and now has broadened her collecting to minerals and fossils. My twin just got about 40 ghost crab specimens from after hurricane Nicole and exposure of the fossils and removal of miles of beach. We lost five ft of sand. Crazy. We’ll my advice is be your own advocate and push if olyou feel something is wrong with your body. You know as you live in your body all day and night! So make sure your heard and taken seriously. Mayo Clinic’s amazing service and they accept all patients regardless of status. They have been extremely professional. Be positive. Never give up and always look for happiness.
Yes, mam my name is Cassandra Guidry I went hepatitis c almost 5 years ago and was dum founded on how I got it went through all the meds until till finally got me on the meds that cured me. Until I got results back a few days ago stated I have hep c again I don’t understand how and way because I didn’t do anything I don’t do drugs I don’t ate ever had multiple partners never gave blood so when I got it the first time I was crazy with how. But when the doctor called and said I had it the second time I was really crazy with how. After 5 years.
I was diagnosed with hep c after the virus laid dormant for 10 years. It hit me like a ton of bricks after being told and I was completely fatigued for an entire year. My body was ok for a while with a fair amount of liver enzymes and then almost a year later my viral load reached 3 million and my enzymes soared to very moderately high. I realized then that i was going to need epclusa. I took one pill a day for 3 months and am now cured of hep c. The treatment was no picnic. For every night of sleep there was a night of insomnia to follow. The side effects are a bit much so you have to stay as healthy as possible. I recommend Ayurveda, prayer, and exercise! Good luck and much love to all who go through it
I Got hcv in 1976 and got quite sick after a few months. That time it was called non A and non B. Later they got that splendid idea to call it hepatitis C. It was b1 genotype. I recovered and years went by and I had been told, that it was dormant, so no reason to worry, but be careful not to pass it on. After about 25 years I started to feel very tired and exhausted most of the time and having back pain. Then I came to read about HCV on the internet, and found out that I had the symptoms and contacted my doctor to ask about what to do, I got a test and my doctor was very surprised that it came out positive. So I started to try get into a treatment, but the first couple of years I got refused, but finally I got the green light. In my country medical treatment is free of cost and I started 48 months of interferon Alfa and ribaverin. After 12 weeks I had a test that said the virus was going down, so I continued taking this medication though it made me feel very bad and like I was about to loose my mind, but I was afraid that the virus would eventually end my life pretty soon if I didn’t finish the cure. A few weeks before the date of the end of the cure I was feeling so bad, that the doctors told me to stop taking any more of this medication. I was extremely lucky to know, that the virus had gone for good even though I got some scars on my liver, that will never go away. I got a lot better and today I’m 67 years old, and I have had 27 good years now without the virus.
Sarah ,it really does work I took it last year and I’ve been dealing with hepatitis C for 30 years I contracted Hep A from working in the Howard Johnson’s in unsanitary conditions and then I contracted hepatitis B from my ex who was a drug IV user. I wound up in the hospital in a coma for 51 days and woke up yellow with a terrible rash up to my neck that stayed with me for a little bit very skinny and like you said I chased the cure for those many years with that terrible drug they wanted you to inject and be sick for a whole year and no guarantee it was a cure ? But you know what Florida gives it to you for free and I think that’s a bunch of crap that you pay that kind of money the five dollars for the Epclusa sounds right! As you do remember they took Harvoni off the market I wasn’t ready to give up and die I felt like I had a second chance at life ! I’m 61 years old now I just got the Covid if you get sick do not by all means do not take the antiviral medicine paxlovid I really believe it destroyed my liver I’ve had excruciating pain it was a 900 mg a day for people with compromised immunity systems and yet I feel like it compromise my immune system and threw me right back to square one now I got to go get tested again this is ridiculous!
I found out I tested positive for Hep C in my late 50's, but due to the lack of comprehensive insurance coverage I put off research until I was covered under Medicare at 66. I discovered a website in Tasmania (near Australia) that allowed me to submit a medical report, doctors prescription, my shipping details, and $550.00 US dollars, to receive the Hep C drugs from India, where they are manufactured, within 10 days after receipt. After receiving Sofosbuvir 400mg + Daclatasvir 60mg, I notified my internal medicine doctor, with my organs in good shape after ultrasound, I began taking the 12 week treatment, with blood draws taken during and after to monitor. The treatment was successful! PS. I have opted out of Medicare Part D, so I never pursued drug treatment through Medicare.
Started the generic Epclusa 28 days ago and feel fine. Unlike the interferon, which was a total failure. Looking forward to the next 8 weeks for the results. Thanks to Healthwell for giving me this opportunity, I'm forever grateful for accepting my application. No side effects at all! Cannot thank everyone enough for all the support, will follow-up with my journey.
I was about 19 when I left home for Santa Cruz. I was extremely lonely for I knew no one and it had me craving drugs badly, especially opiates. I started hanging out with a street urchant. He was a great guy and I grew to love him but he was a terrible influence. We started messing around experimenting with injections straight into my neck. Ten years later I’m diagnosed with hep c that had laid dormant that whole time. Just as soon as I heard the news it hit like a ton of bricks with a few very bad symptoms. I’ve been very fatigued for entire year. Viral load started at 800,000 with my liver looking pretty good and actually improving. I started taking Ayurvedic herbs and living the veg lifestyle 3 years ago which works wonders. I wanted to cure it naturally but a year later my viral load is 3.4 million and my liver enzymes are moderate high. It’s my second day on epclusa and aside from being very tired I’m feeling pretty good about everything. Please pray for me - Joshua P
In 1999 gave blood at the blood Bank and received information that I had HCV. Went into treatment with peg-interferon. 6 months and near what I thought was death ( lost 40 lbs, spots of hair, and nearly my mind. 2022 my viral count was of the chart bit still pretty healthy. At 71 years old decided to try again ( the six months of enter felon didn't work). Then there was the cost 2 grand with insurance for a 28 day supply, no way could I afford treatment. Contacted Healthwell foundation and within 20 minutes, I was approved for the entire co-pay. Started on the generic Epclusa this morning with the fear of my first treatment on my mind. My wish is to be free of this virus by 72! If it hadn't been for Healthwell it probably wouldn't have been. Praying for the next 8 to twelve weeks to go quickly.
I was diagnosed with hep c genotype 1a in 2002. In the beginning, I went to UVA and the only available treatment was Pegasus interferon and ribovirin. The treatment then was 48 months and cost $155k at UVA without having insurance at that time. In 2016, I was prescribed Harvoni. Even with great insurance my copay was $1200 per month for 9 months. I am now taking the 12 week treatment of Epclusa. This is my first day and I am concerned about some of the side effects, but it’s worth it. The drug is $8500 per month without insurance. My copay is $120 per month but I was referred to a voucher company through Ingenio Pharmacy where now I only pay $5.00 per month. Talk to your doctor about Epclusa. There is a generic brand available that I take. It’s worth the tests and work to get the cost down. My only concern, as said, are the side effects. I’m 39 years old so I’m hoping they won’t be too difficult to deal with. Ask your doctor to refer you to a gastroenterologist. They will handle everything. I got my appointment and within one month I started the drug. With genotype 1a, this 12 week treatment is guaranteed 100% curable.
This is about my mother and her situation she was diagnosed with bladder cancer had treatment with chemotherapy and had success with being told the cancer was gone! But found out she has hepatitis C from a blood transfusion needed from a faulty contraceptive that turned into a class law suit from thousands of woman, my mother was told they could not treat the hep C because it was to dangerous so i am wondering are there any other stories that could help her and I thank you
I had no idea I had hep c, never had any symptoms at all. It was discovered in 2013 on a random blood test. being a healthy organic and active gal I refused to take interferon or do anything else but some Chinese herbs, diet, and exercise. In 2015 I took harvoni for 8 weeks ad remained totally free of any viral load. Never had a side effect, never missed a beat. It's been 7 years. Hope for the best and make it happen. hep c is curable. I had genotype 1b
In 2010 i knew i have hcv, after that normally i was hopeless n panic because my kids were just grown up, they need my hole support wife also. After that i went some of my friends ,they share me thier story experience n encourage me very welly always heartly apprecieat n respect to them. Any how time passed i work in one of nice office its help me forgot to think about i have hcv, then 2018 in our city some ngo by under UN they provide cheackup n provide medcine, so i cheackup my viral load, hcv too much then they start medcine until 12 weeks till now i am ok Now my younger son he was 19, younger daughter she is21she is studying bacholer 1st year, n my eldest daughter she is studying in abroad , All iam expalined about my child cause i was too much worried about that time when i knew i have HCV thanks for God n you hole supporter. But still i am worried when i fell pain in my liver side, any way i request you all never do ID, carefull when you do make tatoo, plj plj plj if you have HCV never drink alcohal. Thank you Live long, life is very important n Beautiful. AUMNAMAHA SHIVAYA
I am not a hepatitis survivor, but you survivor of life. Since ayoung girl I always felt different. I knew I was not like my family or friends and I whent through school not having a real identity. It is when I met the wrong friends and fell into drug eating disorder and alcohol addiction that God's hand over me and my life became more apparent. I have put myself in the most dangerous situations you can ever imagine but I am still here today. God saved me from jail from death and the clutches of abusive men. I have not had the Acorona virus and am in fairly good health. All I want to say to you is, not matter what you are going throu or have gone through, never stop praying, never stop believing that God is with you becouse He is there and Lord Jesus Christ is there with you by your side. Just reach out and He WILL touch you. May The Lord give you streng, endurance, health,wisdom and a long life. I pray this in Jesus Christ name amen.
sad for the many posts here relating their doctors giving them the runarounds. Harvoni dropped my major hep c 1a (the tough one) to undetectable in 3 weeks. Unbelievably easy on me, no side effects unlike the poisonous Ribavirin and Interferon that did nothing but make me seriously ill. Demand the therapies that work and cure from your doctor. Harvoni was at first $1.150.00 PER pill. Worth it for sure. Manufacturer in Palo alto let me have it in early trial for zip $0.00.
I probably got Hep C in the 60' along with all of my running buddies. I got clean in '86 and stopped drinking and drugging. I'm still here and they are all dead. One of the best herbs I've found to support my liver is Milk Thistle. I even suggested it to one of my friends who was looking at a liver transplant. His levels decreased and he thought he wouldn't be able to get the transplant so he stopped the Milk Thistle, not too long later, he was dead also. Eat healthy and don't drink any or much alcohol, you just might make it.
Hi my name is Michael and I am 68 years old. I was diagnosed with hepatitis c at 35 years old. I did 2 separate trials for treatment. 1st was interferon and ribavirin combination. It was very difficult. Super tired and anaemic. Lost a lot of weight. The treatment failed. Then pegalated interferon and ribavirin. The difference being that the interferon is time released. It also failed. Then as the years went on they invented Harvony. This was the miracle I was waiting for. I took a 12 week course of Harvony and now I am Hep c free !!!! Yes I have a 0 viral load. I have been this way for years now. So if you have had previous treatment and failed don't be discouraged. The new treatments are working well. The side effects are nothing compared to the interferon days. I also had the genotype 1A which is a more difficult genotype to cure. Good luck and healthier liver.
Got hep C virus injecting cocaine 21 yrs old. Did not find out had virus until I was 40. I am an over the road truck driver.Tried interferon while driving & living in truck. It was hell & did not work. Giving myself shots & oral meds. Some days lay in fetal position in bunk all day. When harvoni came out had no insurance way to expensive for me. 2018 doctor's told me 90 days to live due to cirrhosis. I was 58 .My meld score was 14. Found Dr James Freeman located in Hobart Tasmania Australia. He founded Fix Hep C. He confirmed what American doctors had said 90 days nothing he could do for me. 2 days later he contacted me saying we should give harvoni a shot after all do nothing & die. He provided me medication manufactured in India. I took a year off work took the medication for 48 weeks cleared the virus by my first labs. Obviously I am still alive. I flew first class to Hobart & spent 2 weeks at Dr Freeman's home. He is a brilliant wonderful man. Just had labs virus still gone I work everyday. To all my hep c family fight the dragon stay strong we are survivor's
Don't know if got from sis-in-law (army) just recently learned s.assault. Don't know if got from brother. Don't know if got HC from husband (HIV elite). I think I got hantavirus (rat/reno). I did get Viekira around 2015 and it's been "do healthy" whenever I can. Esp. sleep. Postmenopause. Stomach rest, colon routine, pancreas less insulin. Intermittent fasting (no sugar) (no alcohol). Ginseng, Himalayan Pink Sole' (pinch salt/water) first thing. Coffee. I eat basically 2 meals/day. (IF, see Jason Fung Youtube). Dave Ramsey Youtube, financial peace university. Mindful of stress. Bottom line: today is the beginning of my life. Enjoy it. I personally think Viekira was wonderful. I get flu/Covid shots. I visit drs. once a year. I am thrilled, happy. Still need to lose weight ("Eat to LIve," Dr Fuhrmann MD). Youtube a whole lot for info purposes. Just so happy. Pace yourself. I remember watching Barabara ONeal on Youtube and she is absolutely fantastic on health issues. NO laxatives. NO OTC (maybe a low dose aspirin here/there). Teas. Those soft drinks a no-no. I changed, tweaked a few things, and just very grateful. HAPppppyy New Year!!! Viekira 12 weeks was the bomb.com.
Hi, I have had Hep C, Genotype 3 for over 40 years because of a Big Mistake I made as a young teenage just to fit in! I don't do drugs and only experimented with them for a few years. I didn't get diagnose until the 90's when my liver enzymes were elevated. I didn't think much of it back then but in the past few months I have been breaking out with rashes and itching. I think it's from the Hep C so I changed my diet, back to fruits and veggies. I am a little scared mostly because my husband died from liver disease and I watched him suffer for around 7 years. I am going to see a doctor in a couple weeks.. I am afraid to take any treatment because I don't take any mediation at all and fear the side effects and long lasting effects from these drugs. People who are taking them I tip my hat to them, they are very brave. Right now I am taking Vitamin C and Vitamin D and trying to find supplements that will help. I pray for all of you that are going through some hard times with Hep C, and pray the Lord will see you through your treatment if you decide to take it.. Blessings Deanie
Hi. I was 22-23 in 1982 contracted Hep C, antigen A. 32 yrs later I started 89 days of Harvoni. I was desperate earlier that year for an anti virus med and had joined a clinical trial. The doctors pulled me off of that and I was mailed the Harvoni. Now it's 2021. I'm 62 in December and after I did the meds I went to hepatologist. They were happy. I then followed up with my primary doctor. All along my 32 years I didn't take care of myself but before 2010 I began using health food store products. Burdock, milk thistle even tried silver colloidal. Water water water. I now am only having the itches and minor short term memory loss. Aches and pains of mine are also from arthritis. Prayer and faith are my go other meds. *Hydrate with water!
I discovered a couple months ago that I have hep c. I'm really scared about it the only way I could tell is because it makes me itch. I'm taking Epclusa and I feel good about it. I feel zero side effects although it makes my hair fall out. Please pray for me I appreciate that very much!!!!
I just want to share that my son has had hep C for 11 years, he is now getting the cure "Maverick" I have worried all these years because had drank alcohol for many years he has normal fatty liver, no cirrhosis, No liver cancer. I was some really good news l have lost my daughter to lung cancer That happened 5 years ago she had just turned 40 and my husband 9 months ago to prostate cancer and, Hodgkin's lymphoma. So l was so thankful to finally hear some positive news. So,, were praying this cure works. And for anyone out there who needs treatment and maybe even lives out of lndpls if you could make it here to lndy and establish a doctor at University Hospital a primary care doctor there and and yes you'll have to take more blood test and I promise you they will get you to see a liver doctor for the cure. Praying for all of you?
I was diagnosed with Hep C a n 2012 but likely had it for many years resulting from my use of intravenous drugs in the 1970s. in 2013 I was diagnosed with cirrhosis. I received Sovaldi / ribavirin in 2014 -2015 and was declared cured of Hep C in late 2015 following 6 months of medication. Main side effect of medication was insomnia which has remained to today. After not sleeping for a number of nights I develop anxiety which can be overwhelming. The anxiety has also led to depression and I tried antidepressants to combat depression. I have tried various medications to combat the insomnia and the depression but there are always side effects to those medications. Side effects can be horrible. It has reduced my quality of life considerably. I was diagnosed with liver cancer a couple of months ago and am currently awaiting a date for surgery. My future is very uncertain at this point and I am wondering what is left to live for. Anxiety is very high every day. I will go for this first surgery and then have to evaluate what is left afterwards. Angus
I was diagnosed with cirrhosis 2014 I can feel my body breaking down everday my belly is well extended my bowels are starting to collapse lord if I had one wish it would some how get a liver transplant amen
Was told in 1974 I had hepititis B now 47 years later have liver issues but after testing they say I have hapititis C not be can this be possible hadn't had a problem all this time now 70 years old having digestive problems caused by the Liver.
I have had all the different blood work. And my doctor and I know what kind.of hep. C I have. So why is it even time he sends me to the Goncolgist for treatments, they end up wanting to run the same stuff over again. And even want to give me a Collinophy. But not one of these doctors has started me on the medication that could help me I'm feeling frustrated,, I have 3 and could easily start the medication and get better. But no the specialist alway want to send me all over the place for more tests. I need help. I want to start the medication and get better. I have had all the testing I need. My liver is fine it is not scared. I have 3 and do not have herp. A or b. I even had this last doctor wanting to give me everything but the mess. Please could someone help me find a doctor who will work with my family doctor He has already done the work.
Probably got Hep C in the 1975 - 1980 time frame due to intravenous drug use. Many doctors over the years commented on my high liver enzyme levels but always thought it was due to me drinking. I didn't drink that much so I wish I had done my own investigation on my liver and not counted on others to diagnose me. Finally diagnosed with Hep C in 2012 after a doctor asked me how much I drink...when he heard 2 beers daily he knew something was wrong and sent me for follow up tests. Diagnosed with cirrhosis in 2013. Quit drinking immediately upon diagnosis of Hep C. Got cured of Hep C with Sovaldi / ribavirin in 2015. Cirrhosis has led to me developing liver cancer; diagnosed in April 2021. Going for surgery within a couple of weeks; doctor can't cut it out since it is too close to artery so he will burn it out using a probe. Good chance he won't get all the cancer so I start on chemo immediately post surgery. Long road of surveillance and ongoing treatments ahead. My main message is to be vigilant with your own health and monitor your blood results and know what each reading means, so you can push for any follow up investigation that is required.
I’m not sure how it happened but was just diagnosed. I’ve had the occasional hookup but have been told that it is extremely unlikely to get from just regular sex. I did have cosmetic injections of facial fillers, then about one month later started having headache/joint pains, that increased steadily and got worse until my diagnosis a month later. I can’t prove it was the cosmetic injections, but I feel that is most likely as they seemed to be in a rush. I feel so silly that I got them to look younger and then contracted this life changing disease and the stigma as well. I have only told the one person that I had been with sexually, no one else. I’m still stunned/devastated at the moment, waiting to see if treatment will be approved. I’m scared how this will all turn out.
On the subject of blood extraction from “ difficult patients” I.e extremely poor vein quality This was exactly what happened to me I visited the clinic and seen 2 different gastroenterologist nurses who couldn’t obtain the bloods needed to screen for viral load etc. In the end they got a gastroenterology consultant to come and use a long needle to extract it from my femeral vein at the top of my thigh.....and whilst slightly painful ways better than playing pin cusion. Hope this helps anyone Btw I’ve been a herion addict for 10 years......but CLEAN for nearly 3 !
I was diagnosed three years ago. I had a blood transfusion 40 years ago and contacted hep c then. I couldn't understand why all those years I had "this weird feeling" inside. I always had bronchitis at least twice a year. I flew under the radar through four surgeries without being diagnosed. So I started on Epclusa and in 12 weeks her c was gone but it turned into cirrhosis and now I'm dying. I never drank or smoked cigarettes or did hard drugs. I dont know what is to be.
My identical twin brother and I had HCV genotype 3a and after treatment with Sovaldi and Ribavirin for six months it seemed all good news. My gastroenterologist told me he uses me as a model He apparently tells all his patients about me because I had a viral load of ninety million which was shocking to him and he hadn’t seen before me. Also my symptom of joint stiffness and swelling disappeared one week in. I became anemic and worked everyday. It was rough at the end. Then it just got worse and worse all joints AVN both hips , hospitalized several times for breathing issues , Fatigue!! Temperature sensitive. Heat is brutal for both my twin and I. He will have a symptom and I’ll follow or vice versa. You’d think we’d be perfect for study purposes. We both got our disease Same place time genotype length of time infected treatment and ultimately in SVR with tons of symptoms on oxygen and can’t walk at this point. Oh. Almost forgot. My hospital visit last month showed LVEF of 40%-49% which does explain symptoms and AVN numbness pain cramping and neurological issues. Fatigue. It alarmed me My PCP said not to worry. I’ve changed PCP’s and was recently approved for both SSDI and SSI with Medicaid for now but Medicare in like eight months. Medicaid in Floriduh isn’t really great but it’s something. I just need to find a doctor who gets it. Which has been challenging unfortunately. You get sent to all the specialists and they only deal with one body part at a time I was told by many. It’s absolutely insane. I just want to have LFT and CT and my rheumatologist ordered some labs. Anyway mr n my twin now have the resources to provide for ourselves on a budget. Cant jam on our guitar and drums but we ha r our seashells. That’s our passion for many years passed on from my dad. Buy sell and trade with all our shell buddies. Fun hobby and sometimes profitable. Well wishes to all who suffer and navigate our warped system that is unhealthy in itself. Hopefully you find a good doctor and get proper treatment and they listen as you live with you and know what your feeling. It’s so hard to stay positive these days.
I believe I got Hep C between 1999-2000, from IV herion/opiates use. Never had any side effects and never thought too much about it. Got clean in 2008 and completely turned my life around. Fast forward to Feb.2014 and my life is great. Great woman, great job, amazing step-son, lifting weights and feeling good...then out of nowhere I started feeling nauseous all the time. I mean feeling like I am about to throw up, not just feeling sick to my stomach. My mouth would water and I would run to a bathroom. This lasted around the clock, for several weeks. Went to hospital multiple times, as I was sure SOMETHING was wrong. Never thought it was the Hep C because I never had problems and was in very good physical shape. Tests showed absolutely nothing aside from elevate liver enzyme levels. Scheduled appointment with GI specialist about 2 weeks away and in that 2 weeks I lost almost 20lbs, lost my appetite, was vomiting several times a day, had EXTREME fatigue, and turned yellow. My eyes, my skin.....yellow. I was so weak that it took all I had to walk up the stairs to my apartment. 1a genotype. 3 month treatment cycle of ribaviran, sovaldi, and peginterferon and been non reactive since. Treatment was horrible and I threw up daily, about 1hr after I took the sovaldi. Did the interferon shot every Saturday night and within 24hrs I felt like I had the worst case of the flu, and that lasted until about Wed. or Thurs.. I would have had a hard time finishing the cycle if I wasn't already so sick from the Hep C. It definitely saved my life. I was self pay so I had to write the companies that made the meds an they gave me all of them for free, but I also had to do the treatment without doctor supervision. The doc I saw wasn't going to help me because I was self pay. He said the meds were expensive and I wouldn't be able to afford them. His nurse stopped me on way out, apologized, and said she'd handle my treatment. Got doctor to write prescriptions, etc. and I never saw him besides the initial consult. He sent me away even though I was heavily jaundiced, sick, and was in really bad shape. Never gotten a biopsy. I feel better than I di, but I have not felt the same since. Extremely fatigued ALL the time, constant brain "fog", I randomly and often feel like I have a severe flu, etc. I feel like crap all the time. Been to several doctors and they have done blood work, then told me there's no reason I should feel this way. It's frustrating. Been 7 years, and I've been unable to work for over 6 of them. Unable to get disability because I have no specific diagnosis.....
My daughter's, boyfriend (Daddy to my first grandson), is chronic hep c infected. He was in liver failure at one point. I had been working 15 hour, back to back shifts. I awoke after 3 hours of sleep, to him, and my daughter fighting. My grandson, was screaming, and crying! I went in to get him, and while I was getting ready to pick him up out of his crib; he came in with his injection kit, told me it was my daughter's, and she's shooting up! He dumped them in the floor, and ran off to fight with her. I had to pick up the needles before I could get my grandson. As I was leaning over to pick one up (it didn't have a cap on it) I kicked the plunger end on accident, and got stuck! It was just a tiny poke, so I just kept squeezing the wound, and went to clean it up. Dumb me; I thought that was the end of it.... No, two years later, all of a sudden I can barely breathe... Two days later, I wound up in the ER with 4 liter's of blood, puss, and fluid on my right lung, fluid on my left lung, and fluid and blood around my heart. I'm taken into surgery a week later, and come out with a chest tube for a week. Not one doctor can figure out where the fluid is coming from. After two weeks, I'm sent home. A week, and a half later my family doctor puts me in an ambulance and sends me back to the hospital with 17 pounds of fluid on me. Next day, I get an emergency chest tube, then another lung surgery, with another chest tube, and a permanent drain tube in my chest. I'm sent home two weeks later, and no diagnosis still! I go to my family doctor, and he says; I have an idea of what it is, let me do a lot of blood work. 6 weeks later, I found out I'm Chronic hep c... He sent me to a liver specialist, and I get a liver scan. I'm a stage 3 liver cirrhosis, but because I'm Chronic, it's more like a stage 4. I get approval for Epclusa cure. I'm going to be honest.... That medicine is hard to deal with! It drains all of your energy, bad headaches, and nausea. Your grouchy from the fatigue, and headaches. I'm going to tell you, Don't stop taking it!! please don't!! Hep C is way worse than the cure! Your hair falls out, it attacks your brain so you can't think straight, or remember short term, you want to throw up all of the time, your body aches, and your liver hurts. The fluid build up on your belly, and lungs is horrifying! You'll end up in surgery like I did with chest tubes (emergency chest tubes are extremely painful!) The doctor gives you a local to numb the incision site, but you get nothing else while he or she shoves that tube in your lung sac and moves it to the right place, stopping to take X-rays while doing it! I wanted to scream so bad, but I clinched me teeth, and screamed on the inside! A CNA offered me her hand to hold, and I took it. The poor thing, she was in pain too.... That was in April of 2018, and today is February 12, 2021. I began my Epclusa, in October of 2019, and finished it January of 2020. I had to do blood work every 3 months for a year to make sure I'm still in remission, and I am! Yay!! I have found out through research, that vitamin C is very helpful to heal my cirrhosis. I drink lemon water every day, and lots of orange juice. My family doctor says my liver enzymes are better than his! I had an ultrasound done, and he showed me where it says, my liver looks NORMAL! I eat healthy, and have begun a regime of vitamins: E, super B complex, A, biotin, L-lysine, and some others for skin, hair, and nails, because the Hep C ruined mine, like: collagen, and extra C. Listen to your doctor, and take care of your liver, and if you're using.... Please, please stop for your health, and for your family. God bless!
For Jessica..your itchy because of your bilirubin number is high.Ask your doctor for Cholestyramine.It will stop your itching.That itching will make you lose your mind if you don’t stop it.
I was a meth addict for 17 years . using needles everyday . I quit four years ago . Now im trying to get my hep treated and nobody can seem to get a vein anywhere to get the bloodwork I need to get started .
Hi. I found out of my hep c after giving plasma when I was 19 after years of doing anything I decided to do the new medicine to get rid of my hep c that was four years ago after three months my test came back no hep c I’m 60 now and they said I’m at early cirrhosis and also I found out I have a small bile duct blockage after months of pain my pancreas is at 10 mm my doctor won’t do anything I’m on disability so I decided to try the treatment for my liver but I don’t know how much to take and if it will help me I want to try the ultra I take meds for my high blood pressure and pain meds for my back bulging disks neck and lower back.
I'm almost five weeks into my treatment. I'm taking Mayvret 3pills once a day with food. Felt crappy first week but have been fine since. My viral load was 10,700,000 when I started and just got my blood test back today and it under .15 now!! A little over three weeks to go and I'm finished! I feel so much better knowing I won't have the stigma of this virus any longer. Anyone worried about starting treatment should absolutely go for it and take your life back!
my story My story began 1999 now I'm hurting from it really bad finally kicking my ass I feal like I have a hang over everyday . I have two young children that ID like to stay alive for but I cant seam to have enough energy to get up and do or go anywhere. I lost my two kids going to be 8 and 3 . boy and girl . y that I'm hopefully being able to see this Christmas eve . but whatever the hepatitis c doest ruin for the pandemic surly will . energy is the main lack there of. And my patience seems to have disappeared as well . I have just awoke but feel the need to return to sleep. Goodnight. And I hope to god im alive to speak again. Please enjoy your lifes. You never know when. but life has and will come and go . as it pleases . and for us it only comes once . goodnight . and god bless . stay safe as you can .
Cured hep c and it cured cirrhosis of the liver in four months!!! Blessed!!!
I had hipetites c for 38 years my we it was 54/56.The medection I took I was putting on weight free from the vires but over one year have put on 20 kilo's.The doctor told me I have a fatty liver.I want to loose the weight.
My identical twin bro and I contracted HCV due to intervenious drug use. Or abuse . We have ALWAYS lived together , worked together , even raised my daughter together . We estimate we had the virus for 15 - 20 yrs not knowing . Until my brother started feeling abdominal pain , had a blood test to see if he tested positive for HCV. His viral load was 90 million , even his gastro doctor was shocked and said he had never seen such a high viral load. So , turned out we both had tested positive , both had genotype 3 , which required 6 month treatment of ribavirin sofosbuvir. Since treatment , which was back in 2014 , we both have the same long term side effects . Both diagnosed with having rheumatoid arthritis , fibromyositis , and sjorgens. It's as if the side effects mentioned while you are taking them. Joint pain , fatigue , etc . Never went away and either the HCV or the chemo induved these aggressive autoimmune symptoms. From skin issues , to chronic joint pain , muscle cramping , extreme fatigue , brutal fatigue !!! And memory problems , the brain fog. Whatever , all we can do is march on. We raised my beautiful smart daughter and that was after all of our party days . We are very proud of her , she's 26 now and doing extremely well. Well that's my story.. We both have each other , and fight through the fog , pain , fatigue , etc..
I was infected in 1987 to 89 hard to tell way back then. Im here due to diet not takIngedrugs I don't need. No smoking never did. And drinking 33/34 yrs ago I quite. I received Hep-C from surgery. So far Bill Clinton, Crechen, and the Red Cross are to blame for selling tainted blood to the blood banks in 5 countries. Sofar they've killed a million or more people. I finely turned into a ginnie pig my own permissiom. and it worked so now its available to the infected and healing everyone ask your doctor for HAVONIE.. Back in the 80s 90s 2000, 2010, 2020 they said 25 yrs ago I was to be compensated. Now im going on 66 and had to live sick all these years. Ive got so much truth that its sick to know what their doing. Look at C19,, C20,21,22. WE ALL MUST TAKE BACK OUR WORLD.
I received the news via a letter following giving blood for the first time. I am rhesus o negative the universal blood donor. I was alone on a work break from my new job. Was enrolled in university nursing degree. Felt I’d been given a death sentence. Never used needles but did snort a few lines of Cocaine with others. I estimate I had it for about 7 years. I used to binge drink a lot and always felt crappy, but reasoned that was how everyone felt after boozing and getting older. Anyway I had HCV type 3, treated for six months with Interferon and Ribavirin on the NHS. First injection gave me the worst flu symptoms I’d ever experienced, then it got easier. I lost weight on the treatment but ate the same, and my eye lashes grew so long they looked false. Lost some hair though. I was undetected at 4 weeks. And sustained no return of virus! A few years later I got a form of tinnitus with daily fluttering in my ear for a few years. Cured with sertraline believe it or not. I’ve not had any follow up scans but they said my liver appeared normal. Not fatty or fibrotic. I am seven years down the line now. Just hoping I won’t get The cancer.
I'm 58 epclusa has turning me around in two weeks of treatment before my kidneys and liver was quivering and depression couldn't even get out of bed only after two weeks of treatment was a med tech and got needle stuck the aches are gone feel awesome now can do my normal house duties as a wife praise God I can live again thanks to all my doctors and pharmacy people I had stepheoheptatis I'm glad to be alive thank your rita s 2020
Both my spouse and I had hep c, however he had auto immune hep c, and the doctors couldn’t figure out why he had different symptoms.They kept running tests on him, his body kept filling up with fluid. They even transfer him to another hospital for further treatment. He later died.
I was infected with hepatitis C through a contaminated blood transfusion in 1986. I had over 100 blood transfusions in 1986/87 for severe aplastic anaemia (destruction of the bone marrow). I received no help at all in coping with the virus so wrote my own survival guide which is on my webbsite www.medicineandillness.com which I stlll follow today as the virus so far has no had little effect on my liver even with sometimes a high viral count. Hepatitis C and aplastic anaemia can be a lethal combination. and can be made much worse by exposure to alcohol, all drugs and many chemicals so I avoid all these as much as possible and have a low fat diet.
I am now nearly 80. I contracted hepatitis C (type 1b) from a contaminated blood transfusion in autumn of 1986. The transfusion was one of many given for severe aplastic anaemia I suffered from at the time which was caused by exposure to toxic chemicals at work. My treatment for the aplastic anaemia and hep. C was often so appalling and brutal in four hospitals in the UK and one in France I have had as little as possible to do with the medical profession as possible and treat them all as potential psychopathic killers for my own safety and tell them so and they do not disagree I am right to do so. I have my own survival guide for both the aplastic anaemia and hepatitis C (see my website www.medicineandillness.com) which I have followed for over 30 years. I avoid everything, alcohol, all drugs and chemicals e.g. solvents, fluoride, which are toxic to the bone marrow and liver as much as possible and have a top quality low fat diet. I have very low liver damage so far. Liver tests which should have been done within two weeks have taken 10 months even though those doing the tests said they could have been done in a day or two! This is typical of the shabby medical treatment I have come to expect. I am again many months overdue a promised fibroscan liver test and will not bother asking for it again just to see how long it takes. Refusing a transplant for the severe aplastic anaemia, a condition which is a deadly combination with hep. C, I was only expected to live months in 1987. I have also refused drugs treat the hep. C as they can cause aplastic anaemia but retain the right to try them if the hep. C ever causes serious liver damage. I have letters from leading world medical experts agreeing with me.
It's been 3 years cured my treatment was epscula sorry didn't spell it properly, any way my blood is very good my liver was close to f4 now its f2 i am very healthy and fit,I do have a occasional drink doctor said its ok just dont bing drink. I am very lucky and feel blessed, for those who are waiting for treatment you will be ok and feel good again
Hi, a little down today. Probably medicine kicking in, week one Epclusa. A lot of stress going on, our world is is in such upheaval, not to mention my young daughter (23) moving home during these trying times with a negative attitude. I was treated 5 years ago with one week injections n tons of pills daily, cleared immediately, finished treatment, by the way was exhausting, only to test positive 6 months later. So very depressing, but tried 2 years ago for treatment again only to be told by insurance that basically I wasn’t sick enough ( only treating F3 & above) I was alcohol n drug free for 6 months , what a struggle, no drugs for me but I did love my wine or beer at happy hour. I was so upset, swore I’d never try again, I’d just go on and live with my geno type 1a happily..... NOT!!!!! Ever occasion of drinking brought much internal guilt! I wasn’t helping to atleast guit alcohol. This past May 2020 marked 1 year of total pain. My brother (58) passed away, my dear kitty of 20 years went to the rainbow road, my nephew (30) overdosed and is with our Lord Savior, then the worst, Mom passed on, after a well lived life. Distraught, went back to Doc, told him I’d drank everyday for a year. He wasn’t surprised, but I’ve finally decided I want to live! For that daughter I told you about, my family, I need to be here to do some good in this world!!!’ Thanks for the outlet, just 1 bad day, tomorrow will be better!!!! I continue to pray for all of us every day ... GOD BLESS ?
Hi, I am a 50 year old female . I knew I had hep c from my younger wild days. i had no ideal the impact of what i was doing, I got custody of my 15 month of grandson. Looks and acts just like his father, He is 6 now. I have diabetes and decided to go have the weight surgery to get healthier and live a longer life for my baby. I went to weight doctor and had to have so many test done, The doctor told me some test did not look right so sent to to and Liver and GI specialist. after a fiber scan and liver ultrasound. this was during when the Covid 19 first stared, I am so happy that I at least got all the testing done before, he called me on the phone and told me bluntly and very rudely that I had compensated liver cirrhosis. I ask him what was that exactly what that was, The man told me to google it,,, I googled and every time it came up with what does it feel like to die and horrible things, I had only seen this doctor 1 time to do my colonoscopy . he is rude ans treats me like a simpleton. I finished my 8 week treatment yesterday , Im very happy for that . but I still have cirrhosis..I dont know what is next for me because my doctor is on vacation. d and dont wanna leave my child behind, he has his mother and father (my son )but I hate the way they live , Smokes in house . dirty, cant buy him anything ,not even a bed , my sister is a nurse in Ga, and told me if we were a match she would not let me die, She has the type o blood, I have no idea if we match at all. I am asking anyone that has been in this situation about what is gonna happen next please comment ... i guess its true ., what you do in the past Always comes back to haunt you,,, My wish is that I could go back and have the treatment,, I really didnt know this would happen ,,I Have no ideal what I should be eating,,but trying to eat good thing when I do have an appetite, I cant sleep, Im so itchy all the time ... anyone that reads this if you can help with info please try to comment,,, god bless everyone and I know we can get thru this virus that has stricken our world... that another thing I worry constantly about,,, god bless all you guys.....
Hi, a little down today. Probably medicine kicking in, week one Epclusa. A lot of stress going on, our world is is in such upheaval, not to mention my young daughter (23) moving home during these trying times with a negative attitude. I was treated 5 years ago with one week injections n tons of pills daily, cleared immediately, finished treatment, by the way was exhausting, only to test positive 6 months later. So very depressing, but tried 2 years ago for treatment again only to be told by insurance that basically I wasn’t sick enough ( only treating F3 & above) I was alcohol n drug free for 6 months , what a struggle, no drugs for me but I did love my wine or beer at happy hour. I was so upset, swore I’d never try again, I’d just go on and live with my geno type 1a happily..... NOT!!!!! Ever occasion of drinking brought much internal guilt! I wasn’t helping to atleast guit alcohol. This past May 2020 marked 1 year of total pain. My brother (58) passed away, my dear kitty of 20 years went to the rainbow road, my nephew (30) overdosed and is with our Lord Savior, then the worst, Mom passed on, after a well lived life. Distraught, went back to Doc, told him I’d drank everyday for a year. He wasn’t surprised, but I’ve finally decided I want to live! For that daughter I told you about, my family, I need to be here to do some good in this world!!!’ Thanks for the outlet, just 1 bad day, tomorrow will be better!!!! I continue to pray for all of us every day ... GOD BLESS ?
I had cirrhosis detected since 2003 caused by HCV. I did the ribivirin - Interferon tx in 2007 and became undetected. Since then I have been undergoing ultrasounds and mri's every year. I did everything year after year including coffee enemas EOD, milk thistle, parasite cleanses, bone broth, liver glandular, pancreas glandular, ox bile, Bilex all of the time, and Liver Flushes often. (These saved me from gallbladder surgery). I also made home made liver teas as well. In 2017, my ultrasound came back Homogenous instead of Heterogenous for the first time, but it showed fatty liver, but NOT cirrhosis. Same hospital, same radiologist. Then in 2018 my ultrasound came back Homogenous with smooth contour. Sill fatty liver, so I am diligently working on that now. No sugar, no alcohol, not a lot of high carbs, which turn into alcohol in the liver. Still doing the liver flushes when needed and coffee enemas every 3 days now. I am determined. The liver does so much including regulating hormones, and if that’s not working correctly, not much else is gong to work correctly. But vaccines, NEVER, esp with an already compromised liver. My nephew was damaged by them and I would never let those toxic adjuvants and antigens near my body. Did u know they have glyposate in them?
I am 39 years old and I was a heroin attic for seven years and I shut up every day Then on occasions I would shoot up on methadone my Viral load ended up being over 500 million I was pasty pale and tired all the time then and yellow I got the medication and my skin color completely changed while while I was under the treatment I took a bunch of M Marijuana brownies and it looked back at me I swear I kid you not and today I feel great no longer on heroin and sober don’t do drugs
I was diagnosed with genotype 3 Hep C in Dec 2012, and I stopped consuming alcohol immediately. I am guessing I was infected sometime during my drug-addict years, in the 1970s, while injecting drugs with 'dirty' needle. in Dec 2012, my only medication option for the Hep C was the interferon / ribavirin combination that made so many people feel ill during the treatment. My hepatologist wanted to test my liver before putting me on the interferon, and when the results came back showing I had cirrhosis, she stated that I would not be a good candidate for this medication. So, at this point in time, I had a fatal disease with no cure available to me. Things looked quite scary. There were some drugs that were rumored to be released soon that dealt with Hep C, but the cost for these drugs in 2013 was over $100, 000.00 so I began searching online for clinical trials for the wave of new antiviral Hep C medication that was being tested in 2012-2013. In mid-2014 I was able to secure $139, 000.00 in funding from my wife's insurance policy at work, for a 6-month course of Sovaldi & ribavirin and I began consuming the meds in late July 2014. One of the side-effects of sovaldi was insomnia, which was very difficult to deal with....I lost 40 pounds of body weight during the 6 months, and was declared cured in late 2015. I thought that things would go back to normal after a while, but the side-effects of the cirrhosis continued to bother me. About 1/3 of cirrhosis patients have chronic insomnia. The research on this area is sparse, but the consensus seems to indicate that the cirrhotic liver has difficulty processing melatonin and the circadian rhythm in these patients is compromised. I have tried various medications for sleep, but nothing has worked thus far, and many of the drugs that have been proposed for sleep are processed exclusively in the liver and are dangerous for cirrhosis patients. The doctors put me on ativan, but it quickly stopped working and I am now detoxing off of it, while only averaging 2-3 hours of sleep per night. This lack of sleep becomes horrible when it begins to compound over months... I am losing body weight and feel constant anxiety / depression.. So, 8 years following my diagnosis, my life has changed massively. I find it nearly impossible to work, because I can't predict whether I will have slept for the previous night or more when I have to go to work. This has led to incredible financial stress and I regularly wonder how I will survive. This is my story of how Hep C has affected my life.
I know to Have epatite c in 1993. I maker nothing. Interferone was orribile and dosen't work. In 2011 Have a cancer and a transplant. After one year the virus come back, worst. Than appear the first cure. I take it. Virus deseappears. The Molinette of Torino Italy make me a second transplant. Now i am 61. I feel good, come back to work. I can make every think. The Cost? Nothing. This is the setter sanitari service sound the world
I have Hep C, and have had it for some time. I have had a Very Difficult time trying to get it Treated... Now I'm told that the Medication is too Expensive and that I can't get it!! I'm 78 years old, and I still feel 50. The Symptoms of the Disease are taking a Serious toll on my Everyday Life! I'm in a quandary about what to do!! The Hep C makes me Weak Daily and I have other Health issues that give me trouble... So, I'm Appealing for Help! Can or Would you Help me??
I found out about a month ago I am positive for help . I was wondering if I might have had it a while because besides the vomiting I have no feeling in the top half of my body
I suffered with migraines monthly at the age of 26. I was put on strong pain killers which didn't really help. At the time I had no clue you could shoot pills. I found out my oldest son was using and got my daughter started. It was the worst hell of my life. I found out my daughter had hepc. At the time there was no cure and I heard only nightmares about interferon. I decided if she was going I didn't want to be here so I started shooting. I got hepc. I didn't feel sick. I started going to a clinic with a sliding scale and the dr told me about epclusa. I qualified for a free program. IThe only side effect was I was tired. I have been off for months and no detection of the hepc. But I am always tired. My hips started being painfull and I get stiff after sitting for 10 minutes. I dont know if it is related to the epclusa but we are trying to get my daughter on the program. She has been drug free for 5 years snd manages the frame shop at Michaels. Hopefully, we get lucky. I hope I helped someone. Good luck everybody. And for the record, shooting drugs is not the only way to get hepc.
I was diagnosed around 1997 and the only treatment was Interferon. I was told I was not sick enough. As the years went on I had accepted I would die from liver failure. This year I was treated a with Harvoni for 8 weeks.( I was treated on a grant for those without insurance) I am now free of Hepatitis C !! I feel so very blessed!
I learned that I have Hep C when iI was around 23. I am 38 now. I am not sure how did I get it. Maybe my first amateur tattoo or the needle in trash. I just wanted to put the trash away when I was in my friends' house and there was a needle in it. The doctor told me to use interferon only for a year. One injection every week. I didn't care about the side effects but If I knew that interferon was going to destroy my life in the long term I would just wait as many did. I got Graves disease (Hyperactive thyroid). Dangerous thyroid nodules and Sjogren's Syndrome on the way now:( I hope I will not get rheumatoid arthritis but who knows. I have recurrent oral thrust in my mouth and of course, all of this might help cancer the form and threating cancer in patients with autoimmune conditions is very tricky. But HCV RNA is still negative but that doesn't mean it will never come back or show up in different forms. I go to check every year and it's still negative and I am glad there are new, side effect free pills around. Thank you for that! Hep C didn't destroy my life but interferon did.
I tried a self cure to rid the hep-3 I have with self cure. Viral load dropped to 35,000 then up to 214,000. So i took mavyret for 5 days because I felt I'll. I stopped the meds continuing to refuse. Months later virus was at 1.2 million. I gave in to the meds a month ago a thought. 26 days later virus is 15!!?
My story begins @ don't stop praying, And don't be afraid, ask a pray in Jesus name to God our Father, that he blesses you with a caring Doctor, and pray to find a insurance that will help with Meds, I did not give up, #1 keep praying, Be positive, and don't be afraid to take new Meds, its been 6 months non detected virus 4 me, Still staying positive it is gone, Thank, God.and his son, caring Doctor and insurance, keep yur head up
I have had hep c since i was 5. I got it after being gang raped and have lived with it for 30 years. Now im on epculsa and i have terrible headaches and mood changes. I have bad dreams and irritably. I cant seem to drink enough water. And im tired all the time. But i keep in close touch with my doctor and i am optimistic. I would like to be able to tell my children i am disease free. So im gonna try hard to tolerate it.
I have diagnosed with hepatitis b positive with 1130 UI/ML Viral load,help me how I will reduce the virus naturally?
I have had HepC 26yrs. I did not do anything for it until 7/26/2010 when I doctor told me I had liver cancer and 1yr to live.I didn't feel I had cancer and deceided to do my own experiment. My viral load was I million tumor marker was 238 and alts 88 and asts 81. I start with Natural Wellness suppliments Milk Thistle 500mg and Tumeric 1,000mg Puritan Pride supplimentss. I did these suppliments everyday tab each for nine years. I changed my thinking became very grateful changed my food a little and just went about my day. on 8/18/2018 My viral load is 1329 alts 61 asts 64 . I am 77 years old, I think I am 25 and just went on about my life that each day I got up I was grateful I was alive I spent 3yrs in Therphy getting ride of garbage from childhood. I feel free for the first time in my life. I live in the now and forget yesterday and do not plan for tomorrow. I wish anyone who reads this is to stay strong be grateful on a daily basis and JUST BE We all get so caught up in the Drama of and we forget to be GRATEFUL. Have a great Day and always remember you are Special
I was first diagnosed with non A non B chronic hepatitis in 1988, before they knew what Hepatitis C was. So I have had it over 30 years. I was also tested in 1999 and it was negative but the test was not able to pick up the non active virus and it is a chronic hepatitis. So I was having arthritis really bad especially in my right hand so went to the doctor and it showed that I have 36.6 rheumatoid marker's but Hep C can affect it.. it also picked up the Hepatitis C and my viral load was 2,143,336! Very infected ?. I believe in research of anything that affects me so I got busy. As soon as I read that Tumeric Curcumin had been known to cure mild cirrosis I went and bought a bottle of 500mg capsules and started taking them twice a day. Two weeks later my viral load had gone down to slightly over a million! I had my upper GI and colonoscopy three weeks ago and then I got cut off Medicaid due to my son turning 18, and the cheapest insurance market place could find for some one with a pre existing illness was$756 a month, which is out of the question for me...so I researched further and believe the Tumeric Curcumin is curing me.. I just need more blood work to confirm that it is a cure... This is what I have learned: Reported in American Language News sources suggest that Curcumin, the active nutrient in the spice Tumeric prevents Hepatitis C from entering liver cells. This ground breaking discovery represents a huge paradigm shift on liver disease treatment, given the fact that until now no other process prevented the Hepatitis C from infiltrating and degrading the liver. According to Doc Check News, a German online industry media site, the Institute of Experimental Viralogy in Hanover Germany led the world wide study. Scientist grew Hepatitis C cultures and utilized a compounded form of Curcumin to see how the viruses would react. The effect was almost immediate. The Hep C could not get past the liver cells enhanced defenses. This new information could prevent thousands of transplants a year. So I am treating myself and will be checking my viral load again soon
After reading the last few stories on Hepatitis Central, I think I might have overlooked something. I’ve been cleared of Hep C for about 3 1/2 years now. I read of some people going to alcohol, drugs, cigs, and other things that they think helps them cope. I probably STILL DO have liver cancer. I spent most of the spring of 2019 recovering from surgery and some procedures to try to get rid of this cancer. It breaks my heart to hear of people that continue to do damage to their liver while doctors are trying to save them. If you have Hep C or cirrhosis or liver cancer please stop your bad habits and start trying to save yourself. You are valuable to someone and what you do on earth affects others. Maybe your mission in life is to show someone else that doing drugs is the wrong road. Maybe one person will learn from our mistakes. Make something positive from YOUR LIFE. I wish all of US success in our struggles. With the grace of our Lord Jesus Christ we can overcome our problems. Have faith. Ps Don’t Vape anymore please.
I am so scared when I heard that I was infected by hepatitis b virus at blood screening center while my wife in bed of hospital need for blood, later on I meet my doctor for solving the problems. So I reach hepatitis central I was enlightened enough for my well being through their efford in providing authentic research pertaining liver diseases, thank you so much for your contribution in this wonderfull enlightenment
Well I waited for 5 yrs to get advanced combo medications to clear Hep C .V . well it was crazy .I became insomania . Then I started on alcohol and weed , then LSD, cocaine , Meth , MDMA, weed oil , acid blorts, hash , Hydro weed kiss, ice , crack , Charus , etc , also regularly use weed everyday from morning to night tilll I sleep , I sleep for about 6 hours , sometimes do not sleep for 4/5 days , a few months back I slept on the 8tj night . Iam so hypwred , emotionally weak, it's a mess , trying to get balance , iam 48 yrs young , I have been doing free hand excerises since my childhood still I continue doing it . It's the only wife I have who can be loyal . Iam gratefull a lot for being alive and fighting this side effects draw backs of this disease . I never gave up , I have got sucidle thoughts too , I cry a lot all alone , this shit totaly drags oneself down too low bottom , pit , trap , agony , hell , restlessness , serotonin syndrome etc etc , God and His Mercies , Grace and Blessings with healing is there allways , it was allways there and it shall be allways ...Thankfull...Stay Blessed ...GodBless Us more ...A
Hey... my name is Michael and I’ve never done anything like this before I don’t usually like to talk about it but if my story can help or give hope to one person it’s worth my shyness anyway I was an I V drug user and alcoholic for many many years I was changing colors and everything if it wasn’t for the mother of my children who is also my beautiful girlfriend of 23 years forced me to go to the hospital I knew I had hep c already had it since 17 years old im 38 now so I’m in the hospital no insurance no drugs and pretty much aggravated the dr came back in and told me his boss told him to put out if I can’t pay but he said to me “I would never be able to live with myself if I send you home he basically said I have severe cirrhosis and hep c.. he said that I wouldn’t live another 2 years my girlfriend stepped up and took care of me i mean took care when I was so swollen I couldn’t get dressed or take a shower by myself... so while I was in the hospital for the first time out of many many times I my the nicest girl I’ve ever met ( Besides my sweet girl) she was in accounting we became friends and I told her how I couldn’t get any help so she told me to give her my info and she’ll call next thing I know I’m getting assistance there was nothing worse for me not to be able to work so now I can contribute any way went through severe depression and a few slip ups many visits to all kinds of of doctors almost gave up a few times but my wonderful family held me up no matter what kind of Attitude or how much I attitude I gave them... sorry let me speed it up my insurance paid for my teeth to get done and I started to feel better about myself I am very spiritual I meditate every day and And didn’t stray from God I’m not out the woods yet but I just finished my hep c treatment and I’m all clean of the hep c now my cirrhosis meld score dropped so low that they keep sending me for extra tests because my numbers are so good still can’t work and will have to be on meds forever and might be a transplant in the future if I don’t take care of myself I’m living on over a year of borrowed time and I live every day of my life like that sorry for rambling but it really felt good to share that if anyone wants to talk message me no matter what time or day it is thank you and God bless
I was diagnosed with HCV in 2009, probably had this disease for 30 years. My first dbl therapy treatment in 2010 FAILED. In 2012 triple therapy with incivek did the trick. Right in the middle of the 48 week treatment, I came down with HCC, (males in their 50's are most prone. A laparoscopic liver resection on my left lobe(removal #3 & #4 sections). Five years cancer free, in 2018 HCC showed up again on my right lobe #8 section inoperable, a relative new treatment was the only option TACE or Y90. After 3 more surgeries I was cancer free again. Today I take liver supplements, krill oil, super beets and multi vitamin. My lifestyle is active and I do work out on my total gym daily and now my new normal is an MRI every 3 months. Yes there is hope on the horizon with these embolization treatments but early detection is your best option, keep healthy, active with a good diet and obese free!!
After 27 years of Service in the Army, I was ready for retirement and all the "good" life it brings with it....I did so and shortly after retirement I got this contractors job for Overseas that required all this lab test to get in this job......Thinking that I just retired from the service and they cleared me on my last physical exam, I was ready for this.....After my lab results came in that's when I found out that I was Hep C positive and my world just collapse in front of me.....I was the healthiest man in this Army and now I have WHAT.......How it was possible that after all this years they couldn't diagnose me ???? Now I,m without a medical cover and no where to turn... I spent two years trying to figure out what was the best course of action to take for me to get cure...I intensely read and research all about Hep C treatments and new drugs in the market until all these new medicine staring to came out, but at a great expensive prices that I couldn't afford... Luckily I went to my nearest VA Hospital and got referred to a great Doctor that did listen to me on for what I didn't want the old ribavirin and interferol method for the after effects and painful treatment it was like chemo-like side effects. .....Until the new Ledipasvir and sofosbuvir pill came out and was approved to be use at the VA foe free....So far my viral load is normal and no liver damage or tissues.....Just re-arranged my life to a better healthy one, because life gave a second chance to live longer......
i was tested positive for hypertitis B. But recently, I have been having chest pains and stomach hurts as well. I easily get tired when I do a little work. Could this be as a result of the disease? .help me out.
A liver is a terrible thing to waste.
I last posted in June. It doesn’t seem like anyone is posting on this site anymore. I have had a tumor (about ping pong ball size) removed from my liver in Feb. 2019. I have had three more small tumors chemotherapy and blood supply blocked. This procedure is called TACE . Now on July 16 one mote small tumor to go. Another TACE. I knew Hep c was bad to the bone but i’m Cured of Hep c and the damage just goes on and on. I’ve felt bad most days this year but i’ll do what the doctors want me to do.
I contracted Hep C in 1969 in an 8-pint blood transfusion following the spontaneous loss of a pregnancy. Interferon did not work for me in 1990-91 so I had to create a way to survive until a cure came along. Between the Interferon and a cure in 2015 with Harvoni, I kept going by eating 90% organic, taking a variety of Chinese and other herbs, receiving acupuncture, doing things I loved to do that were healthy and creative, abstaining from alcohol and other drugs, drinking at least a cup or two of coffee daily, gardening, dancing, resting when fatiguedn, loving deeply and committing myself to living. A major turning point in how I felt about having a life-threatening illness arrived when I befriended the virus that had become part of me by living within my DNA. I made a deal with it. Because it couldn't live without me, I told it it had to co-habit with me and not kill me. After that I calmed down considerably about my situation until I decided to take Harvoni which I knew might kill my problematical bodymate. It did. I just realized while writing this I ought to give it a proper funeral. I learned so many important life-lessons while ill that I have gratitude for having the experience in spite of the long list of pain and losses on the other side of the column.
I have been living with Hep C for almost 20 years but have managed to work the whole time...I did research on the different supplements and used a tea mixture that helped tremendously. Just recently I was put on sertraline for depression and it is helping with that but I am feeling more of the symptoms of my Hep C , I think from the extra strain the medication is putting on ,my liver. I just recently quit my job after 18 years and now I am making my Hep C a priority. Im not sure where to begin because the medication is expensive . I found out that there are programs that can help pay for the medication because it can be expensive so I wrote a letter but I havent heard back yet, so Im still looking.
Hep c since 1970’s. 1st treatment in 2000 Interferon and Ribovirin with no cure. 2nd treatment in 2014 Sovaldi with Interferon and Ribovirin with no cure. 3rd treatment in 2015 Harvoni and Ribovirin finally cured. Sounds great so far. I was diagnosed with a cancer tumor the size of a ping pong ball on my liver in Dec. 2018. Surgically removed by robotic resection early Feb. 2019. 3 months later 5 small tumors. They are going to cut the blood supply to them by going into the liver through the groin. The fun never stops. Roland
I am 39 years old, I have had Hep C for 23 years, I cant get medicaid (even though I have chronic hep c, spinal and cervical spondylosis, severe copd, heart failure, severe generalized anxiety disorder, and on n on) I keep being denied ssi, and have no income no insurance and I'm literally dieing I feel so hopeless. Dont know what to do???
My name is Dineshwar kshetricha I living with HIV n hcv, I had taken ARV last 2004, my regime is lamivudine,tenofovir n effavires. N other side hcv also treated n completed 2017,October, hcv, regime is sufos, decla. Reba. But I am hcv treatment failure guy even though my LFT result is all are normal exept sgot-55 & patellate .088. My cd4 count is 148 viral load is below 20. My weight also not increase.. I confuse what to do n I plan to treatment again hcv.
Hi ive suffered from hep c for 30 yrs ive done a 3month course of epclusa and got my tests back thurs ,No hep c detected its gone. Ive raised 5kids and 8 grannies with this disease when my new granny comes in november this time its goning to be different. Thank god and modern medicine i can say im cured
I thought I would not do this and then I read the first 3 stories but I have chronic hepatitis c and I know exactly how I got and who gave to me at the time I did not know what she was talking about but I have had it about 20 years and I am coming to the end ,I live in Arizona and you can't be treated unless u have a year clean and I cannot manage to to stay clean for very long and I have had episodes with it and every time it gets worse ,this last time started about a month ago and I believe this is the time that is going be my end my legs and feet are swollen and now they are turning dark well I did not want to say it but they are turning black I went to doctor today and I am going for bloodwork Monday but like I said az.wont treat you without a year clean and well I'm afraid and today I can't stop the tears my sister wants me to come home she told me this morning she was sending me a plane ticket but that would be too hard on them so there it is
Back in 1999 I went out with a guy who I didn't know who did crack cocaine. He disappeared for two weeks and I finally found out where he had been. He had been in jail for tying a woman up in his van with duct tape and trying to rape her! He was charged but the charges were dropped because they were both such pathetic witnesses and the crown decided not to proceed. In those days I was a mess had just split up with my husband of twenty years because of abuse and needless to say I was not in a good place! I had never done drugs but I liked my liquor. After finding out about the charges I decided to get checked for aids. I had no idea of what hep c was! Anyhow they told me I had hep c type one and I would need to go on interferon. I would need a liver biopsy which I refused to have so they refused to treat me which was fine with me! I contacted a lot of hep c people who had been on interferon and it had destroyed their immune systems and didn't work so I decided to go the natural route! I took moducare sterols and sterolins ,quit drinking and changed my entire lifestyle. I had a history of suicide attempts that I was getting counselling for and slowly started the long journey as to where I am today. Back when I was diagnosed I was told I would be dead in five years! I did Chinese medicine, read the book Hep c handbook that was my Bible and carried on. I read last March they finally had a cure that would be paid for so last year I went on epclusa and when I got my liver scan I had minimal damage in fibrosis below level one! This was because I took care of myself but the biggest thing I believe that helped was cannabis oil! It built up my immune system and I truly believe that was the reason for my success as well as for my anxiety and stress levels being off the charts and it helped with my high blood pressure as well! Anyhow I am now hep c free after 4 weeks it's been a year and I go back for my last liver scan at the end of this month! If you are on the fence about this definitely do the treatment as I am now 63 years old and want to live for a while yet without having to worry about liver cancer and liver disease. Janet
I am not sure how I got Hep C but it could have been when sharing needles with my drug buddies back in the 60s when I was a teen drug addict - or from blood transfusions from 2 horrendous car wrecks in 1969 and a head-on in 1980 (lucky to survive) - both accidents demanded blood transfusions and I hear the blood supply back then was full of Hep C. I was diagnosed Hep C in 2016 but put off treatment until 2019 and took Mavyret for 8 weeks - had "Not Detected reading after 1 month and again after 8 weeks - am assuming I am cured! My copay was almost 6 grand but after research and calling the Mavyret helpline they turned me on to a program that helped on the copay - my copay was only $50 with the help. I recommend Mavyret and be sure and call their help line about supplementing the copay - very thankful!
After having a hip replacement I came down with HepC, first itching, then exhaustion and yellow eyes etc. after about 6 weeks after surgery. I got better and no longer had symptoms and was negative for HepC. Next bloodwork 4 mo. later I showed a positive HepC. Two of my Drs. told me I had to take Harvoni. I did, without side effects. It was unbelievable how easy it was. After 30 days I was clear of HepC. 9 years later I am still free of the disease.
I was infected with HepC in a blood transfusion in 1982. It was called non-A,non-B unspecified hepatitus in those years. It was not properly diagnosed until 1995. By then I had also developed diabetes. I was homeless for many years with major health problems. I developed a-fib,arrythmia and angina heart issues,depression and anxiety. In 2015 I was able to get into housing and was treated with Harvoni. It failed due to the minor mutation unforseen by Gilead research. I knew it failed and knew it was a mutation that caused the failure. My doctor disagreed,but a year later had to admit that I was correct. It mutated. He was not aware that Gilead was already working on a new medication in 2015 that was only to be given to those who failed Harvoni due to the mutation. Gilead is not advertising this medication as they did the Harvoni. Too many patients who failed the Harvoni are sueing Gilead saying it is a bad medication. It is a great medication - when it works. For the rest of us there is now VOSEVI. A 3-in-1 pill taken once a day for 12 weeks. Every patient my specialist put on VOSEVI was virus un- detected at 12 weeks after finishing the meds. I am now virus free. Thank you Gilead for keeping up the hard work on behalf of all the victims of the disease.
I am 53. Believe I got hep c when I was 21 shooting up cocaine for 3 months. I am epileptic and take Dilantin. My dr told me I can not be cured because Dilantin affects the same enzymes in the liver as hep c medicines rendering them useless. Lost my insurance so I can't try any other epilepsy meds. I am not sure if any other meds would work and I am scared to try other epilepsy med as I have grand mal seizures.
I had hep c for years finally got approved for Maverick, I know I’m spelling it wrong, I only had one bad headache in the 8 weeks of my treatments .. It’s gone but I’ve gained a lot of weight since, I also was a drug user clean for 15 years now .. Glory to God ..
I have had hep c since 1983, found out by acciedent, got cured now through genrics drugs and i bought it from this site, this is an option for those who cant afford the treatment, its inly cost me $1000 cand and that was 2 years ago, good luck to all of you.
Just the scariest, craziest year for me. After 30 years in a faithful marriage I had to get STD tested due to , well, my husband cheating. I was found to be acute hep C and was not too worried until further testing. I was found to be chronic hep b. But how??? I am a nurse who has been vaccinated years ago and tested negative with my pregnancy. Tested positive for B after needle stick and it was 1995 and I was presumed positive from the vaccine. I suspect with the amount of fibrosis , F3, I have had the B for some time. Double trouble, this A and B. Started Vemlidy and Epclusa. New into my treatment and trying to do everything right. Hoping the C gets cured, and thankful for these new amazing viral drugs. Would love to hear about being cured and being hopeful.
Last year I saw the commercial for baby boomers to check for Hep C. I had absolutely no symptoms but I was listed in the age group. I tested positive with 100,000 viral load in a drop of blood. I took Mavyret and am cured. Go check!
Hi my story is i need help my dad live in cuba he has Hepatitis C i need to buy the medicine only any people that knows any websites to help me ?
I am 38 years old I live in banks county georgia. I've had hep c for 23 years untreated. Unlike many others I actually injected a infected persons blood into my arm to give myself the virus little did I know it takes a while to kill u. Now we are 23 years later I feel it now. And the new medication harvoni I wish I could afford I've been waiting on ssi and disability but this has been drug out years and it feels hopeless. Not sure even what genotype I am as I have no insurance and suffer from heart attacks severe copd major depressive disorder severe anxiety and cervical and lumbar spondylosis just to name a few. I feel stuck and hopeless but I did this to myself. I've come to realize my whole life I've wanted to die now that I am close to it all I want is to live.
Well i’m back! I’ve had three treatments for Hep C. The third one cured me. Then I went three years clear until Dec 2018 when the doctors discovered a tumor on my liver. In February 2019 I had to undergo surgery. I was operated on at the V.A. hospital in Ann Arbor Michigan. By the grace of God our Savior the surgeon used for the FIRST time a technique called “Robotic liver resection”. It was the first time at Ann Arbor that they did this procedure and I was the Lucky recipient. There were only five small incisions. The tumor was the size of a ping pong ball and it came on very quickly. They removed it all and the procedure went smoothly. I will tell you that I was scared before surgery but it has been 4 weeks now since the operation. I am feeling well and recovery is going well also. They will check every 3 months with CT scan to see if there is a reoccurance. I pray that this might be all I have to go through. If there is a lesson to be learned for someone who is willing to listen it is, your lungs are for air only, you stomach is for food only, and your blood is for life only. Don’t do drugs or alcohol. I wish everyone good luck in your endeavors and worship the Lord Almighty and give thanks to Him daily for the life that was given you.
hello my name is bryant I was diagnosed with hep c a year ago..I just recently completed my treatment about a month ago...Recovery is not the same for everyone who takes epclusa...I have been feeling tired anxious and hot flashes ..post treatment..not during...i have read it can take a few months to get back to normal..cant wait...to see my svr12 results...hoping for the best ...i have faith
My husband was diagnosed with Hep C in 2002. He received blood transfusions when he was a child in the ‘70’s. That was before they tested blood for Hep C like they do today. In 2010 we were all ready to start the interfurion and then our insurance was canceled. This past 2018 we got the opportunity to try one of the of the medications, Maverick. He is genotype 3, which they say is the hardest to treat. He took the medication as prescribed and when we went in for our appt. after 6 weeks we were told if itvworked the hep c would be undetected. So excited we waited andcwaited for the results. I read them on line and was devastated. His levels had quadruple. Immediately i called the dr and said maybe it was a bad test. Theyvasdured me itvwas not and they needed tovrun some tests. Thecfirst time they took blood it didnt work for some reason. We never went back. My husband was recently in the hospital and they did blood work. Reading through the results on line I sawvone was fir Hep C and it read UNDETECTED I was shocked. Long story short the original test was incorrect and it worked my husband is HEP C FREE!!!!
I want to share information to show that boomers have been lied to. Most boomers were vaccinated with Hep C and they know this and have known for years. You can look up 'Eli Lilly Hepatitis C Jet guns.' If you continue to look further you will realize this pharmaceutical giant 'Eli Lilly' has been protected by the Homeland Security Act which is protected by the Patriot Act. Guess who our president was at the time? That would be George Bush Jr. and his daddy George Bush Sr was a board member of Eli Lilly. They safe guarded their stocks. Here are some websites to learn from. Although some of this is about Eli Lilly putting Thimerosal in vaccines causing autism. I personally have the documentation from attorneys stating Eli Lilly was put into the Homeland Security Act. Mostly I share this because soooo many feel guilty about past behavior but, especially those that have a very high viral load, more than likely received this as a child. DO NOT BELIEVE THE LIES YOU'VE BEEN TOLD. https://jetinfectors.com/2016/05/21/1962-eli-lilly-warns-of-hepatitis-transmission-via-jet-injection/ https://asknod.org/2015/03/15/jetguns-when-they-really-found-out-the-truth/ https://www.youtube.com/watch?v=C9KN_yC_ixk https://www.nvic.org/vaccine-laws/homeland-security/homeland-security.aspx
My husband was diagnosed with HepC and he has been thru 3 treatments and it still returns, he has genotype 3, I am concerned that he can’t be cured he also has cirosus of the liver. We feel helpless about this virus. So many have been cured but his keeps returning does anyone else have this problem.
Hello everyone, I'm Henry a recovering addict. I been clean for 26 1/2 years. Very active in my recovery in Los Angeles. I have hep C. Just started the new medication call Epclusa two week ago. It's starting to get to me have all the side effects. I'm not scared, but concern alot. I did the interferon medication back in 2009. It was working but my insurance ran out. So here I am starting this new medication. It's starting to kill me, what I mean is all the side effects I'm getting. I don't want to stop. Why, because living is more important than having hep C and eventually dying has my brother and family member did. Never relapse and not going too. Today tear came down my eyes because it's very uncomfortable. I'm 60 years old and still look young. I believe in treatment and God's help. Can't do this by myself. Friend in recovery please cheer me up. I live by myself and don't want to lose my place of home. Will talk to the doctor tomorrow about my side effects. Maybe time off from work ( medical leave ). My occupation is patient transport in a acute care setting for a dialysis department. Can't disclose the hospital I work at but I feel blessed of being at service and giving back to those that are chronically ill from kidney disease. Now it's my time for help. Thank you all for reading this post and praying for me right now it's hard for me thank you
I took Maverick for hepatitis c And no sid effact and no more hepatitis c
I was a drug user for my many teenage years, been clean for 10 years now and found out I had hep c genotype 1, 5 years ago, I've kept it to myself even my family doesnt know . I can't/couldn't afford the treatment until new changes to state insurance and cheaper medication came to be. I will hopefully be starting Epclusa on Jan 30th. Every day is a struggle knowing in the back of my mind it's there. I've put relationships as far back as possible because i dont want to risk spreading it. Every day I look at my young kids and wonder if I dont get treatment soon will I be alive? how long will this take to kill me? And now I have hope for the first time in 5 years. It's been a very depressing and hard, tiresome 5 years and when I got the phone call yesterday that I was going to get this treatment I burst out in tears and said my prayers have been answered! I go in Jan 30th to start my first dose. I have a lot of mixed feelings regarding this day. Will I be sick? Pain? Is there a chance it wont work? What if I get halfway through treatment and my insurance lapses? I'm just praying for it to work and for everything to go well. Wish me luck and good luck and stay optimistic! Your not the only one.
Hello, I’m 41 years old I tested positive for hep c in October 2018. I wasn’t Sure how I contracted the virus but I had it a long time cause I have liver damage my doctor also confirmed this . I also know that my mom died from cirrhosis when I was 14 so doing some research I discovered I contracted it from her. My husband of many years doesn’t have it, i was so nervous and depressed I had to wait for my insurance to approve me for my meds , at times the devil tried to tell me I was going to died like my mom but God had another plan. You see I started taking epclusa December 7th 2018 now it’s January 17th 2019 and the disease is undetectable in my system. Praise God won’t he do it. I will continue to take my meds till they are gone. But I so grateful I didn’t have any side effects from the meds so far just mild headaches but I drink lots of water. Thanks to my Heavenly Father, my doctor I love her for caring for me and Epclusa.
1993 I got sick with flu and heavy backpain. my husband had 40 degree fever. he was sick and could not eat. he lost 5 kilo, for him a lot. I was not to bad, but had heavy back pain. nobody took a hep c test, even it was already available. I am a medical doctor, and believe I infected me in work. I was on a geriatric word. we never took drugs or had a operation. no bloodtransfer. my husband had gingivitis. with blood. I did not like it, but tere was no alarm in Austrian medical literatute. I go ten year to check. I had pain in my hands and diarrohe. the make 4 time colonoskopie. but no het c anyi test.. I still have my.record, my husband did not talk but I felt he got more depressive and forgetfull. I coul not work anymore. after 1o year of test and no result I got a erly pension. we left to awarmer country in eu, hoping it would help. in between I hsd breatcancer, which luckily was operatered in time. 2009 I was prepared for operation o f a gray star. the amesthesist was was careful. he took a anti hep c test. I was positive, laterit showed also my husband . I had gep c chron genotype 3a, so my husband. I was negative in 24 weeks. my husband lonherr. I checked In internet, and saw he needed longer and higher treatment. it was done and he also got negative. big problem now, I have a heavy backpain, and our teeth are ruined. they rotten and fall out. in Europe I fing no information what happen after therapie. I also have a psoriasis, which I never had before. would appreciatebinformation about problems after hep c therapie. thank you. hedda.
I am just starting my hep c "cure" with epclusa i have stage 4 hep c not good but im very hopeful to joshua i read your story i got the medical marijuana card and if ypur on a disability you can apply to get the fees waved at least i did in Massachusetts you do have to pay for doctor visit which was $100.00 but worth it. Good luck, theres always a way to get help for free or at a discount if you look into it.
Hi im 52. Back in 1990s i was living in a violent relationship as i had most of my life using drugs and drinking. My 4th child was born in 1994 a year later my partner committed suicide after many failed attempts. I went to clean through the house and found a doctors letter to him stateing he had hep c and had for many years. A year later and im sick and feel like i had a bad flu. I asked for hep c test I get tested and it came back positive. I feel to pieces but then got on with my life. I have started epclusa 21 days ago. Im praying after almost 30 yrs im going to be free of this. Im hoping i can beat this and update all you beautiful people on how im feeling. Ive been alchol and drug free for almost 10years now its time to beat this last hurdle for my granbabies.
Hello all! Happy New Year! 2019. I am starting week 5 of 8 weeks of Mavyret. I have really not had any side effects! Today I go for blood work and they check viral load this time. Very excited for this amazing miracle drug to do its work. After having Hepatitis C for 27 years. I feel like I will have a new start at 63 years old! I also have been alcohol free for 2 years. So I encourage all of you! Go for it! I give all thanks to God!
Am diagnosed of having hepatitis c and have used hovid drug still it doesn't cure it please how can I get the cure for it
Well, I was diagnosed with Hep C genotype one in 2000. From there I took the interferon and Ribavirin treatment with no cure. In 2017 I took the savoldi and interferon with Ribavirin, with no cure. Along came Harvoni so I did that treatment with ribavirin and lo and behold I was cured! Now after follow up sessions with the gastro doctor for 3 years I am cured of Hep C but have a tumor on my liver of about the size of a quarter. Yes liver cancer has reared it’s ugly head. You see that if you have cirrhosis it can most likely But Not Always turn to cancer. I’ll be undergoing surgery after Christmas. I am hoping for a good outcome. If you have Hep C and don’t have cirrhosis yet - get the treatment ASAP. If you have cirrhosis get the treatment ASAP also. Happy New Year to us all.
Hi I have been cured, for a year now have my blood checked every 6 months. Even though i am boarder line cirrouses, every thing is good so there is hope and a cure dont give up
Hello World! I am a 63 year old female that today is starting Hepatitis C treatment with Mavyret. 3 pills a day for 8 weeks. I found out I had Hep C from a Life Insurance test in 2007. I traced it back to when I had a blood transfusion in January of 1992. I would like to blog about my experience as I take this drug, anyone else interested? Or willing to share their experience with this drug? Thanks
Hi Am here to share a friend story concerning this hepatitis virus although he didn't make he died two years ago hearing these testimonies that people actually survive hepatitis c is a miracle maybe he could have survived it if we were not living in a third world country hmmm here in my country if u are diagnosed with hepatitis c u are as good as dead cos the hospitals will tell u there's nothing they can do about it I watch my friend go through lots of pains before passing on anyway am just happy that there are survivals of these ailments and I wished he was amongst all ofnu giving his own testimony
I had blood transfusion at the age of 6. I m now 38. I was diagnosed with hep c in 2018 and got cured with DAA in 3 months. I would say if your hep is without cirhosis, there is 100% cure. Myhep all is the drug i took for 3 months. May allah bless me and you all.
Successfully navigated through the medical system in India for treatment. After many days/weeks/months of research; I concluded a trip to India was my best option. Specifically, for financial reasons. Saving thousands of dollars! Most of us all know the costs involved. Scenario 1 = Around $84,000.00 for treatment with no financial aid or medical insurance. Scenario 2 = Weeks, months to qualify for financial aid. You may or may not qualify after spending a lot of time going through the process. If you do, around $26,000.00 cost. Scenario 3 = Go to India. Around $1,200.00 cost for treatment. Even with the addition of the trip costs. Airfare, Hotel, Transportation, Food ... Total ranges from $5,000.00 to $8,000.00 depending on your airfare selection and hotel accommodations. So, still a big cost difference. My results ended up with Harvoni treatment. I have relations now established with the medical staff, transportation, sight seeing guides while your there, and hotel staff. So, if you have an interest in traveling to India for treatment. Please feel free to reply or contact me for details. I'm open to help others as their personal medical guide.
I had Hepatitis C for 28 years. I took EPCULUSA 1 pill a day, for 3 months. Due to trying the interferon remedy in 1990's. So for that the treatment was a bit longer. I really was able to do all same activities during treatment of EPCLUSA. I am now in the 0 detection of Hepatitis C. What I feel is so amazing. My mind is clear, I am able to see on a daily basis how my body & mind are clearing up & repairing. I have more energy, my self care is daily. My depressive state of mind is subsiding, I'm a true miracle. I am no longer afraid. I live alcohol & drug free due to gratitude of Hepatitis C cure. I hope this is helpful to at least 1. Your not Alone.
my story starts in 97 when i was first diagnosed with genotype 3 back then they only had inteferon but i couldnt afford it so i just kept working. Hep c turned intoliver cancer in 2010 i finally got new liver in 2015 however it i was told had a mild case of hep c. Some two years later after they are sure cancer wasnt back they gave me epclusa and ribiviran for 3 months it came back within a month , Then some 6 months later i get approved for vosevi i took it for 3 months hep c back within month. Im wondering if six months might have did it? Im starting to think im one of those that nothing will work on. Does anyone have any Good advice? Thanks jay carsboat84@yahoo.com
anybody having adverse outcome to their liver or kidneys following Havroni Tx?
Hi im 65yrs old geo 3 F2 hi viral load fibroscan ok.didnt feel too bad pre treatment iv started my 10th week,starying to get hot weather now fimd it.knocks me around plus headaches an nausea sometimes noticed feet get puffy a bit.if i do.any outside.work ,i feel like stopping tx atm suppose to wait 12 weeks after tx to get tested which i think is bit cruel as i have read of people getting very sick poste tx.thanks
Hello, IAM Allwyn since I was injecting brown sugar and various pain killers and also have many tattoos , I was regularly testing my liver functions..8/9 yrs back the test showed positive hep c. Geno type 3 . I panicked after seeing the reports... But then I knew I will not die that easily.. I prayed..I was helpless..fearfull...confused...frustrated...depressed...self condeming...felt hopeless.. I did not wanted to die.. As I allways did free hand excerises at home I continued everyday sweating it out for 45/50/60 minutes 24/7 ... I believed I'll heal myself through God.. I quit drugs and alcohol for more than 3 yrs.. Ate less non veg..drank more water ..water theraphy...regular...vitamin C...and B.complex vitamin...I took 3000 mg. Of vitamin C .tab 500 mg each...3 times a day... I ate green bannanas everyday, drank butter milk, not curds..drank sugar cane juices everyday.. I waited 5/6 yrs for the advanced treatment of pills named sovaldi and sofusvebor combination for 3 months 2 tabs per day I took them in the morning.. I never discountinued free hand excerises yet.. I had isomania , then still suffering from fatigue , I feel depressed , I cry at times alone..my girlfriend left me after using me..for 3 yrs plus...she drived me mad and crazy and sick..negative energy very bad..I felt cheated, lied, betrayed, degraded, humiliated , embarest, ashamed, worthless, helpless, lonely, sucidle, hopeless..and resentfull, furiuos, rage, voilent , bad trip and bad scenes...people become selfish..they become ungratefull..etc etc..v cannot help it..we cannot change anyone but our ownselves...the verst in my entire life..anyways... It's ok I think for reality isn't fare , Thought and felt God has his plans , and my plans never ever work.. One day at a time I help myself and my old sick bed ridden father who is 76 yrs old ,he had a stroke a year back..he is paralized from the left side..and my great mother who is 72 yrs old , her knees are worn out , but she does not want to replace her knees..she is fearfull of it...We three with a sweet pet , kizza , my cat.my babe...we live in harmony even though there are heavy ego clashes...yet we are one a bond which would never break..love and care ..hope every hep c infected be cured and live again a healthy life and be gratefull...
I am a "walking, talking miracle", according to Hepatologists, as I am apparently amongst the 2-10% of lucky ppl whom have COMPLETELY eradicated the Hep C virus from my body within 10 months of contracting it, AU NATURELLE!!! I was also an alcoholic so the odds should not have generally been in my favour, however, as soon as i was diagnosed, **I WENT ON A BEETROOT & CARROT JUICE DIET!** i drank litres of it each day & am still 100% clear, 8 yrs after!! I also believe that doctors are synthesising a cure from the blood of such ppl as myself. Therefore, cld it then be said that our blood wld simply cure others infected, if they are to catch within first 12-24 months?? You be the judge!!! LOVE & LIGHT!!! XxxX
In 1968 I was diagnosed with " Infectious HEPATITIS'' and popped in the hospital for 28 days. My stools had turned LIGHT GRAY and my urine was red, and I was so weak my room-mate had to drive me to the doctor who almost immediately called a taxi to get me to the hospital. The first questions asked me were, "What type birth control do you take?" And "Have you been on drugs?" My answers to both were, "NONE" . And, at age 30, I was still a virgin. (my Religion was very important to me.) During those 28 days and for a long time after I had many bilirubin tests. Anyone who had been kissing me or anyone who had come in close contact with me all had to get those glamagobulin shots. No fun! As I got better, I begged the doctor to write it up as my having mono so that I could continue to donate blood. He would not do it, claiming I could NEVER again donate blood for the rest of my life. What I am getting at is, 5 years ago my doctor in Florida said there is no way I ever had hepatitis or it would show in my blood stream today. It does not. I had 2 other docors test me and learned the first one knew what he was telling me was true. At this time I am always free to donate blood provided I have not visited any of limits (for health reasons) country. I do love traveling including to mission countries that may not be considered safe health wise. But, isn't it something that in 1968 the diagnosis was so different.!! What I am geting at is that just 5 years
Hi there, been almost 5 years when I was UD. My geno type 3 took 6 months solvadi (sp?) and ribivrian which I got sick twice a day for the whole treatment. I worked and played racquetball thru it all. Stuck to the dosage schedule and was free of the dragon with little liver damage. “ Plan your dive and dive your plan” A year ago last Christmas I had a burst aneurism = 19 days in neuro ICU. God spared me from death and disability. I am back playing league racquet ball and 100% recovered to my old self . 67 yrs young. Very blessed. So are you...
I will start treatment for hep c shortly. I've had hep b I know the facts about its chance of reactivation with the treatment of direct acting antiviral epclusa both during and after treatment with this preparation. A chance I will take. Living with hep c is is not an option I have to eradicate this virus and go on with my life.
I am 19 years old girl... I am recently diagnosed hepatitis C.. but I don't know and I am still thinking how I get HCV into my blood stream... I haven't started my treatment but it gone a be soon started...I don't know it will be 100% cured or not.But I have faith on Allah Almighty... He won't let any thing wrong to me
I was diagnosed by receiving a letter from the health board on new years eve 2000. My doctor was out of town. I was an IV drug user throughout 70's but I was one of the few who had success beating my addiction after 21 months in a methadone program. My counselor saved my life on more than one occasion. I finally was accepted in a research study in 2011 which consisted of the old standard of care of Ribaviron pills(a lot of them) and Interferon injections along with the study drug, a protease inhibitor called Telaprevir. I was called on April 10th 2012, after months of intense sucking, and was told I was virus free. The worst part of the tx was the anemia. If I didn't know the poison in me was making me feel the way I felt, I would of been sure I was dying. Hang in there people. I'm rooting for all of you. I beat cancer in 2016 also. Somebody up there likes me, for some reason. God is good!
I have hep c and abnormal hep b core antibodies with reactive surface antigens. I have no doubt where I pick these two abnormalities, iv drug use. I was always hit with double trouble when discrepancies in social norms where affected in and around my life. My advice to anybody knowingly goes in for this life it doesn't help to close your eyes the out come can and will open your eyes to a world of heartache and pain not only to self but to people in your life but people in your future or future?
You might say I grew up with hep c. I was a addict. I need no further explanation why or how hep c entered my life. Much wiser now and for a long time too about using needles I still am left with this virus. I'm getting help from the Dr that ordered the screening I will know very soon about my treatment options. I have family support but need more info into more detail about this disease. Education ends ignorance Thank you.
Been sick with hep c for five years I have no appetite my guts hurt I hardly even eat anything I just throw it up I'm always sick I have lost so much weight I'm just bones now my life sucks daily I don't know what to do for relief anymore I feel like I'm going to die on a daily basis I'm trying to get medical thc card but it's to costly I wish my insurance card cover so relief I feel like I'm just waiting to die everyday I live in cape Coral FL I'm trying to get SSI but keep getting denied I feel like a forgotten American can somebody help me point me in the right direction for some relief please
Im 65 yrs old geno 3 F1 felt ok before treatment epclusa im on day 6 hasnt been too bad bit of anxiety, i had ringing in ears on friday told liver nurse advised me to go to bed now its monday and i cant hear anything in right ear, ive never had ear problems before starting tx, i think i wont take anymore, rang liver nurse said she never heard of anyone having ear ringing (tinningitis )!! Yes im worried big time hope its not too late to stop these pills before something else stuffs up.
I had Hep C genotype one for forty years. I was diagnosed in 2000. I went through two treatments with no success. I finally was cured with Harvoni and Ribivarin. I went to a liver specialist a couple of weeks ago and had a fibroscan. It showed liver damage but the doctor said if I watch what i’m doing it probably will not get worse for quite awhile. I will still get a ultrasound once a year to make sure. I am watching my diet and no alcohol at all. I am 67 years old and want to be here for my grandchildren to know their grampa as I never had a chance to know mine. Good luck to all.
First diagnosed with Hep C late ‘90s. Denied treatment thru early 2000’s. I am 66. May 2018 decided to seek treatment with Epclusa. Type 3a, viral lode 10,600,000. After 4 weeks viral load 70 ,still elavated enzymes. Got discouraged. Tested 2 weeks later, no hep c detected! 3 more weeks to go. I read a lot of negative info about side effects but I experienced only slight headaches. Lots of water helps. Worth the treatment. Do not be swayed from treatment by internet info. Make a decision based on what you want your life to be moving forward. Best of life to all.
Hello, I am 20 years out of hard core addiction. 52 year old female. I have hepatitis c type 3. Went for testing finally ready to face it. Perfect numbers across the board with an F0 and absolutely no scarring. Fatty liver is my only issue. All of my blood work from diabetes to cholesterol... Everything perfect. I am 25 pounds overweight, living a low carbs lifestyle but couldn't lose these last 25 pounds. I believe this helped me maintain amazing health. Some may disagree, I am walking proof. Two years ago based on amazing health, I wouldn't of been eligible to even receive care for my hepatitis because my panels are amazing (praise God )but today I was offered it. Doctors said I'd probably fall into the category of those who die of old age with no issues. Another shout out to God. I started the Mavyret so afraid on Friday three days ago, and was so fearful. Followed the directions and literally not one side effect. I did feel a tiny headache which went away with a lot of water drinking and some tiredness but I was so used to being tired from this disease, honestly it may not even be the medication. I got up today realizing if a side effect was coming. I'd of had it. Please! Please! Do not be afraid. If you can get it. Get it. Just eat a really good meal before you take your daily dose and drink fluids. I hate straight water so I got tons of Gatorade. I was so afraid. Not anymore! Just praying I'm one of the 95 percent who get that cured panel in another 7 weeks. Be strong! Do it! God bless
I was told in 1996 that I had Hepatitis C at that time the doctor that told me that there was going to be a treatment and it was a chemotherapy treatment just like they give Cancer patients. Sometime later my doctor sent me to U.C.L.A, for treatment and after the third day, I had to stop because I was never so sick in my life and they told me I could not continue with the treatment. I thought I was just going to get sick and die. As time went on I never got sick and a few years ago I was going to a new doctor who checked my Liver with a blood test that took eight bottles of blood and came back NO Hepatitis C and he did another one a month later and nothing....
Hi. Im 65yrs old geno 3 still F1 fibroscan high VL in mills recently diagnosed copd, i was considering epclusa tx but i think having copd with the treatment would put too much strain on my body, iv heard a side effect of epclusa is shortness of breath and nausea, i already struggle to have few hrs sleep a night, seems to me older you are and how long been infected makes big difference on tx, any thoughts appreciated thanks.
Have gotten sick as always with respiratory infection due to copd had been loosing weight without trying, but lots pain when ate or drank liquids, started drinking 16oz of java monsters 3 or 4 daily just for energy ,which still cause bloating and pain give up went back dr sent me for xray thinking pain was pneumonia. She did order several blood test for my age group of a 57yr old woman. Asked if wanted tested for hep c said might as well also had ordered ultrasound of liver .10 days later told I have hep c need see a specialist said ok also had double inguinal hernias killing me that needed surgery done on day get my surgery scheduled the day I go see liver transplant Dr. Seen surgeon on Tuesday and liver Dr on Friday thaw day I seen him he wants more blood tests done and scheduled EGD done on me Monday morning. This was June 11th 2018 meds ordered but today still having trouble with insurance thru Illinois State approve of any meds over a month later Dr has cancelled appt to hear results from blood work and biopsies from esophagus told daughter lungs bad bad feel like I'm being tortured by Dr's and insurance all my efforts to try get treatment started I hit set backs . Was told hep c 1a is what have only thing I know about what I'm dealing with is this website, no one has explained much of anything to me. trying to keep a good outlook going but it's getting very frustrating to keep it with All the set backs and still unknown testing results. Thank God my family is my rock right now or is have nervous breakdown, but still have bad days want feel sorry for myself and just quit Dr's appts all together. Had reschedule hernia operation because told surgeon of hep c diagnosis delayed till she got my tests results I yet not know results my self .finally got surgery for hernias Monday dealing with this pain now with meds that have acetaminophen in it which causing liver pain calling to see if get a different pain med with ibuprofen instead . Praying things start going where I m not so confused on where I go from here !!!!!
I treated the hepatitis in 2006 my pcr is not detected but there are few froblems i have 1 heart burning 2 feet burning 3 weight gain 4 skin diseases what reason??? give me in formaformation
My name is Elfreda,2011 I was diagnosed with hepatitis B and hepatitis C. I didn't take treatment until 2018 when I fell ill and the series of test shows that my liver is already at risk of cirrhosis. Immediately I started taking Silybon tablet.it is made up of milk thistle. I got cured of hepatitis c in 1month. But I am still positive of hepatitis B because I couldn't afford the treatment,and there is no prove of any plant that can cure it yet. I really want to be totally free. I think positive attitude counts in the healing process and silybon is the cure.
I have hep C forty yrs, In the beginning it was BAD. Then I didn't even know i had it, I took MilkThistle Like it was my Saviour for about 15 or 20 yrs, I really do think it helped. I don't drink and i I contribute that to being Alive today. I am 70 now and it hurts Bad now , I get sick a lot, I no sooner start feeling a little better and i am sick again, so of course the Depression sets in thats awful SICK + DEPRESSED, I HAD TEST WITH MY BLOOD and my number are in the six digits, not good at all I am amnesiac
I got diagnosed with help 4 yrs ago from sharing a needle and 3 yrs ago I was put on hurvani and in 90 days 100.000 dollar later it was gone thank God I been to rehab and today I've been clean for 90 days and still hep c free don't ever use needles if u do use clean ones all the time.AMEN!!!
I was told in August 2017 that I had Hep C after a routine blood test during a physical. I started Epclusa in February for 12 weeks. After the first month I was tested and told there was no sign of the virus in my blood.. It's been 1 1/2 month since I finished the Epclusa treatment. I had some slight headaches during treatment , the worst side effect was some short term memory loss and sometimes confusion. I go back for testing at the end of August and hopefully all is good. I think having a positive attitude really helps so just keep your chin up while going through everything.
I was diagnosed with Hep. C - 2 in late June 2017 after having Mono for three weeks. I contracted Hep C from a blood transfusion in 1984 from a surgery. I took Mavyret for 8 weeks and am now cured. I had minimal side effects from the Mavyret, but I was tired. I felt the stigma that comes with Hepititus. My hometown GP sent me to http://www.cpmc.org/advanced/liver/ to see Dr. Merriman. I believe I received the best care in Northern Calif. and am very fortunate. The weight gain is a battle now and I’m trying to avoid diabetes. What a shock this Hep diagnosis was. Best of luck to all of you, I don’t know if the after effects will ever be over. I am sorry to read of your struggles but believe that you can be healthy again.
Contacted Hep C in 1980. At the time told it was Hep B. Became ill and put on 60 lbs of water weight in 2010. I knew that it must be my liver. Found out I had Hep C geno type 3 and not Hep B. I decided to ride it out and let it kill me. Until December of 2015 I was a heavy alchohol drinker and drug user. I went to the doctor, suffering from Portal Vein Hypertension, to get meds and by the grace of god, she talked me into treatment. Within 2 months I was on Solvaldi and Ribofiran. It took 6 months to eradicate the Hep C and cure me. BUT the damage that was done to my liver and stomach veins was major and I don't think reversable. Needless to say, I no longer drink AT ALL, NOT ONE DROP or take drugs besides high blood pressure meds. I felt really good after the cure for about a year but now I feel not so good. I am sure it is the damage to my liver that is progressing. I will fight this thru with diet and a clean life. Thank You.
Hi I'm 57, female I used Iv' drugs at 18 years, I also crushed strong pain killers, threw Iv' My first tests results told of liver damage, although they had no info about it' 37 years later I have Liver cirrhosis hep c' Geno type 3', I refused treatment, it's not a path I wanted to take, with also having other medical problems I feel it may have caused other problems. I get pain in both my liver & spleen, my tummy is extended, I have bleeds, infections are hard to fight ,I also have hypertension, astmatic & Diverticulitis disease, angina, water retensio.
Hello my name is Lynn, I had hep-c gene type 1 for many years and didn't know it until it was almost to late.... I became very sick suffering an extremely swollen liver throwing up anything I ate. Fever , you name it I went through it.. It waz pure hell. I had a horrible strain pneumonia and the only reason they found it in the hospital was by accident. I had x-rays of my stomach and lower back. My Dr, thank God saw a corner of my lung in the x-ray and immediately kept me there for almost a month.. The pneumonia was not responding very well to a very strong IV antibiotic cocktail.. They kept me very sedated and I don't remember alot of it but finally I was able to go home but my hep-c was at a viral load of well over 7 million and I felt like death was close but I couldn't accept that.. Finally I heard about a cure "Harvoni" I didn't have insurance and was denied disability over and over again.. It felt like a loosing battle.. I was so scared but not ready to give up the fight.. I finally found a place through close friends who I reconnected with on FB and they told me about "Support Path" With the help of my dear sister and Dr We filled out the application and praise God I qualified!!!!! I got the 3 month course of medicine that normally cost over 100.000 dollars.. Yes you heard it right 100k for this life saving medication... I took the 3 month course and my next hep-c test WAS 0 VIRAL LOAD!!!!! IT WORKED!!!! OMG WE CRYED TEARS OF JOY WE LAUGHED WE CELEBRATED!!! I got my 2nd chance at life!!! A miracle for sure.. Thank you Dr.Oats and Support Path for saving my life... I still have a few health issues but no longer have hep-c!!!!!!!! Thank you God... I Really think everyone that is in there mid 40's on up should get tasted just to be on the safe side.. I'm now 55 years old and back when we were young they didn't test blood or blood products for hepatitis at all... Please take the test.. It's a very simple test... It could save your life.. Thank you for reading my story... God bless, Lynn xoxox
Hi . I’m 48 and have had hep c since 1992. Has a bad iddiction. Have my life together now and have custody of 4 year old grandson. I need to be healthy for me to be there for him . I want to live . He starts school this year and I’m gonna start treatment. I’m so very scared .reading all these miracles have gave me hope . Update as soon as I know something. Thank all you guys for your stories. It has really help me be serious about this .
I was diagnosed with Hep C Genotype 1A in Oct. 2016. Most likely contracted in the Summer of that year. AST was above 1300 at diagnosis. My GI Dr. wanted to monitor for a while to see if I could clear the virus on my own. It seemed it might clear it because my viral load went very low. But then it spiked a few months later. Then low again, then spiked again. He decided I should begin treatment with Harvoni in December 2017. But first ran some extra blood tests to assess the amount of liver fibrosis because the insurance company would want to know. He was shocked to find I was at Stage 4 (final stage) in such a short amount of time (1 year). Apparently, in rare cases, some individuals have extreme rapid progression of liver fibrosis with HCV. Something to do with being over 50, a moderate drinker in the past, fatty liver, and contracting HCV from a person co-infected with HIV. I was one of those unlucky persons. At the same time, I was switching insurance companies for 2018. So, on Jan 1, 2018, I got the ball rolling right away with the new provider letting them know I was Stage 4 and we had to move fast. They took tons and tons of blood tests (40+ tubes). They did a liver UltraSound and a liver MRI. Found no cirrhosis and cleared me to begin Harvoni in Feb 2018. Three weeks into the treatment, I was undetectable for HCV, liver function normal. They decided to also do an Elastography (fancy UltraSound) to assess the fibrosis again. They said I was now at Stage 3. I completed treatement one month ago and still undetectable for now. They are going to check again at 3 and 6 months. They will also want to do a yearly UltraSound to look small possibility of liver Cancer. But said if I eat right, don't drink alcohol, my liver should be fine for the rest of my life. I read cases where fibrosis can regress over time, but my Dr said not to count on it. If you have been diagnosed with Hep C, don't wait. Get in the care of a good Dr quickly. This is serious stuff that will kill you if you put it off.
Rite nw m da suvivor of Hcv from pass one month
M a survivor of Hcv from pass 2month
check out www.fixhepc.com. It worked for me.
I was told I have hepatitis C by my doctors 3 months ago . Plus I was testing positive by blood work tuberculosis .. plus a mass on my breast and thyroid .. I will be starting treatment for hep c few months . After signs showing no trace of hep c get to start another very expensive medicine for tuberculosis . Meanwhile. Test after test . The medication for tuberculosis is very harmful on the liver . I’m getting my liver cured. Sometimes I want to give up .. but I know to keep going I can’t discuss my health to the norm because they back off thing they can get both of my disease . What Idiots I want to thank each one of you who wrote about your experience.. it helps to know we are strong
Hello dears I have been tested with hepatitis b positive since December last year and remain right now but the doctors told me that no cure for it and IAM now worry for my liver how can I get rid of it ? please help me I have the following symptoms 1.abdominal pain too much 2.tired 3.nassa/ almost to vomiting but not 4.too paining under the lower right of my rib
Well here goes. I’ve had hep c since the 70’s. After two failed treatments I finally got the Harvoni treatment and am pleased to say I have been clear for 3 years now. Although I did some drinking in my life along with hep c I now have severe liver damage. I undergo an ultra sound every six months and blood tests too. Now I have to go to a liver specialist next week. I am really scared that the liver may be worse than I expected. If you are posting on this site my advice to you is get your treatment ASAP. Quit drinking alcohol, slow down on salt, quit drugs, and do anything you can to prolong the damage to your liver. I am really tired of all of the problems associated with hep c. I read on the net that liver transplants are a very serious and invasive. Recovery Is sometimes a year or longer. Rejection is quite common and not something to take casually. I hope I don’t have to go through that too. Peace be with you brothers and sisters, I pray for you please pray for me. Love to you.
Hi I live in Ireland I was told I had hep c when I was 20 years old. Gino type one. Im 45 now and was ment to start on treatment back in March of this year but I was told just b4 I started the medication I was told I cleared the virus by myself.but my partner is on the medication now and doing great.has this happened to anyone else iv all the systems of the hep c virus. I've been tested twice and the doctor,s are saying that the virus is gone from my body is this possible.please can anyone help me understand this thank you.xxxx
I was told over 20years ago I had hep c I was about to get the wonder drug but just before I was ment to be started the liver clinc told me that some how I have not got hep c and they can't find the virus in my body now and all I can say is the only thing that I took was milk tisele iv had two blood tests done since and they told me they can't find the virus in my body.I was gino type one but I can feel my body getting rid of the hep c it's like my body is going through a detox getting what's left of this virus.so in my eye and personal experience milk tisle done something to my liver all I can say is my hepatitis virus is no longer in my body but my hep doctor told me that yes I would be going through some sort of detox after 20 odd years of Having hep c in my body. I hope my story can help someone else.
I nearly fell off my chair when I was diagnosed with HepC Geno type 3 back in early 2016... Truth be known I had a feeling I’d probably got it as I’d been so low down the scale I’d done things on a relapse after multiple years clean it could be nothing short of a miricle if I didn’t have it.... Anyway - I was clean again & had pulled up some courage too take care of my health both physically & mentally. I was told there was nothing available at the time for the Geno type 3 which had a high enough success rate & that given my history of depression & being so early in my recovery from the drug & alchol relapse I was not fit for Inteferon. Just wait a year I was told new drugs are coming on trials all the time. FF a year and I was put forward for Mavaryet... I just got my 3 months post treatment results yesterday and I’m still “ VIRUS NON DETECTED” For anyone out there worried with Geno type 3 this treatment has been nothing short of a miricle & all I had was fatigue - mentally I’ve been fine. Oh and I’m still clean.... onwards & upwards.
I was suffering from chronic hepatitis c , with viral load about 900000 , Genotype four ,now after taking sofosbuvir+ledipasvir for three months,my viral load is non detectable,and elevated SGOT,SGPT are normal, after six months there will be a another viral load test to check relapse or totally cure.
Just wondering if anyone that took the cure(Harvoni) ? Had their hep c come back?? I went and asked for my blood work to be done as I told them I know it’s back and they said James u have been clear for over a year. No way it’s back unless u came in contact with it to which I said no contact I have no life so I don’t come in contact with anyone but I know my body and I can tell it’s back. So did blood test and bam. It’s back?it took my doc tooo many years to finally find out what I had. Sooo tired and sore. Tried many things. To no avail then the harvoni it worked or so I thought now the same ole shit I’m tired of hurting and not being able to do anything I was so active before no I can barely get the energy to make coffee was taking valerian root for sleep chromium for diabetic could that make this come back?? Anyways not looking for a aw poor guy just tired get mad when I wake up. Don’t wanna be here. Hope no one else has had this come back after being told You r vured?
I NEED YOUR ASSISTANCE REGARDING THE NEWLY DISCOVERED FORM OF HEPATITIS I read about the research regarding a new form of hepatitis. I have had hepatitis symptoms since March 2006 when I received a blood transfusion in the Philippines after a serious accident in which I lost a lot of blood. I have been sick with the symptoms of a serious hepatitis like infection ever since. Subsequent blood tests showed that I am negative for hepatitis B and C, but I was exposed to hepatitis E, which is self limiting. However, I have never recovered from this illness. In fact, I have been sick on virtually a daily basis ever since then. Liver specialists here in Seattle tell me that there is nothing they can do for me. My liver enzymes are always elevated and I have the other symptoms of a chronic hepatitis C infection. Your assistance in this matter would be greatly appreciated. Thanks Loran
Changed my life
67 yes old got very sick about 25 yrs ago diagnosed with Hep C. #s were really high. Changed my diet, no drinking.#s Improved a bunch. Went thru 12 weeks of interfurion & riboflavin got down to 1 meld score. Because of my age the Dr recommended a transplant. I had very bad cirrhosis & fatty liver. Went & interviewed hospitals got accepted to Baylor Dallas. On the list over 10 yrs, got on Harvoni, doing really well, got liver cancer which was cured imidiatly. Put top of the list had my transplant the eve I took my last dose of Harvoini. It will be 3 yrs. Sept I am Hep C free, perfect liver. Feel great! Gained weight & am trying to lose it now. Weight gain is from lack of exercise, my opinion. LOVE HARVOINI!!
I've had hepatitis C about 8 years now my number stayed at a non alarming rate. Keep in mind when the doctor told me my numbers I never understood what they meant. However it came across to a great doctor that I have I would be a great candidate for harvoni since my numbers are not that high she said I would only need 8 weeks of treatment. I've had my final blood test in my account is at zero which is wonderful now in October she said they will blood test me one more time and that will be the final time but don't let nobody for you out there you can re get it. Yes I will not lie I got mine from injecting heroin however what is on the rise today is people getting it from using dollar bills straws and sharing with others if you are ever going to sniff something make sure you have your own straw to not use money it's disgusting and do not use anything of anyone else's under any circumstances. I'm so humble State paid $60,000 each month I was on it which was for two months this drug is a miracle
I most likely contacted Hep C when I was a teenager and using drugs intravaneously. I don't remember ever having any symptoms. Thankfully I quit drugs in my teens and resumed life, not knowing I was infected. Fast forward about 18 years later, I decide to donate some blood. A month later I received a letter from donation place, saying I tested positive for hep C antibodies and to make appointment with doctor. About 3 blood tests later, it was confirmed I had hep C. They did a fibroscan on my liver, showed fibrosis and scarring. My doctor decided that I needed treatment to prevent further liver damage. I was so scared and anxious at this point, I thought I was going to die. Thankfully I have good medical insurance. Was able to start Harvoni medical treatment. I was told without insurance, Harvoni is $1000 a pill! I started treatment in early December. My viral load went down QUICKLY. I was officially virus free in February. In August had one last blood test. Confirmed that I was officially hep C free! I was so happy. A year later, doctor wants my liver checked again. Had second fibroscan. My liver has improved and is now actually healthy! I abstain from alcohol and try to eat healthy and be active. I'm so grateful for science and medical technology.
diagnosed in 96, probably was infected around 1980ish. now, may 2018, after 12 weeks of epclusa i am virus free. HISTORY / my viral load had been up in the millions (maybe billions?) / my infection was group/genome 2 / i waited until medical advances gave me a treatment i could actually manage / my liver showed fatty tissue but no more than that / i used milkthistle in the teas i brewed and drank regularly / aside from a few years of vodka cocktails surrounding my husband's illness and subsequent death in 2013 i really only enjoy wine occasionally. CURRENT FOCUS / my curiosity now is centered around how my body is changing now that it doesnt have the virus?
I contracted Hepatitis C in 2015, Most likely from Iv drug use, but i can't rule out tattoos, Dentist. Ext. After A very long fight i got prescribed Harvoni. I got cured I still continued to use heroin,crack/cocaine not giving a crap thinking i was fixed, long story short i contracted it again, your probably thinking wow what an idiot, drugs will make you make very bad decisions, Well i got very lucky after months and months of fighting with doctors and insurance companies trying to explain i'm sober, im clean I got approved for mavryet. I Am so grateful to get this opportunity, I thank God, it wouldn't of happened any other way. Just started my new medication im on week 2 now. I feel grateful knowing the success rate is very high . No more drugs or unsafe acts for me! God Bless! Don't give up!
In 1999 I was told by the VA That I had Hep C And that made me a little mad but in 2003-04 VA gave me 49 week treatment, I lost 80 pounds and was vary very sick, but hep c was gone but in 6 months it was back. Then in 2013-14 VA did it again for another 49 weeks, And I lost another 70 pounds and thought I was going to die, I was so sick, but in 6 months hep c came back, so I thought was it I'll just die because I won't go thru another treatment like that. Then I fell and broke 8 ribs on my right side and I could not hardly get my breath, that was October 2014. Then in Jan. 2015 VA again said they want me to do another treatment & I said no, I will not go thru another treatment like that. The VA said it was called Harvoni and it would not make me sick, I thought sure I thought they were lying to me again, but I said I would try it but if I start getting sick I was going to quit the treatment, But 6 weeks later in April 2015 the teatment was done and Hep C was gone, They check my blood every 6 months And about 1 month ago I had my by yearly check up and still no sign of Hep C , So that Harvoni worked well, but I was told that those pills are very very expensive.
I was diagnosed with Hep C in 1993. Back then they hadn't dealt with this virus. I did a year on Interferon with no success. I got really sick in 2011 and did 48 weeks of Victrelis, interferon, and Riboviron. I was clear of the virus after 12 weeks but It didn't kill the Hep C. In 2014 I did 12 weeks of Sovaldi and Riboviron. Again, the virus came back. in 2016 I did Harvoni and Riboviron for 12 weeks. Again the virus came back. In 2017 I did 12 weeks of Vosevi and halfway through my doctor added Riboviron. It was a Success, I am clear of Hep C after 3 months from treatment. My message is-- don't give up, there is hope. You can be cured. Good luck
I contracted Hepatitis C genotype A1 in mid 2012 during the my final months of active addiction. Living with this virus has been tough. I discovered I had the Hep c in 2014. Recovering from my addiction at the same time, being who I was, very paranoid, obsessive, i researched and diagnosed myself with a number of things associated with hep c. I amplified what little, if any symptoms I had into life and death scenarios. Liver cancer, cirrhosis, etc.. all things I might expect at the 35th year, not the 3rd. I think part of me romanticized the idea of dying an early and tragic death. I’m glad I moved past that. This is my sixth year with hepatitis C. I’ve grown a lot, healing mentally and growing spiritually everyday. I’m learning how to have friends, and have healthy relationships. I’m Learning how to be a human, and it’s worth the effort. I don’t drink, use drugs, smoke, use caffeine, or eat crappy food. I don’t even entertain myself with my phone, tv or music. I’m 100 percent focused on improvement, spirit, and my fellow man. Now if I could only get rid of this monkey on my liver... life’s good guys. Don’t waste it. Fight for it. We only have today, we only have each other. And we are pretty great.
I have Hep C geno 3 most likely for 54 years 1st time liver was elevated was in 1969 I'm at stage 2 I think I'm holding up pretty good. I'm 67 years old I have not drank are used drugs for 35 years. I have been through treatment 2 times the past 3 years both failed. Feel pretty good now that I'm juicing beets, carrots, celery and a bit of apple every morning. No red meat. Fish, chicken and as much food with omega 3 as possible. Milk thistle and turmeric 2 a day. I stay thin I do not over eat and make my liver work its butt off. I have found that I don't need to be pig to stay healthy. I spend as much time I can in the presents of the Lord. That's is the real reason I think I'm only at stage 2 after 54 years. Waiting to see if they find a cure for geno type 3 let me know if you hear of any breakthrough type 3. I think I m doing pretty good. As man thinks in his heart so he is. Blessings Bob
I have recently tested positive for Hep C....through extended testing it has been determined that it is an acute infection, my viral load is so small (120) that they cannot determine anything right now...so, we wait. I was told we would retest in 6 months, by then it will/should be chronic and able to be genotyped or should have cleared on it's own. I feel like I am playing Russian Roulette every single day. Spin the Barrell, Pull the trigger......will today be the day it goes BANG!!!!! ??? What a Nightmare!
I was diagnosed with hep c virus, 3 years ago from the V.A. I wasn't in pain nor did I have any noticeable sytems.. Skip forward to NOW.... My moms a nutritionist -- homeopathic, natural cure advocate. So she put together a very regimental & aggressive nutrion plan for me!!! First , diet.. She introduced me to eat right for your Blood type. By Dr ( peter J. D' Adamo ) = 4 types of Blood. O, B, A, AB. Each Blood type has certain foods that are beneficial or avoid, for each person's Blood type.. Get the information. Make it a life style, it will improve your health in most if not all areas. It works I am living proof. This is my testimony.. NOW let's go into micro nutrition.. Probiotics.. Antioxidants.. Vitamins.. Minerals.. Liver cleanse & detox.. Water hydration.. Exercise..First Probiotics are essential for optimum health, they destroy the bad flora in our stomachs a must have, 7 strand minimum.. Our immune system is in our gut, so keep that area healthy & clean.. Antioxidants , are free radical destroyers. Free radicals destroy healthy cells and promote disease. There are many antioxidants, the best are vitamin --- C, E, Alpha lipoic acid wich is universal, meaning it synergistically helps & improves other antioxidants to become multiple & stronger. Again these are just a couple of antioxidants there are many.. Other vitamins you should have. Vitamin C. You must supplement our body dosent make it & if you smoke more than likely you are C deficient. Theses are are all good to take & you should, D, B- complex, glutathione, selenium, Co q 10, zinc, omega oil, all types, Amino acids, Potassium, Calcium, Magnesium, Non flush Niacin, Multi- Vitamin. Not to overwhelm anyone, Ill stop here. Keep in mind, there are alot more in good health food stores. Also all people are different, so please do you research, you'll find Whats best for you. I am in no way selling or pushing this knowledge on anyone. So please read, research. Be safe. Doctors are not nutritionist, & most dont know or support my way of life. Good luck. May you find happiness & great health.I was diagnosed with stage 3 liver cirrhosis, with a very high viral load. I thought I would die soon, or before I wanted.. 3 months on a strict regimental program. I had my test & blood work done from the V.A. I was stunned as were the Doctors. My hep c is undetectable, No viral load, & my stage 3 cirrhosis is completely gone. My lver enzymes were. 4. True testimony. God Bless.
I know it is hard to find the doctors who care enough to help u get the right treatment for you but since I have moved to my.pleasant Michigan my doctor goes above and beyond if you ever want to be heathy again and plan on moving here email me and I will be happy to help meet all the right doctors.
I recently was diagnosed with hep c. Not sure how I got it, could have been from getting a tattoo or drug use. Today is my first day on Mavret. I don't have symptoms except for my belly being swollen. I'm trying to eat healthy and can't wait to rid my body of this horrible disease.
After reading a few of the stories I feel very lucky to have fallen into the circumstances the way I did. To be honest, I feel ungrateful after the few stories I did read. However, I came across one story “Anonymous” about a heroin addict who contracted genotype 3 but has had no luck in finding treatment. I just turned 30 and I’ve been off heroin for 2 years. I started using drugs heavily in high school and moved to IV opiates in college. I contracted Hep.C Genotype 3 (sharing points) at 27yrs old when I moved back home to Jackson, MS. Obviously, I was unaware at the time but after moving to Dallas 6 months later, I found out. I ended up needing money bad (Heroin’s a B;!ch) so I tried selling my plasma. The doctor called me the next day and I cried for about an hour sitting in my truck. It all finally caught up to me but the worst part was my dad was dying from liver cancer at the same time. It was like I could see my future and it shook me up pretty bad. Anyway, I had BlueCrossBlueShield of Mississippi health insurance. Which would not cover any medical costs while living in Texas. I had to move back home but it was a blessing in disguise. Watching my Dad die 2 months later gave me the strength to finally put down the needle. I was 28 and literally that next month Sovadbi and Daklinza, used to treat Genotype 3, started clinical trials. All I had to do was stay clean for 4 months and I could start the 3 month treatment.... So I contracted one of the rarest types of HepC in US. Then by chance found out about it 6 months later (I knew the girl who I contracted it from btw). Finally, one month after I moved home and quit using there was a cure, not previously available, for Hep.C Type 3. I think with BlueCross I paid $25 for each doc. visit and $5 for each of the three prescriptions. Without insurance Sovaldi alone was $85,000, 2 years ago. After the first 2 weeks my blood tests were negative and I never felt sick/weak over the whole 3 months. Negative to this day and much more grateful after hearing others' stories. Hope you find this and it helps, if only a little. -Jon Russell
My story is I lost my husband June 11th 2017 due to hepatitis it was the most horrifying thing that I've ever witnessed. I never left his side to the day he took his last breath as for myself I get tested every 3 months because I was exposed to it so my hepatitis is showing up reactive so all I can do is take it day by day blood test by blood test but one thing is I can't stop living my life because this disease. It is curable so please get tested and do something about it don't let this disease kill you and take you from your family and your friends like it did my husband. I miss him terribly I think about him every morning and every night none of this is worth your life! Also if you know someone that has hepatitis whether it's your friend family member neighbor whoever please do not judge this person they need help not judgment! please get tested and treated! Amen
I found out in 2004 2 years married she freaked I could not figure out how I contracted Hep c I did Interferon treatments for 6 months liken to Cancer Treatments Did not work Tried again 5 years later could not finish Then Harvoni 3 months into treatments Divorce 3 months later cured..
It's March 2018 right now. I just finished a 12 week course of Harvoni treatment. During the 3rd week of treatment the viral load was already clear in the lab work. I see the liver specialist again in 3 weeks to get the result of the second panel of bloodwork and viral load results and ultra sound. My first ultra sound pretreatment showed a liver with very little scars. I personally believe I have had HepC for about 40 years but it was inactive. Which kept me from ever knowing. Over the years many doctors told me my liver level was high but never suggested further testing or even said a word about HepC. In 2015 I noticed little changes, such as; skin itching, feeling tired, slight insomnia, fast weight gain that would not come off. I didn't understand it. I went to 8 different doctor's because none of them knew or even looked in-depthly. I went to my last doctor and told her. She was the only doctor that knew it was HepC and did lab work. I immediately went on treatment and here I am. I will be under the doctors watch for the next year to see if I stay HepC clear for 1 year. That's when I will have reached Sustained Virologic Response. Which means their is a 99% chance the Virus will not reactivate in my lifetime because the Genotype 1 virus has successfully been removed from me and considered cured. I will always carry the antibodies but has a 99% chance to stay in remission studies state. Harvoni is about $100,000. For a 12 week treatment. It has a 94% to 99% cure rate. Their is a year post Harvoni recovery from the antiviral drugs very strong clearing of the virus. Its nothing difficult during recovery. Right now I'm hopeful and I am with every person searching for healing. It's a process and I know it can feel lonely at times. People don't understand that have not been there. Seek your healing and work to improve the best you can. Thank you
To begin with growing up the the 70’s, for me was a drug feast. I was living in a shooting gallery in a basement apt. With a group of fellow junkies, sharing one surenge and sharpening the needle with a match book striker, heroin, cocaine, speed. And barbiturates and more, heck we even shot up Methedone. Well it wasn’t long before my eyes were blood shot and my skin was yellow. Kind of hard to hide that. Doctor put me right into a Hospital for 3-4 weeks. Years later in the 90’s with Hep C still in my blood, my Doctor says he wants to try is new regiment to cure Hep C, little did I know it had infirm in it which made me very sickly, I’d rather shoot dope, but didn’t . So anyway still have some Hep C in the old blood and will be starting this new drug out in May. I’m looking forward to it.
I just started Mavyret a few weeks ago. Finally. Don't know why I put it off so long. I guess it's good that I waited actually since the older drugs had worse side effects and costed alot more. My boyfriend of 17 yrs and I both had HepC. He also had HIV. The HIV you'd think would be the scariest one but he dealt with it like a champ, pretty much almost undetectable viral load after 20 yrs. His Dr wrote papers about him. Anyway a couple years ago his liver was finally causing problems but since Harvoni was so expensive it took too long to get approved. He died a couple days after finally getting approved. (When your liver is failing and your abdomen fills with water, I know it's uncomfortable but my bf opted for the procedure where they make a small hole in that impossibly thin delicate membrane that surrounds your organs, so he could manually drain the water. Bad idea. Then he poked around and when he bent over he felt it split apart. You can't live when it tears open. So he was in horrible awful pain, too much to be awake for. He died within 2 days. My point was, don't you get that procedure, having a belly full of water isn't pretty but it's better than what he went thru. I think it's called peritonitis.?) So I was left with almost a full months worth of Harvoni, figured I'd need them. That was a couple yrs ago before these new HCV meds. I have medicaid and thought maybe they'd be less likely to deny me if I already had half of the regimen... But I've got Mavyret. So fortunate it's easier for ppl to get treated. I can't believe people are still not getting the meds.... It's cheaper to treat it now than when yr liver fails. They know that. In my town you just go to the low income medical clinic and they'll get you started. There are SO many ppl wanting treatment that they first set you up with a group appointment to explain everything. Oooh Star Trek is on, I've gotta go now... ?
I was wondering if anyone had any answers regarding what I've been going through the last month? My husband has had hep c for 15 years due to past drug use, he's is clean now for years. A little Over a year ago I was pregnant with our 1st son and made sure to be tested and came back neg. Out of nowhere a month ago I became really itchy and went to my Dr and he did blood work. He called me a few days later and told me to go straight to the ER because my blood work was really bad across the board specifically my liver function. We to the ER got CT scans, Ultrasounds they saw nothing and sent me home. Got the call a few days later I tested positive for hep c. I've never done drugs or shared tattoo needles with him so they said it was odd I contracted it from him. Went to a specialist , at this point I'm very jaundice, itchy, weak, short of breath. Specialist said they have never seen someone get hep c and in a year it do what it's doing to me. So my questions are has anyone else experienced such bad symptoms so quickly? Is there anything I can do to make these symptoms not so bad? As I have a small child and can't be bed bound all day everyday. I waiting on more extensive test results but the waiting is driving me crazy. I'm terrified it's something worse than just hep c and I can't get through most days I feel so horrible. Any feedback would be greatly appreciated!
I finished epclusa march 2. Went for my blood work still waiting to here if i am cured, i am sure it worked there is a spot on my liver had a cat scan and a mri they still dont know what it is going to find out more this week they are not ruling out cancer. The treatment was easy some headaches tiredness. Now I have joint pain and rashes very confused has anyone experienced this,would like to no
Hi , my name is Nageshreddy,from India my age is 33, when 2004 I'm in college time I know iam with Hapatitis b positive,from last 12 years I'm taking alcohol and smoking,since from that time I did not experienced any type of symptoms in my body , now I'm getting red rashes on body with irritating itchy skin. I went to the dermatologist and phgysian , some blood test will done doctor say some liver infection is there in body and given medicine but taking medicine from last 40 days but it not curing ,and one more thing I did not experiencing any of hapatitis problem like stomach pain, lower abdomene pain, vomtings and digestion problems what I need to do and suggest me for best treatment and what will avoid?
My story begins with a heroin addiction. I was 19-20 years old when I was diagnosed with hepatitis C genotype 3. I was still in active addiction when I received the news. It was upsetting but at the same time I coped with it by continuing to get high so it didn’t hit me until years later when I finally got clean. I was so young and oblivious to what life really was. I am now 26 years old, almost 3 years clean. Being HCV positive is one thing that still hangs over my shoulders. I’m in school and would potentially like to get married and have a family one day, but I feel as though I’m stuck in life as long as I continue to live with this. It is so heartbreaking to go to doctor after doctor to find out that 1. They will not treat my genotype (3) because they don’t have experience with that type of hepatitis or 2. My insurance will not pay for it. If anyone has any feedback or are in a similar situation please let me know. It’s comforting to know that I am not alone. I am currently still hepatitis c positive genotype 3, but I am not giving up on finding a way to get treated.
i was called in june of 2000 from where i had lab work done for being a cna, the specialist that called me asked me to come in because sometime of another HEP C passed through my body. when i got there she told me that it had passed through my body and they need to find out where it went. well, to make a long story short i never went back to the doctor until 2013, that when it showed back up. i remember getting stuck by a needle back in 1980's , us cna's was giving shots to people for the nurses and one of the patients i gave it too had HEP C and i got stuck. well my RA doctor sent me to a liver doctor and for 2 yrs. we fought for me to get the treatment to get rid of it, so finally after 2 yrs. they approved me to start the treatment. so back in january of 2017 till april 2017 i had the treatment, the HARVONI and now i am HEP C free, thank You God...my body went through a lot of changes and not just my body, but my mind did as well, sometimes i didn't think i was going to make it, but God, my faith and yes i am a believer, is what got me through and it can you too...thank you
Dear sir, I am suffering from hepatitis b. Please help me to cure it.
I was diagnosed in 2015 only because I asked for the test Mainly due to a couple of blood tests where my LFT was elevated. My GO thought I was maybe drinking a tad to much I asked her to test me as I had had a transfusion in 1981 after a traumatic childbirth. I was gutted at the positive result this meant I had been walking around for 35 yrs with Hep C totally unaware of the damage it has done to me. My treatment was completed in 2017 & successful so far the financial help has been ok the stigma of this terrible disease is still there it’s difficult telling people I still feel a lot of anger mainly because nobody bothered to ask me to take a test all those years ago Suzie
I'm am 48 yrs old. I have had Hep C for about 20 yrs now that I know of. I didn't wanna do the coctail of interferon an ribirin, due to all the bad side effecrs. So I waited. I also did alternative Meds like I seen someone e on here say their cured now from. I never known of anyone that was cured from Hep C from homeopathic remedies. The disease is undetectable at times, but always comes back!. I'm now on mayret, an half way thru with no side effects! There is a 95% cure rate with these new meds! So please do it now! Don't wait like I did! There is cures an with out side effects! I thank God everyday I am able to be on meds that will cure me! You can to! I'll let you all know how I am in the next 4 weeks. This is an 8 week program. 3 pills once a day. There is hope! Now have Faith!!! God Bless !!
I have been carrying the bug from 1981 Years of being weeker and weeker Test adter test the i asked the doc test me for hep c i had a transfusion from a motorcycle Crash in 81 So finely 2012 i found c positive 2013 interferon and riv what a hard time working 12 hours a day in the oil reated industry After 90 days it was back crushed lost and scared 2014 started savolti and riv again 90 day pisitive again. 2016 here we go again epclusa and riv man My body was beat hope was lost But once it was in my sysem i knew this is it It was not like all the other treatments 12 week gone and three months after treatment still no direction How ever every time you treat the bug your body has some healing to do after the drug Has cleared out of your body I felt the best i have in thirty pluss years But tryed to jump rite in to helping my son 2to3 days on my ass for weeks still Struggling with bing able to stay strong I did alot of treatments in a short time I would not recommend. It it has beat my but Most of all cause you feel good you still Need your body to heal and listen to your Inter self slow down get rest and eat proper There is nothing worse than a physical set back cause you have not gained your strength No matter was other may say they dont know What its like they tend to assume oh no bug Now there lazy and want to rest and there cured but your body still needs to heal once the drug has done its job. May take up to six months
In 2001 while having orthapedic surgery I tested positive Hep c. At the time my doctor had the wait and test every 6 months plan but like most people I wasnt hurting or having any effects from this until 2010. Im a musician and living that lifestyle where theres a lot of drinking and drug abuse eventually caused me to start having the upper right quadrant pain. In Dec of 2017 I went back to same doctor and we started the 8 weeks of Harvoni. For me it was rough guys but I have other health issues that played into my side effects. I was seriously nauseated and threw up almost every day the first 4 weeks. Took Zofran for that which worked. Now that Im 20 days off the meds I still feel drained and as everyone basically has said I have a headache that will not totally go away. I use Naproxen for that. I spoke with my doctors nurse and everything Im feeling has been reported so I am so grateful I took Harvoni. I am so blessed to have had the inssurance that paid for these treatments as I have seen each pill was $1117.71 listed on my explantion of benefits. They paid $62,591.76 for the 56 pills. Im hoping things will improve and Ill get back to life after Hep c.
I wish I could get help.to get the medication to help me get better I have 4 kids and 2 grand kids kids and would love to see them grow by did any one knows how I could getbfrebhelp I would appreciate I have no income I live on food stamps I gwtbgwtbdobsiick from my hep.sometimes I throw up run fever I've'm prayed to gooseberry day for help but if any one none could tell me how to get free help to get the medicine I would teuleybappreciatw it God.bless Rhonda sone
Hello friends. Am hepatitis B positive since December-2016 up now, And still under medication called enticaver 0.5mg. the first Viral load test 20,933 valeum, 2nd test is 7,333 valeum. please i need more support on which treatment can help me better, because my dr is telling me to continue with the medication.
I contracted Hep C in marine corps boot camp from the air gun shots. 1974. I have been fighting the VA for decades. The VA put me on Harvoni and ribovarin. Folks don’t be afraid. I had no side affects and the virus was not present after 4 weeks. Yes I did 12 weeks to make sure it was gone. Piece of cake. My liver had chirrosis- not anymore. Those of you infected got the Harvoni it works..
I had hep c for at least 20 years, we think probably more. I did ribaviron and interferon treatment 7 years ago and it didn't work. Last year I did 12 weeks of epclusa treatment and it seems like the virus is gone. What is bothering me is my immune system seems to be weakened now. When I was young I had allergies that had gone away over the years. The allergies have come back. I have also caught 4 colds now in 5 weeks this winter. I had not had a cold for 20 years before this. I'm glad the hep c is gone but if I feel sick all the time it isn't really any different. My doctor said my liver function is still good, so I don't feel I am any better off.
I am on here, specifically to answer two letters - one from Millie , the retired lady who was told she needs 40 thousand dollars worth of medicine and Ahmed, whose wife and son need to be treated. It is appalling that you must have this money to be well. It is unconscionable. That being the state of things for now, we have to find out what to do. Please contact several, very good university hospitals - Vanderbilt, Johns Hopkins, Cleveland Clinic or some closer to you and ask them if they are able obtain the drugs free of charge from the the pharma company on compassionate basis. If one tells you, no, go to the net and the next. Just be authentic. You will be talking to human beings and you're trying to resolve a problem together. Most people will want to help if they can. it is important not to give up. Never hit a dead end. When one contact cant help you, ask the to refer you. Speak to the pharmacy for gastro or hepatology in these university hospitals. That's what Vanderbilt has anyway. Make a trip to visit the gastro doctor there even. The more you ask, the more you'll narrow in on the exact things to ask and look out for. If the person you speak with can't help you, ask for any suggestions of someone to speak with. All the best to you. I believe you will find what you need and be well. I pray you do.
As I read these stories from people eith no hope for treatment, my heart breaks. I was able to receive treatment because of the help I received through a place call ed Skymed @ 866 778 8255. They completely paid for my interferon and ribavirin. I am now undetected from hep c.
I am a 27 year old female, and I was diagnosed with Hepatitis C genotype 3 in 2013. I started using prescription painkillers in high school. I saw my father doing it, and I didn’t understand how addictive they were. I had no idea that they were opioids, closely related to heroin. From age 16 on, I was on and off painkillers and heroin. I went to detox in 2013, where they drew labs and noticed that my liver enzymes were very, very elevated. After further testing, I got the call that I had tested positive for Hepatitis C. At first I was in denial, then I tried to use drugs to make the depression from my diagnosis go away...I had no hope until my doctor told me about Sovaldi/ Ribavirin. I started taking the combo, but lost my insurance after one month of treatment. I couldn’t afford to pay 1000 dollars for one pill...that’s just ridiculous. In my opinion, the medicine should be free. How can you put a price tag on someone’s life? In 2014, I got clean. I stopped using drugs and alcohol and started eating well and excersizing. I decided to stop ignoring my virus, and see a specialist. I continued to test positive for the virus, and I believe my last positive test was in 2016. On January 20th, 2017 I found out I was pregnant with my first child. They wanted to see where my viral load was at, but the test results came back undetected. I figured my virus was just on a downswing. One test result really doesn’t mean anything. When I was re-tested four months later, the test came back undetected again. The doctor said that four months undetected wasn’t long enough, and that my pregnancy might be affecting my test results. They said they couldn’t yet say that I was “cured”. My daughter is almost five months old now, and I had a final blood draw done on Friday. I got the results today, and the virus is still undetected. This means I have spontaneously cleared the virus on my own, following a chronic infection. This is very rare. I am mainly just happy that this means my beautiful daughter was never exposed. I attribute my ability to fight the virus to my clean life style. I don’t think my body would have had the strength to fight this virus, if I were still abusing it with drugs and alcohol. I highly, highly encourage anyone who is Hepatitis C positive and still struggling with addiction, to get clean. Even if you have to use methadone or suboxone like I did, it’s still so much better for you than actively using heroin. I’m so happy to hear that my body has cleared the virus, and I feel like the ONLY reason it was able to is because I am clean. Don’t ignore your virus, and don’t give up. There are new medicines hitting the market frequently these days, you just have to keep fighting until you can get on one. If you qualify for Medicaid, take advantage of it.
Hep C was found in my blood lab recently. I started a 12 week treatment and I am happy to say that I am cured. I accepted my illness and prayed to GOD to put the medical team together that will rid me of the illness. I praise God for his healing power. Thank you God.
I contracted Hep C in 1974 from the airgun shots in boot camp. I didn’t start turning yellow and jondice till 12 yrs later. Tried interferon ....DONT...last yr the VA cured me with Harvoni, it was like taking an aspirin ..no side effects at all and virus was undetected in 4 weeks...with out the harvoni I would be dying. I HAD Chirrosis not anymore ..
I have cirrosis of the liver do I have to vazzin for that particular deaseas?I really don't live a normal life I'm most of the time sick.
I was diagnosed with Hepatitis C, but I was able to recover from it in a month and a half on my own, and I used alternative treatment remedies. If I can be of any help, my email address is lilia3715@mail.ru
Hello, my name is Whitney and I'm a not just a survivor; I'm a fighter. I started using drugs at the age of 14, in 2001, (Marijuana, LSD, Ecstasy, Shrooms, Dust, and Cocaine). By the time I was 16, in 2002, I was a full blown heroin addict, and I was injecting (Intravenously using) upwards of 26 bags a day. At 18, in 2004, I was diagonsed with Hepatitis C while in a court ordered long-term treatment center in Pittsburgh, PA. I was devastated because I had been safe....no....I thought I was being safe. I never shared needles, cotton, spoons, or water with anyone...except my boyfriend. Anyway, I went to a gastrointestinalogist and my viral count was high but because I was only going to be there another 4 months they didn't order any treatment because of the cost. He told me to get checked out again upon my release. After getting out, I relapsed on heroin within a couple weeks; we moved to Florida soon after so heroin turned into pills (mainly oxycontin and roxicet). Needless to say I didn't go get my Hep C checked on; not until a little less than a year later when I was pregnant with my second son, in 2006. I still had a very high viral count but because of the pregnancy the doctor did not want to put me through any treatment. After he was born, I was supposed to start the treatment but I didn't, and I didn't even have anymore testing done. From 2006 to 2010 I used harder than I ever had before. I was injecting at minimum 9 roxicet (30mg each) and 6 oxycontin (80 mg each) a day; that was just enough so I didn't get sick; however, I used as mich as I could buy everyday which was closer to about 20 to 30 roxicets and 10 to 20 oxycontins. I also had on fentanyl patches 90% of the time. This next part I talk about is about my sobriety and how I maintained it in the beginning, because when you have Hep C, using drugs only makes it worae. On August 5, 2010 I turned myself in after running out on my bondsman a couple months prior. After two weeks in jail I went to court, and like an idiot I took 1 year of house arrest and 2 years of felony drug probabtion; I violated 2 weeks later and was back in jail September 28, 2010. That time when I went to court I was offered something like 30 days in jail, 2 years of house arrest, 5 years felony drug probation, and 2000 hours of community service to be served after my house arrest was completed. I had been sober sing 8/5/10, so I had more clarity and I knew i wouldn't complete this sentence and would end up right back where I was. So, I politey asked the judge if I could do jail time instead because I knew I couldn't do it but also because I knew I would start using again. For my honesty, he graciousy gave me a year in county jail instead of 3 years in prison. When I was released in May/2011, a man and I, who I had been with since 2008 and is now my husband of 4 years, got pregnant about a month later. The doctor said my viral count was lower than previous years. On January 1st of 2014, we found out another bundle of joy was coming. My new OB/GYN ordered an variety of tests; including, an extensive blood workup. I went to another gastrointestinalogist 6 times within just a few weeks. He finally sat me down (along with 4 or 5 other doctors) and told me I didn't have a viral count at all. That I tested positive on regualr blood panels because of the antibodies, but this time when they did the blood work that show viral count there was none That's why they tested me so many times he said; they didn't want to get my hopes up. I burst out crying and didn't believe it until i saw all the test results. Not oy that but my liver was in pervect condition. He said he had neber seen anything like this which is he brought in a few of his colleagues, who I answred quite a few questions from each. It's not unusual for your body to clear itself of acute Hep C, but I was chronic with a very high viral count at one point. It's beleived that people like me can't be cured without treatment; that there's no way the immune system could eradicate the virus, but mine did. I know my story is a bit long, so I'll end it with these words of advice. If you're using try to stop, you can do it...heck if I can anyone can. If you continue to use don't share needles, water, or cotten, and use fresh needles every time. I was lucky that none of my children have Hep C, and my youngest didnt go through any withdrawls (I was in the Methadone Maintence Therapy (MMT) when I got pregnant). Your immune system relies on you as much as you rely on it. Take care of yourself; get clean and stay clean, eat right, take vitamins, excercise, and keep your immune system at it's peak. You're not invincible, Hep C can happen to anyone. If my Hep C had stayed as bad as it was and if I didn't get sober and start taking care of mysel, I'd probably be needing a liver transplant soon if not already. My story isn't the norm, I've been extremely blessed, and I know it. I've got about 7.5 years sober; I earned my B.S in Psychology with concentration in Addictions and I'm currently earning two Master's degrees, one is a M.A in Addictions Counseling and the other is a M.A in Clinical Mental Heath Counselling; and right now I'm a counselor intern for adoscents who have drug abuse problems. Thank you for taking the time to read my story. I hope something in it helped. :-)
HERE IS WHAT YOU NEED TO KNOW! *If you KNOW you have Hep c, TAKE THE MEDS! Don't mess around with homeopathic routes, they weren't shown to clear the virus. We have great meds now that will knock it right out for ALL GENOTYPES! 1 pill a day! DONE. NO EXCUSES!. If you treat the hep c soon enough, it will not do damage. Don't waste your life. *If the insurance will not approve you because you aren't sick enough, then they are basically waiting to pay for a liver transplant down the road. DO WHATEVER YOU HAVE TO DO TO GET MEDS! GREG JEFFREYS has a great program to help people get medicine for LOW COST! Contact the drug maker, see if they will send you vouchers. DO NOT TAKE NO FOR AN ANSWER!!!! *ADVOCATE FOR YOURSELF! Trust your gut, question your Dr, keep copies of all of your medical records and tests. You are your own best friend!! *HAVE HOPE! We're all in this together!!!
this is the second part of the story I have autoimmune hepatitisprimary biliary cirrhosis overlap syndrome. I have been diagnosed last year after biopsy. My hepatologist proscribed me Azotropine after 2 weeks i had a terrible pain in their abdomen with , i talk with Dr.Khan in leicester Royal he said everything the liver works good my blod test results is great . After 1 week i been in hospital QMC Nottingham with 39.5 temperature the doctors fund i have side's effects from Azotropine i had Pancreatitis five days later i was ok and back home they proscribed me new tablet and nutritions 3 time a day . I change my hepatologist the new one on Nottingham Dr Steve Ryder Consultant Physician in Hepatology and Gastroenterology stephen.ryder@nuh.nhs.uk I want people to tell you that this doctor is giving me medicines for the immune system and for cirrhosis and sends me home. he claims my liver is good my liver works ok? I have pain on my liver on my bones on my muscles my left leg completely hurts bones knee cant walk i fell tired all the time i dont have energy cant muve . He give me one time vitamin D3 and tell me to ssk my GP for next time . I ask him questions why i have this pains and muscle bones my luver hurt me like he'll. He ansever me always same I DONT KNOW * I ask him witch stage im he says he dont know i ask him for bones test for fibroscan he says ask your GP and he dont know . I meet him every 3 months for 15 min maximums . My GP sends me to him he sends me to my GP ? I ask him about vitamins he says ask your GP the GP says i cant do nothing ask your hepatolog . My GP stopt for a long time does not want to give me the Nutritios ? even i have proscribed from distortion from hospital 3×1 Dr. Dr Judith Maxwell from Inclusion healthcare in Leicestet she estimated that I am already well with the weight ? ( i been 53kg befor 1 6 moths ago i lost so much because i been in depresion on pain i cant eat ) now at the monent im 45kg . I try to explain her thath i need nutritions because i have livee priblem and i need them not just for my weight my body needs vitamins and minerals . She stopt them and after one month i get found I have lumps in my chest and my arms have no strength to go and have a bath. Im very very scarred worry about it and I am currently in a very severe depression cant eat I have a tension of confusion I can not sleep for fear because there is no one to care for my health on the contrary, they transfer me to one another and Dr. Judith Maxwell even stop me from treating me she dont want give me Vitamins and minerals she stopt my nutrition drink witch is very important. By the way my hepatolog srnd me letter says im very well my luver is perfect ? im dieng rvery day slowly and he never do nothing for see how works my liver just blod test thsts all . Befor yesterday i beenseen by GP shei s new in the surgery i told her to fund ne another Hepatologist and i wanna Complain about Dr. Judith Maxwell she is the onewho put me on this condition stopping what I need for the treatment and giving me no other treatment. The one of the GP refer me to cancer chek and have appitmen tomorrow with a nutritionist . And by the way im on the bed alone alone alone and cant work cant eat because of the depresion i need to by on diet. I don't have helpand support from nobody because lonely peson . I need help from liver foundation but how i dont have idea. Thanks for take time reading my story
I was diagnosed about 25 years ago and have lived with the filthy Stigma and thought of having to live with this disease all my life. I wouldn't be able to adhere to the old protocol of shots back when they barely knew what it was as it was just coming out of the non a non b disease and into the what it is called now hepatitis c. I learned to live with it but I have definitely prayed and had hands layed on me, anointing oil poured on me but still tested positive, not to say our prayers weren't answered yet. I have come to the point of almost being approved for the treatment but have decided to not get the treatment because of the price of the drug. I can't see or be apart of lining someone's pockets for something that I feel God can and will heal. I do pray for all of those effected by this horrible disease. I absolutely know what it's like to be in your shoes. Don't ever give up hope and I do pray that someday we will all do things with our time and resources out of the kindness of our ? hearts. Mr Jody P. I love you all!
started Harvoni sept 5th first blood work in oct hep c undetectible continued for 8 more weeks and now my doctor said iam cured no side affects
i m hcv patient since june 2010. My geno type is 3 b. I took first treatment of hcv interferon alfa 2@ injection+ ribivirin from sep2010 till feb2011.. but virus become active after a month of completion of treatment. Then again second treatment interferon alfa 2b+ribivirin from 2011 sep till 2012 march. Virus become active agter a month. Then now from dec 2015 till may 2016 i took treatment of sovaldi+ribivirin. But all these medicines fail. And no treatment can control my virus. Now i m thinking to start harvoni treatment. Can anybody tell me a liver specialist who can understand my virus and can control my virus.
Diagnosed with Hep C and f3 fibrosis. 2.8 million to undetectable in 5 very rough weeks. 8 weeks of treatment and lifestyle changes, almost cured! It was a learning journey and very rough . I had to stop taking many meds and diet change. But Blessed Indeed. Harvoni is a Awesome medicine. Do what you have to EVERYDAY and Never give up or in. Peace and Love Rick
In 1981 I received a blood transfusion during emergency surgery, I had also had a homemade tattoo done in the late 70's. In 1994 I applied for a job with hospital and had to have labs drawn. I received a phone call that there was something wrong with my tests results. I stopped by the hospital after work to speak with the admin. this is when she told me that the results showed that I had Hep-C. After having a biopsy done which showed level 3 cirrohsis and level 2 scarring, i thought what am I going to do, I was a single mom with 3 girls to raise and working full time. I found a gastroenterologist that was specializing in Hep-C and he put me on the first medication for Hep-C at that time. I have been through treatment twice with no good response.Then at the UNC hospital in Chapel Hill, I was given Harvoni for 12 weeks, that was in 2012. Ever since that treatment my blood work has come back clear of the virus. You have to trust in God and your Dr. and yourself to get here. I still have the cirrohsis it's not going anywhere, but God handles it for me. Good Luck to all of you. Keep Fighting..
I apparently contracted Hep C in my teens when I was given blood in an Air Force Hospital. Then when I gave blood 15 years later found that I had Hepatitis C. During that time I was unaware that I had contracted it and could not figure out any other way I could have gotten it considering I lived a clean life. Until Harvoni came in existence I had not tried any other treatments due to the fact that I was a single mom working full time crazy job and didn't feel I could function from the side effects the olde drugs had. I continued to talk to doctors and kept up with all the writings on the experimental drugs and blogs about them. Harvoni seemed to be the magic bullet...AND it was! I had very little side effects and was cured from it.. It's a miracle drug that has the least side effects and the easiest to take. I'm Hep C free and its been over 2 years since I've been cured from it with NO SIDE effects. I can only stand behind the one that worked for me and had basically no side effects. Please, please...anyone not wanting to take it...reconsider...save your life and TAKE the MEDICINE! If anyone has any questions feel free to ask me. What a tremendous mental and physical relief to know I no longer have this bad disease. Living with it was hard mentally and had it's physical challenges. Join the "no more hep C" club and take the medicine....
I had Geno type 2 Hep C and was prescribed that outrageously priced Epclusa (sofosbuvir 400mg/velpatasvir 100mg). I was blessed that after the first month I felt energy coming back and my blood work showed great improvement and that I was Negative after only a month. No side effects. I know some are having to buy these medicines from over seas and such, but I have an unopened bottle left. If anyone is interested, message me at ?+1 (912) 246-1529?. Best of luck to everyone. Cheers.
For employment, my husband and I moved to Riyadh, Saudi Arabia in 1994. In 2003 at Kingdom Hospital I experienced hepatic aneurysm rupture, lots of blood transfusions, PE, DVT, removal of spleen, removal of gall bladder, septic shock. When I was medically evacuated to Houston and turned over to Liver Institute in Dallas, I was told I had Hep C, Genotype 4, specific to Middle East. Fast forward to December 2014, I had to see gastro doc for colonoscopy. I am 67 years old, female, widow. That particular gastro doc has advised Epclusa for 12 weeks (84 pills). Thirty pills require a co-pay from me of $20K. Next thirty pills $20K. Next 24 pills almost 20K again. I am the typical senior citizen widow with NO assets. I also do not have monies for co-pay of this drug treatment. I don't know how anyone can receive treatment for Hep C because of the drug costs! At 67 I am suppose to go on a wait list for treatment? I have already lived since 2003 with Hep C and no treatment. Why didn't I ask this question years ago? My husband died in 2005, my first grandchild arrived in 2005. I am one of those people with numerous existing aneurysms, repairs of SMA and celiac aneurysms, and removal of left lobe of liver and the docs were more concerned about that instead of pursuing treatment for Hep C. Hep C......the gift that keeps on giving!
My wife eman she is 34 y infection with hepatitis c since 7 years we know this problem during follow up of pregnant in the third month. My son yassin infect by hepatitis c during cezerian operation and he is 7 years old now. My wife eman take 48 weeks with interferon and ribabarin from 2013 to 2014 with no solution pcr read 18000 till now What can I do now to help my wife and my son to protect our life. Thx for your co-opertain Plz send me ur safe solution for my wife and my son
Epclusa worked for me I did not experience very many side effects I'm 59 years old and have been hep C free for 9 months it's saved my life my energy has returned and my mind is much clearer I'm eternally grateful for my hep C nurses there are the best Harley in Ocala Florida
I was diagnosed with Hep C in 1998, at first i was devastated having felt good about being clean from drug use for 2 years. I did nothing about it for a while as I was still a heavy drinker. In 2008 I stayed clear of alchohol for a year and had inteferon/ribovirin treatment for 48 weeks with some fatigue and depression as side effects. To my great dissapointment the treatment didn't work. I was told there was no other treatment. I went back to drinking, being depressed. In 2016 I was in hospital through alchohol problems. I got clean and have remained abstinent since. i was told about the new treatments and started 16 weeks of Zepatier and Ribavirin in Aug 2017. I suffered a lot of muscle fatigue but remained positive and was told in December I had cleared the virus, awaiting my SVR but am very positive and looking forward to doing some voluntary work for the Hep C trust as a peer educator. Stay positive and good luck to anyone going through this. It's not easy but worth it to clear the virus.
I believe I caught it 39 years back while getting a tattoo and when examined I was told I had no damage from it and basically had no side effects from Hep C. Thank GOD I was big on herbals and exercise. I took Schizandra and a few otherherbals that cleanse and strengthen the liver and other organs. While herbals may be bad for some of you for others it will help, but DO NOT take them while on treatment and until your doc says you are now clean. While taking Harvoni I had explosive bowel movements, some sleeplessness, lacking energy, and some nights I didn't sleep very well. I just stopped taking Harvoni and my sleep is decent, less explosive bowel movements, and I soon plan on getting back to the gym. Moral of the story is to actually care about your body and do something to take care of it. If I had not done so for so many years no telling how bad off I might have been. In another 2 weeks I'll be back at the gym. Why, because it's good for you and helps jump start your entire body and mind. Don't be lazy. Do something to help your body!!! Eat right, go to bed on time, workout, drink WATER, and exercise.
I was diagnosed with viral encephalitis in 1997 and I had issues with memory and some balance issues. Right away they sent me to psychiatrist just to find out they shouldn't have. I was having seizures but they said I wasn't even though I had that diagnoses from another doctor. Then I was falling more frequently and tore my acl. Then in 2014 I fell again and now I w a second unconscious. I was there for 12days and in intensive care also. They were giving south meds because they didn't know what was going on. Then my mmonia levels were elevated. I never had any problems with my liver. Anyway I kept falling and last year in Jan I fell in a store and I was diagnosed with conversion disorder. Now I have a positive ana. I went to school and rheumontologist and she told me if your ana is high that could be nothing. I was told I had a extra vein in my liver. They did the procedure and I had 5. So I have 5 shunts. I was tested for cirrhosis but I don't have that. I went to the Mayo Clinic and all the diagnoses they said I had was a misdiagnosis except the liver but they said it was alright the shunts that was put in. Then I found out in 2014 I was diagnosed with autoimmune encephalitis disease. So now they are saying I need to go to behavioral therapy. When I was there I went to 2 psychiatrist and they were going to send me to a 3rd but they cancelled the appointment. The other 2 didn't say anything was wrong with me. For years I was diagnosed with bipolar and schizophrenia. They are now saying my ana is real high but they have know answers. Also I forgot to say they diagnosed me wit ms. And the neurologist said I have to deal with it but never said what. That why she said I should go to behavioral therapy. Then I was told I should see a gastroentologist /neurologist but still no answers. I was told I will get cirrhosis and then need a liver transplant. Which I am not receiving that. So I really don't know what this could be and know no doctor can give me answers. Who needs them. Has anyone been through this. Oh they didn't say it was hep c either.
I was lucky because I detect HCV virus when I tried to donate blood for a patient, otherwise I may not know I was infected. But I could not effort for the treatment cost that was during 2006. After ten year of suffering I heard a good news for treatment and started medication for three months by paying 30 K in the year 2016. Unfortunately that madicine could no make me from HCV virus. Then I started madication again through CONS. They provided medicine free of cost for 6 month course and I am waiting the positive result by March 2018. Thanks Surjit
I was diagnosed last year and apparently had had hep.c for a long time but only in my 73rd year starting getting unpleasant side effects and catching other illnesses much easier. One of the illnesses was severe - and I mean severe, I had to sleep sitting up - reflux. Fortunately the specialist recognised it as a symptom of severe hep.c. and diagnosed me. But then I was told I would have to wait an uncertain length of time for the treatment drugs as there was a huge waiting list owing to the cost charged for the drugs by the manufacturers, an American pharmaceutical firm called Gilead (I think this is the right name) who charged the NHS an incredible £48K for one treatment! I went online and found a company in Bangla Desh who sold me the exact same medicine for £800 and as soon as I started taking it I felt better. I have since been diagnosed with no viral load and have one more check to go before being pronounced free of Hepatitis. Everyone has the right to be treated and something should be done about this.
I have had Hep c for 20 years or more. My son was 6 weeks old when I found out. I was afraid, and didn’t have time to go through the terrible treatment available then. Now the past 3 months, my insurance payed for the new treatment. When I first started Epclusa the first month I felt better physically and mentally. I did not read the side effects, I wanted to see for myself if or what I felt was the medicine. After the 1st bottle the feeling of getting better went away. I had joint issues, said not to be a side effect but it was uncomfortable. That went away and at the end of the 2nd my blood work showed me 46 points away from being cured. I have geno type 3 one of the hardest to get rid of the disease. Now I’m 4 pills away from finishing the treatment. I feel better, a lot better. I’m optimistic! The body aches have gone away. Please if you have it, try it. You want be sorry. Most insurance companies are paying for the treatment it’s cheaper for them for you to get cured. Bless all of you!
I found out the news I had contracted Hepatitis C following my fist blood donation. I had nipped Home on a Work break during the first week of my new job and found out via a letter. I was devastated. I felt my whole world collapse beneath me. I was 26. I was at home alone, mind and heart racing. I got up and started to pace, I couldn’t catch my breath. I reached the phone hoping to reach my mother, but was unsuccessful. I opened the iPad and typed the dreaded words Hep C. In my Mind there was one virus which was untreatable. I thought of Pamela Anderson, and the stories she had untreatable hepatitis C. I discovered I had the same strain! In my mind I had just been dealt a death sentence. I felt as though I was going to die. For first time in my life I felt unfathamoble fear. It was like telling me I had HIV. That was it. And I couldn’t live with it. I was contemplating how I was going to euthanise myself because I couldn’t live my life in constant fear. For the months that followed I trenched through the memories and the things I had done that left me with regret, trying to piece it all together. Now it all made sense to me, why I had always felt so poorly and tired following a night out. THat I would actually black out at times because I guess my liver couldn’t handle it. Why my skin had always itched and I spent years going through a cycle of eczema which covered my whole body and face. And why I had lost jobs through it, not feeling like I could face the world. I went in search of people who were like me, who could maybe offer me so hope and support that I would be okay. There was one local group that I managed to pluck the courage up to go to, but I didn’t fit in. The few people I saw there were all ex addicts, and after speaking found that was the only thing we had in common, and I didn’t find it helpful. I sought comfort in online forums which did provide some hope and relief. Luckily for me I started treatment soon after my diagnosis and was fortunate to be undetectable by week four. It is now four years post treatment and I am still undetectable. I am one of the lucky ones. My message to anyone going through this is to Don’t lose hope. Don’t tell people either, I made that mistake when I got drunk and told people as I guess I still had some unresolved need to discuss things or give myself some therapy. There is still stigma. And I am finally over this. I don’t drink these days, I’m happy healthy and extremely grateful. I hope I help someone who is in that dark hole where I once was through telling my story. I slayed the dragon. You got this too!
For those of you that are going through the nightmare of finding out you have Hep C it can be scary as it was when I found out. I became really sick and my body functions had started to erode to the point that just getting up was tiring and my system was backing up so that made thing worse. I was classed as stage 4 cirrhosis . I had been diagnosed a year prior but the drugs they had out involved the use of interferon and I had read about the effects that it had on other organs so I tried to stall hoping for a better alternative. Now things were bad and I had to make a decision so I got on the internet and started to franticly search for ideas and found out that Abbvie was running some clinical trials of some new drug that didn't require the interferon so I located a hospital in my area and applied . The trial was called the Turquoise III and it involved four separate drugs taken twice a day for a 24 month period. Every week I would go to the hospital so they could draw anywhere from 4 to 12 vials of blood and after about the sixth week the Hep C virus was not showing up in my samples. One of the drugs not made by abbvie was Ribavirin and it was pretty intense to say the least and has some side effects that cause you to become depressed so my regiment to counter that was I would go jogging to wear it off a bit and keep my mind focused. The thing I would recommend to anyone is to stay as active as possible because it aids in returning your health back and also keeps your mind relaxed so you don't dwell on your condition. After completing the 6 month trial period they told me that the tests showed that the virus had not returned so I started to work out and eat everything I could that was healthy for my condition. During this whole time I found a board of great people that are all Hep C victims and they were a best lifeline when the depression set in called Hep C Friends. I would recommend this site to all that have this issue because they will guide you through the difficult times and give you advice on food groups and anything else you want to know. I don't know if I would have survived the journey without them. They are all super people and I will add the link. I have now improved my health tremendously and my doctor tells me my liver is functioning great. To give you an idea my readings at the start Gamma GT 217 <49 ALT 247 <50 AST 137 Alpha Fetoprotein 35 <36 My readings this year Gamma GT 18 ALT 17 I was a guinea pig for the new exciting drugs that are out in the market and they now are able to clear your Hep C in a matter of a few weeks. So dont despair and get yourself active and go see your doctor and get on one of these new drugs now. The cost is sometime an issue but some health insurance covers some or all and the governments are getting involved to help ass well. Dont wait as I did because these drugs are the best and you wont regret it... All the Best Terry http://hepcfriends.activeboard.com/forum.spark?aBID=114015
Good morning, Please, I never knew I was living with HEPATITIS B not until I went for medical test last month at one hospital and that was what screen me. Then, I look up myself and my three Children without any hope again. I had two test and all confirmed. I learnt some years back my little girl body was itching her and currently she is having stomach upset and she lost appetite. Please I have three children and I believe they might have constructed some. Please I need your help to save my family and myself. The main problem I'm facing now is routine test and I don't have money for the test. Please any help from lovely ones? Thank you so much I'm hoping to hearing from you soon KIND REGARDS
I sent thro the generic treatment for 3 months it failed and now my insurance company has denied my treatment I guss paying over 1100.00 month for insurance is not good enough. Another medical insurance joke. Be well.
Hi. 69 yrs old. Treated for hep c 2003 with peg intron for 6 mos. And SVR or free of live virus ever since. But sick, sick, sick. Chronic fatigue. Feel like I have the flu every day of my life. 5'months ago I was given A BLOOD TEST using a CcP test. Turns out I have Rheumatoid Arthritis. All those doctors who said I was depressed or crazy can now go pound sand. Turns out Rheumatoid Arthritis and Hep c are often related. So do get tested. The RF is not good enough. 20% innacurate. Look for high crp, fast esr, high CcP, and minor anaemia. You might be experiencing RA and think it is your Hep C or vice versa. Good luck.
Hi! I think there is a chance to beat Hepatits C it on your own. Not many people can, but there is chance. I guess ,according to doctors, I belong to the small percentage of people who could get rid of ot on their own. I also think whatever I did with food and exercise helped me the most to get rid of it in about 1,5 months. It was not easy,because I felt that my body was nearly giving up, and what might have helped me was rather a combination of things. Another thing is that I was determined to get it out of me!:-) “Hi, virus!:) , nice to meet you!:) Well, I have a news for you -these are your last days of being my body, and I will do anything to make you go away, even if i have to eat carrots sticks everyday)))))!” I was diagnosed with hepatits C last year, even though it is gone now, I will probably will have a constant fear of it for the rest of my life. I decided my experience can be helpfull to someone , and therefore I want to share with what I did in hopes that maybe it will help someone esle. My email is lilia3715@yahoo.com I can share the diet and exercise that helped me. I wish you all the best.
36 yrs ago I was having my gallbladder out and a nurse was taking my pain medicine after surgery, come to find she got caught and then the Doctor told me she had Hep C, now after all these years my liver panel is in the 6 digits and it is killing me, I have cirrous?. I TOOK interferon, I had to inject myself 3 times a week with medicine that was awful. Now I am atomic? I have bumps on my arm's, itchy rashes and Depression, so Tired. I hope you can understand what I am saying. I hardly get out of bed anymore.Barbara
Hello Everyone I too suffer from hep c. I have had it now for 18 years and am starting to feel really bad with it. The fatigue and muscle pain is wearing me down. I cannot remember the last time my dreams whilst sleeping were positive so I wake up feeling depressed. It seems to be the same old negative foggy feeling every time. I am just back from the shops and am out of breath and drained. I am starting a new treatment called mavyret and have researched the side affects as being minimal. I have no life with this virus and do feel like a guinea pig for embarking on treatment but il try anything to help myself and quality of life. For years I have treated myself with herbs and specific ground spices but I know longer have the energy or the money to keep on top of it. It's not just affecting my liver it's attacking my whole body and even though I do not have cirrohsis I still get nasty symptoms. I cannot wait to get on my treatment and maybe then il be able to wake up like a normal human being. Throughout the years I have avoided certain foods too and maybe this is why my liver is in the shape it is. My liver is not perfect but I'm fortunate it's not beyond repair.
Was shocked and frightened when I was diagnosed accidentally by lab work from my GP. I had gone in for fatigue and joint pain. Tests showed I had a crazy high viral load and high liver enzymes. I also had a very difficult strain to treat. I just wanted to run away. I was worried about my family, I was embarrassed and depressed and frightened. Then I went to great gastro center in dothan ala and took interferon and ribavirin for 12 months. Had some awful skin reactions (ribavirin rash) and some spotty hair loss. That part was not pleasant, BUT I went negative after first month and still am. Since 2009. My feeling is don't be afraid to seek treatment and no doc should discourage you from trying. Good luck to you all.
H c is very deadly diease my mother was suffering now she is no more l have given her ayurvedic treatment but within a month she is no more other treatment is very costly
I was diagnosed about 25 years ago with Hepatitis C after giving blood at the blood bank. I was profoundly shocked and do not know how I contracted it. Not from needles which I cannot stand and always avert my eyes when having blood taken for any reason. I could have had it for much longer than 25 years. 12 or so years ago I discussed the possibility of treatment, but my very competent GP advised against it, saying the treatment was very harsh with only a 60% success rate for my particular strain, and that my liver function tests were good, and there might be better options down the track. Well, the sh*t hit the fan for me a week ago when I fainted in the street and hit my head very hard and was taken to emergency. They took a ct scan and x rays which showed impacted faeces and a great deal of liquid in my belly, which was why I looked like a barrel on legs for the past 2 or 3 months, trying to be in denial of my awful distended shape, when I used to have an hourglass figure. A couple of days later then drained 8 litres of fluid (ascites) from my belly and gave me 3 bottles of albumin intravaneously. I keep thinking - that's 4 x 2 cartons of milk I had strapped to my belly that I had removed! Still probably another 2 litres of fluid there. Also I think I bled from the throat when I was admitted to hospital as I had eaten very little about 6 hours before vomiting, then only 2 mouthfuls of tea, yet the vomit was dark brown. Other very unwelcome symptoms I have noticed are extreme tiredness since my hospital admission, very bad depression, spider veins around both knees in the past 18 months when I've never had them before, and wastage of my arms which makes them look 20 years older. I feel disgusting, diseased and just want to die. Since been told that the treatment for Hep C has been revolutionised and there is a very good chance of eradicating it, so when the clinics reopen in the early new year I will be right onto it. Fear it is too late for me though - I've had it so very long, and they want me to 'open my bowels' twice daily, even though I've only gone once a day virtually my whole life. Am on diuretics and heavy laxatives which don't work - I've had one bowel movement in 4 days. On low salt diet (blando) and no alcohol of course, eating lots of fruit and vegies and heaps of water. Then tonight, I had the most horrifying, realistic nightmare when I was virtually paralysed and trying to escape from a demon - I woke up to hear myself using this weird, tortured voice, pleading for the people I live with to help me, they didn't want to know, it was unbelievably horrifying. I have interpreted the demon in the nightmare to be my Hepatitis C, which is eating me alive and destroying me from the inside, and that I can expect no help. My advice to anyone with this dreadful illness is to seek treatment PRONTO! DO NOT DELAY!
I posted a week ago Just been diagnosed with hep C .first test was false positive. Allnygr doctor said was there was antibodies in bloodstream. He referred me to specialist my liver function is normal Had a ultra sound liver looked ok but high spleen. i am so anxious. just want to start treatment asp .
I was diagnoised on Monday with hep c my doctor said I had antibodies in bloodstream .But my liver function normal and ultrasound scan normal but a high spleen ?Im waiting to see a specialist I am so anxious and just want to begin treatment asap .Dont know viral Load he did not mention it ?
I have posted my story a couple of times on this site. After reviewing all of the posts on the subject of hep c listed in this forum I would like to say the following. 1. It doesn’t matter too much how you got hep c , It matters what you do from now on. 2. Yes sometimes your body can fight the hep c and cure itself. 3. If your doctor prescribes Harvoni you most likely have cirrhosis too. 4. Most treatments with Harvoni have little side effects and have a high cure rate. 5. Relax with proper treatment it is most likely that hep c can be beaten. 6. Follow your treatment regiment to the letter. 7. Seek treatment as soon as possible. 8. Try to kick your monkeys ( smoking, drinking, drugs,) and anything else that will damage your liver any farther for the rest of your life. 9. Drink more water and watch your salt intake to less than 2000 mg per day. 10. Have faith in your Lord to help you cope. I hope this list will help you in you journey to beat hep c . I am pleased to say I have been cured by Harvoni for 2 years now. I wish all of you a long life and happiness after you are cured too. You can do it.
Hi in the last 12 months my health started to deteriorate suddenly, it was picked up in blood tests I was hep c positive, i had no symtoms prior to my diagnosis , aching fatigue being sick,stomach bleeding , circulation problems,bowel problems bones n nails brittle and on and on, going from always healthy to one thing after anothe, I have chronic liver damage and cirrhoses from this SILENT SYMPTOMATIC VIRUS, and also knock on effects to other parts of my body, i was put on the injections of intferol but made me very very ill and had to be stopped as i ended up in hospital with it, 3 month later Iam on my 2nd month of treatment, of a 16 week treatment of MAVIRET a very expensive treatment , which seems be much better than the previous treatment, though they make me extremly tired week itchy skin especially were the patches of cirrhosis is, though ive been told the damage is done and my liver will never be normal ,the last blood test was amazing results , before this treatment my liver viral load was 70 million !! IT was down to just 96 viral load after 2 weeks , i have ate as healthy as possible , i dont drink , iam back in 4 weeks for results of the 4 week blood results of full liver fuction etc, Iunderstand why they call it the silent killer its believed ive had it years and never even knew , I dont know fully what expect at end of treatment with having chronic damage, will keep updating , but with those results of viral load down so much its surley got to be a good thing, would love to hear anyone else who s chronic and had this treatment,for those who even think they may have come into contact with it please please go and get tested so you can get treated and cured before it becomes active and hits you like a ticking time bomb, its a small prick on your thumb , maviret is for all hep c genotypes 1- 6 , myself iam genotype 3 , would love to hear off anyone else about your story of this silent epidemic ,stay healthy guys ? sharon.
Hi I'm 45 I had breast cancer in 2008 which I received chemo For Due to not feeling well I had a blood screening for hep c it came back a false positive. im waiting on repeat of bloods does anyone know what this means? ?i was a heroine addict been clean for 20years. i had a ultrasound my organs are well except slightly high spleen. Liver function normal can anyone help as it happened to them ??
The day I was told I had Hepititis C,that was the day I died mentally. Within the walk out of dr.office, walking to the car I was contiplating my death. Iwas contaminated, no one was allowed to touch me. I had just seen 4 others pass away, needless to say I was next. Trying to figure out how could this happen,where ,who...how could I be so wreckless? I was treated the first time with ribifiron and interferon..it became to the point, I couldn't eat,then I received a box in the mail with approx. 24 more bottles of pills. Thats when I had a meltdown. Not eating and expecting to to continue the treatment surely would have killed me. Not being a weight watcher, I was mortified finding out I was 83 lbs. Thankfully my daughters stopped over and realized I wasn't as good as I thought, It took quite awhile to get back on track. Giving myself to them, religushing car keys as well, which wasn't easy ,but the right thing to do. Having my best interest at heart, I trusted them. I'm not sure how I got so blessed to get accepted with the Hep.C team, but they were amazing. Which,that is an understatement. I am greatful, having a second chance at life. I'm now trying to figure out how to give back.
Hi I'm Lorene, my rheumatologist told me I had it in August of 2017, I was referred to a gastroenterologist who then told me it's been in my medical records from Martin County Memorial Hospital since 2009. I was Never told. There were plenty of times they could have told me, I was in there for pancreatitis and in 2012 for diverticulitis. In 2011 I was diagnosed with Rheumatoid Arthritis, I did some research and people with hepatitis C are more likely to get Rheumatoid Arthritis. I've been on Mavyret now for 5 weeks and it because I already have severe RA is nearly crippled me. I'm 54 and I can't even vacuum my own home much less do the things I enjoyed like walking my dog and ferrets. I'm angry at the hospital for not telling me I had such a terrible, but cureable disease and now I have a extremely painful disease that is NOT cureable that may have been prevented had I known back in 2009. Thanks for listening it helps to be able to vent.
I was cured from Hep c the old way taking the shots i had a ruff time taking all the meds I am very thankful to all the medical staff that helped me survive this horrible disease when i first found out about it there was no cure i was assured i would be passing away sooner than expected but thank god and the glory of miracles im still here dont give up it will be ruff and with the new treatments out there you will be cured im so grateful for my new life and may god bless all of you and i pray your recovery is great and final no more hep c
After 17 years on Nov.62017...from liver failure...he fought hard..and was diagnosed with HepC..15 years ago..the last 8 was difficult...I miss my best friend..my love...and his beutiful name James..calling it..enjoy every moment..love hard..we had so little..but we had each other..he was house bound..to weak..no energy..but always remember..your always no matter were u r..your always somewhere when your with the one u love..yes..he was on the liver list..now I'm lost...take care..and enjoy life
Hi I'm Katy and I'm from Dallas . I'm 36 and have had hep c for 2yrs now and am scared to death. A girl gave it to me knowingly she had it and here I sit w it in fear daily of whether or not I'm going to live or not. I'm gong to the hep c drs and get to g everything I need to get this taken care of asap. If anyone wants to chat or help w support I'm in the same boat
I was told that I have hepatitis c about 5 years ago now I've been told that I don't have it anymore? That my body fought it off itself. Is this possible. Or are the Dr stupid
I have diagnosis hcv in August 2017 and my range is 2.26 and I my viral load is nil can viral load increase in future. There is any treatment hcv reactive only.
I was hepatitis patient. I was diagnosed HCV + in March 2015 .the reason behind is blood transfusion.my genotype is 3a and my doctor give me medicines live sofovir &rebavarin also injection interferon. After treatment I was diagnosed not dected upto August 2017 .from today my vital load comes less than 15 lacks which is also not dected. But I don't know about normal value of viral load. Also dear doctors plz give me suggestion about my diet what to eat ,not to eat thanks 12 Nov 2017
I was diagnosed in 2013 with Non-Hodgkin's lymphoma after my doctor did a bone marrow biopsy they diagnosed me with Hep C. After my last R Chop chemo treatment in November 2013 I was able to start Harvoni in March of 2015. During my last visit with Hematologist my labs came back HCV gone, but was diagnosed with chronic cirrhosis of the liver. I do not drink alcohol or do drugs. Per my Gastroenterologist, I am cured of HCV, but I was wondering if anyone else ended up with cirrhosis since I did not have cirrhosis prior to taking Harvoni.
To the commenter on October 11th asking about options for gentotype 3: there are new options out there! Epclusa has been on the market for a while and is very similar to Harvoni. It can any genotype in as few as 12 weeks with mild if any side effects. Mavyret is another option that's very new to the market and can cure any genotype in as little as 8 weeks! It is also very well tolerated with few side effects. Definitely talk to your doctor about these newer treatments to choose one that is right for you. They're all oral medications, and they're very effective. There are also many programs out there to help you afford the medication, so cost should not be a barrier. I truly believe eradication of hepatitis C is within our reach
Chronic HCV TREATED 2016 now I m not dected (viral load )
Good day everyone I am new here. In May they found hep c with me. There is no medicine in my country. I drink bitter and the diet that I see on the net and I have to go on to see how far I am so in my country I have been left to fend for myself. I eat kiwi beet apple every day and drink green tea sometimes I make tamarind juice to keep my life clean. I was last at the internis the virus is there, but my life is completely clean. So I do not know how to go with me but I feel 80% good I do not feel good then I rest well and also many greetings, but sometimes there is no money. My country is in a priecere situation. Ma yes is God praying otherwise I do not know. Gtoetjes to you.
I was shocked to say the least when i was told not only did i have HEP C but i had it for at least ten years! That made me twenty years old. Several surgeries..blood tests a child by c-section and it was never ever caught. So at 33 years old i had cirrhosis of the liver and could not understand how. The only thing i can think of are the tattoos i have. They were done by friends ..i was young figured thats gross to use a needle on someone else or its from the cocaine i snorted in my early twenties. But what i was afraid of is my son. Could my actions affect him.. Of course i had him tested etc.. But what i couldnt understand is why they dont just make it a standard test. I think of all the surgeries and blood tests and it was never caught. Luckily i got approved for the harvoni and i am very grateful. But i had to contact everyone i partied with 15 years ago and advise them to get tested. Embarrassed..yes but hopefully i saved someones life. I am grateful that the DR and nurse were so great and did not treat me any different. Because i sure was ashamed. I see the commercial on t.v. for harvoni and the research that years ago it killed people. I am so grateful. And will always spread my experience. It was my fault why i obtained this killer and my life was still saved.
My husband contracted Hep c. Before 1973. It was just called hepatitis then. Abt. 2001 he was told he had Hep c, and attempted the treatment, which was terminated after 3 months for non response. His liver biopsy was inclusive. After 2003, he developed diabetes type 2. No one in family has it and he was not overweight. He then was diagnosed with bladder cancer. That subsequent surgery revealed a very low platelet level. He was referrred to a gastro and again had viral load tested and another liver biopsy done. Both inconclusive. After a consult, the gastro did an EGD and banded 7 esophageal varicies. His spleen grossly enlarged and Dr. Declared Cirrohsis with 1-2 years survival prognosis. We transferred care to a Hep C. specialist and researcher for victrellis, which was not yet FDA Approved. Before we could get anything started, his bladder cancer returned and he had to complete the chemo treatment and start a maintenance for it. After that was resolved, he could start victrellis which had just been approved by FDA. the doctor knew then that Harvoni was in the pipeline, but said my husband could not wait for that . His platelets were to low to start treatment, but the doctor decided to give him a platelet booster, which at that time, was not approved for this particular use, but the doctor managed to get him on it anyway, and after platelets rose to acceptable levels, he started the Hep C. Treatment with victrellis. He had a of success. There were many additional medications used to allow him to continue treatment, including xifaxin. It was extremely difficult and miserable for him. He had to do the entire treatment, almost a year long. He continued regular EGD testing and eventually had more than 20 esophageal varices banded, and gastric varicies. He developed a portal vein thrombosis which did not respond to treatment. His spleen was still grossly enlarged. But the treatment cured him and another year later was declared virus free/ cured. Dr. Then adjusted life span to 3-5 years without a transplant. His liver then canalized and created new pathways to circumvent the portal vein thrombosis. His platelets remain to this day, extremely low. The lowest being abt.18. They now stay around 28-38 . After the recanaluzation, he stopped developing varicies. Spleen still enlarged but not as bad. Still has diabetes from the virus. Liver holding steady now, in 2017. His labs are low, very tired, gets super cold, even in summer. He has cheerful, wonderful attitude which we and doctors think played a very large role in this outcome. He now sees a specialist once a year, starting this year. His prognosis had been readjusted a few years ago to 5-7 years, but now, after this much time, they speculate he may not need a transplant at all and that maybe his cirrhosis is beginning to heal somewhat. He, of course still has a badly damaged liver. But he is now 67 and still works every day and has the best outlook! His MELD is still 14, but it could stay there forever. We and the doctor are very optimistic! This story is meant to encourage everyone with a lousy diagnosis to have hope and to persist! To go from the initial diagnosis of 1-2 years, all the additional problems of cancer and diabetes and varicies and grim prognosis...to where we are now, is really miraculous. You would never know to see him how much he has been through and how much he still endures. Hep C. For over 35 years...so many close calls... be grateful for these new treatments with little or no side effects...it is incredible progress. This website and it ‘s predessor, were a tremendous help to me. Our story , I believe, is probably archived in M.D JUNCTION. Having someone to talk to who isn’t a doctor, but a patient going through the same things, was crucial for me as a caregiver. Good luck to all. Even the worse news can be altered. Have hope.
I have been monitoring my liver function test results for decades. I've basically felt fine and was fearful of newly released DAA medications for Hep C. I've learned how to protect my liver through researching lifestyle (diet, abstaining from alcohol, use of OTC pain relievers, etc) changes. Some experiences from others I've read left me in terror of going forward with treatment. My monthly out-of-pocket individual health insurance premiums have been challenging to maintain. I even received a letter from my insurance advising me to get treated! I've been taking Harvoni for 5 weeks now and haven't gotten 4 week viral load test results back yet but have had zero side effects from taking Harvoni. I drink lots of water throughout the day and take Harvoni in the afternoon every day. Having lived maybe decades with chronic liver disease, I had accepted the symptoms as my new normal. I thought I felt fine until the new vitality I'm experiencing now. I felt I was playing Russian Roulette each passing year that I didn't try to get the disease irradicated. On the other hand, I was fearful of debilitating side effects of medication. I made the decision to go forward and have no regrets. Seems there's controversy as to whether I'll receive an actual cure or achieve remission after completing course of Harvoni. Time will tell. At any rate, I feel I'm adding years to my lifespan by accepting treatment. One never knows how they may react to medications, but my experience has been completely positive. Zero side effects from Harvoni are possible. Best to all now making the same decisions!
July 2016 went for my annual wellness check. Elevated liver enzymes caused them to test for Hep C. Results confirmed with high enough numbers for my insurance to cover treatment with Harvoni. (Insurance denied 2 times first). Took Harvoni every day at 2pm with my phone alarm, never missed. At one month the virus was undetected. I never had a symptom of the virus. After the 2nd month I noticed muscle fatigue, especially in my left thigh. Strange because I walked 3-5 miles every day and lived with stairs to climb daily. During the 3rd month I had trouble getting up the stairs, had to kinda put a jump in my step to go up. I wanted to stop treatment feeling that since it was undetected, but I kept on for the full term, just in case. All clear after 90 days on the drug. Then came the 3 month after treatment ended blood test. I read the results and looked at the technician, "I have it??!!" He nodded. Dang it... what went wrong? AND my thigh is still not doing well. I still walk daily and have added water aerobics, but even after a month still have an ache in my thigh. Just turning 65 and Medicare begins. I would not opt for Harvoni again.
I caught hep c in 1975 .I was in a bad motorcycle wreck and had many transfusion 's. This was way before they knew about hep c. I was diagnosed in 2007. Did the interferon and ribuviron to no avail. Just sick as hell for 3 months. I'm on my second month of Harvoni and virus is gone. Amazing,thank God,literally. Still on meds for another month or so. Really hoping I get my energy back.Good luck to all.
I am 54 years old and in 1984 I was married and I had lost two pregnancies that year… The last one being an etopic pregnancy. The tube had ruptured earlier in the day and I had to have emergency surgery. I almost didn’t make it through the surgery… I needed 2 blood transfusions. 30 something years later I’m having some health issues more to do with allergies but while we were testing my blood for different things I kept seeing the commercials for hepatitis C… Being born in 1963 I said test my blood. Sure enough. My insurance covered Zepatier. My medication arrived… ( Packaged like I have never seen any medication packaged before my life!!) my medication was $54,600 for the 12 weeks that I personally need to take it for… One pill a day… For 12 weeks I felt absolutely nothing while I was taking the medication… Nothing… I didn’t feel more sleepy I didn’t feel anything… I just took the medication. I went overseas for three weeks right when I was done taking the medication… When I came back my doctor had sent me a prescription to have my blood taken .Which I did. A certain manner time went by and I did not hear back from my doctor so I called them… They said they would have her call me back… A few minutes later my ACTUAL doctor called me! ( A rarity these days !!) I pick up the phone and she said “you’re cured“! ( her office specializes in treating hepatitis C but she is also my Doctor Who performs my colonoscopy is… So I know her fairly well ) . I said I bet you don’t get to say that very often knowing that she is also a colon doctor.She said “yeah ,unfortunately not”. We started talking about my liver and she said my liver looked better than any liver she has seen in so long… I said you’re kidding me? She said no your liver is just about pristine… I was thinking about all the drinking I did in my 20s… LOL and the link the drinking I still do now occasionally ( very occasionally more just joking !!) but regardless I’m thinking about how I couldn’t believe that it was as good as she sad. Couldn’t believe the medication really worked as described… Couldn’t believe I was truly cured! Having breast cancer five years ago I never thought I was going to get good news again! Anyways the main reason that I wanted to write this was I wanted to know if somebody else experienced this as well because I have been putting this in Google trying to see if this is happened anybody else and if it has can somebody contact me and just let me know that it has I have been waking up my whole life or almost my whole life at 5 o’clock in the morning 5 o’clock in the morning has been my time even when I was younger… I’ve had hepatitis C over 30 years… And almost that whole 30 years or I would say that whole 30 years I’ve been waking up at 5 o’clock in the morning . Going through menopause I’ve been waking up at 4 o’clock as well… But almost to the day and this is not a joke… To the day that I stopped taking those upper tier and I was cured I started sleeping till 67 even sometimes 8 o’clock I sleep in like a normal person… If I go to sleep later while then I wake up later if I go to sleep earlier well then I might wake up at 6 o’clock but I haven’t woke up at 5 o’clock I don’t think once since I heard the words “ your cured”. Coincidence? I suppose so… Almost to the day… How strange… I’m thinking it has to be connected… And that is the gods honest truth I have not woke up once at 5 o’clock in the morning since being cured. If anything similar has happened to anyone here my email is above I would just be curious to know… Thanks for listening! Or reading I should say! I hope everybody has the good luck that I had… Modern medicine ??????
Back in 2004 I was diagnosed with HCV. I am a baby boomer. I was completely shocked and horrified. I also have Diabetes so it was a bad combo. I had genotype 2b which only 10% of the U.S. population has. It was easier to treat. I took Ribavirin and Interferon for six months. The virus cleared and I have been free of it for 13 years. There is hope out there. Trick: I drank lots of water during the treatment. it worked. I never got sick during the treatment.
I was diagnosed with hep c genotype 1 in 1998 as a result of 3 blood transfusions In 1977. I began treatment in 1998 initially with interferon three times a week . Eventually they came out with a pen that I used weekly . I was eventually put on ribavirin which did not work either . So , in about 1997 I stopped that and just hoped for the best . In 1998 , I developed cryoglobulinemia and joint pain secondary to hep c . I had to undergo plasmapheresis treatments which is similar to dialysis. They explained to me in simple terms , that my body was producing antibodies to try and fight the hep c but didn't know when to quit . The plasmapheresis would remove the cryoglobulins. It actually was just maintaining me . At one point , my specialist suggested that I go for a second opinion at the Cleveland clinic. They suggested Retuxin for a four week course preceded by a plasmapheresis treatment, wait a month and then start a new drug for genotype 1. At that time , Retuxin was not used for my diagnosis in Canada so it took 6 months to get it because it was considered an "off label diagnosis". After I underwent the Retuxin infusions , I was again tested to determine my viral load prior to starting the new drug . Much to everybody's surprise , I was negative. Three more tests were done over several months ....... all negative! The Dr said he couldn't explain it but I'm not complaining . I have remained negative since.
I was diagnosed with hep c 2 years ago. We don't know how long I've had it. It took forever for me so start my treatment. Finally in March of this year, my specialist prescribed me Harvoni. If it wasn't for my wife contacting the maker of Harvoni and them sending a coupon where all that I had to pay was a $10 copay for each round of treatment, there's no way that I could've afforded it. I only had to take it for 8 weeks. When I went back for my post treatment appointment, they drew blood and took scans of my liver. I got a call from my doctor a few days later and there was no sign of the hep c, AT ALL! I was SO happy! For a couple of years, I worried about if I were going to die from this disease. I didn't have any side effects from the Harvoni, well maybe a little bit of tiredness from it. So, don't think it's the end because of a diagnosis that I got, that scared me really bad. But instead I am 100% cured! My liver has no damage to it at all! Wishing everyone all the best and never ever give up!
I am 70. I was diagnosed with Hep C in 1994. At that time the treatment was interferon only. Injections for almost 6 months. Very difficult. My Count went way down and I felt great but didn't clear. I have genotype 3. I got it from my husband who had been in the military. What treatment is available for those who have a genotype other than type 1. Thank you so much
I found out I tested positive about 4 years ago, who knows how long I had it. I'm 65 now. I've had blood test, just regular old blood tests. Ive been told I have NO VIRAL COUNT. For 2 years blood tests every 3 months. Then every 6 months, always the same. My x husband and my current husband both Vets. Have been positive and treated, 12 weeks, harvoni. I dont know if it returned. My current husband never returned for a follow up. Keeps saying he feels great, strong. Stupid. Today, 10/11/17 I started with a new Primary MD. I'm getting nowhere with the old one. I did have a CT scan and all I was told from that was that I had fatty liver tissue. Has anyone else experienced the same? My new Dr. Tells me the virus could have cured on its own!!!! What??
I found out I had HepC 25 years ago. I stopped Drinking, stopped eating fried foods. Eat liver once a week. Did A course of Miracle mineral solution, DId Rife therapy, CBD Rick Simpson oil, oxygen therapy. Standard Process Livaplex and AF betafood. Had my blood test last year and they said I am doing great. I am living in Brazil for low stress life, Surfing hiking biking. I think you have to take care of yourself on all levels, its a full time job. (PS, BACH Flowers also)
When I was first diagnosed with Hep C in 2005, the only 'TREATMENT' available was a combination of Interferon and Ribavirin, which offered at best a 50% chance of recovery, AND, you'd feel like you had the flu for the entire 12 month duration of the treatment. I wasn't willing to suffer for a year without at least a 90% chance of succeeding. About 3 years ago the government of Canada instituted a program for Hep C patients which had Stage 2 or higher Fibrosis a full 12-week course of treatment with Harvoni for FREE! I had Stage 3, so I qualified. This would have cost me $36,000 had I had to pay for it! I was pronounced 'CURED' after the 12 weeks and more than a year later, I'm still cured! (Also, there was NO misery that accompanied the treatment). Through diet and juicing, and some super herbs and mushrooms, I've gotten my Fibrosis down to Stage 1, and it's going to ZERO, believe me! Finally, I would strongly encourage anyone with even Stage 1 Fibrosis to really due their own due diligence and search out on Google and youtube.com, 'NATURAL REMEDIES FOR FIBROSIS/LIVER DISEASE'. There's a ton of info out there, believe me. So, when your doctor tells you that Fibrosis and Fatty Liver can't be reversed, tell him to check out the studies on pubmed.gov which show that they are indeed, reversible. I'm living proof! Finally, I would encourage anyone with Fibrosis to thoroughly check out a completely non- toxic proteolytic enzyme called SERRAPEPTASE. It has AMAZING anti-fibrotic properties. Check out, "SYSTEMIC PROTEOLYTIC ENZYMES". Youtube.com has numerous excellent videos about it, and of course, there's a lot of good info on google, as well. I'm 67 years old.
I surived hepatitis C. Honestly by having faith in God and a great compassionate Dr .Robert foaintnella he was patient experienced knowledgeable understanding he was geniune . A good health professional can make a difference .Dr Robert was not my first dr but he ended being the one who helped me get over the shame ,anger and fear of Hep C. Healthy emotional outlook is the best way to approach hep C learning to not feel like a victim educating yourself lastly Thanking GOD every morning ..
I was a chronic IV heroin user from 12 years old onwards getting it straight from the golden triangle, I grew up in the aids scare and fits for every one so never shared, but I got mixed up with a bad lot and my partner let them throw there dirty fit's in our bucket we used too get the buckets of a hundred etc not knowing that others had used the buckets I used a fit from there, I felt the disease hit me and fought it for a long time kids settled the drug lifestyle and addiction but they were disabled and I never had a chance too do the treatment because I was then single with two disabled kids whom I lived for fought for, unfortunately and the worst thing that has and will ever happen too me I found my son dead, despite doing CPR on his corpse for 45 minutes and the ambulance being 2 minutes away he left me behind now I had too go on for my other son , eventually after years they made epculsa on the PBS I am on my 9th week but have lesions feel really trashed out but am fighting other battles for help for my remaining son, they said I was not mentally strong enough enough for inter furon is it and I can believe that judging by how bad I feel now, but every day is going from one spot fire too another , hopefully when the treatment is gone I will be able too go a day without wanting too die , but every day I keep fighting the good fight with all I have be good too have that bit back Hep C took from what I allowed tooo take from me by being stupidly lazy,
I have hepatitis C stage 2 and with insurance I'm fighting them to cover it insurance says hepatitis C no stage and Dr SAYS hepatitis c stage 2 .I am and still fighting the bottle I drank 32 years and God's Grace all I have is a fatty liver. I'm a fighter but I'm sick daily. I will survive but I have to find a way to buy the treatment on my own.
Back in 1988, I was diagnosed with Hep C (genotype 1) shortly after having an ectopic pregnancy which I needed a blood transfusion. I have suffered with the various affects of the disease for close to 30 years. I have endured two attempts at treating my Hep C. Once back in 1999 and then again in 2002 with no luck. I was actually not able to tolerate the ribavirin, causing me to become anemic. in 2016 I decided I would see if I would be able to be treated with Harvoni. But my insurance company turned me down. I tried 3 more times this year and finally my insurance company approved me for the treatment. I started the treatment on July 1, 2017. After the first two weeks, I had blood work done and my Hep C was no longer detected. I completed the 12 week course on September 22nd. My test results still show that my Hep C is undetected. I will get my blood tested again in 3 months to see if it is still undetected. After almost 30 years, I am finally cured of Hep C. The treatment went well and I had really no symptoms. I highly recommend anyone out there suffering to seek treatment and cure themselves of this terrible disease.
I was diagnosed with hep c and hep b antibody in 2001. I tired easily and had a lot of joint pain. I don't know how I got either. I took the Harvoni cure in 2013 and have been free since. The treatment was 12 wks and not too bad. Some upset stomach, tired, but nothing major. I still have a stage 4 damaged liver, but am extremely grateful to be free of Hep C. I get a blood test and liver scan every year now and quit drinking in 2013. I pray my liver doesn't become worse. I strongly recommend anyone who has been diagnosed to quit drinking and take Harvoni. A miracle!
I was lucky & my liver wasn't beyond redemption when I was diagnosed. My first wife had died of liver cancer 5 years earlier & somehow I didn't get the message then. When I was diagnosed I was able to do the one single thing that saved my life, I quit drinking. I also started a 13 year trip through treatment, 5 different times until I was finally cured 2 years ago. I went through daily infergen shots for 6 months, unsuccessfully. I've lost over 15 friends & lovers to Hep C . I assume if you're reading this you've been diagnosed? Save your life, quit drinking today.
I have had this hep c for over 15 years I was denied for treatment it has gotten so bad I have joint pain that affects my daily living I had to be put on pain meds in walk with a cane I use Crack back in the day never use IV drugs I went did the testing only to get denied passed all the tests for is being clean and I was told that they would pay for the medicine if I was in a cirrhosis stages which I think is crazyI have 3yr old daughter to raise but I think God for her father letting me rest while he steps in
I had hepatitis C type 4 for at least 40 years. My liver biobsy in 2002 showed moderate fibrosis. I tried treatment with interferon but was horrible and I had to stop bcz of severe side effects. In September 2015 I was given Harvoni for 13 weeks which ended in December of the same year. My liver enzymes went down to normal range and virus RNA quantitation was zero (undetectable). In August 2017 I had fibroscan and showed 4.5 and the hepatologist told me no fibrosis anymore. I am happy and I wish cure for everyone else.
I suffered with hepatitis C for 30 years. They're coming point in time in my life a few years ago where I was diagnosed with stage 4 cirrhosis of the liver. Through the pap program I was blessed enough to receive my medication at no cost. I went through the sovaldi and ribavirin treatment for 4 months. It has been almost 2 years now and I feel like I have been handed a new life. I encourage anyone to not give up and think it's over as I did I walked around in Doom and Gloom after my stage 4 liver cirrhosis because the doctor told me I had little time left if I didn't get approved for the treatment. Through the grace of God the patient assistance program help save my life. If you are struggling with severe fatigue and stay in bed 2 or 3 days a week your life is not over go get a liver biopsy it only cost $1,000 if you don't have insurance but that $1,000 will save your life. I am in a new relationship and I'm blessed each and every day may God be with you and lead you and guide you with his spirit
ive had hep c for about 5 years, Didnt know much about the disease and didn't really care to, I continued to drink almost everyday if not at least every second day, I started to get pains in my stomach that would have me rolling around on the floor in pain, i believe it was from the hep c but my doctor told me it wasn't, but so many people seem to experience the same feeling who have hep c, I stopped drinking for 2 years and started epclusa treatment. I'm currently in my 5th week, I was extremely nervous and so scared of starting treatment I literally sat in a daze for 2 hours the first time I took my first dose thinking I was going to die because of how scared i was (I didn't, I was fine) anxiety just gets the best of me, I know it other people know it but that doesn't stop me from feeling the way that I do. So far it's bin really good. No side effects, I actually have more energy taking the pill and now I'm nervous to stop. Tonight I missed my first dose all though I think I'll be fine, at my 1 month check up it showed that the medication is working and I'm extremely excited to find out the end results, I wish everyone the best it's not easy going threw this, it's shameful, embarrassing and scary, but we're not alone.
Like many other pople I have no idea where from I was infected by HepC virus. My versions are either from having ears pierced or in dentist office here in USA. My CT scan showed sme liver damage so gastro doctor proposed to check my blood for HepC. And here it is. Thanks Kaiser Permanente insurance taking Harvony now for almost 4 weeks. Some days are very easy but some have sideeffects. Mainly insomnia, can not fall to sleep till 4-5 a.m. Also depression and for few days have symptoms of overactive bladder. Taking AZO. Going to receive in my pharmacy my 2-d bottle of pills. If anybody have questions please e-mail me at ernagomez75@yahoo.com. Thanks for readind and good luck to all here on this forum.
I've been home for six months by my doctor, but here in Surinam they do not have the meficijmen. So I've left fate over me.
I contracted hep c at the age of 17 when I ran away and only shot up for 2 weeks using a needle after someone I thought was clean. I got severely ill and went to the hospital. They told me I was infected. I waited 2 yes to get on treatment bc I ran away again. I was a troubled teen and at the time I didn't really know what it was but I thought it was a joke. When I went to get on treatment the first Dr told me that he didn't treat lesbians(not even joking) so I found another one who say I was worse than most older adults she has seen. I was down to 98lbs I was put on a 12 month treatment. I was only on it for 10 months and was cured. I went back 6 months still cured and even 2 1/2 yrs still cured. But I gained almost 100 lbs after(I'm now 220) treatment and now have a fatty liver. I'm sick all the time depressed and have pains under my ribs. I go from having diarrhea to be constipated every other day. I feel horrible at the time but they say it's not back. I mean u can see my liver just by looking at my stomach. I just wander if having her c so badly has hurt me in other ways even after treatment. IDK but it's hard to work or have a normal life now bc I'm so sick. And most days I can only eat once or twice but small meals and I'm still gaining more weight even though I barely eat. I have not lost weight even w a gym membership. Am I the only one?
This is actually my husband's story through my eyes. My husband was dignoised with chronic Hep C four months ago. He is 59 yrs old and is healthy as a horse. He had no symptoms at all prior to be diagnosed. We got new health insurance and they required that we both get blood work and a physical to decrease our insurance premium. His blood work showed elevated liver enzymes. Many tests later he was finally diagnosed with chronic Hep C. He is on a 12 week Harvoni teatment and is halfway through. The only side effect so far is fatigue and loose stool at times. So far so good!!!
Was diagnosed in 2002. I am a past iv drug user. I have been drug free since 2008. My significant other took interferon/ ribaviran in 2010. I thought he was going to die for a year. I was afraid to take treatment. I have to work. Yesterday was my 1st day on Harvoni. I am very excited to see my results. I am also apprehensive about the side effects. Wish me luck
I'm very young and was diagnosed with this virus, we believe it came from a tatoo I got out of defiance and poor taste. Non-the-less I was still positive. It tore my marriage to pieces. We were scared to be together for fear of him losing his military career. It took a while for my insurance to come through for Harvoni and Robiviran are not cheap. With that being said not even four weeks later my test results showed clear and I am able to start getting my life back and feel like a normal young lady again. I had no side effects what so ever and would recommend this medication to any qualified patient!!!!
I began using IV drugs as a teenager. Stopped in my early 20s. In my mid 30s I was diagnosed with Hepsie when I became violently ill. I am 52 now have taken the Hep-c treatment three times. But, I still have the virus and have been considered a non-responder. I also have been diagnosed with lupus and heart disease. I look healthy outwardly and it's probably hard for people to understand how sick I actually am. I cope with crippling fatigue, mild depression, daily nausea frequent vomiting, and frequent diarrhea. Recently I've developed a dull pain beneath my right rib cage. And then your constant pain in my upper back. My liver is changing again I can tell. I need a miracle not another treatment. All doctors drugs have done is make me sicker and sicker. The one thing I have found that actually helps is milk this'll a natural product that can be purchased from health food stores. In Europe also roses and hep C is treated with milk this'll and beat juice. They never give interferon or nasty drugs like that. Sorry to tell you , But modern medicine is in modern-day myth. Big Pharma is not interested in making anybody well. They just want our money and we are dumb enough to give it to them to simply treat symptoms instead of give us a cure !! ?? it's a white collar disgrace
im luca 41yrs old sick with hepatitis b may i have your help please now is two yers surfering
I'm one of the lucky ones. I was dumb enough to stick needles in my arm when I was young and picked up Hep C, which over 40+ years led to cirrhosis which led to liver cancer. Had a total of almost 2 years (3 separate treatments) on interferon and the other drugs they used then BUT (here's where the lucky part comes in) after 42 days on the waiting list I got a liver transplant and still had hep but post-transplant Harvoni finally cured that in no time and still clear of virus. I think they're starting to use the word "cure" now. Moral to this story: HANG IN THERE. If you're breathing, you have hope. If you can't afford the new drugs, there are many sources of financial help, including the drug manufacturers. And regardless of what justifications we come up with, give up the booze 100%. By definition hepatitis damages your liver. So does alcohol. If you're drinking with hep C, you are shortening your time on earth. Period.
I am curious to see if anyone here has experienced what I have. I was a heavy intravenous user years back. My boyfriend at the time was as well. We were just plain ignorant with it all and I ended up using one of his needles at one point or another. A couple years went by & we split. I found out he had hep c. I went and got tested and the first test was inconclusive but the second was positive. They sent me to a specialist & he ran some tests & said it was negative? I just recently had some blood work done, 5 years later & my doc told me today I should count my blessings because I contracted hep c but my body cured itself. I'm not sure on what that even means. How can it happen & should I go somewhere else to have a second look?
I am 19 years old & I had contracted hepatitis c in 2015, either by drug use or an abortion I have had. I had gotten tested in September 2015 & had came up clear, to be honest the only symptoms i had in that year was bloating & fatigue. In September 2016 I started getting terrible uti's so I decided to get tested again, due to being sexually active aswell I just wanted to be safe. I got my bloodwork done & found out I was positive for hep c, my heart had broke. I truly did not see a point in my life. I went through trials & tribulations my whole life, & now this? I had to get my second bloodwork done(rn) and it came back negative. I was so confused & had a doctor that wasn't knowledgable in this field.. he literally pulled out google to explain hepatitis symptoms.. there is 15% of people whose bodies can naturally cure the virus, & surprisingly mine did. I am only positive for the antibodies. I'm terrified to go to the dentist or anything where I'm going to have to explain my situation because SO many people are uneducated about this disease. I had gotten bullied by my ex boyfriends sister about me having contracted it & to all of those reading this and people have had judged you for what you have gone through. LET THEM. We are stronger than people who sit there and judge. They don't understand the struggle we have gone through & they don't need too. Your soul is always with you, not hepatitis. & for those of you going through the battle of having hepatitis, I applaud you for how strong you are in staying in this world & seeing how you can move further because me, myself was so close to giving up.. God will only put battles in front of us if he knows we can beat them, I know that now. Thank you for reading my story. You are stronger than you think.
Treatment about 2 years ago. I was cured an 8 weeks instead of 12
I felt something wasn't right!!! I can't begin to say one specific thing.The mood swings,theTears,So Tired,Tired,Tired all the time..I was No Longer myself..Food had No Taste .. Every joint,muscle,ache & pain freaked me out!!!! Anxiety or Panic Attacks,un real...I had never experienced anything like this. I felt totally broken..Two Dr's turned me Away bcuz I refused to do Test Drugs....I tried a 3rd time w/ a New Hep C Doctor... Fabulous experience,God willing I get the cure..Long 5 Yrs .Thank & You,Lord..
I'm here today to quickly share my story as I realize many of the forums tend to have a lot more of negative side effect stories than good results ones for one reason: people who get well, go on with their lives and don't come back to share that much. I got Hep C in 1985 through a blood transfusion in my native Argentina. I was diagnosed in 2001 when I went to donate blood for September 11 and was told I tested positive for Hep C. It was a time when there were only horrible treatments with worse side effects and small probability of cure for my genotype. As my liver was fine and my enzymes only slightly elevated, my doctors suggested I keep doing biopsies and blood tests to keep disease in check while a better protocol was developed. I was lucky that I was healthy and could wait. This year my doctor suggested I start treatment with Harvoni. I had waited 3 years for the drug to be used widely and any major issues caught before I decided to start the drug. Despite my initial fears that the insurance company wouldn't cover my treatment because I wasn't "sick", my doctor said: "That's a battle that we fought and already won. They will approve you." Meaning, the medical community has made sure insurance companies pay for treatment of Hep C patients that are not super sick. I did an 8 week course of treatment. 1 pill a day. After 4 weeks I was already negative. At 8 weeks of starting I remained negative. At 12 weeks of finishing I''ve now been officially told I'm cured. :-) Side effects were truly bearable and minimum. Some headaches which I managed with Advil. Some nausea and dizziness some mornings which I managed by taking Dramamine at night before going to bed. I was tired at night so I went to bed at 9:30 instead of my usual 11. No major fatigue. Nothing else. Totally doable. I took my regular vacation in Europe for two weeks while still on the treatment and an unexpected trip to Argentina for work and family issues and was able to do everything. So all this to tell you, go ahead, do the treatment. Knowing that you kicked the virus off your system is priceless!!!
Hello everyone ! My story will be short . I had chronical hepatitis B1 . ALAT was 135 . Just finished my 4 month treatment with Zapatier . I was prescribed 4 box of Zapatier , so one box for the each month . Took a blood test after my first box , results was very exciting . Haven't made my last blood test after whole treatment , I'm hope it will be good . But had a moderate lever pain for a few days . Excited to see my latest blood test results . Anita , Norway
I got Hep C buy a blood transfusion back in 1985. Recently I was approved for SSI. And I went to try to get the medication but they said my liver was not scarred so I didn't qualify for the $26,000 medication to cure me. And I figured I've lived this long by eating vegetables and taking care of myself. I'm 50 years old now and still my liver is not scarred.
Hey Folks, I have had Hep C for 45 years now. Did the Interferon and Ribavirin, and didn't like it one bit, and it failed me miserably. I went through the Harvoni with ribavirin and I was actually called by the Hospital who wanted to be the first to congratulate me on getting cured. Right, I was sick as a dog, and still felt terrible all over. A routine Dr. visit showed the numbers were back, and elevated. So I realize that the Hospital was a bit quick to jump the gun. I feel strongly that cutting out all sugars, exercising, and drinking good water is a start to caring for one's own immune system. Coffee will give you a bit of the go-go juice to get up and moving. Caffeine is filtered by the kidneys so no strain there for the liver, and that my friends is the name of the game. Cut out anything that is harmful, or creates a strain on the liver. Ask your Dr. about any meds, vitamins, and minerals you might be taking as a supplement. Some are not great for your liver. Watch out about taking anti-oxidants, as some are good, and are needed by the liver so ask. I'm 62 years young, and still have a lot of life to enjoy, and I do enjoy. Build that positive attitude and start by giving out with the Love that you have always wanted to share, by just doing it, saying it, and showing it... Give me a shout, and I will be happy to share, and care with you......
I would like to know if anyone has been on the newest Hep C drug, it is after Harvoni. I think it is called MK3. If anyone is on it please tell me what it is like and just anything about it. Thanks Corey
I'm 39, diagnosed by pcp two summers ago in 2015. My baby was only five months old. I was in complete shock and in fear for my life. I had a biopsy but no damage = no Harvoni. I went to a BioFeedback dr. He said I had no evidence of Hep C, instead Hep B and D!!?? And that I probably contracted B&D when I was immunized for Hep A & B. He instructed me and my family to take Coloidial silver for seven days. We did not drink after each other or share straws or kiss on the mouth. When I returned to my next visit, he said I was cleared.
I have had Hep C geno type 1b since 1976, from a wino's blood transfusion. Went on interferon for 1 yr but the virus came back. I Could not tolerate the Ribro....?? pills. Tried Harvoni, and in 4 wks, I was virus free, As of 8/14/17 I am still virus free. Took the pills for 8 wks. Good luch to those using a treatment that their Dr. recommends. I feel so great, lots of energy, no more 4 hr daily naps and exhausted after a small task.
Well i posted 8 weeks ago and after just five days of taking harvoni i started to feel better. I am finishing my seconds bottle so this is my 8th week. After 4 weeks my count was down to 15 it was 5.700million at start. My liver was and is in stage 3. From hip.c. no side effects besides sleeping is not easy but i feel great. I was feeling pretty bad before i started harvoni. Just do not listin to all negative story's. I read all of them and was worried because of the negative comments but i was felling so bad that i had to go for it and glad i did. If you can get help therm get it cause you will die from it if you do not get treated. I have 4 more weeks which is 28 days. 84 days all together till end. Well good luck to all of you do not give up there is a cure and like i said no bad side effects for me so far. Anyone like to talk Too me startupfast65@gmail.com
To whom it may concern, I am a 43 yearr old ex drug addict living in Dublin Ireland. I am currently on a methadone programme and that is the only drug I need now,from which I am detoxing with great results. But back to my story, I began smoking herion at 16 but by the age of 18 I was injecting up to six times a day. Eventually i was diagnoised with HepatitisC at the age of 24. All the treatment Igot qas a visit to the hospital every 3months and bloods taking. Saying thar i never missed an appiontment. About six years ago the hospital said i was a perfect candite for their new treatment which consisted of 16 tablets a day and one injection a week inro my liver which i gave myself. Because i had type 3 the treatment would take 48 weeks, reluctantly i said yes. That year on the treatment was the worst year of my life. The treatment left me with no energy,weight gain qnd became a recluse. Eventually i finished the treatment abd after attending the hospital eveey three months for bloods and different test I was declated HEPATITIS C free on December 8th 2015. But what i cant understand the professer in the hospital put me thru 48 weeks of hell and as soon as i finished my trearment they brought in a new one which only last 8 weeks and taking one tablet per day. I am glad mine worked out which was call INTERVIRON &another name which i cant remember but when i look back at the pain, suffering,nightmares and paranoia i wwnt thru during treatment it was worth it now i am clean but not once did the professer ask me did i want to stop because of the sid effects. I was wondering if there are other Irish People who attended St.James Hepatology Unit recieve the same treatment and if it was just as hard. Hopefully somebody else will understand what that trearment done to my mind ans mental health today even though i am clean the effects are with me for the rest of my life which i waa not informed off when starring so if this happened to other patients i would love to hear from them. Thanking you. Gary.S.
In November of 2016, I finished 12 weeks of treatment with Epclusa. In February 2017, the virus was no longer detectable in my body. Looking back at two decades with this virus in my body, it explains everything. Why I could sleep for two or three days straight and still feel tired. Why I was constantly fatigued every day. I can't sleep all day even if I tried today. I feel like I have always had a lot of energy. They say once Hep C is out of your system, the energy will skyrocket. Honestly, I was nervous about having more energy. I am considered cured. I know my body best. Even being cured, I find I get sick more, I am run down faster, and maybe that is just part of the aging process. I do worry about getting HCV again. I know it won't be from intravenous drug use as I am 120% sure how I got it back in 1995. I dated a guy who had it and has no desire to go get treatment. He was awful. I am glad he is gone. What I did for my health last year with going through twelve weeks of treatment alone to be reinfected by some jerk? I am better than that! Treatment was scary but looking back, a walk in the park. Although, I will miss the first several hours after taking each Epclusa. The brain fog was cool. I enjoyed it.
I am going to start Epclusa, soon, doctor thinks I have had hep c for 34 yrs, just wondering about side affects ,and will the liver damage stop when I am cured,is it normal to feel like I have a bladder infection all the time
Hello, I took Harvoni for type 1a Hep C for 8 weeks in April and May, 2016. I am now virus free!!!!! But.......I paid a huge price because of major side effects, some of which I'm still dealing with. Research online before you take these antivirals. Wish I had. What the tv ads say and reality are totally different.
Me and my husband are both curing hep c with a non-conventional approach. We read about the Bob Beck protocal . We ordered the blood cleaner device called the silver pulser. And the electro magnetic pulse therepy device called magnetic pulser. We used these two devices for six months and when we were tested again by our doctor, my AST had gone from 41down to 32. My ALT went from 58 down to 41. My husband's AST of 52 was down to 43 and his ALT of 138 was down to 80 ! Our dr was pushing us to do the drug treatments but we wanted to try the Beck Protocal . No sickness and no missed work, and only spent $ 600 on the two machines that we still have and use . The blood cleaner straps on your arm and had two electrodes you apply to your pulse points. We feel energised after our 30 mins a day . And the magnetic pulser is used to send an electric pulse to your lymph node areas, where the virus will try to hide, and it also works wonders on pain in the joints , sore muscles , and colds or flues. I forgot to add, the blood cleaner device is called the silver pulser because it also doubles as colloidal silver making generator. I cured my last bout of strep throat by drinking silver and using the machines. It was the last time i have been sick since i discovered these alternatives, i thank God (Jesus) for them
I'm 20 years old and I was diagnosed with chronic heptitius, I read a lot of story's of people being cured and it inspires me to hear from people. I'm maken these post of your a survivor or gotten rid of the vitus please message me for comfert in the process. I called a few specialist around my area looking for a cure so I can be able to have a family someday,Its a strain on my life that stops me from being the romodel to my family and the person I was ment to lead. I support everybody who's going through these illness and my sympathy to wanna make the right choice and be cured. If there's any specialist that can let me know the right prosissors to take and get better I'd write you back and we can fight this thing together. Your not alone 20 year old male in flordia,
Hi my name is Mark S, I'm 38 yrs old and had no idea that I had hep c. I probably should have been tested sooner being that I have sleeve tatoo' s and 10 yr battle with opiets. I started to feel tired all the time and in just felt drained. My doctor at a clinic I go to has been bothering me to have bloodwork done but I have no veins left in my arms. Nobody will take blood from feet and you would be surprised how hard it is to get a groin stick. So another 6 months go by still no bloodwork and went on living life. Finally with all the problems I'm having and with the help of the Dr at the methadone clinic we get blood samples. I get the results back and my alt's are through the roof. I got a Gastroligst concerned with hep c virus and how inflamed my liver is she starts meds. I took zepeteir generic for harvoni within 8 weeks no more viral count. The medicine was rough it drained me. I learned that the best time to take the meds is around 3 in the afternoon. There were routine blood draws every 2 weeks. I had a mediport placed in my right side chest and the catheter insertion is in the right atrium. I know have chronic hepatitis and I'm still trying to figure out a diet cuz I refuse to take any pills being that I have cirrhosis from the hep and I don't drink. Any diet ideas in my experience marijuana helps with appetite and helps with the swelling in the liver
My insurance told me I wasn't sick enough for treatment and won't cover me. The doctor then told me to come back when I get worse and maybe they will cover me then. I am so scared that my kids are going to lose me to before they grow up. That will be devastating to them. Plus my wife would have to raise them alone. I lost my medical card because I found employment so now were does that leave me. I'm not a drug addict or alcoholic. I'm a family man that want to be alive long enough to raise my children. I lost my mother at a young age and don't want to do that to my three beautiful children. So please will someone help.
Was diagnosed in 2004 after a liver biopsy which by the way is no fun. Dr Dejesus is an awesome ID , most of his patients were HIV positive, my heart went out to them, anyway. He told me my odds were 70/30, not bad I said and he said not in your favor, the disease just went into stage 3. After some research we believe the disease was contracted in 1976 after receiving innoculations in the military, further research confirmed this. My 50TH birthday was two weeks away as was my 20th wedding anniversary. I decided to start treatment shortly after. Yes I was embarrassed, it keeps haunting you even tho you know the cause, it was at the party where I let my nearest and dearest friends know of the disease, all very supportive. Figured I wouldn't be drinking liquid libations for a year. The next year was hell injections of Interferon weekly 8 pills of ribavirin daily, I became a Mr.Hyde the treatment was potent due to the severity of the virus. The smell of the meals being prepared in the house made me nauseous, I would sit in the corner and cry. My children were 18 and 15 and loved me very much and after a few months knew what buttons not to push, lol. My wife would help with the injections back in the day you had to fill the syringes from the vial, not easy when your hands are shaking. My body ached so bad like a steam roller kept running me over, the Dr put me on vicoprofen for the pain, and I did keep a journal. Blood tests every month, and every month I was getting cured, painful cure but worth it. I'm getting long winded here, sorry, when the injections were done my wife and kids gave me a Thank You card, thanking me for being dad again. We sat and talked about the past year and they told me what a bear I was, think they had a few other words in mind but didn't share. Still getting liver function test everything is spot on, I'm 63 now it's been 13 years. Wishing they had Harvonia back in the day, I thank God and modern medicine and most of all SUPPORT, it's part of the cure. DON'T GIVE UP
Yes, i was told i had heb c for 47 years now! Got, was given heb c in 1970. In 1994 was told about if had c-section/blood transtion,needed to be check for heb c. And yes was postive for heb c. and husband. So took shots/pills sended like forever? Anywho ended up when finish taking treatment. I was no heb c, husband still positive.. because my lack of knowledge i ended up back with heb c. Was not told till 2017 still was positive w/heb c. Now that i'm 65 years of age dr. wants me go thro a treatment again. Was told life span is 57 years. Just do not know? ?
Waited 1year took 2 medicines im cured after 6 weeks they say. I'll continue one of the meds until the end of 12 weeks then I have to walk to get lighter
I am a 56 year old mother from Indonesia. At the time I was going to cataract surgery there was a blood test. I was so shocked and sad that I had hepatitis B. I am vegetarian and always keep my body and home clean, and I never change partner. I am afraid to get worse and all my equipment separated for fear my child will get hepatitis B. Can I get well?
Ive been cured of hepc , but i have stage 4 ive had a couple side nausea , lately ichy hand & feet, my counts are at 16 and generlly i feel alright!!! So far so good.
Hello to All. Although this is regarding survival stories. I think it is just important to remember the ones that didn't survive. I recently lost my husband to Hep C within the past month, due to a blood transfusion back in the mid-1980's. By the time he was diagnosed the damage was done. Please take control of your health. With the many advances in medicine and the wonderful care by Doctors, Nurses and Research staff all working towards a cure, please be informed and don't stop until you obtain all the information for your health. Follow instructions, don't think you can beat this on your own, it can be devastating, this takes a team! Ask questions, always question why any test is being done, what they are looking for, so you understand exactly where you are at in your health. Keep your Doctor's appointments, get your lab work completed on time, eat healthy. Make the changes. It is Your Health you deserve answers! When my husband was diagnosed we were not told what a Meld Score was, we weren't told anything just that he had Cirrhosis! So continued to ask!! I would stay up for hours each night searching for answers researching online. Look at only legitimate sites: Mayo Clinic is a excellent resource, also another good source is a blog by Karen Hoyt. She shares her experience with cirrhosis/liver cancer and she is a survivor!! You have 24 hours to feel sorry for yourself ...after that your entire mindset better to be informed, what's next, healthy eating, staying positive. My husband always was proactive in his health and did everything that was asked of him. His health was complicated with kidney failure and a staph infection. Remember Doctor's are not always the best communicators---Ask Questions! Best wishes and good health to each of you! Lot of Love, GG
Diagnosed in 2012, viral load over 300,000, ascities, thrombocynia and HE..gastro helped with all but hepc and sent me to heptologists...1st with interfron and ribo which dropped my plattlet count to 30,000..stopped treatment went back to gastro to wait on new treatment. In 2017 started EPCLUSA AND RIBO..after 12 wks HEP C FREE and in July am virus free. not out of woods yet but a good chance to live again..Wishing you all the best.
I am 71 years old and was just diagnosed with Hep C on January 24, 2017. I was told, more than likely, I contacted it back in the 1970's when I did a lot of drugs. Anyway, just a year before I was diagnosed, I started feeling very tired and having concentration issues. Also, along with this was a lot of acid reflux. I was approved for Harvoni and have been on the drug since August 9, 2017. During the first week I had a lot of side effects which were feeling dizzy when the pill first came on and lasting for a couple of hours. I also had a couple of slight headaches and some stomach aches. I am now on my 20th day and am feeling much better than I have in many years. I look forward to finishing the Harvoni treatment and hopefully my viral load is 0. I did start with a low viral load of 660,000 and I'm to be on 8 week treatment plan.
I HAD HEP C GENO TYPE 1. I NEVER HAD ANY KINDS OF TREATMENT WHEN I STARTED HAVING SIGNS I KNEW IT WAS TIME TO GET HELP. HARVONI CURED ME IN 12 WEEKS. IT'S BEEN A YEAR NOW AND NO SIGNS OF THE DISEASE.
I am 19 yrs old. I found out in October of 2016 that i was positive for Hep C. I'm very sure that i caught it the first time i was ever exposed to IV drugs. I asked if the syringe was clean but i didn't know how to tell. From that moment on my life went downhill Quickly. I went to sell my plasma for drug money and was notified a week later by the plasma Center that i needed to be tested. My skin was yellow. I was very sickly looking. Weighed 110 lbs. I was certain i was gonna die. I hated myself. Crying asking God why me? Why did i deserve this? After quitting the IV drug use I ate a lot of food and gained my weight back. I am now 140lbs. No yellow skin. My numbers are considerably lower. And i am now trying to get harvoni approved by my insurance.
Boy reading these stories brings back memories and not good ones either. I have a similar story to tell. I have always gone to the doctor for ailments, flu, cold, etc, nothing earth shaking. With all of the blood tests I've had over the years, nothing turned up at all. I have never even tried any drugs, and was just a social drinker with a 1 and a half drink limit because I would fall asleep. After having my second son, I hemorraged and needed many blood transfusions. Advance 40 years and I'm finding out I have Hep C, what a shock. I felt so embarassed because I didn't do anything. So common I find out. I had 2 different treatments with Interfuron and Ribavirin, both very hard to get through, long treatments and both didn't work. Then by chance I find out I have liver cancer and end stage liver disease with about 1 year to live. I'm already on the transplant list and bumped up so I get a liver transplant in 2009, and I'm so very blessed and fortunate. After about 6 months to a year, my liver numbers start to go up and the Hep C is attacking my new liver. My doctor puts me on Solvoldi and Olysio for treatment and the pharmacy called to find out where they should be delivered. Sounds easy huh? I asked how much my co pay was and almost hit the floor. It was almost $10,000.00 and I had to stay on this for 3 months. They got me some help and I went on the drug and success. No body says I'm cured but they tell me there's no sign of Hep C in my blood tests. I am so very blessed and fortunate. Thank God for this help. The older treatments are very hard for the Hep C not so much for the cancer. I just wish I had kept a journal about this disease and treatment. I think sometimes you have to go back and reflect on what you have done and how you have fought the good fight and won. It's good to know you can fight.
I contracted HepC when I was 16yrs old - 50 years ago. At that time, the doctor said it was HepA. I was sick and out of school for two months, (traumatic for a teenager) but once cured it was cured, right? They didn't know about HepC in 1968. I don't know why, but over all the years, I always let my doctors know about the HepA, and so they typically ran liver function blood test which were always fine (even now). A couple of years ago, a new doc recommended I be checked for the Hep C virus because of the CDC's new protocol- and blam- there it was! He put me on a regimen of that nasty shot and pills and I got sick (almost as bad as chemo when I had breast cancer) and it didn't work for me. Three years later another Liver Doctor introduced me to Epclusa. No side effects and so far no evidence of the virus in blood work. It is a miracle drug. The downside for me is that in the 3 short years between diagnosis and successful treatment with Epclusa, my liver went from mild inflammation to cirrhosis. But that's okay. I'm grateful to be alive and ready to fight another day. Now is the time. Get checked, Get treated, Live!
I am 56 and was diagnosed when I was in my 30s...I contacted Hep C in the very early 80s thru drug use. Due to the nature of my work and my interest in a natural health, I worked toward eliminating all drugs and alcohol from my diet. I also focused on my health and strengths and did alot of meditation and moderate exercise. It has been a holistic process for me. I have always been able to keep my liver count down to almost normal. I had shingles many years ago and think it was brought on by stress. I feel that i work very hard on my wellbeing and drink lots of water with lemon and when I was younger, I use to do a yearly fast. I only know what works for me and have learned to trust the wisdom of my body. I have also done years of accupunture and herbs. I try to always take Milk Thistle and Vit D. Am now also doing Tumeric. I believe that everyone is different and I am only responsible for what works for me. I have no judgements about what others do. We are all different and that in my opinion needs to be respected. I can honestly say, I have never been sick a day in my life with Hep C. I finally got a doctor a couple of years ago and when I feel at the top of my game, I get blood work done. I don't make decisions based on fear and I don't let others decide what is best for me. I trust myself. I see my Hep C as a reminder to take care of myself. I don't do things that will make it worse.
When I first found out I had contacted Hepatitis C, I was in denial. Backwards tracking, I researched all aspects of my life. It all came together when it was determined the Hep C came from the USMC tattoo I got in the military. Apparently, back then, the cleanliness of the tattoo parlors weren't yet under government scrutiny like now. The Hep C symptoms didn't start until 6 years after being notified by the county health department due to a blood donation I had been giving yearly. Ascites, tiredness, loss of appetite, and hepatic encephalopathy symptoms became more prevalent. Trips to the hospital for stomach/ lung fluid drainage increased. My body was failing, and I knew I was near my life's end. I asked my father in heaven to give me the spiritual strength, and positive attitude to help myself through the suffering. I felt like I was carrying this cross, this heavy burden, up a mountain. After returning home from my primary doctor's appointment one day, I said to my Lady, I don't know how much more I can go. I'm failing fast. Then about 45 minutes after being home, the phone rang. It was the hospital stating they had found a perfect match for my liver replacement. I had been on the liver transplant list for 3 years, up to that point. I felt like I had reached that mountain top, and there waiting for me was God, with an answer to my prayers. Waiting so long in denial resulted in cirrhosis of the liver, which had advanced to stage 4. Even though, after the transplant, the Hep C virus was still in my body, which was then cleared with antiviral drugs; Daclinza: Ribavarin This August will be my cure date. God is Great, Life is Good !! Live it to the Fullest ! AND HAVE FAITH !! ?
Suprise diagnosis - tried to donate blood & Red Cross sent envolope with the "bad news" (which was due to a blood transfusion @ daughter's birth some 20 years prior!). Did LOTS of of homework, on line, about boosting our bodies' immune system, and underwent a course of weekly belly injections + 4 capsules / day. Prescribed by a university hospital. Cleared the virus in LESS THAN A MONTH. Nobody could believe the "luck"... Don't ever give up. Get involved in your OWN CARE. Get those immune soldiers fighting your battle ... it is more than possible to win! Good luck & keep the faith
Actually mind's Hepatitis B. In 2010 I had a gastric bypass operation in an hospital India. Only for me to go back to another part of India for further surgery, this time a tummy tuck surgery , I run test before the operation it was so sad and I was so davestated to see the test report that I was Hepatitis B through blood transfusion in the previous hospital. Well, I went on with the surgery and left back home to see what I can do about it. But it was still their till 2014, that's when I checked it last and left everything to d Almighty. I am down now with stomach eache, fever and headaches, so the doctors recommended I rund blood test. I have done it awaiting results probably by tomorrow. It is then i will kmow my status. That's my story! Thanks for your time!
My story is a good one to give anyone with doubts some hope. I’m a 42 year old Australian who was diagnosed 20 years ago. I have cirrhosis and genotype 3 hep C. My liver function tests were always scary high, so high that I hadn’t done blood tests for 5 years because they filled me with dread and fear. When I heard of the cure I went to my GP who sent me straight to a liver specialist who after establishing I possibly had cirrhosis put me on a combo of Sovaldi and Daklinza for 12 months. I did not have a single side effect. It cost me only $76 a month to fill the scripts and I have not paid for a single specialist appointment, scan, gastroscopy – no money has been paid except for the meds (the lucky country indeed). Today marks 3 months after I ended treatment and the hep C has gone. My LFT’s, all my bloods are in the normal range (except for platelets which is typical of cirrhosis). So it worked, and I am now in the system, being monitored every 6 months due to the damage to my liver. If you can, see your GP and start the journey. It could go much better than you think.
I'm 48 years old an have stage 4 chronic hep c an cirrhosis I have fatty liver infiltration on top of it. I have had it since I was 15 years old an never knew it until 2010 when I put on lots of weight an had so much fluid build up doctor said probably had 12 pounds of fluid in each legs fluid in my lungs. Well I no how I got it it was from sharing dirty needles with couple friends. I did the inferon an ribavirin for a yr. It showed it wasn't active. I have bn sick from liver not filtering. so I got sepsis. I am so terrified of the extra suffering when it's my time to go to heaven. In an our of hospital at times. I stay sickly a lot of the time my belly is huge from enlarged liver an spleen. It's pure hell for me but if you happen to catch it early plz take care of yourself cause it's a gruesome death. No alcohol or drugs. I never even heard of it when I was 15 so never think ur invincible cause you will be where I am for u kids. I accept it an thank God for all the understanding of my mind during treatment. I'm living my life to fullest. Hope my story helps someone. Thank you for letting me tell it. Yours truly Brenda. God bless
I'm 62 and have been going to dr's for 20 years off and on complaining of extreme fatigue and flu like symptoms with no diagnosis. Finally, two months ago a doctor accidentally found Hep C in my bloodwork. I have type 2b and started on Epclusa yesterday. I'm having a couple of minor side effects, my eyes are puffy & red and some weird vibrating in my body but i'm going to finish this 12 week program no matter what! I've had brain fog and stomach problems for about 6 months now and i'm hoping that will ease up soon. Hoping for a miracle for all of us going through this! I will continue to post my progress over the next few months...God bless!
Hey Everyone I have had Hep -C since 1999. I am 61. I also found out that I have Rheumatoid Arthritis. I try to have a positive attitude. Some times it is hard. My liver enzymes are going down they are improving. I have had treatment of or Hep -C in the past. I try to eat healthy and walk and get fresh air. I need to be more social. My husband is very supportive. He has it also. He goes to work. We do fun things together. My advice to anyone keep your doctor appointments, eat healthy, do fun things and go for walks. I do not know if I am able to get treatment for hep-c cause I have rheumatoid arthritis. I go to the rheumatologist and the liver doctor soon to find out. Love,laugh and live life to the best that you are able.
15-16 years ago....i underwent tx for hep c with Interferon/Ribaviron. For the first few months I gave myself injections every day.....was horrible! I broke out in sores in my mouth and body. I was so weak i couldn't walk or stand but for a couple of minutes. I cried alot. I had fevers chills and deep bone pain! Besides the aching all over. BUT YOU HAVE TO KNOW I WAS ADEMATE ABOUT COMPLETING THIS TX! I was an active Lpn.....I believed in the medical system! The blood counts dropped and I had to stop tx! I was devistated! I was so sure this painful tx was my answer to being cured! After tx for low blood count.....i was given same tx except I was allowed to take the once a week injection. Concentrated form of Interferon/ Ribaviron.......i injected myself weekly and faithfully for several months.....the side effect were just as severe as before! But i was determined to cure myself! After treatment i was given a negative result to hep c! Hooray! It seemed i had achieved my goal! Alas...at this time 15-16 years later my liver is enlarged and there is pain! Blood test informed me i had chronic hep c! But was refused the newer tx.....doctor said the hep c is inactive and i have antibodies built up? As for my liver....i was told i just had fatty tissue in my liver? What? Why is my liver painful and enlarged? None of this makes sense to me!?! If i have antibodies and the hep c is inactive......what is causing my liver to be in such unhealthy condition? Why am i denied the newer tx's available? If anyone has an answer? Please reply?
Hi. I have jaundice since 2004. Intially my bilrubin was 1.5 in 2004 and it's increase gradually and now it 8.0. I visited lots of liver specialist doctor but no one help me to cure it. My eye is dark yellow since 2004 and urine is also dark yellow. I am gaining weight now it becom 80 kg previosly i was only 58 kg. By the time health is going very bad now it's becom dark circle around my eye from 2010. I feel really help less because no one doctor helping me. My current liver size is 16 and in ultrasound it's found echotexture. Please help. Skin also becom yellow.
I'm writing this to help anyone out there that doesn't realize there is a better way to cure hep C, Cirrosis and Cancer (any cancer) by changing your diet to a plant based diet. Spinach Cabbage, sprouts (sprout everything, has more vitamins) parsley, mint leaves (shrinks tumors) go vegan. Also Alternative IV therapy. VitC!!!!! You can Google this info and you tube testamonies! Mind blowing. My prayers go out to you all. God Bless!
I was told i had hep.c 4 years ago. I starting to feel tired but had hard time going to sleep. I would wake up feeling like death and i felt like i was dying and did not feel as if i was going to live much longer. HepC is nasty virus and i would not wish it on anyone. June 28 i started treatment fedx showed up first 28 day supply of pills Harvoni. Today is July 3 and i have not been on it long but no side effects as of yet. Still haveing trouble sleeping but i all ready am feeling better i do not feel as if i am dying anymore and my head is not cloudy anymore. I feel so much better. Please do not let anyone say that its bad and wishh they did not take it. I have had no side effects so far. I will keep yall up todate as i go through the following weeks. So far so good.
I just want you all to know It does not matter how you think you got the hepC. I believe the government knows how you got it but they will never fess up and neither will your doc's. I was found to have non a non b chronic active hep in 1983 when I was 23. I was told to never drink ... and never take birth control and quit taking my vitamins, I was a vitamin freak, A health freak from the late 60's and 70's. I was always in exceptional physical shape and made exercise my drug of choice, I had 3 children,raised them by myself working hard 6 days a week... still work 6 days a week, until now. In the last 6 weeks since my harvoni treatment ended I am sick all the time, during treatment I was O.K. Some deep shooting pains out of nowhere in hands, feet, joints. Really weird pain. Surface of skin hurts, mostly on tops of feet and tops of hands. I'm extremely weak and have been out of work on and off ever since I finished harvoni. My gastro doc says all my post side effects are not from harvoni which I think Is bs. No one wants to fess up to anything. I never felt like this before I was treated, I refused treatment till they found a cure because I am or was in better health than people 20 years my junior... I am 60. I now can not work out, no energy although I'm going to force myself to start slowly again this week I hope. Seeing my GP now and he is aggressively trying to find my problem because my white blood count is extremely low. My liver labs are not right and I am dizzy, weak, miserable with deep joint pain, fever of 101.9...now under control, but that's what got their attn. Finally payed attention to me, I can't talk right, I've been affected neurologicaly. Numb limbs and soaked in sweat several times a night, dripping wet, wakes me up. Hard to sleep, Thank god for my reg meds for phsyco problems or I'd really be a mess. It have great insurance and took me 9 months to get harvoni. As you can see by all the spelling errors it has affected my brain. Thank God for walls for they keep me from falling when I loose my balance all the time. I used to ride a Trikke, work out on Soloflex which is weight resistance and ab-circle at least 4 times a week. Now I'm usless. Can't really even shop for my good nutrish food, don't have the energy when I get off work and I work in a grocery store. Crazey. So..... I am not assuming it is all the aftermath of harvoni ...being treated for lymes at this time in case it is that. The bad stuff. I am miserable, sad and do feel alone and hopeless. I hope I don't die. I was so excited about the new CURE,,, now my adult children and I are very leary of the harvoni. They don't want to loose me . I have anxiety attacks and hot and cold flashed constantly threw out the day and night. I'm just not the same, I was better before treatment, so hopefully it is lymes and sides from harvoni and I will be back to superwoman soon. I just need to stay alive so I can get there, My GP is concerned.... but does not listen to me about thinking its the post harvoni. Anyway needless I am thankful for the chance to be cured, just want to know what I would feel like w/out hepC and the sides from the meds. Thanks for listening. Dyan P.S. I'm going to try to go back to work tomorrow, Ive been out all week and you know that moola thing... I need it. I'm not comfortable driving . Straight to work and straight home, which has always been the norm for me anyway, I am alone with dogs by choice. I am antisocial and an introvert I guess. I like my own company, other people are to draining. I have 4 granddaughters that I used to be active with...sure would like that back. I'm stopping now; promise.
I am a 59 year old black male, HIV for 30 plus years, Hep C. Since 2011. I was recently told that I am Stage 4 Hep C. I don't show any symptoms of Liver Disease. Never tired. I recently started Tiumeg HIV Medication. T Cells 58, Vital Load pretty high. Was told by Doctor I could not start HEP C. Treatment until my T Cell and Vital Load is better. I need feedback on what I should do and the best path to take. I'm only giving the Important info but if there are any questions anyone want to know in order to better advise me, feel free to ask and I will be honest about ALL answers. I will await any and all feedback. Someone, Anyone, EVERYONE Please respond to my situation.
My mother has hepatits c since long time ago. my mother took medicine of Sovaldi for 6 months and her pcr report was negative affter all....one day her hand nails cutt above side of my arm ( not inside the body nail enter).. now i am in confusion that will hep c can infected me or not.... please reply?
After feeling bad, losing weight and depression, and seeing other Drs with no results, I went to a doctor that really listened to me and she ran many blood tests and in 2003 found I had Hep-C gene type 1B. I started treatment on Interferon and ribaviron pills for 14 months. After hellish long treatment becoming a shell of who I once was. I cleared. 6 weeks later, it came back. I still have most of worst side effects up to this day. I am staying within mostly normal range in blood work. I did find out I contacted this from a blood transfusion back in 1978. Anyone still suffering from bad side effects? Extreme fatigue, depression, brain fog, nauseous, triggered fibromyalgia, and eyesight problems. Etc. Will NOT ever do any kind treatment as long as I stay in mostly normal range in all bloodwork. I see a psych Dr for my severe depression, Chronic fatigue. I can't do as I use to. Had to stop my job, go on SS. I want ME back. I have NO support from anyone. I don't complain or talk of how I feel. I get tired of saying those things. Helped in beginning, but years later nothing has changed in all health issues, so I don't talk of it, but fatigue is so bad and I get so pissed I cannot do simple things anymore. I fight Anxiety 24/7. Thanks for reading.
My daughter is on her 3rd round of chemo, in the last few years. She is compliant to the fullest extent. Articles like noncompliance are blaming the person for the disease coming back. Many are compliant and the Hep C comes back. This is a no brainer article. While true, address the person, who has the disease and it keeps coming back, and don't indicate anyone is noncompliant It is so wrong to indicate this, as Many would suspect it. People with Hep C have to deal with prejudice and isolation in many places, and it doesn't help you put an article for non compliance.
Hello I am german and I live in Germany, so my written english is not so good. About 20 years ago a medical doctor found out that I was infectid with Hepatitis C. I always felt healthy and I had really no complaints. My blood measures like GPT, GOT and GammaGT where just a little above normal. All I did was to live healthy. NO ALCOHOL !!! And every day Milk Thistel Medication. I din't want to start a Interferon/Ribavirin-Therapy beause it can make you (possibly) very thick. Later I heard about the researchers finding direct acting medikation against HCV. So I looked for a possibility to take part on a HCV-Drug-Study. I started 2014 on such a Study with the german pharmaceutical company "BOEHRINGER INGELHEIM". With 3 Direct acting agents (DAA) for a time of 24 weeks. At that time I was very near to Cirrhosis and started the HCV-Study with nearly 10.000.00 Hepatitis-Virusis in my blood. After 14 days the viruses where eliminated completly (I had no side effects) and after now 2 and a half years they have not com back again. My liver is now in a much better condition and I'm so happy about that (I'm 74 years old). I very much hope the readers of my personal story will be cured also some time. Best regards from Herbert R.
I had hep c for a very long time. 33 years to be exact! It certainly was a roller coaster. Lots of feeling exhausted extreme fatigue feeling sick. The last 6 months or so I felt terribly ill and I thought what have I got to loose. I'm going to beat this monster and started having treatment with Harvoni with no side effects at all. I was amazed as I am so sensitive to medications and I thought I'd feel sick whilst on treatment. If anything I felt so much better while taking it. Anyway here I am 8 months after treatment and I am completely cured and I feel absolutely fantastic and so healthy. No more tiredness exhaustion and no more lies to outings and people anymore. I'm 54 years old and I feel like I did when I was in my twenties. To anyone contemplating treatment don't! Just do it your life will be fantastic... Please just do it
I had hepatitis C since I was nine years old and received a blood transfusion in. Of course, back then they did not even know it existed I just finished Harvoni treatment a couple of months ago. My viral count went from over 5,000,000 to 12 in just two weeks. The side effects didn't stop me from doing anything I normally do. I barely knew I had any side affects Don't hesitate to take this fabulous treatment.
NCWP. IN 1991 I CONTACTED HEP C BY GETTING A TATOO. 2006 I WAS DIAGNOSED WITH CANCER. TWO OPERATIONS AND RADIATION I BET CANCER.? DURING THE NEXT 5 YEARS I DRANK ENSURE 2-3 CANS A DAY FOR NUTRITION. 2011(20 YEARS LATER) MY BODY FOUGHT OFF HEP C !!! I NO LONGER HAVE HEP C ? GOOD LUCK TO ALL OF YOU THAT HAS HEP C. THERE ARE MIRACLES !!!
I was in the navy and remember a corman giving several of us shots with the same needle and when he finished each injection he placed it in a cup of alcohol . this took place in 1972 and a short time later I felt the effects of hep and was told it was serum hepatitis . after discharge I was shooting dope and became yellow and sick for weeks. Years passed and I quit drugs at that time was diagnosed with C and B . I take responsibility for my disease and am looking for treatment near the cincinati area . The VA claims Harvoni is not prescribed due to cost.
These stories are scary... Not helpful at all.
Well one and a half years after Harvoni treatment the Hep C is still undetectable. Hooray! Now the after treatment has been progressing. Blood tests and liver ultrasound tests have shown that my cirrhosis seems to be in check. Because of stage 3-4 cirrhosis exists I will be getting an endoscopy of the larynx and stomach to see how the blood vessels look. If the blood vessels look ok everything up to this point will be ok. If not then I don't know what is next I guess live till you die. As cirrhosis progresses you have backpressure that builds and blows out the blood vessels and the end will come. I hope all is well. I'll be back to tell you more soon. I'm 65 with having HepC a very long time.
It was a SHOCKER when I was diagnosed with HepC in 2010 during because I have never been a candidate of any of its risk factors, except for the blood transfusion I had during a surgery in 1989. I repeated the test at another location/lab and my greatest fear was confirmed! Hepatitis C positive (genotype 1a)! All treatment options were too dangerous especially with my age. Finally, at 69 yrs (in 2016) my doctor introduced me to 12 weeks of Harvoni + Ribavirin treatment. My doctor also enrolled me in a program that helped pay for the extremely expensive, but effective miracle drug - HARVONI. By the end of the 4th week of treatment, HepC virus was no longer detected in my blood, but I had to complete the full course of treatment as advised by my doctor. Today (almost a year after) treatment, I'm free of HepC, but still treating a few side effects like anemia. I hope to totally recover soon despite my age.
I'm going to to beat this day one of the meds after a year wait for the product
I contracted hep c geno type 3 in 2013, after consulting with my G.I. doctor and discussing my treatment options, making sure my mental health was stable (this is important) I was ready to start treatment in 2016. I was fortunate enough that my insurance covered me after a prior authorization. I used a combination of Daklinza and Sofosbuvir for a 12 wk treatment period and my blood work has come back with no detectable viral showing. I continue to have monitoring of my blood work, this is important to make sure everything is still ok. When you are ready and hopefully able to be treated please, please follow your doctors directions, take the meds faithfully. To think that in 2013 I was looking at all the complications that come with this disease and that now I have no detection of Hep C in my blood is an amazing gift. Don't let the thought of the side effects (mine were minor) stop you from getting treatment. I would prepare yourself by saying "I am taking 12 weeks to take back my health." Best of Luck to all who have fought and to those of you are ready to start, I wish you all success in your treatment.
I had hep c since the nineteen seventy Two , after 3 treatments that ended up with no results, finally the fourth treatment finally killed the virus. I always eat well , didn't drink alcohol and exercised daily.
Last year I was diagnosed with hep c! I was prescribed a prescription called Harvoni! I suffered with it for 38years,and didn't know it! It's a powerful expensive pill! I had to take it for 3months! Thank God! My insurance payed for it! Had to get my blood drawn every 3months while I was taking it,and 3months after! By the grace of God,it's gone! I recommend everyone to follow instructions and take everyday, as prescribed! It does work! I am healed! And so can you! Please give it a try! You will not regret it!
Anyone with HCV in the San Diego area is a research group (Gilead) Medical Associates research group, 8008 Frost st., suite 200, S.D., Ca. 92123 (858)277-5678. These are the same people that is Harvoni, I received treatment multiple times as the first time, the viral load was non-detectable but came back. I had to wait for another study to come up for the same HCV type as well as test group for individuals that failed before. Anyway, I'm cured, by the Grace of God working with Gilead, my cost $0, oh take that back as I was paid for my participation, win/ win. God is great, may he bless you as well, good day
I used harvoni and was hep c free after 6 weeks . I was not much of a drinker so my liver had not been fibrotic or ciirrotic . I started using at 19 and stopped at 36 . I am now 56 . I found whilst on the harvoni I became hypermanic and quite unfiltered . It became a problem for my workplace . I stopped the harvoni in November and immediately got glandular fever and mouth ulcers . I had none of the side effects that are scripted . I am now feeling a lot better .i have a demanding full time job and worked through the whole thing . I was healthy before and am healthy now but whilst taking the drug and for months after I was " crazy" . The Drs said not true because not listed as side effects .? Am I the only one ? I do not have a tendency for mania and have worked hard mum whole life.
Thank you Obama care for the Harvoni I needed to save my life from 40 years of HepC. I am slowly coming back or should I say, my liver is slowly coming back from an almost shorten life span. One Bad decision when I was 21 and I did not find out I had it until the middle 90s my liver started to show adverse reactions to the desease. I get to spend more time with my 17 grand children now.
Well here I go. I contracted Hep C in boot camp in 1974. I had no problems till 12yrs later and my skin turned yellow. So I got tested and confirmed Hep C. In 2002 I went through the interferon treatment, I don't suggest that to anyone. It made me deathly sick and did not cure me. I was taken off that treatment due to suicidel thoughts after 90 days. In 2016 the Veterans affairs treated my Hep C with Harvoni and 600mg of Ribovarin. With in 4 weeks the Hep C was not detected in my body.. but finished the full 12 weeks. No hep C im cured. Now here is my problem and question if anyone can answer this. Today I got my 3 month ultrasound my liver is still messed up. The report says mildly heterogeneous liver no focal abnormalities were noted. In particular the small faint hypodense areas within acceptable limits for your medical condition. I called the VA for translation of this report. She told me I have legions too. She made no since to me. IS THIS CANCER. Or the beginning of it. HARVONI works and no side effects. Thank you and bless you all.
Had Hep-C for probably 35 years contacting it through blood transfusions in a 1980 operation. Luckily I have NO liver damage at all and was treated successfully with Harvoni. It's been almost a year since I finished the drug treatment and after two tests no sign of the virus. Have been trying to get my energy levels back to normal as the drug regimen left me very exhausted...also the cost of the drug at 1,000 a day per pill is outrageous and shameful. My medication was fully covered by Medicare but the cost remains a disgrace... recommend lots of greens and fermented vegetables for people trying to recover...in addition a lemon in water first thing in the a.m. helps stimulate the liver to cleanse...milk thistle is another supplement I use....
Started Harvoni at the first of May at 1 a day with a viral count of 14,200,000.One month later,viral count down to 15.Got 55 more Harvoni pills to take,one a day so hopefully I can put all this behind me.I quit drinking any form of alcohol about 14 years ago so that was probably the most helpful in getting rid of this virus.I am genotype1a.
I was enrolled in a HepC research. I was accepted to take the drugs available now. No cost to myself and payment for travel. I was so happy and willing. I had family business out of state that I couldn't get out of so missed my chance. Due to the HIGH cost of a cure, I'll just have to die.
I have hepC type1, and have been not been approved for medication by my health carrier. Case ID Date of Request Type of Drug Date of Decision Decision 35370368 09/12/2016 Epclusa Tablet 09/20/2016 Not approved 35616618 09/27/2016 Harvoni Tablet 10/07/2016 Not approved 35616618 11/07/2016 Harvoni Tablet 11/21/2016 Not approved 37618264 02/14/2017 Viekira Pak Tab Ds Pk 02/14/2017 Not approved 37600802 02/14/2017 Ribavirin Tablet 02/14/2017 Approved 37618264 03/10/2017 Viekira Pak Tab Ds Pk 03/28/2017 Not approved 37618264 04/20/2017 Viekira Pak Tab Ds Pk 05/05/2017 Not approved I have applied for an assistance program and was denied treatment because of my income of more than > $ 100,000.00 last year. The treatment is estimated at $81,000.00 , any ideas where to go from here?
My story; I contracted my hepatitis C from my husband we had unprotected sex he knew he had this disease I even asked him if he had any transmittal disease he told me no he did not I believed him and that night we had unprotected sex. I didn't find out I had it until a blood test was run on me because I was seeking to trying to draw disability for my neuropathy and degenerative joint disease. I have been living with this now for 9 years it has been very hard on me but everyday I am always praying and living my life the right way without alcohol and no drugs except an occasional ibuprofen when the pain gets unbearable I am always looking up ways to eat and exercise so I can try to live longer.
As of TODAY Im hep c free I have been one lucky man after having hep c over 25yrs my doctor told me about this new drug Harvoni.. I was very unsure as my dad also had hep c and was treated inerfuron which didnot work well within months of treatment my dad got sick real sick and two yrs later was told he had MND moto nurons desease .All the doctors said Not related but you try telling my family that see my dad was infected by me using his rasor as a teenager im sure.he was a PE Teacher and an Athlete in his day never a druggy no tattoos. He died 2013 and ive worried all through the Harvoni treatment it would be the same for me not ending well but how wrong i was after 5months of Harvoni and a lotta stress i found out for sure my Hep c IS COMPLETLY GONE the HARVONI Wonder drug if you got hep c go see a doctor screw inrerfuone go straight for the Harvoni my doctor in Tasmania has said ok to tell you all were he is he is in Launceston tasmania Andrew Jackson northern suburbs medical centre mowbray he is a great doctor and a specialist in hep c and drug n alcohol its no doubt saved my life im 41 and got hope ill live longer than my dad who died 59
I was born with hepatitis c and in 2005 I had a liver biopsy. I spent a lot of time growing up in and out of hospital having blood tests and I also had daily injections to fight off this infection. All my life I have struggled with tiredness and I still do but I have been cured ages ago. Do u know if tiredness can stay with you once u have been cured?
My story begins like a lot of other people. Had no idea that I was infected with HCV. Was seeing new phycian about battling depression when a blood test showed I have hep c. Diagnosis floored me. Have seen specialist for desease had ultra sounds and blood test. No treatment offered. Numbers are low.
I'm not good at English language but I must wanna tell my real story about How to defeat hepatitis C virus Simply by eating oranges ? Last year my lab reports showed me that I have Hepatitis C And Uric acid too It was shocking news for me Because every one knows hepatitis means killer virus So reaction was natural ! I went to top of range hospital in Lahore Doctor gave my one month medicine and told me that come after one month with new reports After month my uric acid was bit in control But Hepatitis C virus was still there Doctor told me that I have to complete the course of medication for 3 months Long story short I don't know why I decided to avoid medicine, some times body talks and human can listen so I did ? My grandfather ( rest in peace) had told me so many Tips to stay healthy when I was young One of them I decided to try According to his tip If any one have problem in liver He should eat 6 to 12 oranges ? Early morning with empty stomach for one to two months and avoid oily ,fatty things I followed the instructions by having 12 oranges ? A day ? It sounds funny but after 2 months I was Hepatitis C virus free man ? Trust me and follow this simple formula and defeat this killer virus with out injections and tons of tablets Thanks and best wishes to all infected friends
Hi all, I am 61 years old and in 2000 I was diagnosed with HepC Gen1. Now as soon as I was told this I freaked out and thought HOW WHEN? The possibility of contracting for me can be one of 3 ways.1-Tattos 2-Sharing a needle back in the early 70s or 3-Being exposed to sharps from hospital waste before they used a dedicated sharps disposal system. In 2004 I was offered a treatment that required many visits to hospital and many blood tests. The treatment was Interferon and I had to self inject every 3 days and take 6 enormous pills each day. The side affects were horrendous and almost cost me my marriage and children. Many a time I just felt like giving up and I was delving deeper and deeper into depression. I was praying constantly so as to rid this terrible disease. When the treatment ended after 6 months I was devastated to hear that I was still bloody positive. The way I was acting only made things worse for my family who stuck by me to try and help but I felt that I was a goner, when an offer of treatment for another 6 months was given. I took the offer and I was going through all the bad side affects that came with it and somehow I got through it all, with a lot of help from my beloved family. So after the 6 months it was time for the results...... Positive. Wow this was the biggest body blow I had ever got in life and I felt drained, weak and very fragile. Fast forward and I was told about this new drug HARVONI and I immediately took the offer after passing the criteria. I went to the specialist who ran through the treatment with me and when I was told there was NO injections and there was a better than 90% cure rate without the side affects. This for me and I wanted to begin immediately but had to wait for availability of medication from overseas. The wait seemed like an eternity (only 2 weeks) and I was in there like a shot to get my script filled and almost fell over when told the cost. I am never going to bag out our government any more. I didn't even wait to get home and had my 1st pill in the hospital. Fast forward 6 months (with NO side affects) I was called into my doctors for what I thought was a high cholesteral reading when he just said the words "you're negative". Magic, fantastic beauty I have done it, Yahoo. So to all the ppl contemplating having HARVONI I say GO for it,all the hard work has been done so You have nothing to fear. Just do what I did and have faith in family and doctor, because if I can kick this thing anyone can.......Peace to all....Jo.
I have hepatitus c and cant get treatment. Its a horrible feeling if you can get me help thanks. 3348283279. Ive had it over a year and a half.
I have been taking epclusa for 12 weeks and the hep c is no longer a disease. Didn't realize how good i feel until the hep was gone. No more uncomfortableness in the ab
I was diagnosed hep C in 2009. I was treated with Interpheron and ribavirina 1 year, 4 months after starting the treatment I was negative in My virus count. I finished My one year treatment and 4 months later I was positive again. In 2012 I was recommended by my hepatologist to repeat the treatment again but with a Interpheron with sometido genetic change. Well to no make the story so long the virus came back! 2 treatments and living those 2years with all these secundary effects and with no positive results I gave up. No more!, I Will have to learn to live with my desease, and live my day with antinauseas, antidizzy, antiheadache etc etc etc medicación. In 2014 my cousin told me about a New medicine in USA (Sovaldi) tha cures 97% of patients with hep C, I had to wait tha the medicine will be in México. In july 2016 I was receiving my Last hope to be cure. Tha combination was Sovaldi (sofosbuvir) and other antivirus, and for now I am cured.
been proded and poked and tested but my pain is still there after eight months all doctors want to do is address my hep c and my body is screaming neurolical chiropractor seems only one listening to me and if hes right there will be hell to pay eight months in pain allmost 24 7 really? wtf cant get the cure because i work secondary plan will make me sick for up to 9 months then cure might not work ok if i'm 30 years old who are these people insurance people who work for trump to let people die for love of money i voted for trump is he gonna save my life no just ss number one of many working class who should be non working to get care trump doesnt seem like my president i'll die before they make me sick. and why only being born in a 20 span is the target for hep c what government things were going on to bring this only between 1945 and 1965? really? pretty narrow bracket.
Hey all...28 years with Hep-C Genotype 3d here....I recently finished 12 weeks of Epcluse.. I cant tell if the did anything. I wont get my blood checked for another 11 weeks(12 weeks after) No major side effects other than the WORST herpes outbreak ive ever had.(maybe unrelated?) I went through the Interferon/Ribaviran a few years back and it was hell; physically and mentally; but this Epclusa was a breaze. but my liver area still gets sore as hell...i can feel the liver damage and im pounding the milkthistle. Hopefully im cured ....no side effects at all from epclusa though
I would like to request you that's i have some point on the liver because of hepatites c it's mean i have liver desies so kindly give me advise How can i wash my liver to look fresh
I contracted non A non B Hep about 1970. I found out I had Hep C in about 1995.. I've been sick.. had all the symptoms ..changed my life a lot.. tryed almost everything that is available In Japan and Taiwan for liver related diseases...basically adopted the Traditional Chinese medicine and philosophical approach. I'v been living in Japan for the last 30 years .. I never go to doctors ..I'm never sick .. in fact my health seems to be miles ahead of most people .. I'm 66. If this helps or if anyone wants to know more they are more than welcome to contact me.
I found out that I had Hep c in December 2012. By December 2013 sovaldi was approved by the FDA. I was told I had genotype 1and enrolled in a Merck trial in July 2014. There I found out that I had genotype 3 and stage 3 liver disease. I was released from the trial, returned to my Doctor and started sovaldi plus ribivarin for 24 weeks. I failed to rid myself of the virus. So in July 2015 daklinza was released by the FDA. I started sovaldi and daklinza for 12 weeks. I failed that too. So in September of 2016 I started epculsa with ribivarin for 12 weeks. I'm finally svr, cured, and so happy to be free of the virus. Faith in God and perseverance got me through. Good insurance and a great Doctor too. So for those of you who have lost Hope, keep the faith and keep trying. It worked for me and it can for you too.
Hi All I am a 55 year old Male from the UK, I have been Hep C positive for the last 35 years although I only discovered that I was Hep C genotype 1A roughly 2 years ago so spent 30 or so years in the dark about it. I had been visiting my GP (doctors) for the past 15 to 20 years complaining of massive bouts of fatigue that would floor me, this was also accompanied by a heavy brain fog that left me feeling very tired, down & confused. I went to the GP with these symptoms multiple times over the years only to be told that he could find nothing wrong with me & I was probably stressed with work. Then one day I decided to move to a new doctors surgery as I felt I was getting nowhere with my old doctor. Straight away the new doctor listened to what I was saying & ordered every blood test under the sun & hey presto she called my a few days later to say "I have some bad news for you", she then went onto say we have found you have hepatitis C, although it was bad news and a shock to me as I had no idea I could be infected it was also good news as I was starting to think that I was going mad & manifesting the symptoms myself as the GP's were continually saying they could find nothing wrong. Since finding out I am positive I have taken steps to change my diet & eat the right foods, I am fortunate that I have always done regular exercise & been a non-drinker. I have to say that exercise for me was a crucial factor as it would lift the brain fog & keep the fatigue at bay for a little while & also keep me sane. 12 months ago June 2016 I managed to get on a treatment program via the NHS & was put on a course of Harvoni. (only an 8 week course) I was so happy as was my wife & I thought this is it I will finally be free from the virus & the effects its been having on me for all of these years, my viral load fell like a stone & after 1 week I was clear, clear again in week 2, 4, 8 & 12. I then went for my 12 week post treatment appointment expecting them to say well done, your all done & we will see you in 12 months for a checkup. That's not how the conversation went however, the doctor said she has some bad news for me and that the Hep C was back, I was so shocked, I never in a million years expected that news especially given I had been clear for all of those weeks, but it is what it is and now I have to keep going. I was in that much shock that I couldn't really come up with any relevant questions as to why I had failed when Harvoni has or is supposed to have a 95% success rate, I went home numb. After getting myself together for a few days I called the liver specialists and made another appointment to try and get some answers , I have been looking on the internet for others who were in the 5% fail group & came across plenty. I was only given an 8 week course of Harvoni, but looking around most people are given 12 or 24 weeks, I put it to the specialist that maybe I should have had a longer course & she said yes it could be due to the length of treatment. Its my belief that the NHS is being forced into this by funding cuts, they can get 3 for the price of 2 if they give 8 week courses instead of the standard 12 or 24 weeks & if they get a few more failures then that will be acceptable to them, a sort of collateral damage if you will. I have now been told that I am on a list of harvoni failures that they are compiling & once they get funding that I will be called in for a new treatment, I asked if it would be 12\24 week harvoni but was told no you wont have Harvoni again it will be a completely new drug which they hope to offer within 12 months. Anyhow that's my story & where I am at. I would just like to say to anyone with the virus, try to eat right, exercise, stay away from the booze & hopefully get a treatment plan in place. Take care and good luck Tony
I was diagnosed With Hep C in 1999 think I got virus in early 80's geneotype 2. I did the interferon-Ribivan therapy for 24 weeks, I just did Rna virus test to detect any virus and I am proud to say I am 17 years clear. The only thing I think that was the only therapy at the time and wasn't the best. I still think the effects are still with me. Never felt the same.
I was diagnosed with chronic hep c with a viral load of 7 million ... on the 23 December 2013. I was put on a clinical trial in 2015 for 8 weeks by July 2015 I was healed it has not come bck hep is no longer a killer guys and no biggie to gps or health care workers it's easily cured don't sweat it just take your medication and you'll be fine ...
45 years infected 62 yrs old 0 liver damage decided to take tx 12 wks ago no side effects at all going for blood work next wk mid labs undetectable thanks harvoni
Baby boomers I had Hep C since I was 16, I am 66 yrs now. I have had heb b also but body fought for me,When I finally found a meds ine I knew I could handle, cuz I was not going to take something that I know will make me feel like crap everyday. So at the end of 2015 I finished Harvoni, it is a Miracle Drug, Because I had it so long I had upper and lower GI, ultra sounds, liver biopsy, this was before I started Harvoni. I had been checking for years, had severe gastritis, pains under my right side shooting pains in my liver. When I got this at 16 they didn't know what it was, only a virus. In 1967, they had no name. So as time went on I was told in was non A non B hep, then it was, years later hep C so I have known for quite awhile. Geno type 1A which is what most people have. I went through three months with millions viral load. Dec of 2015, I am clear of virus, I do have cirrohis, but I have tests done once a yr and blood tests as they ask but all and all, I am a 66 yr old that runs and takes all her grandkids out and I am Just as energetic as them at times. If you find it hard to get it paid for get into a study, it was 100,000 ins.paid and I thank God on a regular basis, because without him I should not be here. But through the grace of God, I am,Thank you Jesus, I recommend the tests cuz they can tell much more about the duch leading to liver, pancreas oh and they found cycts but the did lap, and it was full of water, so don't be afraid to get all the tests you can. I go in a week to have a fourth Abd med Imaging. This December 2017 it will be two years. So please go take this Harvoni it's a God sent. God Bless all of you, I am praying for y'all. If you need to talk I will help you with what I have been through. Hope this helped, sorry so long.??
My primary Dr found my liver enzyme high about 3 years ago. The specialist he sent me to said the Hep C was minor and suggested I wait until a better med was available. I probably got this 50 years ago when we were given shots with the air injection gun during the Army induction. There was blood everywhere and the gun was never wiped. In 2016 he suggested the 12 week Harvoni treatment for my Hep C Genotype 1. My insurance wanted $4,000.00 copay for each 28 day prescription but they found me a grant so my cost was $0.00. Thank the Lord for providing that. I started in November 2016 and after one month the viral load went to 0 and not detectable. It has stayed the same including after the 3 month follow up. Side effects were dull headache especially if I did not drink enough, very tired, and hard to focus. It has taken several months to get energy back but still get a fuzzy headache if I slack on the water intake. They want me to drink an ounce per pound of body weight. I can get two thirds of that amount and feel OK. I'm expecting my liver to continue healing now. The enzyme numbers are all mid range. Any alcohol gives me a bad week so that is done with too. I am 75 years old now and expect to stay healthy.
I went for my yearly ultrasound april6, my doc calls the next day and said they found two things, I was in shock and sort of didn't quit understand it and am hoping someone else with Hep C 1a, did the ribovarin, pegatrone , interferon and one of the first new drugs by Merek, Victrellis, they no longer prescribe it. I went through 6 months of torture , needle in stomach and instead of getting better it made me worse, my hair will not grow, I don't eat and appremtly have a mutatation QK80,. That was 2013 , now please has anyone has a ultrasound und then a ct with dye and they have found swollen lymph nodes around ny pancreas with the larger one 9mm, is lateral to the head of my pancreas. Plus my bile ducts about the liver, they seem confused because the two things don't go together, I am going for a MRI next to find out exactly what. Has anyone had this , I feel like crap. Any help or suggestions would be much appreciated, I feel l know nothing at all. But am afraid. Thanks Corey
I was diagnosed with hep c in 1996, but I'm sure it was from the 1970's. I'm going to check with my insurance company, BCBS, and ask if they cover the treatment. And I have such difficulty with memory and learning. I also have graves' disease, hashimoto's and hypertension. And I have posterior nosebleeds and wonder if this is from hep c. I have a feeling that with these other diseases/conditions that I'd be rejected for treatment.
My Hep C from intravenous drug use and continued my addiction off and on for 15 years after diagnosis. I hope I was vigilant at protecting others I think I was but who knows at times it was a gamble I am sure. And I gambled with other ppls lives. I hope these ppl have been as lucky as I have and have been considered cure from HARVONI and that God can forgive for that type of sin. I pray for the ppl that are still out using today. It's a life of HELL that can result in a quick dead or long one. If you are looking for a way to pay for Harvoni contact them they may help. I had insurance (Medicare and Medicaid) that covered me they even paid for my co payments $16. I am very lucky for that but am left with cirrhosis and they are monitoring it now. My Hep C also caused some Rhuematoid Arthritis and now the docs think I may have the kind that Hep C develops and it may be better or gone. Good luck!! Try everything you can for the Harvoni before giving up.
Hello I'm Svetlana Scheiwein Bulgarian 43 year's old *homeless living in leicester city England more than 6 year's absolutely alone i didn't have . Everything started at 2014 with horrible pain days and nights, months because I was living alone it's was really hard depressed for me. Remember that i was going to many to hospital and the doctors telling me every time that im OKAY! !! At may 2014 is strat my itchings , cant walking distance tired my hands ,body and face was red can't eat and drink my dayli life was extremely bad. Then i been to the GP she chek my blood pressure is was really high she get blood test and the end she tell me yhat i have liver problem she refer me to gastrointerologe and 10 month i was waiting for meeting up with the gastrointerologe. He do new blood test agane more high all my liver enzymes. I was in X ray, MRI ,scan all but not seeen noting then he refer me to liver biopsy after 8th month i bedn there but get scared and back . From this day till this year February i didn't know nothing about #Primary billiar cirose autoimmune hepatitis# Now im waiting agane to meet the gastrointerologe at 30/06/2017 with out any treatment. Dear friends my local Advice and support Down centre in leicester they don't want to me to help me . They always says to me that no place for me because is busy last 3 years . I don't have benefits zero financial no social care help All they tell me go back to Bulgaria. Im on the street at the moment alone i ask my GP practical doctor for Urosofalk 250mg and she give me. No foods no roof no best friend. Im on depresion+panic attacks +schizophrenia . I apply to many times for ESA they send me letter im not allow for ESA because law say that and because I didn't pay NATURAL CONTRIBUTION. . I ask also for support my GP practical doctor before 5 weeks ago but nobody didn'tcall me yet. I know i will die from PBC im scare i getting panik shock can't sleep . Dear friends i dont know what to do. I hsve son 16th he needs me because we are just he and me ,if i die his is life will broke because he loves me to much. I need help with liver transplantation but dont know how to apply for. Any of you can contact me God bless all of you This PBC need to stop it. Thanks for wrot Svetlana
Hello since last year January I went for some general check up with my wife after some month I go back doctor tell me that I have hepatitis b chronic is like my word is gonna be end that very day .. ..my pont is ..now i have a lot of pain in my chest and my stomach and my doctor say then cant not give me drog now because the varis is not much on me.. What can do now
I was cured by Harvoni after 2 unsuccessful attempts with previous treatments. The drug was a godsend. Not even any noticeable side effects, although I had HE from the liver damage shortly following the cure. No other bouts of it since then, hopefully because my liver is healthier. But be aware that antivirals can set off DEPRESSION. Mine started when I took the first round of Interferon back in the dark ages. I beg any of you who have had depression onset as a side effect, get treatment. It does not seem to go away on its own.
Hello I'm Svetlana Scheiwein Bulgarian 43 year's old *homeless living in leicester city England more than 6 year's absolutely alone i didn't have . Everything started at 2014 with horrible pain days and nights, months because I was living alone it's was really hard depressed for me. Remember that i was going to many to hospital and the doctors telling me every time that im OKAY! !! At may 2014 is strat my itchings , cant walking distance tired my hands ,body and face was red can't eat and drink my dayli life was extremely bad. Then i been to the GP she chek my blood pressure is was really high she get blood test and the end she tell me yhat i have liver problem she refer me to gastrointerologe and 10 month i was waiting for meeting up with the gastrointerologe. He do new blood test agane more high all my liver enzymes. I was in X ray, MRI ,scan all but not seeen noting then he refer me to liver biopsy after 8th month i bedn there but get scared and back . From this day till this year February i didn't know nothing about #Primary billiar cirose autoimmune hepatitis# Now im waiting agane to meet the gastrointerologe at 30/06/2017 with out any treatment. Dear friends my local Advice and support Down centre in leicester they don't want to me to help me . They always says to me that no place for me because is busy last 3 years . I don't have benefits zero financial no social care help All they tell me go back to Bulgaria. Im on the street at the moment alone i ask my GP practical doctor for Urosofalk 250mg and she give me. No foods no roof no best friend. Im on depresion+panic attacks +schizophrenia . I apply to many times for ESA they send me letter im not allow for ESA because law say that and because I didn't pay NATURAL CONTRIBUTION
I was diagnosed hcv posotiv on 27.8.16.i carried out pills trearment for genome type 3 for 6 months.in january 2017 after 4months of treatment my PCR RNA quantitative turned negative.please guide 1. Does it mean i m cured? 2. Can i now take any sort of food without preventive measures? 3. Will i b immune or susceptable to HCV in future? 4. I used to have normal blood pressure. During and after treatment i experience high BP. Any solution?
Starting Harvoni treatment next week Monday 5-1-2017. Well over 20 years ago shared needles while in the Marine Core in Asia. -tb
I contracted Hep C from an amateur tattooing by a friend who was unaware he had it. He was just learning and I agreed to let him do a small one. As a middle-class guy with a corporate job, there was alot of shame associated with it. But the reality is that there are many people who contact Hep C who are not intravenous drug users. I'm not trying to shame those who are but simply to let people know that the disease is not something that should carry shame with it. I think for me and many that was the hardest thing to overcome. It is becoming more and more common for insurance companies to cover the treatment without severe liver damage as an indication. That means it is possible and can be affordable to seek treatment. The drug companies and other charitable groups can be very helpful to those who are without insurance. For me the fatigue is the worst. I haven't started treatment yet but will soon. Don't become discouraged. Just keep fighting and seeking treatment however possible.
I was genotype 4 and in Stage 4 with Hep C for over 20 years. I got on the Harvoni treatment. Instead of the 8-12 week , I had to be on it for 36 weeks. They really wanted to get rid of the viral So in late 2015, I was pronounce cured. I have been and will be tested so often, but all have been OK. I know I have damage of my liver to deal with. so I keep a healthy diet and do not touch alcohol. Godspeed to you all
never been treated harvoni works insurance dictates opptional 9 month treatment which may not work my doctors recomendation dosent mean anything i should have had the insuraance company diagnos me catch 22 do what the ins co says reduces my life span harvoi is great so treat me with somthing else and then harvoni might not work well lose either way it seems i work for a fortune 500 company and if i was on medicade i would have the cure in three weeks not 7 months america does not help the working class i should quit and become desitute to get care
Hi we want medicine for hapetites c to control quickly and clear to the liver deseis and finishing this virus
I have my ailing mother on bed, due to back bone injury she is unable to walk without attendant sport which is being provided by my wife and children. My mother has also HCV . I was in need of information regarding her handling safely so I search this website. Hopefully I will get the answer I need .
I was just told I have hepc, don't see the doctor for two months I am very worried but it can't be that bad of she is waiting that long, had hep a and b when I was younger not sure if that means anything , getting married in Sept just want to get on with my life
I got HCV from an infectious needle stick in the blood bank where I worked at the time. Not knowing I was infected I had my 2'nd pregnancy totally sick all the time. It turned out we were both infected . We didn't get treatment but were monitored for the next 18 yrs. I first tried the pegasy interferon route, couldn't handle it. A few years later Incivek came along and we both did that with the ribavarin and interferon and stuck with it. It wasn't easy especially for my daughter but we did it with no viral load detected after the 6 month wait. I just got retested with no vial load detected 5 yrs. later. Guess it worked. I'll have my daughter check if she should be retested. She was a better responder so I'm confident she's OK. Incivek was a great drug with a good cure rate and a grant paid for treatment.
HCV treatment in India-My story This story starts with fear and bitterness and ends in gratitude and hope. I am a 63 year old middle class American. My wife and I are semi-retired, and we don’t have health care. In November 2017 I found out I was infected with Hepatitis C, type 2b. My son, a physician, counseled me to have treatment immediately, as I was symptomatic of chronic HCV- specifically chronic fatigue syndrome. Left untreated, 20% of people with HCV develop fatal liver disease. I turned to the internet to learn about Hep C. New treatment options developed in the last 5 years have a success rate of 97%. My feelings of hope turned to bitterness as I investigated further. Cost for the two medications prescribed for HVC type 2b are between $80,000 and $100,000 dollars for the twelve week treatment protocol. Each of the 168 pills would cost between $476 and $595. I would not, could not spend most of my retirement savings on one treatment for one illness. The company does offer discounts to insurance companies and will “give” the medication to the “needy” who can prove they cannot afford it. My stiff necked pride would not let me beg the drug company by proving my “need”. Searching the internet, I learned affordable options were available. The same medication is available in India for less than $1500. India is licensed by the drug company to manufacture HCV drugs used in the “undeveloped nations” of Africa, Asia, and the Middle East. The cost of the medication is set based on the per capita income of the nation- in India, the average income is about $3600 USD. The first glimmer of hope began to emerge. I began to explore treatment options in India. Medical tourism is a growing business there, offering many services at affordable prices, and with quality on par with western nations. India has several companies offering complete services; pick-up at airport, all transportation while in India, hotel and hospital visits and medication delivery. One doctor told me “we treat you like family”. These companies, all located in large cities, charge $2500-$3000 for medical aspects of the trip. Air fare, lodging, food and sightseeing are additional expenses. This is an ideal situation for a person traveling alone or anyone who is apprehensive about traveling in India. All Indian Physicians follow treatment protocols for foreign nationals, including blood tests, ultrasound of entire abdomen, and other tests prescribed by your physician. Treatment protocol for HCV includes a 10 day period after starting medication to determine effectiveness and identify any side effects. As I began planning my trip, I estimated airfare at $1200 from the East coast of US to India, and allocated $50/day for lodging and $20/day for food and other expenses, about $2200 plus the cost of medical treatment, about $5000 total. I am not sure what most people with insurance would end up paying out of pocket, but $5000 was within my budget. My nephew, Adarsh Williams, an advanced level Ashtanga yoga teacher, has years of experience traveling in India and his advice proved invaluable. Major cities like Delhi, Mumbai or Bangalore are seriously overcrowded and magnify the worst parts of India-pollution of every kind; water, air, land, and noise, extreme overcrowding, traffic jams of epic proportions, and the ever present poor. I did not want my visit to India to be spent in such an environment. Adarsh called back a day later and suggested that he and Evan, his nine-year old son, go to India with me. I was so profoundly grateful I wept. This was the turning point of the trip. They were both excellent traveling companions, and we had long conversations about every subject Evan could think of. Suddenly, I had flexibility in treatment locations. My goal was to find a smaller city with quality medical care near an international airport. I learned Goa has an Apollo Hospital as well as beaches and tourist opportunities. My nephew said think of Goa as “India Light”. They, like beach towns everywhere, cater to tourists. But I am not fan of sitting in the sun, so I continued my search. Northern India holds many sacred areas and most of the large cities- and many more people. The northern frontier with Pakistan is still tense, as it has been since separation in 1947. Despite its many cultural and historic sites, my concerns about security and desire to avoid most cities moved my search south. My search ended in Mysore, located in South India. Mysore is considered the cleanest city in India, has many sight-seeing opportunities, and is home to the most prestigious yoga schools in the world. There are many westerners either visiting or living there. Making arrangements myself via the internet, I decided to use Apollo hospital (www.apollohospitals.com) for my medical treatment and chose the Southern Star Hotel as my residence. Apollo Hospitals are privately owned and consistently ranked amongst the best hospitals globally for advanced medical services and has served and over 45 million patients from 121 countries. The Mysore hospital is large, well equipped, and staffed with fine health care professionals. The Southern Star was $64/night, which included a breakfast buffet and Wi-Fi. The hotel turned out to be my oasis from the chaos that is India. The rooms are clean and air conditioned, and the restaurant is good, serving a selection of Indian, European, and Chinese food. It frequently hosts business men and tour groups from Europe. I wasn’t sure I would stay there for the entire time, so I only booked 4 days through an on line agency. After the fourth day, I talked with the manager about extending my stay for an additional two weeks and negotiated a price of $50/night for the remainder of our stay. After a day to recover from the flight, I went to Apollo hospital and at the inquiry desk, told them I was seeking HCV treatment. After paying 300 ($5) rupees for a consultation, I walked to the 2nd floor and waited for the doctor. After a 20 minute wait, I talked to the doctor, who gave me a prescription for an abdominal ultrasound (1000 rupees or $15) and blood work (4600 rupees or $71 dollars). The blood work took 2 days for results, so we spent a couple of days sightseeing. Mysore (or Mysuru), in India's southwestern Karnataka state, was the capital of the Kingdom of Mysore from 1399 to 1947. In its center is opulent Mysore Palace, seat of the former ruling Wodeyar dynasty. The palace blends Hindu, Islamic, Gothic and Rajput styles. We walked through the centuries-old Deva raja Market, filled with spices, silk and sandalwood and powered colors for the upcoming festival. We drove the Gelugpa section of town, the home to the most prestigious yoga schools in the world, for lunch. At a small café full of yogis and yoginis we had our first Thali- which translates as Plate- an interesting meal consisting of a bowl of rice served with three spicy vegetable dishes, yogurt, and a dessert. The flavors were different, but delicious. We spent the rest of the day walking through the area, looking at the many yoga training centers, restaurants and apartment buildings used by yoga students. This area is one of the most affluent in Mysore, and many westerners are seen on the streets. Two days later I returned to the hospital, picked up my test results and went for my second consultation. After reviewing results, Doctor gave me a one month prescription for HCV treatment (two different pills) and was told to return after taking medication for 10 days. The cost of the medication was 23,300 rupees ($358) and was delivered to my hotel that afternoon. I started my medication as soon as it arrived, and spent the week visiting many of the local sights, like the market and palace. After a morning out, I would nap while Evan did his homework and Adarsh worked on his book. In the afternoon we sat by the pool and had three sided conversations about anything and everything, then would walk to town. Indians spend the late afternoon and evenings out, walking and shopping, and we experienced the color and modesty of traditional Indian dress. The third day after starting the medication, I was nauseous and felt very tired. I spent the day in the hotel room watching TV and sleeping. On the fourth day, I again felt better and we went to the zoo. Mysore has a large zoo, with a mile long walking path through the exhibits. The zoo was crowded, and we enjoyed the people watching as much as looking at the animals. I found a smile overcomes language and cultural barriers. Many Indians are very friendly and wanted to chat about my visit to their country. Indians have no concept of the American idea of personal space. Leaving a 12 inch space between you and the next person in line is asking people to cut in line. There are just too many people seeking services. Be friendly but assertive in public places. The Indians also considered three westerners as rare as zoo animals. Several times people asked to have their photos taken with us, and wanted to know about us. We introduced ourselves as uncle, nephew, and son. On my final visit to the hospital, I again paid my 300 rupees, met with the doctor and was given a prescription for blood tests (1100 rupees). I paid and again went to the lab where they drew blood and told me test results would be ready in 2 hours. I went back in the afternoon, retrieved the results. The doctor said my liver functions were returning to a normal range. I shared my journal of side effects and he wrote the prescription for the remaining two 2 months of pills. I took the prescription to the pharmacy in the hospital, paid for the medication, which was later delivered to my hotel. My trip to India had paid off. I had my medication in hand. I had read on the internet that medications can be brought back into the US if you have a doctor’s prescription for them so I was ready to go home. We rented a private air conditioned car to return to the airport in Bangalore for 3600 rupees, compared to the 180 rupees we had paid for our train fare from Bangalore to Mysore. The ninety mile ride took four hours, including a 1 ½ hour ride around Bangalore on the beltway. My three week time frame gave me plenty of time to find a doctor, receive medication, complete the 10 day initial treatment, sight see and travel there and back again. I returned to the US, medication in my shaving bag, prescription in my wallet (I had no problems going through security or customs) and returned home. I am now completing my treatment and am beginning to feel better than I have in years. During my trip, my bitterness about the affordability of treatment in the US changed to gratitude. My total expenses for the trip, including medical treatment and medication was $4260- a cost I could afford without bankrupting myself or asking others for help. I am grateful to my nephew and his son for taking their precious time to travel to India with me. I am grateful to the people of India, medical providers and in general for their gracious treatment while I was in India. Would I do it again? You bet. What did I learn? Many things about myself and others. I learned the many differences in our cultures could be a sources of annoyance or opportunities for growth. A smile and good sense of humor will get you through the rough patches. Be prepared to negotiate the price of everything (except health care!) Negotiating price is part of Indian culture. My rule of thumb was to counter any price by offering half and to finally paying ten or twenty rupees more than that. Walking away is one of the best ways to get the price you want-There is always someone ready to step in and give a better price. If you want to end the negotiation, say “no, please”. I am grateful I am on the road to recovery, and I hope anyone facing Hep C with limited financial resources will find my story helpful. I am so sad that healthcare in America is available to those who can afford to pay and those enrolled in government programs like Medicaid. More than 20 million Americans like me, without insurance and unable to pay the outrageous cost of medical care, are not helpless. We have to be creative and take action instead of waiting for someone to make it better.
In January 2017 it turned out that I was infected with hepatitis c. Unfortunately, in Hungary they could not cure him but fortunately a Ukrainian professor healed from the illness within 40 days. Now my liver rehabilitation is going on successfully. Thanks to the professor ... dr.prof. Vagyim Petrovics
I was diagnosed with HCV in 1996 the first thing I did was I stopped drinking. I heard all the horror stories about interferon and riboviran . When Harvoni came on the market I saw the infectious disease Dr. at the VA they said I needed to be tested for my Geno type I turned out to be Geno type 2. No Harvoni for me. My PCP told me about Epclusa which was for all Geno types. My liver functions were always normal. I am 100% disabled so the 74760.00 cost me nothing. I have just completed my first month of treatment and just a few days ago had my first blood test but the results are still pending my viral load of 10,000,000 was not terribly high and I was told this would be a good time to start the lower the viral load the better chance of getting rid of the disease. But I really won't know for another 5 months.
I was diagnosed with Hep C, genotype 1A, in 2007 but was most likely infected in the 1980's...my viral load was one million, I began a 48 week treatment of Interferon/Pegasus & Ribavirin with pretty serious side effects...at the end of treatment my viral load was less than 50,000 which at that time (2008) was considered as being virus clear...however 3 months later my viral load was at nearly two million so I was not virus clear nor even close...I still had the Hep C virus in my bloodstream and liver...
My treatment started in August of 2015. I was on harvoni for 8 weeks of treatment in which I was svr at the end. It is been almost two years now and I'm still scr and feeling better than ever. My kidneys were affected a little but now are normal GFR and creatinine Clarence numbers. My last blood test showed everything was normal and in range and there were no flags at all. I am so thankful to say I have returned to normal health.
This is a message that is aimed to encourage everyone who is dealing with hep c. In 2005 I was diagnosed with hep C in March 2016 I went to the doctor to get my liver enzymes test and my blood tested to see if I qualified for the med that aimed to cure hep c after results came in I never went back because at the time I took the blood test I was unemployed. When the results came back I found a job and was unable to consider 12 weeks off of work. Therefore, I finally decided to call my doctor in March of this year 2017 and ask her based on the results can I receive the medicine that cures hep c. She said if you would have called me before you scheduled the appointment I would have told you over the phone that your test came back NOT DETECTED OR negative for Hep C. I was in complete awe, I was like has the ever happened , she said 1 and 10 percent of those who have had IT cure on their on. I am praying for those who may have lost hope, Jesus healed me. Exercise a lot it makes you feel so revived afterwards. I remember that severe abdominal pain that comes with hep c. I know I had it because my primary care doctor tested me in 2005 and showed me the results. But God!!! Healed me. I am a reall person who had hep c and March 2017 it is gone. No lie I would never lie about something this serious and know how it feels. I know the depression that comes alone with it. I know the feeling you get when you drink alcohol, and when you have a BM. Be encouraged my brothers and sisters. The one only true and living God will heal you just like he healed me. Pray and Trust. With love. vh
Hi i was infected with hepatitis long time ago whn i was very young mybe around the age of 2 or 3. I am not sure how i got the infection, wether it happed during circumcition or food that i eate that time i have no idea. The only thing i was told is that i was taken to a traditional sun doctor who perforemed a procedure of slautering a goat, taking a goat liver out and put it on my body close to where my liver situated and sleep that way with it overnight.In the morning when the goat liver becomes black in colour it was assumed that it took the disease out of my liver. Then i was instructed not to eat certain food like, liver, intestines, and any part of meat that have to do with digestion in animals.I wás also instruted not to dring coffey. Those are the only intructions i receive from the sun tradional doctor. Since then i never ate those food and have been well for more than 30 years.But i remember whn i was age 12 to 16 i used to suffer from servere headache,stomach pains and high acid in the stomach later it stopped after having moved to the city and change my diet. I was a heavy alcohol taker at age 26 to 31 then i stopped.During that timeb i was getting drunk faster and had hang over that lasted for a week before i could get sobber and normal again. I have been well for the past 8 years without any complains as a sobber person.Reccently last year when i was age 39 something happed to my liver and i have no idea what happed. What remember is that we wère at party with collegues and we ate alot food after that i dint visit the toilet that day and the following day, but the third day i developed acute diarrhea that was very painfull. I went to the doctor on the third day of being ill for two days.The doctor gave medication called anti- bacteria base on the symptopms and they worked to stop diarrhea. Ever since that day i havnt been well at all. I lost a bid of weight mybe around 5 kg and some when i am in bed i feel slight pain on my liver whn i am turning in bed.I dont feel that the food i eat is digested well into the blood. I do have the appetite for food, but there is no efective digstion going in my stomach. I eat alot of fat meat but i am not gaining weight as if i am not eating well. What advise can i get to bring liver back to normal function.
The liver is the only organ that can regenerate itself. Mine was clogged and not functioning properly making me weak and short of breath with dull headaches. . The liver saving method I employed was regular coffee enemas for about three months. The benefit to your liver is that coffee acts as a agent that pulls together all the impurities in your intestines to give you a deep cleaning to your small intestines. It's main benefit is that it stimulates the flow of bile within the liver each time for the cleaning of the liver. This process is a detoxification of the liver that will help to bring about the normal functioning of the liver . THE METHOD: 1. Take 6 tablespoons of coffee and put into coffee blender to produce 8 to 9 cups. 2. Put these cups of coffee into medium sauce pan and medium boil for 3 min. And steep for 10 min. 3. LET COOL, when put 2 cups to start with into enema bag and increase to 4 cups when you can.s 4. Lay on your right side and ingest the 2 cups, hold the 2 cups inside of you for 12 to 15 min. TWO TIMES 5. Follow this up with 2 full bags of clear water after you expel the coffee to get all coffee out of your system. 6 Do this 3 to 4 times a week for best results. 7.THIS Is A Time CONSUMING PROCESS BUT WELL WORTH IT FOR THE RESULTS AND BENEFIT YOU WILL GET THAT YOU WILL FEEL AND HELP YOU COPE WITH THIS ILLNESS. My BEST Wishes For This WAY REALLY WORKED FOR ME.
I was diagnosed by accident during a routine yearly checkup. My Prim Care doc was ALWAYS thorough so when I was tested for Hep C 3-4 x's every result was positive. Never an IV drug user. Btwn 1983 and 1998 I had several serious operations. (Days when donor blood wasn't screened as it is now). Came to realize that the "how" I contracted the virus wasn't as urgent to know as to "now what". Saw specialist and read up on any and all information regarding treatment options,what could happen if NOT treated,including side effects and cure rate. Still symptom free in 2010 decided to get treatment. Ins approved. My viral count being on low side I woul take pill and give myself a shot 1x per week. I knew from my research that the side effects from the curing meds could be worse than all my symptoms. Last minute decided not to start. Just a gut feeling telling me to wait. Next 5 and 1/2 years my patience weakened. Also,brand new meds were "out there" that had few side effects. My doc(specialist) agreed with my decision to try for approval for treatment. Still asymptotic. Was approved to start a 12 week healing regiment. The newest and latest and little to no side effects of the drug called EPCLUSA was hand delivered to my front door. Checked in with my ins co. specialty pharmacy every 2-3 weeks. I finished my last dose mid December with only 1 or 2 headaches in total. I am now free and clear of Hep C virus. My life could've been shortened had I not started with EPCLUSA. And,without treatment,cirrhosis could've began. The medicine is EXTREMLEY costly and I bet many people who need this drug aren't pushing for approval. Every HUMAN BEING IN EXISTENCE DESERVES THE RIGHT TO treatment with EPCLUSA. NO EXEMPTIONS. Lastly,I was born during times of Civil Unrests of Assasination of President. I'm considered a BABY BOOMER born btwn 1948 and 1960. Those years the donated blood wasn't screened thoroughly. Is now. If you're questioning whether to have or not have treatment then remember that if you don't,you stand a greater chance of going through extreme pain from cirrhosis my case). If you do. Well that's what I call Self Respect. Taking care of oneself enough to move towards a balanced body,mind,heart and soul. Being freed of Hep c has been one of most liberating experiences of my "BOOMING Baby" LIFE that enables me to help others shed their pessimism or doomed mind set. Every Single Big and Small,crises holds a deeper message and a "pay ATTENTION " sign on the wall. May you all be free from Pain and Suffering. May your hearts Minds Bodies and Souls merge as ONE WHOLE. All that comes together to create a life worth living
I am a Bangladeshi citizen. I was diagnosed with HEPATITIS C in 2015. I was so shocked that I could not believe that I have HCV infection. When I got my first result i was thinking that it was not my report. i retested in another hospital. Result came and i was diagnosed with HEPATITIS C. Then I checked my rna which was 1.2x 10*6 copies. Genotype 3 a.I was given peginterferon, hopetavir and ribavirin for 3 months. When results came after 6 months it was 0 viral load. I was so much happy.. After 1 year or treatment it again came 0...finally I was cured... And ofcoz very much happy...
Can anybody tell me about Epclusa side effects please? My story is that I was Diagnosed with asymptomatic Hep C in 1994, did not like odds of success for interferon treatment until combo of peg interferon and ribavirin was introduced. 80% seemed worth a go. In 2012 I completed 6 months of treatment, 4 months I spent in bed as so weak and unable to think coherently, having auditory hallucinations, the lot. After treatment I had Thyroiditis and other side effects continued. They told me 6 weeks after treatment I would be back to normal. They lied. Not only was I in the 20% non responders at 6 months post treatment t but I have been left with 5 years of pain from either the Hep C becoming symptomatic or something else they cannot yet identify but some causes have come to light such as Vit D deficiency for hip pain and waddle walking. My quality of life is hugely worse after interferon/ribavirin, I regret the treatment not because of the 6 months of side effects during treatment, but the 5 years and counting of life changing difficulties since. I am now being offer Epclusa and am wary. I read here of fatigue, headaches and possibly depression when on treatment.
When I moved to Arizona at the end of 2011, I decided to get a full check up as I had just turned 59 and I've never really had one done and thought a you know maybe I should. Imagine my shock when they told me I had hep C I had no idea. I have a history of alcoholism in my family from my grandpa and my mom and I never drink ever not even a sip. My drug history was minimal and I never shared with anybody anyway because I was selfish. But I did have a herniated disc operation and apparently it got badly infected. I was on IV antibiotics for almost a year, could not walk or move without excruciating pain, but nobody ever heard suspected hepatitis. So when that showed up I was stunned needless to say. They had a couple of options available that included interferon but my particular group only had a 40% chance of being helped. Through the waiting and the testing and time passing eventually Harvoni came to the forefront. I applied and was accepted on Medicaid and wonder of wonders, even with the cost of $1120 a pill to the tune of $102,000 they paid for every penny of it. somehow my treatment got short-circuited after only 5 weeks and I was cut off for two weeks before being reinstated but even so I was cured in less than two months. I have some Hep C induced cirrhosis scarring even though I never drank, but even now over a year later I am still showing zero levels of antibodies and officially I am now a stat. At that time they told me out of 500 patients only 4 were not cured, which is over a 99% cure rate. I was not expecting a miracle but modern science came through for me. Next, let's get rid of cancer and alzheimers. Let's get Congress to negotiate drug prices. If they can get them cheaper in other countries, including our next door neighbor Canada, then they can do it here, big Pharma has a Lobby second to none. The American people should be second to none.
Hace 33 años me ponian una inyecion para curar una enfermedad pulmonar y me estaban inyectando el virus de la Hep.C. genotipo 3B En el mes de Marzo del año 2017. me entregaron los resultados de mi carga viral despues de seis (6) meses de terminar el tratamiento con Sofosbuvir y Declatasvir. Virus Indetectable. Gracias a mi perseverancia y a un estricto regimen alimentario sin grasas, principalmete hidratos y proteinas, logre mantener mi higado, practicamente con una cirrosis compensada.
I was diagnosed in 1993. At that point I was 5 years sober, (alcohol, dope) and that is probably why I'm still alive. But who knows. In 2010 I was fortunate to receive help from a foundation that made it possible to try the Interferon/Ribavarin treatment. Lasted 10 months. Didn't work. Now there are multiple treatments available but who has that kind of money. Not me. But I did this to myself so all I need is a mirror to find the one responsible... Bottom line if you're young, PosHepC, and still getting high, getting drunk, you better find a way to get clean. You're running out of time.
2009 first told I had something wrong. I went for a procedure/ platelets very low. Upon more inspection, The HepC dragon first raises it head. Eventually had a biopsy. was so shocked I don't recall the outcome. Probably why I'm not totally up on all my research for the disease I hosted for many many moons. I was an iv drug user. I sought the cure in '09 with pegylated Interferon and Ribavirin with Procrit. This failed almost took my life. Waited 2 years then Harvoni came on the scene. I could not use the harvoni, I had previously tried TX that failed. Was offered Virkira Pak with the miserable Ribavirin. This cured me in 28 weeks. I had a ribavirin reduction because again my platelets took a big drop once again. The treatment did its job I have been hep c free since 2015!thank the Lord. My liver got beat-up pretty bad. They say I have Fibrosis. I call it cirrhosis. My blood work all is normal ALT etc although I hv leg pain ocassionally and need to watch my salt-sugar intake Any ideas, suggestions I'm open to Thanks Steve
The treatment clears your system of the Hep C virus during treatment...the real test is whether the virus returns 3-6 months later, as mine did, don't let the treatment or Dr's fool you...you're not 100% positively clear of the virus until it's no longer in your system 3-6 months after treatment ends...I'm now on my 2nd treatment, 7 years later, Viekira Pak (4 a day & Ribavirin 6 a day) for 6 months...into month 2 right now...headaches, no energy, insomnia but doable...
If you can't afford your Hep C meds, with or without insurance, call the drug manufacturer and they will reduce the price for you...I have insurance but my copay would have been $210 a month so I called the drug manufacturer and qualified for a $10 a month copay! They will help you even without any insurance...Call them!
I took the full round of Epclusa after having hep c for 25 years. My doctor said no need to do a blood test until 3 months after taking my last pill. So I really don't know if it worked or not. I have a question... Has anyone else expieranced phatigue... Queezy was... Warm eyeballs.. after treatment is over? I took my last pill Feb 1,2017.some days I just feel like crap.
I am 52 and I was diagnosed with hep c about 17 yrs ago. i am a gt1 and I am im my fifth week of vikira pak and I was wondering if any one else was on this med and how they did ? Thanks
I have been suffering from IBS, anxiety, fatigue, insomnia, vertigo for about 15 years. At times it was unbearable at work. I Went to specialists, did the recommended tests. The results were "you're fine. Nothing is wrong with you." In December, 2016 my primary found a high liver enzyme result and then I tested positive for Hep C. From Year 2000 up to and including 2008, I had taken physicals and did the required blood tests for 5 different disability insurance companies and 2 life insurance companies. I was approved for all of them and was granted the policies. Don't these companies test for Hep C? My doctor says I probably had it for a long time. How can this be that the Hep C was never caught by those insurance companies? They test for any and all irregularities and are very strict is what I'm told. I am sure my terrible symptoms were related to the Hep C. I had my blood work done and my physical done every year by my primary also. I'm still a bit shocked. Scary disease. The psychological and physical damage Hep C can do to a person is mind boggling. I still have no idea how I got it. But common sense tells me it is not only drug use, tattoos, et cetera. The virus can live outside the body on a bathroom sink for weeks and not be visible to the human eye!!!! Thank you for posting. God bless.
Im 46 years old. Genotype 3, about 5 years ago. Also hiv positive, from iv drug use. Went through 16 week treatment from October 2016 to Jan 2017. Epclusa and ribavirin. Side effects from ribavirin were awful, bad mood swings, depression, fatigue, headaches, muscle loss. I live alone . Hang in there Teresa, keep your eye on the prize, you can get through it. Anyways i test again in April to see if I'm cured . Thanks for everyone that posted . Good info here.
I was diagnosed with Hep C this past year,I went on to use HARVONI to get rid of the virus,I was to take the pill once a day for 3 months,after, the second month I WAS FREE OF THE VIRUS. I went on to finish the final month of pills and tomorrow is my final day. Along the way I had NO side effects, I am a Happy Man at 64.
14 yrs ago I did peg/intercom treatment it was working by 8 weeks . It was down by a good amount. Things me my life were getting out of my control. I tried commiting suicide. My regular MD was so upset. He says April you know what this means. Treatment is over. Four years ago I tried it again. This time they added a new pill by 12 weeks nothing. So they had me stop. As of January 2017 on going on my year mark after taking Harvoni. Remission is my result. As a result of getting the Hep c under control my blood sugar & blood pressure have also come under control. Four years ago I was over a 9.9 for my A1C. As of this month March 2017 I'm at a 6.6. I couldn't be an happier.
my wife has HAP C with GENOTYPE 3 ..she has only promlem that her body discharge heat . headache. mosty one or 2 time in a day .. aftr that she is normal ...we hv use no medicine .but take care our health by taking exercise regulrly .. food .. life style ....this is since about 13 years she is now about 53 years . . she has severe dust alergy probml also .so she use anti alergy med also .. ..any Dr. can comment and advise ///
I first found out I was sick and had 2 months to live 12 years ago. I got treatment that didn't work. Then last year I got treated was well in 8 weeks. I still felt sick a couple weeks after than my body start feeling better. But for years I was sick and thought never get well. I got sick after having my baby then they said I had yellow juanice in1990 but 15 years later I was sick.
I had 12 weeks of treatment with Sovaldi/Ribavirin. To say the least I was extremely nervous about what the side effects would be. I am happy to say I had absolutely none. I am now 2 years post treatment and I am pleased to say all blood work has shown no HCV virus. I was one of the lucky ones that my insurance finally approved coverage. The cost of HCV treatment for 12 weeks was almost $90,000 for many people this extreme cost makes it unavailable to many.
I'm sitting here wondering why I survived, why I was blessed to have been able to get Harvoni when others haven't yet. My prayer is the medicine becomes affordable and available for all. After I was diagnosed in 2015, I later realized I had been misdiagnosed for possibly several years. The muscle pain, nausea, vomiting, liver pain and fatigue were enough to feel as though I didn't stand a chance. I was wrong in my thinking. I now enjoy eating again, and having enough energy to go for short walks or grocery shopping in the evenings. The things I once took for granted are the things that I am most excited about. I looked at a picture today of myself from a year ago, when I was at my lowest point in the disease. I barely remember existing at the time and the picture looks unrecognizable. I'm now 15 pounds heavier and my hair has grown back curly, as it was when I was a young child. I never thought I'd be excited about weight gain. I'm emotional at times, but in a good way and am living life a little differently than before. Now, at age 48, I can say having Hep C has changed my outlook on life for the better, since I'm grateful for the little things that aren't so little after all. This is of course much easier to say now, but surviving Hep C does happen, and I pray it happens to you, if it hasn't already. Coming from a former depressed, complaining, and negative person, life is now truly good. Thanks for reading my story.
I found I had geocaching in 1999. Very confusing signals from my specialist over the years. From "don't worry you will be okay. You won't be having problems until you are 135" to "you are at stage 3, you need to get on harvoni immediately ". After seeking other opinions and a fibrescan, I decided to start harvoni. This is day four of 8 weeks. I feel good about this.
I am feel abdominal distension associated with Gastritis and halitosis
Hi every one i'm Marivic my story about my husband hes suffering the hipatitis C chronic since 2005 until now all treatment we done he is taking lots of medicine but the virus still .... i need ur all advice and comments .... thanks ....
I was in an abusive relationship with a very sick IV user. Of course he lied to me and I never saw any indication he was using until the day my kid flew up to live with us..Then I discovered him hiding his stuff. To make a long story short I was abused in every way and if you can't beat em sometimes you join them. I left him soon after and quit using forever. Then I learned I was sick with stage 2 Hep C .The following months were hell and I have test negative enough to be declared cured. I'm so grateful and fortunate. But I went through it alone, not even my family knows. Still. Shame is horrible. I faced the devil twice and survived twice. But for the Grace of God I should be dead. If you're being abused and only there because of the addiction...RUN AS FAST AS YOU CAN TO ANY COP ,CHURCH, EVEN A COWORKER. Please save yourself. I have a second chance and so should you. You deserve to live just because you ARE.
I was in denial for years about my Hepatitis C since I had no obvious symptoms. In Florida I was approved for Harvoni. In Tampa there is a pharmacy where a charitable group covers the $5,000+ deductible so I got the ± $100,000 medication free. Some people fly to India where drug costs approx ± $1000. All you need to bring is a copy of your positive blood test to save time waiting for test results in India. Depending on where you live the cost will be $3000-5000. Book a flight, book a tiny hotel room, pay for a doctor to write the prescription. Get you hands on Harvoni no matter how you have to do it. This drug is an utter miracle. Within 28 days I was virus free. No side effects at all. You can consume alcohol while on this medication ~ though of course it’s not recommended since most have sustained liver damage from Hepatitis C. I drank a champagne toast on New Year's Eve since I am free of this deadly disease. Go for it. Don't wait.
Hi,I am a 62 year old total non responder who has been doing every treatment out there since the mid 80s.I am genotype A1 with stage 4 cirrhosis.My medical plan will not cover me for meds anymore because of me continuing to fail on them.I am currently taking Dac,Sof and RIBA that I purchased through a doctor in Austrailia.After 3 months my viral load was down to 20 but once again I couldn't clear the virus.I was told by other non responders that Viekira Pak got them better.I looked at it online but it is unaffordable.If there are any total non responders out there that have found a cure for this terrible disease please let me know what you did.I can't deal with the side effects anymore (ithe horrible itching,nose bleeds,leg cramps etc) and have reached the point where I would sell my soul to get rid of my hep c
I had a physical in November 23 my liver enzymes were high. On 1/5/17 it was confirmed that was hep c positive.I had seen those commercials on TV about harvoni. I started taking 5 days ago. Thank God for this medicine as this disease has killed many.God bless their souls. I know this medicine is killing this off. My energy level has soared. I am hoping for the best.Please if you think you have this get treated asap. The sooner the less damage to your liver. I hope this story helps someone else.thank you jm
I have/had HVC 3a and now they say it's gone, but so is my mind. stage 4, fibroscan puts me at 3. Going for blood work soon, lost a month, thought it was Feb,,,It's ruff but can save your life,not a drop since 2008[ that's when I was told] thanks Soldiva,may be miss-spelled.
I was go for donating blood to a heart patient then i knew abuot i am C positive. Then i decide to take medicin of this deseas. So i use sovaldi and sofos tablet. know i am fine.
Contacted hep c in 1980 from sharing needles. Was very ill for about a month.Several bouts with relapse and recovery over the years. The only thing that I did right was heeded the doctors advice on alcohol and only drank beer. Presently I have 21 months clean from everything! I quit smoking 18 months ago. I didn't do any treatment and have no Viral load.I consider myself very blessed?Just For Today I will not use drugs!
I just found out a few hours ago I have hepatitis c. I'm 31. I've never used drugs, never had a blood transfusion. I've been racking my brain and driving myself crazy trying to figure out how I got it and come up with nothing. I also have stage 3 melanoma so I've already done a year of interferon treatment for that which ended up causing me to have hypothyroidism as well. I suffer from severe depression and anxiety and I'm worried about any further treatment. What options are available?
I am 46 and have hcv from the age of 19 i was extremely afraid of the treatment. On my drs advice i am now half way thru the 90day treatment program. Im hoping the virus will clear. Staying positive.
My boyfriend of 5 yrs was diagnosed with Chronic Hepatitis C in April 2015 The Drs. gave him 3 months to a yr to live. He lost his battle 8 months later December 2015. With me being his girlfriend, one of his Dr. mentioned to me that I should be tested for Hepatitis C. I never thought in my life I would be in a situation like this. Long story short, I tested positive for Hepatitis C. My life changed from that day on. I found a very good primary Dr. and he referred me to the Specialist. A big thank you to my Specialist. I was one of the few lucky ones who got the financial help with the Medication of Harvoni. I had to take it for 8 wks. I kept myself going and going, I wasn't about to let this bring me down. In February 2017 I went to my specialist. She gave me the best news ever, she said I have beat Hepatitis C!! I was cured!! I was so happy.. had tears in my eyes. I was happy that I beat it and then again when my boyfriend was saying his good byes to his family and me. He told he that he will be OK and for me to beat Hepatitis C Ass!! and I did!! I just wished they could of helped him though. So for you folks out there .. THERE IS HOPE AND CURE OUT THERE!! DON'T GIVE UP!!
I was diagnosed of hepatitis B disease since 2013. I live in abject poverty and have been treating it myself hoping that God will bring healing to my body. I also thank God for helping me to discover this website. I believe I'll discover advice and encouragement from others. God bless!!!
I found out I had Hepatitis C after donating plasma in 2015. In the late 1990's I was an IV drug user so learning I had HCV didn't really surprise me. I immediately sought treatment and for my geneotype 2b, the only treatment at the time was Solvaldi and Ribavirin for 3 months at 3 pills a day. The side effects from the Ribivirin were unforgiving and after receiving the first months worth of TX meds, I decided to wait for new treatment meds that were in the works. I didn't have liver damage and was advised waiting would be okay. In the summer of 2016, I met a gal who shared she had HCV and was doing treatment at a local Hep C clinic in my community I had never heard of. I watched her take Harvoni and it wasn't killing her or making her sick which comforted me. I made an appointment at the clinic for myself and in August 2016 I started Epclusa for 3 months at 1 pill a day with very minimal and tolerable side effects. Epclusa was for all genotypes. In November of 2016 I completed treatment and just last week I got my last labs and I am considered cured. Treatment was the best thing I have ever done for my health. I feel so great. The years of fatigue are gone and the energy I have today is crazy amazing. Epclusa saved my life.
I am a survivor. I was diagnosed in the early 1990s. I was told the survival rate was only 10% and the only treatment was interferon. I took interferon three times a week for five years. Since then I have had no after effects. I know the treatment is physically difficult but it is worth it. Hang in there anyone who wants to speak with me please feel free to email.
I found out in 2013 I had hep c,I was a mess I lived in gulf breeze Florida at the time I found out well I just cryed,I knew I was going to die .well I did all my testing there and my levels was very high I had been sick for almost yr the Dr did test after test to finally he tested 3 time for he c it came out positive every time,they were going to start a treatment but it was not the cure just would put it to rest then it could come back anytime,I prayed and cryed and pray and cry more cause in my heart learning this at 62 yrs of age was very hard to take they had told me I could be a baby boomer well I decided I had 1 daughter,4 grandson,and just born a greatgradson I wanted to come back home I had to meet this new born breathe and but I was so scared I knew nothing about hep c.well I packed up over night with Drs in Florida advising me no,but I didn't want to die without being near my family so I came back to sc and stared right away finding a Dr he did all the test I had change my eating habits and drinking less caffeine,oh sorry I have gr8 No type 1 a well my levels went down but still needed treatment well while research online in 2014 I found out they were in a battle for the cure Harvoina,I just cryed again well in 2016 it was on marked .I went to see Dr and started test over with little hope at the price of ever recivng I the cure well at 65 now I got media care coverage and my car insurance man came out and ask me to go on his coverage well sure enough it covers Harvoina co pay 3.35 dollars for every 28 day treatment I'm now on my 5th week did first blood work severely days ago now I well see Dr March 3rd when I lift Dr office in 2015 I cryed saying they just wrote my death certificate but now I have hope I well be cured God bless you all that faces this horrible hep c
I had my 50th health check around three years ago, on the 23/12/14 I simply got a phone call from my gps surgery to be told matter of factly I had hep c ( my mum had reacently dide of the illness after contacting the disease from a surgion . Luckily I was liveing in Portsmouth and soon got on a clinical drug trial , 3 years on I am still clear of hep c, when I first started treatment I noticed I had started shakeing over the course of the last 3 years the shakes have become much worse and continues I have also had real bad problems with my lungs I'm now told I have copd wich is progressing at a fernominal rate I don't no how many things are linked to the hep or the treatment
I was diagnosed n 2012. I went to 2 different Dr's, when I wouldn't do the test drugs. Both Dr told me "then why am I treating you?' I haven't been back to a Dr since 2014..Now there is a cure & I don't know where to start..I have other illness, im only 54, I FEEL SO ALONE, now ystretday, other diagnosis, stupid cancer on my face...I'm SO TIRED,& TEALLY DONT KNOW WHAT THE HECK TO DO...
I found out I got hep c back 15 years ago from getting a tattoo the guy that did it had it n passed it on to me when doing my tattoo I was freaking out know I'm did my treatment n know I'm hep c free
Discovered I had HepC in early 2000 and had a transplant later in the year. Went through many different treatment plans, the last one looked good for a year now, SVL. However I need a second transplant, plus maybe a kidney. This has been difficult and overwhelming at times. It feels like each step is getting higher and higher. But it has been worth it to be alive to experience this life with my family, friends, and neighbors.
I was diagnosed with hep c yesterday. My head is spinning. I've barely eaten today and have no desire to do anything. There is no way I can afford treatment. I don't know what to do or how to cope with this.
I found out in 2005 that I had Hep C from a blood transfusion that I got in 1971. My doctor, at that time, treated me with the Peg-Interferon "cure". 48 weeks later, countless Ribavirin pills, weekly injections of Interferon that totally wiped me out for entire weekends and, at times, made me almost wish I were dead, 30 lb. weight loss, feeling absolutely horrible for the entire 48 weeks...I wasn't cured. It pissed me off because I felt like I had been an overpriced guinea pig! My wife was really scared. She told me after the treatment was over that I had looked like a skeleton with flesh on it! I am now on a 24 week regimen of Harvoni and finishing week 12. I have some side effects, fatigue being the most significant. I'm extremely fortunate that I just don't get headaches ever. I did until I was 21, then they just stopped. I can sense pressure in my head, occasionally, and would probably have the headaches if I were still prone to them. My appetite is great, maybe better than most people who don't take any medicine! I do experience light headedness, feeling week sometimes, and a bit unbalanced occasionally. My very first lab results showed that my viral load went from 4,000,000 to zero and has remained at zero since. From what I've experienced from this treatment...it's a walk in the park! I highly recommend Harvoni for those whom are still on the fence about it's benefits and side effects. I feel totally confident that my Hep C will be completely cured at the end of my treatment.
In 2000, during a routine blood test I was told I had Hepatitis C. I panicked. My Aunt also had it and had just been put on the liver transplant list. I was told to go to the County hospital as they had a clinuc, so I went. There was no clinic and I would be the first patient. I was told I had to take shots three times a week and pills three times every day. I was told to not drink alcohol ir use drugs The first time I gave myself a shot I started feeling sick. I had felt fine until then. I was told I had to take the shots for six months. Every month I had to have a blood test. I felt sick all the time but I stuck with it. At the six month mark when I went for my appointment the doctor told me that he had good news and bad to tell me. Of course I asked what the good news was and was told that they had run the blood work three times and no Hep C could be found in my blood, I was cured. I asked what the bad news was and he six I had to take the shots for six more months. I not only lost my Aunt but my cousin and a brother all to Hep C. I did everything the doctors told me to do. Now I am proof that Hepatitis C can be cured
I've had Hep c for 15 years. I went to see a liver specialt and they told me I no longer had the virus. Could this be true?
Well I knew something was wrong with me and the Doctors kept taking tests ,well I was told I had Hep C I was so shocked I told the Doctor I never used drugs , he asked me if I had ever had a blood transfusion I told him with my 2nd child I had to have a blood transfusion in 1971 he then explained that back in those days there was no way to screen the blood, And many people were turning up with Hep C. After many phone calls for help I finally found a company that payed for all the medications I needed for the 3 month treatment,There was 3 different meds 1 was an injection I was on (Interferon) (Riboverin) (Sovaldi ) I was so sick on the meds I couldn't eat half the time,Sometimes I thought I would not make it. But I didn't want to die. So I kept taking the meds and the injections, When I was done and went in for the blood tests to see if I was cured , I was so happy and there was no liver damage. The Doctor said to make an Appointment to come back in a year for another set of blood tests to make sure I was still cured, And I am ,But if I am tested it will always show Hep C But inactive . Gilead was the company that helped me ,I was provided with Nurses that called me every week to see my progress, and just listen to what I was going through, they helped me thru the 3 months, It really was the worst time of my whole life I am 68 I was 66 when this all happened, I fully understand what goes on when your on these meds , the thoughts that go thru your head, But I made it and so can you- If you find out you have Hep C reach out for help it is out there for you.Good Luck to all of you that has had Hep C Sherri L
Through a routine physical ,my liver enzymes were highly elevated and my Dr tested for Hep C. Yes, I have had it for many years and still can't figure our how I contracted it, but I don't stress about it. Shocked, yes, as I don't fit any of the ways contracted with the exception of being a baby boomer. My husband, being in the bio tech world, knew that Gilead was soon to release a new drug for Hep C. I opted to wait and gratefully so. I started treatment in June 2015, My Dr from Kaiser was wonderful and did random testing for alcohol detection for 6 months and promised he would accept me for treatment if I passed. I'm not a heavy drinker and was somewhat put off but what a trade off. I would do it in a heartbeat! I have always felt fine and so surprised to learn I was stage 2! I started Harvoni ( LOVE YOU GILEAD ) for the 8 week program and sailed through it. I had absolutely not one side effect only elation that I was granted this gift of an expensive drug. I tested at 4 weeks with no trace and again at the end of my 8 week program, I was completely cleared of the virus. I had a 6 month test and after my year test , it finally became clear to me that I am finally free of the DAMN disease. Kaiser charged $100 for the first time fill as Harvoni is not a generic drug and they refill every 10 days. They won't give you a month supply and it can't be mailed either and the cost then was $20 for each refill. So for a total of $220 I was cured! Please don't give up hope and ask your about Harvoni. It's a life saver! Those who may not qualify, please contact Gilead directly and they can help you with the drug. Do NOT give up and accept a lousy fate of a lifelong disease. I'm rooting for all of you! LOVE U GILEAD!
i have hepatitis C and malignant tumors.hepatitis C makes tumors.
I was diagnosed with hep c in oct 2011 after being really poorly and being admitted into hospital for two weeks,I was devastated when I found out I'd never taken drugs I'd always been careful and when I finally found out how I'd caught it I was ashamed of myself I had caught it from my new partner who I'd been together with for about 6 months and he never knew he had it either. In 2012 my dr asked if I wanted to start treatment I'd thought long and hard because it was interferon and I knew the side effects would be quite bad so I told the dr I'd wait until something else came out. I would have bad days and good days about having hep c and how I let myself catch it and some days I would be depressed and this went on for some time. In 2012 I found out I was pregnant my dr told me I had small chance of passing it on to my child in the back of my head id worry myself thinking what if I do pass it onto my newborn I could never live with myself. I had Ethan in March 2013 and it took about a year with blood test and they came back negative and that awful feeling I had had just lifted. I had Reuben in Aug 2015 and his blood tests came back negative as well. I had not been to see the dr since 2013 and 2016 was a bad year I started to think I was ill and I kept going to see the dr and she told me I was suffering from anxiety and eventually I saw a really nice dr who thought it was a good idea to go back and see my hep c dr and I'm so glad I did he put me forward for the new drug harvoni it had to go to a board meeting to see if I met all the right criteria and lucky for me I was I started an 8 week course in September last year I didn't have any side effects at all after taking harvoni for 2 weeks my blood was clear of the virus and it stayed clear all way through the course. I finished the course in Nov last year and I've just had my 12 week post blood test and fingers crossed my blood is still clear, if I hadn't been to see the dr and getting into a mess with life I would never had been given the chance and I can't thank the dr enough for giving me the chance of clearing the virus and being able to not have this awful disease anymore. All I can say is there is lots of new drugs out now yes they might have a few side effects but you are being given the chance to clear this horrible disease and I think the risk of doing this is far greater than not even trying.
My husband managed his Hep C for 15 years with a regime: Lactulose syrup (to absorb toxins), naldalol (to lower blood pressure in veins) and diuretics (to control fluids buildup). Recently we retired to CO his home state. The doctors he saw in Co were not as thorough in their follow ups as we had in Austin TX Unfortuately, they prescribed a lower intake of dietary protein which was erroneous advice as a Hep C patient. His condition over a year went downhill and due to malnutrition–inflammation complex syndrome (MICS) specifically and his endema that ended up so bad (water pouring out of his legs) that his sodium dropped so low and complicated his situation beyond recovery in order to continue towards our goal to take the cure. He passed away August 1st 2016 after first being diagnosed in 1996 with Hep C. My advise: be sure to watch your intake of protein- Hep C patients need an adequate amount to help the liver from further decline. If anyone cannot afford the cure...please contact me-I have a 1 mo. 28 tabs dose un-used worth $$ that I will give you if you need Sovaldi 400mg & Ribavirim 600mg treatment. Good luck :)
Has anyone committed suicide while taking Epclusa? I have been taking it for one month and the Hep C virus is gone. I would like to complete the next 2 months but the depressive side effects of this drug is getting the better of me. I never felt so low in my life. I am considering to discontinue this medication. Does anyone know what the risks might be if I stop the medication now? Thank you.
Back in 1981 my doctor wanted to do a routine check to rule out Hep C. I was diagnosed with Phibro neuralgia and when the test results came back I was positive for Hep C. Back in 1981 not a lot was available for those who had Hep C so they did a liver biopsy and found minimal scarring then we contacted the doctor at UC Davis and he told me that the drug available to me had a 40% cure rate and he recommended for me not to do anything. So when I turn 65 my hepatologist doctor said that I qualified for a drug called Harvoni and I started on that four weeks into the treatment I was Hep C free I continued with the 12 week treatment and did a follow-up check three months later I was completely free of hepatitis C. It was a good thing that I did not do a previous treatment to get rid of the hepatitis C, being that I had virgin hepatitis C the Harvoni drug worked quickly.The last five years I have been cutting my hair very short and I decided to let it grow long an my hair came in curly and I have never had curly hair in my life has anyone else had this happen to them. It's been a year and a half now since I've been cured and gradually I am feeling better and I can do more I'm not constantly on the couch anymore I'm active at my church volunteering doing what I can do enjoying life.
I'm a former intravenous drug user. I acquired the Hepatitis C virus in 2002, shortly after I started using. I also used to drink alcohol heavily. By the time I was 23 in 2005 I was having pain on my right hand side just under my rib cage. I had an idea of what this was but was in denial. I finally went to get checked in 2006 and sure enough I had Hepatitis C. I had not shared needles since I first began using so I knew I had contracted the virus during those early years of my addiction. After finding out that I had Hepatitis C I continued to live the lifestyle I was living which was daily drug use and alcohol consumption. I was too far gone in my addiction to do anything about it on my own. After years of failed attempts at getting clean I finally checked into my very first rehabilitation program at the age of 30 years old which was in 2012. My road to recovery was not perfect and I had a setback but was finally able to to get clean and stay clean in the summer of 2013 and I have been clean since. For the first time in my life I cared enough to think about my life and about my health. I was finally able to go to the liver specialist and find out how I was doing. I was surprised to learn that I was a good candidate for treatment. I was approved for Epclusa this January 2017. I was very nervous but also excited. I never thought that I would be able to stay clean long enough to do anything for my health. My journey with this medication started January 19th. Today is my day 19 taking Epclusa. On Friday, February 10th I have my first follow up doctors appointment with the liver specialist since starting my treatment. So far I feel good. It seriously has been way better than I expected as far as side effects go, now I'm just hoping that it works and gets rid of this virus for good. The first 5 days the symptoms were more noticeable. I had headaches and felt weak and had mild aches and pains in my body almost like when one experiences the first signs of cold symptoms coming on. Now I pretty much feel completely normal. I think the only noticeable side effect now is the fatigue. I have some questions for my doctor this Friday because the pain on my side has actually gotten worse but I'm not sure if this is a side effect from the medication. I have been living with this pain for so long that I rarely even notice but since I'm taking the pill now I'm more aware of what's going on with my body. If anybody else has experienced anything similar I would appreciate learning about your particular story. I would also gladly answer any questions if anybody has any questions for me. I will also keep you posted in my results in case my story can help anyone else. Blessings!
I was diagnosed in 2004 , was going to start treatment with the interferon, kept in my refrigerator for months, after hearing all the horror stories, I decided I would take a chance and wait on something better, then came the harmoni trials and it sounded really good, after doing blood work they decided I didn't qualify I wasn't a perfect hep c 1a, there was a mutation. So I didn't make the list. Finally it's on the market so went to my dr. And was really surprised, best case scienero harvoni 1 pill daily for 8 weeks should be starting on or about February 16. Any good advise out there? Side effects? Would appreciate all information I can get. God bless all of you fighting this nasty disease.
I need help deciding (along with my mother and sisters) if Harvoni should be taken by my mother. If your story is similar to hers and have insight we would appreciate your help. My mother is 78 y.o., 22 years post liver transplant, failed at earlier treatment 13 years ago, stage 4 cirrhosis, original autoimmune disease is still present and also causing cirrhosis, atrial fibrillation, shortness of breath upon walking, 250 pounds, inactive, poor nutrition, takes many medications, … She is already tired, has headaches, insomnia, acid reflux...so I believe she will end up in bed for 6 months and not survive this treatment. Thoughts please…thank you.
I was diagnosed with hep C 2009. Refused interferon treatment, finally solvadi was approved. After 8 wks. I was cured. Even though no detection was discovered after 10 days.So many stories I've read and I think that someone should stop the foolishness, that are killing us baby boomers who don't / didn't have to die from Hepatoma Carcinoma
Diagnosed last June with hep C, I thought they were mistaken as I had so symptoms. I had known that I had it in the past, but thought it was gone. Being sent to a liver specialist who then put me on Harvoni for 8 weeks was what worked for me. Taking no prescription medication for anything for a long time, I then suffered severe side effects. Knowing I'd be healed from it, I began journaling my writings so that I could more fully share my story with those who might benefit from it. It is called "Countdown to Victory: My Journey of Healing from Hepatitis C" and has been published on Amazon. I had my 12 week post Harvoni blood test a few weeks ago and it shows, as expected, to be totally gone. When I started the medication, my VL (viral load) was over a million and now it's zero. So glad to have found a medication that really works and is nearly 100% effective for many people.
4 weeks away from starting new treatment harvnio new treatment will in change my illness be ready
Hi everyone out there...i am a 54 year-old woman and have lived with hep c for 30 years. I will be taking Harvoni soon...March or May..i am excited but, also scared...anyway I hope that whoever reads this has a great day...LOVE to all
Surviving Hepatitis C together – A tale to remember About 8 years ago, we discovered that my wife “Kim” had Hep C. We kept going to the specialist for a while and following up every 6 months just in hope that it eradicates the virus from my wife's system. There was no miracle cure and our only chance was to try Interferon, the side effects were unbelievable and almost indescribable. I was giving her weekly shots into her abdomen in hopes of a 40 to 50% cure. We got lucky and the Interferon worked. Last year when I found out about Harvoni I thought what a God Send. It truly is a miracle drug and will save thousands of lives. Then we learned of the extremely excessive cost, barring the majority of people from ever having the opportunity for a final cure. Countering the most expensive drug in the USA, As of now, generic verisons of medicines for HCV, are presently accessible in India. Also, the cost of these generic drugs is generally $900 — $1,250 for the prescribed eight-four day regimen, when compared with $84,000 – $94,500 for the branded medicines in the U.S. But, All is not lost, because of affordable healthcare abroad and their standards of practice. You can take your family with you, and truly rehabilitate in a paradise while your loved ones are there for support, as well as having a vacation of a lifetime. The beauty of this is that the total cost is about 1/3 of the costs in the USA and your family is Blissful Not Burdened. It was through Greg Jefferys that we first learned of the Harvoni option in India. Thanks to Greg we were determined to travel and obtain the generic Harvoni drug in India. The people in India were so courteous and friendly speaking English while helping us in anyway they could. But, traffic in Mumbai is something to behold, that is why we had to schedule transportation to this amazing city of 22 million people. There are so many historical sites to visit and the food is fabulous. While I thank God I am cured I am still hoping for the best for everyone else with Hep C. Contact No: +1-928-328-8909 Email ID:- webmaster@surcation.com Know more about the package:- http//medicaltourism.surcation.com/hepctravel.html/ Twitter:- https//twitter.com/surcation Facebook:- https://www.facebook.com/Surcation/ Linkedin:- https://www.linkedin.com/company/destination-surcation-llc Thank you.
Looking for advice . I think I contracted hep C about 6 or 7 months ago. wondering my best route .sad to see that the new medications arent working . I'm in general good health .six foot. 150 pounds. 21 year old
I during my university days heard a person suffering from blood problem and being human i went to helf her, Before donating of Blood the use to undergo with several test, Just i were waiting for half an hour. the physician told me that i have been infacted with hepatitis-B virus i was shocked also not believing the pysician and re-tested again but thebresult was same. so i have send my Bloodbreport to mumbai, the report was returned- 1.Viral load-16 crore. 2. patient value'1660. After one year of medication the result was totally changed i.e- 1viral load-500/ only 2.patient value 1520. Now still i am taking medicine but not yet retested being belonging from a poor family couldnot afford the test charges which is 10000/ ten thousand. Only the god is the creator is everything and will help me in future.. Thanks.
7 years ago my friend was divorced from his wife, who had Hepatitis C. He says that he had checked after the divorce to see if he has Hepatitis C, too, and the doctor told him that he does not have it. I just read online that: "For most people, hep C will become a chronic infection, which means that the virus stays in the body for many years." Even if he did not have sexual contact with his wife after the divorce, could it be true that he is still carrying the virus inside himself, and the next person who he marries, may be infected, too. He is in restaurant business in Europe and he says that during these last 7 years he had 2 sex partners, but did not say anything about them being infected or not. Please explain if it is safe to have sexual contact with him or not. Thank you.
First of all I would like to thank God and his son for bringing me this far. For give but I think it's a damm shame, when we as humans put that mighty dollar before the welfare of man, the med's that cure us. Is do damm high all we can do is pray, that some one out there think about us, instead of their damm pockets.That's my story of survival.
Just completed my 4th week of harvoni. Feeling good, only real side effect is fatigue, which at times can become overwhelming, but unfortunately I have no option of a break from my life and responsibilities. I'm a stay at home dad to a 6 year old with autism, so my days are quite busy and stressful. It's not easy being exhausted all day and night with my son ( he has trouble going, and staying asleep), but the way I look at it is I was going to be worn out either way, from treatment, or the hep c itself. One thing that really helps for me, and I know this is such a cliche, but I go to the gym and lift weights twice a week. Exercise truly does give me back so much energy I would not have had if I just sat around, and it really elevates my mood as well. For anyone that deals with depression from hep c, the treatment, or just in general, I beg you to give an exercise routine a try. And something about strength training... that good energized feeling will stay with you all day. I even still smoke and I go. It is making a world of difference with my hep c and treatment. Maybe it will help you too...
I was diagnosed with HCV in March 2000. I was devastated. I developed this taste in my mouth that I could not get rid of, tired all the time, just felt off. I have always tried to be in tune to my body. I would go to the doctor she would do labs and nothing. One day I went to the doctor and she wasn't in. I saw another doctor and he ordered the lab test for HCV and it was positive. If I had not been persistent I might have never been diagnosed. Instant state of depression. I had a liver biopsy and an ultrasound. They showed no liver damage. If the dx had not been present on the orders HCV would not have been suggested. That was a positive. Treatment was sought immediately. Interferon and Ribavirin was prescribed. Oh, I was so sick. After a year labs showed no virus. After 6 weeks I was labeled non responsive. The treatment had failed. Given the option of another round of treatment, I declined. I was so depressed. I never sought any counseling. If I had it to do all over, group counseling would have be an option. I dealt with the situation on my own. Did a lot of praying, researched HCV for answers, and alternative treatment options. Sharing my dx with only 5 people. Never discussed the dx. Having a HCV dx suggest a negative connotation. Things are changing. Find a trusted individual you can discuss your feeling and concerns with. Seeking professional help is always an option. I took my last dose of Harvoni December 12, 2016. After 16 years there is no trace of HCV in my blood. Thank God for the miracle of modern medicine. If you are taking Harvoni and are experiencing the side effects associated with the medicine, hang in there. I feel like I have a new lease on life at age 67. I am open to any questions.
This is in response to Michelle L. On January 17, 2017. This is exactlly what happened to me and my husband. We lost everything, family turned their backs on us. I felt helpless. He needs to be on LACTULOSE and RIFAXIMINE. It's sounds like encephalopathy. Talk to your husband's G.I doctor for this. I don't know what your beliefs are, but talking to HIM (you know GOD) changed our lives forever. He got cured in 2014 and life has never been better ( especially with his "loving family" is gone ;-) ) By the way, I, myself am on DIALYSIS , thank GOD my husband came back to me to help me deal with my own medical problem. DO NOT STOP FIGHTING!
This is just sort of a short synopsis of of last 14 or 15 years! Of those years, 13 and a half were the suffering years! I don't have to tell anyone what they already know! Yes, tried Interferon and Riboverin! Lost 3 years of my life from side effects! But this is not new to you brave folks! A year and a half ago at Stage 3, with essentially one to go! My team of specialist fought to get me Olysio and Sovaldi! My insurance wanted nothing to do with me, and you the old timers know the story about the two drugs being owned by 2 separate pharmaceutical companies with nobody budging! Besides, I was about $180.000 short! This was pre-Harvoni days! The team came through ( Heptologist), I was given the medication, and only 3 weeks later began to feel human! Now for the epiphany! Today, two years later, there is nothing I won't try! Except for maybe getting my ex-wife back, after leaving me when I needed a bit of support! Currently I'm attempting to to push my Pet Sitting/ Dog/ Emotional Rehab. Business on its feet, so I might retire before I'm 90 years old! I do love it! I could use some advertising/ website help for maybe a trade! But wait, the epiphany!! Did I mention a life time of A.D.H.D.? It almost adds humor to the story! Before I began to feel the ravages of a failing liver, I was quite active and a bit of a loose cannon in the chances I was taking in the Glass Business which entailed lots of blood and inherent danger! Here it is: today while balancing on an extension ladder to pick the very top oranges from my tree! ( We have roof rats out here in Phoenix if the citrus aren't picked)! I had an epiphany, while the ladder was skidding a bit out of control and me jumping over to a more stable branch! Not bad for 65 year old! I REALIZED RIGHT THERE AND THEN, THAT I WOULD MUCH RATHER DIE, FALLING OFF THAT LADDER, KNOWING THAT I ACCOMPLISHED SOMETHING (THAT I MIGHT HAVE DONE PRE-HEP C DAYS), THEN DIE A SLOW DEATH WITH HEP C! I HAD BECOME LESS THAN A PERSON, and the terror of waking up every day with the feeling of having the flu, for me, is worse than death! Bless you all! Keep fighting! Force the government to step in and help! Those receiving Hep C while serving in the Military need a lot of help from your politicians and the rest of the country! Maybe the President wishes to step up on this one! Don't depend on it! Keep fighting, the cure is remarkable! www.allanspetsolutions.com Need some help if possible! Not a computer wizz, and lost many years being sick! BY THE WAY, AFTER LESS THAN TWO YEARS, I AM NOW AT STAGE 1. LIFE LOOKS DOABLE!
I didn't even know I had it. I had moved to another state and wanted a complete physical check-up. Test results came back and showed I had it, but I'm on Medicaid and didn't expect that they would cover the medication as it was $1,120 a pill everyday for 90 days. They ok'd Harvoni. The doctors screwed up the prescription and accidentally stopped my treatment after 8 weeks, and after 10 days of no drugs, got it reinstated. I still showed up with 0 antibodies present after several weeks, but finished the 12-week course.
My story began as an ironic twist of fate. It began by reading a medical magazine in the early 1980's. There was an article which contained Elisa C . I read the article because my name is also Elisa C. When I went for my physical I asked the physician to test me for HCV because of this article I just read about Elisa C test. Low and behold the test was positive for HCV. Other than being chronically tired which I attributed to my working long hours , I was fine. I went to a gastro doc in NY and she insisted on a liver biopsy. After the biopsy the doc cut her hands on some broken glass which contained - my blood. The doctor was shocked in terror and began screaming I have to go see the Guru ? Who the heck is the Guru? When she calmed down a bit I asked her who was the Guru. She said Dr. Jacobsen in NYC. Immediately I made an appointment with the Guru in NYC. Nice man, very helpful. He put me on whatever drugs they had back then. 5% cure rate back then. I was not cured. The Guru told me not to give up hope, something will come along. Ten yrs later I was referred to Dr. Lake Bakar. Also a very nice man. He was a VA reseacher and head of GI in Northports VA. He also had a private practice . He administered the next latest greatest HCV drug 50% chance of i t working. It was long difficult regimen. The drugs turned me into a raving lunatic. Five Yrs ago I went to see Dr. David Purow of the Digestive Health Ctr. Northport NY. He did his homework. Pulled my records from the past and told me to hold off a while. The drugs have some problems. A Yr later Dr Purow called me and asked me if I was willing to try the Abbie V drug. I did, There was no mental issues from the drug and within weeks I was cured to an undetectable viral level. The bottom line of my story is find good physicians you can trust and let them drive the bus. After 30 yrs of HCV. I did not believe I would live long enough to see a cure. I credit the researchers and most important Dr. David Purow. I have been cured two yrs now. Two insanely incredible college age children, a wonderful husband and I am alive to see others get cured as well. What a country, what a great time. I just hope Trump doesnt screw it up. If you have not been cured, stay optimistic and keep the faith. I wish you well one and all.
I was diagnosed with hep c in 2006. Went though the interferon/ribavirin 48 week treatment injecting interferon once a week in stomach and thigh and took 9 ribavirin pills a day. With horrible side affect destructive rage depression insomnia etc. After 48 weeks the Veterans Hospital said I was cured. Now 11 years later after a physical I am still diagnosed with hep c and swear I did nothing to reinfect myself. After 11/12 years I'm freaked.
My husband had an affair with someone one night and has now been recently diagnosed with hep C. I'm not sure if I have it yet, but I'm currently pregnant with our second child. And I don't know weather to be mad sad or scared. What's the point? He was never completely faithful to me from the beginning. Who knows how long he's even had hep C for. All I do know is that I need to make sure my babies don't have it and that I live long enough to see them make it in life then I'll be ok. Perhaps it's my fault for staying with him. But I actually do love him and I couldn't imagine my life with anyone else. I've never strayed or cheated on him I never would. Cheating is stupid! Now I have to get tested but I already know there's a very likely chance I have it. I've been married to him for 6 years. I've used his toothbrush when I couldn't find mine. I've shaved my legs with his razors. Unprotected sex of course because in my delusional mind I thought we were in a committed monogamous relationship. I've never used drugs or needles other than from a DR. When they need to take my blood. I'm pissed off yes. But it doesn't do me any good being angry or sad. I just have to figure out what to do with this and how I'm going to keep my babies safe. Seeing them happy will be the only thing that matters now. My life is over it's all about them now.
To Dennis Cyr Go see a doctor (gastroentologist). I'm sure there is something for hep c genotype 3. It might cost $100,00 for a visit but it could be the best hundred you ever spent. There are programs out there for people like us so don't give up. Good luck !
My partner if 23years has been finished with his treatment now for over 6 months. He had bouts of depression that has not gone away l. I am at my wits end, he has now been having hallucinations, severe depression, anxiety he us only 56 years old, and I have tried to tell the people involved about his first signs of mental issues. Now I am taking him again, to the outpatients debt, to try and get him help I am so tired of no one actually helping just sending a clearly I'll man home to suffer with no treatment, even though he has has spoken to, I have spoken to, and our daughter has spoken to, with him present and pointed out he is in no fit state to declare himself competent, but still they send him away I'll take him this time again to the hospital and I don't know what to do if they don't help him this time, I feel helpless.! ? Im writing this as I wait for a taxi to come get us,I hope they do something this time.
I was reading many of other stories and am promted to share mine. I was diagnosed in 2012 with Hep C and now have full blown cirrhosis. Doctors figure I have had it for 20 years or more for the damage it has done. I am presently on the waiting list for a transplant ,however my health is deterioating more and more. I go in once a week for paracentisis which is where they drain fluid from the stomach and its called ascities. It has been my biggest challenge now for the past 2 years and because of it I have now a hernia in my stomach as well. I recently started the treatment for Hep C and am in my 12th week now. I take Sovaldi and Deklenza once a day for a maximun of 24 weeks, and so far have had no side effects that bother me other than a headache from time to time. I am grateful to be on this as the cost is so outrageous that I wouldnt be able to afford it, but my doctor sent a letter in to a place of compassion and they approved me for it so I give a huge thanks to them and to my doctor for giving this to me.. I do not know yet if it is successful but have faith that it will work. I dont consider myself old at 50 and yet some days I feel like 90, I am always very fatigued and have next to no body mass left due to liver functioning poorly and my life simply revolves around doctor appts, blood work, test after test, my varicies have ruptured twice and had to be repaired and the list goes on.. My biggest wonder is why I never knew I had it for so many years and have had 5 children in that time as well. My daughter who is just waiting to turn 18 has offered the greatest gift ever and that is to be a live donor for me and give me a portion of her liver and she would grow back a new piece in a year or less. You cant imagine what that feels like as a parent cause thats my baby and no one wants anything to happen to their own child so its a tough call for me at the moment. It could mean having transplant alot sooner and while I am still reasonably able to handle the surgery or I can sit on the list for another year or more too while my health diminishes more and maybe then it will be too late. Nevertheless its important to have a good support system, and follow your doctors care closely and maintain a healthier lifestyle. Life is precious and can be gone in a blink but goodluck to everyone who is a survivor suffering with the virus I hope we can all benefit from hearing each others experiences and help others who are just finding out. Good luck and God bless you all.
Hello, my name is Juanita and I used to have Hep_c. I was a girl who used to like to party and share needles and drink. I thought I was careful about a lot of things specially sharing needle at the time of my drug use. I always had check ups, but never for Hep- c. I really don't know when I contracted hep but a couple of years ago, me and the hubby started to donate blood. That's when I found out I had the virus, I was treated immediately. The medication was a strong one. The meds for hep-c were strong and makes you feel weak and nauseated. I wouldn't wish that on my worst enemy. I thought it would never end, but with a loving God, husband, and family and friends I made it . I may have been cured but Low and behold, that's when I found out it had caused scarring of my liver. You see I gave up the drugs 8 and 1/2 years ago and the hard liquor about the same time. I still drank alcohol , though. I thought that my liver would regenerate it's self and I would be fine. Well, that was not the case. I now have to have a liver transplant. I am scared. There's all kind of things that can wrong with a transplant and if it is not severe , you are put on a list. Now I have to sit here and wait for a liver{ if they find one that matches my blood type and other things}, that may never come. So my word to you is Keep the faith my friends and keep sharing the word about Hep- c. Don't be embarrassed to let people know about the virus , it may just save a persons life and keep them from going what I and many others are facing now.
I would like to know if there's anything out there for genotype 3 if so I would appreciate it if somebody could let me know it's very important it's my life on the line
I am 65 years old. I probably became infected with Hep C sometime between 1969 - 1975. In 2012 I had a viral load of 19m. I had a biopsy, no liver damage. Just before treatment the viral load was 4.8m. I began Harvoni treatment 12 weeks ago. Tomorrow I take my last pill. After 28 days it was undetectable. I go Friday for the end of treatment blood test. I had very little side effects and went about life normally during the treatment. I have drank alcohol and smoked pot during the past 30 days or so. I'll find out next week how it did. Oh, I have had 4 close friends from high school that have died from the disease.
I was told in 1990 I have hep c .so they tested again yes I have it .I get tested every 3 months threw my doctor to monitor it I think the baddest reading was 66 infected out of 100 viral load. well fast forward I haven't done anything special never been on meds for hep c either or my other terminal illness. i have a very very strong immune system I was told I always have. now its jan 10 2017 2 weeks ago I was shown I have totally cured myself of hep c there is no traces of it now and I didn't do anything never took nothing I eat a lot of fruit and vegetables and never greasy oily foods it gives me the runs. well I have done research on this there is 15 percent of population that can cure themselves of bad life threatening diseases.
I was diagnosed with hep c 12 years ago by my doctor during my recommended full physical at the age of 40. I was very taken aback by this and tried to seek treatment but I didn't have the coverage for it. I had years to research all the cures and was taken by suprise all of the side affects. New medications have come to be approved by the FDA in recent years with less side affects. I have been able to get coverage through employment and the timing couldn't have been better. I am now on the newest one epclusa and the side effects are next to nothing for me and as is for many. My viral load has went to not detected after 4 weeks and liver enzymes are at a happy 74 with normal liver function. It's recommended to finish th full 12 weeks and I'm happy to do so to be considered CURED. There is hope after all.
Hi I believe I caught hepatitis c in 85. I found out in 1990 to 95. In 96 I went to sir Charles they told me that my liver blood tests were all good. They said it wasn't a high priority. That's because my blood test for liver was good. So that door was closed. A few months later I had appointment at royal Perth. I saw Dr Wendy Cheng she told me that my blood tests were whith in the parameters of the liver test. Dr Cheng said I could have the interferon and riboviran or wait for the new meds that were in the pipeline. I decided to wait for the new drugs and continued to have my liver blood tests. 2012 I wasn't feeling well I had an ultrasound which should lumps in liver growths on both kidneys and left hand adrenaline gland my portal artery had stretched by 10+millimeters plus other artery stretched as well. I asked the dr at what point do these arteries burst Dr j.holt of nolamara medical office. Said it depends on the elasticity of the artery. Well I would never of guessed that. Ha ha well comin bloody sense. So I said to dr j.Holt should I be mowing the lawn and cleaning up leAves Dr j.holt said yeah no problem. If that portal artery had burst i wouldn't be around to complain that is for sure. They call themselves Dr's what a joke. The preasure inportal artery is about 45lbs per square inch or in killapascials I wouldn't know. I still hadn't started chemo finally after going into the hospital a couple of times they finally started my treatment which was riboviran and interferon the injection I did once a week it was i believe the injection was the most you could dial up on syringe and 7 200MG tablets. I had my first injection at the hospital with in twenty minutes my legs were tingling and forarms then 5 hours later I took 4 of the 200mg tablets knocked me around a bit. They had to reduce the tablets it was effecting my breathing. Once a month I would get my month supply which consists of 4 injections and 196 200mg tablets. I thought the nurses would keep a close eye on the expensive meds. I ended up with about 190 capsules left over i gave them to my chemist which get moved on to other countries. Then when I went back for my monthly meds I told the nurse not to give me another 196 capsules which they didn't I had enough. If I hadn't keept an eye on the capsules they would have given me another box of capsules. Which cost 2 and a half grand. Not good and I'm only one person. So how much more money was just wasted. I then saw a nurse that couldn't read a blood test. I complained my blood test results disappeared. Then on my second last appointment i was to have the camera put down my throat again. When I went for my last appointment the dr told me they weren't going to do it. Earlier the nurse i complained about was rubbing her self up and down the Dr's leg in the side of the corridor. She looked at me and smiled. Nurses aren't DR'S .before you start treatment you have to see a psychiatrist. Before and after the phyc I was to see had to council her appointment due to a mess up. Be on your toes. In the end I refused to have anything to do with nurses. I still have about 6 growths or more now I have a blood test scanning for cancer in tumours. The big problem is some Dr's do a basic blood liver test. It's not good enough you need to have a more complex blood test. I allso have a blood abnormality.
This is for people who have been told you can sexually transmit HepC 1A. I was married for 12 years before anyone including me knew. I found out when the red cross started testing blood donations. At that time there was no known treatment wife wigged out and everyone kids and all got tested. I had been positive for the whole 12 years and everyone was negative. But now my wife wants me to wear a condom no more oral sex for me and put your shaving kit away from everybody. I don't think you can get it from sex,it is a blood born pathogen. It has to get in your blood. The treatment caused my divorce and also caused me to end up in jail due to inability to control anger(nothing major and no charges) You don't get angry for no reason but when you do as in my case you over react. It also makes you suicidal. Marijuana helped me cope. The treatment ruined my life so I don't know what to say to people. Get in a group of people who are receiving treatment. But be aware that you will be very easily angered and keep that in your mind always. If you own guns lock them up and give a friend the key. I am or was non detectable. I could only take about 10 weeks of ribavirin and interferon and I had to stop treatment. It worked but I still have the side effects from Ribavirin although not as bad. At work all cuts and injury's are treated as contaminated so they will automatically take precautions for blood born pathogens. I would not tell anybody unless they were administering first aid without proper protection and then I would say you need to follow procedure.My advice is to keep it among the people in your support group.Get in one as soon as you are diagnosed. That and MJ helped me cope
Diagnosed with HepC many years ago. Not exactly sure when, but most of the people I socialized with in the 90''s test positive. Some of them went thru interferon treatment, but I elected to pass on that due to side effects. Heard about Harvoni about 5 years ago. Tried to get into clinical trials in California. Then I moved to Texas and all the clinical trials in that state were closed. Moved to Florida and again applied for Harvoni. Was approved in 24 hours. I had no symptoms other than slightly elevated liver levels. I had a 7.6 million viral load. I was not tested for cirrhosis because of lack of funds. I had not used illegal drugs for decades. I drink alcohol rarely. I changed none of my habits during treatment. 4 weeks into treatment, my blood tests came back with Hep C "undetected". I am taking the final month of Harvoni as recommended to make sure HepC will not come back. I had zero side effects from Harvoni. Took the pill about an hour before I wanted to go to sleep. Felt nothing at all. One evening I fell asleep before taking the pill. Took the pill immediately upon awakening in the AM. Went thru the day and felt absolutely no effect from the medication. Grateful to be cured. The sooner the price on this miracle drug comes down to a realistic price the better. As we've all heard, this drug works.
I was treated 6 months in 2010 to 2011..pegulated interferone and ribavirin..cleared for a year, came back treated with the first pill solivda not spelled correctly...and ribavirin..3 months..never cleared...now viral load over 10 million, diagnosed with hypothyroidism...so dont know what's next.
Please I need urgent advice, I was talking harvoni plus as treatment for hepatitis C genotype 1A, after 8 days I have stomach pain and after doing endscopy and bandage in the upper part of medicine doctor recommend to stop medicine and wait epclusa. I started epclusa medicine from December 1st, now I finish 30 tablet, but because I am ordering the epclusa online and due to Christmas holidays the medicine will late around 10 days. my question now can I take harvoni medicine for this 10 days until reciving epclusa or I should wait epclusa without taking other medicine until recived and should I start over again or continue the other 2 months to complete 3 months treatment. Thanks in advance
Hello I was reading over some of your personal survival hep.c story and experience regarding the treatment. First of all I would like to say well done for all you getting through it as I know it wasn't easy.So I thought I would like to share my experience to. Ive been a hep.c sufferer for the past ten years. But before I share my experience I would like to assure those who have not been offered the treatment as yet. That all is not with out hope. Having this virus as many positive benefits. Because of having the virus it has forced me to take Responsibility for my health and my diet. Ive never felt more healthy for doing so. So Rather than let this take control me I decide to face my fears and kicked them to the curb and face them. So I decided to do some research on what foods I should avoid and what food is good for the liver. Also having a good friend to support you helps not forgetting exercise work out that is good for the mind that helps with the depression that is part of the side effects to. But before doing so talk it through with your hep.c nurse or doctor. They will give you accurate advice as what works for others may not work for you (cautions) AVOID ALCOHOL BE CAREFUlL WITH DIETARY SUPPLEMENTS. So let me start by telling you about my survival story with the treatment. Ive been attending kings college hospital ever since I was diagnosed and been through most the treatments that have been available interferon and Ribavirin. The side effects were not a pleasant experience. Because I was desperate I decided to push through each time I got my blood checked they were not detecting the virus so I was hopeful. But sadly when I stopped the treatment it was hiding that put me into a very bad depression. I then started to pray to my heavenly father Jehovah to help me endure because I know he will give me the power and the strength beyond what is normal help me face the suffering I was experiencing. And because we are not born with that power to endure we have to pray for it. As always he got me through it. So with that help rather than let this control me I decide to take action and keep my positive attitude.Then I was offered a seconded chance to go back on interferon along with a new treatment again. Cant remember the name of it. But sadly that was worse than the first and I lasted only 2 weeks on it but I was still hopeful my heavenly father would find a way out for me and he did. I was offered to go on the new 2016 treatment of witch was happy to except because of the last two treatment failed to work they put me on a 6 months course of Ribavirin Exviera viekrax. Just to be on the the safe side that the treatment works. I didn't want to suffer anymore with this deadly virus even though I knew there would be the unpleasant side effects. So I was happy to except but to my surprise there were only a few all I suffered really was fatigue and restlessness forgetfulness. Any one who has been through a withdrawal this is a walk in the park. But like I said we are all different you may suffer more than I did. Once again I must give some (Caution) because hep.c affects the brain you may suffer with brain fog as in (Forgetfulness) and the treatment can add to that if you do forget the treatment may not work. So to be on the safe side I set my alarm clock so I could take it every day at the same time. Now I have completed my 6 month course of treatment that ended on 23/12/2016 its been a long six months but I know I still need to recover from the effects of the treatment. I'm not complaining because I have been blessed to be given the chance to have a brand new start to 2017 I give thank to my heavenly father Jehovah.also not forgetting the doctors at kings hosipital who were very supportive and kind and always had a listening ear. So thats my personal Experience and do hope this in some way helps those who are a bit Apprehensive about going on to the treatment. So all the best for 2017 for those who have been completed the treatment and for those who have yet to still. The end
HARVONI..... ( ya I'm ready to be cured.)....I've had Hepititis C since 1986. I remember the day cause I got really sick, mind blowing sick, violently throwing up for like 8-12 hours, turned all yellow, my eyes and all my skin, I thought I was going to die...couldn't even get to the phone to call for help, ... On March 24/2016... I seen a Doctor, A liver specialist, that says to me " Well Richard you have Hep C.....Genotype 1 A..requires treatment for 8 weeks , that's one pill a day for two months and you're cured, by the looks of things, there's no damage. or scarring to your liver...No Cirrhosis ...and it still functions normally, this is good, but with a Fibroscore of 2.7 it is not medically necessary to cure you at this time, you'll have to wait untill it's at least 7.5 come back next year, or if you want ? I can write you a prescription...Sure no problem, you can pick them up anytime you want'... which isn't true because of the high cost of the treatment. Since that day in 1986 I have rarely used alcohol, and have completely forgotten about till now.
I am 30 years old I was told I have hep c from I was like around 21. I am mother of five children. But I am scared I never went to get help for my hep c. I still have it got it from a home made tatoo that a family that has it. I have a lot of qustions and scared of my life. I would like help but I have a learning problem and Im not good with understanding things. I have a boyfriend scared I can give to him dont know if I should eat differnt or do my life differnt. Can I die or is there a chance Im scared i dont know what to do ....I do not work I am on ssi and cant pay a doctor.
Dear Hep c survivors, newbies & oldtimers. My story started in 1971 had a blood transfusion I was 18 yrs old. In 1987/89 they had a test for Hep C. Physicians stated looks like I had it alonnnng time. By that time it had already been about 16-18 yrs with it!! In 2015 a physician in Az heard that I was a long Survivor with Hep c. Told me that Gilead that produce Harvoni for my Genotype 1b would like to Give me a $95,000 price tag to cure me.! I took a 12 wk course and in July 2015 after 44yrs with Disease I am cured, period, but there is a down side it did a number on me. I was diagnosed with f4 Cirhosis oh yea by the way in 1987 the physicians told me to stop drinking any alcohol or I would of Died yrs ago. So I Did, period. My Health is interesting for a 64yr old. I would say to All like I have seen get your Cure Now. Be Strong and know my Survival is the Truth, thru these years I have gotten real close to God. Oh Yea, there was nothing to Holdon to. Until Cure.
Cured of hep c in 2014. I am still extremely fatigued all of the time with constant pain in my legs, some days are better than others. I just don't understand why I don't feel better yet. Has anyone else experienced the same?
I was definitely not expecting the news when I received the call from the doctors office 1 year and a half ago. I tested positive for Hep C and was sent to a specialist. My anxiety levels were through the roof. I could not have figured out how I could have contracted Hep C . After going to the GI dr and obtaining several more labs I was told I was testing positive for Hep C but the virus was no where to be found. I was told not to share razor blade, toothbrushes, etc with anyone. I kept going to the specialist for a while and following up every 6 months. I wanted to start treatment to eradicate the virus I did not want to have Hep C in my system. In Dec of 2016, I had forgotten about my appt and actually did not want to go cause I was going to hear the same news however this time my results came back and the physician informed me I had been cured. While I was testing positive for Hep C I was told it was due to the antibodies in my system. Hep C was once in my body but it was gone. The physician stated there is a small percent of the population can beat the virus without treatment. While I thank God I am cured I am still hoping for the best for everyone else with Hep C.
I am 69 years old and have had Hep C for 10 years that I am aware of. I do not know how I contracted the virus but I have felt like I was living with a time bomb just waiting to go off. I did not want to take any previous treatment because of the harsh side effects so after my last blood test when my viral load went over 1,000,000 I decided now was the time to try the Harvoni. I am in my 2nd week of treatment and so very thankful that I have not experienced any major problems with this drug. Lucky for me my insurance covered all but $5.00. What a relief. I go for a blood test at 4 weeks and I am only on an 8 week regimen. So grateful to be given a chance to eradicate this from my blood. I am very lucky that my abdomen scan and fiber scan detected no cirrhosis. For those who are hesistant about taking this drug, don't be. So thankful to the researchers for allowing me to look forward to a healthy life. SO GRATEFUL
Diagnosed in 91 with highly elevated enzymes found following a gyn appt. Thank God for that! Trial in 93-94 with Interferon (pre pen) left me with a very high viral load, but it did lower the enzymes quite a bit. Tried Infergen in 95 with no success. Then Pegasus trial with pegalated interferon and ribaviron in 2001. After months of treatment the virus became undetectable. Of course it returned a month later! I cleaned up my life and quit drinking.I became the poster child for hep c and educated everyone who would listen. I saw many people who were much sicker than I was. I just kept thinking that there was some good coming out of it all. I became patient and waited 14 years and Harvoni entered my life in 2014! I'm cured, but need to make sure my physician follows up for any signs of liver issues at each visit. What a long strange trip it's been! Please don't give up!
Hello, My story starts with finding out I had Hep C after the birth of my child in 1997, I was 32 years old. I had decided to donate blood at work in 1998. A few weeks later, I received a letter from Red Cross stating that I had HEP C. I was devasted, I had just bought a house & had a four month old. Looking back, I probably have had Hep C since I was a teenager and didn't know it. I never sought treatment in 1998, as I was a single Mom now with child to raise. I had my first liver biopsy in 2001 and my levels were extremely high, but I still didn't take it as serious as I should have as one of the Dr.'s told me I could die of many other things before this and could live to a ripe old age? Also from what I had read, any meds for HEP C at the time made you so sick, I couldn't do that and work and raise a child. Over the years, my biggest symptom started out with lots of fatigue. In 2007, started having a lot of swelling in my ankles, neck issues. I lost grip in my right arm in 2011 for a short period. I still have arm weakness, hips, feet, back & neck issues. So obviously, HEP C was taking a toll and I didn't realize it! I never connected any of this to HEP C. I thought it may have been hereditary from a grandmother that had some arthritis issues. Since 2013 I've been seeing a Rhuematologist for muscle, joint, back and neck issues. He suggested that I check with my Gastroenterologist as there is a cure for HEP C and I should look into it. In 2014 I started getting this dark blotchy spots on my calves and up to my thighs. I went to my regular MD, several Dermatologist and no one could figure out what the splotches were. In January of 2015 I had my gallbladder removed & Dr, went ahead and did a liver biopsy. I saw my Gastroenterologist in October of 2015 and he said he would do his best to get Harvoni approved for me. I was denied approval for Harvoni several times as my Dr. relentlessly sent letters on my behalf. After a few denial letters, I noticed that one of the requirements is venous insufficiency. In October of 2015, I saw a heart and vein Dr. and Dr. determined the spots were from venous insufficiency. I immediately advised my insurance company with proof of my medical condition, and was immediately approved for Harvoni and began taking my RX in March 2016. The biggest side effect for me was extreme fatigue at first, light headed, headaches & some nausea. My Harvoni Script was for 12 weeks. On week four, my labs said virus was clear. :) I finished my RX the day before my daughter graduated High School May 25, 2016. I had to wait for 12 weeks for final labs. Within 2 weeks after finishing Harvoni, I began to get so sick, I couldn't get out of the bed in the mornings. It was almost like motion sickness 24/7. I had this for two months. I went to the Dr. and had test ran and couldn't find anything wrong. At the end of August/ first part of September, the nausea, subsided, headaches and general ill feeling gradually left. I spoke with my Gastro Doc to let him know side effects and he said no way that was connected to Harvoni, especially since I had ceased taking the medication? I'm not so sure... I think it affects everyone different. It was rough for a while, but was super excited when my final labs results came back and said the virus is CLEAR! I still have issues everyday and probably always will from the HEP C taking a toll on my joints and connective tissues. But I am so grateful to Dr. Cochran, Gilead and my insurance for approving this medication. It's well worth what I went through! Especially, to know that my liver can function again. I truly think that part of my illness after Harvoni was my body just trying to adjust to functioning normally again. Thank you GOD for allowing me the privilege to take Harvoni, as I am truly blessed. If anyone can get approved and take the medication, I would highly recommend it, side affects are worth it, especially if it means saving your life! Also, I worked with two Pharmacy's & they were both so kind, caring and concerned, when speaking with me prior to and during treatments when shipping my meds. Sincerely, L. Smith
I think I probably got Hepatitis C from sharing hypodermics once or more times, but truthfully, I do not know what event or practice in my life caused me to get it. I'd started with tobacco at 9 or so a bit and beer and then marijuana at 13 before a ski bus trip to the mountains the night before. From there, things between me and my folks were never the same and me and my friends got into acid, Benzedrine and what other drugs were in the SF bay area at that time which was the 1968-1969 period and I kept going after I was taught how to inject speed ripped from an infirmary in a vile in 1969 or so at a party. I was a musician, so that was unfortunately a very good cover for me so I could keep going with the partying way too much. I wish that before my gastroenterologist prescribed the Interferon alfa-2a plus ribavirin combo - to be injected for 24 weeks, the doctor would have recommended that I start a walking program by starting out walking 7 minutes the first day, 8 the second day and on and on until I reached 40 minutes per day and then keep doing that 6 or 7 days per week for a year or so, resting from day to day during the night or when I feel tired. And that he'd just have told me not to eat things that make me feel sick to my stomach after I discover that they do that - rather than prescribing medical pot which will mask your malaise. Don't over-eat either. The less your body has to work on, the better - to a point and so on. Let it use it's energy to heal your problem and fight the bad thing. That way, with the walking, resting when I'm tired and eating enough, my immune system could have come into its best condition which it never ever probably had gotten to - since I never walked so much in my life. Now it is 3 years later than when I started my walking program and my cholesterol numbers have gone down and I'm in OK shape, but now 61 and so 3 years older. Being in this mental, neurologically damaged (diagnosed as "mild cognitive impairment" condition is the worst time I've ever had possibly besides being on the lousy drugs they used to give me when my parents would take me to psychiatric wards when I was a child, teenager, youth and a little later into "adolescence" until I was say - 25 years old. I've lost so many "life days" due to the Hepatitis C treatment. If I were a horse and knew how to tell my owner to shoot me, I'd probably at least wish I could do that. No kidding. This is a form of hell on earth - so really TRY your best to somehow get your immune system up well - by yourself - not with the overpriced drugs from outer space or I don't know where. No friends, I became to shy and quiet after my folks died. Can't find a girlfriend, addicted to porn, etc. So it really is the worst situation - though others have I'm sure at times found worse. I'm not bragging. Just telling you that there is no way to express where I am at in my head. You wouldn't like it at all if you could last.
I am a survivor of hep c. I have been cured in 12 weeks with Harvoni. The side effects were tiredness and some muscle soreness. I am thankful. I also suffer from bi-polar. I noticed after being cured my mental health has really improved. My psychiatric care giver pointed out that hep c causes inflammation that also effects the brain. Since I have been cured. My mental health is much more manageable. I wonder if any one has written about or done any studies on hep c and your brain. I am in stage 2 of cirrhosis and I still feel great. I have managed to lose 100lbs in 18 mnths. I changed my diet and exercise.
Okay im 33 years old now and I found out when I just turned 18 when I was in basic training for the Army National Guard that I had hep C genotype 1. So I had a liver biopsy done and they told me of the interferon and ribavaran or however you say it. So I started taking it. I was still on drugs and little and my girlfriend broke up with me right after I started taking it and I got so depressed I think it was from the medicine but I had to quit taking it. And I was still depressed and did more drugs and ended up going to jail for 3 years and I just kind of tried to forget about it but it was always in the back of my mind. So I met my wife and I did quit drinking and we had a kid but again it was in the back of my mind always. I never had insurance and I never told my wife that I had it. ( I know horrible ) but the more I got into my lie the harder it was to tell the truth. so I decided to go to the doctor and act like it was a surprise, well the doc never called me back. So I'm like what the hell why you never call me back to tell me that I have Hep C he's like your blood work good but I still was like what well that's good but I know I have it. So he had me recommended me to a specialist and I have more blood work done they told me my blood work is good that's when it hits me do I really not have it. So we had more blood work done and it confirmed it that I do not have it and this is blood work within a six-month period. i only took the treatments for 2 months of a year-long process since I had genotype 1 and they told me I still didn't have it so I feel like it was a miracle that I don't have hep c anymore. So my point is have faith in God you never know what are you can do for you
I'm a victim of a nurse who contaminated me with a needle she somehow used on her then on me. I got a letter about a year later stating I may have been exposed to the virus because I had went to emergency during the time she was employed. Long story as short as I can to not bore you, I did 12 weeks of ribavirin and sovaldi, which was the worst sickness, depressed, time of my life so far. My new outpatient business to treat addiction suffered, ironic, huh? I lost all the mental health clients, and am treated with disrespect, rudeness, and with no sympathy from the hospital who could have protected me by doing a little research before hiring this nurse. Ive considered myself spiritual, loving, understanding, but this experience seems to have changed me in ways I find challenging to overcome. Possibly by my immune system building back strong again, my business begins to stabilize, and I'm treated fairly with appropriate compensation, I can move forward, beyond this traumatic experience. Thank you.
I was diagnosed with non-a/nonb in 1984 after I startedhaving anxiety attacks and fatigue by a very switched on Dr. who dealt with mainly HIV patients. I forgot about the hep for years but continued to suffer depression and occasionaly anxiety. A routine blood test in 1995 determined I had Hep C. I was told nothing about the effects of the disease at the time. When I was suffering perimenopausal symptons in my mid 40s my Dr at the time did liver tests and referred me to a Liver Clinic where I was advised to have a biopsy. (One of the most painful experiences of my life) I was advised as a result of this to have the interferon treatment. When I said I didn't like the idea of injecting myself, the Registrar I saw replied "it wouldn't be as bad as injecting yourself with Heroin, would it? I left the hospital feeling totally stunned, ashamed and furious and went into denial about the disease until 10 years later, after suffering a severe blood infection, which I was treated with intravenous antibiotics, I started to feel constantly tired and unwell. Subsequent tests revealed my liver functions going rampant, so after an ultrasound I agreed to undertake the Interferon/Ribavirin treatment for 6 months. The worst time of my life. So ill. It cost me my job, friends, my hair, my thyroid function. Just too ill to do anything but try to drag myself around. Not successful. A naturopath helped me get back to normal after that treatment, which was 2011. Since then my life has slowly deteriorated, I suffer anxiety, depression, fatigue, and the one I have never understood until finding this site and reading the stories, brain fog. I had a highly responsible job which suddenly I wasnt doing well, I would get so anxious I make mistakes, eventually taking 3 months stress leave and then getting fired when I returned to work. I have not worked since and seem to always feel tired, angry, anxious, depressed, aching joints, headache etc. Last year a friend also a Hep C sufferer went on clinical trials for sofosbuvir//daclatasvir treatment and after 3 months was virus free. She managed to get me onto the treatment through RPA, Sydney and I am 3 months into the treatment. I am feeling fatigued and itchy, have had some nausea and headaches but nothing like the horror of the Interferon. I have been reading all these stories and feel like I have a new explanation for how I have lost my ability to function properly the last 5 years. Maybe I'ts not just getting old, but this virus in my system. I am filled with new hope that after this treatment (6 months) I may feel able to get my life back. Thank you for your stories and good luck to all who suffer this debilitating affliction. Lesley K Dec 2016
Diagnosed in 2008. Blood tests always normal and no symptoms. When harvoni came out I did a 2-month treatment and virus was undetectable by end of first month. Side effects were headaches (super hydrating mostly took care of them), weird dreams at night, and elevated blood pressure during treatment. Virus remains undetectable after 21 months!
I was diagnosed in 2006. I didn't believe my results and had my doctor re test me 3 times. Yes all three said Hep C. I also was diagnosed with a fatty liver, high cholesterol and hypothyroid all at once. Once I found out I went through the lows of knowing but trusted that with my strong mind set I would clear the virus on my own. Sounds crazy but during one of my specialist appointment the doctor came in and said "what exactly are you here for" so I told him and he said "but you don't have Hep C" . I went back to my family doctor and got checked and rechecked and TRUE I had cleared the virus. Every year I do all my blood work and always Clear. I'm sharing this because even though I cleared the virus I have been suffering symptoms since. It has progressively gotten worse where I have liver pain, itchiness, periodic fatigue, irritability, inflamed saliva glands, adrenal fatigue, high iron, candida and those are only Some of my symptoms. I keep following up with my doctor but he just reassures me that my blood test are clear and my liver function test always come back good. For years I thought all these symptoms were due to working out at high intensities (as I'm a fitness intrustor) but that is not the case. I quit exercising for a year thinking it was making me sick and I only got sicker. I have all the symptoms of Hep but no Hep? Makes no sense to me but it's real.
Successfully treated with 12 weeks of Harvoni. So thankful for the meds! My lab work is still a little 'off.' AFP level slightly elevated and low platelet count. Has Anyone experienced this?
Hi I was a heroine intravenous drug user for about 20 yrs. I was diagnosed with Hep C in 2006 and was still using until 2013. My health was starting to effect me so I called a liver specialist who had me tested and found out I was Stage 3 genotype1 with cirrohsis. The doctor put me on a 12 week regiment of Harvoni & Ribavirin in Feb 2016. My tests came back undetectable. Never had any side effects and the Pharmaceutical Company financed the expense for me. I am very glad I went ahead with the treatment!! I feel blessed!! I feel God has given me a 2nd chance!! I feel a whole lot better except I do have some bloating in my stomach but am taking medication for it. Plus trying to follow the low salt diet which the doctor ordered me to do. Am having a hard time with that! I know that drinking lots of water also helps. I have to make myself drink water daily. I don't like drinking water but am learning to like it. I hope my experience has helped!! I am a Hep C survivor!! God bless you all!
My name is Betty and I have been diagnosed with Hep C Gen 1 since September 2012.I was put on interferon + Ribavirin since Jan 2013, tested negative 2 times and after few months i had more viral load than before taking the treatment..then Sovaldi came in and i was told it was to be combined with Ribavirin, thinking of all the iching side effect i had before, i was reluctant to go for it.. my Dr encouraged me to wait for Harvoni which was to be released in the next 6 months. I waited and i am now done with Harvoni and am healed. I wanted to share my story to encourage others not to give up, but on a special note i want to tell Barbara that I relate much to her..i know what it means to be sick and alone...from being admitted outside your country all alone, without even a visit..the need to want to share your fear with someone close to you ,and then notice the person is not there for you due to various reasons.. etc..So no matter what happens, God watches over us in a way..so please contact me if you feel like it at bettykarinie@gmail.com God bless you all.
I was diagnosed with Hep C 8 yrs ago I started with the Vectrilis for 8 months to no avail It did nothing then my Dr put me on Insavacte with riba pak and interferon this treatment lasted 7to9 months again to no avail I had to wait 3 months for the Sovaldi to be approved by FDA started that with combo riba pak and interferon combination 12 weeks of nepagen shots to keep my w.bloods and procret for r.blood and platelets shots every week I was at the end of my rope but I stayed positive and by the grace of God I'm here to tell everyone as long as you stay positive and don't drink and abuse the chance for a knew life there is hope. My Grandson played a big part of me staying positive. He would say to me Grandpa how many shots did they give you today, My answer to Him was enough to let me play with you for another day. I think back to the 18 months of 2 times a week to the Dr and coming home to see the beauty and the positive encouragement and the star in his eye keep me positive and the prayers we would say before bedtime I wouldn't be able to tell you my story how important it is to have the test done even if your not a Baby Boomer Hep C is the silent Killer and its an epidemic that has to be stopped they money had no impact there are grants for people that have it and stay stopped without doing anything about I love life I was given another chance don't wait until its to late Peace to all that are still out there I am not 3 yrs Hep C free I just don't drink or do anything that will harm my Sobriety GK Be well take control of your life.Greg K
I had a surgery on my Rotator cuf.the second day I had stomach ache and threw up what ever I ate. doctor gave me probiotic.In three months I lost 25 lb. After three months my stomach gets well . the blood test said I have positive Hepatitis c but inactive, and I felt fine and start to gain back my weight. I wonder how come I got so sick for three months and without treatment and get well. I don't understand how did I got it and how it get well without treatment. I don't have anything to do with other man, and my husband tested his blood is always negative for HC. Can anybody explain this.
My husband was treated for Hep C with Inferon and Riboviran in 2005 after many years of elevated liver enzymes but no other real symptoms. He took the treatment 8 months but had to quit due to low white count. The gastroenterologist told him he was the luckiest person on earth afterwards as he showed no signs of the virus. The treatment was horrible as he felt like he had a bad case of flu all the time and was so weak. His regular MD checked his liver annually for 5 years after treatment without any elevated enzymes. The MD then stopped running any type of liver tests even though he went in for physicals annually. Told him he was cured. No follow up was recommended by the gastroenterologist after 5 years either. This Oct he had a sharp pain under right rib that lasted 20 min. He went to MD who thought he'd pulled a muscle but agreed to do an ultrasound as I thought he may have gallstones. The ultrasound showed an orange sized tumor in liver. HCC liver cancer. Too large for any type of radiation or liver resection. He's been given 6 months to live and starting oral chemo now. We trusted the MD's to know what correct follow up was and now know regular ultrasound, AFP lab should have been ongoing every year. Liver enzymes are the last to elevate with HCC or even cirrhosis. He does not have cirrhosis. Just a little scarring from Hep C. I'm writing this so all of you can insist you are monitored closely the rest of your life and insist on more than just a set of enzymes. My husband got nothing the last 6 years. He felt fine. Had he been properly screened he could've had this caught early and had a resection which is a cure for HCC. When you research the old Hep C treatment you will see the patients are at risk from damage already done prior to treatment. It just takes one cell. He was 55 when he got the treatment and is now 67. The new treatments also carry this risk and seems it's often about 10 years later when cancer will appear. Please insist you get regular screening to include cancer marker lab and ultrasound on an ongoing regular basis.
Thanks God for all , first of all i am hoping for each person to recover from that disease . i get it from where God know , i discover it 2006 , i cope with no medicine except milk thistle and ginseng nature until 6 months ago , i got the new medicine sofaldi , i use it for three months with other 2 liver medicine according to the protocol , i analyses 2 times and i got the negative result hoping it will not be back again , and i am active now not like before at all and thanks God in the end
I am responding to earlier poster Candy and others who shared her fear of Harvoni. There is absolutely nothing to fear, other than the cost, of course. At least some health insurance companies will cover it, and the drug company will indeed help you pay for it. I went through three rounds of interferon along with the other drugs for a total of 88 weeks and all I had to show for it was 88 lousy weeks. Well, I'm happy to say those days are over for all of us, and the success rates of the new generations of drugs is close to 100%. On 12 weeks of Harvoni I felt nothing at all--couldn't even tell I was taking medicine, a total piece of cake. So please, if you are afraid of taking the stuff, don't be. It is a fantastic sensation to know you're virus-free after 40-plus years, in my case. Good luck.
Just a short Pre Hep C History. Age 27 Full Hysterectomy, Gained substantial weight, had gallbladder and apendix out soon after, in 1995 (age 35) underwent Stomach Stapling (Weight loss Surgury). This was when there Wasn't any support of any type available. Went 1 entire year no food, no liquids every thing came right back up. I lived off of my own body, was in the hospital all the time for dehydration, a couple bags of saline and out the door I went. next was skin removal. First my arms, both were infected with staff, had a pic line in and on vancomyacin. After that had skin from my abdomen removed, Surgeon missed a bleeder in my belly, I almost bled to death internally, Rushed back to OR to fix leak and needed 8 Units of whole blood to resore my blood count. This is the point where I contracted Hep C Genotype 3. Ten years later is when I found I was posotive. At this point the treatments where harsh and unavailable due to my depression. Went another 16 years before an oral treatment became available. They started me on Sovaldi and Ribavirin, 30 day later ended up in hospital , Treatment was making me anemic and shutting down my kidneys. Two months went by before I was approved to get a new med called Daklinza. This time it was Sovaldi and Daklinza. Well I was told Daklinza had few side effects, HA HA. I was sick as hell. I was as bad as Chemotherapy without the hairloss. After a few more hospital stays I finally finished the treatment. I was told that the Hep C was Gone, So why did I feel like road kill every day. Three Weeks after I contracted C-Diff. My doctor started me on a ten days of Flagyl, 8 days into the flagyl I was getting sicker. I went to the hospital again to find out my C-Diff was Flagyl Resistant. I was started on at least 3 or more Antibiotics including Vancomyacin by IV and Oral. I started feeling better after a few days I went Home with 10 more days of Vancomyacin. Actually I was Feeling pretty good a this moment. After finishing the Vancomyacin I was retested for C-Diff and still came up Positive. I had one more chance then I was S.O.L. There was another antibiotic left called Difficid. I was on this for ten days and finally came up clean. Months later I ask This Question Every Day. "Why Every Day I LIve Do I Feel Sick, All My Joints Hurt, I Have Pancreatitis, My Legs are Bloated with Lymphodema, I am constantly in Pain in my Back and My Neck , I have Migraines almost Daily. I'm So Depressed because every day gets worse. Now I am on Oxygen 24-7 I have COPD, sleep with a BiPap every night. I have never ever smoked. When Do I start to feel Better?
My son has had Hep C for many years though still drank alcohol a lot. He used to be addicted on heroine. He has been on Harvoni for the past month and a half and feels very tired and has a lot of colds. Also, his energy level is low. He said that he feels like his immune systems is gone. I'm not sure if he's on any supplements. Does anyone know how he can boost his immune system when he's on this drug?
To all fellow sufferers of this bleedin' curse, may I suggest checking out the website 'FixHepc.com'. It has a wealth of information for all genotypes, with many informative posts, details regarding access to treatment with generic DAA's, and lots of forums on everything related, plus support from the members and guests. It's so helpful and a wonderful resource! The site is from Australia and includes advice for those in other countries on how to purchase and start treatment with safe and tested new generic DAA's. x
Angie K and Ettore S... Beth here from Newcastle NSW..55, IV amphetamine user through 80s. Diagnosed Hep C in 91. Angie, my 1999 treatment with Interferon/Riboviran similar except I only lasted 6 weeks before becoming so mentally debilitated and physically ill with my whole immune system shutting down requiring hospitalisation. I was also raising 3 young children alone while studying a Diploma in Community Service and Cert 4"s in Mental Health and D and A. I withdrew from program, being informed there would be no further help for me. Good I said, shove this poison. Since then I am so glad I left the program as the horror stories of Mental Ill Health and long term physical ramifications from these drugs are horrific for people who persisted. I have lived reasonably well since then but a week ago commenced the co-companion tablet therapy for Genotype 3a ( sorry cant spell the names but Soliviror and Daklenza ?? may be close ). I am experiencing headaches, fatigue and a little shortness with patience but am hoping this shifts as the drugs start to clear the virus from my liver. Hope to keep tabs with you both and please don't hesitate to email me. Cheers Beth
Well good news for once. I just talked to the Doc today and my blood test came back . Hep c is non detectable after one year. Hooray! I'm so happy I'm going to have a beer. Just kidding! I still have cirrhosis of nearly stage 4. Needless to say I am NOT drinking at all. My liver enzymes are normal and so are the rest of the tests. Because I'm at stage 3 to 4 I will have an ultrasound in May 2017 and another blood test in Dec 2017. There is about a 20 percent chance of liver cancer still looming so they will be monitoring twice a year for the immediate future. I will say that after a year since treatment I feel pretty good. I have managed to keep my weight in check, have decent blood pressure, and have managed to keep from doing the bad things to my body that I used to do when I was younger. This was my third teatment that I went through in my life. In 2001 Interferon and Ribavirin with no luck. In 2014 Sovaldi Interferon and Ribavirin and still no luck. Finally in 2015 Harvoni and Ribavirin we hit the magic combination, cured! I want everyone to know that you have hope and that the Lord really does look after us if we ask him to. Keep on trucking.
I have completed my 12 weeks treatment and completely undetectable. It was undetectable at 4 weeks. Now I have to do another 12 weeks of treatment. I do have chronic cirrhosis with complications and was referred to a transplant center. My question is I have to do 12 more weeks of treatment could this be due to the referral to the transplant center. I would appreciate any input that anyone has to offer. Thank you, Bob, scared in Kentucky
I got hep c @17 sharing a needle. Ironic i had no idea anything would go wrong except possibly getting hooked on heroin. The hi felt very good however thank god i never did the drug a second time! I am 63 now and on my fourth round of treatment. Side effects are not as bad as the last time. I do feel tired and sometimes not often dizzy. I am hopeful but cautious for a cure after 3 tries. I worry often i will forget a dose. Last treatment i forgot a.m. pill til afternoon. Very upsetting. Pray 4 cure this time 4 me and everyone else. Thanks 4 reading
I have been on Harvoni and ribavirin for two months and I must say it has truly been a nightmare! The ribavirin caused me to to fall down onto concrete, has bought my platelets down to a 96, I slept for four days and when I got up finally I could not remember how to use the computer and I have had a computer business since 1998! I threw up everything I put in my stomach. Now my platelets at a 96 and I am black and blue all over. The ribavirin is one of the most dangerous and debilitating drugs on the market.
I took daklinza and solvadi for 12 weeks and now I am hepatitis C free!!!!!Thank God
63 year old male. Diagnosed with Hep C in 2000. I'm certain that I contracted it by sharing needles back in the 70s. I had a liver biopsy when diagnosed in 2000 and I had stage 2 fibrosis. I had another biopsy in 2004 with same results of stage 2 fibrosis. In 2006 I tried to get rid of virus with pegasys combo Interferon and ribavirin but after 4 weeks my viral count did not decrease. Dr had me stop the treatment and I was labeled a non responder. I had no choice but to hope for a cure. 12 years later and I have been on Harvoni for 5 weeks. My 4 week blood work showed no detectable virus! Very minimal side effects, occasional headache and a bit of fatigue. Dr wants me to do the Harvoni for 24 weeks since I was a non responder in the past. I feel lucky that a cure has been found.
My name is Abbigail and I am now 21 years old and have been "cured" from Hepatitis C for almost 4 years. I was a teenager when I found out that I had gotten Hepatitis. I was a little girl still, technically. A junior in high school to be exact. I praise god every single day that I found out when I did because I don't know where I would be today. We had a blood drive at our high school and I of course signed up to do it.. As does almost every single high schooler because there mind set is "it's going to get my out of class of course I am going to do it." My mind set was, I am truly going to save a life today and that day changed my life forever. In fact, I didn't end up getting to save any lives because they couldn't accept my blood because I had Hepatitis C. When I first found out I was sitting in our High School library and I was called out of class to leave for an appointment. I knew something was up instantly considering my mother would have told me if I had an appointment the next day she would have warned me.. and I had not gotten a warning at all. So of course something wasn't right and I knew that deep down. Little did I know my life was about to do a complete 360 in the matter of hours! So my mother and I got in our vehicle and headed to the doctor and on our way I am continuously asking her what is going on? Why am I going to the doctor? And I finally had received a response from her and it was "get my purse and grab the envelope inside and read it." So I did as she says, and I open the piece of mail and the first thing I saw was a pamphlet and in big bold capital letters it said "HEPATITIS C" and of course I had absolutely no idea what it was so I was reading and reading and the most common way to get it was by lethal drug injection.. and I knew exactly what that meant so in my terms it meant "shooting up." So I look over at my mom as she has tears streaming down her face and I have to tell her.. I have to tell her that her 16 year old baby girl has been injecting drugs into her arm for almost 6 months. I couldn't lie or hide it like I had been for the past 6 months I had to tell her. That was one of the hardest things I have ever had to do in my entire life.. Was face my mother, the one I am the most closest to them anyone that I have been doing drugs and when I told her disappointment and fear was written all over her face and written all over my face was disgust. Disgusted with myself and also disgusted that I just had to tell my mother that I have been doing drugs and injecting them. No mother should ever have to hear those words that there child has been doing drugs and for the most part injecting poison into their body. So we finally arrived at my primary doctors office and as we sat there and waited for the doctor to call me back we literally sat in silence. I couldn't look at her, I just couldn't. I felt like a coward that I couldn't even look at my mother but I knew I couldn't see her face because I knew I would just cry. So I sat there waiting and waiting and as I am waiting which seemed like forever that we waited I looked up Hepatstis C and what is was because I truly had no clue I have never ever heard of it for that matter! All the things I had read scared the crap out of me. I was literally so scared and I didn't know what to do. I was truly just shocked at what I had done to myself and what I was going to do. So finally we got called back and my doctor told me that he didn't specialize in this field so he would have to refer me to Riley Children's Hospital. An hour away from where we lived. He gave me the short rundown of what is was, but what he told me I already had read about so what he was telling me was something I already knew. So that trip wasn't much help. Finally, 3 months later I went to the children's hospital and met a nurse and then met my doctor who specialized in Hepatitis C. That trip truly made my stomach turn upside down and made me truly numb. I was honestly speechless but I found out so much information about the disease that it made me so much more knowledgeable and made me realize all the things I had read was not even half of what I thought I knew about Hepatitis. They gave me 2 different options of treatment. I could make my parents in debt for $25,00 for 6 months of treatment or if I have to do a year of treatment depending on how my body reacted to the medicine I could put my parents in debt for $50,000. Or that I could wait, and technically become a guinea pig and was for this new treatment that they are about to start and I could become the first patient to try it and it would be FREE and that they would actually pay me for it considering it was a trial run on the medicine. But again, I would have to wait but it is for free. I of course knew right then what I was going to do! I of course was going to become a guinea pig and get treatment for free instead of starting treatment immediately and putting my parents in debt because we didn't have $25,000 dollars to just throw around! We certainly were not broke but we certainly werent wealthy either. They told me to go home and sleep on it but I told them I already knew what I wanted to do but I went on home and slept on it. I went back a couple weeks later and told them I am going to wait for this new treatment 100%. It was no question! But before I could be accepted to do this treatment I had to technically qualify for it. To qualify for this treatment I had to do a liver biopsy and my liver at least had to be damaged at a 1. That is how they rated it, from a 0 to 10. My needed to be at least at a 1.. So my wonderful wonderful wonderful nurse, scheduled a liver biopsy for me and a month later I went in for it and I had to be put under and everything because they stick this HUGE needle in you and they get a piece of your liver then you have to lay down for at least 4 hours then you are able to go home so the anticipation started right after I came to after my procedure. Literally the anticipation killed me every single day until I got the call that I was literally dying to hear that I am officially qualified for the new treatment and I will be the first person to ever try this from the age of 3 months to 18 years old. In a way I was so relieved because my parents aren't going to have to be in debt for the mistakes that I made and then in a way I was anxious and scared because I was about to be a guinea pig for my age group. I was about to be the first person at the age of 17 now to take this new treatment. It was pretty much the original treatment that they normally were giving Hepatitis C patients which was the ribavirin and then the shot but they added a new horse pill called telaprevir. I was about to start a journey that I could have never ever imagined! I never imagined my life to be flipped upside like that but my mistakes made me end up there and I of course take full responsibility considering I was the one injecting poison in my body and was so oblivious and blind to the things I could catch by doing that. Anyway, this trial was one thing that had to be documented like crazy because it's new they need all the information they could get from these 3 things together. My nurse had a binder filled and filled and filled with all of my things and this treatment and how it's effecting my body and everything. I've never seen a binder so big in my life. I received a little booklet thing to keep track of what times I took my pills and what time I did my shot on every Friday. It was definitely a pain in my rear but that is what I had to do so I did it. I was then told what all I had to do with the new pill which was take 20 grams of fat every single day when I took it. Mind you not I took it 3 times a day. Altogether in 1 single day, 8 took 11 pills. It was definitely a lot of keep up with for only being a 17 year old! I was then told about all the side effects; you could gain a lot of weight or lose a lot of weight and if you lose weight you can't get down to a certain weight because that could become harmful to your body and we would have to stop treatment immediately until you were to gain more weight. Mind you when I started treatment I was about 5'1 and about 135 pounds. Another side effect was losing your hair. That absolutely terrified me because my hair is a big part of who I am as it is to most woman so I prayed that I wouldn't lost my hair. Another side effect was will the shot, I could get very very sick until my immune system adjusts to it and gets used to it. Her exact words was "It will make you feel like you have the flu for a couple days so that is why I have you doing your shot on a Friday so you can have the weekend to recuperate and then Monday be okay to go back to school. I was like great, I truly hate being sick so this definitely stinks.. but again my mistake my consequence. I accepted that. As treatment she on I found myself not having an appetite, starting to lose hair, and definitely feeling like the flu. I started realizing that I am getting all the symptoms my nurse said I would and I remember just crying one day in the shower bc clumps and clumps and clumps of hair was falling out in the shower and clogging the drain and I just cried because I was so petrified to lose my hair.. then I started noticing the weight loss because I just couldn't eat and feeling like I had the flu definitely didn't help. My mom would try and try and try to get me to eat and I would try as well but I just couldn't do it.. I started to notice clothes were not fitting me anymore and they just fit me a couple months prior so I knew the weight was just shredding off and I wasn't even trying to lose weight was the thing!! So I went to one of my check ups and little did I know I weight 112 pounds. My jaw dropped and my mom kept telling me, you look so sick Abbigail. It breaks my heart because you look so fragile! This doesn't look like my baby girl and it breaks my heart and I started to really notice it because more and more people were noticing my weight loss which made me start to realize it and before I knew it I looked like I was on meth or something! I of course knew that some people thought that as well because I had been asked a couple times and I really hadn't been doing anything at all! I was sober when I was taking my medication. By the end of my treatment like the last 2 weeks I did another weight check and my ultimate lowest weight ever in my life was 109 pounds and was wearing a size 1 in pants and extra small and small in shirts and I do not ever recall being that skinny in my life! Finally I found out that my Hepatitis C test came back to see if it is active and stuff and they were checking to see if I can stop at 6 months and I got such wonderful news that it is no longer active and that I can stop at 6 months and that I'm technically cured! I of course shrieked in joy because It was one of the greatest news ever! Till this day I am cured and I still get checked regularly. I'm sorry this is such a long story but I had to make sure to get most of the details and my points across. Please please please, be smart when it comes to injecting needles in your arm. Preferably don't do not do it at all but I or no one else can stop you from doing it. Only you can do that. You have to want it. Everyone else may want it for you but you, yourself is the only one who can change your life and get help. My story is something I love sharing with younger kids. Especially one's in high school because I was in high school when I found out. Many people knew I had it because we live in such a small town and word travels so fast around here that everyone and their brother knew about me. Some people still talked to me and others just stopped speaking to me period. If that happened or were to happen to you do not let it bother you. They obviously do not care enough to stick around with you during this hard time and I was so blessed and lucky that I had such a great family and support system because if I didn't, I don't know where I would be today. I am tremendously lucky, blessed, and thankful for the wonderful opportunity to do the trial run and to share my story with my friends, family, and anyone who asked about it and anyone who would listen! That blood drive I had at my high school that one day, saved my life. I seriously questioned not to donate but I knew I would be saving a life so I did it and again I'm thankful for them because if not for them I am sure I would still have it till this day. Thank you everyone for taking the time out of your day to read this and I hope it helps anyone to not be afraid and face every single obstacle and smash it. Obstacles in our life will always be there and don't ignore the obstacles or try to go around them go straight through them and face them head on. That's the only way in my eyes. My favorite quote is "Don't refuse to sink." And I didn't. I stayed afloat and still am. Whoever is dealing with Hepatitis C right now, you're strong and brace as you can get through this! Again with sincere and love, Abbigail
Hello everyone, I am 18 years old. I am a recovering addict, I have been through a lot. I was always against drugs, I mean every single drug. At the age of 11, I started out doing drugs...I was basically forced. I had gotten into a bad lifestyle. My mother and step-father raised me right, I was just hanging out in a bad crowd. My parents never knew anything, they never knew the tale tell signs of a drug user. I was losing weight, I wasn't eating, I didn't want to be involved in activities, I quit sports, I didn't want to go to school, and I was sleeping more than usual. I was using meth, pain pills, marijuana, every drug pretty much out in this world. I was using up until I was 16. I pretty much just smoked and snorted every drug I could put my hands on. At the age of 13 I started shooting up. My ex was also a intravenous drug user, he also had Hepatitis C. I never thought I would get Hep C..we were having intercourse, over the time I was with him, I was being tested every month. I was still using drugs, we split up and I continued to use even more. I was using about 14 to 20 times a day , intravenously. My parents eventually found out, I was sent to rehab at the age of 16. It wasn't really a "rehab", it was a mental institution. I felt broken, I didn't realize using drugs is pretty much killing yourself, that wasn't my intention. The most I have ever weighed was 110lbs. I weighed 85 pounds when I went into rehab. I couldn't see anyone for a week. I seen some things that will forever be in my mind..a 4 year old child was in there with me..he was a broken child. I found out I had Hep c....I dropped to my knees. My mother was told and she feared for my life, not only because of Hep c, but also my weight. I was having seizures and withdrawals, I was basically dead. I was told I would be dead within a week..there was no way I could live. I felt like giving up, but I fought everyday . I had to eat so I could gain weight, every time I would eat, I would cover my mouth so I couldn't vomit. Eventually, I came through..I got out, I went straight to a doctor and got cured. Most importantly, I never picked up another drugs. I am 2 years clean, cured, and happy to say I am a survivor.
When I was first told in 2010 that I had it I thought it was a death sentence. Think I knew within a month of getting it from my husband who had used IV drugs. I got it from washing his bloody back after he'd gotten in a fight and later came across some medical records after he'd been to the doctor and saw that he had it. I was able to get some interferon and ribavarin free from a community clinic. I took the shots once a week? I think in my stomach or thighs. It didn't make me too sick, just kind of felt like I had the flu for a day or so. Once time I missed a dose one week and then when I took it later I was SOOO sick that time. Yuck, but other than that not too bad. After a year the viral load was undetectable and it still is and all my liver panels are fine. I'm also an alcoholic and drank throughout the treatment and continue to do so. I drink a lot of coffee, take milk thistle and that's it. The only thing is that my liver still hurts. I'm 38 years old.
I successfully took the HCV treatment(ribasphere and another, which I can"t recall name) I have 65 extra tabs, which I would donate if someone needed them. Assuming it is permissible, I would like to give these to anyone in need. They are probably expensive w/o insurance. OK to contact me by e-mail. Suggestions welcome. From Detroit area.
To cut to the chase after 38 years living with Hep C, I am now free of the virus after 12 weeks of Havaldi and Ribaviren. I had Genotype 2 and I consider myself blessed, not only to be free of Hep C but to be alive. I am most grateful after years of aches, pains, depression, vague and a feeling of not being as alive as I could be. My lab results are absolutely normal after three Viral Load Tests. On my last visit to the specialist, I asked: "How will I feel after the virus is gone". His answer surprised me as he stated... "That's a good question". Of course THAT wasn't a good answer. I thought to myself, I wonder how you feel? What does feeling well mean to you?". No one had any real answers. Most were very impressed by the Medical side of of the new treatment. If you get the feeling you are on a kind of conveyer belt as you find your way to the pertinent medication. Remain patient as possible as anxiety and your emotions may be on high alert with feelings of "No one has actually answered my questions, yet all commented on the treatment as a great success..". Regardless I jumped into the treatment. Over the twelve weeks. There were times that I felt worse than ever. Skin so dry. Incredible fatigue to the point where I simply went to bed. Nightmares. Itchy skin. A dull headache remained constant for the twelve weeks. Anxiety I replaced with an optimistic frame of mind when I could. So.... now I have been free of the virus three months. I have days of energy and days of none. If I am well, I don't really feel so. Exhaustion and what comes with it takes it's toll on your nervous system and I have found my thoughts to be ... "I want to feel well, but I don't know how.?" All that aside my conclusion is this. To cure a Virus such as Hep C must take some doing. The medication must be powerful. Therefore it will take time to recover from the treatment. My overly optimistic attitude has to be more balanced and contained. With more time I shall post again. But for now, I've lost my concentration. Time and allowing yourself time to recover is most important. And for me, time will tell. I survive and continue and encourage all to seek help and as much support as you can gather to embark on a new chapter in life with patience and the knowledge of how far you have come in this life as a survivor.
The year was 2010 and my Dr just confirmed that I was infected with HIV and Hep C. I sat motionless and cried and cried and cried. Two weeks later after all the geno testing and other tests, I went to work and ended up being fired, Then came the police charges, Grievous bodily harm due to State Police charging me after my ex boyfriend claimed I infected him, Then for the next six years, I lived under bridges and couches, At one stage was I was sleeping on interstate buses... It was aweful, then came the muscle pain, bloated tummy, brain fog.... Jump to November 2016 I have tested negative to Hep C -- Woo Hoo Havoni ... I still have HIV but the brain fog is gone, my body looks fantastic, and my face, It no longer goes yellow when I am in the sun, and I swear ive lost 5 kilo. I am happy, still homeless and unemployed but at least that is out of my blood stream...
I was diagnosed with HCV in 2005, when applying for term life insurance. I had no reason to suspect I had it and had annual, full spectrum physicals due my work every year. My genotype was "TT" (per the virologist, the hardest to clear). In 2008, I tried the existing treatment of interferon and ribavairin, but no affect on the virus. I followed the drug trials for a new treatment and learned of Sovaldi. In February 2014, I began treatment with Sovaldi, interferon and ribavirin and after 12 weeks, was virus free. Next May (2017) marks three years of no HCV. I know there are new drugs now that don't require the interferon and ribavirin with milder side effects. In essence I got my life back after an unexpected and scary diagnosis of a chronic disease. I encourage anyone who is in the demographic (baby boomers) or life-style risk for HCV to get tested and if found positive for the virus, get treated. It is costly, but I know there are many private and public options to help with the treatment costs. SO DON'T DELAY. Hearing the Doctor say "virus free" was a feeling I cannot express in words. God bless.
I was diagnosed with Hep C before it even had a name. It was called, "Non A, Non B". I was having a routine blood test for a life insurance policy and found out that my liver enzymes were off the charts. That was 25 years ago. When I was in my teens, like many kids in the late 60s' and early 70's, I experimented with all kinds of drugs, including "speed" and heroin. We were just curious teens and back then, marijuana was definitely a gate-way drug, simply because it was as illegal as heroin or LSD. access to harder drugs like heroin was just a step away from buying pot. They were all sold by the same crowd. I don't condone the use of any drugs now and unfortunately, because of my Hep C, those of us with the disease are not even able to enjoy an occasional glass of wine or a cold beer with the guys. Being infected with Hep C has changed my life dramatically, not only for the bad but also, strangely enough, for the good. When I finally accepted the fact that I had a serious, life threatening disease, it changed my life for the better, at least for a number of years, when I decided to take my health seriously. When I was first diagnosed, I was scared. My wife and I had just had our first child and I had a new perspective on my life. It wasn't just about me anymore, I had another life to consider. I immediately quit drinking (I had quit drugs for the most part when I met my wife in college) and started to eat a very good diet. I also started taking supplements, such as Milk Thistle. My doctor was a very caring internist who also wanted to aggressively help me fight my "Non A, Non B" liver infection.I am not sure when the medical community finally identified our disease as Hepatitis C but the protocol back then was Interferon injections. Interferon was used for cancer treatment and other diseases and was the first treatment for Hep C. It even took my insurance a long time to approve it because of its "experimental" status. When I started using Interferon, the medical establishment was even unsure of dosage and duration. I was put on 5 million units, 3 times per week for 1 year and was allowed to inject the Interferon myself. It was rough and the first time I injected myself, I had a terrible reaction, waking up in the middle of the night, sick and throwing-up and extremely depressed. It got somewhat better but it was a long year. My hair even got so thin that I went for a crew-cut. My big ears really stood out besides losing about 30 lbs that long, terrible year. I was excited though, because during treatment, my viral load went to "non detectable". I was hopeful that it had been worth it until, 6 weeks after ending the Interferon, my viral load went back to were it had been and I was back to square one. I tried other treatments including a synthetic form of Interferon, but my white blood cell count got so low, I had to withdraw from that treatment. Life got a whole lot darker. My doctor moved and I pretty much gave up, waiting for Medical Science to come to my rescue. The good thing, I thought, was I felt "normal" and read that many people infected with Hep C could live normal lives and actually die from old age. Okay, I thought, life isn't over and within 10 years, I even started using alcohol again, figuring that I was going to be okay and "screw-it" anyways, I was going to have fun. I was going to be one of those who live a long life with the infection, cirrhosis, be damned. My drinking become more frequent, and yes, I did abuse alcohol. Not every day but way more than I should have. Everything I read told me what I didn't want to hear, so I lived my life like I never had the disease. Big mistake! I retired from my business and we moved again. I felt good. I got a new primary care physician and she did a blood test on me and of course my viral load was way up there (over 2 million). She sent me to an "Infectious Disease" specialist and after 10 years of going it on my own, I decided to listen again to what my doctor was telling me. I knew about the latest advancements of the anti-vitals like Harvoni and the incredible success they were having treating our disease. I had had such bad experiences with Interferon and other treatments that I had just kind of buried my head in the sand. My new "Infectious Disease" specialist helped me get my head screwed back on. The first thing I got was a blood test (not another liver biopsy, thank God!). Bummer! The blood test confirmed that I had cirrhosis. I still felt good and he told me I had "compensated" or non symptomatic cirrhosis. My ultra sound was normal but now I have to have an ultra sound of my liver every 6 months, regardless if treatment is successful or not. Fortunately, I had quit drinking alcohol a year ago. That is very important because the insurance companies will not even consider approving treatment unless you are "clean", including drugs and alcohol. They require a urine test before starting the antivirals. While I was waiting for approval of Harvoni (my genotype is 1A), Gilead Sciences had just released their latest antiviral, Epclusa. My doctor had recommended 24 weeks with Harvoni ( a small fortune) but results with Epclusa showed a high success rate with 12 weeks of treatment. Not only did it save my insurance company approximately $85,000, it also shortened the time of treatment. I have been on the Epclusa now for 9 weeks, my viral load is "non detectable" and I have had no adverse side effects. I am extremely hopeful of successfully treating "our" disease. I will know for sure in the next couple of months after I end treatment but my doctor is extremely confidant that I am on my way of being "cured"! A few observations of my own struggles and advise for those of you infected with the Hep C virus; Don't give up hope. Stop drinking and using drug now. Your liver, even if you are infected, will do much better if it is well taken care of. My biggest regret is not staying "clean" after I knew I had the disease. I knew better but ignored the overwhelming research that confirms that alcohol and drug use only exasberates the damage to your liver. Even if you don't have insurance or your insurance will not cover this expensive treatment, there are alternatives to get these antivirals. Use the internet to find alternatives. There are studies that you can enroll in and you can get "generic" drugs from places like India that seem to be just as effective for 1/85th of the cost. Seems hard to believe but research the alternatives. I believe the prices will come down but don't wait for the system to work for you. Take control of your own health. Most of all, turn to your "higher power". I am a Christian but encourage everyone of us to get in touch with our spiritual side. Having a positive attitude is by far the best treatment you can get. God's speed to all of us who are suffering from this disease, and please share your stories, good or bad with all of us because we really do care!
Hi I have been living with hep c since i was 18 years old i am now 53 years old. I am genotype 1.and have just finished.treatment on the drug called halvarni it is a 12 week corse. I chose not to take the other drugs on offer earlier as the side effects were terrible. I have just finished my treatment on the 26th oct 2016 and latest bloods show the virus is not detected which is great news after living with it for so long I will say this I still have to wait 12 more weeks to make sure side effects I had none.
My main concern that kept me from wanting to be treated with Harvoni was:: 1. will I get sick. 2. could I still have an occasional alcohol beverage. 3. how will I pay for it. 4. I don't want others to know. 5. I can't miss work. 6. How will I care for my children/grandkids. So after all of my considerations I decided to go for it. What's more important, my life or my fears. I am now cured!!!! Thank you Harvoni!!! I actually felt better after I started the treatment. A few episodes in the first 2 wks with nausea which lasted only 2-3 seconds. Yes seconds not minutes or hours. I didn't miss a day of work or a day with my children. It amazed me and still does as my fears were unwarranted!!! My insurance (thank you Jesus) paid for the treatment. Harvoni has programs to help you pay for the drug if your insurance doesn't cover it. Regarding alcohol...I had my fare share during treatment which did not affect the outcome. People I have met in support groups (which I no longer attend) have told me that they drank every day and still were cured. Not that I am promoting alcoholism but so many are afraid of having to stop drinking. I personally don't drink much but an occasional beer or two during a Steelers game is always refreshing. My LFT's are back to normal and I am blessed to have been cured. Don't be afraid folks!! It didn't make me sick.. My Doctor has not come across 1 person in 2 years who wasn't cured. God bless you all!!! Remember it's a cure, there is help to pay for it and no one will ever know!! I am living proof!!!!!!!
I asked to be tested for hepatitis C when I didn't feel good in 1999. I had 3 children and my youngest was 6. I contracted Hep C in the early 80's, I was an IV drug user for a couple years. I had my first child in 1984, second in 86, divorced my husband whom I grew up with, but never got high with as he was an alcoholic. He got sober and we remarried in 1993, had our third child in 1994. I was never a big drinker I liked the instant effect. When my husband was getting sober I had an occasional drink. The last one was in about 1987 when one whiskey sour made me feel yucky. My doctor told me I had elevated liver tests, he said we would watch them, and I trust. Its who I am. He retired. I was never thinking about my liver tests and the dr's to follow were not either. I asked to be tested after a conversation with my mom and too many broiled red peppers with oil and bread crumbs. I love them, but at that point they created this thick feeling on my tongue like a bile. I think we were watching a show, probably Chronicle.. that show got me sober and I did it on my own. They were talking about Hep C and my mother had brought my sister to be tested as she had a baby and the dr screwed up and she ended up with 23 blood transfusions. She was free of the disease. They were in 85 and that is when blood was being tested. My new dr was unclear why I wanted to be tested and I told her she ran the test and was very surprised I was positive. I had it good my levels were very high. Had I been happily drinking with my husband I would be dead now. I do not read side effects. I remember being soooo sick for the first month or so. I went to work every day as I worked in Special Ed. Sending out the test requests and that was important to me. I used Rebtron and Interferon. I took shots twice a week I gave myself (I never stuck a needle in my arm myself when getting high). I took pills twice a day. When I drank at least 4 bottle of water a day AND exercised I could function well. I did a work out called The Body Flex by Greer Childers you can find it on Youtube. Watch the Introduction so you can see why it works for anyone. I did that and 8 minutes of Taebo. It was a long year, but I made it. I never read the side effects or maybe I did and just concentrate of whats possible. I am really surprised when I read peoples stories. I did get dry eye and used flaxseed for that, that really helped. I worked hard not to give the illness life. It was not easy. Everyone around was going to hep the drug addict I had not been in 20 years. By the way none of my children were born with it. DRINK WATER LOTS of Water! Get out and do some kind of exercise. I wish the Secret was around then. Hope I help someone. I also suggest the Strangest Secret on Youtube. Best wishes. It was a really hard year, the water helps, I had energy when I worked out. Listen to your body.
If you are offered Harvoni take it. You will feel better after treatment. The effects if any will diminish. Stay hydrated.
Hi I just got over my hep c after 10 years of having it. The injection in the liver and tablets didn't work so I moved to London and went on hovoni tablets 1 a day worked within 2 weeks of treatment but still had to finish the course what a miracle. So been cured for 6 months now last blood test next week they like to make sure at least 3 months after feel alittle bit better then I ever have in 10 years but it's my mental health psd and pain in my legs I'm left with I guess it was my own fault in life plus losing both of my children was because of my first treatment didn't have any help I was so ill in bed everyday I couldn't look after my children properly. So social services took them away from me so angry cause not even my mum or dad or sisters would help so that is why I'm left with mental health problems.
I contracted hepatitis c sometime in 2005 while in addiction with IV heroin use. I got sober in Jan of 2007. The longer I had the virus the more I felt: depression, brain fog, extreme depression, anger & struggled to perform everyday tasks. I had blood work taken yearly & a biopsy in 2008 but all showed my liver was still in good condition (stage1). In 2014 I was afforded the opportunity to get treatment (sovaldi-olysio). I did the treatment for 3 months. I almost immediately after starting the regimen felt more energy, depression left & felt like a whole new person. It's been almost 2 years & been tested 3 times (the last time being Sept'16). Virus totally eradicated. My whole health-life has improved dramatically. I strongly encourage people to try the new treatments. I had absolutely zero side effects.
I am finally on treatment, I am 59 and really need to talk to others in my situation I also have stage 4 cirhosis . I am so scared and depressed I have no family other than my beautiful 25 yr old daughter. She has high function autism and is not very supportive due to her sickness so I feel alone all the time can anyone relate.
I was suffered hcv in 2011 after successful course of ribavirion I was not detected now I am pregnant and worried maybe I caught again hcv. Someone says to me hcv returns again I am much much worried kindly answer me.
I was diagnosed with hep C in 1991 though I had symptoms long before so possibly had it long before then. No IV drugs, no transfusions, who knows. I had a biopsy which confirmed. I was told I was geno 3A. Took 4 months of interferon with good response but then had to stop because of becoming very hyperthyroid. Lots of nasty side effects. Then in 1997, had symptoms again and started interferon and ribavirin. Improved but then became hyperthyroid and had depression and after 4 months had to stop. Had a lot of pretty bad side effects on interferon, swore I wouldn't do it again til there was a cure. Never dreamed there would be one in my lifetime. When I turned 65, doc referred me to a special hep C clinic through the medical group for my HMO, I had a FibroSure test showing stage 3 fibrosis, and surprisingly now showed up as geno 1b. They approved me for 3 months of Harvoni. (AARP secondary plan 2 and Patient Access Network helped out with the rest - research online). It was amazing. I had no symptoms on Harvoni as long as I stayed hydrated. I just had my followup blood work after 3 months off Harvoni, and I am undetectable! I highly recommend and encourage anyone to not be afraid of this drug. They are coming out with new drugs all the time and hopefully they will become more affordable with the competition. I feel so much better, am doing all I can to help my liver regenerate by avoiding all the usual bad stuff and eating correctly. Please, don't give up. Do it, Get your life back -- don't be afraid. Stay positive! Miracles can happen.
I have been cured of the Hep C virus, after caring it for 43 years. Delivered to me in a blood transfusion, after a bad car accident in the early 70's. In 2014 my internal Medicine Dr., put me on Sovoldi (400mg) per day, an Ribavirin (2 tabs) daily for 24 weeks. On March 2015 my Viral Load was all clear. I was able to get my Meds for free, through the Pharmaceutical Co.. I am so grateful, I can't express in words, how thankful I am. I discovered the Hep. C many years ago, but it wasn't till late 80's that they came out with testing for it. I was told I had it, but Drs still had no idea how to treat it. I waited over 20 years, before choosing to try the drugs. From a 25% chance, to now a 99% chance cure rate. I Thank the Lord everyday!
When I was 43, I applied for increased life insurance with my employer. Part of that process required a blood test, and I was subsequently declined because I had Hep C. That was HUGE news to me....I did not even know what it was let alone that I had the disease. I went to a liver specialist who, after further testing, determined that I indeed had Hep C. The treatment at that time (25 years ago) was the standard with interferon, etc. that MIGHT cure you after 52 weeks (50% chance) and all kind of really bad side effects. I decided to wait.....and I did wait for two decades. During that time we monitored my viral load and I had two liver biopsies performed. Things were stabilized with a viral load around 2 million....but in early 2016 things started to get worse in regard to viral load. My count went to over 7 million in a short time and it was decided it was time to take action. My liver specialist prescribed Harvoni for twelve weeks. I thought this was going to be a real problem in regard to insurance, but to their credit United Healthcare covered the entire cost without complaint. I completed the prescribed regimen and I my viral load is now UNDETECTABLE. I have three empty bottles of Harvoni sitting on a shelf in my office to remind me of this miracle drug AND the prohibitive cost (~$120,000).
I am on my 5 week on treatment for hep c, that is the best thing that's happening to me going on treatment I have no side effects I feel I have more energy. So those of you that are worried about taking treatment don't worry its the best thing thats happened by getting on treatment. I'm taking Zepatier 12 week treatment.
I am 68 year old woman diagnosed with hep c 1a in 2012 after contracting it over 40 years ago. I was advised to go on a 48 week treatment of peginterferon ribavarin and boceptivr in 2013. I had fibrosis 7.8 on a fibroscan. I was so Ill with the treatment and at week 10 was advised to stop treatment. In July this year I started on a 12 week course of harvoni and ribavarin and after a couple weeks of adjusting dosage I was fine. I finished the treatment on 20/10/16 after virus undetected after week 4. It seems to me that I have felt worse since finishing the treatment. This last week or so I have felt flu like, Itchiness, exhaustion which is not helped by sleep when I can sleep that is. Also headaches, tummy aches, nausea loss of appetite, tearfulness. In fact I am of the mind that I wished I'd never ever gone on any treatment and taken my chances. In 2013 pre-treatment I looked good and healthy but now I look permanently tired and haggard. I'm supposed to be going on holiday on Monday so please can anyone tell me how long these horrific after events last before I go end it all. Thank you
hi I am hep c genotype 1 and have been for 20 years. I am 53 and have started a new hep c drug called harvoni. It is a 12 week course. But you dont know if the virus has gone till 12 weeks after. Has any one been on this drug and how did you go? Thanks.
hi 2012 was comfirmed hep c by 2015 my hep c count 24920 Oct 2015 I stated treatment with sovadi and ribavirin for 24 weeks 10 days I am hep c count 90 but 90 days I am 3630 I have went thought all appeals with health know I am wailing for access to tell weather I live or die I have 4 state liver de. I do have a att. but still the question once an a live teartment with sovadi/ribavirin who judge were I live or die I realy don't know were access or health choices az has the right to say I can live or die god bless
Hi everyone i have a free 12 weeks of harvoni i wont be needing, i ordered it on fixhepc.com its cost $1600 , i ordered mine when insurance denied me twice and as i ordered and have it delivered insurance suddenly approved me so if you need it you can leave me your email or something will send it to you for free and please i shouldn't be responsible for the shipping cost, figured i wont need it anymore it been with me for like 6 days now, mostly am posting this because of you (Kristi NM) your husband is the same range of age with me please dont let him die help is out there email me at michaelgodwin33 on gmail i will talk to my son to help anyway he can.
I was just diagnosed with stage 4 hep I'm about to start treatment within the next couple weeks I'm 53 and I'm scared I see the doctor tomorrow for consultation and to discuss the treatment any advice
In 1994 birth of my son, lost a lot of blood and needed transfusion 3-4 units. Began having chills, nausea abdominal pain. 1995 needlestick injury working as dental assistant. Labwork, scans were normal the doctors tell me its IBS fibromyalgia. Then severe joint, muscular pain Diagnosed Hep C in 2006 went on treatment interferon, ribaviron genotype 1b. Since 2008 labwork shows no abnormalities. Years later diagnosed with epilepsy also
I was diagnosed with hepatitis C in 1999. I have had eight surgeries in my life. I believe sometime in The 60's I contracted hepatitis C. I think, there was no test for it. I tried many nutrients, peptides, juicing, massages, vitamins,minerals and frequencies you name it I did it. I end up almost losing my marriage over trying to be healthy. I ended up doing the chemo interferon and Some other drug I can't spell R. Nearly killed me and it killed the virus right away. Two months after I was off the chemo my numbers came back and doubled. Now I have no immune system and I'm sick. I have some hair my thyroids ready to burst my intestines are thin and I now have diverticulitis, acid reflex problems, headaches, adrenal problems, my whole body aches, rheumatoid arthritis, osteoarthritis, nerve problem, shingles, now I need glasses, depression and you name it I had it. After that I decided there's no way I'm going back to do chemotherapy again ever. So I Started juicing again and I got a lot better at juicing right, changed my diet and I slowly got better. I decided to go back to doing frequencies (True Rife) juicing and I finally kicked hepatitis C. It took a long time but it worked. And I feel great That's my story.
Hi I was an intravenous drug user for 18 years until five years ago when I finally managed to claw my way back to sobriety kicking & screaming. I have known for over 15 yrs that I had Hep C.After finding out my genotype 6 yrs ago I got my first round of treatment (Riba and Pegasys). It failed. I tried the same treatment again a year later . Another failure. Well just over 6 months ago I went on Sovaldi,Riba and Pegasys.I got my 12 weeks post treatment results yesterday and (Woohoo!) I have went undetected. SVR at very long last. I don't think I could've went through a version of treatment that involved ribavirin and interferon again as it was brutal for me this time.. So for anyone who is treatment experienced and is feeling pessimistic about going undetected, you WILL get there. Just don't give up! :-)
One year free of hep-c ! genotype 3 ..I'm so happy to give words of encouagement to people that are dealing with this disease. I am not gonna sugar coat it , you HAVE TO take your meds on time everyday..yes ribavarin is hard on a person but , IT WORKS and thats a great thing..I took 400mg of sovaldi and 1200mgs of ribavarin everyday for 24wks and IT WORKED . Have faith & trust in your medical team this is very important to do...if you have doubts about your team for any reason (should you think their not telling you everything change Dr.s.) The important thing is having the right , Dr. , meds and be comfortable with the Dr.s..no one but you knows how you feel about your Dr. You will need some time to acclimate to your meds however once your body adjusts to the meds you'll start feeling better..keep a good eye on hemaglobin levels with your doctor so he can adjust the medicines...YOU CAN DO THIS !! it aint a cakewalk but the new meds makes it a whole lot easier...I firmly believed my faith in my Dr.s and first and foremost my !! FAITH IN GOD ! helped me tremendously...if I can help you in anyway contact me on this board so we can set-up a pm system..God Bless us all !!
9yrs. after "successfully" completing the "INTERFERON CHEMO" I Function at about 5% of what I used to. What was charateristic in my life has vanished.
Camile I have the same exact story you do as I contracted Hep A & B IN EARLY 1981, I was told to go home from a job that I managed at 19yrs old & eating off dirty clam bake trays being defrosted in dirty kitchen waterto defrost & 8 people contracted it the same time I did in New York. My ex-husband was a Drug IV user for 15yrs & a carrier of the Hep B virus.I went home to find myself In a catatonic state after I emerged out of a 51 day coma & woke up with Jaundice all over bright yellow skin, hair ,eyes, I had a Rash from my neck down all over my body called Pitiriousis Rosea it was the modt paingul itching rash like poision Ivy but instead it comes from the inside out. I was not ready to die at 19 :( I fought my way out to live it was dark for 51dys as I walked in limbo had no clue it was that bad. I did my fair share of drugs but never knew that 15yrs after It had gotten to the hep-c level. I worked out my whole life after that because I felt I had gotten a second chance to live,but to only damage my body as I got older,with Severe Juvenile RA & Fibromyalgia, Diabetic Nerve pain too and Nueropathy of my hands knees & feet the rash came back and I have been going to a clinic for 2yrs had no insurance can't work In Florida & made it to the list for acceptance of the Harvoni, I have a 6 million viral load now and Necrosis of my liver an the clinic booted me for accussing me of having health insurance through florida blue from an ex-employer and took me 5mnths to prove that I lasted one month at the employer an they carried a year of coverage without my knowledge. I have been denied for SSI & SSD for 8yrs now as I progresivly get worst all the info they have & still doubt my diagnosis as my gallbladder is failing my kidneys I have a hammock incontinent put in 2005 & had 5 revision surguries on it, I have IBS & GI problems I won't eat as my anxiety level has risen my knee,hands and feet blow up with water an bust open with sores. The state of florida has robbed me of my treatment I'm 55 I will notmake it much longer I'm breaking way down they won't approve medicaid on me & help me state wide as the ARNP told me to go drug test after countless tests & told everyone in the office my business violated my Hippa Rights and I cannot get a break here for Spit what Florida Dr did you see or them >? please help
Hi, i'm a 55 year old male from south east Queensland. i was diagnosed around 17 years ago. I had severe fatigue, brain fog, depression, anxiety. but i was so afriad of leaving my family with nothing, i continually worked harder. started a business in construction driven by my impending doom. around 12 years ago i underwent a liver biopsy, i refused to be affected by my physical constraints. And each morning i would throw myself out of bed knowing it to be the only way to stay on top. At times i drank to excess and my mental clarity suffered. And in response i would put my head down and refrain my abusing myself further. My own catch 22 situation was helping me. Inevitably my marriage suffered, as this point i started my 1st interferon ribaviron treatment. i developed a true understanding of depression. and at 12 weeks was deemed a non responder. around this time i lost a kindred spirit to suicide, a man who had been adopted and fought huge obstacles and receieved a university medal for law , majoring also in economics and going onto become major player in world finance. After his sad demise i questioned my direction and began downscaling my business. My marriage had ended in divorce as i headed into my 2nd then 3rd interferon ribaviron treaments. Again and again a non responder. Each time abstaining from alcohol. throughout this journey i had been building a grandious house, but a lonely house as i retreated to myself in my depression, paranoia and fatigue. I have just finished 24 weeks on the harvoni treatment and am required to wait 3 months to be tested for all clear. i'm now suffering fatigue on another level. But am as always aware of the metabolic syndrome, which can affect us all. That is resting when you feel tired and not wanting to get back up, which in turn reduces your stamina levels. This is where you must dig deep and fight the serpent to its end. Keep getting back up. fingers crossed and chin up. keep on keeping on. John R
Had hepatitis C for 3 years now
I had hcv for 44 years. got it when i was 15yrs old from sharing syringes. i have used pot and cigs since i was 12 yrs old. i took harvoni for 3 months. it has now been 15 months after treatment.i still have 0 viral count, and, ast and alt are both normal. pot, cigs, drinking in moderation, had NO bad effects, before, during, and after using harvoni. i think it is all due to my great genetic makeup. i do not believe in god, so thankyou modern medicine.!!! i doubt hep central will share my story.they are too bias in picking personal stories like mine. anyway, good luck to all of ya'all out there!!!, SINCERELY, SAM G.
I took the Harvoni and completed treatment successfully, which ended on September 28, 2015. I have had test 3, 6, and 9 month post treatment. However, my liver enzymes continue to be elevated. When my PC did a liver biopsy he said my liver was fine. However, when my other doctor did a CT scan, it showed the following: Irregularity of the liver is demonstrated. Fatty infiltration of the liver seen with liver. No new liver lesions are evident. No gallstones or biliary dilatation identified. No pancreatic masses or ductal dilatation is seen. The spleen is mildly enlarged. Has anyone else had a neg hep c test and liver enzymes still abnormal?
A couple of years ago I started feeling really tired, lethargic, and fuzzy headed, to be honest I thought my menopause had returned. About December last year I decided to see my Dr, I asked him for a hormone/vitamin test, after asking me a couple of questions he decided to do full bloods. I got my results the following day, saying my liver enzymes were high, and I needed a scan, so the very next day I had my scan, to be told at this point that I had a fatty liver, but needed to go to a different hospital to see a specialist. I did this and had loads of bloods done, some results I got the same day, but I had to wait a month for one result. Sure enough I saw my specialist after that month, to be told I had hepatitis c, type 3! I was mortified, my head was in a whirl, she offered me medication, and was told to go home and discuss the treatment with my husband. We talked and talked about the treatment, and I decided to take it. before I could start I had to have a test done on my heart, as the medication can bring on a heart attack if one had a weak heart. And I had to have a psychological evaluation, because it can cause depression. All was good to I went back to see my specialist. Now my situation is a little bit different, I am an English lady, living in turkey, married to a Turkish man, even though my husbands English is good, he cant translate all the medical jargon properly, and my specialist' English is virtually zero, so a lot of what I know about the course of my treatment I have had to learn through research on the internet. My treatment started with a weekly injection of pegasys, and 2 tablets in the morning and 2 in the evening of ribavirin, my specialist told my husband that I would feel really ill for the first couple of weeks, but then I should start to feel better, how wrong was she ??? The first few days I was fine, after about the fourth day, I started with headaches, the kind that feel like your head is in a vice, being crushed, then came the bronchitis, which made the headaches worse. I tried a couple of syrups, and tablets, but they just seemed to make my chest tight, and hurt to breathe, like a chest infection, so I stopped taking them, I found it was easier just to cough. Also during this time, I felt like I had flu, I was shivering all the time, I couldn't get warm at all. Then came the tiredness, and not just tired, my eyes felt heavy but I couldn't sleep through the day, although I really felt I needed to. Next came the breathing problems, I would walk just a few feet, and I was worn out, I couldn't breathe, so I would sit down, and be out of breath like I done a half marathon. Aside from these symptoms, I had dry itchy skin, hair loss, fatigue, upset stomach, weight loss, brain fog, anaemia. A couple of months into my treatment, my legs and arms felt heavy and painful, I was walking around like a 90 year old, obvious to anyone who saw me that I was in pain. this lasted right up until the end of my treatment. Today is my third week with no injection, and two weeks with no tablets. My legs just feel heavy, but once I get tired, the pain starts, my head aches are starting to subside, slightly, I am still very tired, and my skin is still very dry and itchy, obviously I have noticed no change with my hair yet, as its only been a couple of weeks. To sum up my experience with this treatment, I feel I have been very lucky, the virus had disappeared from my blood after my third monthly blood test! I was also lucky that I work from home, and although my work is very tiresome, my workload has been a lot lighter this year, and I could work around my tiredness. I didn't get depression, although I did feel my mood change drastically, I don't know whether is was due to the medication, the tiredness, or the pain I was in, but I felt I could laugh at the things I would normally laugh at. Communication was hard with my husband as well, partly because I couldn't be bothered to talk, and partly because he didn't understand fully how I was describing what I was going through, (mainly because of the language barrier). All in all, I know I am heading in the right direction, and hopefully when I have another blood test at the end of December, I will still be free of the virus. I am glad I did it? YES, because so far I am a hep c survivor.
I was treated with sovaldi ribavirin for 24 weeks 10 days latter I came back 6090 count I have 4 stage liver disease was the 24 weeks of hell worth it I am know fighting daklinza/sovaldi/ribavirin going before a administrative judge he will say weather I get treatment or not witch way will that judge rile
I had a blood transfusion in 1978,first pregnancy. Went through life martied,raising kids,working. Figured that's why I was tired at times. Decided to get checked after 2nd husband was tested and told he had hep c. I did not know what genotype. He was an iv drug user before I met him. I went to local internal med doctor,to be told that treatment was expensive and they just don't give it to everyone. My 3 kids do not have it, my 1st husband doesn't have it,thank god. I saw a gastroenterologist who helped me get treated, I,have genotype 1b. I was turned down for harvoni but accepted for viekira pak w/o ribavarin. Saw doctor less than 1 month into treatment,virus went from 100 millions down to less than 15. At end of 12 weeks I was finally undetected and at 3 month followup confirmed. Side effects dome tiredness,slight nausea (first few wreks) after treatment a few weeks of the itchys. And yes I did feel like a leper. Thank you abbvie for helping.
Hello,I have had HepC since 1972 I got a tattoo in a little trailer in Germany. After 30 days of being yellow i realized my whole life was going to be altered....Now after 44 years a breath of fresh air, Harvoni i was scared at 1st, it was hard to stay focused but i had no side affects i had more energy than ive had in years this is a blessing to me my kids to you, dont wait be strong listen to your Doctor, what do you have to loose except HepC..............Thks Gods Speed...
Well it's really our story, my sister and me. Debra, my sister, was diagnosed with hepatitis c and cirhorris about 3 years ago. The problem is the only test she has had done is a bone marrow test and it was negative. Every time we go to a doctor appointment, they do blood tests and we tell them they will be very low when they come back, so what ever test she was scheduled for can't be done, because her blood count is to low. We have been through this so many times, my sister want go to anymore appointment, because she is so disgusted and says why should she? I know my sister isn't the 1st person to be diagnosed with hepatitis c and cirhorris, so what are we suppose to do? Please HELP!
My husband was diagnosed with Hep C in 1993, we choose not to seek treatment back then due to the side effects of the treatment. My husband hasn't had any alcohol in more than 30 years. In 2015 his doctor recommended Harvoni but our insurance (BCBS) wouldn't pay for it, we filed multiple appeals and still denied. They said he was too healthy!! really??? his copies were more than 12 million, then we filed for help with the drug maker, but Harvoni had stopped helping consumers pay for it so our doctor recommended Viekara and they agreed to offer treatment. My husbands results looked good at 8 weeks, HEP C copies were going lower but at 12 weeks they had come up. So he was not cured and we continue to live life with Hep C. Not drinking alcohol is important, a very close friend of ours who had HEP C recently passed away at the age 0f 56 from the disease, we are also in our 50's, so it is hard to know you live with uncertainty while so many others are cured. I wonder if it would have turned out different if Harvoni was available to us. they are different drugs used versus viekara.
I got Hep C after a blood transfusion in the early eighties. I tried the treatment available with ribavirin but could not finish the course after 8 months I was taken off it. In 2015 I contacted Greg Jefferys in Tasmania through the internet (gregjefferys@outlook.com). For about £1,100.00 he got me generic Harvoni, which arrived just before Xmas 2015. The 12 week course was successful & I'm now cleared of Hep C. If you can raise £1,100 forget the NHS and contact Greg - he'll sort out the problem and in 3 months you'll be cured. Good luck to you all.
I have had hepatitis C since I was 27 years old I am now about to turn 61 the thing I believe that has kept me alive So long is the fact that I have been using my own stem cells & IV's , I have an MD who uses eastern , native & western medicines , I eat as healthy as possible growing , canning and freezing my own vegtables, I abstain from all alcohol and I smoke pot that I grow for my condition , I would love to do the Harvoni treatment but I have no insurance and cannot afford it, I meditate and speak life to my body, I hope this helps someone to be encouraged, God Bless us all
Hello fellow helpers ,remain steadfast,sooner or later you will slay the dragon,my name is Ray,I was diagnosed hep c positive in 1998. I am 55 now so this is the yr. That I count but who really knows when I got it .I certainly do not know for sure. This makes me advocate how important testing is!!!! Well Solvadi cleared the virus in 2014. But that was my third try.drink plenty of water when on tx.eat liver friendly foods and go as slow as you need to!!Get a experienced doctor who has treated many hep c patients. This is paramount that you do so. My sx came and went during treatment.it was gruelling.but I remained steadfast. Although I cleared the virus .after 2yrs I still feel I have permanent side effects from all the medications,But Ithank God I cleared and pray all my fellow helpers will one day do the same! Until then shine on and be strong!!
Hi I would like to reassure people that HCV is not very easy to catch through sexual contact, or nearly impssible. HCV is bloodborn almost exclusively. Unless it coincides with HIV then the risk is there through sexual contact. I am a 62 year old lady that found I was HCV positive back in 2001. I was married, my husband had used my toothbrush accidently many times, we had made love many times, he used my razor accidently on occassions. We lived a close married life. My diagnosis devasted me. In 2002 I took 6 months of treatment, after three months on treatment I became SVR but carried on until the end. I remain SVR today in 2016. My husband tested negative after 20 years of sharing the bathroom and sex with me. What I want to say is that HCV is not that easy to spread, it is mostly blood to blood. So if you have had sex with an HCV positive person the risk of catching it is so low, practically none existant. If you shared razors and toothbrushes please try not to worry to much either. As most probably your partner or sibling will be fine. All my family are negative. How many times did my husband mop up my blood? Lots! Please try to be calm and do not read behind the lines of the incorrect information you read on the internet. HCV is blood to blood, so if you cut yourself your not a leper remember this, just quickly patch up your cut just like everyone else do's. Last of all carry on as normal.
I was diagnosed with non A/B hepatitis in 1980s and was very sick. I had a history of IV drug use , and other risk factors as well being a health care worker exposed to blood products and having multiple past surgeries. I was better diagnosed in 90s with Hep C 1b. I was treated with interferon and ribaviron for 48 weeks. It was a harrowing experience, though I had cleared the virus 3 months post treatment, However, in 2000s, I discovered my Hep C was back. I finally understood why I had been suffering with chronic low energy, why I was able to work but barely, and why I struggled through each day, needing to sleep through most weekends and vacations. Luckily, I listened to my doctors back in the 1990s... I stopped drinking alcohol right then and that alone probably saved my life, and my liver. Fast forward to 2016, I was given the opportunity to try Hep C treatment again, this time with one of the newer, gentler therapies-- for me, it was Harvoni. I have only just started my therapy but already, I can feel my energy returning, like I haven't felt in years. The side effects are real, but nothing like what I experienced before. I am full of hope now, which is so different from what I have lived with for the past 35 years. If you are wondering about trying treatment again, I only hope that you can be encouraged by stories like mine. It is so worth it to take that chance, and begin this journey. It may help you find the life you thought you'd lost forever.
I want to start by saying I am terrified if this disease!!! Which makes it even harder to deal with! I lost my boyfriend of 5 yrs.to hep c! I went through every single step, stage, treatment, doctor after doctor and would do it all over again for him!!! But it was affecting me in ways I wasn't even aware of until about 2 months after his death!!! Then "DEATH" was my every thought! I just was given by our gracious God my 3rd grandchild and I was only 46 at the time and I wanted to keep living!!!! All that kept going through my mind was "I have the same disease my boyfriend just "DIED"with then came nights of insomnia!!! I was afraid to go to sleep b/c I was afraid of dying!!! It was s total nightmare!! In my head I thought ok if I am awake and I began to feel pressure on my right side I will know my liver is shutting down but again my sick thinking if I were asleep & my liver fails I will just die!!! 'Crazy&Insane' right!!??? Then comes the panic attacks omg (pure hell)!!! I was an absolute MESS!!! Then came clinical depression and more & more negative thoughts & fears if it had anything to do with hep c I was dying from it!!!! Then God opened a door!!! Thank you Jesus I was going to a clinic and a G.I. doctor from Florida agreed to sign a government contract for trial experimental on Sovaldi & Ribivirin with or W/O interferon I didn't have to take the interferon! Thank God! But I did take Sovaldi & Ribivirin regimen for 6 months! I am genotype 3a so the cure rate was 87% for me as opposed for someone who is 1,1a,2,2a and I am not sure after 3 ! But I took my last treatment in December, 2014 and had my first lab follow up & viral count in Jan.2015 and I was UNDETECTED FOR THE HEP C VIRUS! And I am checked every 3 months and today I am still hep c cured!!!! So there is hope and the new treatments do work and they are worth every minute of your time and some side effects that goes along with the med.'s but it is worth it to me so I can live longer if that be God's will!!!!!! The only concern I have is I still have a terrible rash on the bottom of my legs & my scalp!! That concerns me!! If anyone knows or has any advice on why I still have a rash please let me know!!!
To Ettore S- Hello to you and couldn't wait to respond to your story. I'm in Victoria, am 48 and have a similar history with treatment. I completed 6 months of peginterferon and ribavirin in 2009/10, and relapsed. The effects at the time included severe cognitive decline, extreme fatigue, deep bone aches and hair loss, intensely itchy skin and basically a total loss of quality of life. My brain turned to mush- I couldn't hold a thought, indeed had none! and my words would come out in the wrong sequence. I could not read, concentrate or recall anything. I was too brain damaged to do anything about the brain damage! and couldn't work. I dragged myself through rearing 3 children alone, when not sleeping during the day. No support network or family. I can relate to your absolute shock and horror that post-treatment, things do not improve to much extent- it has been years and the crippling bone and joint aches, the chronic fatigue and severe brain fog, depression/anxiety keep on keeping on. Any doctor I visited told me it was 'out of my system'..was dismissive, unbelieving.., and blood tests found nothing. I would never, ever undertaken this treatment regime had I known the repercussions! I have struggled to cope day in, day out and year in year out. The cost to my life has been huge. The children have missed out on the best of me- physically, emotionally and financially. Personally, I have not been out socially and am too damaged to entertain a relationship, to mix in normal society and to just enjoy life. I want to give you hope, though, Ettore! I began the new, PBS- approved antiviral drug treatment four days ago- last Wednesday. From the first day it has given me a clear brain and energy, with no side effects!! I feel vastly improved. I have genotype 3a, so am on Daklinza and Sovaldi. Being treatment experienced I do have a lower chance of clearance but am hopeful I will succeed in ridding myself of this curse. So know you are not alone, and that I sympathize with all the struggle, cognitive and mental health issues and physical onslaught this hideous nightmare brings. Please find out whether you can begin the new treatment, I hope you do so soon!! xx
As a child I used to accompany my mother to hospital appointments and she was very vague when I used to ask what was wrong. At 13 she told me the truth, that she had hepatitis c. I asked if there was a chance that I could have it and was assured that it was highly unlikely. Between 1 and 5% transmission rate between mother and baby - the odds were in my favour. A blood test was arranged and a week or so later I found out that I did in fact have it. It was quite a lot for a 13 year old to take in and I remember crying when I found out. I was given a booklet explaining the virus and I read it so much that I knew it off by heart. I wanted treatment straight away but it was not offered until I had completed by GCSEs at 16. I had the obligatory liver biopsy - a painless procedure the doctor promised me - ha! It was horrendous. It did however show that I had minimal liver damage. I had a six month course of interferon and ribavirin. It affected me very badly, partly I think due to the fact that I was pretty much a child and had a small body mass. I dropped out of doing my a-levels as I was too ill to continue at school and it was tough seeing my friends carrying on with their lives. I was very anxious awaiting the results at the end of the six months - which happily came back clear. Each time I came back for testing I was a nervous wreck for the weeks prior but each time the result was negative. As I was part of a trial I was asked if I would mind continuing to be tested annually but I had to decline. I could not face the thought of that anxiety each time. The care and support that I received from the nhs was faultless and I'm eternally grateful that I was able to to be treated and to have the virus cleared from my body. Looking back, it was a huge ordeal for a 16 year old to go through, at such a pivotal time in life, but I have no regrets.
I contracted hep c from iv drug abuse somewhere in the past 5 years. (Crazy to think about because if you knew me and the way my life was heading, you wouldve guessed me to be the last person to develop a drug problem). Anyways I cleaned myself up and am no longer using drugs. Originally I had stage 1 liver fibrosis but recent tests show I have gone down to stage 0. This to me was very odd since I still am infected with hep c as my condition is at the chronic stage until I receive treatment. I am currently going through a bunch of paperwork to get viekeria pak for free. They really make you jump through a bunch of paperwork and fine print in order to get the treatment for free. What are the chances I will even get the treatment for free? Does anyone know? Thanks
I am a recovering patient that lives in Queensland Australia. 55 year male. In 2009 I completed the Interferon and Ribavirin Hep C 24 week program which was not successful and in 2011 completed a 48 week program. Each program was not supervised by a Hepatologist as the state I live in did not have one. During treatment I suffered quite a lot... Worse of all loss of taste, insomnia, loss of hair, rashes/lesions, mouth absesses and huge loss of weight (108kg down to 60kg, now stabilised to 79kg). Post treatment tests found cysts in liver and kidneys, peptic ulcer (I believe was there before treatment), cyst in colon (removed) and rheumatoid athritis. My white cell count has been erratic since treatment. I have had surgery in one of my shoulders, end of socket heavily calcified. My head issues cleared mid 2015. The cysts were found to be non-abtrusive. My current issues is that I have extreme muscle and joint pains and suffer from little stamina. Fulltime employment is an impossible effort. The effects and damages of treatment are ignored by doctors in this country, and they are forced to treat symptoms. I am also labeled "Mentally Ill" by doctors I am seeing and this excuse in continually hampering my recovery. There are no support groups in Australia. Has any recovered Hepatitis C patient been through what I have been through? Can anyone suggest anything that can help me improve my health? I have refused any form of pain killer or anti-depressant over the past 8 years. In the process, I lost all family support as "Mental Illness" is also used to get rid of husbands, fathers and grandfathers out of people's lives. It is also used as an excuse used by doctors in this country, hence delaying recovery. Can anyone help... please? Ettore S...
Well..I took hep c treatments that were a regimen of Sovaldi &ribivirin! I done 6 months my last treatment was in December, 2014! The treatment's weren't as tough as I expected! And I continue to test neg.for the virus!, Praise God! But I still have a very uncomfortable rash that hasn't improved much at all!!! And I constantly stay concerned about that & I just got my disability in April and I still haven't had an ultrasound nor a biopsy on my liver! But I have had a Fibrosis blood test and they keep reassuring me that the test is very accurate! But my concern is I am genotype 3a and it is kinda rare in the U.S. as you know most American's are 1-1-a so yes I am concerned! Does anyone have any advice??!!
Hi there. My names Rachel I would just like to share my storey to others who have hep c and feel there is no way out. Well I'm here to tell you that there is and your life is not over because of this virius. I was a heroin addict for many years between the years of 13-21. After 2 years of smoking the drug I was not getting the Same affect and my habbit was getting worst so I made the risky decision to started injecting. I finally got myself clean after alot of hard work and will power. I feel pregnant 18months later. I was delighted and was happy to start my new life clean with a family. After going through routine blood test when I was 16weeks pregnant the doctor told me I was hep c positive. Abousoluty deverstaed I thought my life was over and I would pass the virius on to my baby. The doctor explained to me that there was a very low chance that my baby would contract the virius. After I gave birth to a healthy baby boy I was placed on a 12week course of drugs that would kill the virius and have regular blood test to check this. And to my delight I clear the virius and my baby did not contract the hep c from me. Now he is 1 yearsold he's happy healthy and has two parents that love him dearly. As for me I couldn't be happier and it just goes to show you can have the worst news and go through the most horrblie ordeal but still come out the other side with the right care and time. My message is to all that is worried by this problem.. it's okay and there is a way out. I promise.
At 22 years old I contracted hep c but didn't know it then. . I am now 62 years old . at 42 years old I found out after I donated blood I had hep c and tried the injections and that did not cure me I did this treatment for 18 months and followed all the rules but it failed. I began using alcohol heavily and by the age of 62 I was completely swollen up like a balloon waters dripping from my pores and my joint pain was unbearable my bodily functions were all messed up .So my doctor recommended I try sovaldi and ribavirin for 12 weeks and it worked . I am no longer swollen and joint pain is gone . I am feeling better and although I have cirrhosis my liver is healing itself . I look forward to enjoying the rest of my life with my family . the ribavirin was the toughest part it makes you feel depressed but just hang in there . looking forward to my 63rd birthday .
In 1972 I was sent to Vietnam, I was a little upset because I was suppost to go to Germany But the military decided I should go to Vietnam instead anyway I got morterd a few weeks later & was given a blood transfusion or so I was told I don't remember alot from that time & when I was getting out of military they said if I reuped I would for sure go to Germany but I told them to stick it. That injury was in 1972 & I found out I had hep-c in 1999, I went thru 2 treatments of 48 weeks in 2004 then again in 2013 & I thought that the cure would kill me but then VA gave me Harvoni for 12 weeks in jan 2015, my liver has tested normal since, of cource I don't drink alcohal any more, I do have a beer once in a while now but now I feel good & I think hep-c is gone from me now, I do smoke a little pot or about a bowl a night, I think I finally beat the hep-c ( I hope).
I found out I had hep c when I donated blood 9/11 during our countrys tragedy. I either got it from air gun shot in military late 70's or brutal rape in 1995. That is not important to me for some reason. I was never ashamed but hated the stigma and watch even good friends cringe when I told them. I did nothing until about 12 weeks ago and started Ribivarin and Sovaldi. I have 4 days left. I will not pull punches here. My virus was over 15 million, at week 3 check up (which was video support like skype it sucked) I was having chest pains at least twice and had told them I had heart problems with stent placement. I should have never taken ribavarin. Anyway, I digress, by week 3 my virus had dropped to less that 15. that is not a typo. Really, 15. I was sick though, had to get nausea medication and had anemia at week 3. I was 140 lbs and they put me on 600 mg ribivarin in morning and 400 plus 400 sovaldi at night. When they saw the anemia at 3 weeks she cut out the night time ribivarin. My mental state began to suffer at this point also. By week 5 I got the rash from hell on the front of both legs from ankles almost to knees that itched so bad I wanted to take a knife and cut it out. I got visteril which did nothing. It went away except 1 quarter sized sore on my leg that just recently (past week) flared up and now the rash is back so bad on the back of one leg. It itches so bad and there is nothing I can do. I lost a lot of my hair. A lot. My mental state has still declined to where I have cussed every doctor I see for putting me through this. I have 4 days left and YES, I am grateful that I am virus free but it really liked to have killed me. Make them tell you the full extent of this medication side effects. I feel it is poison. I have kidney issues and heart issues which I never should have gone through this. I had genotype 2b. The nurse did say that I was among the small percentage that had problems with treatment. I am by no means saying don't do this treatment. It is easy to do. But be prepared and be realistic. You might not feel so good and you might be like me and have made a lot of enemies with a lot of people because of this personality change. LOL. I hope when I stop, I can clear this out of my system but it takes 6 months to clear the ribivarin out of your system. The rash is the worse thing and the nausea. I do have a sustained viral response so I am cleared with no shots, but don't let them tell you there are no side effects, like they did me.
I went in to donate blood plasma. On trip 4 of 4 I was called into the office and told "you may have HCV, get an ultrasound because it may be difficult to trace". Watch utensils after eating and given some sheets of paper about HAV, HBV. I had an incident at the blood plasma place that was smelly with blood and crowded. The attending person had a dull very large needle and it seemed to not be administered correctly on my trip 3 of 4. So I did....I went to emergency room got a liver bx and vaccinations for HAB, HBV. I was given a script for Interferon and RIBA. I was told to apply for the grant that cost nothing to me, but was worth about $25M for both meds. I was told I could do that or just wait and see. So I waited 7 years.....I finally heard there as a cure (SVR) 7 years later and that I needed to get my genotype. I applied for a viekira pak grant....had a colonoscopy first, drug test, EKG and more blood tests. I still had HCV gt 1b and my viral load was from 1.6 to 3.6 by the time I got the meds. The meds were absolutely fabulous. In 4 weeks I was not detected. At 12 weeks (no RIBA) I was cured.....SVR!! My doctor and I both had a huge huge huge laugh because everything went smoothly and I was cured!!!! It took about 3 months to get the meds. My insurance said insufficient medical justification and wanted to give me I/RBV with a 62% success rate. My doctor wanted to give me the 100% success rate chance and wanted me to take the viekira pak. So forth and so on. I am now cured!!! Glory to God!!!
My husband got hepatitis 20 years ago. I met him 10 years ago and he had liver cirrhosis by then. In 2013 he had a liver transplant after being severely sick for 5 years. He was like a brand new happy to be alive person. Now he is taking harvoni and ribavirin to treat the hepatitis. He was fine for the first two months of this 3 month treatment. But he has about 2 more weeks of the treatment and suddenly he is very tired and very emotional. Cries all the time and thinks he is dying and noone cares about him. But his blood labs show the hep c is gone and liver is dining better than before. Is the depression and weakness part of the treatments side effects? Its making life very hard for me, but I'm hoping it is going to get better after he stops taking these two medications. Please tell me I'm right!
I am suffering hcv genotype 1a. at 2008 i vomit blood . byt not dianose hcv. at that time i was a student. financial effect does not allow me to treet it. in 2013i have took conv interferon but not got neg. then treated by pegasys. but no result my viral load is 4.5x10^6. now im using harvoni.stress tideness vomting. fatigue is effecting my life
Hello, I've had HepC for over 50 years. I recently took Harvoni for 8 weeks and it failed. It's still detectable. My viral load was 3.5 million when I started the treatment and it went as low as 50. I asked why I wasn't given another month to see if I could reach the undetectable level and was told, "if your viral load was over 6 million when you first started Harvoni, you would have received the 12 week course". My last lab test showed my viral load was at 1 million. Oh well, at least I'm lucky to be alive and my liver, so far, is functioning OK. BTW, my HMO is Kaiser Permanente.
I was diagnosed it 2006, after having GI problems that would not do away. Because my liver enzymes were elevated, my doctor recommended a HepC test, which turned out positive, no surprise there as I had dabbled in intravenous drugs in the mid '70s. My Genotype was 1A. At first I felt this was a death sentence, but then common sense took over, and the first step I took was to quit drinking, a problem I had been struggling with for many years. I also cut fats and sugar from my diet. A liver biopsy revealed Stage 2, bridging stage 3 fibrosis, a good thing I quit drinking! In January 2007 I did the Interferon/Ribavirin treatment, for 6 months. My first PCR showed the virus as undetectable, a good sign! Treatment was the worst ordeal of my life, my WBCs dropped dangerously low... 6 months post-TX showed the virus had returned with a vengeance... ...So I waited, for 9 years. Still not drinking, still keeping up my healthy lifestyle. Finally, this past March, I began the 3-month Harvoni treatment. So far my PCRs have showed the virus as undetectable! Next week I do my second to last PCR, fingers are crossed! This has all been a good thing for me; not drinking has opened up so many more doors in my life: I have met many wonderful people along the way because I have gotten re-involved in music (something that fell by the wayside when I was too busy getting drunk every day). I have no complaints or regrets!
I had hep c for many years I contracted it from a hair transplant with infected needles . His name was Dr Cordero had offices in Long Island and Queens ! By the time i took blood tests and confirmed I had Hep C he had closed his practice and shut down both offices . I'm cured now over 2 years thanks to the new medicines. My Doctor is Dr Dietrect at Mt Sinai hospital in NYC and I want to thank him and his staff helped to save my life ! I want to thank my wife who was very supportive thruout the years when Hep C was in my blood and while I was receiving the treatment ! I'm cured now and very grateful to everyone and to the pharmaceutical companies that found the cure!
I was diagnosed with HCV in 1999, having had a brief affair with a man who had the virus and deciding it was better to be safe than sorry. However, I never expected to test positive for genotype 1. It was a real shock and meant I had probably had the virus for more than 30 years, having experimented only once with IV heroin in my early 20s. I felt dirty, diseased and disgusting, a completely illogical reaction but there you go. Also, I was ashamed to tell anyone except my closest friends, and felt I had to contact the men I had spent any time with sexually over the years to let them know. The worst part was knowing I had to admit it to any potential partner I let into my life. Well, a new and lovely man eventually turned up, but I knew he was more than a little concerned about my revelation; it meant we didn't have sex for some months after we formed a relationship, due to his fears about contracting the disease. The good news is that he finally overcame his qualms, after I persuaded him to visit my liver specialist with me to put his mind at rest. We're married now, so that worked out well. Symptom-wise I didn't feel any different for years after my diagnosis: my viral load was very low and my LFTs normal. Then along came menopause and things gradually began to change: my viral load crept up gradually, as did my other liver markers, and I began to feel less energetic, especially in the mornings. I did my research, though, and began taking milk thistle every day, as well as a bespoke herbal liver conditioner and theracurmin, all chosen for their anti-inflammatory efficacy, and they worked. Combined with healthy eating and daily exercise, I've remained generally quite well. A few years ago my gastroenterologist wanted to enrol me in a clinical trial of interferon and another drug (ribovarin?) but, having researched the success rates of similar treatments (poor for genotype 1) and, more importantly, the potentially horrible side effects, I refused. I continued to live as healthily as I could, despite my love of red wine with dinner. In 2015 I began hearing about Australians sourcing a generic form of Harvoni from India and thought that if I began to feel unwell I would do so myself. Luckily, that wasn't necessary, as this year the Australian government added Harvoni to the Pharmaceutical Benefits Scheme. My specialist advised that I was an ideal candidate for that course of treatment, as my viral count was only 1,000,000, my LFTs had fallen considerably and a doppler liver ultrasound revealed I didn't have cirrhosis. I've now been taking Harvoni for 35 days (of a 3 month course) and am awaiting the results of my four-week blood tests (fingers crossed!). The side-effects have been mild to almost non-existent: some insomnia and resulting tiredness when I began taking the medication and patches of dry skin on my face, but apart from that very little to report. My advice to anyone with the opportunity to complete a course of Harvoni is, go for it! And kudos to the Australian government for allowing its citizens access to such an expensive treatment at such a low cost. Will tell more once I get my test results.
I was admitted to the hospital several years ago gravely ill with a severe kidney infection that rapidly deteriorated to kidney and liver failure. I was lucky to survive, but with the help of good medical care, I did! Testing revealed that I had hepatitis C, the probable culprit of my problems escalating so quickly. I was floored by the diagnosis. I had been a licensed nurse for many years though, and that is likely how I became infected. That was in 2012. I began a complete lifestyle change of moderate eating habits and avoiding anything that was toxic to my liver. I also found out that I had early liver cirrhosis. In 2013 Harvoni came on the market, and I took the full course of treatment with minimal side effects. Today my infection remains resolved, my liver is stable and the future looks bright! I will, however, continue an alcohol free liver friendly diet, get plenty of rest and avoid stress. I get regular checkups with my doctors as well. I am 60 years young, so don't think it is too late to improve your quality of life!!!!
I have had hep c for over 20 years. I had no idea until I wanted life insurance. That blood test showed elevated enzymes Then my doctor gave me the news. Because of job I kept it secret from everyone except my wife. I had no symptoms at all. And treatment would have cost me my job that I had just started. Then harvoni came along and I told the doctor I was ready to be cured. After a referral I was able to see a liver Doctor. He and his staff are great. At first my insurance would not cover it. But I filed an appeal and the Drs staff got me approved. I'm at 8 weeks completed I have 4 more weeks to go after 4 weeks I had no sign of virus in my labs. Don't give up.
My husband had hep c and I am soooo happy to say he is now free from this horrible virus... My hubby was always feeling ill all the time, he was always tired and run down any activity done would knock him out for the next couple days. Our sex life was non existent and we had a very active one before. My husbands liver specialist recommended to start the medication called Harvoni and let me tell you it's been a miracle cure, he's been on it 4 months and has had multiple blood exams and they all come back with the virus being untraceable. It's finally finally gone!!!!!! My husbands strength has returned his appetite has come back he's finally gaining weight once more, he was weighing 127lbs and now is at a fantastic 150lbs and our sex life is back in swing which makes me a happy camper!!! You may all want to ask your doctor about this medication it's amazing to say the least... I'm so thankful to our doctor and to the developers of this magic pill... I wish you all health and happiness today and forever.
I had hepatitis C for about 40 years. I started getting serious symptoms about 1998. I started on treatment with interferon and Ribavirin for a year and my viral load got down to 94000 after being 5000000. It did not go lower. Years later I started on Interferon, Ribavirin and Incivek. Ist month I went clear but side effects were terrible. Bisters on my legs, My hemoglobin level shot down to 7 and even with medication it stayed there. I had 5 blood transfusion and 3 plasma transfusions in 2 months. I stopped At 2 months because the hep c came back. Then in 2014 Havoni hit the market. It took me about 5 months to get my insurance to pay for it. and since I had fail so many times before the doctor Wanted me on it for 24 weeks. 1st month and every month after that was undetectable. It has now been Over a year since I stopped treatment and energy level is getting better as I am getting older. There was no Side effect from Harvoni. Oh yea I am 64.
Hi everyone, I'm 37 years old and have had hepatitis c for many years, over 15 years. When i found out i had it i made sure my drinking habits changed and my general lifestyle became much healthier. I was lucky enough to get onto a trial for the drug Vikiera Pak. To be honest i was sceptical, as the pills actually gave me more energy, i did not see how these pills could cure me. I finished my trial in May. I got the all clear a few days ago. No more hep c. Unbelievable how these drugs work. So for any of you who live with a dark cloud over you, know that there is hope. Get onto the drugs, the nurses will give you the best drug for your strain. Finish the course it is worth it! Good luck
I didn`t know I had Hep C until I started feeling lethargic and went to the Dr. and after bloodwork it was determined I indeed had Hep C. The treatment at the time was interferon and Ribavirin and had talked to my Internist about treatment. Having to work full time I knew I could not function on those drugs. So ten years went by and my viral numbers would rise and fall and my muscles would fatigue and had less and less energy. After a liver biopsy I found out my liver was starting to damage. I was starting to get concerned about my health even though I said I was not going to seek treatment, Then I saw an advertisement about Harvoni. It was stating a 96 to 99% cure rate with just one pill a day for up to 12 weeks. So I went to see my Dr. and we did another biopsy and a scope down my throat and I was still Geno type 1 so the Paperwork started and the ins. company approved my treatment. I contacted Harvoni online and they sent me a 5.00 co-pay coupon and the medication was ordered. I was on a 8 week treatment and after 4 weeks received another 5.00 coupon from Harvoni and continued my treatment all the while doing bloodwork to check my viral numbers. After 8 weeks of treatment the bloodwork showed NO HEP C in my blood. I`m due for 1 more blood test to make sure it hasn`t returned because they said it was a new medication....I recommend this for everyone!!!
My story began about thirty years ago when i was born during the cultural revolution in mainland china (basically one room hospitals and reuse of needles [sterilization theory didn't exist in China because we were in a war for our lives]). i was pretty bad as a baby mostly due asthma and viruses hanging around. anyway got diagnosed when i was 17 after living in the states since the age of four. i kinda didn't know what to think when i first got the news but i was given two forms of hepatitis to deal with B and C. after seeing the GI doctor i got on Viread and my count for B went down to near zero after about a month even though it was 2 mil or something. i am currently on that and Viekira Pak after waiting three years of waiting and i hope i get better with it soon as my first blood draw to check is next week so fingers crossed. but what i wanna say is the side effects of viekira can vary and i already have experienced the steroid like rage of ribaviran three or four time in the last week, it aint fun. i say try to find medication like Melatonin to help stifle the rage before it hits. hope you guys find better ideas than i can about the side effects like the sleep issue. since i have found a few but i'm working on it
I just completed a 8 week region of harvoni all went well during no side effect I did blood work after the first bottle it came up undetectable now I have to do blood work after completing the second NY concern is that I'm getting headaches after completing both is this normal? idk but not migrainesure just regular I hope it wears off I read that it's normal but I feel better.
I was diagnosed with Hep C in 2008. I found a liver doctor and proceeded down the path of getting rid of this disease. I started taking the medication Pegintron and Ribavirin. This was supposed to be a 48 week process. I felt horrible all of the time, with flu like symptoms and throwing up multiple times a day. Around week 12 I got so sick I ended up in the hospital. The medication depleted my white blood cells and I could not fight off any infection. My family thought I was going to die. After recovery, I would not take anymore of the medicine. My liver biopsies were coming back fine and I had no other symptoms of Hep C. I continued with a biopsy every 2 years and they always came back fine. I thought I was one of the lucky ones that the virus would not make me sick. In 2013 when the new Hep C medication came out I did not take any. I talked with my doctor and said I would wait until my liver showed signs of a problem. My liver biopsy in January of 2016 came back and indicated severe cirrhosis. I went to a major hospital in Penna. to get opinions from their liver team of doctors. My MRI and other tests not only showed cirrhosis, but also showed 6 cancerous tumors. I am currently going through a number of efforts to conquer the cancer, and worry every day what the outcome might be. By the way, I was put on a regimen of 24 weeks of the Hep C medicine Harvoni, and without any side effects whatsoever, my viral count is undetectable. I am cettain that had I taken the Harvoni back in 2013, I would not have cirrhosis or cancer. Please do whatever you can to get the new Hep C medicine; it works without side effects.
I was infected with genome 1 back in 2007 by sharing a needle to shoot up heroine. I cleaned up my act a few months later and basically just lived with it. I drank regularly. Then Harvoni came out. Thanks to preexisting conditions being dropped I was able to get insurance through United Healthcare. I was approved for 8 weeks of Harvoni ($30,000 for 28 pills x 2) After 8 weeks I tested non-detectable and have my 3 month follow up next month. I 100% expect it to come back clean. It really works. Don't wait. Get it done. My viral load was 1.4 million and it dropped below 12 within the first 4 weeks. This is a great time to have hep c.
I contacted Hepatitis in 1952 at 10 from an intravenous treatment at a children's hospital in Romania. At that time they could not name the type Hepatitis and the doctors told my parents that my blood will always have some remnants of the disease and i cannot ever give blood to nobody. 41 years later now living in the USA after a routine blood test the doctors diagnosed that my Hep C virus was dormant in my liver probably never advanced in 41 years. The biopsies were good but after another 7 years the virus attacked my liver and i was diagnosed with Cirrhosis at early stages. Fortunately again it was 2016 and today 8/22/16 after the blood test of week 4 on Harvoni finaly after 54.5 years i am free of Hep C virus. Still have 7 more weeks to go and more tests but the forcast is excellent. I can't finish this before i mention that prior enrolling in to the ACA i did not have insurance for 4 years and i will be eternaly greatfull to the creators of this health care law for helping me to afford this treatment.
As a teenager, I was pretty wild and used drugs on a regular basis. through this I contracted hepatitis c. I found this out the day my son was born 17 years ago. in 2008 I was among the first group of people to have the treatment to clear the virus successfully. my dilemma now is, I am now 39 years old, my husband has never been checked out of fear of me passing it to him! stupid! I know! I am a successful healthcare worker now, my past well and truly behind me. I applied for a in a hospital recently and they rang me today to say I have got the job but they need blood tests from me. I am so worried they are going to realise I had hep c and judge me on this and refuse me the job on these grounds. I am also worried have I given hep c to my husband and has he re-infected me? I am freaking out, this has really come back to haunt me and I just don't know what to do, can someone please give me advice? can they refuse me the job if I had hep c years ago?
Last year 2015, I was on Harvoni for 8 weeks. Did not work because of my geno type. This past May 2016, I stated taking "Viekira Pak and Ribavirin. My 1st blood panel showed I was 99.9% cleared. I have been on 12 week program. Side Effects, tiredness, blur vision, headaches, dizziness, lost of appetite because of acid reflux, shortness of breathe, irritated daily, crazy dreams, insomnia, forgetfulness. I just completed my 2nd blood panel and will get results on 8/25. There is a program available that will offset the expensive cost.
This is a story that was done for my Best Friend of 45 years by his stepson. Look at the link and decide for yourself. https://vimeo.com/album/3876181
I wanted to share the short story of my story to give hope to the weary, I was diagnosed with hep c in 2013, ... I contracted it by living a risky lifestyle when I got pulled into addiction I was on heroin. I got clean in 2012, When I was first diagnosed I was told that my blood levels were low so ultimately I went almost vegetarian for about a year-and-a-half I ate plenty of garlic cabbage salads lemonade mixed with cayenne pepper on a daily basis and at the beginning of 2015 I went to the liver specialist to see if I could get treatment, The Specialist checked my levels and no levels were found it's a Bittersweet story because I passed it on to my unborn child but I have hope treat your body well and even if it doesn't completely go away you can have a long healthy life
I was 37 and not feeling so great my partner suggested The doctor we had 4 kids under 14 not wanting to fall over as there was only one income went to a doctor took bloods got a finger up the butt and was told to come back for results went back was asked if i was an intravenous drug user then was told i needed to have HIV tests also my partner was tested this caused stress i had no idea existed suddenly i felt broken and my relationship with my partner was strained life insurance was canceled i was feeling sick with headaches kids were pushing the boundaries on all fronts i started on the herb trials CH 100 them one more with a placebo and active milk thistle i found both treatments made me feel better but the virus was here to stay started to eat consciously and stopped drinking being conscious of my blood had always used condoms for birth control keep the razors and tooth brush away it just makes life so much harder but sometimes things just come our way and you need to push on with Gen 1 B earlier treatments weren't an option thank god for that Viekira Pak just got accepted on the PBS so im half way threw treatment im now 58 . Good Luck peopel
I contracted Hep C before they even had a name for it. I tried interferon, only 1 dose, and returned unused portion to my pharmacist. After 35 years, the pharmaceutical company came out with Harvoni. I contacted the company and qualified for free medication. I was very lucky. I just had my 6 month test and "there is no evidence of the Hepatitis virus. I had no side effects what-so-ever!!!! I felt great, even increased energy with my first dose. I am so grateful.
Hello to everyone suffering from Hepatitis C. I have a very very good and happy story. Back in 1989, i went positive on a test for hepatitis. I was on my early 30's. I was raising 2 boys & just landed a job. I feel so good around that age & never really thought about this positive thing in me. The doctor told me it was at a dormant stage,but it can start acting up when i get older. Sure enough by the time i became a grandmother the 2nd time, 2007, I started feeling really sick, always tired, almost everything i ate makes me bloat, then the gas started up, i'm always so gassy all day, i decided to do some research about food, i stayed away from Gluten and lactose, it helped me a little bit. Around year 2008, I planned on getting treated but the medicine that i'm supposed to take showed a lot of bad side effects, the clinic was ready to get me started but i was not ready. I was scared to poke a needle in me plus the pill i have to take. I stopped seeing the doctor who was going to put me on this treatment. My husband was very supportive of me and what i'm going thru. He learned about this new drug that is suppose to be on it's way and i only have to take a pill a day. We waited, finally 2015 i decided to go for it. My family doctor referred me to a Gastroenterologist, and we started a brand new test, yes i got Hepatitis C and on my way on stage 2&3. He said to better do it now or else... To make my long story short, i went on a 12 week program taking this miracle drug called HARVONI... It went well for me i hardly had a side effect. i ate well and just after i take each pill, i get drowsy. Warning... do not drive after taking this pill. I took this pill one time and went on my way to see my grandchildren, 1and a half hr. away, i had to pull over 2 times just to keep me on the road, i got to see them and live to tell this story. If anyone is afraid to go under this medication, do not be. I'm 59 yrs. old and well. I was told i'm cured within the 8th week after taking these medicine, but not until the last blood test which was after i completed the 12 weeks, The doctor looked at my report, turned to me and shook my hand and say THE VIRUS IS GONE. Thank you God and everyone, from my doctors and the makers of HARVONI.2
Back in January of 1986 I started down a bad road to a bad part of Brooklyn, New York filled with heroin and cocaine, by 1987 I was diagnosed with hepatitis C. Fast forward to 2000 when I finally got off the drugs and was starting to live like a human, my doctors told me I still had the hep and my liver was starting to show signs of degradation but, they prescribed pain killers such as Vicodin and Norco all the way up to me getting healthcare insurance due to the affordable care act when my Kaiser doctor got me on to a non narcotic antiinflamatory called Meloxicam which allows me to function almost pain free. Meanwhile the damage to my liver was getting worse and after 2 full years of paying stupidly large sums to Kaiser every month, I demanded they cure my hepatitis C. The 1st bottle of Harvoni cost me $475.00 through Kaiser's pharmacy and I about stroked out right there. Needless to say my credit card took a big hit every 2 weeks for a total of 8 weeks and now I do not have a detectable trace of hepatitis in my system. I am grateful because I am cured but, I was held hostage to this disease for close to 30 years due to cost of treatments and my inability to get insurance because of pre existing conditions. I have 16 years off of drugs and alcohol, I do not miss the stuff either. Big Pharma is ripping off America and we allow it to continue happening for what? Seriously, for what? People need to wake up and stand up, this country is supposed to be for the people, not for Big Pharma.
I was diagnosed with hep c. After a routine blood test. I was in the army from 1983 until 1986. I pretty much gave up hope. That I would live a normal life. With the constant fatigue. I saw the commercials for harvoni and talked to my doctor. Long story short. My insurance company covered the treatment. It cost me 5 dollars a month for 3 months. 95 thousand dollars later. My blood tests have shown that it's gone. 100%. I feel like I've been given a second chance at life. I'm now 50. And I need to start a retirement fund. Before I wasn't worried about it. I didn't think I would make it to retirement. Typical. Life throws you another curve ball. That said I feel better than I have for 30 years. But because I didn't think I would live to see retirement.........
I found out I had hep c in1999. The most important information I can provide is that I was able to get the medication from Australia. I was able to obtain the generic Harvoni.If you do the research you'll find the generic is a viable alternative. Within four weeks of taking the pills I cleared the virus. At the end of the medication I am still clear. The cost of the medication with shipping is significantly less than any cost I would have incurred with Medicare.
I just finish a Combination Treatment of Vikira and Rivovirin.And after a Long Six Month Treatment it was a Sucess.I had been Treated 10yrs before and it was not a Good Outcome.But this Time I was very Blessed and I have Won against it...So Fight and You can get Rid of the Disease...
I had Genotype B, detected during a routine blood panel in 1993. After one failed treatment 2 years ago with Solvadi and Ribavirin (12 weeks) my doctor put me on a longer treatment of 24 weeks, using Solvadi, Ribavirin and Daklinza. Aside from numerous side-effects from the Ribavirin, I got through it and my Hepatitis went "not detectable" at the 12 week check. My doctor and the entire Hepatitis C staff at U.C. Davis are the BEST. They were so supportive and pro-active, even getting my health insurance to cover the second treatment. YEA TO THE NEW DRUGS!!!! :-)
I was 18 years old when i found out i had contracted the Hep. C virus, i felt so ashamed and dirty. I did not tell anyone, with the risk of them telling other people, it would ruin my reputation. I was a typical streetwalker and used drugs via. iv. i shot up everything from cocaine to fentanyl, it was horrific, i had to find a way to make money for my addiction so that's why i was a streetwalker. A year later when i was 19, i had stopped working on the streets and stopped using needles. i Went to the doctor to get tested and that's when I knew i had contacted the virus, i was sharing the tools (spoon) but never did i share a needle. When i was 21, i got tested again, and i had found out that my body had fought off the virus on its own, and it couldn't be detected in my blood anymore. Man, was i ever grateful for that, so i turned my life around, cleaned up my act, got a job, stayed away from the justice system, and started a family. i thank god everyday for giving me a second chance at life. there is hope for everyone, just have faith, and surely you will be cured too.
I started in on the Sovaldi and Ribivarin Treatment after having Hep C for about 12 years. I tested clear and undetectable twice now- I am cured! If you're considering treatment, here is my experience and some advice: The 6 month treatment isn't easy, but you can do it. If you're working a job, make sure your employer knows about this, because you may have to take a few extra days off from time to time. Here are the side effects I survived: -very low energy levels, mental fatigue. -feeling down and irritable. -loss of motivation, enjoyment, some negative thinking Now for some advice to make it easier: -If you get the flu, it might knock you down for a lot longer than normal. Don't be a hero and try to push thru it. -It's absolutely necessary to get extra rest. This medication may give you insomnia so its good to have a strategy for dealing with it - avoid caffeine, alcohol, or anything else that puts stress on your body- no excuses! You can take my advice or learn the hard way. -exercise as much as possible, it helps a lot, but don't overdo it, because it takes longer to recover from everything Like i said, its not easy, but you can do it. It's 6 months that can be hellish at times, but its worth it.
I was diagnosed with c 15 years ago this came from a dark past to haunt me, at the time I was told I had 3 years to live my youngest wast 6 years old, I was advised to take a course of interferon which having researched this debilating treatment I turned down for the sake of my young family, 4 years later, I was told that after all, I would not die so quickly & that new research showed that I had the lesser strand & could die of cyrosis age 80, good news I thought! Now age 61, I can see the desease working its way, my lower limbs have developped a reaction to heat & sting to the point where they swell up thrice the size with angry dark blood spots, I am now facing the virus attacking my blood vessels to the extend that in about 4 or 5 years I will become disabled..I now look at how to live with an allien body in my host body? All I wish for is to find a way for the virus to live in within its host body (ie:me)) in harmony, no parasites wish its host death..so I am looking for a herbal remedy that will allow both of us to live & survive together. Doctors & drugs have done nothing for me and still they stall...so we are on our own to find a way to live with a thriving strong cell that possibly we coul absorb & live with...I do not wish for any agressive comments or despaired souls responding to this post, just people like me human beings, wishing to survive, C cannot be erased with chemical compounds (not yet anyway) but perhaps with a bit of common sense it can be lived with..
Listen here Greg L ,you obviously cannot be serious stigmatizing the Big Pharma companies for not caring and making a drug that gives some side affects & not others ? I have been chasing this for 35yrs & when I use to get tested and hear the suces rate upon completion of Interferon & Riboravan it was shocking. that combo of an injection evryday for a year to feel like a mac truck drove over you was convincing enough not to take it & hear 20% sucsess rate,then as the decades progressed 34%,54% sometimes not at all !! Hepc is an epidemic of uneducated people that don't know they have don't want it or need it an cannot afford it,my Big pharma is helping me so if it means I get hepc free I'M GOING for the survior story buddy can't fault people for wanting to be disease free that will make all my other conditions improve minute side affects from this drug more from the disease outways the cons sory dude !!
I was last here to share the evolution of my life living with Hepatitis C on May 1, 2016 some 8 days after starting the new treatment for the cure from the virus. I ended the treatment on July 20, some 5 days shy of my birthday. Today I am happy to share my results Post treatment that show no trace of the virus. After living with this virus for 37 years, I am sure there a few of you who share the joy I feel at this moment to know I finally did it. I will keep testing for the next 6 months, and hopefully I will come back then and give a huge shout-out. It was so very worth it. Goodluck to all who are starting, still undergoing treatment, or yet to start. Best wishes, Mary
Hi all, Thanks to the Australian Health Dept who, on March 1st 2016, subsidised the new Harvoni treatment for Hep C sufferers under the countries PBS scheme. After completing the one pill a day, 8 week course I am now Hep C negative!! This is a total miracle as I contracted the insidious virus 30 years ago and having a fear of the Interferon treatment, decided to wait for a new generation medication. While taking the course I suffered no real side effects other than a wicked cough/cold that lasted a month which I now see was the virus leaving my system. If you live in Australia get to your doctor/heptologist and make sure you get this medication whilst the governments budget allows it...the subsidy probably won't last forever as treatment costs 10's of thousands without it. I can't believe how fortunate I am and I wish everyone who has the virus the same amazing results that I've had with this new treatment... Much Aroha x
hi I made the cure for Hep C .I gave the theory Interferon with secondary antiviral(that would be named after Pegasus)yes I made the name also.In feb 1989 my doctors got me into the Rockefeller Institute Endocrine study.There I saw the yellow kids, being treated with UV light.I told a boy about 20.Iwas not there for the study.I have the cure for your sickness.He had very long blond hair and was from Maryland.I also told the mothers and fathers about the cure.In the summer of 1989 .Rockefeller Institute began making my cure.Theory a reality, I was one of the first to give blood.Oddly when I told them the secondary antiviral was PegaSomething-i needed a PDR to show them.Pegalated interferon did not go into the PDR until about 1999.In 2001 ,they give the cure the name Co Pegasus.I think they felt bad -i got pushed out,and they knew I would see the name-beause my enzime level hit the roof in Rockefeller after about 3 to 4 weeks.They maybe looking for me.Because in feb 1989 I tried to get into the Interferon study-And offered the cure for "RETROVIRUS"! in 1989.The cure I have is drug free.No superbug can be made.After all these years no one has ever asked me for the cure.No person in America has ever thanked me for saving their life.No one has ever thanked me for saving the life of thei rchild.I am America's biggest secret.My secret will become public, i have waited a long time.Thing would be much better for everyone ,if the true inventor were not kept out.Probably because of the money.The people in the CD BAD Blood, I watched them go into Rockefeller, to get my cure-but they never asked what the cure for Retrovirus was and is.The person I lived with got lung and brain cancer in the summer of 1989.and died good friday-the next person i lived with got AIDS and died on goodfriday-both are in the cemetery in Valhala.I am the person that saved 50,000,000 people in America alone.If I can never prove it, I believe it will come out after my life span-I have 9 theories that can change the world.But there is no incentive.I am the man that made the first cure and the only cure for 25 years.I am connected to almost everyone-it has been very hard to be so unknown-i believe the people have a right to know the real story -and I will never give up again.I would love to speak with the people who worked on the cure in1989 1990 1991 1992.I know they had to put their names on it, The hospital made them keep me out .I heard them talking to my doctor-whowas shocked by the way I was treated-I wrote Peggy Rockefeller to go directly, im sure they never told her
I am a 61 year old female Hep C + GT 1a, extremely high VL until just prior to treatment. Then it dropped from the double digit millions to 5 mil. I was + approximately 35 years prior to treating with generic Harvoni that I had brought into the USA from Thailand. I had a liver biopsy 15 years ago, zero/zero. Just prior to treating last November I had a Fibroscan that showed F0-F1. Extremely fortunate I'd say. I spent $650.00 for 12 weeks of Generic Harvoni. Almost no side effects whatsoever. I didn't have labs until 7 weeks into treatment and I came back undetected. Last dose was February 19 and 6 weeks post EOT was still undetected. My last quantitative and qualitative was done 14 weeks post treatment and once again I was undetected. August 1 will be 24 weeks post EOT and I will test again. Then unless a physician decides otherwise I will not have another test until end of February 2017. My Physician was not allowed to discuss anything with me but she knew what I had done so she just kept giving me lab slips without jeopardizing her job.
I was diagnosed with hep c in 2010 but was uninsured at the time and not offered any help through the hospital that I was at for a possible heart attack ( blood pressure was 190 over something) .I finally secured a job with ins. And in2013 began the process. It turns out that I had contracted the virus in 1997 and my viral load was 4 million per unit of blood, yes 4 million , I began the treatment with chemo drugs (the only treatment available) and that it would be a 6 month treatment. During the diagnosis part of ordeal I didn't really feel that bad until I had the liver biopsy and that must of pissed off the virus as that was the beginning of feeling like shit. I was still going to work everyday ( HVAC tech.) But after 12 weeks into the program, I started to miss work as my stomach and digestive system was burning, cramping,and hard to even sit up. From that point on I was only able to work 2.5 days over the next 3 months. I completed the treatment and , was told my viral load was less than 4 per unit of blood ( their definition of cured) I still have severe pain in my abdominal area. Had a few nasty tests. It seems that once my treatment was done,they were done with me. I am now on ss.disability trying to live on half of what i used to make. On medicare and can't get the treatment or help I need to find out what's going on now. Its been 2 years since my treatment ended and I'm afraid of what is going on.
I became aware of Hep c when ppl were talking about Hiv. I went to donate blood plasma. Dirty place. Told after 3rd time there and a needle blunder but just before last draw that I have Hep c and get an ultrasound. Got exam, HEPA and b shots and a prescription grant application for I/RBV. 2015 seven years later got re-exam.... prescription grant through dr for Viekira. Never cleared went 12 weeks on Viekira and got cured. Viekira the most amazing medicine and a yr later still SVR. No type of support. But able to say today I am cured. GLORY TO GOD! I am very sensitive to iron. Have been checking out iron overload info online.
I'm 49 have had Hep C since 1982 due to IV drug use. I'M CLEAN MANY YEARS I'm finally getting treated I'm stage 2 bad pain legs feet liver spleen. I'm taking medal next week for 3 months.good luck people .
I am 54 I was an military brat and a gymnast a good one back in the 70s I had to hide it now it cool imagine that I said every bit of 25lb I could do it all then one day I went to practice stock my finger in the high bar hole to lower it and some one jumped on it like a guillotine it cut it off lost so much blood on the way to the base hospital they gave me blood that's how I got it now I'm taking ribavirin 6 pills a day for seven mounts and one a day of to other pills so I'm taking 8 pills a day for 7 mounts man I'm three mounts in to it it's crazy dreams angry like the medicine wants to get out through your mouth tired week I go to my doctor Monday this month has been hard does it get worse are better there more but I'm tired oh probably won't go to sleep becouse u toss and turn all freaking night lol?
Was diagonised 2 yrs 1/2 ago. Have no idea how long I had it. Doc couldda been as long 23-30 yrs.I just knew something wasn't right. din't have insurance. So doctors din't do much. just kept say high blood presure. And diabietes. Well ended up in the hospital. Six months latter got on medidade. By that time. they came out with Harvoni. Justwent in for my1 yr check up. Back in May. And say I'm doin good. No sign of hep c. Had no reall side affects. little tired . Just so happy not to be in pain anymore. Feel like a normal person again.
I found out I had Hepatitis C in 1995 during a full blood screen. It came as a shock but not really a surprise as I had acute Hepatitis B in the 1970's. I had stopped drinking alcohol several years earlier and as I felt well with no evidence of symptoms the advice and belief was just get on with it. I did this quite well changing career midlife and gaining the rewards from that. As I got older, I am now 62, other medical problems materialised and my GP felt my liver problems should be monitored by a specialist. I had a fibroscan done in 2014 which indicated cirrhosis of the liver with a reading of 21.7. Following this I had to wait almost two years for the new medications to be accepted for dispensing here in Australia. My consultant would not consider the older regime due to my other medical conditions. I am now in week ten of twelve of treatment for gt2b with Sovaldi and Ribavirin. My LFT's are returning to normal but they were never too elevated anyway. From a pathology point of view the main problem has been the risk of anemia and my albumin remains slightly elevated. As a previous poster said the main side effect has been dry skin, causing itching which was solved by non-scented moisturiser. For my feet I use a product for hard skin with a high urea content. Also, some days I just have to lie down and watch TV, I cant even focus long enough to read a book. For me the worst side effect, if that's what it is, has been the episodes of irritability. The other stuff I can put up with but it is the people around me who take the brunt of the mood swings.
Hi, I took an 8 week course of Harvoni. My viral load was 3.2 million and after the 8 week treatment, my viral load was 50. I asked why I wasn't given the 12 week course of Harvoni and was told that my viral load would have to be 6 million or higher. The treatment failed because my viral load went to 1 million after a one month lab test. I asked about Viekira Pak and was told it wasn't recommended for those who failed with Harvoni. Fortunately, I don't have any scarring of my liver, as I write this. Still looking for a cure.
I was diagnosed in 2013 with Hep C genotype 1A......received treatment of Harvoni and Ribarvarin for 12 weeks. I am a recovered addict and alcoholic and am very excited to say I have come back twice with the virus undetected. I feel very fortunate and although I do still have cirrhosis....my quality of life is much better.
I am a recovering IV drug user. I unfortunately decided to share needles, in May of 2015, for the first time. a few months later, I visited my primary care provider just to ensure I did not contract any diseases. I was diagnosed with Hep C, and was also informed I was pregnant. I immediately was refered to an Infectious Disease physician, as well as an OBGYN. My PCP, who was not very knowledgeable about Hep C told me an abortion would likely be necessary. A long moth and a half I was finally at the infectious disease dr. after expressing my concerns about my pregnancy possibly needing to be terminated, per my PCP, she was in shock. In no way shape or form would this need to be done. The transmission rate to a fetus was less than 3 percent. I would however have to wait until I delivered to be treated. My daughter was born in april, healthy and will be tested at 18 months for HCV. Ultimately, I made an appointment with Infectious disease to begin treatment asap. My fibrosis load was too low, apparently I was "too healthy" to receive treatment. My first appeal was denied. What a bummer. This week, the distributer of Viekira Pak called me to let me know it is to be delivered to my home this Friday! So for those who have been denied I urge you to appeal appeal! I Have had hep C for one year. I am asymptomatic and I am super excited to close this chapter in my life. I will hopefully have a wonderful update in 12 weeks to share!!
I contracted Hep C from iv drug use in 2014.. I had actually just been through rehab and had about 2 months clean when I started feeling really sick.. I was really tired all the time, couldn't hold down any food, was having night sweats,really dark urine, diarhea , and my skin itched so bad..about 2 days later I noticed that my eyes and skin were turning yellow..I went to the emergency room and they confirmed it was Hep C. As I didn't have insurance at the time I just kept it monitored over the next 10 months at the free clinic down the road to see if it would cure itself and it never did.. so that following open enrollment I went through marketplace and got affordable health insurance and went to a primary care doctor where he then referred me to the local college hospital gastroenterologist.. there was a doctor who specialized in Hep C treatment and the wall was covered in stickers from people they had "cured".. they did testing and confirmed I had genotype 1a and no liver damage yet and said Harvoni would be a great fit for me.. she approved it through my insurance and they paid everything except $1000 and I then contacted the manufacturers and they sent me a copay coupon that covered everything else..I ended up paying $5 for a $60000 treatment. My doctor had me started on the treatment within 2 months.. I had to take 1 pill a day for 8 weeks.. the virus was undetectable after 4. I was really worried about side effect after hearing about other treatment options but the effects with Harvoni were minimal.. I had a little nausea and fatigue and random headaches which could be avoided if I stayed hydrated..I was able to continue working full time and function which was nice. After I finished the 60 pills I felt like a new person..it's amazing.. I got tested again after 3 months because my doctor said if the disease relapses it's likely to do it withing three months and it was still negative so she said I met the criteria for being "cured". She told me that if I get tested for hep c at say like a plasma clinic or something it will show a positive because the antibodies are still in my system but a more detailed hepatic panel will show I am negative. I cannot pass this on to others and there is no more infection attacking my liver.. I also got tested again after 6 months and still negative..I believe I will continue to get checked every once in a while just for my peace of mind but I'm proud to say that I have been cured from hep c for a year now and clean for 25 months. :)
In 1994 gave birth to my son. Lost a lot of blood and received 3-4 units never felt good since that time. The fatigue, chills, abdominal pain and weight loss were terrible for years. Endless testing revealed nothing until diagnosed in 2006 went on initial treatment of interferon, rivibiron twice. Though the side effects were difficult remain no abnormalities for seven years, need lab work soon. In 2011 diagnosed with epilepsy under care of specialists. With saying this I'm hopeful in life.
this was my second treatment AND IT WORKED I'M HEPATITIS FREE. THE FIRST TREATMENT WAS HELL AND AFTER TREATMENT I STILL HAD HEPATITIS , I JUST FINISHED TREATMENT WITH HAVONI AND GOT MY 3 MONTH BLOOD TEST AND THE DR. SAID I'M CURED. THANK YOU JESUS! DR. SAID SHE WAS GOING TO DO ANOTHER BLOOD IN 6 MONTHS BUT I HAVE FAITH I WILL STILL B HEP C FREE. TREATMENT WITH HARVONI WAS A BREEZE NO PROBLEMS AT ALL . GOOD LUCK TO EVERYONE
I was diagnosed several years ago from routine blood tests. Not sure how I contracted it. I was in the military in the early 80s. It was life changing. Knowing that I would probably die from it eventually. My doctor advised against treatment a few years ago because of the side effects. Then last year I saw a commercial for harvoni. I contacted my doctor. He said it was a roll of the dice with the insurance companies. Well I was completely covered. I had to pay 5 dollars a month for 3 months for almost 100k in treatment. I took it daily the side effects were minimal. I just got my blood tests back 3 months after treatment I am completely healed. I can't believe it. I feel better than I have for 30 years. I'm 50 and have more energy than I did at 30. I hope that they can reduce the price of this medicine. Because everyone deserves to be cured.
I contacted hep c in 1989. I was fortunate enough to heve a general practitioner tell me I had hep non A non B and sent me to a specialist. It turned out to be hep C. Type 1. Over the years I was followed up very closely. I was told the treatment was that of chemo and would last 48 weeks with only a 50% chance of success. Many years later my doctor told me that "Not only iphones are getting better. Soon a pill will cure the hep C virus. Then came Harvoni. My doctor prescribed it. Before i started I had over 6 000 000 viruses (don't know how they know that) , Two weeks I was down to 18 and two weeks later completely gone. I was tested 3 and 6 months later and still gone. So albeit it's very expensive it is a "Wonder drug" and if there is any way you can get it through insurance or some kind of funding, do so it is well worth it.
We created a documentary on Hep C called Deal With it. It is available on YouTube - thought you might like to see it. https://www.youtube.com/watch?v=L9TZo3hFaYk
during 1978 to 1982 I used diamorphine ,this is when I must of contracted HEP C. I neither knew I had it, nor were there any symptoms. Years later and after 4 tests I am 100% free of the virus....I have had a terrible amount of side effects which still continue. Only 3 weeks after starting treatment I lost all chest hair ,under arm hair and grew breasts. A semi flacid erection was all the reaction I got despite mentally desiring sex as much as beforeViagra makes it worse since I have half an erection for 2 hours..To say I wish I had NOT BOTHERED IS AN UNDERSTATEMENT((((HOW ABOUT YOU????)))))
I have had Hep C for many years now but I never knew. I got diagnosed recently and the Dr told me it appears as if it has been there for years already but I never knew. I am now 40. I have very low viral count for how long I have had it. I have never taken Interferon or any other anti viral medication in my life, because of the never knowing I even had a virus. I was a heroin user for 14 years but I never shared a needle. I think I actually caught this disease from medical work, or from a dirty tattoo needle. Doctors assume it is the IV use but I have OCD and not once ever touched anyones used anything. I did work as a healthcare aide at a place where I was stuck by a needle by accident in 1993. I also got a basement tattoo from a meth addict in 2000. I also had a blood transfusion before 1985. So I will never really know. Anyhow, I was diagnosed months after Harvoni became available. I am about to begin Harvoni in one day. I was approved for Harvoni on my first try at getting it, on Medical Assistance and I am on disability ( for different illness, not Hep C). I had no trouble getting mine covered 100%, I had no copay. When I hear of people who are denied because they are not yet sick it makes me enraged! I have never had any symptoms, have zero liver scarring. Harvoni is still new and they do not yet know the long term effects so yes we are the test group, in a way. I am scared to death but also excited. I fear side effects and usually get any a med has listed. I do very badly with pain, hence my opiate history. I have lung issues and depression on top of the rest. I hope I make it thru this next 8 weeks, my med course is 8 week limited course for viral counts under 6 million (my count is 530,000, very low). I will update afterward and let everyone know how things went and am also blogging on wordpress day to day. I am cautiously optimistic.
I am young 21 year old student yesterday I went to donate blood for his friend's father when lab assistant take my blood sample and after some test he told me I am suffering from hepatitis C . I don't know how I effected in my childhood I was smoker I think when my age was 12 year.. may it is due to my those bad habits .. but attack is not high its value is minor 2.8 and Doctor told me extreme line of hepatitis is 5 .. it not more harmful for me.. still I am worried about it :(
In 1977 I was diagnosed as having non-A non-B. With numerous symptoms I was diagnosed as having Hep C in 1996. However, after a few blood tests I was told that my viral load count was so low that it appeared to be a false positive. In 2016 I went through testing and procedures to prepare for taking available Hep C drugs, but was told after two blood tests that my viral load count was so low that it appeared to be a false positive. Therefore, there is nothing to treat. I believe my symptoms in 1996 were related to taking Tylenol, and either an allergic reaction to it, or complications of taking Tylenol and drinking beer. The “symptoms” I mentioned were bad enough that I didn't believe I would survive at the time. No problems since and I feel great! Now 59 years old.
Hello, My name is Jamie and I am from Coeburn,Va. I found out I had Hep C 7 years ago and kept sweeping it under the rug avoiding treatment to continue getting high. Shooting up daily was my life. I went to jail over distribution and was released on June 12, 2015. I decided to work the program and work toward tx. On May 2, 2016 I had a liver biopsy and got cleared to start Sovaldi/ribavirin therapy and my 1st dose was May 11, 2016. On June 7th I had my labs and viral load. The Doctor called me June 16th and told me I was already Hep C free. Totally undetectable. It works, but I have to complete my whole 12 week treatment cycle and August 1, 2016 my 12 week treatment will be complete. I encourage anyone to PLEASE try this medicine. I looked at it like this, I am a father to a 11 and 21 yr. old set of boys and now I have a 15 month old Grandaughter and a new chance at life. Remember you can live Hep C Free! I always have been a selfish human being only caring about me and my fix but by family, mental health, and spiritual support I am going to not be bound by the chains of addiction and worry of dying from liver disease. Please seek help. Start with your Primary Care Physician and if you do not have one don't worry. You can go to the local Health department and if you are positive for the virus they will help get you a referral. Remember your liver is really your best friend and I let mine down for too many years using dope! I pray that you find time to read this and anytime you want a fellow addict to talk to email me @ jamiejohnson868@yahoo.com. I suggest MSHA JMH Hospital's Gastroenterology. Dr. Joseph “Sandy” Brown and Shauna Large AFNP. They are like family and will work with you and your insurances and all resources out there if you are ready to stay clean and put Hep C behind you. God Bless!!! Jamie J Coeburn, Virginia.
I got Hep C Geno Type 1 A in the early 80's after a car accident. I'm now 59 and have gone through 2 treatments trying to get rid of it. The first was awful and didn't work. It was interferon, Ribaviron and something else. All that did was increase my viral count into the millions. Because the treatment was so debilitating for me mentally and psychically I had to wait years to take it again. I did take the Sovaldi this time they said it worked but I have an infection of the spinal fluid and brain. From the 80's through 2008 I traveled fly-fished, hiked, climbed mountains but always knowing it was harder for me to do these things than others, In 2009 I just didn't have any energy left. Started treatment in 2010 - 2015. Here I am cured but with no energy and complications. From the time I was a baby till 12 I had Chronic Bronchitis. From my 20's till 50's had Chronic Hep C. Seems I've been Chronic all but 10 years.
I was infected with Hep-C in the army in 1971. The army doctors called my mother and told her I was surly going to die and she should come to see me at once. I remember the army ward I was on and all the other guys who also had Hep-C there. Most like myself wasn't doing too well. I was gravely ill. My eyes, skin, stools were all yellow. I couldn't stop throwing up yellow vomit. I seen guys around me die with the Hep-C. But for some reason, I hung on.
Now it's been 45 years and I've never had any treatment and never experienced any more symptoms. I've always been a drinker up till about a year ago. I've had many back surgeries and was given my own blood back. Because of the Hep-C. I've been in many relationships and married once and never transmitted the virus to my knowledge. I am in a relationship now and am getting married again at 61. And we have a newborn baby perfectly healthy and my first. I'm not sure how I have been so fortunate, but upon doing some reading, I found out this, Hepatitis C that runs its course and responds to treatment in a relatively short period is called “acute” Hepatitis. Men and women with acute Hepatitis C usually fight off HCV within six months. Maybe this is why my Hep-C never really reared its ugly head to me.
In 1992, 24 years ago, when I was 32! I was diagnosed with Hep C! I think I got it through a tattoo I received from my uncle, who also has Hep. C! I was scared, didn't know what to do, there was no cure at the time, and really not too much information! My doctor at the time, said that eventually I would die, and that it wouldn't be pleasant! I lived with it for all these years, seeking no help, whenever I got a physical, they would inform me, once again, that I had Hep. C! Well about 5 months ago, I was sitting on the couch and I saw a commercial from Gilead pharm. about Harvoni, a cure for Hep. C, with a high success rate! I called the support path for Hep. C, they talked to me for 20 minutes, and guided me through the steps I needed to take to start taking Harvoni! I went to an infectious disease doctor, got diagnosed with stage 3 Hep. C, the doctor mailed my paperwork to Gilead pharm. for me to try and get financial aid for the 12 weeks I needed to take Harvoni at a cost of $94,000.00, 84 pills, 1 per day for 12 weeks! I was approved for full financial aid! Wahoooooo! I received 3 bottles at different times, all FedEXed to me! I am done taking Harvoni! I had my first blood work done, and I am virus free! In 2 months and a week, I have my final blood work to test for the Hep. C virus! I am confident that I am cured! The side effects were minimal, slight headaches, stomach aches! if it wasn't for that commercial, and the great people that helped me along the way, my doctor, the support path people on the phone, my nurse at the health dept., the wonderful lady at the lab, the pharmacy, fed ex, and Gilead pharm., and most of all myself, for not being afraid to make the phone call after seeing the commercial! Have a nice day!
I finished treatment with Harvoni by the middle of last December. Since then my blood test for the past 6 month showed that Hep C virus copies are negative and cannot be detected. I will have another blood test by the end of June 2016! And then another one in November. I am happy to get rid of Hep C after 40+ years of infection.
I have lived with the Hepatitis C Virus (genotype 1b) for more than 63 years. I had cirrhosis, liver transplant, and cirrhosis again, but before terminal decomposition the sofosbuvir-simeprevir medication became available and instantaneously killed the virus in me. Now I have a scarred liver with normal liver functions.
My story is detailed in my book “Physician’s Journey with the Hepatitis C Virus - Historical Medical and Ethical Reflections.” It is available on Amazon in paperback and in e-book formats.
I had hepatitis in grade ten. I am now 58 years old. The teacher sent me home from school as my eyes were yellow. I was misdiagnosed with Lupus in my forties, had a stroke at 48 years old.
For many years I wondered about what kind of hepatitis I had but was told there is no test to determine this. We farmed and dealt in a small town.
My daughter works in a good medical clinic and was told I have Hep c in 2015 and waited months to see a specialist till I asked if there was another doctor who would perhaps see me sooner. Dr. Stewart saw me after his nurse who was amazing and actually cared.
I now have info, support and meds to kill the virus that has been in my body over thirty years.
Seven weeks ago I began treatment for Hep C Genotype 2. I was prescribed Ribavirin and Sovaldi - to be taken daily. So far the side effects have been: an itchy type rash on different parts of the body, very dry skin, extremely tired and at times very restless. By that I mean moody and at times a little angry.
The first side effects I noticed though were Nightmares. Three nights of a replay of my life.... Details I had been mulling over for some years came to life in a distorted yet accurate picture of the more unpleasant experiences I had during my childhood right up to “now”. At 62 I am still having issues with an abusive Father. After 2013 and an apology from the Australian Government “Forced Adoption”. I discovered my whole life was a lie. This brought everything to the surface, including the chronic verbal abuse from both my adoptive parents. Of course, I had many many questions and my anger and anxiety went over the top.
Regardless of any questions, they have never been answered. In other words, all the truth and experiences I had had, were denied or I “was making it up and mentally ill”. My conclusion was: “If they don't remember or deny the reality then I wasn't there at all. So.... I disconnected. I am not going to be answered. Which of course is exactly the type of behavior I have come to know “Narcissism”.
Regardless, I am sticking to the regime and have had my first blood test since beginning taking the medication. My results so far have come back Normal. I am waiting for my Viral Load results which I'll receive in two days. Considering all other results: Liver Function etc being normal, I'm more than hopeful the Virus is gone.
I have one month to go which concludes the 12 weeks and despite side effects I feel blessed regarding the new treatment without Interferon.
I encourage all who have the virus not to wait any longer and get the treatment. It's important to try and manage any negative outside influences the best you can. Better still, right them off! All that's important is “The Now” and your health. If necessary you can deal with the negatives after a full recovery. When the fog clears, depression lifts when your mental and physical energy is restored.
As Tom Petty has written: “Into The Great Wide Open we go......”
I wish you and yours the best as a new beginning or chapter of Life unfolds for all. Cheers xo
I am 59 never used a needle but in 1998 suffered a failed neck surgery at UC Davis Sacramento besides paralyzing me, my vertebral artery was severed. Blood transfusions. Also the same operating team and doctors on the same day paralyzed 12 yr old boy never to walk again. I was diagnosed with Hep C 1a level 4 Abbvie has come to my rescue in this hopeless place of Arkansas that would rather see me dead than help.I am sick and in severe headaches going into my fourth month of my 24 weeks. Good luck to all.
Hi, I have had Hep c for approx forty years, geno 3A and have recently undergone daclatasvir and sofradir treatment from last Nov 2015. I instantaneously felt clearer headed three days after commencing treatment, felt my eyesight improve, and energy levels improve nearly right away. My side effects were little bit of insomnia some euphoria, irritated nose like I was getting a head cold, my heart felt like it was racing a little. Because I suffer bradycardia, (slow heartbeat). Profuse sweating attacks and flatulence. But was able to carry on daily life, which was great, not like the previous treatment of interferon ribavirin which made me gravely ill, and bedridden. I have completed the treatment and cleared the virus last blood test, still waiting on the 6 month test. Still feeling a bit rundown after treatment, as I feel my immune system hasn't properly regulated yet. I am trying to build my strength up slowly, threw exercise, good food and rest. It has felt like a marathon of Olympic proportions to get where I am now. I recommend support of any kind throughout this process, doctors, friends, or counselors. Any one that you would find helpful in your journey to being Hep C free. Good luck, best wishes.
I was diagnosed with non-A/non-B hepatitis in 1984. I had classic hepatitis symptoms, jaundice, chalky stools, etc. Thus began the journey. Ups and downs over the years. One year my liver enzymes were in the 3000+ range and I was basically disabled. I got on an interferon double blind study. Didn’t cure me but I felt better and it knocked my numbers down. I also did acupuncture and all kinds of herbs etc. Went back to work, back to school, got a couple degrees, and started a career. I did another round of interferon, this time with ribaviron while finishing grad school. That was a memorable year. Kept pushing through, because I wanted to live large while I could, and my docs had told me I had 2-15 years to live. Second round treatment made me feel better. By now it’s 1999. Went off and had a career I enjoyed. During those years I had off and on rounds of fatigue, joint aches, depression, etc. Often fairly mild, like “is this a flu” “why can't I get going” etc. I've followed treatment developments through a Google alert on Hep C for years, watching things get better and better, till we arrived at Harvoni. I worked with my gastroenterologist to get a prescription. But it was denied by my insurance co. Appealed twice, and worked with Gilead. Then (HA!) diagnosed with cancer this spring and two days before that surgery, got a letter that the insurance company changed the criteria for Harvoni and I was now approved. (I was an f1-2, and they were only treating f3-4, but they lowered the requirement.) Two months later, cancer is cleared, and my doc and insurance co are on board for me starting Harvoni July 1. I am very much looking forward to it. My cousin did this treatment, was cleared and says he feels better than he has in 20 years. Well, I turn 60 this summer, and I am dreaming of a great decade, free from Hep C, and HOPEFULLY, feeling better than I have in 20 years. Given that Hep C has been a limiting factor on how I pigeon holed my energy, how people reacted to me socially (it did scare some people - but then I was always honest and careful - especially back when we didn't know much about the transmission). Anyhow, while I am very hopeful I will be cured, I am wondering what that will mean in terms of how I feel physically. I really hope some of the joint aches and the fatigue will go away. I have lots of dear friends, family, and strangers praying for me. With the grace of God and the scientists and Hep C soldiers who have taken this journey through treatment development with me, I am confident all will be well. It's just a matter of where on the scale of better life will land me. Bless you all. Soldier on!
I was an iv user, found out I had hep c in 2012. Early 2015 I found out unc hospital were doing a study for her c patients, so I called for me and my boyfriend which has her c too. We were given an appointment. When we arrived we met Dr. David a wohl from the infectious disease clinic known as the I'd clinic. He asked us a few questions and has us feel out paper work from Gilead which is the company that makes the medicine.he explained to us that the study requires us to take the medication for 12 weeks everyday at the same time for high chance to work. The study actually paid us to take the medication. I am not gonna tell you how much we were paid because that is not what's important, what is important at the time was if I was gonna get cured!! So he did a biopsy of our livers and found out we both were level 1 which means we were "baby boomers" as he called it. Level 4 is the worst. So when we received the medication he explained to us that it has a bottle cap which will record when we open the bottle of medicine and at what time we opened. All of that is recorded in the study to mellow sure you are taking the meds as you are supposed to. Every 4 weeks we would go back to unc and he would do the biopsy and at the 8th week he explained to us that there were NO SIGNS OF HEP C IN NEITHER ONE OF OUR BLOOD TESTS!!!! We were so happy!! So he said to make sure it stays away we need to take the meds for the whole 12 weeks. At the end of the 12 weeks we were cured!!! He gave us an appointment for 6 months later to make sure the hep c was still gone and it was!!! Wow!!! And actually he informed us that it's good that we got in when we did because now the company manufactures are wanting to wait till people get to level 3 or 4 before they give them the medicine. I advise all to contact Dr wohl at unc I'd clinic and talk with him and he will definitely make sure you get your treatment. He is a good Dr that cares about his patients and will answer any questions you may have!!! I am cured!!!! I still can't believe it!!!
I was diagnosed with Hep C at age 38 and I'm age 57 now. I had Genotype 1 which is the most difficult to treat. I asked for the test because I had dabbled with Heroin at age 18, many of my friends and a sibling were using it, and in my thirties I began to hear about Hep C and decided I should be tested. I was married with two sons when I asked for the test and I had no symptoms. In my twenties, I drank lightly because I didn't like the taste of alcohol, but I did really enjoy smoking Pot in my twenties and thirties. So I got the diagnosis at age 38 and I was terrified. I read everything about Hep C. My doctor gave me the impression that it would be fatal at some point. I had my sons tested and they were negative. My husband refused to test but I was sure he was probably positive as he had also experimented with Heroin in the distant past. I did the first of three treatments. The first was Interferon and Ribavarin and I detested the injections, the fatigue, the shortness of breath, and the scary labs that showed my red and white blood cell counts doing crazy things. I completed 48 weeks and was undetectable but three months later the virus was back. The second treatment was also Interferon and Ribavarin and once again I cleared it only to relapse within three months. The only positive thing during these two treatments was my liver biopsy showed no damage to my liver even though I was certain the virus had been in my body for approx. 25 years at the time of the second treatment in my late forties. In 2015, my doc told me about the new treatment option with Harvoni. I refused a third treatment in 2015 because I couldn't bear the thought of another failed treatment and possibly terrible side effects, and I wanted to research the relapse rates on the new drug first. In early 2016, I asked for the Harvoni treatment. It sounded too good to be true and I knew my genotype was hard to treat. My insurance co said no because I had no liver damage and apparently that meant I shouldn't get the expensive Harvoni medication. I wasn't sick enough with Hep C to be approved. But my doc and specialty pharmacy appealed and the ins co said no again, but a second appeal was successful. I couldn't believe it. I started the Harvoni, one pill per day for 12 weeks, in March 2016. The first four weeks, I had my usual energy and felt great except for some headaches, sometimes mild and a few times more throbbing and painful. One issue early one discussed with the specialty pharmacist was I had GERD, reflux disease involving stomach acid, and had been taking 40 mgs of a Nexium type medication for 20 years, and the pharmacist told me acid medication would mess up the Harvoni doing its job effectively. So I had to make a decision about using the acid reducer while on treatment. I decided to stop that cold turkey and not use Tums or anything, because I really wanted this third treatment to work long term without a relapse. I had some problems with the acid, heartburn and even chest pain from the heartburn in the first few weeks but I ate small meals to help with acid issues and after the first four weeks on Harvoni, that seemed to work ok and I did not take an acid med during the 12 week treatment. Even things like calcium supplements have to be used carefully while on Harvoni, with five hours between calcium and a Harvoni dose. I was tested after four weeks on Harvoni and my viral load was undetectable. It has been just around one million copies before I started on Harvoni. I was amazed that it cleared my virus in four weeks. I was also amazed when my doctor said that unlike the first two treatments where I had constant labs, with Harvoni, after the lab at four weeks, if undetectable then, no other labs would be done, not at 8 weeks or 12 weeks. My next lab will take place in October 2016, four months AFTER the end of my 12 week treatment which ends this month in June 2016. I have four more days and four pills to end my 12 week treatment. Yay!!!! I'm thankful that it's over, the headaches have been minimal because drinking a lot of water reduces the headaches, my energy level has remained decent during the treatment, the VIRUS IS GONE, the chance of a relapse in October when I have the next lab is minimal, even with my Genotype 1, and my liver was not damaged over the past 39 years while I have lived with this virus and tried to fight it with failed treatments. I'm thankful to my doctor and the specialty pharmacy for persisting with a second appeal to the insurance co, they fought for me to have this third treatment on Harvoni, and the specialty pharmacy staff have been so kind and helpful. I feel so blessed!!! I wanted to share this so people can have hope. And even more treatments will be developed in the future. Harvoni costs approx. $1,000 per pill so 12 weeks or 84 days and pills equals about $84,000 for the treatment, therefore it's so important to take every one of the 84 pills and not miss a dose, and be careful about taking other meds or vitamins while on Harvoni. Follow all of the instructions and your treatment can also be a success. I made some stupid choices at age 18, experimenting with Heroin, because I was young, dumb, didn't have a clue what Hepatitis was, didn't know about the dangers of using needles, and I spent decades being terrified about the virus after my diagnosis at age 38, felt the shame from the stigma around having Hep C, saw how some doctors treated patients like they were dirty drug addicts that deserved what they got, worried about sharing things with my family like eating utensils, went through tense times with my husband who refused to be tested (why treat myself if he would remain infected), and basically suffered through two horrible Interferon treatments that failed, so I have been through a lot over this virus. My husband died in 2013 from a heart attack, my children are now grown, and I have remarried a wonderful man who is not infected and now I can stop worrying about infecting him because of the Harvoni treatment. We were told that with a monogamous relationship the chances of him being infected were slim to none, but I have worried about it daily since we married one year ago. I feel so good and I ca pin hardly believe that after 39 years of having this virus, I can now live the rest of my life virus free. Love, peace and good health to everyone out there living with Hep C. There is hope!!!!
I contracted Hep C in the 1970's after surgery I was given plasma and it wasn't until the 90's where I found out I was infected. I was given alfa ineterferon for six months in the early 90's. Man did I get sick. My thyroid was affected. Because of the horrible side effects, I refused further treatments. I completed six months and said no more. My treatment helped, because I didn't get worse. Even though they wanted me to take alfa with ribarivan..I refused treatment until now. I lost hair, had flu -like symptoms, and joint aches, irritability and weight loss. So, I will begin treatment in a couple of months prob. with Sovaldi and Ribarivan. You need to stay positive and follow a regimen set forth by your medical provider. I have been married for over 30 years and with great care, have made sure not to infect anyone at all.
My name is Ann-Ive had Hep C since 1998. I was tested again in April 2016-this test too was positive. My doctor set my appointment up for April 26, 2016 for my liver resection, I'm genotype 2 and at a stage 3 with a low viral count. On May 5, 2016-Harvoni was delivered at my door, I immediately took my first dose. I intentionally didn't read the side effects as I would of had everyone of them if I read them. Taking the Harvoni has went very smooth for me-slight headaches but was able to tolerate the Harvoni great. I went back for my 4 week check up today-The Virus Was Undetectable-I'm so very Thankful. My real test will come in 3 months-I'm praying that it will show me still free of Hep C. I wanted to write and tell those that are testing positive for Hep C today- it's Not the end of the world. I was so worried as to how I would afford the Harvoni. I do have insurance but it still left me with a hefty price tag on this medication. I went to the Harvoni website and submitted the form for assistance on this medication from the manufacturer. I was approved in one week. The manufacturer paid all but $5.00-This was a Blessing and Miracle for me. I've read so many stories here that truly scared the hell out of me-this is another reason I'm writing in, I hope my story brings much comfort and relief. I took the Harvoni for 4 weeks as of today and I'm cured!!! As I said above, I hope in 3 months I get the same report from my doctor-my doctor is very happy and reassured me today that she had no reason to think that the 3 month test from today would show me Cured also. I'm so thankful to The Lord above for hearing my prayers-I will continue to pray for All Hep C sufferer's. I pray you all rid this decease as quickly and smooth as I did!!! Love from Florida!!! Ann :)
Hi guys
I'm 58 female and have been living with Hep 3 since I was 19, wow that's nearly 40 years now.
Of course it was non AB then and I only discovered it was Hep C when I was 36.
I've taken high doses of milk thistle and eaten well but always TIRED. I would not try the previous meds because of the side affects and less than successful outcomes.
Thanks to the Australian government I have just started treatment with Solvadi and Daclatasvir 2 weeks ago. I have genotype 3a and will taking 1 of each for 12 weeks. I also have chronic pain and arthritis but to date the side affects have been unnoticeable, maybe a bit of insomnia. In fact I think I can feel the fog lifting and a little energy returning already???. It's costing me $14 for a months supply!
My fibroscan showed minimal liver damage or scarring and all other tests for quite low so I'm am really confident that I will be Hep C NEGATIVE in 12 weeks.
I had a period of heavy drinking for about 10 years but always ate healthy and took massive doses of milk thistle.
Just thought I'd let you know that you need a referral from a GP for LFT, Genetype and viral load plus a fibroscan organised by the clinic. I was prescribed my medication through a regional clinic who is attached to John Hunter hospital at Newcastle. They have been fantastic.
This medication is available to all Australians so get yourself treated now before it gets taken off the PBS.
Looking forward to clearing this horrid disease forever.
Hope this helps someone get active treatment.
I will post my progress...blood test at week 4 will reveal if the meds are working.
After six failed back fusions, 100's of injections, epidurals, acupuncture, acupressure, chiropractors, physical therapy, two spinal cord stimulators, and every silly new machine that did nothing.
I was given a blood transfusion during a back surgery when they refused to check the blood supply for Hep C. (1991) The gentleman that was taking blood the next year when they told me I was in need of another surgery. Also told me about hepatitis C and that I received it during my surgeries the year before. And how it wasn't a big thing. He was Asian, and told me that 1/2 of Asia has it. I was shocked and pissed off! But him telling me it wasn't a big thing make me think. OK, I'll be OK. I will just see a doctor that knows about it. That's when I went to University Hospital in Newark New Jersey. That's where I was a guinea pig for the "Almost Doctors Club"! The Green Test? Which sent me out of my mind for 30 seconds. And gave me green bathroom breaks! I remember one of the young guys telling me why he was becoming that kind of doctor. They had a lot of procedures. I wasn't gonna stay around for all their procedures. That green test was enough. I might had done another before the next doctor put me on INTERFERON! Not sure. But the hell 3 days a week. Throwing up. Ice packs on my head. ^ months of hell TWICE. 1993-4 and 1995. It helped a bit. But no drinking. 25 years later and constant blood tests. Constant doctor. I have been seeing one guy now 16 years. Received SAVALDI last year with olysio. My viral load is 0.0 however..I now have cirrhosis! I take Xifaxan and the other garbage for Diabetes.
And lyrica for my new diabetes neuropathy was pushing me to "do it" every day. That's why I went back to neurontin!
I am in pain constantly. And I am 58 going on 90!
The doctor told me on a scale 1 to 12 my liver disease was a 16. So I don't know what's next.
I was diagnosed with diabetes last July, which doesn't run in my family and 6 months later I was diagnosed with hepC genotype one. I realized I got it from use of an unclean needle when I got a tattoo. Since then I have been fighting to get approved for this medication. The state mandate three weeks ago that insurance must cover, I was approved right after that and have been taking the med for two weeks now. I have had extreme fatigue and it took just a little too long for the approval process as I will be losing my big toe over this issue. I am worried for my children as I contracted this disease before having them. Now I read about another case where a mans child was born with the disease. Passed on through the DNA. I have called my son and told him to get tested I hope my kids are ok. What a sneaky devastating disease with no signs or symptoms until it is too late, horrible. I am in the hospital for the toe surgery now. But I don't yet know if there are any underlying problems left over from this disease and I am hoping I no longer have diabetes when this is over.
I'm 64. Next week I start Harvoni treatment. I was DX with Hep C in 1991, but was infected in 1978 by sharing a needle, one once in my life and ended up with Hep C. I have had several biopsy's, and am at about stage 1 1/2, so very lucky to not have the damage some have. I have had lots of side effects from the disease, depression, fatigue is the big one for me. What I am hoping for is to feel better and to stop the damage to my liver.
I found out I had Hep C in 1997 and was treated with interferon only for about 7 months until I had to stop because I was so deathly ill. At that time, my liver had little to no damage and my enzymes were only slightly elevated.
Fast forward to 2016 and 42 years of Hep C, with viral load over 6 million, extensive fibrosis, gallbladder polyp, enlarged spleen, enlarged common duct, all from hep c. After being denied the first round in March, insurance approved treatment with Viekira Pak, but rejected ribavarin. I'm just finishing 5 weeks of treatment, and at 4 weeks viral load was 47 and liver enzymes are normal. Great news!
Next day, I started a killer headache, not sure if it was the treatment, so I took some ibuprofen as my doctor recommended, which brought on an extreme 7-hour episode of SVT. So I guess I'm going to have to suffer through headaches without taking anything.
I'm staying positive and have 7 more weeks to go of treatment!
My body cleared itself of the virus. Every time the doctors test my liver enzymes they are normal. Also there is no detectable virus! Praise God!! He can do anything!!!
in May of 2015 I got a tattoo on my back from a friend of mine. I have several tattoos but all of them were done in shops. every time there's a blood drive anywhere and I'm around i go donate whole blood because it saves lives. On July 7th 2015 I went into the American Red Cross to donate blood to win tickets to a concert that was on July 11th which happens to be my birthday. On July 14th I got a huge package in the mail from the American Red Cross that said thank you for your donation but unfortunately after extensive testing you have hepatitis C. I could not believe my eyes. I walked out of my job in tears and went to the Central District Health department and they referred me to a family medicine clinic that had a hepatitis C Clinic as well. when I walked in the people were very warm and welcoming but I was sure that I was going to die. I did not know much about the virus other than the people with hepatitis die. they hugged me told me about it and I was blown away I had no idea that there was a cure for Hepatitis C. After some blood tests I found that I only had less than 41000 copies of the virus in my system. i found out that i was genotype 1a. i took HARVONI.. Harvoni is a 3 month treatment, 1 PILL A DAY. I only had to take it for 2 months. I had no side effects from yhe treatment and I had no side effects from the hepatitis C either. I am turning 39 years old in July this year 2016 and I was cleared from hepatitis C in January.so my story is that I got hepatitis C in May, found out in July, started treatment in November of 2015 and was cleared of hepatitis C in January 2016 and by the grace of God my treatment only cost me $20 thank you to Gideon Pharmaceuticals and the hepatitis C Clinic in my town, iI am hepatitis C free today.
I was diagnosed with Hep C in 2010 as part of my yearly check up. I am 45 yrs old. I'm glad that they caught it so early and I believe, but am unsure I got it from a tattoo. Because the year prior I didn't have it and I don't do drugs or share needles simply I don't do drugs so that is ruled out as a possibility. I heard about this new drug called harvoni a few years ago on a talk radio show I think back in 2013 or close I think. My docs were trying to put me on the injection treatments and I turned them down because the success rate was so low and how harsh it was. Moving forward to now. I finally got the chance to take Harvoni in April of 2016 and a month later I was 100 percent cured of Hep C. I'm about to take my last course of the 3 month treatment and so far everything looks good. Within the first month I felt totally different as if a weight had been lifted of my shoulders. Its truly had to describe how I felt. More or less I felt like I had more energy and wasn't tired anymore. I didn't notice any side effects of the medication and still don't. Now, here's the kicker people. I'm pretty much gonna say yes I drink alcohol, but for 3 weeks, while I was on my first month course I had none at all. And, yes that was one of the hardest things I might have ever done. But, it was worth it. Now, I drink some on the weekends, but none none of Sunday just Friday and Saturday. Should I be drinking alcohol at all no I shouldn't, but its so hard to stop completely, when you've been doing it for so many years. I'm trying hard to cut back even more. Its a process and unless you've been in this situation you won't understand. Just know you can do it as I can too. Do I notice a difference after drinking the next day, yes I do. I feel like crap. And, it takes a few days before I feel good again. So, this is just info for you people out there what I've gone through and am going through currently. Also, coffee and whey protein are very good for your liver. I take a daily vitamin also. In conclusion, I hope my info helps everyone else.
Hello I start my story here by saying that I cannot believe how many of us are out there from your teenage years. I'm so depressed right now to hear some of the stories of leaving this earth because you can't take it anymore? I feel your pain every minute every day and your my age Light V your story is close to mine but there is hope my son was born with jaundice. He had issues. I'm 54 I'll be 55 this year if I make it my viral Load is off the chart 6 million an climbing, and I was on the docket for approval of the Harvoni so close and yet so far, I have fought for 35yrs as alot of you have and still fighting but its getting harder: ( I really dislike how that alot of the info that was out there back then was zilch, zero,Nada, and what teenager is ready to die? I was 19yrs as well born 1961 and I do not believe this baby boomer crap because my father got Hep A at the age of 7 and he's 79 so it shames me to think that census has classified and labled certain age that targets and how contracted? I contracted Hep A from working in unsanitary conditions in a Ho Jo In Scarsdale Ny as 8 others did as well as myself dirty water, shellfish, No hot water to wash dishes. I felt like I had mono. I went to the Dr Got a call 2 days later told to go home right away I have Hep A and B ? I was married to a heroin addict who was a hep B carrier that he had no symptoms from the Heroin. Next thing I knew I was on the couch and remember nothing for 51dys I was In a coma! Blackness is what I was In and woke up in a hospital in elmsford Ny, total body yellow jaundice from head to toe, eyes beaming yellow had no whites, tubes up my nose, Iv in my arms and 45lbs skinnier than I already was!! I fought the B off as that was the killer and on top of A ! It was a miracle my mother tells me she found me in this condition ,ex could of cared less, I had a terrible rash called pitirisous Rosie, covered me from my neck down worse than shingles, layed in a tub everyday for 3weeks and had Juvenile RA, I wanted to live. I had two kids a great 3 decades working my ass off an over working out taking care of myself. Now I need to get the cure or I'm gonna go nuts. I'm in so much pain, No insurance and the state was willing to pay for this treatment but some insurance scam saying I have insurance long story short I can't get pain meds from any Dr in my state and I can't stand that I get told I never was in a coma so I always get tested without hepatic coma jesus christ don't you think I know what happened to me and that each person is different and that is my story and I'm sticking to it, but I'm miserable and have so many conditions and diseases that this should be enjoying my golden years! I have Necrosis an bladder and kidney problems, my liver is getting larger and harder constantly so all I an do now is hurry up and wait, I cry thinking they are waitng for me to hurry up and Die as Social Security feels this isn't life threating. Sad to say it is and I hope I get approved: (I have tried everything, my immune system is shot and duedonitus, digestion and gastro too. I have a new place to come too I hope, I have faith I will be Hep C free soon .
If anyone thinks the pharmaceutical industry is out to save your life, forget it. There are so many reports of side effects emerging years later as a result of taking the commonly-prescribed Hepatitis C medications.
I am 33 years old, a runner, 6'1", 180ish pounds and overall good CBC numbers except for slightly elevated AST/ALT levels. I'm not scared though. I know what natural substances to take for survival.
Honestly, why do you think a number of older (and younger) people must rely on Big Pharma? It's in part because their MDs encouraged/scared them into taking prescriptions for various conditions. Why is it most drugs cause other side effects? It's to increase profits by prescribing more false hope aka drugs.
It's one big conspiracy. And don't believe the current drugs will save your life.
Harvoni and Sovaldi have caused a lot of problems for people. www.gilead.ca for more info.
And Bristol-Myers Squibb, a company which manufactures Daklinza and Sovaldi lost $1.8 billion in 2012 for a failed HCV drug it created which killed a patient and caused heart and kidney failure in others.
Finally, remember that some of your presidential candidates took campaign contributions from drug companies like BMS. Except Bernie Sanders.
#feelthebern
If anyone is still interested, I was diagnosed in 2001 with Hepatitis C Genotype 1. (Step 1) I was treated with the old treatment of Interferon and Ribavirin in 2001 which failed to cure. (Step 2) I was treated with 400 mg Sofosbuvir (Solvaldi) Ribavirin 600 mg. morning and 600 mg. evening each day and 1 shot of Interferon weekly for 12 weeks in 2014. This treatment also failed to cure. So then (Step3). I was treated in 2015 with ledipasvir 90 mg and Sofosbuvir 400 mg (Harvoni) daily, and Ribavirin 600 mg morning and 600 mg evening each day for 12 weeks (No interferon this time I thank my Lord for that) I am now able to say that after a 3 month and 6 month blood test I am finally undetectabie. CURED! My V. A. Dr. Ireneo Diaz is the greatest Dr. In the world to me. He was very smart and he did homework, he consulted with other V.A. Drs. and took time with me and explained things in detail. I am eternally great full to him and My Lord and Savior for helping me. So to everyone battling this disease I wish you all well. Don't give up and lose faith. This Harvoni works.
Love to all Roland G.
There are two points I would like to share.
1- I was directed to have blood tests for 15yrs. post testing pos. for Hep C. My liver was in 4th. stage cirrhosis before these tests revealed unusually high enzymes.
2-Once this was revealed I did the interferon treatment successfully BUT the drug permanently damage my optical nerve and vision.
Today I was informed that my Gastroenterologist's appeal for AbbVie's Viekira Pak was again denied (or it was never received), by Express Scripts. I have been given the run around in regards to which HCV medication my insurance would approve since January 2016. I've come to the conclusion that the person submitting the documentation for pre authorization is inadequate at her job. I have genotype 1a, a fibro scan showing fibrosis at stage 1.5, viral count over 7M, non-responder to interferon/Ribavirin after 6 months of treatment in 2003.
Evidently"Express Scripts" denies anyone wh''s fibrosis is less than stage 3!
Has anyone else found this to be true?
Thanks for any feedback or suggestions.
I am an AB- so my blood was always in demand. In 1992 I was called by Kaiser as they needed some AB- blood.
When they screened the blood they found that I was Hep C positive. It took about 3 months for Kaiser to find a reason to drop me after being my insurer most of my adult life. I was 51 at the time.
I have never used drugs, needles or any other dangerous activities and never received a blood transfusion so the source of my Hep C is undetermined.
As I was a Vietnam Vet I turned to the VA and was accepted for medical care which was the best thing that ever happened to me. With all of the grousing about the VA, I can honestly say that it is the best care I ever received in my life. Upon turning 65 I refused Medi-Care and elected to continue with the VA.
The VA offered me treatment for Hep C with Interferon which I refused. They then set me on a schedule for an ultrasound of the liver every three months. After about two years finding no change in the liver the ultrasound was cut back to twice a year and then to yearly.
There was very little liver damage and it became obvious that I was going to die from something other than liver disease.
In 2014 I had a triple bypass. Although I did not have any symptons of coronary problems, because of my age and family history the VA insisted that I have an angiogram where they found a 90% blockage of my main downward artery and four other blockages.
After recovery from the bypass the VA wanted me to start treatment for the Hep C. As Harvoni was now being made available I was scheduled for the 12 week treatment.
At the start of treatment I had a viral load I believe of 4 million. After six weeks my blood showed negative HCV load.
At end of treatment at 12 weeks the viral load was negative and the three month check was the same. At that point in time I was certified as cured.
During the 12 week treatment I did not experience any side affects from the Harvoni and continued working my normal 12 hour day at my factory with no problems.
Good news! I was diagnosed with Hep C by a gerontologist doing routine blood work in the 1990s . I'm not sure where or when I contracted Hep C. I knew I didn't feel well, but thought it was depression. I was referred to a gastroenterologist who determined through ultrasound that I had slight scarring of the liver and an inflated viral load for Hep C. He recommended a course of Interferon and Ribaviron which was the treatment at that time. It worked, but after 6 months, the virus came back...so I was diagnosed as having CHRONIC Hep C I simply could not go through the flu-like side effects anymore. As I am not a drinker, I decided to work on my nutrition and leave it at that. Over a ten-year period, I felt fatigued and somewhat depressed, but it was not until I started losing almost a lb. of weight a day that I knew I had to go back to a gastroenterologist to discuss treatment. Simultaneously, along came the wonder drug HARVONI. The doctor went to bat for me (with appeals to the insurance co.) and they agreed to bear most of the expense of the Harvoni.
I took it for 6 months last year, with success, and have had another 6 months follow-up test showing no signs of the Hep C. By the way, there are programs out there that help with the expense of this drug if you are financially eligible. I encourage anyone who has Hep C to go NOW to your doctor (preferably a gastroenterologist) to get help. I am 78 years old and have a lot more living to do. Help...is...there!...HARVONI
After several years of being non-detectable, I have been told my Hep C is detectable. I will be proactive with my treatment. I am upset, but I know there is a reason for everything. I have several appointments pending and I will attend in the hopes that I can battle this disease one more time. I tried the interferon/ribavarin the first time and then something else the next. The treatment was 48 weeks long and is very grueling. I have heard that a new drug is available with little to no side effects. I will keep you posted.
I was diagnosed as hep c positive when my baby was 2 days old.
They decided to test me because the nurse who stiched me up after giving birth got a needle stick injury and I have past drug experience.
Obviously I was totally devastated and worried about my daughter as she got jaundice at 6 days old and I immediately thought that she may have it too. She recovered well and eventually we both returned home and I was given no information or advice about how to live and cope being hep c positive.
Years passed and my daughter fell Ill and was admitted to hospital and I decided to have her blood checked for the virus whilst it was being screaned for other bacterial issues. Thank fully she is negative. I wasn't sure she would be as during birth clips were attached to the scalp to monitor her vitals more accurately and I was worried that my blood may have infected her at that point.
Anyway that was 10 years ago now and I am still fighting for treatment for myself.
During the past 16 years I have been trying to keep my liver healthy and so far so good. I have regular yearly check ups and blood tests and the results have varied over the years but my liver remains cirrhosis free.
I do suffer with IBS, bad fatigue, fibromyalgia, poor lymph gland drainage, horrific sweating for no reason, uncontrollable itching on my back mainly, no sex drive at all for at least 10 years and awful pains in both sides just below my ribs. Just touching my skin at all is very painful and most of the time I prefer not to be touched.
I have been actively seeking treatment now for the past 6 years but I have never wanted to have interferon and ribovarin as I worried about not being able to cope with the pain and working full time and because my employers do not know my status how could they understand what I was trying to cope with at the same time keeping my difficult job as a property manager and having treatment. That all seemed impossible to do so last year when my heptology nurse said I would be on the list of patients receiving this new miracle cure, I was over joyed and all I could think of was being diagnosed negative and having a new lease of life.
I was promised time and time again that because I have almost no vinicular access ( except groin veins) that the treatment would be perfect for me as it's only 1 tablet a day for 8 weeks.
So it's now May 2016 & I was told in Feb that I would receive my treatment by September 2016 but then yesterday my phone rang and it's the hospital and they tell me that the government has announced that they are only going to treat 15 patients per month divided by 6 hospitals! !!!!!!
I burst into tears as at that rate it meant I would NOT receive any treatment for another 5 years. That will make it 21 years of waiting and hoping that I could beat this awful disease. All I want is a chance to be given my life back. What was the point of NICE licencing these new drugs if they are not going to let anyone have them????
It's ridiculous and all I can do is contact my local mp and hope that they care enough to raise the matter in parliament and then pray I don't get liver scarring whilst I'm waiting.
That's all I ever seem to be doing is waiting and it's so frustrating I just want my life back! !
Hi am very Happy and just wanted to say there is Hope for Winning against this Disease. I did Treatment year ago and I was a Non-Responder. So I moved to another State and they were right on it about Me being Treated again but with a New Medicine. It was Viekira and Ribavirin. I had the Type 1A and so I had to do a 6month Treatment. I even had to Adjust it a little during the Treatment but I Finished it. And then I had to wait for 6 Months to see what My Results were .I got a Message from My Doctor and I have kept the message and My Doctor to Me the Good News that I was Cured and al the Disease what gone...And I was so Lucky also that the whole Treatment was Paid for by My Insurance...The Feel so Blessed...I wanted to tell You all that read this that there is Hope. So make sure to get Treatment and all of the New Meds are having Great Results...Hope this gets You to do Treatment and Rid Yourself of this Disease....
i was diagnosed with hep-c about 3 years ago, well 5 yrs ago i was about to lose my 2nd wife due to chronic drug/alcohol use, mostly pain meds and alcohol when i couldnt find the meds. And i made the decision to stop it all and i would not have been able to without my wifes support and the wonder drug methadone, yes i know lots are against and say you trade one addiction for the other.but all the tylenol filled pain meds i was taking were damaging my liver as well as the alcohol...anyway i just happen to be clean for nearly 2 yrs when i was a stay at home dads and my wife worked full time, so by some miracle we qualified for free healthcare under obamas healthcare laws,so i started going to the docs/found out i had hep-c and my viral load was over 5 million. It seemed like the stars aligned for me, because without the free health insurance i wouldve never been able to afford treatment, and i was scared to death of all the treatments because of all the awful stories online about the interferon..any way my doc had me take the {new at that time} sovaldi with ribavirin for 6 months..the ribavirin has some scary treatment stories but dont believe everything you hear about it because i hardly noticed and i took 3 ribavirin and one sovaldi in the morn and 3 more ribavirin at night, a total of 1200 mg of ribavirin and not sure on the sovaldi...but its been 3 months since treatment ended and my hep-c has been undetectable since i finished month one of treatment, and to think i nearly talked myself out of it by reading all the bad side effects and horror stories online...and my doctor was no help, he basically said do you want it or not, he knew nothing about it he said since it was new medicine...buy everyone remember its you and your body in the long run, so do try treatments your doc recommends no matter how scary the side effects how...of course prayer helps too, i thank god everyday that i had the courage to go through with it.....so far 4 months later and its still undetectable...good luck to all.
To all the Hep C suffer's. I pray my testimony will give you the strength to get tested, do the foot work with your Dr and be patient. I found out I had Hep C on April 12, 2016. It was dr's appointment after doctors appointment and on the third week I was given my paper work to be at a CT scan on my body and a liver biopsy. I do know when I contracted this deadly virus which was in 1998. I'm geno type 3 with very lil cirrhosis. That was close to 20 years ago but I have friends that have taken Harvoni in their 60's, very exciting to know that not only did Harvoni kill the virus, but set them totally cured from Hep C. My Harvoni was delivered to me last Thursday per Fed Ex and I've never felt better. Plz don't read the side effects, let's get thru this together!!! I'm not fatigue at all. As I said No side effects yet in my 6th day and I wish you All The Same!! Very grateful to have Harvoni, take action you good ppl and cure yourself from it! There is help from the pharmaceutical that will help you get this medicine. Plz don't give up! I felt as if my liver was gonna bust out of my body but soon as I started the Harvoni, ALL SYSTEMS ARE GONE AND I HAVE EXPERIENCED NO SIDE EFFECTS!!! Thank You to the makers of Harvoni, You Saved my LIFE
I use to workout at the gym everyday sometimes 4 to 6 hours a day. Then one day in 1986 I got really sick. I thought it was a bad flu so I rest. Then 2 months went by and I was still sick. So I went to the doctor and he said I had Mono nucleosis. Gave me some kind of steroid treatment and Sent Me On My Way. Six months after that Im still sick no better I go to a few doctors they don't know what's wrong with me. One doctor even told me I was crazy and it was all in my head. At that point I knew I had to take matters into my own hands. I was so sick that I could hardly get out of bed and for four years I struggled with this all the while reading about the immune system and how to build it up. I learned that the main thing I could do was the Raticate yeast from my body and not eat it anymore. I did this and at least I felt better and I could get out of bed now and I can function not normal but I would always feel tired and I would have to nap in the middle of the day but at least I can function. I decided that it was time for me to go back to school as the illness interrupted my school. That was in 1990. In 1992 while I was at school I dated a girl and she said that I need to be tested for a certain STD. While I was being tested for that the doctor told me there was a new test it came out but that I probably didn't have it and so she didn't want to give me the test. I told her please give it to me let's leave no stone unturned. It turns out it was hepatitis C. The side effects were harsh but afterward I did have more energy and could function better. Then later I went on interferon for one year. The effects again where harsh but it did help me have more energy after the fact. In about 2004 I went on interferon and ribavirin. The effects were more harsh it started to affect my sex drive as I was married at this time, and I lost much of my hair but I did feel better after the fact. None of this cured me it came back and I discovered that I had type 1. I also discovered the only possible way I am contracted this was when I was a teenager in the seventies I got a blood transfusion as I was in an accident and lost a lot of blood. I did not use needles so this is the only possible way I could have gotten it. For those of you who are worried about giving it to your family, just don't share your razor blades with him for your toothbrush and all should be well you can only transfer from blood to blood not through sex unless you're bleeding and they're bleeding. Here we are May 2016 and I'm about to get treatment with ribovirin and another I forgot the other name of the medication but it's a 12-week treatment. Compared to the interferon and ribavirin side effects this will be a breeze. I'm not even worried about it. I hope and pray that it will cure me that would be nice as all the others have failed. I'm a religious person so I pray and I encourage you to do the same if you are in the situation that I am in. I know that God has blessed me maybe I don't deserve it but he has. I will pray that He blesses you too. Mark
I had Hep C for 49 years with extremely high viral load and genotype 1.
I am clear and have been since week 4 :) No side effects no big deal 1 pill a day and it works :)
Find a good Dr who works with your insurance and foundations and if you qualify you may get it for free like I did.
Don't give up keep asking for the help you need.
I am a 58 year old African female, and I was diagnosed with the Hepatitis C virus 10 years ago in 2006. I eventually underwent the then 48 week treatment using Pegasys and Ribavirin combo from April 2007 till March 2008, but failed to eradicate the virus. Since then, I have been waiting for a new and improved treatment. When my doctor told me about this new treatment, I was more than elated. I started the treatment Thursday April 28, 2016 and this will be on it for 12 weeks till Wednesday, July 21 2016.
This Ledipasvir and Sofosbuvir + Ribavirin combo treatment I believe will eradicate the Hepatitis C virus by the time I celebrate my 58th birthday July 25, just 4 days after finishing the treatment. A great way to celebrate my birthday, I'd say...
Living with the virus has had its challenges, but one blessing I received in the last 10 years since I have known I carry the virus, has been the positive changes I have had to made in my life. Being aware has moved me into living a more health conscious life. The newsletters from Hepatitis Central have been extremely supportive, and daily Exercise, Yoga, Meditation, Eating Gluten Free, Liver Detoxing with Organic Green Coffee Enema, and a host of other Natural remedies have given me Wellbeing, Peace, Focus, and Discipline I probably wouldn't have developed had I not been diagnosed with this virus, and the knowledge that caused me to pay more attention to my Life-Choices and what was truly really important to me.
I will come back here and share my experience during the next 12-week CURE-Treatment, and my SUCCESS STORY.
To everyone out there going through this like I am, I want to say GOOD LUCK, and we can all see the light at the end of the tunnel. Stay always and forever blessed.
Diagnosed age 60. I'm now 70, liver and general health OK. Many of the prevailing symptoms mirror those found in POST POLIO SYNDROME which was diagnosed age 50.
Fatigue has been an anchor dragging me deeper each day. Maybe one day a week I will become elated upon waking to a clear mind. The norm is physical and emotional disconnection.
Starting Norvino. One pill per day. Absurd cost . $1,000 per pill. So lucky to have Insurance and Medicare. Support Obama Care...a better system if modeled like medicare.
So excited to see what the new , SELF will be like.
Please future writers and readers which ever treatment you're discussing please include which geno-type it specifically covers. That is a very crucial part of information. Thank you and I wish everyone the best. DP
I have had hep c for decades now . I am awfully lucky. I had a very good friend that just found out he had hep c. He died 2 weeks latter. That scared the hell out of me.
I also had an affirmative with an alcoholic....found out later she was drinking one gallon of cheap vodka a day.
She had it in her purse. Being a man that like to use women in sex I went with it.
Finally I kicked her put, she took a bus back to Apalacia and died on the bus broom lever disease.
Of course now I am freely really shameful and much more aware.
I saw a specialist that had a unique method for looking at my liver. Instead of a biopsy he inserted tube down my throat to liver with a small camera. Works well.
Anybody try this? Anyway I was told I had cirrhosis. I have been clean now for about 2 years and was amazed that my blood test showed me almost cured! I was also taking milk thistle. From all I read, I still think the test was wrong, because I don,t think the liver ever regains good cells to rid of scaring. Any body else have this experience with blood tests? I believe there was an error but my doctor won,t test me again.
I am 51 years old and have recently been diagnosed with Hep C 1a and Auto immune Hep. I have to take drug tests for 3 months before the specialist will approve treatment. If I were to guess I have had it for more than 20 years, but it is possible that I picked it up along the way, doing first aid in processing plants, after people cut themselves on cutting machines. Either way there is no way to know exactly and it doesn''t really matter. I am glad I just recently have been diagnosed since there is such an improvement on treatment. Had I known a decade ago I may have put myself through heck with the old treatment types. They call this the silent killer for a reason. We as humans can deal with it for decades and not even know it. I feel like I have already survived it, and will most likely respond well to treatment if approved.
I was around 18 or so when i got hepc, im 46 now. Ive only been diagnosed of have it! I dont no wwhat type or how far along it has progressed! I take care of my father and can only work part time, so i cant afford insurance or the liver test to see What type it is!! $$50. Is a lot of money to me and i think just a liver test is more than that. It would be cool to just have someone gave you the pills for the cure like the one story i read, its nice to know that there are still kind people out there, and i pray that it helps that man! Living with this sure isnt comfortable. I eat as healthy as i can, cant really afford much of the herbal pills and teas, but i do the best i can with what i have! I love my grandkids and my dad, hopefully a miracle will come my way someday, if not im not going to give up keep on going, Gods got my back, he has this many years, it could be worst,
Good luck to every single person with hepc, and god bless the doctors for finding a cure for this yucky disease!!
Caught HepC thru IV use of street drugs. When Jesus saved he told me to had a Call on my life. For 14 1/2yrs. I travelled the Nations preaching n prophesying without one thought of concern for the HepC in my liver
Finally, in March of 2006 i wz informed that i needed a liver transplant cause i wz Stage4.
They decided to prepare me for the Interferon/Ribavarin Chemotherapy.After 12 months on Chemo, drinking over 20 meds per day n the ChemonCocktail ea. Week...i remained entombed in darkness; a foggy, blury zombied out Xsistence.
I began coming to n recognize what wz happening to me...I AM ON PURPOSE PROACTIVE TOWARDS MY TOTAL HEALING N WHOLENESS
The Hep C was cleared from my body by Harvoni. The side effects of the Harvoni were terrible for me, and I still have lingering peripheral neuropathy from the drug. I am elderly, and the exhaustion from the Hepatitis C and Harvoni persisted. I did a lot of research online, and found a reputable site that claims that Hepatitis C damages the mitochondria of the cells - - the energy producing portion of the cell. The mitochondria can be repaired with lipid replacement therapy. My doctor put me on 3 different phospholipids, and after about two months, I began to get my pre-Hep C energy level restored. If you experience continuing fatigue, do the research and/or bring it up with your doctor. This lipid replacement regimen will really help! Good luck to all of you in overcoming this debilitating disease.
I was diagnosed with Hepatitis in my 20's. Recently a fibroscan showed a score of 3-4 lots of damage. My insurance refused to allow Harvoni and the alternative was contraindicated with the other medical problems. So my doctor found a clinical trial for me of a new combo by Gilead. Eight weeks later and no virus detected!!! The chronic fatigue I suffered with is gone!! Never give up hope of a cure!
After contracting hepC in 1968; after a serious injury and 23 blood transfusions..I am 100% cured since Jan 2016. I went from a viral count of approx 20million to 0 after 3 months of Harvoni treatment. I can now enjoy a longer life thanks to Harvoni treatment.I can do all the things I was restricted from for 48 years. This has been a prayer answered. I can't thank enough the research people and the doctors for such a miracle.
Hello. I contracted Hep C over 20 years ago. Just finishing 12 week treatmnt in 20 days. Harvoni caused side effects? however mild. Insomnia, irritability, weight gain, mind fog..low energy. Now, in the last days of treatment, side effects more pronounced. How long till this annoyance disappears ?
I caught Hep back in the early 90's from IV meth use. I was a stupid kid in my twenties and made very dumb choices. I was diagnosed last fall with Hep C genotype 3a. I have now been on Sovaldi and Daklinza now for 5 weeks of a 12 week treatment.
So far I feel better than I ever have! I know this is scary when you find out everyone, but the new drugs are turning out to be a miracle. I go for my next viral load count again soon here in a few weeks. Wish me luck all!
Hang in there and try to be patient--new medicines are coming along all the time.
Found out I had Hep C about 7 years ago. Went on the Interferon combo medication almost immediately. For 3 months I suffered terribly; nausea, vomiting, pain throughout the body, and exhausted all the time. Ended up in hospital-medication depleted my white blood cells and I got very sick. During my 5 day hospital stay, my liver Dr, and I decided I should stop the medication. I don't think I would have lasted the full 48 weeks.
Liver biopsies showed no liver damage over the next 5 years. I thought since I had Hep C for 35 plus years, I was one of the lucky ones; my liver would not be impacted by the Hep C virus.
We talked about new medication breakthroughs, but I was not willing to begin medication program since my liver was fine.
In January 2016, my biopsy and blood test showed a drastic increase in liver damage. I went to the Hodpital of the University of Pennsylvania for a review and treatment program. Their tests showed severe cirrhosis and further tests showed 6 cancerous liver tumors. What a shock; I went from being fine to cirrhosis and liver cancer in 4 weeks.
I am on Harvoni for the Hep C, and I am scheduled for a liver chemoembolization treatment next week.
We will see how things go!
Moral of the story; don't play around with Hep C. Even if you "feel fine", get on the medication, Don't wait for a downturn in the health of your liver: it can go from 0 to 60 quicker than you can bat an eye. Get on the Med's!
I was diagnosed in 1997 when I became a bone marrow donor. I waited until this past summer to be treated I am a genotype 2. I was treated for 12 weeks with Sovaldi and Riboviran. The only side affect was a very low red blood cell count which made me constantly tired and out of breath. After treatment my viral count was 0! Hopefully when I have my blood counts again they will still be 0. It was a hard decision for me to make because of the current treatment for genotype 2. Glad I did it.
I was diagnosed with Hep c and it has been a nightmare! Between the thought of death and my child being without a mother is awful!! I was never a drug user! I drank heavy to avoid dealing with everyday life as a young mother and my childhood memories!! I work and take care of my buisness as a mother and provider. I always felt a void in my life and dealt with men that were nothing worthy! I can't say where I got it from. It was during a routine check up and I was devastated!!!! And drank some more I feel low and dirty!!! I feel like a murderer don't know how I can live with myself and have not told anyone I went to GI after being unable to bare the joint pain, anxiety, dizzyness, etc to start finding out more of this dragon!!! Well it's only been three visits that I have gone to him and needless to say I started HARVONI JUST 3 days ago!!!! I must say I was scared to death to even try!!!! (due to so much research and side effects!!) IT'S BEEN 3 days and it's been the BEST 3days!!! I feel alive pain free!!! And so far NO SIDE EFFECTS THAT WOULD MAKE ME STOP!! Very mild if any headache and gastritis if that!!! I'm on this for 8 weeks!! I pray to God I nail this dragon and can go on with life!!! No more tattoos, alcohol, etc things that can harm me and say out can't happen to the best of us but now I'm more careful with my life!! I wanna live!! U don't know how it will be for you till u try!! Best of luck to all with this dragon demon!!! Let's kill it!!!
I was on Harvoni for 12 weeks and was cleared of Hep C genotype 1. I got the disease from a blood transfusion when I was 28 after a gall bladder surgery. I had no symptoms for almost 47 years. When I started to feel the symptoms, terrible itching, lack of appetite, fatique and sleeplessness I checked out what treatment I would go with. Very,very lucky that at this time Harvoni was available for me.
I am 65 years old and I found out 5 years ago that I had Hepatitis C just from a routine checkup. My doctor reminded me that I had never had a physical and asked if he could draw my blood and have it tested. Sure I said I didn't have a problem with that. When the results came back I was floored. I did remember when I had my 3rd child back in 1977 my urine was discolored and I was told I had Hepatitis but not to worry an antibiotic would clear it, and it did. The only place I think I could have gotten it was after the Vietnam war when my husband to be came home with it and was a drug user. I had an ultrasound and a biopsy done which showed that my liver wasn't damaged. Mind you I had no symptons whatsoever. My doctor wanted me to go on interferon and ribavirin but after researching the treatment and reading testimonies that the treatment was horrendous I decided to wait until new treatments came out that I was reading about. I waited 5 years and kept getting my levels checked yearly. Then in 2015 Harvoni came out as a treatment. I took it for 8 weeks with absolutely no side effects and my viral load went from over 4 million down to zero. There is hope so never give up
After an on the job injury in 1996 where I was exposed to another persons blood. I was sent to the ED for treatment and my blood test came back Hep C positive.
I decided not to forgo any of the treatment available at the time. I didn't even allow them to do a liver biopsy because I didn't want the evasive procedure when I was not going to let them treat me with the treatment they had at the time which was interferon.
I immediately started searching out ways to stay healthy and keep my liver functions from deteriorating. A good healthy diet was the first option I started with. I cut back on my alcohol consumption. Praise God I was not an alcoholic and could do that. I started searching the internet for anything and everything I could find that would help my condition. I found some research that had been suppressed for years called the Beck protocol. Bob Beck created the Beck Protocol, a natural health, bioelectric protocol designed to help the body heal itself. His passion for using electrotherapy technology to help us heal led him to develop five ways to improve health. Four of the steps work together and have become known as the Beck Protocol or the Bob Beck protocol. I used this protocol and I believe it was one of the reason I was able to stay healthy over the years.
I took all the well-known supplements for the liver that I could find after I finished the protocol. My liver levels stabilized and remained stable for 20 years. I was 38 when I was first diagnosed and I was 56 when I was finally cured.
After hearing about Harvoni I called my insurance company and found out that they would cover the treatment if I qualified but I had to have a hepatologist submit the paperwork for me. I approached my primary care physician and told him I wanted to be referred to the best hepatologist he could find.
I first opted for the ultrasound of the liver to detect any cirrhosis. After submitting the results of that test I was denied the drug treatment based on my liver condition. It was not severe enough. I discussed the options with my Dr and he suggested a traditional liver biopsy. After those results were submitted I was approved. I was lucky my insurance covered the entire 2 months of treatment except for $5.
Don't give up if you want to be cured. Keep looking for the right Dr that understands the system and can get the treatment approved for you. I would try a major University Medical Center if you have one close to you.
MY HEPATITIS C JOURNEY
1. DIAGNOSIS
My wife Vivien and I were quite happily minding our own business and backpacking through SE Asia during the winter of 2009/10. We had taken to spending our winters in warmer climates for the past few years to escape the harsh night time mountain cold at our Spanish farmhouse in Andalucia our home since 2000.
The previous few winters we had decamped to India, Sri Lanka and Thailand, but this year we were taking in Thailand, Laos, Cambodia, Malaysia, Singapore and Indonesia.
Three and a half months into this trip while travelling down through Malaysia I found myself for no obviously apparent reason becoming weaker and weaker. By the time we reached Singapore, I had become so ill I was barely able to leave our guesthouse. Our itinerary included a plane ride from Singapore over to Djakarta which I dragged myself out of bed for. But that airplane ride became the flight from hell as cramps, stomach spasms, headaches and nausea took serious hold.
Djakarta was originally supposed to be the jumping off point for our final month of touring down through Java to terminate in Bali for the last week of this trip before our scheduled return flight home to Spain at the end of March.
Oh the best laid plans of mice and idiots! On arrival at Djakarta airport I still felt far too ill to face the prospect of more backpacking, so we decided to postpone our planned Indonesian adventure for now and fly straight on down to Bali to rest up and recuperate for the whole 4 weeks.
After another very difficult plane ride we finally arrived at Denpasar airport in Bali mid-afternoon on 23rd February 2010, but it took us until early evening to find a suitable guesthouse within our budget. We finally managed to get into our room by about 7 pm, but by that time I was well and truly knackered.
I needed the toilet immediately on arrival, only to discover a lot of blood in the bowl when I'd finished. Literally not having enough strength to clean myself afterward, I just crawled into the shower, curled up naked in the foetal position and asked Vivien to 'hose me down'. But before retiring to bed I needed to revisit the toilet bowl to be sick, and when that ran red with blood I knew something more than just being run down was afoot.
Hey ho. The general upshot to all this blood, vomit, diarrhoea, tiredness, cramp and generally not feeling totally tip top ticketyboo was that by this point, any remaining thoughts of 'toughing' it out, being a man, sucking it up, and only ever going to the doctor were a limb virtually hanging off or already detached went out the window.
Something was definitely not quite right here and needed sorting, so off to the jolly old hospital in the morning it is then, health insurance or not (in our case not)!
2. THE SURYA HUSADHA HOSPITAL, DENPASSAR, BALI.
I was admitted to the above hospital on the morning of February 24th 2010, (not a well boy)!
Following the admittance procedure, we were ushered straight up onto a ward and connected to a saline drip and oxygen mask. In the meantime, many blood samples were taken for analysis and a blood transfusion arranged to try and restore my body to something approaching normal, this transfusion was the first of many over the next few days.
Was I scared? yes. Was I not happy? Yes.
But look on the bright side, if you're ill, scared and unhappy, where better to be than inside a modern hospital being treated by the very Head of Gastro-enterology himself, yes the big cheese in our case is Professor W. MD, PHD, a very important man.
We spent as comfortable a night as our situation allowed and waited patiently for the prof to come on his rounds with my test results the next morning.
He arrived looking serious (oh dear). Expecting the worst I told him not to sugar coat the pill and to give it to us straight.
Scared? Oh Yes, but what can you do. Despite all these negative emotions, I somehow also felt strangely calm, as if resigned to whatever his judgement on my fate might turn out to be.
He started hesitantly, as if looking for a way to minimise the weight of whatever news he had to impart in a language that wasn't his native tongue. By now both Vivien and I were a captive audience, holding hands, and in my case, mentally saying goodbye to her.
'Well Mr and Mrs M, I'm afraid to tell you that Mr M has Hepatitis C'. It seemed to me this statement was delivered in a way that had more than a hint of its being only a part of some impending good news/bad news story.
And I can't work out which bit of the news this is, because I know nothing about Hepatitis C. Has he started with the good news? Or the bad? And what was still to come?
My brain was in turmoil, but before I could recover my thoughts he continued.
'As well as Hepatitis C Mr M, you also have decompensated liver cirrhosis, chronic liver disease, Hematemesis-Melena, a Hiatal hernia, Reflux oesophagitis, a polypoid lesion on the fundic gaster, Portal hypertensive gastropathy and Erosive gastritis'!!!!
Now I'm properly confused, and Vivien is trying her best not to cry beside me. I mean, what the hell is going on here!!!
3. DEALING WITH DIAGNOSIS
Vivien and I just looked at each other, barely able to comprehend the meaning of all the medical complications attaching themselves to my new Hepatitis C condition. Personally I couldn't have been more confused if he'd just tied me upside down on a rubber lamppost, covered me in treacle and started calling me Doris!
I mean, what language was that diagnosis delivered in, it certainly wasn't English as I understood it. I know I'd asked for any bitter pill not to be sugar coated, but I had at least expected the results of his deliberations in English and not Latin, Basque or Indonesian!
It had all sounded very dramatic and rather serious, but the overall tone of his delivery was sympathetic and suggested re-assurance and calm, not alarm. This at least gave hope for the prospect of some future on our horizon. 'So that's alright then is it prof?' I asked, and indeed he suggested it could be.
With that out of the way I now felt better able to deal with the medical issues. I knew nothing about Hepatitis C; we'd always been completely up to date on all vaccinations necessary for travel including Hepatitis A & B. Neither of us really understood too much about any of the diseases we were vaccinated against, other than knowing we couldn't travel without them.
Therefore, as long as we were up to date, we knew we weren't going to catch any of them. But there is no vaccine for Hepatitis C, and when Prof W announced I had it, he might as well have told me I had Raging Swamp rot or Dingle berry disease.
Prof said he could stabilise my condition, and that at least seemed to indicate there was some time on our side. Time enough anyway to learn what had caused this, how I got it, and how to avoid it in the future.
At this point in our lives, recreational drugs hadn't been part of it for over 30 years since our children arrived in the late 70's early 80's, we might have drunk a bit too much alcohol in Spain as part of the Mediterranean lifestyle, but neither of us have ever been overweight and we'd both kept ourselves fit through sport and exercise, so there was no reason to believe I couldn't return to normal again.
So from that day, the new mantra became;
Concentrate on dealing with one day at a time.
Do what the doctors tell you.
Beat Hepatitis C and all the related medical side issues linked to it.
Then focus on something positive in the future.
That bit was easy for me. Get fit and well enough again to enjoy my family and friends, and at some as yet, unspecified time in our future, resume travelling.
4. (part 1)
THE STIGMA ATTACHED TO HEPATITIS C
I'd never heard of Hepatitis C before being told I had it, so I just accepted it as bad luck. In some way it was actually a bit of a relief, because it finally explained some of the symptoms I'd been experiencing over the past few years. Debilitating cramps, headaches, oedema (swelling of fingers, ankles), occasional nausea and tiredness etc.
We spent 8 days in Bali hospital before Prof W considered me stable enough to discharge with a sack full of pills to treat my various ailments. This was followed by three weeks of recuperation before our return flight home. We arranged to stay with our daughter in Stroud which was also close to the majority of my family in the Cotswolds UK.
I needed a doctor in England as there was no way we could go back to live in Spain with Hep C. My Spanish was certainly not good enough to cope with the complex medical dialogue necessary for me to understand all the issues raised during my time in hospital. So while we were resting in Bali, my sister back home in the UK signed me up to an excellent surgery in Stroud ready for our return.
The process of recovery was now under way and I was back in the UK National Health System (NHS). My new GP in Stroud immediately referred me to Gloucester Hospital where I went through many rounds of clinics, consultations, scans and blood tests.
It was during this process that I became aware of general attitudes to this disease and those who suffer with it. Hepatitis C is a BBV (Blood Borne Virus); it is passed on through the exchange of blood. So drug addicts become prime candidates when they share needles for example. Tattoos are another source if the tattooist doesn't use a clean needle. Cocaine users can also pass it on when sharing a tube (i.e. a 5 note) to 'snort' it; blood from the nasal mucus membrane of one can transfer to another through sharing a tube. Also blood transfusions before the early 90's can be another possible cause (before Hep C was discovered).
Contrary to common belief though, it is more difficult to transmit through sexual activity, unless the sex is rough or violent to the point where blood 'mingles'.
There are many other innocent ways to pass this disease on, couples sharing a toothbrush where gums have bled, and partners sharing safety razors where one tiny nick of blood is sufficient to transmit the virus.
But in general, I have found it to be considered a disease suffered by drug addicts, ne'er do wells, alcoholics (through their association with liver disease) and people with low morals. Much in the same way HIV and Aids was considered the disease of homosexuals 20 ' 30 years ago, and how far have we come since then!
In fact, the further down the road of treatment and recovery I went; the more biased and entrenched I found these attitudes to be.
5. (part 2)
THE STIGMA ATTACHED TO HEPATITIS C
In October 2012 I accidentally 'stumbled' upon a weekly support group for sufferers of Hepatitis C in my local town Swindon.
Here I met other patients covering a wide spectrum of experience, some with the disease awaiting treatment, others who had been through treatment and either cleared or not cleared the virus. There were carers of patients like my wife Vivien, and last but not least, occasional visitors from various branches of the medical profession with an interest in Hepatitis C who wanted to learn more about the disease from patients actually suffering from it, so hats off to them.
The group is run by a rock musician who came through years of addiction himself and lost most things of value in his life along the way. He's been 'clean' for 7 years now and it's his experience that drives this group forward. Many agencies working in related fields are now coming to us to learn more about what we're doing and how we do it.
There is a good mix of people here, others like me who experimented with drugs in the late 60's/70's, finished and moved on, only to later find the disease had lain dormant in our bodies for 30 ' 40 years before jumping out later to bite us.
There are many ex drug addicts too, most of whom are currently going through rehab and doing all it takes to get clean and reclaim their lives (not easy). Virtually all the drug addicts I have come into contact with suffered some sort of abandonment or abuse as kids, whether mental or physical, and drugs became their escape from the unpleasantness.
Wrong choice?
Whose fault?
It is for these kids I go to the weekly support group meetings, hoping to 'debunk' some of the misconceptions surrounding the disease and those who have it, and to help in any way I can anyone suffering from it and looking for advice/information/support.
We all make personal choices for various reasons based on our own unique experiences at the time we experience them. For young kids who turned to drugs to help them deal with their issues, and have now made a commitment to change their lives, I believe they deserve every chance for a route back into society and all the help they can get.
6. THE UK NHS
My personal experience of the NHS has been a very good one, beyond my wildest expectations in fact.
It almost feels to me as if a red carpet was put down to receive us from the moment we landed back in the UK. I couldn't possibly have asked for more compassion, understanding, care and treatment during the five years I've been under its care with this disease.
I've paid sufficient dues in my working life to qualify for the full state pension when I'm 65, so although I feel my treatment within the NHS has been earned, I still can't help but feel pathetically grateful for it.
My new surgery in Stroud received me in to their care with open arms, and my GP Mike G turned out to be a shining light in the middle of my new darkness, he really helped me to understand what was happening inside my body, and treated me for everything that fell outside the remit of the liver team at Gloucester Hospital who were the primary carers for my Hepatitis C condition.
Over in Gloucester I was at the hospital on virtually a weekly basis as the doctors battled to identify the amount of damage Hepatitis C had done to my body. My liver was clearly not in good shape, there had been some kidney damage too, as well as further damage to the linings of my oesophagus, stomach and intestines.
Over the course of the next 5 months (April ' Sept 2010) I underwent regular blood tests, Ultra-sounds, MRI scans, CAT scans, Biopsies, Gastroscopies, ECG tests (heart scans) and medication adjustments. These tests eventually gave the doctors a clear enough picture to decide on a course of treatment.
This watershed in analysis notwithstanding one anomaly in my results the doctors couldn't fathom, but that anomaly suggested I had a tumour. None of the tests showed where the bleeder was hiding and nothing else they tried could coax the little bugger into popping its head over the parapets to 'disclose' its position.
Sneaky, sneaky, just like the virus itself, although to be fair, that sneakiness is basically the job of a virus and therefore I don't suppose you can't blame it for doing its job!
So tumour or not, by early September a course of treatment was finally prescribed and I was called to the hospital on Sept 21st to 'begin the journey to cure and recovery'.
By this stage I was still quite weak and unable to drive; I had no appetite for food, was suffering with headaches and occasionally nauseous. But given the condition of my liver, the view of the medical team was I should start the treatment.
7. TREATMENT
Before treatment was due to start I was given information about the two drugs I would be taking, Interferon and Ribavirin. Apparently different patients react to these drugs in different ways, and the type of reaction could be affected by how fit you were, how long you'd had Hepatitis C and how much damage had already been done to your liver because of it.
Reading the list of potential side effects didn't inspire me with optimism for the process. Unless of course you fancied the odd bit of fatigue, even more headaches, some flu like fever, nausea, anorexia, diarrhoea, depression, irritability, insomnia, itching, rashes, alopecia, coughing or anaemia.
Not a course one would happily embark upon unless there was no option, but without treatment Hepatitis C would lead to liver failure and death. If your heart, lungs or kidneys fail, modern equipment and medicine can take over to replicate those organs function while the problem is repaired. In these cases, the doctors use a heart pump, lung respirator or dialysis for the kidneys. But nothing can take over from the liver. If you have a serious problem, you fix it or die. This makes your liver a unique organ and worth looking after.
By Sept 2010 I'd been feeling poorly for so long it was a no brainer for me to accept the treatment. Duly on Sept 21st 2010 we arrived at the hospital and were shown how to inject the weekly dose of Interferon and orally take Ribavirin, these 2 new drugs were to be taken alongside my normal daily medication to control all the other complications I had related to Hepatitis C, and these already had their own list of side effects.
Fortunately, the Interferon injection was only one injection a week. But within 24 -36 hours of taking it I would feel much worse. The nausea, anaemia and headaches could double in intensity. Other patients I subsequently met referred to this drug as 'Interference', because of the 'brain fog' it induced.
Ribavirin also came to be known as 'Riborage'. When you're feeling nauseous, depressed and fatigued, you're not sleeping, you're itching, anaemic, full of a cold and have diarrhoea, then the last piece in the side effects compendium. Irritability can understandably sometimes manifest itself as rage, and this was felt by most other patients I met.
Personally I never felt depressed and my own irritability never progressed to real rage, but the rest of the adverse side effects were all there. This programme of treatment was to last for 48 weeks, which made it feel like I was standing at the edge of a desert looking way beyond to a horizon still one year away and knowing I would be feeling pretty crap all the way through it.
The prospect was outrageously daunting, but I accepted the price as one to be paid if I wanted to get better, and I desperately did. So I just focussed on taking the medicine one day at a time and focussing on the future. A future with me still in it and returned to health, playing an active and healthy part.
The start of the 1st treatment required weekly/fortnightly visits to the hospital for blood tests, to measure how successful the drugs were in combatting the virus, plus of course the personal check-ups to see how my body was coping.
Not only did it not cope well, it turned out these drugs were having no effect on the virus, making me a non-responder, and as such, I was withdrawn from that treatment after 9 weeks.
In the meantime, I was carry on rewardless with all my other medications until a new programme to eliminate the virus could be found and my body recovered enough to withstand whatever it would be.
8. 2nd ATTEMPT AT TREATMENT
This was the situation one year later. On Sept 6 2011 I was placed on a second treatment that repeated Interferon and Ribavirin, with a new drug added called 'Telaprevir'.
The thought of this made me a little apprehensive because besides the excitement of taking Interferon and Ribavirin again, there were apparently additional delights attaching themselves to the taking of Telaprevir.
So delightful in fact this new combination again proved too toxic for my body to withstand. A rash associated with Telaprevir duly arrived and quickly spread all over my body. In addition, I became really ill, so much so that after a routine hospital visit for blood tests, we were phoned by the doctor the following day after the results came and told to get back to the hospital urgently for admittance.
I re-entered hospital on Sept 26th 2011 with a delightful and exotic condition called 'deranged electrolytes'. I think that meant my kidneys weren't feeling too well after the barrage of new drugs. But if you are going to be rushed into hospital for some reason, what better than 'deranged electrolytes' to enter with! I thought that sounded pretty cool.
I stayed in hospital until discharge on Oct 4th by which time I was considered stable enough by the doctors to go home again. I was pretty much unaware of what had gone on in there as I spent most of my time drifting in and out of the drug haze of the treatment and recovery medicines. I felt like I had virtually been turned into a zombie, but at least I was going home.
9. QUEEN ELIZABETH UNIVERSITY HOSPITAL BIRMINGHAM
Naturally the 'crash and burn' episode in Gloucester in September 2011 gave the hospital no option but to stop the second treatment. This left me with nowhere to go until new drugs and treatments to beat Hepatitis C became available in the NHS. So I continued attending the monthly clinics at Gloucester hospital to monitor my condition and manage the drugs I was still taking from the original Bali episode.
In December 2011 my clinical nurse at the hospital retired, and the Gastro-enterology department started using locums to make up the shortfall until the department could be re-organised. While all this was going on though, that one anomaly in my blood results still remained. It was called AFP (Alpha-Fetoprotein) and my levels were still very high.
Possible reasons for this were explained to me back when I first entered Gloucester's care, and there were only really 2 known causes for the kind of levels I was registering.
Either a) I was pregnant, or b) there was a tumour present, somewhere, probably in the liver.
This tumour, despite all the tests, scans and screenings was proving difficult for my non-specialist local to locate. Fortunately for me one of my routine Gloucester clinic visits put me in front of Dr T, a visiting locum helping out from Queen Elizabeth University Hospital Birmingham. This hospital is universally regarded as a centre of excellence for liver related issues and one of this country's main transplant centres and teaching hospitals. In fact, it is regarded as one of the best teaching hospitals in the whole of Europe, if not the world.
Dr T took one look at my medical notes and said he was going to refer me to Birmingham for ongoing treatment, and I attended my first clinic there in June 2012.
Upon my arrival at Birmingham the team immediately zeroed in on this high AFP level in order to find the elusive tumour. They conducted the same sort of thorough investigation I believe the CIA must have waged in finding Osama Bin Laden. And in both cases the intention was the same, to seek, identify, and then destroy the bugger.
It was finally an MRI scan on the 20th September that found where it had been hiding. I did receive a phone call from the hospital first to warn me of this discovery, but the clever way this was confirmed in writing gave me some encouragement and hope. I quote "...the MRI scan performed in Birmingham on 20th September showed a very suspicious area in the liver which very likely represents early liver cancer. The Multidisciplinary team discussed the possible approaches to the management of this. Because of your underlying cirrhosis and early liver failure, we think that liver transplantation is probably the best way forward" OK, so I had cancer, what next?
10. LIVER TRANSPLANT ASSESSMENT PROGRAMME
And so I entered Birmingham hospitals Liver Transplant Assessment programme where prospective patients are assessed for their suitability for transplant.
I attended the hospital on 19th November 2012 to undergo a variety of tests including chest x-ray, echocardiogram, ECG and blood tests. Then we met with a transplant co-ordinator and were given information about the rest of the assessment and answered any questions we had.
At close of play that day the co-ordinator confirmed the consultants would review the results and decide if they considered me a suitable candidate for transplant, in which case further assessments would be required. Well we passed phase one and were recalled for 2 more days of tests and assessments on Dec 4-5th 2012.
It was made clear to us during these assessments that even if accepted, there was no 'guarantee' of receiving a transplant. There is always a shortage of donor livers; hence we might be waiting for possibly up to 3,6,12 months or maybe longer for a transplant, and it was not unknown for some patients to die with liver related problems while on the list.
Dec 5th was a Wednesday, and at the end of the day's proceedings we were told the consultants met every Friday to review all the assessed patients and decide whether or not you were to go on the waiting list. Either way we would be called on Friday afternoon.
So Vivien and I went home that Wednesday evening on tenterhooks awaiting Friday's judgement.
When it came, the co-ordinator said we had made it onto the list and she sounded genuinely thrilled for us. She also re-iterated it would be our responsibility from that day to always have an overnight bag packed ready and waiting for the phone call to get to the hospital urgently were they to find a compatible liver, bearing in mind the hospital was over 2 hours away from our home.
She did warn us there might be some false alarms, because it was entirely possible a liver from another part of the country initially deemed suitable for me, might turn out not to be so under scrutiny on arrival at the hospital.
But some hope is better than no hope, the tumour was small (but growing), and there was always surgery or radio/chemotherapy in the interim if a compatible liver proved difficult to find, although I do have a common blood type which increased my chances significantly.
After that call our emotions were running high, it felt like we had come to the end of a very difficult 32 months, only to now be standing on the threshold of a different kind of uncertainty, and still staring into a future that held no guarantees. Weird feeling!
11. LIVER TRANSPLANT
That feeling of weirdness was only to last 20 hours. At noon on December 8th the co-ordinator rang again to announce they'd found a suitable liver and could I get to the hospital urgently.
The news was so sudden and such a shock the car journey from Swindon to Birmingham passed in a blur (as basically did the next 12 months).
Upon arrival at the hospital, forms were completed, declarations signed, tests done, and then up to the ward in preparation for surgery.
There was virtually no time to think, let alone panic, and I entered the whole process feeling somewhat calm and relaxed in a philosophical sort of way, happy to put my trust in the surgical team. I mean, the situation was what it was, without this transplant my chance of a full recovery was non-existent. So I just submitted myself to their care and quite serenely drifted off into la la land under anaesthetic.
I do remember waking up after surgery. First thing I saw was Vivien's face with no halo, neither was she wearing white, thus suggesting I was still alive and still on planet earth. So surely that's good then!
Second thing I remember feeling was the teeniest tadge of discomfort when I tried to move. Apparently some of the medical team had taken advantage of my anaesthetized state and fastened me to the bed with tubes attaching themselves to multifarious bags they'd thoughtfully decorated various parts of my body with.
Third thing I remember thinking was 'how the hell do I go to the loo strapped to the bed as I was'? Vivien obviously read this turmoil on my face and pointed to the tubes leading to the catheter and drainage bags hanging off the bed.
Total bliss, I had my best friend looking after me, I was told medication and attached bags would solve the need for No 2's for a while, and No 1's were sorted by catheter, and double bonus, I was being fed through tubes. Surely it doesn't get any better than that.
Feeling quite content with my new life (apart from the teeniest tadge of discomfort every time I tried to move) I drifted off into la la land again as the latest instalment of pain killer found its way into my blood stream from one of the numerous drips dispelling an exotic array of medications through a plethora of tubes attaching themselves to various parts of my body through a tube-like system of 'spaghetti junction' complexity.
And that was that for a few days, as unbeknown to me in la la land, this transplant failed after 36 hours (a record I believe), leaving the surgeons with no option other than to put me on life support while they desperately searched for a new liver.
12. POST DOUBLE TRANSPLANT RECOVERY
Fortunately for me they found a new liver and a good job too, because if they hadn't, I believe a body with failed liver function can only last about 72 hours on life support before irreparable liver damage occurs followed by death. So on Dec 11th 2012 I received my 2nd liver transplant.
When I came to after this surgery, I really do have to admit to feeling slightly more under the weather than normal. Life support makes your brain swell, therefore your head swells to accommodate it, and the resulting pressure causes the blood vessels in your eyes to burst.
I feel I entered hospital feeling fairly fab, groovy, windswept, exotic and interesting (well I sort of believed it and that's all that matters), but I came out of surgery looking like something from the bottom of the swamp one describes to scare one's grandchildren during bedtime stories.
Back in intensive care my blood was now coursing with an ever expanding range of chemicals to compensate for the surgery and new liver. Anti-biotics to prevent infection, immuno-suppressants to prevent liver rejection, anti-acids to prevent acid release from the stomach, anti-virals, steroids to do what I can no longer remember, soluble aspirin to reduce the risk of blood clots through the hepatic artery, a CMV infection inhibitor and lots of other very clever stuff too.
My whole body was swollen, my genitals looked like a spitting image caricature of the real thing after the catheter was attached, my stomach was distended, tender and full of staples, my mouth and nose were crusty, and my grotesquely bloodshot eyes and swollen head were capable of turning the nurses to stone Medusa like were they to accidentally gaze upon me without first making the sign of the cross.
My remaining time on the ward bore witness to some truly heroic events. Primarily the many mad attempts to reach the porcelain chariot situated in the adjacent en-suite. These heroic dashes were met with markedly varying degrees of success (or failure). For those often and urgent impulses to engage oneself in the medicinally induced throes of peristalsis would invariably arrive with barely enough notice to enable one to disengage oneself from one's oxygen mask, untangle one's wires from the cannula to the drip, electrically haul oneself upright enough in the bed to get ready for departure to the en-suite without ripping ones staples out, then swing one's still bloated legs and genitalia over the edge of the bed and gather up one's pee-bag to begin the required mad dash, which all might prove ultimately unnecessary anyway, for ignominious failure was often already upon one, resulting in that plaintive and sorry call for help all hospital staff dread - Nurse!!!!!!!!!!!!!!!!!!!
Hey ho, after 13 days I was ready for discharge, 4 days before Christmas, Dec 21st 2012.
13. FURTHER RECOVERY 2013
It was good to be back home, but now being out of hospital we were responsible for ourselves while there. Without Vivien that would have been impossible for me. Simple tasks like getting out of bed were major undertakings with my stomach extremely tender and still full of staples. Going to the bathroom was impossible without help, and the effort of getting there invariably left me on the point of exhaustion and collapse. Trying to feed myself would have been completely out of the question.
Still we struggled through, but the twice a week visits back to Birmingham to monitor the operation recovery, check the wound and take blood samples became epic journeys of travelling discomfort, both on the road and waiting in the clinic. After the staples were removed our visit schedule reduced to weekly, but the hospital visits remained epic journeys to be endured.
The new medications I was now taking (28 pills a day) had my head in a spin and body in a permanent state of revolt. A revolution intensified after the staples came out, because the wound became infected, and leaked badly for the best part of a year, nothing could be done to stop it and the dressing had to be changed 3 or 4 times a day.
Any movement stimulated more discharge, plus there was the ever present threat of being caught short. Yes, those sudden and imperative medicinally induced urges to get to a toilet in time did not leave me upon discharge from the hospital. They remained throughout 2013, that's about as long as my leaking stomach wounds continued to cause problems.
This meant there had to be a very pressing reason for leaving the house, because it was just too embarrassing for either a wound leak or pressing call of nature to occur whilst out and about or in company, and heaven forfend both pleasures should visit simultaneously.
Hence it became easier and more comfortable to stay in bed and read or watch television. This wasn't so bad as it was possible with some TV channels to watch never ending documentaries about many subjects I had a keen interest in (when I wasn't feeling nauseous or had a headache).
Any form of exercise was out of the question while the wound remained open and infected, and my medical regime still had my brain pretty much scrambled. But I knew I still had to eat and made a special effort to force myself every day, even so, by September 2013 I'd lost 15 kg and then weighed 55kg (about 8st 9lbs).
Therefore 2013 was a slow and very challenging year. Certainly the biggest challenge I'd ever faced in my life. But even though most of the year was spent in quiet but desperate recovery, there was much time for reflection and contemplation, which I was able to put to good use later on.
14. THE 3RD COURSE OF TREATMENT
Looking back on the years 2010 to 2013, I was clearly aware I had survived a life threatening health scare that arrived out of the blue. So although I was still very ill with Hepatitis C, there was much to be optimistic about. There were many new and wonderful drugs coming to the market with fantastic cure success rates during clinical trials.
Although the transplants had removed the old infected liver, the new one was already under attack from the virus. Hepatitis C is a blood borne virus (BBV), therefore it circulates in the blood, but finds the liver a perfect place to call 'home'. So removing the old liver did not remove the virus, this had continued to circulate in my blood stream and soon zeroed in on a fresh new liver to attack. Therefore, the disease and my symptoms remained, albeit not quite as acute as before the operation.
So I waited patiently throughout 2013 for my body to recover and by the end of the year it more or less had, notwithstanding the at times still extreme fatigue. Anyway, the recovery continued apace into 2014 to the point where I was chomping at the bit for the chance of another go at treatment to finally rid me of this pernicious virus.
I knew from my conversations with the liver team at Birmingham there were various trials coming soon. But obviously there would be many more deserving patients wanting places than places available, so there was no guarantee of getting a place on one when it came. But I did know my doctors were fighting very hard on my behalf to get me included.
Bingo, in April 2014 I'm nominated for a trial with a completely new combination of drugs and accepted onto it.
A 24-week programme starting in May where I'm led to believe most of the toxic side effects I suffered from during my first two treatments will be largely absent on this one.
And so it turned out to be. 6 months sailed by with no ill effects, I was virus free at 4 weeks and remain virus free now in April 2016. My body has recovered, and more importantly my liver has also recovered from the pounding it took post-transplant.
15. SUMMARY.
So I am now completely cured, and working for the charity Liver4Life in the UK, running the Helpline and participating in a very successful local support group for patients with hepatitis C called Swindon Hep C Positive, where we aim to inform any interested party with queries about Hepatitis C or the liver in general.
It's fantastically rewarding work and in the four and a half years we've been operating, we've seen over 400 people come through the group. We meet every Monday throughout the year for 2 hours and all are welcome.
Please visit our websites if you are interested to learn more about what we do and how we help patients suffering with Hepatitis C.
www.liver4life.org.uk
www.hepcpositive.org.uk
Kelvin M
I contracted Hep C way back in1969 when it wasn’t recognized by the Australian Medical Association. My journey began with a contaminated blood transfusion at Manly Hospital after an accident in the surf. Before this incident I had been an extremely fit young boy from swimming training with times good enough to be selected for the Olympics.
The first flare up of the liver sent me to a local doctor who, without proper testing, diagnosed me with Hep B. This was eventually changed to non A non B, and when C was first recognized in the 80’s, Hepatitis C. I refused interferon treatment when it was first offered, because of the adverse side effects and decided to tough it out without any medical assistance.
Sofosbuvir became part of my vocabulary in 2013 when I heard about its revolutionary cure rates. Unfortunately it has taken till 2016 to become affordable in Australia. Today marks the beginning of my treatment and I will blogging about it here so stay tuned for further updates.
April 1. Have taken 400mgs of Sovaldi and 60mgs of Daklinza
It was only after my fifth child that I became aware I have hepatitis c. My enzymes in my liver are through the roof. I'm just turning 28 and when I was 17 I lived with a heroin user and by accident while cleaning up his dirty needles, I caught my finger with one. I didn’t think too much about it and cleaned it with a antiseptic wipe and put a plaster on. What a fool I was, eh. Anyway tomorrow I go for an ultrasound to see what damage has been done to my liver. I'm absolutely terrified. I dare not touch my children. I feel so dirty and down. I could do with any advice peeps are willing to give me. I'm even thinking maybe it'll be good if I die then my family will be safe from me. Anyway I'll report back tomorrow when I've had my scan. : (
I found out I have Hep C about 1 year ago. The doctor ordered an ultrasound of my liver and found a mass tumor on my right kidney. I've been a smoker all my life.
I'm 61 years old I found out I have COPD. My surgeon is the greatest guy I ever met in my life. He told me that there could be problems but he'd pull me through this. They started the surgery with the robot but the carbon dioxide gas that they have to put inside of you, my body couldn’t get rid of it and it almost killed me. They had to open me up and take out 40% of my kidney. I made it through it and it was cancer. I just had a full CAT scan done and I am cancer-free from head to toe today.
I have four daughters that know I have Hep C and worry about me all the time. I just pulled through cancer and my second daughter called me on the phone and said, “Dad, I have the cure for your hep c!”. I said, “What?” A man approached her at her work and said to her, “I read your story in our business newspaper. I had hep c myself and I have something I want to give you.”. He gave my daughter a full prescription of Twinvir (generic Harvoni), free of charge. He just wanted to help. I don't know the man's name but he's a god. I took the medication to my doctor and show them they couldn't believe it. They said yes, this is the real thing and yes, this will work.
I took my first dose today. Wish me luck! And to anyone else out there with hep c, there's hope. Just keep trying. I just got lucky that's all. Just remember God answers all your prayers. Sometimes you don't like it, sometimes you do, but somebody’s been looking out for me.
I will write back in 6 months!
Good luck!
Steve F.
IV use. Diagnosed in 1998.
Only known cure was not for me as I did not tolerate. Sent me into a spiral of repeated self destruction and guess what, God would not let me quit. I met this gal and she dumped me because I was “dirty” but encouraged me to try/apply for a new treatment. I did qualify and I thank greatly the doctors at Duke Med for helping make the leap for treatment.
Treatment began in 5/2015 for 12 weeks. Although my doctors forgot about me in the system, each month I fought with insurance with my case worker whom I cannot remember her name. Let just say an angel. I completed treatment on time and with no insurance. I was scared to see the results. At a cost of $560.00 I had the test for Hep C virus repeated. The results were sent to Duke Med. and then forwarded to me. CURED, clear with no evidence of virus- 6 months after treatment. This story is real. Harvoni works and I was not even monitored during treatment. A survivor’s story.
Please, anyone diagnosed, not matter the cost should seek treatment. You can survive and you can be cured.
Feel free to contact Dr. Muir at Duke. He will save your life.
Scott
I caught hep B when I was 18 through IV drug use but was diagnosed in 1991 with hep c geno 1b. In 1996 had my first episode of hypoglycaemia and my platelets were low. 2014, platelets were 53, could barely eat due to pain and flare ups of pancreatitis which also occasionally sent my heart into atrial fibrillation. My INR was increasing and so was my alpha fetoprotein - about 400, should be below 12(a hepatocellular carcinoma marker).
I had an MRI (allergic to iodine so no CT ) and they found a liver tumor, luckily only 2.8cm. I had a TASE procedure march 2015 and I am still clear of cancer. Harvoni finally became government subsidized on 1st march 2016 and today is my 7th day on them.
I have had no side effects and I deliberately didn’t read about the side effects as I usually have all the rare ones on meds. However, I suffer chronic pain anyway and probably wouldn't notice them.
For the people concerned about side effects it is documented that there a few if any side effects, which is why I refused all other treatment prior to these and besides, the success rate for 1b hep c was only 25% on the old drugs. I look forward to life free of this burden.
I was diagnosed recently, at age 64, with Hep C, genotype 2. We found this thru a blood test that showed elevated enzymes in my liver. Further tests confirmed and a CT scan showed no damage to my liver (at this time). Not sure how or when I contracted as, at my age, there are so MANY possibilities. Still am not sure I have any symptoms as I have always dealt with pain and discomfort pretty well and explain things away due to age.
Waiting for delivery of medication in two days. I have been prescribed Sovaldi and Ribavirin combo. Will be on this regimen for 12 weeks. I was given about 3 pages of possible side effects, so you can imagine how nervous I am while at the same time, excited to hopefully, eradicate myself of this disease.
Will let others know how the medication effects me as I go thru the process. Taking first dose on Saturday, 03/19/16. Luckily, do not have other ailments, at the moment, that I am aware of so I am hoping to get lucky and have an uneventful journey. My GI will be mailing a lab schedule to me and expects testing approximately every 2 weeks.
I still work a 40 hour week so not sure how this will effect my daily routine. Grateful for the employer provided insurance that approved this treatment. Other employees here are aware and pulling for me so that really helps. They have promised to let me know if they see changes to my disposition or signs of forgetfulness.
Enough for now....will keep you posted.
To Ronald de Sousa,
Do what your doctor wants to do.
Interferon isn't fun but it's not the end of the world either. Do the interferon before bed and sleep off the effects.
Roland G.
This is the first post I have ever made on my hep c.
I was diagnosed in 1992. My urine was coffee color and I didn't feel good. They call it non A non B and told me to take care of myself. So that wasn't hard being I quit drinking 1987 and haven't had a drop since and never really took a lot of over the counter meds for pain. Anyway 1998 I started thinking about it and made appointment with liver doctor and he set me up for biopsy. They inserted a needle in my liver and the results were really good. Doctor said my liver is healthy and something else would kill me before hep c will.
So I continued to stay in the gym 3-4 days a week and also jogging a lot. l never really watched what I ate much. Around 2005 I heard about an interferon injection and looked at all the awful side effects so I decided not to go that route. Life went on with the symptoms as usual, minor, aches and sleep problems. I started to have less energy at the gym and on my runs, so a couple of years ago and went down to the doctor and I told them I had hep c and they did blood work and everything and it came back normal. So I said maybe all that I'm feeling is in my head, besides you’re a health nut. About a month ago I made another appointment with a gastroenterologist and on the first visit he said there was no way you have cirrhosis or advanced liver issues. So he set me up for blood work to check my genotype and viral load my viral load. It was 2.5 million and I'm still waiting on the genotype type results. He sent me down for liver scan and they said my liver looks good and normal size with no visual fibrosis. I was excited then he sent me for fibroscan last Monday and that wasn't good news. I have stage 3- 4 fibrosis and early stage cirrhoses and about to start Harvoni in the next month. Hoping it will help me and maybe reverse some damage.
Anyway I guess it really didn’t matter how well you take care of yourself hep c has no boundaries. I was one of the people who didn't get by without damage. My email is gojuman248@aol.com if anyone has gone through my situation feel free to email me I need all the support I can get thanks for listening.
Mike...Health Nut
I have had hepatitis c since I was 18. Now, nearly 50, it doesn’t matter what I drink, eat or do; I can drink, eat and do, less and less. I am mostly a vegan with occasional eggs and honey. I have herbs like milk thistle licorice and dandelion.
I try to do things I enjoy like recording music, for example. I try to do a little bit of what I enjoy every day in the hope that it heals me. Then when others hear it it will heal them.
I cannot do it for long.
I constantly have company. Someone that takes care of me.
I feel awful every day. Have auto immune problems high rheumatoid and am sick sometimes. I have daily pains and am now addicted to pain killers.
I enjoy the sun shining through the window but never go out socially or to do anything except a short walk to shops with a partner.
Sometimes I am in such a state squealing and in the night shouting “no no” as I don’t want to die at that moment.
My daughter was born with it too. Hopefully she will soon get medication for it. I am not allowed medication yet as people that have cirrhosis only get it in England. I don’t have that but I have hepatic venous thrombosis and heart problems.
I write many songs about death and hope they will make a difference in the world if not now then when I am dead.
I also have other things like recurrent herpes and peripheral artery disease.
I am too tired to fight anymore I have written to MPs and NHS.
I have a good GP who would give me medication if he could but he is not a liver specialist.
I hope to get medication somehow magically and not die.
May we all be free of hepatitis c and may it be eradicated from the planet. Extinct.
I have hep c type 3. My doctor recommended to take Sofosbuvir, ribavirin, & interferon but I’m afraid to take the interferon. Anybody have a suggestion?
I contacted Hep C through blood transfusions in a military hospital in Seoul, Korea. I showed no symptoms and it was discovered quite by accident by a doctor looking for something else. I underwent an experimental treatment at the Medische Centrum in Amsterdam which consisted of interferon, ribavirin and amantadine. I showed no signs of the disease after four weeks. I continued taking the medicine for 1 1/2 years. Six months after I stopped the disease was back. I moved to Hawaii and started taking Harvoni last year. 10 months later there are no signs of Hep. C.
By the way, I have fibrosis of the liver. On a scale of one through six, I have 1 1/2..
I acquired Hep C in the sixties when I was an IV drug user. Many of my friends also acquired it. Today, most of them are dead from the disease, probably because they never stopped drinking alcohol. My saving grace was that I did stop drinking in 1984. I have taken other prescription drugs since then, but it is the alcohol that really kills. So if you want to get on top of it stop drinking and take milk thistle. Best advice I can give after many years of experience.
You can watch my story if you google "Augusto story at Hep C trust".
Hi, my name is Julie and in 2010 I was diagnosed with hep c. I remember that day as if it were yesterday. I got my results and sat in my car bawling and not wanting to go on with life..
I contracted it through IV. My husband at the time said he always used clean needles but he didn’t and he gave it to me. I think the past 6 years I’ve gone through life pretending I didn’t have it. Up until a month ago I decided to do the Harvoni treatment.
I 'm scared to death of the side effects and I’ve known many people to do this treatment and have been cured.
I am scared to death but I 'm also scared to death that this disease will kill me.
I am waiting to start treatment next week and I 'm actually finally coming to terms with it.
I hope that people get tested, unlike me, who pretended I didn’t have it. That it was just a bad dream...
Good luck to you all and every single person with hep c there is medicine to help this!
I got infected with hep c when it was diagnosed as Non-A or Non-b Hep around 1958 when I was an intravenous drug user. I was finally diagnosed with Hep-C about 30 years ago. I was on a research program for 48 weeks receiving Pegylated interferon and, as it turned a placebo. The next year I went on a 48-week program with the real deal. I had to quit the program after 36 weeks as my blood levels were dangerously out of whack. As it turned out I became virus free following that abbreviated treatment and have been so for 15 years.
During the last 8 years, I have had 2 kidney cancers with subsequent removal of my left kidney. That same year I was diagnosed with stage 3 colon cancer. I had a successful colon resection and have been cancer free in my colon for 7 years. Three years ago I was diagnosed with a malignant tumor on my liver. I had a successful liver resection and I was cancer free for several years. Earlier this year I had a malignant tumor on my stomach wall and as I was beginning radiation my doctor noticed another tumor on my liver. Today I completed 10 weeks of radiation (5 for my stomach and 5 for my liver).
My point is getting rid of Hep-C is a good thing but maybe not the end of Hep-C related problems. This may sound fairly negative but I have been blessed with magnificent doctors and a supportive family. It is just like stopping intravenous drug use was a good thing but we continue to experience the after-effects for a lifetime. I am 77 years old and I am looking forward to the next 10 years. My wife died from Hep-c related liver cancer 15 years ago. She was not a drug user and it is suspected she got infected from a blood transfusion. We had different subtypes.
God is Good. I contracted hep c when I was in my addiction in 2005.
I found out in 2007 when I was in recovery. Just this year was my first time receiving treatment with Harvoni. With the meds and prayer my blood work came back normal.
God will heal you if you confess it out of your mouth. I am living proof.
I found out I had hep C when I was 18. Doctors told me there was nothing I could do but wait and in 10 years they might have a treatment. I pretty much thought the way I'd die was from this disease.
Well, almost exactly 10 years later when I was 29, 9 months after I had my 1st baby, I did the treatment. I’m cured!
It was fairly easy, just got fatigued. I was the youngest person to be cured and only the 9th person in CA. Pretty cool. Having my 2nd baby now!!!
I was diagnosed in my 30s and given only 5 years to live. I took Interferon and went into remission for only 10 months. What a disappointment!
I then decided that if I could use food and the correct diet and supplements, I could stay alive until a cure was discovered. I ate a diet that was high in both low fat protein and antioxidant plant foods. I took milk thistle and then I took turmeric. I drank water and I lifted weights. I prayed. I never gave up on my dream for a cure.
Finally Harvoni was invented and I was treated successfully. My only regret is that my mother passed away without seeing me cured, but I told her about Harvoni 3 days before she died.
My advice to those who will be mature enough to listen is that you must use healthy diet and lifestyle to combat any disease and buy time until a cure is discovered. G-d bless you and best of luck to you all!
Betty
I have been fortunate to have been in the UK for the past few years and was able to participate in a hepatitis research trial for the NHS involving new medicines for the treatment of Hepatitis C, Genotype 3.
I was given a combination of Sofosbuvir and Ribavirin over a 24 week period and checked in regularly for a variety of tests, EKG, Liver damage, etc. When I started the treatment I was told I had a very high viral load. After only two weeks of receiving the drugs I showed a decline in the virus to almost nothing. The viral load was detected through blood samples taken every week. At the end of the treatment I was checked out with zero detection of Hepatitis C in my system.
The difference I am feeling in my energy level and the total decline of depression is fantastic. The hospital told me that this treatment is going to become available worldwide in a very short time. I recommend any Hep C sufferer to contact their physician with this information to see if they can get onto a treatment plan immediately. There are absolutely no side effects either during or after the treatment - absolutely none!
I have had Hepatitis C for almost 38 years. I am genotype 1. I was stage 2 -3. I did not want to take the drugs. I went on large amounts of vitamin c and milk thistle. My last ultrasound of my liver showed it was normal. A miracle. I still am on my regimen, and staying away from liquor. Just want to keep my liver okay.
I'm 59 years old and used IV drugs as a young man. I was diagnosed with Hep C in 2005 after a routine physical. I've never had any symptoms. 4 years ago another blood test came back as a strong positive. I had a blood test done last week to see if it was active and was shocked when it came back non-detectable.
Is this possible? I 'm a healthy eater, no drugs or alcohol for years. Has this happened to anyone else out there?
I was diagnosed with hep c, G type 1 in 2012. I was tested because of my constant itching, abdominal pain, muscle aches and fatigue. I had a liver biopsy in 2012 and a fibro scan in 2015, both results indicate minimal liver damage. Because of this result, every doctor I go to refuses to treat citing treatment costs and the insurance companies will only deny the claim even though they have never submitted the claim. So here I am still suffering with symptoms, waiting for my liver fibrosis to get worse.
What a great country we live in.
I give up.
I go the treat Harvoni 6-8 months ago. I was Genotype 4 and in Stage 4 for many years. I was told by my Doctors, Medicare and Humana that I must take it not for 8 weeks but for 24 weeks. I did and my viral count went away. I was on S.S. Disability since 2012. I now am on a Ticket to Work program and found a real good paying job due to my skillset.
I will still be checked and live a very “Green” life to prevent any setbacks.
Praise my Lord Jesus
After 25 years of bad news and being unable to use conventional medication. Finally I was given Gilead’s Sovaldi. It has been out of my system for 9 months and is thus considered a cure. Unfortunately, I have stage 4 liver cirrhosis. Since I never drank and don’t plan on it, I have a good long life to live.
I knew that I just did not feel well. I attributed this to “getting older”. Had to have cataract surgery and had pre-op lab work done. My pcp told me that my liver enzymes were elevated; recommended a Hep C screen because I’m a baby boomer. The test was positive and I was referred to a G.I. physician who ordered a battery of blood tests, a liver ct & biopsy. It was determined that I had hep c genotype1.
Started Harvoni in January. Viral count zero after 4 weeks. Will return for viral recheck March 4. Prior to starting treatment I thought that if this was old age contributing to my aches, pains & general feeling lousy that I wasn’t sure that I wanted to live like that. Thrilled to report that my “migrating” aches & pains are gone! I have increased energy and a very positive outlook on life now. Nothing short of a miracle for this gal!
Have no idea how long I have had HEP C but pretty certain that it’s been at least 30+ years... Went through the pega/ribavirin treatment for 48 wks in 2011 was undetectable after first month and all through treatment but was back after 6 months. Waited until I read about the Harvoni at the end of 2014... Started a 24 week regimen of it starting the first of February 2015. Negative all the way, and still negative at last blood test. GA Medicaid paid every dime. Thanks to them and keep up the fight!! Your doctor makes all the difference in how and when you get it. If your’s won't help you find another one. Good luck to all!!!!!!!!!!
I am a happy survivor of Hepatitis C. Received my treatment at BIDMC. And I can tell the great benefit.
Feeling much better and positive about my liver renovation. The virus was eliminated from my blood stream and I hope that many patients can get the medication I got.
I was diagnosed with hep C 14 years ago. They saw elevated AST/ALT during some routine testing, so they tested for Hep C, and I was positive. I was a teenager back then, so no way I could have it sexually transmitted. I never had surgeries or transfusions, never used drugs. I think this is important to clarify, because we probably have way more transmission in dental care than the state wants us to believe. They diagnosed me with fibrosis F2 back then (biopsy), but my viral load was always below 300 K, and the enzymes not so bad. I had gen 1b, so very low chances to get cured with interferon. I heard that the side effects were terrible, so I didn't even want to try. I tried living a healthy lifestyle, doing sports, eating healthy, but I never managed to cut down on alcohol completely, even though I only drink socially and with moderation. (I don't say you should do it!!!)
When Harvoni came out, I finally had the hope. End of 2015 they did my fibroscan and said I had no fibrosis at all (impossible! I had it long time ago!). So no chance to get the drug. I wasn't even disappointed, I was just so, so angry!
I went to India in December 2015 and bought the generic. It's kind of complicated to get what you need in India; you feel that people just beg for a bribe. It's a different world! I went with Medtour India, so my trip was organized. I knew that this would cost me extra money, but buying “online” was even more expensive (and you never know what rat poison you'll get). Anyway, it is all pennies compared to the price of authentic Harvoni. So I went to India, got the drug, things went smooth out there, no regrets. You probably can do everything out there yourself, too, some people do. It just takes much longer then, time to figure things out, waiting in lines, and still have to pay “facilitation fees” everywhere; even the bloody cab driver tries to rip you off.
So today I am celebrating. Today is end of my 1st month and I got my first test (from week 3). I know it is very, very early. I was extremely afraid to see the results. My viral load is 16!!! I am basically testing negative!!! My transaminases are 22 and 23, completely normal. I feel the urge to cry.
Still 8 weeks to go, I just hope and pray it will stay this way from now on! And forever!
I want everybody to know, if you are denied treatment, don't give up! Praying and hoping is good, but acting is important, too. Don't wait till it is too late, especially if you are in 20s or 30s like I am. If you get the drug first hand in India, you will know that it is the real generic. And they work!!! And the majority of us can afford it, maybe with help from the family or small loan, but it is just few thousands! Nothing compared with our college loans. But it means that we will have the amazing life ahead. And worst comes to worst, if you are in those 2% that had no luck, well, at least you tried your chances!!!
3 months post finishing Harvoni: 0 detectable virus level (I wrote a small summary once I finished treatment last October)
A shortened version; I lived 42 years (all my life) with the virus and found out at age 18 I had hepatitis C through a blood transfusion I had at birth. My mom states I had 13 blood transfusions as I was born 3 months premature and spent 12 weeks in the incubator. I weighed 3 pounds and went to 2. Doctors didn't think I would make it....
I was married happily for 10 years- this is now 8 years ago that I have been divorced. My ex put up with a rollercoaster of emotions which became increasingly so. I ended up divorcing because I grew increasingly agitated and restless. I told my ex simply that I “had to go”. I left him with everything. I told him I wanted to return but he had had enough. Once I was gone, I was gone. Ugh. It was the worst feeling but I had to do it. It also was an un-well feeling that something wasn’t right with me. I do not attribute this to the 7 year itch. I never did drugs or drank alcohol at all, ate fairly well and through treatment I ensured I had a trainer that kept me on a consistent workout. This workout definitely helped me stay positive.
My doctors throughout my life stated I didn’t need treatment as my virus levels were continually low. I had blood drawn every 6 months for a checkup. I didn’t want treatment anyway due to the side effects, some being death and awful relapse rate. I would opt for eating healthy, take milk thistle and a smattering of herbs I would rotate on, exercise and maintain my positive attitude. Little did I realize how much of a f*cking dragon this was and took away from me, my family and my marriage. Look up a picture of the virus- the viral envelope looks like a medieval flail. Ouch indeed!
I will highlight the many changes I had with the virus and post treatment.
Anxiety/Intensity/Scattered Feeling- I INCREASINGLY felt anxious about my job and I felt I could only focus on either a job or a marriage. Luckily we didn’t have kids- I didn’t want to put my kids at risk. So I gave up my marriage and for the most part dated my various motorcycles -8 that entered through my life- which lasted around a year aka 20-25 thousand miles and then I would sell it. Over these 3 months after finishing Harvoni this Anxiety/Intensity/Scattered Feeling is G O N E. The feeling to go through motorcycles is G O N E. The feeling I can hold a relationship is THERE- but thoughts are with my ex. Do you know HOW BEAUTIFUL life is without this agitated feeling???!!! I feel calm, at peace, and that I don’t have to “keep moving”. The motorcycle allowed me to satiate these continual urges ... but I still have my one motorcycle. :D
My eyes- About two weeks after finishing treatment my eyes became very watery. My body found its natural lubricating balance!! I always had dry eyes but never knew this was a symptom of the virus. It took a couple months to balance but I felt like I was “blinking in a sea of water”. I love it!
Sex drive- I hardly had one when I was married nor throughout my life. I HAVE ONE NOW!!! ... and now I 'm close to menopause....hmmmppphhh
Thinking/Brain fog- I always heard about brain fog and people suffering from it. I never knew what it was until I CAME OUT OF THE FOG. My thoughts became “clear”. There WAS a DRAGON IN MY HEAD. Doctors didn’t tell me this mental side effect. This is what I INCREASINGLY fought through in my marriage. Clarity is what I had been looking for!! I am more organized too.
Reading- I don’t have to read stuff 5x to try and “get” the information. Some days would be good and some days would be deplorable for me taking in information. I am amazed I survived college. Now being able to understand what I just read is BEAUTIFUL. I relied on my ex a lot to help me understand what I just read.
Energy- Before I would sleep a lot. My energy was limited. I INCREASINGLY felt I could not satisfy my husband because of my lethargy. I began to alienate myself away from him and just wanted me time. Oh GAWSH just me time. When I divorced I took up motorcycle riding. Was THAT ever therapy!! To the friends I did have, I remained distant. Post treatment I slowly felt connected with people because my energy became consistent. It is THE MOST beautiful feeling to be able to fully listen what people have to say and not feel like you have to leave to just “vedge” in the car or in the bed. My brain used to go off in a direction after talking with someone after a short while. I could feel my energy waning. Now? No issues. Now I LOVE talking and listening to people and being involved with groups and meetings. This is just crazy, but so beautiful that I STILL have a life to live and catch up on.
Those of you out there struggling with whether to take Harvoni or not- DO IT. The fact that doctors say you’ll pass away from some other disease (mine did) may be right, but they didn’t know how much it can mentally f*ck with you and the loved ones around you. I have my brain, it’s healthy thinking. Now I have a healthy body. I LOVE it. Go to the gym, eat right, think positive, do positive things in your life, stay the most healthy that you can. ... but do allow yourself that delicious glass of wine now and then..... ok, I 'm no doctor.
With much love that I can now give away to others, I give you my new strength to get through this. Bless every one of you that is going through this struggle. I hold your hand and everyone’s hand that feels alone and crazy through this. I did. So alone. So alienating. YOU are not alone. YOU can beat this dragon and stomp its flames out!!!
Hi, I have had hep c for 45 years from heroin use in my early teen's living in LA.
I have cirrhosis and iron overload. Ferritin level is 2,707. I did interferon and Ribavirin in early 2000's… non responder.
I finished 12 weeks Harvoni on October 26, 2015. Non-detectable.
Last test January 18, 2016...virus is back. My viral load is 311,000, ast 223, alt 215, platelets 84.
They say the virus must have mutated but they really don't know. I am the only person out of 200 at clinic that did not get cured. Doc says “Sorry. Maybe there will be new drugs coming out this year and we may be able to treat again”. I don't count on it.
I am happy that a lot of people have been helped by this drug but did not help me. So I just turn up the music and try to enjoy my days. I wish the best for everyone suffering with this problem.
Have a great day,
Larry
Damaris R, please get in touch with me… retz62@yahoo.com.
My Mom died too from this drug!! She was 80yo. She took Solvadi & Olysio in March 2014 soon after it was released. Within 5 weeks of treatment, she was so sick. They told her not to stop the medicine. She continued and by the end of treatment, she could no longer walk, she was bleeding through the nose and gums. They said it wasn't the medicine. Her platelets where low and couldn't be sustained. She needed biweekly transfusion of plasma and platelets. It was crazy.
My mother was fine before starting this medicine. She was sick all summer and suffered a fatal stroke on 10/13/14. It's been a nightmare. Hepmag.com has banned me from their forum for telling my story, banned me more than once.
How do we find justice that this killed our Mom's!!!!
Thank God for Harvoni. I was nervous after the debacle of interferon and ribavirin caused a terrible relapse to narcotics. But the Harvoni cleared my hep C which I have had for 40 years.
I was diagnosed 15 years ago because of chronic fatigue, chronic itching, and chronic joint pain. I feel like I have a new lease on life, in spite of the fact that I have cirrhosis. I play tennis 4 times a week; my fatigue is gone; and I am managing my chronic pain.
I am so grateful that there are drug companies who spend the gazillions of dollars for research and development. It was worth every cent--and Gilead paid my $16,000 copay! The Harvoni was NOT a breeze--do NOT let the doctors tell you that it is--90 days felt like forever, but I went to a lot of meetings (NA and AA) for support and talked to others who were going through the treatment and it was a 100 times better than the interferon, which I was on for a year and then it failed, and so did I!
I feel blessed.
I first posted on Dec. 7, 2015 and again on Feb 3, 2016. Here's the run down on my hep c.
1. Went into the army in 1969 and was inoculated with injection guns along with many others, then went to Nam in 1970.
2. Was diagnosed with hep c genotype one in 2001. I took treatment with interferon, and Ribavirin. (No luck)
3. I waited until I heard about Sovaldi on TV in 2014 and contacted my doctor about it but the insurance didn't want to cover. I then went to the V.A., and they did treatment of Sofosbuvir, Peg interferon, and Ribavirin, in fall 2014 (Again, no luck)
4. I then waited to get Harvoni that was approved by the FDA while I was on the Sovaldi treatment. I received treatment in the fall 2015.
5. I said in my last post that I would fill you in. I took my last blood test on Feb. 4th after finishing treatment in Dec. 2015 and received a call on Feb 12, 2016 telling me that after three months I am still undetectable. HOORAY!
6. I will still have to take another test in three months but I feel confident right now.
7. I have cirrhosis at a level of stage 3.5 to 4., so I'm not out of the woods yet but the cirrhosis will slow way down now.
8. I thank the Lord first for healing and giving man the knowledge to help others in trouble, I also thank the doctors and nurses who deal with people like me and you who are not always the best patients, I was depressed and intolerant of a lot of things during treatment.
9. I want to say to all of you out there that prayer doesn’t hurt and having faith in others is also key.
Thanks for reading and don't give up.
Roland G.
PS: To the 46 year old woman who wrote a few letters down the list.
Please have faith and look for all the options, government, medical, insurance, and any other ways to get help financially for treatment. Keep in mind that hep c takes many years to damage the liver. The best options are to not put poison in your body. Quit smoking, drinking alcohol, watch sugar and sodium, and lower but do not eliminate iron in your diet. Stay hydrated on or off treatment. You said you have genotype three, so ask your doctor if you are a candidate for interferon and Ribavirin 24 weeks. That treatment has cured and is inexpensive. I will watch to see if you have any news. Also stay positive because I have had hep c for 40 years and I'm still here.
I discovered in the middle 90's through a free complete blood work-up offered by my employer that I had Hepatitis C and it was the most difficult type to cure. I had no risk symptoms; but had surgery and dental work done back when Drs./Dentists did not wear gloves or sterilize all equipment; and also reused needles on patients. So this is how we assume I got it. At this time they had just come out with Interferon as the only treatment for this.
Luckily, I had great insurance at the time and a great Dr. who got treatment approved. I went through a year of Interferon treatments, but was a non-responder. The best advice he gave me was to never touch another drop of alcohol (even though I had only drank a very small amount socially or with a meal occasionally); eat a good meal; try to get rest; continue to exercise; and give myself my Interferon shots about a half hour before going to bed to sleep through the worst of the side-effects. I managed to only miss one day of work and finish a master's degree while going through treatment for a year. Yes, the side-effects were bad - I lost a great deal of weight; constantly felt like I had the flu; and lost 2/3 of my hair. But I was determined not to let this stop me and try to make the treatment work. As soon as I stopped the treatments (a year was the max. you could take it) my hair grew back; I regained weight; and felt better quickly.
The treatment kept me in somewhat of a state of remission until I unknowingly started eating food with too much iron in it about 10 years later. At this point I lived in another state and again had a great Dr. who discovered the iron problem. She put me on a low-iron diet immediately. The iron problem eventually caused me to have Stage 4 Liver Fibrosis though; so I will now be on a low iron diet (about 50% of a normal person's daily total) and need bi-annual checkups/tests with her to make sure my liver doesn't turn cancerous, the rest of my life.
The great news though; is that I was on disability for another reason; and qualified for a grant with the help of the wonderful PAN Foundation and luckily my insurance approved Harvoni as a specialty drug needed (as this was my only treatment option) and went into benefit override. So I was able to complete my outrageously expensive Harvoni treatments. I went through 6 months of treatment with Harvoni. Again, my Dr. recommended taking the Harvoni during sleep at night to sleep through the side-effects. I found them to by fairly minor - taking small amounts of medication for headaches daily; eating properly and using spices to help nausea; and exercising.
My blood work shows I am now clear of Hep C. So I consider this to be a great success story and hope the advice I was given and steps I took to help get through the treatments I received will help others. Now that Hep C has become such an epidemic, I also always encourage people to get checked for Hep C also; since you can have it for years and not realize it until it is too late. I am glad there are commercials on TV now and this problem is getting addressed more because it has helped reduce the stigma that has so long been attached to have Hep C.
I was diagnosed with Hep C November 2015. Complicated by a clotting disease (protein S deficiency). The labs were checked by rheumatologist on my first visit with him. I was sent to confirm Sjogrens. I was told over the phone, told to come in for additional testing… gnome 3. I was referred to a top notch hepatologist. His first words were “we are going to cure you”. I cried.
Weeks later after ultrasound (stage 0, no fibrosis) my insurance says I'm not sick enough, so no treatment. The doctor says there is a clinical drug study coming up (which was supposed to be in January) and he was going to put me on the list. But of course I would have to meet criteria, which is unlikely since I'm on blood thinner for life among other illnesses.
So I'm a smart, attractive 46 year old who feels as though she has been tossed aside and thrown out to pasture so to speak, waiting on death, which to be honest, would come as a relief. The pain and depression are at times unbearable. And knowing that there is possibly a “cure”... well, guess the “powers that be” don't deem me worthy....
I lived with HCV for 63 years, and 25 years with a transplanted liver that has also become cirrhotic in the past 5 years. But in mid-2014 the HCV was killed in me and now my scarred liver functions well.
My book “A Physician's Journey with the Hepatitis C Virus - Historical, Medical and Ethical Reflections” (Xlibris, 2015) reviews the story of my chronic disease as well as my personal and professional life in its context - interwoven throughout with ethical reflections. It is available on the online market (like Amazon) in paperback and in e-book formats.
My mother had hep C for a few years. She went on treatment twice. The second time she was on a higher dose of ribavirin and Pegasys. She was on it for 6 months.
According to the blood results the treatment was working. Throughout the treatment she was very low in platelets. On the beginning of the 7th month we get a call from the docs office to tell us to stop the treatment immediately, and make an appointment to see her doc. A week later my mom was gone. She had an aneurism and nothing could be done because her platelets were so low, she would have bled out from the surgery.
If you are thinking about going on treatment please be aware of the side effects. If you are on treatment now, listen to your body, take care of yourself, and ask a lot of questions. I pray a cure can be discovered, available and affordable to all who need it. My mother was only 45 years old and we miss her every day.
I found out that my husband had hepatitis about 9 months ago. He tried applying for health insurance and they drew blood and it came back he had the virus! Of course I tried not to panic so I went and got and tested. I had it too! To make it worse we have 3 adoring children together and I was afraid for them! We had our children tested and they were negative, thank God!
We also learned we had geno 3, which I understand is one of the worst! I was afraid to say the least! To my surprise I got an awesome doctor who didn’t drag her feet about treatment and I'm happy to say within one month of treatment I had no virus detected and I have about 6 more weeks of treatment left! By the way, I did 6 months with Sovaldi and Ribavirin.
I've been very sensitive to the medication. The worst part was the side effects that I had experienced! I wanted to stop the medication had to go to hospital many times for upper respiratory issues like pneumonia and a staph infection from itching. I finally found a doctor that treated me with a simple allergy pill which helped a lot with the itching! It was all worth it to me!
My husband just started his treatment which I commend him for the doing the three medications. I hear the Pegaferon is the worst. He too is hanging in there and like we both said, if nothing else we are going to tough this out together and go through the hell because of our children. It's a small price to pay to be rid of this horrible virus!
We have changed our eating habits and found that simple things like fruit nutribullets and kale in your diet really make a big difference whether you have started treatment or not! His viral load was 800000 and with just diet change his viral load went down to 2 million. My viral load wasn't that high at all. There is light at the end of tunnel! And I believe that it helped that we stuck together and fought together!
Go to www.gilead.ca and you can read the 70 pages of negative issues about Harvoni and Sovaldi.
I will NEVER consume prescription medication for Hepatitis C. Seriously. Who would want to compromise their immune system with synthetic material that will likely cause a host of other problems in time to come?
The prescription drugs I was offered were Daklinza (daclatasvir) and Sovaldi (sofosbuvir) but I am refusing them. Daklinza inhibits the “NS5A protein”
but SO DO flavonoids such as Quercetin and Naringenin (which come from natural substances) and are available without a prescription. By taking prescription drugs for Hepatitis C, what a person is really doing is saying yes to corporations taking control of your health care and life which leads to a breakdown in one's immune system and overall well-being. In addition, this places more of a financial burden on the individuals and the medical community in terms of cost. Side effects will likely occur and they can be debilitating.
I have hep c. I have had this for many years and have been fighting to find a good cure. I'm at my wits end with this and don’t know what to do. I always feel fatigued and I'm not sure if it is from waking up at 3 am for work or the hep c?
Well tomorrow is February 4th and I'm going to the VA Clinic for a blood test to see if my hep is gone.
I signed on the site about 20 letters ago. Look down the list in December for my story if you like. This was my third treatment, this time with Harvoni. During treatment I had to get a pacemaker put in. I don't think it was any of the treatments that caused it but, I think I was starting to have trouble before and the treatment may have sped things up because I was on Ribavirin too. Anyway, this is the blood test that tells all. In two weeks I will see the doctor for results. Hopefully the hep will be gone this time. Then in six months we will test again. Watch for me in two weeks and I’ll fill ya in.
Roland G.
P.S. Stay hydrated if on Ribavirin and Harvoni.
I have a friend that took this so called new drug for hep c. He had operation for liver cancer before starting this drug. The Veterans Administration told him that he was 100% in remission. After six months he went back to visit his Dr of Hematology, only to find out his hep c was back full force and his liver cancer too. I like to know how many people are no longer in remission. If the drug is working or was just pushed though in trails to get it approved? Is anyone taking this?
I found out I had Hep-C about 35 years ago. After going through 2 biopsies, around 10 years apart both turned out OK. That’s when I first found out I had it. So after 15 years my doctor told me about Harvoni. I did some blood work and found out I was stage 4, so I got on the program right away and finished my 6 week course and I am totality free of HEP-C. My only wish is that it would be available for much younger people, so they could enjoy more of their lives.
I was just diagnosed with hep c.
I have had it for 40 years I'm thinking.
I have never been sick, no symptoms. I just lost about 8 lbs without trying. I'm thinking that this is what made my dr. check it out.
I don't know what to think. I'm wondering if I need to do anything. I go back for more blood work in 3 months. I was born in 1956; I've read that this is a typical time for positive tests.
This is my second entry. I can't sit back and not share what's lately been on my mind. First of all, I am a Genotype 2a HCV carrier with (as of Oct 2013) a viral load of a million, no fibrosis. I most likely contracted the disease when I was a baby during a surgery.
Fast-forward to now...age 33....I don't drink alcohol. I watch what I eat (trying to limit refined sugar/sugar to 20 gs or less per day). I don't take prescription drugs and never will. I have a mentor in Lloyd Wright of Alternative Medicine Solution. He has enlightened me and many others battling this same disease. He has written books with valuable insight into why it's important to be your own advocate ahead of the corporatization of health care aka the pharmaceutical industry.
In my humble opinion, the Affordable Care Act is great if all you're looking for is tests conducted or surgery. But as for anything beyond that, doctors are just looking for ways to profit off you. If that means trying out Hepatitis C drug therapies on people like us, beware. The side effects that go along with many of them, including the latest Harvoni, can bring about some troubling health problems down the road. I've read emails and studies put forth on Lloyd's website and it's astonishing.
I have a meeting with my new GI next week and I'm honestly telling her upfront that I am refusing any suggested/prescribed treatment. I am placing my faith in God and Mother Nature. Besides, why would I go through such treatment if my CBC indicated my lab numbers overall (despite elevated AST/ALT) are good? Especially my RBC, WBC and Platelets.
I'm sick of the pharmaceutical company lies. I'm sick of them inundating people with television commercials about Hepatitis C treatment. I'm honestly ready to explode. Sometimes lately I've felt slight rage inside.
By the way, please vote for Bernie Sanders. He will change the way money and ideas are exchanged within America. He will also challenge the companies that claim to be looking out for our health. I'm sure of it.
I finished Harvoni on 9/13/15. I did my ultrasound on 9/28 and it was great. Then I did my 3 month ultrasound and I have a 4 cm mass in upper lobe of liver. I am devastated as well as scared. My doctor from Stanford University is doing another ultrasound and this time of lungs abdomen pelvic area. I asked why when he could have used TACE right away. No answer. Scans are Feb 2.
Anyone with same experience with Harvoni?
I'm scared.
Hello. I have hep c and for the past 6 months I am under the treatment with ribavirin & interferon injections. I got infected over 12 years ago and I was diagnosed a year ago.
I don’t know how I got infected but my main suspect is the dentist because that is the only place where I was in contact with injections and blood.
My first treatment was working fine, but over the Christmas I found out that my boyfriend was cheating on me so we broke up. Of course that was a very bad personal time for me with lots of stress and I developed a huge allergy and it is probably to one of the drugs I am taking. So I am taking Claritin for it but my treatment is not working as it should all of the sudden. The viral load is not as low as it should be by now and the doctors were considering canceling it at first, but now they decided to continue. But they will give me another drug, Simeprevir, to take with Ribavirin and interferon to get them to act stronger and bust it up, as they explained it to me.
I also have to have a test to see if I have polymorphism. To check if that is the reason why my drugs are not working properly... and I am just waiting for results for that. I have to say that I have a really great doctor and I trust him fully. I am so happy that I found him.
I saw posts where some people also had poor receptions to their treatment so I wrote this because it might help even though I am not sure if it will work even for me. But I decided that I am going to get well and I will.
I also got myself armed with some alternative stuff such as silver water, enterosgel, beetroot & ginger & carrot juice. I am counting everything I eat and drink and I am starting to feel positive changes. I also use old folk remedies to fight with side effects of hair loss, depression, lack of sleep, muscle pain... as I have lot of time on my hands I started studying about old folk medicines and they do help!
All my days are spent trying to maintain myself and keep my body from falling apart. It is hard; depression and lack of energy for me are the worst!
I found out that I’ve had HCV since 2007. I got treatment with interferon and ribavirin for 48 weeks but I just took treatment for 42 weeks only. I stopped the treatment because of the side effects. When I started the treatment, after 3 months my HCV virus was gone but after one year I checked my PCR test and the virus was back.
I felt so bad.
My doctor was saying I would have to take other treatment for 72 weeks. I said if I can't take it for the 42 weeks how am I going to take it for 72weeks? I told him no. If I am going to die, I will die without this treatment. I was feeling so bad I started to search the internet for homeopathic or herbal treatments. I started to use milk thistle, vitamin C, vitamin E, antioxidants, selenium, and zinc. I changed my diet. I stopped drinking alcohol. I started to eat all greens and fruits. I did this for 6 months after I did my PCR test and my viral load went down. Before I started the homeopathic treatment my viral load was 600. After treatment it was 160. I was happy! My doctor was surprised and asked how I did it? I said I am doing a herbal treatment. She was wowed. I am still using same herbs. I never stopped. I am also exercising regularly, 3-4 times a week. I never get overweight. My weight is 59-61kg. I am happy that there is now a new treatment and I hope one day I will get rid of this HCV shit. Sorry.
One more thing, 2-3 times everyday take 2 servings of beat root juice with carrot and apple. This is very good for liver. Try to not eat anything fried or fatty. Sometimes, I eat the chips that I love but after I run for exercise.
Good luck!
I found out I had Hepatitis C about 3-4 years ago. About one year and a half, I was referred to a doctor who would give the old treatment. Interferon, plus two other types of medicine but they were oral meds. I got so very sick that I had to stop that treatment because my Creatinine was so high. After 4 weeks, I could hardly walk. The blood test read 4.8 on the last test I had before I quit that treatment.
Now I have tried to get the new medicine, but the Doctor I saw then said the company Gilead told her I wasn't sick enough. I was so upset. I was sure I would get it. So now I wait. Thank you.
Sincerely,
Sue J.
Hi, my name is Richard. I did the interferon treatment in Oct 2015. They stopped it in May.
I have had nothing but bad side effects since and they seem to be getting worse. I can’t think right, soggy brain, forget things easily, can't control my anger very well, I get mad over the smallest things, and always have no energy. It's almost costing me my relationship.
I got denied disability but I can't work. I am afraid that I may harm someone someday.
Are there any lawsuits for interferon? Please help. Thanks!
Well, I found out I had Hep C back in 94 when I had my gall bladder removed. Did the interferon shots for 6 months, didn't work. Did another round of shots along with Ribavirin pills, this didn't work either. After that just yearly blood work watching liver enzymes and never felt very badly so we figured all was OK. My Gastro Doc quit his practice to become a hospital admin so I went to new one who decided to do an ultrasound. We found a spot, very small, but he wanted to find out more. Did a biopsy and discovered it was cancerous. First liver specialist I saw said it was too small to treat so we should just watch it for awhile. Decided to get a 2nd opinion and was told I could have what is called an ablation. This is where they basically stick a rod into the small tumor and zap it from the inside out which keeps the rest of the liver from damage. It went well and there are some other small spots but not bad.
After fighting with United Healthcare for over 7 months and paying an attorney to write letters to both them and the insurance commission I started my journey with Harvoni, 24 weeks regimen. Had no problem taking the drug, no real side effects. After first 4 weeks my VL was down from over 2 mil to like 15,000. With the next blood work the VL was undetected, what we all want to hear. Finished the 24 weeks and still virus free and liver functions well within normal range.
Knew It was gone and all was good and then I had the big 12 week post treatment blood work and guess what, the VL is back over 2 mil and liver functions are slightly above normal again, damn. Certainly wasn't the news I was expecting but it is the news I got, so what’s next? Have another MRI and chest xray next week, doing these every 3 months, to monitor liver and to see if anything else is affected. I am happy for all of you who have gotten rid of this virus and hope someday I will join you.
Saludos!
Esta historia no se trata de mi sino de mi hermano de 37 años de edad. Mi hermano sufria de esta enfermedad y asà mismo sufriamos toda la familia. Mi hermano tenia mucha experanza y sobre todo queria vivir. Esa es la parte mas importante que todo pasiente debe tener claro en su mente, querer vivir...mi hermanito murio por no poder recibir tratamiento. Un tratamiento ridiculamente costoso y a cambio que las agencias pertinente no lo pudieron ayudar. La parte mas dolorosa de mi historia es que si mi hermano hubiese recibido su tratamiento, tenia el potencial de recuperación hasta un 90% de efectividad. Esta enfermedad tiene cura, lo que no tiene cura son las personas y/o agencias gubernamentales que las administra... les deseo que sigan luchando y tengan en sus mente el deseo de vivir....LA SALUD NO ES NEGOCIABLE. muchas gracias y que Dios los bendiga a todos!!!
LR.
**Greetings!
This story is not about me but my brother who was 37 years old. My brother suffered from this disease and the whole family we suffered as well. My brother had a lot hope and wanted to live. That's the most important part of all. It should be clear in your mind, wanting to live ... my brother died because he was not able to receive treatment. A ridiculously expensive treatment which the relevant agencies could not help us with. The most painful part of my story is that if my brother had received treatment he had the potential to have a recovery which is up to 90% effective. This disease has no cure, no cure for the people and/or government agencies that administers ... I want them to continue fighting and have in their mind the desire to live .... HEALTH is not negotiable. Thank you very much and God bless you all !!!
LR.**
After being diagnosed with Hep C 20 yrs ago I decided to finally seek treatment. I wanted Harvoni but Aetna insisted I try the Viekira Pak first. I'm happy to say the Hep C is now undetectable after 12 weeks treatment. Also, no side effects at all.
Don't wait, it's never too late to get treatment.
I am 79 years old. I contracted Hep C in 1983 through an infusion of blood products, a cryo-precipitate. My diagnosis did not occur until 1997 when I had some tests to determine if joint aches were caused by rheumatoid arthritis. The doctor who conducted the test became suspicious when I told her of my blood infusion and she suggested a test for Hep C. The blood work confirmed her suspicion.
I was referred to a gastroenterologist, Dennis Yamamoto of Reno, NV who specialized in Hep C. He, in turn, consulted another specialist from the San Francisco area. Because I am a mild hemophiliac, a needle biopsy of the liver did not appear wise. Also, the three of us decided that the efficacy of the interferon related treatments being used at the time was so poor that I would be better off to not start on any drug regimen. The doctor commented, “You will die of something else before the hep c kills you.”
I was monitored by the gastro doctor with abdominal ultrasounds 2x a year plus quantitative tests on the hep c virus in my body. I exhibited no symptoms whatsoever and the damage to my liver remained at stage 1 cirrhosis. My Hep C genotype is 1b. Viral load averaged 5-6 million.
In 2013 the gastro doctor told me about the development of a new drug which appeared to be able to cure my genotype, 98% success rate. He said he thought the drug would be available in 2014/15.
In early 2015 the drug, Harvoni, became available and together we applied to my insurance carrier, Anthem Blue Cross, for coverage of the drug for a 12 week period. Anthem agreed. I began taking a daily dose of Harvoni on May 21. 4 weeks later a blood test showed that the Hep C virus in my blood was “undetected”. Two more blood tests, at the 8 and the 12 week marks, continued to show the virus as “undetected”. Of course, what is important is the SVR, sustained viral response, over a year. My next blood test will be in February 2016. If the virus remains undetected at that time I believe we can report that I am cured of the insidious disease.
I am most grateful to the scientists at Gilead Science who developed Harvoni and to Dr. Dennis Yamamoto of Digestive Health Associates, Reno, who has so professionally taken care of me for these last 19 years.
I was diagnosed with Hep C in 2007. Don't know when or how I contracted it. I never had symptoms. Was in a drug store one day and a nice lady convinced me to have one of the free tests they were dispensing. I said what the heck and agreed. I tested positive. Long story short, I have taken 4 different types of antiviral meds: Pegylated interferon and Ribavirin. I forget the name of the second one. Most recently I was treated with Harvoni. It reduced my viral load but did not eliminate it. This was followed by Viekira-Pak. It temporarily eliminated the virus. But it came back. Evidently I have a resistant strain. I cannot find much literature on Hep c drug resistance. Does anyone know of any literature or studies in this area?
Had Hep C for over 30 years. Interferon was no good. Tried other things to no avail. Finally with stage 4 Cirrhosis, I was given Harvoni. 12 weeks later no viral load. Now 9 months later, still okay! Now I have to watch the liver, but that’s ok, I was never a big drinker. I suggest do what you can, beg your insurance company. You shouldn’t have to wait until your liver is at stage 4 to get Harvoni. I’m just glad it was covered or I would have been lucky to live another 5 years.
I got hep c as a teenager. Then it didn't even have a name, it was called non a, non b. Years later went through interferon treatment. It was a success, and have had no viral load since.
I am having joint pain, muscle pain, weakness and fatigue. It is progressing. Once the doctors hear that I had hcv in the past they always contribute my symptoms to the hcv.
I really think something else is going on, but they always say it's the hcv. I don't understand how hcv is causing these progressive symptoms when I have no viral load and haven't in over 15 years.
Anyone having a similar experience? Can someone explain to me how a virus is causing symptoms that are worsening, when the virus isn't present?
Thanks!
Just wanted to share the story of my hep c journey so that others may find encouragement & enough strength to keep trudging along through this journey:
I contracted Hep C sometime in my younger, wilder years through either a piercing or tattoo. Like most people, I did not find out I had it until March 2014. How I found out is rather important, peculiar, and extraordinary all at the same time. I began experiencing incredible pain in my joints. The most severe pain I've had, next to childbirth. It was strange as well as excruciating. It would come on and get stronger and stronger over the next few hours until it debilitated the limb it began in. 1-3 days later I regained use as pain moved to another spot in my body. Then I had several days, sometimes even weeks before this cycle of horrendous pain returned, affecting and debilitating an area before moving on to another, then another, and another. It came in my shoulder, then in my wrists, elbows, fingers, toes, ankles, knees. I have been in a sling, crutches, wrist braces, ankle braces, bed ridden. I used to literally crave ice packs.
I wanted to share this for 2 reasons.
1: I wanted others experiencing this type of pain to not feel crazy! I began to feel a little crazy when every blog I read and everything I had researched never suggested the type of pain I was experiencing to be a symptom of hep c. Even my hepatology specialist would not believe that this severe pain was being caused by hep c as she quickly brushed me off to seeing my primary care for it instead of prescribing something to ease the pain.
2: I believe God manifested this pain within me so that I would go to the doctor to have this diagnosis revealed so that I could seek treatment for it before it was too late. Otherwise I do not think I would have gone as I am not much of a doctor goer. Once I went and discovered the diagnosis I researched for hours and hours, days and days. Like everyone else I realized how scary and dangerous this virus is. To top it off, my very insurance company was mentioned in numerous blogs as being one of the most common insurance companies for denying hep c treatment over and over each time it was appealed by people. This made me incredibly worried. I prayed and got my church involved to pray over me and with me. I knew God had planned to save me but how?? Treatment is absolutely unaffordable without insurance!! Do we sell our house? Take out as much home equity lines of credit as we could? Sell off everything we had?? After seeing the specialist, taking all the blood & liver tests, the doc sent over the request for treatment needed for Genotype 2b. Not only was I experiencing a rare side effect of hep c but I was also one of the most rare genotypes there are in America.
I worried and my faith wavered. The pharmacy called me less than 48 hours later to tell me I was approved and they were shipping the first month of treatment pills to me immediately. I couldn't believe my ears and spent 20 of the 30 minutes we were on the phone grilling the representative to ensure there was absolutely no mistake! He assured me there was not so I praised God more than I had during my entire life, I'm sure. Then I began to worry about the side effects of the drugs I had to take. There were pages and pages of typewritten side effects as I was prescribed Ribavirin and Sovaldi.
God blessed me there as well. I had absolutely NO side effects AT ALL!!! I took the treatment for 12 weeks. Another 12 weeks after treatment ended I was tested again (12/01/2015) and the results were negative for hep c, I was cured!!!! I am sharing this story because I believe God healed me through his Son Jesus who died on the cross for not only our sins but also for our diseases, sicknesses, and all other inequities. I believe He wants me to share with anyone & everyone who will read. I also believe there are people suffering right now who are waiting for approval from their insurance companies, or waiting for the second, third, fourth, fifth appeals to be approved as well as some that are waiting for a liver transplant who need real life encouragement and hope for their own futures. I am here to give that to you. Never ever give up and keep on waking up each morning thinking this is the day that it's going to change for you!! Here are a few Scriptures I clung to:
“For the glory of Your Name, O Lord, preserve my life. Because of your faithfulness, bring me out of this distress.” Psalm 143:11.
“I waited patiently for the Lord; he turned to me and heard my cry for help.” Psalm 40:1
“Lord my God, I cried to You for help and You healed me.” Psalm 30:2.
“Show Your favor to Your servant; save me by Your faithful love.” Psalm 31:16
“The righteous cry out, and the Lord hears, and delivers them from all their troubles.” Psalm 34:17
“My son, pay attention to my words; listen closely to my sayings. Don’t lose sight of them; keep them within your heart. For they are life to those who find them, and health to one’s whole body.” Proverbs 4:20-22.
Finally, I was taught to realize this awesome healing wasn’t about me, but about God’s glory and Jesus Christ’s glory. “So then it does not depend on human will or effort but on God who shows mercy. For the Scripture tells Pharaoh: I raised you up for this reason so that I may display My power in you and that My name may be proclaimed in all the earth.” Romans 9:16
My name is Bushra Anjum and I live in Pakistan. In 2002, I had an accident and received treatment in a government hospital. After 5 years I realized a change in my health- fatigue. Because of this reason I went to a lab for some tests. My test of HCV was positive and after seeing my test I was very shocked and worried that I would infect my family. But I came to my senses and went to doctor for advice. He told me that my illness was in the initial stage so I can take a six month treatment. So I took the six month treatment and performed and the testing the doctor required. Thanks to Allah, after the six month treatment my tests were clear and now I am living my happy life without any stress.
I was diagnosed with Hep c, genotype 3a, 8 years ago. At that time, I was offered the available treatment with interferon. I did my research and decided do not take it... Since then, I have been on strict diet. I never drank alcohol even before I was diagnosed with hep C). I exercise, take all natural supplements such as milk thistle, turmeric, artichoke... I’m living a holistic life. I was waiting for oral drug and finally, the FDA approved Sovaldi/Daklinza (that's the medication for my genotype).
I started my 12 weeks on October 1, 2015 and finished my treatment on Christmas day :) . I had blood test on 1/26/15 with result viral load 0, no virus detected. My follow up 1st blood test is in 4 weeks (January 20) and then March 20, 2016.
During treatment, I didn't have any side effects. I was able to work, continue my diet and exercise. I felt tired but it was manageable. I am very positive person and I am confident that my blood test will show no evidence of the virus. March 20,2016 is the day when officially I will say, I am cured!!! This medication is Miracle! I hope, that every single person with Hep c can afford this treatment and finally be free of this horrible virus. Wishing everyone best of luck and healthy life!
I am currently in my 8th week of generic Sof/Ed from China. I accessed my meds through the FixHepC Buyers Club. Only sides are insomnia and the occasional headache. Energy levels are much better too now. All bloods are fine. I was undetected at 4 weeks.
The Australian Government has now listed new new DAA's on the PBS and are supposedly going to spend $1b to treat patients. This won't even scratch the surface!
My humble opinion is that generics are the way to go for those who look like they are going to have to wait extended periods of time for treatment. Of course I believe that the sickest patients should get the treatment first and foremost.
Best wishes to you all.
Hi, I contracted Hepatitis C from a blood transfusion in1982. I am now waiting on a prescription for Sovaldi and Ribavirin for type 2a. I am happy to find this message board for support and encouragement.
I contracted hep c in 1982, through a blood transfusion when my youngest child was born. In 1993 I was told I had hep c antibodies in an annual blood test. Being very naive I thought “Great! I have antibodies to fight hep c!”. In 2003, I moved and changed insurance and became ill. We quickly started the full treatment, 3 months later, Dr. said it wasn't working. We will try the next new meds that will come along.
In 2008, I quit my job and tried again for 48 weeks. Just as sick as before but I was determine to do it again. After 48 weeks it didn't work. Meanwhile my husband came down with 4 stage lymphoma (he is in remission now). In 2011 we moved in with my daughter and I tried again but I was very ill. Transfusions, septic, and all the side effects they warned me about, I had at one time or another. It was successful!... for 3 weeks. I got a UTI and pneumonia and had to stop the rest of the course of medicine. Yes, it came back quickly.
We got on our own again after building some strength. In 2015 my doctor had moved on and my liver tests put me in cirrhosis. That’s the first time I heard of Harvoni. It was so expensive and by now I'm 65. I didn't know if they would waste it their money on an old 3 time loser. But Kaiser Permanente has been wonderful with my husband and me. They approved it and it WORKED!
I had to take ribavirin with it but I wasn't near as sick as I had been the other 3 times. I know it has been a long story but I wanted you to know that you can survive. Each time a new treatment came out I said I can't not pray for treatment and not try what was being offered. I am soooo glad for those of you who have Harvoni and one person said there was a generic out too. Good luck to you all!
2005 -Tested positive for hep c.
2009- Underwent peg interferon cure with no success.
2015- Underwent Abbvie drug therapy for 24 weeks-no success but instead at end of treatment informed of liver cancer with tumor growing in portal vein.
- Underwent 6 treatments of Radiation SABR
-Surprisingly ast and alt levels came back normal then and today, one month after radiation??????
Today- Underwent ascites tap (1st) and removed 8.3L of liquid around the abdomen.
Next- Appt w oncologist on Feb 11 for ct scan then blood work to check viral load again.
Curious as to why ast and alt would come back normal as they have never been in over 10 years?
Started sovaldi daklinza and ribvirin today. 12 week course. Geno 3a for 14 yrs. Keep you posted. God bless !
Hep C free life: Not a destination, it is a journey
I slayed my dragon!
Hep C free life is it a dream or reality that I thought was impossible to achieve but now seems so much realistic. After years of infection, I am now cured.
I contacted hep C from a dental procedure 13 years back. It felt like you are being punished for someone else’s guilt. I went through a 48 week interferon and ribavirin treatment. The experience was horrible. I was anemic all the time, fever, ache, chills were my every days companion. Don’t want to remember those days. But treatment was working I was undetectable end of the treatment. But I didn’t achieve SVR24.
Hep C relapsed. For 3 years no treatment. Then come light at the end of the tunnel, oral drug for Hep C. But being a citizen of an under developed country these drugs were out of my reach. Then in Feb 2015 InceptaPharma, a local pharmaceuticals company in Bangladesh, launched the world’s first ever generic version of Sofosbuvir. But being a Gen 1b interferon relapser I was told to wait because generic version of Harvoni (Ledipasvir/Sofosbuvir) will be launched and it was true. Incepta also launched the world’s first ever generic version of Harvoni. From Sep 2015 I started treatment. Initially there was fever and pain. But it was worth it. I was undetectable in 4 weeks treatment. I recently did my SVR4 and still undetectable. Special thanks to Incepta for launching this product. I was told thousands of patients worldwide are using this drug.
Thought I should share this story with everyone. So that everyone can know the name of country from where beacon of hope for Hep C started it journey. For your convenience I am sharing contact details of Incepta.
Asif Mostafa
Senior Brand Manager (Anti-viral)
Email: amostafa@inceptapharma.com
Cell No: +8801713338492
When I was initially diagnosed with hep C 16 years ago, I was told that I would be dead in 5 years.
I went into a deep depression for 6 months and really felt myself beginning the process of dying. Then, news of a pregnant daughter brought me to my senses. I wasn't ready to die. After a great deal of research I discovered that the liver regenerates. I went for acupuncture as needed for 5 years and used the Gerson diet as a guide to wellness. I used milk thistle and avoided toxic herbs. My viral loads dropped significantly along with much unnecessary weight. I quit drinking and using chemical cleaning agents. I did not take any pharmaceuticals. I exercised by walking.
Now 16 years later I am healthy, still working 60+ hours per week and maintaining a positive outlook, a healthy diet and clean liver. I have watched many of my peers die in the last few years because they believed Big Pharma and felt that they could survive without making lifestyle changes. Life is a choice. All you have to do is make a choice to live!
I had some blood work done check to see if everything was ok. I was released from the hospital with Diverticulitis, bleeding from the bowls. This has happened 3 times in the past four years. This last episode I was given 3 pints (Packs) of blood in the hospital. It raised my blood count up to a safe level.
When I went for my follow-up, my blood was not at a safe level with my new doctor. She put me on Iron tablets (2 a day). I was check a month later along with other blood work and she said my blood levels where good but said my liver showing signs of possible infection. On the other hand as I was asking about my other test and she stated that my liver was normal. She requested I come back in for another blood draw. I have to wait until Monday to get the results. I just want to know what I need to expect? Should I get a second opinion?
Today is Tuesday Dec 29th 2015. Yesterday I got my lab results. I am cured from Hepatitis C. I given the Credit to My Higher Power Jesus Christ and OAPA God in Heaven! He gives idea's to scientists and doctors. And He still performs Miracles! If you need prayer and encouragement, call me, James. We have a support group it's called Beyond hepatitis C on Facebook. 4084259396 Viekirapak is my Treatment. I have to keep taking for 23 more days. Just to make sure my blood and liver is clean. God Bless these Your Children!
Hey people...
I found this site today as I was searching to find out if the treatment that I'm on for hep-c ....Solvaldi/Ribiviron had side effects that worsened with time. I've been on this combo for 3 weeks now. My viral load went from 19,000,000 down to 79 within the first 2 weeks. I've never been happier in my life! However, the nausea, headaches and fatigue have gotten worse. Did anyone else find this during your regimine? Also for those of you seeking funds try A CREED or Patient Access Networks @ 18663167263
May God bless us all!
I (age 39) talked to my mom (age 61) at 2pm... She was fine.
At 4pm my mother was found deceased.
At that moment I decided to take control of my health. I began with a physical and working with my primary to lose weight. Four months later, I went for my annual pap and pelvic exam where I requested a full STD panel. NO SYMPTOMS - NOTHING WRONG..
A week later, I'm called to come in..... diagnosis - HEP C!
NOW, 3 months later, after several tests, and dealing with my insurance (1 week).... I began taking HARVONI on December 24, yep two days ago.
The first day I COULD NOT STAY AWAKE.
The second day I had weird headaches. They'd last for 5-10 minutes leave for about half an hour and return. AND I was up ALL night.
Today is day 3, after doing some research, I’ve decided to take the pill tonight.
My name is James Robert. This is my second entry...
I am almost finished with my 8th week of Viekirapak treatment! I can tell my Liver is getting better. I'm still tired all the time. I don't feel like getting up most mornings, but I get up and pray and go anyway. Life, I must live!
I went to Disneyland 2 weeks ago. My feet hurt the whole time. I wonder if that's from the medication or just old age and lack of exercise? I know I need to get to the gym! Something stops me from going there…
Anyway, feel free to call me (1-408- 425- 9396). I'm in a group called Life beyond Hepatitis C. In Jesus name, I am healed by the Power of God and science! Nothing formed against us will prosper! Be strong and courageous!
In 2000 at age 17 I was excited to be able to donate blood for the first time. I felt fine.
Not long after I received a letter from the American Red Cross telling me not to donate again. That I have Hepatitis C. I had never heard of it before. I might have heard of Hep B but never Hep C.
And I don't know how or when I contracted it other than maybe when I was 9 months old (craniofacial surgery - mild case of Crouzon's Syndrome) or for a reconstructive surgery at age 16. But I'd say it was at 9 months old because when I was 16 I didn't receive any blood transfusions.
Nonetheless, fast-forward to now and I have completed 3 full marathons, 2 half marathons, gave up alcohol in November 2012, have a viral load of about a million (according to CBC taken in 2013) and good platelet, albumin, red blood cell and ferritin/iron levels. The only things not well are my ALT and AST enzyme levels. ALT = 326; AST = 169. Too high. I cut back on my herbal supplementation and am only now taking Super Siliphos (Milk Thistle); Quercetin w/Bromelain (800 mgs 2x day) Selenium 400 mcg day and Naringenin. I am also considering taking Bee Pollen, Propolis and Royal Jelly (Combo supplement) as I've read it helps for people with Hep C.
What really irritates me is I feel lethargic at times but also more easily irritable. Some days as of late I have contemplated going through actual doctor-prescribed treatment but I don't want to suffer the consequences (side effects) which may end up sooner in death. I get so mad at the health system altogether - just how much of what doctors seem to care about is profit and how to attain upward social mobility.
I recently got married and I can see how I am sensitive to things more so than before. I'm just a mess. I wish I could be healed of this poison. But I hate the system that is in place - corporate greed that wants to profit and kill people faster.
Australian and nearly 60 years old. Contracted Hepatitis when 20 years old from shared needle use. No drugs since but during my 20's alcohol was frequently used. Back then no treatment given for Hepatitis, just “rest and get over it” like the Glandular Fever I had 12 months previous.
After 37 years it came back with a vengeance with large sections of neuropathy to my lower legs and lower arms through side effect of cryoglobulin and further side effects to neuropathy. Thought I was having a stroke(s) as there was a lot of stress in my life at the time.
Been on Interferon and Ribavirin for 28 weeks and just found out that it hasn't been successful. My only hope was the Gilead drugs which are out of the question at $100k a treatment. A pox on the shareholders and price setting marketers at this company, which seems like massive greed riding over the corpses of many unfortunate people.
No excuses for a self inflicted disease but smaller margins over many users is just as profitable as large profits over a few.
I've had very little side effects over the last 28 weeks but suspect that I've been “coping” with some of these sorts of effects for over 30 years.
Australian Government today, 20 Dec 2015, announced that they will subsidize ALL patients affected by this disease. Gilead treatments will now have a maximum price of AUS$38.00 per prescription, some patients as low as AUS$7.00 per prescription.
EVERYONE SHOULD PUT PRESSURE ON THEIR GOVERNMENTS TO DO THE SAME. IT'S NOT OFTEN AUSTRALIA LEADS THE WAY ON THESE TYPES OF THINGS.
I'll probably have permanent nerve damage to parts of my legs, feet and hands but can function OK if the other disease effects are gone.
GOOD LUCK TO ALL.
I would really like to get into a long story about how I may have gotten Hep C, BUT, in 1996, after an operation to cut off my right shoulder ball at the top of my humerus and replace it with a (man-made) ball, the nurse needle stuck herself, giving me a shot.
The hospital went thru the 'norm' and told me that I had Hep C. The VA eventually treated me in 2000, with a combo of 6 pills daily and I had to give myself a shot in my abdomen 3 times a week. After 48 the VA said, it was undetectable. And NOW I have anti-bodies. SOMETHING in me is saying: If I have anti-bodies, why wouldn’t they have found ALL the Hep C, by now?
HOW COULD I EVER KNOW AND CONVIENCE MY WIFE THAT WE CAN DO ANY AND ALL sex things. A LITTLE HELP HERE.
OH, yes I smoke marijuana - now and back in the 70's - 80's, 90's, 00's
I came to know in 2000 that I have Hep C, when I did blood test in a community clinic, because they offered a free blood test. I was given sealed envelope with a red tag to see the doctor immediately. I didn't have job or any insurance but still I went to Baylor Hospital as an outpatient. The shocking news was that we were sent home. The nurse said “Millions of people have Hep C.”After that I saw 5 liver specialists and none of them did a biopsy, as I was enjoying good health and exercised regularly.
Now I’m 59 and my liver enzymes are very high. I decided to get insurance and do the treatment. But so sad. I didn’t know that HMO will give me a tough time. No one is accepting this insurance in Dallas, TX. I paid a whole year’s premium and now I was advised to change it to PPO if I want to see liver specialist. I don't have a job and NO SUPPORT from my husband. He does not want to listen anything about my liver.
I have taken care with the liver supplement Milk Thistle. I really need support. I need someone who can reach my husband and educate him. Tell him that I need his love and caring word.
I was diagnosed with Hep C probably 12 yrs ago. I was working in a hospital and the universal precautions practiced in my area were non-existent because I wasn't really in a patient care area. But patients bled on our counters and the house keeper simply used a paper towel to wipe it up. The hospital I worked at doesn’t want to accept I may have gotten the Hep C in the workplace. They rather blame multiple sex partners (more than one is multiple according to them) and intemperate alcohol use. I have never been into drugs whatsoever. I was into alcohol, strictly.
Luckily, I am a Veteran and was able to get the Sofosbuvir and Ribavirin therapy. I have been asking for 5 years. It was only after I developed cirrhosis that suddenly I was eligible for treatment. They took me to the very edge. The first thing I noticed is that I liked the taste of food and quickly gained 10lbs. But it was like I could taste food and I was eating for the first time. I realized that I was sick for a long time with the chronic symptoms. Toward the time I got the cirrhosis diagnosis I didn't even feel like eating and only did so because I was a diabetic. On my stocky frame, 190 lbs looks kind of thin. I was 190.
I got maybe a 2-3 week reprieve before the side effects kicked in. You can get really sick feeling with the numerous side effects that occur. I could have one or two and still function but there was several times where I experienced multiple ones and at those times I laid down ate saltines and drank Ginger Ale all day and took something for the headache. I also would take some Dyphenhydramine for an itch and just to help me feel better.
It was during one of these multiple symptom sicknesses that first found this website and it did give me hope. I think that day I was debating whether or not to go to the ER seriously on two occasions. I kept reminding myself that I was suffering from side effects. I had the fatigue, headache, nausea. I will say the nausea seems to be the biggie that I have had nearly every day. It seems to go hand in hand with my treatment. It also would come in varying degrees of severity. I had the dizziness a couple of times. I also experienced the itching and some muscle aches. Being diabetic and suffering allergies, I had to treat different things to determine if it was in fact my treatment or other. I can say that two times I felt the flu-like symptoms. I have 19 more days of medication and the Liver Clinic sent me a letter, my most recent Viral Load says “Not Detected”.
So if you are tired or just don't feel good, hang in there, seriously. I have the Genotype 2a, I think. Anyway if you have Genotype 1 I know your treatment duration is double the 12 weeks I had to do and may not seem like anything. But like one of my recent classmates said, and he is also a physician, the time will pass. My pastor’s wife who is a physician just said it is a part of the treatment, take your medicine. Take your medicine. I understand that as uncomfortable as it is go through the treatment that the days of Interferon and Ribavirin for 6 months to a year was brutal. So I am thankful for that and I am grateful that I got a “Not Detected”.
I would also recommend making your life as stress free as possible. The anxiety and irritability were also some of my side effects. Luckily, I have gotten one friend into treatment and I really pressed hard because he and his drinking were stressing me out. Life goes on no matter what. My aunt ended up in the ICU with organ failure, she recovered. My mother gets out of the hospital tomorrow after 2 weeks and a day. She was in the ICU with Pneumonia, COPD, and CHF.I had a plumbing issue that in a 24 hour period and I had to totally clean and sanitize the restroom 4 times until the problem could be fixed. The bowl was gushing out water as though there was a pump under the bowl and the tub kept filling up with raw sewage. Yes, I know, infection… That is why I wore a face mask, gloves, cleaned with straight bleach, and immediately laundered my clothes. My steel belts were sticking out of one of my tires. The low profile tire is a rare tire. I ended up paying a mint to put 4 new tires on. Then my drunken friend fought me. It went on and on… So try to keep your life as stress free as possible.
Also, don't drive in the rush hour traffic. If traffic is heavy, get off and take a slower but less stressful route. Believe me when you feel all icky you don't want to add road rage.
Hang on to hope and take it one day at a time. Hopefully, the light at the end of the tunnel will be brighter and brighter as time passes. Thank you for allowing me to share and God Bless each of you. I wish I could be there for you and talk to each of you when you need someone.
Hep C.
38 years.
Cirrhosis varies, Ascites minimal.
Harvoni 12 weeks. Cleared Hep C.
Doctor said 1% chance of getting it back. Two months later- non Hodgkin's follicular Lymphoma appeared. In groin, armpits, down neck, 5% of bone marrow cancerous.
I'm wondering if Harvoni allowed that to happen.
Believing for a miracle.
My doctor diagnosed me with Hep C genotype 1 in 2001. He saw something in the first blood test and did a second.
I am a Vietnam vet and am now 64 years old. I figure that I might have contacted it in the service from inoculation guns used at that time. I did the peg interferon, Ribavirin treatment because that was all they had. No luck there so I asked the doc "what now" and he said wait 20 years until they come up with something new.
In July 2014 I heard of Sovaldi on TV. Went to the doc and found out insurance wouldn't pay. Since I have PTSD from Nam (that's another story) the V.A. helped me with Sovaldi, interferon, and Ribavirin. I did that for 12 wks. and was undetectable….until 3 months later - no go. I thought I'm a dead man now with stage 4 cirrhosis.
The V.A. told me that they were out of money for Hep C because the Vietnam vets were coming out of the woodwork with this disease. They put me on the list and in Sept. 2015 I received treatment with Harvoni and Ribavirin. I completed treatment in Nov. 2015 and I'm undetectable. I still have to be tested in Feb. I hope it's gone but I have small doubts. I've been a good boy not drinking or smoking cigs or dope for years. Time will tell. They put in a pacemaker last week (December) for irregular heart beat and passing out. I’m scared that the
Stage 4 has advanced. Do you see what paranoia can do to a guy?
I wish all of you out there success and please don't wait and please kick your monkeys if you still have time. I'll get back in Feb with results if I can find the site again. Thanks for reading.
I contracted Hep C in 1970 from needle use. Was fully diagnosed in 1990. Treated with interferon for 6 months. Felt awful with rapid decline in lifestyle. Did not work. Had chronic Hep c. Stayed alcohol free for 15 years. Occasional use of alcohol for next 8 years . Quit alcohol in august 2014.
Started Harvoni in Sept. 2015. Now, Dec 2015. Blood test every 2 weeks. Virus is non-detectable. All liver enzymes normal. Evidence of slight cirrhosis. Have had no side effects. Feel great, better than I have in years. Will stay with drug regiment until March 2016. Harvoni is a true miracle drug.
I was diagnosed in 1994 with chronic, active Hep c. I tried interferon but had to stop from convulsions. I have cirrhosis, COPD, high blood pressure, and hemochromatosis iron overload load disease.
I started Harvoni I on Sept 13th. I will be finished December 11th. I was told by my doctor that is was a cakewalk. Maybe a few headaches, trouble sleeping, and general fatigue. That has been anything but true. I have been unable to work because it is way beyond general fatigue. It's called “can’t get off the couch” many days. I feel that these Drs have not been educated on all of the side effects therefore the patients find out the hard way.
I have been cured and am very grateful however when I started having a lot of side effects Dr dismissed me like I was crazy so I got on the internet and did my own research and found many people having the same problems . So my advice to you is to do the homework. Don't trust your Drs info, get your own.
Godspeed to everyone fighting this battle with a cure we have waited so long for. If I can just help one person that will make me feel great. Getting ready to rock my new lease on life soon! God bless to all! We have fought the dragon!
I found out that I had hepatitis C in 1999 by a fluke. My wife at the time was a nurse and she knew my past history and when I turned 40 I had a checkup and as the doctor was leaving the room she asked the doctor to perform a hepatitis C check up on me as well as all the other tests that one gets when they are 40.
I would have bet a million dollars I didn't have any such thing but when the doctor came back weeks later and told me that I was positive for hepatitis C and went into a deep depression for years. I felt like I was a walking biohazard!
I was assigned an infectious disease doctor. He gave me a punch biopsy and from then on it felt like I had a brick on my right side... It was nearly impossible to sleep on my stomach anymore. Meanwhile I attended classes on how to inject oneself with interferon. I felt like I was living in a horror movie! The people that were on interferon at that time reminded me of the walking dead. At that time I elected to take my chances with life in my disease... After all four years later I was still stage 0.
Don't remember when I jumped to stage 1 but I was at stage 1 for so many years but it still elected to take my chances with life because to me it seems like this very slow progressing.
Something inside me told me that I must get the treatment no matter what in 2012. I didn't care if I would be sick for 6 months... I wanted to be around to watch my grandson grow up.
When I went to my infectious disease doctor and told him I wanted to be on the treatment and once again, I was still stage one... He told me to come back in 2014 because there will be a much better treatment. I was not only frustrated but I was angry! I tend to be a person that wants immediate gratification and when I was denied the procedure, I lost interest once again. This was in 2012.
I waited three years and in 2015 I went back and had a blood test and had my liver checked and I was at stage 3. I couldn't believe how fast it has progressed in only 3 years!
I was immediately set up for treatment with Sovaldi and Ribaspere. Once again I was slightly pissed off but only because I didn't know better! I wanted to be on the Harvoni treatment. With the huge ad campaign that the makers Harvoni we're running on TV, it seemed like the best choice but since I had genotype 2b I was put on the Sovaldi treatment.
I still remember with great hesitation swallowing my first dose... something inside me knew I was going to be sick and worthless for the next 12 weeks, also I remember doubting the 12-week time frame because when I first learned of the initial treatment it was at least 6 months if not longer.
I remember not feeling very sick at all that had things going on inside me that scared me. I am not advocating this, but a good friend of mine and I would go out and celebrate beer:30 & I continued even while on treatment and when my first two week test came up, I remember thinking to myself I' never attend another beer:30 in my life because I was afraid my hepatitis C would be raging inside me. There was no trace of the hepatitis C virus in my body! It had gone into remission.
I am on week 4 at present, I'm anemic but it's really not that bad... I don't have the weird spooky pains that I had in the beginning as badly anymore as when I first started. When I think back, I believe it was the medication burning the disease from my internal organs and my body.
The main reason of my story is to try to convince you to get it taken care of now, don't wait like me... The treatment is a breeze and the end results are like winning the lottery, the lottery of life! You'll get your life back.
I don't think I've ever been this grateful ever in my life!
I was diagnosed when I was in the Hospital psychiatric unit.
It was my third time going to the E.R after not being able to eat, drink or go 10 minutes without puking. I had such bad stomach pains and bloody bile from a ruined stomach and esophagus from getting sick repeatedly for weeks on end. The doctor said I was suffering from anxiety attacks, PTSD and night terrors/sweats. She admitted me into the hospital psych unit, hooked me up to water because I was so dehydrated I kept passing out and coming back to panicking and shaking. She prescribed me with Xanax, Escitalopram, Trazadone, Chlonodine and Panteloc. I was given the medication on a regular 4 times a day schedule. I honestly felt like a weird happy child but my body felt unemotional and dull- I felt numb.
After two weeks of being there I started to feel better, able to control my vomiting and felt a sense of calm. My doctor wanted to see me one last time before releasing me and she started off saying I got tested for HIV and all three heps and one came back positive but she couldn't find the paper. My heart started racing and after a good 2 minutes she found the paper. She diagnosed me with hep c, at 21 years old.
I took viral tests and found out that I had contracted the disease 2-3 years ago and that it is still at stage 1. My boyfriend then got tested, and he has also been diagnosed with it. We had been using needles for cocaine to get high, and we had at least 20 different people around us during that time. So I guess that somewhere along the way tools got mixed up. We're now drug free, but also still smoke a lot, and drink a lot. We're both alcoholics. Some days I wish things had been different, but I have people who love me and have been by my side no matter what. I hope God is on our side for this hard journey, because everything feels so dark.
-22 year old Canadian girl
1983, at 22, I was admitted to a methadone maintenance program. They told me I had hepatitis, because my liver enzyme count was high. My doctor tested me; I was negative for Hep A and B. After talking with some friends who had also been living the same lifestyle I was, I learned there was another, “new” kind of hepatitis. I went to a liver specialist, and he told me I had “non A –non B” hepatitis. There really wasn't anything he could do about it.
Luckily, I got clean, and never used needles again. But I did drink occasionally. Around the late 80's I started hearing about “hepatitis “. I wondered if that was what I had. In the early 90's I noticed that sometimes I felt a vague pain in my upper right abdomen, especially after working a lot of overtime (I was an industrial maintenance mechanic, doing physical work), or after a night of heavy drinking. Around that time, I heard of Thistlyn, milk thistle extract, being used for liver health. I started taking it about 1994, and took it daily ever since, when I could afford it. I also was big on taking vitamins; especially high doses of vitamin C, knowing I most likely had an untreatable viral liver infection. As time went by, I noticed the pain more often. In 1996, I quit drinking completely. Also, every time I had blood work, my liver enzymes were above normal.
In 2001, I was finally tested, positive for hep C. In 2003, I was turned down for life insurance, after submitting a blood sample, the reason being I tested positive for hep C. When I first tested positive I began doing research online about hep C, learned about the current treatments, and found out they were very difficult, and unreliable when it came to remission rates-still never saw the word “cure”.
Over the years, I heard more about hep C, saw some famous people die from it or complications like liver cancer. In 2005, the person who told me about the liver specialist in 1983, who had also been infected the same time I had (geusstimate) died of liver cancer. But I never got treated (a lot of the time after 2004 I didn't have medical insurance and worked low paying jobs).
Early 2015, I saw a TV ad for Harvoni. I decided it was time to do something. In July, I was also diagnosed with diabetes. Since I now had good insurance, I didn't tell the doctor about hep C, I knew if he was any good he would find it. He did, and sent me to a liver specialist. Mid September 2015, I started on Harvoni. I also have stage 4 fibrosis, according to the elastogram. Today, Nov 6, 2015, I was told the results of my 1st 4 week viral load test-the virus is undetectable, after only 4 weeks of Harvoni. I'm going to continue on it for the full 12 weeks.
I've had this damn disease for over 30 years! I had always believed I would die from it, eventually, but God has decided otherwise. I attribute the fact that I did survive this long, and still have most of my liver left to the Thistlyn, which I take religiously now. I attribute the 4 week result to the fact that I take vitamins and supplements, especially high doses of vitamin C, to boost my immune system. I have always taken vitamins, and since Harvoni works by blocking the virus from replicating, and your immune system kills it off. Your immune system has been killing this virus all along, but it couldn't kill it quickly enough. My advice to anyone reading this is to do your research on supplements for liver health, and take them, especially Thistlyn, or another brand of milk thistle extract. Take a high potency multi-vitamin/mineral (without iron), 2000mg of vitamin C, a vitamin D3 supplement (4000 units), and whatever else your body needs to be healthy. And DON'T DRINK ALCOHOL! For me, prayer is also important, and I truly believe God has given me another chance.
I was diagnosed in 1998 with hep c but was not asked to start a treatment.
In 2009, my then specialist told me to wait for a new treatment called Harvoni that was being tested at that point.
Skip ahead to this year of 2015, when my doctor was finally ready to begin treatment. I am now on week eight and just had a blood test to determine how Harvoni was working on the Hep C, and I am so excited to report that I am now Hepatitis free. The side effects were minimal, tiredness and a few aches and pains, but night and day compared to the older cocktails. I recommend that you talk to you doctor immediately, did I tell you how I was cured, such a blessing!
I donated blood in 1993. I was told to come back as they needed to verify something. After I donated again, they called me stating I had “HCV” .Needless to say I went into a frenzy and called my mom.
My mom stated that at birth I had 13 full body blood transfusions due to problems with my billiruben. I was born 3 months premature , weighed 3 lbs and had gone down to 2 lbs while spending 12 weeks in an incubator.
As a kid I usually had a hard time learning and looked pasty-white.
So, since my news in college I tried to eat right, exercise, be positive and luckily I didn't like the taste of alcohol nor did drugs or get tattoos. I kept watch on my AST/ALT's which were never over 100's and experimented with Milk thistle/dandelion and other natural remedies to keep my liver healthy.
Right after college I married. Flash forward 10 years later and we divorced- my stout decision. I remember not feeling clear and foggy about my decision but I had to make it. I took up motorcycling. 8 years after my divorce I was able get on Harvoni and 8 weeks later showed non-detect. One month post treatment and I feel so alive and healthy like I NEVER have. I really can't believe the virus is gone but I do because I saw an incredible difference in my energy and evaporation of brain fog. Still memory issues but stellar concentration and engaged in conversations without crossing my eyes! Incredibly, I feel I don't need the motorcycle anymore.
After my “cure” I read about the encephalopathy and neurodegenerative effects which tag along with the virus. I had NO idea my “ADD” was HCV related!!
HCV I blame hugely for my marriage breaking up: I had personality changes, fatigue to say the least, agitated most of the time, I could not concentrate and had difficulty for most of my life learning by reading, forgetful- of my ex's birthday and other things (gads), and anxiety. After treatment I realized there was a HUGE amount of anxiety I carried. Now I am no longer “fixated” or intense on things I do.
In my marriage, I see how I started to covet the remaining energy I did have just for me. My ex and I were constantly on the go and my brain would be overtaxed. Little did we know I was going crazy with the virus and he took the withdrawal as me not loving him anymore. 8 years after the divorce, I still love him. I wish I could have found the strength to stick it out.
I would love to kiss the chemists feet at Gilead's and smack the CEO's all in the same day for the price of this drug. However, I now at age 40 can feel like I am living a “normal” life.
Hi, I'm 36. I became ill about 5 weeks ago with what I thought was a stomach bug. I was sick and weak. I was taken into A&E because I started going yellow. I completely freaked and became very ill. I didn’t know what was going on. All the liver doctors told me it wasn't looking good. I thought I would never see my children again. The next day I was told I had Hepatitis C. I broke down. I couldn't believe it.
I was in a relationship with my partner for 15 years when he became a drug addict. Our relationship finished a few years ago because I couldn't live the life he was living. So I had caught it from him because he never told me he had it.
So now I'm home trying to be strong. Lots of tests, etc. are still going on. I'm trying to be strong. I'm still in shock. I'm usually active and I work. Overnight my life has changed I can barely get out of bed. I can't wait to start treatment and to try and beat this. I don’t really understand a lot of it and what’s going on right now. But I put my trust in my doctors because they got me this far.
I am 48 years old now. I found out I had Hep c when I was 33 years old. I did the treatment, Interferon and Rebetron. I was on it for 3 months. They took me off of it because I almost died from the treatment. But I was lucky and survived it and it put me in remission. I have now been in remission for 16 years. I'm trying to find out what are the chances of it coming back if I’ve being in remission for this long.
I’m 53, had Hep C 31 years.
Haven’t done drugs in 30, haven’t drank for 7. Last time I drank blacked out for 21 days. I know now I almost died of Hepatic Encephalopathy. Had tests a year ago. Slightly elevated liver enzymes and ammonia on brain. Finally had ultrasound. Dr said no Cirrhosis. I don’t entirely believe that.
Have bad insurance. Disabled from Bipolar. Have to take a mass of pills for Bipolar which exasperates my liver. Feel I’ve gotten really worse in the last year. Want to describe symptoms in case others can relate. Changes include, when squat down don’t have strength to stand up. Just like that, never had that before. Overnight can’t spell, even simple words, just like that. Can’t hardly pee. Drink a gallon of flavored water a day, cant pee so sweat buckets. Lost appetite, first can’t eat chicken, than beef, than greens, than fish. Now live on smoothies and cereal. Exhausted, just so, so exhausted, terrified when have to do something strenuous like laundry. Feels like I’m in a concentration camp being forced to dig a ditch and its only laundry!! Everything, washing hair, washing dishes, feeding pets is a serious effort. Favorite thing to do is lay down! Feel guilty constantly that I can’t get things done. To tired to go anywhere or see anyone. Nothing sounds like fun but lying down.
Hi, 56 yr. old female diagnosed with Hep C in 2012. Don't know for sure how I got it (doesn't really matter at this point). Dr. seems to think I have had it for 25+ yrs.
So I had all lab work: ultrasounds, CT scan, endoscopy, & colonoscopy. In the last year I've gotten sickly. I have varicose veins, enlarged spleen, hypertension, edema, severe gastritis, chronic fatigue, nausea, muscle & joint pain, abdominal pain, body itching (that's just crazy), & these little red marks on my arm, hands & legs.
The last round of tests showed my viral load is 9,000,000 and I am at stage 3-4 advanced cirrhosis. At some point the Doctor wants to treat it with Harvoni, but because of my stomach problems & nausea she is trying to get that under control with meds. Like she said until we can control all that she doesn't want to start treatment if there’s a chance (good chance) that I will vomit the meds up. Cost of each pill is like $1000 so I'm kinda at a standstill!
I have read that as we get older the disease progresses at a faster rate. I don't want to end up with liver cancer before I get a chance at treatment! So at this point I think I need second opinion. Which I will try to get quickly! So if you ever think you’re not getting the best treatment or advice from your Doctor GET YOURSELF THAT SECOND OPINION! My prayers are with everyone & their families suffering from this awful disease!
Hello survivors,
My name is James R L. This will be my first entry. 10-9-015 Fri.
I was born in 1966, I came into this world by God! But the Enemy had a Target on my head from the day I started breathing! My parents were broken people. My father raped my Mom! My family, we're drunks and drug addicts. My father died at 61, Hepatitis C and Cancer. My Uncle Rick died at 58 and he also had Hepatitis C.
I was diagnosed with Hepatitis C at the age of 28. I am now 49. God is finally answering our prayers by sending us the Harvoni medication! I will start my Treatment soon! I've had chronic fatigue syndrome, depression, and stomach aches for years. I drank alcohol and smoked for many years now I'm in recovery with Jesus Christ and celebrate recovery. I got saved back in 1992. Praise God! I now live in Tracy Ca. I want to start a support group! Feel free to Text or call me. 4084259396
Hi everyone,
I completed Viekira Pak + Ribavirin on September 14, 2015. 12 weeks of treatment. I was Genotype A.
I am a 60 year old female.
I was diagnosed with Hep C in 2002 after donating plasma but I kind of knew I had it already. I chose not to get treatment and basically went into denial about Hep C and ignored it.
I began to feel like I had Chronic Fatigue syndrome at times when I was in my early 30's. I did not drink alcohol, exercised and ate fairly well but if I did not take extreme care of myself I would have bouts of not feeling well.
I also had an early menopause starting at about age 37. I mention this because I had no idea Hep C was linked to decreased libido and that it effects our hormones and now I wonder is it possible that Hep C could of caused early menopause?
The last 12 years I had gone into a slow decline and past several years I became disorganized, unable to notice or care about daily tasks such as keeping my house in order. However I continued to function at work the past several years but I did not excel.
Treatment with Viekira Pak began June 21, 2015. Within several days I began to get sick. I became confused and it was a struggle to function. I took off 8 days from work and accepted help from loved one's. I pulled it together by eating good foods, resting and getting rid of any outside stressors. I was able to go back to work after those 8 days and function. What was wrong was that my liver enzymes, ALT and AST, which had never been elevated until treatment had shot up ALT into the 700's and AST into the 300's. I later learned not from MD but computer blogs that in studies one percent of woman get extreme elevated liver enzymes while taking Viekira Pak.
In August I began to notice changes with my body. My eye's had liquid in them again, no longer dry.
I was becoming happy. My skin was clearing of those nasty dry red patches and my libido was returning...None of these symptoms caused by medication but the Hep C.
Amazing, none of this did I expect; I did not realize I would feel so good after treatment. I burst out of treatment with an overwhelming energy. Almost too much, but it is maintainable now. I think maybe in the beginning I did not know what to do with so much energy. I have a sex drive, who would of thought. I have a zest for life. I
I am beginning to get things done. I am becoming organized. I had let so many things go when with Hep C.
My viral load was undetectable 6 weeks into treatment. It remains undetectable and I go get 12 week post treatment viral load check in December 2015. I hope and think it will remain undetectable.
Who knows what the future holds, but I forgot what it feels like to feel, so that in itself was worth the treatment.
I am against Big Pharma. I was a grouch and thought we should all go the natural way but this was worth it.
Good luck to all of you.
I contracted Hep C in the 80's during surgery. I have been on Harvoni for 6 weeks. My viral load was at 3 million, down from 4 million when I started my treatment. I was stage 4 fibrosis. After taking this wonderful drug for 4 weeks I just got the results from my first blood test. 100% virus FREE. Thank you Gilead Sciences.
The first 4 days of taking the drug my muscles felt like they were being attacked, I have had a headache off and on, and a little diarrhea, not bad. This is a miracle drug!
I’ve got Hep B and C.
My doctor told me I have Two. Years. To. Live.
I don’t get money for meds. I am retired. If you are poor- you die; rich -you live.
It’s been a hell of a ride.
I’m just waiting to die.
Just found out my husband of 20 years has Hep C. I don't know what type or how bad his liver may be, but I plan on going to a Dr as soon as he gets back in.
Hello everyone,
I'm a 31 year old female. I discovered I had Hep C when I was 18. I learned I had Hep C when I finally was able to donate blood at our high school blood drive. Unfortunately, I find out via my parents' voicemail that I had Hep C; Red Cross decided to just leave a message to tell me they couldn't accept my blood donation because of Hep C.
After extensive research and support from my family, my Hep C was traced back to my full blood transfusion at birth. This same blood transfusion is what saved my life due to a blood incompatibility with my mother. I was the first child of 3 to survive; my mother had 2 sons - 1 that died at a week old and 1 that died at a month old. If it wasn't for the blood transfusion, I wouldn't be here. However, because of the immediate, full transfusion at birth, I contracted genotype 4 from a blood donation from Red Cross traced to Egypt.
The irony of the situation doesn't stop with my discovery of Hep C after trying to give back by donating blood at age 18. After my birth, my mother traveled all over the state of Oregon to raise awareness of the importance of blood donations. My mother spoke at various corporations expressing how their donations could save a life like mine. I was on grocery bags and posters all over the metropolitan of Portland, advertising local blood drives and donations for Red Cross. Only to discover some years later, the very blood donation that saved my life also gave me Hep C.
Since the discovery of my Hep C, I have been hyper vigilant about staying healthy. I have sustained stage 1 liver scarring, and had planned to just keep on, keeping on until treatment was suggested for me in the spring of 2015. I was extremely excited of the possibility of receiving treatment, only to be denied over and over again by Regence Blue Cross Blue Shield. The denial letters from my insurance simply stated that until I was in stage 3 or 4 with signs of liver cirrhosis, they would not cover treatment. To put it in another way, I needed to destroy my liver more in order to get healthy. However, I did not let that ruin my attitude. I kept my chin up and a few weeks later, I received a phone call from the specialty pharmacy (that would have provided my meds for my treatment if my insurance had given approval). That's when the pharmacy told me that they decided to cover the cost of my Sovaldi, if I could prove that I made less than $58,000 a year. Since I'm an educator (9 years now), I shared my tax info showing that I was nowhere near $58,000 a year. I started treatment 2 weeks later!
I'm in week 11 of my 12 week treatment. It's been rough since I am on Sovaldi, Interferon, and Ribavirin. I've had the whole gamut of symptoms: fever, feeling of extreme temperatures hot/cold, severe weight loss, rashes, insomnia, loss of appetite and taste, brain fog, headaches, exhaustion/fatigue all day, joint pain, and sores all over my mouth, gums, and throat. I'm 5' 3”; and originally weighed 130 lbs of lean muscle (I'm an endurance and CrossFit athlete), but now I'm 109 lbs. I am hoping to come back strong, but I am in unknown territory, so I don't know how quickly I'll recover.
Thank you for reading my story. I hope you have found it useful. Here's to your health and happiness!
I was first diagnosed with Hep C in 1990 at a methadone clinic (NonA/NonB at the time). I had contracted it sometime, likely, the year prior to that. For several years I had only slightly elevated VL and enzyme numbers and no symptoms. I did not stay on top of monitoring it until I got clean in 2000.
Over the years, however, having been told that consuming alcohol was the worst thing I could do, I avoided drinking; even though I was still using other drugs and believe that played a big part in staying healthy. I've had the virus for 26 years and current blood work shows a VL of 4.1million and liver functions anywhere from 2-3 times the upper normal limits. In addition to abstaining from all drugs (especially alcohol), I regularly use natural supplements along with a healthy diet and proper rest. I do notice as I age the symptoms are slowly setting in, however. Tummy troubles and joint stiffness, mostly. After biopsies and endoscopies in 2004 and 2008, my recent blood test shows fibrosis is still at stage one. I was told in 2008 that I would not be a good candidate for tx due to a lack of positive factors going for me: age, length of time with the virus, and my genotype, which is 1b. My doctor would not give her blessing, believing that the treatment was more likely to cause damage, with little in return as far as a cure. So, for 26 years, I have lived with the fear just below the surface of what is going to happen to me one day when my body can no longer take the wear and tear of fighting the Hep C.
NOW THE GREAT NEWS! I was recently approved by my insurance company's specialty pharmacy to begin one of the oral regimens (interferon and ribavirin free). As I'm online reading up on the treatment I'm about to do, I felt compelled to share my story here. There was a time when, not only was there no hope for someone with this virus, but the stigma was brutal - especially if it was contracted through IV drug use. Nowadays, there is so much support and my experiences in interacting with health care workers is a hundred times better than it used to be. I used to hate the change in demeanor that came over people when they peeked at my chart. Now they are so much more educated and compassionate. It has been a long journey and I cannot even imagine what it will be like to not carry the weight of this worry around anymore.
If you are reading this and feel discouraged - DO NOT GIVE UP!! Take the best care of your mental, spiritual, and physical health until your time for treatment comes. If you're on it or already went through it, WOOHOO!! I used to think that a tolerable tx course with a good prognosis was a fairy tale that simply was never going to happen and now, September of 2015 and I am a couple steps away from it. I have never let Hep C rob me of living my life or cause me to think that I'm worth less than others. Having it lingering in the back of my mind does take its toll sometimes. Regardless of how we got it, we all matter and I am praying that one day it will be eradicated completely.
Hi. Cryoglobulinemia! Never heard of it? Cryo globul inemia. As the first part of its name suggests, it is a problem with cold. When a sufferers body gets chilled proteins precipitate into the blood stream which thickens the blood and doesn't leave much room for oxygen carrying.
How does that relate to Hep C? Approximately 1 in 3 Hep C sufferers will get Cryo complications from their Hep C. For most people the Cryo problem will disappear when the Hep C is cured.
For 3% of that 1/3 it is not true! The Cryo stays with us and is life changing. If you are getting very tired/fatigued or suffering joint pains or eyeball pains or moodiness after exposure to cold you should consult your doctor. Cryoglobulinemia has many triggers, Hep C being the only one I'm familiar with. My Hep C was cured 3 months after diagnosis with Interferon and Ribavirin about 10 years ago. The scary part was that without the Cryo knocking me unconscious one cold winter night I'd never have known about my Hep C with its potentially dire consequences.
Hi everyone.
This is an update to my other story.
I had my treatment in 2013 and it completed in June 2014. I had Geno 1A and was on the treatment for 48 weeks.
This update is to tell you all that after a 3 month test and a 12 month test to see if it cleared. I am happy to say that it has! I have cleared Hep B and C now and yes, I am very happy that I have completed it.
Thank you for all of your messages for help and support, please keep sending emails for help and advice.
I was an IV drug abuser in the late 70's, and early 80's. In 1983 I got on methadone maintenance. The doctor there told me I had high liver enzymes and needed to get checked for Hepatitis. Went to my doctor, and I was negative for A and B. He sent me to a specialist, who told me I had “Non A, Non B” Hepatitis. Said to let him know if it caused me any problems, which it didn't.
Over the years, I began hearing about Hepatitis C. I had stayed clean for the most part, had a bout with cocaine addiction in 1991, but walked away from that. Was a light drinker. Around the mid 1990's I started noticing some mild pain in my right upper abdomen, especially after drinking. Then I heard of some people dying from Hep C complications. So I quit drinking completely in 1996. Started taking milk thistle. In 2001 I was tested, and was “officially” diagnosed with Hep C.
For various reasons, never got treatment. But I knew I had a liver problem. I had a bad attitude of out-of-sight, out-of-mind. I had read about the miserable side effects of treatment with interferon, and it also scared me away from seeking treatment. In 2001, I was turned down for life insurance because I tested positive for Hep C. In 2008, I had a severe back injury, which required me to be on long term opiate pain meds, which made my addiction problem start back up. No IV use this time, just pills. Got back on methadone in 2009, and am still on it. This year, 2015, started seeing ads on TV for Harvoni. Damn, just what I had been waiting for.
My annual blood work at the methadone clinic had been showing my liver enzymes very close or at normal, which I credited to the milk thistle and heavy vitamin supplements I took. But now I was showing very high blood sugar, and I had a history of diabetes 2 in my family. So I knew it was time to start fixing my health. I knew in the back of my mind I had been infected with Hep C for over 30 years. For whatever reason I had been scared to face it. I also now had a good job and good medical coverage, after 10 years of no medical insurance. Picked out a PCP doctor from the insurance company network, initially for diabetes treatment, but knowing my Hep C would come to light, and I would start treating it. He found mildly elevated liver enzymes, and tested for all kinds of Hepatitis, and I was positive for C. Sent me to a liver specialist, who I told the whole story to. I also told him I want Harvoni. He checked my genome type, 1A. My viral load was relatively low, said I may qualify for an 8 week treatment. Had to get one more test before he could prescribe it, an elastogram of my liver-faily new test, better than a biopsy. Got that done today. I have 15% scarring, which means I do have mild cirrhosis.
Harvoni is the miracle drug we have needed. It doesn't try to kill the virus, and in the process beat the crap out of you too. It just blocks the virus from replicating, and your own immune system kills it. Your immune system has been fighting it for years already, so Harvoni along with immune system building supplements, like vitamin C, should do well. I am ready to get started on Harvoni now, and I pray the nagging fear I have had for the last 30 years will go away.
I do not know if you would be interested in my case.
I was treated for Hepatitis C, genotype 2, commencing on December 14, 2014 to March 8, 2014.
12 week treatment of Sovaldi and Ribavirin. My Hepatitis C relapsed June 9, 2014.
I was diagnosed with Non-Hodgkin’s Lymphoma B cell in October 2014. I was treated with R-Chop and Radiation until April 2015.
I am Hepatitis C, 2b positive, Viral Load 15.32 million, 3 Month Remission from Lg B cell Non-Hodgkin’ s Lymphoma.
I carry a high risk of Lymphoma relapse due to constant exposure to the Hepatitis C virus.
In order for me to have the maximum chance of a cure from my Non-Hodgkin’s Lymphoma the Hepatitis C must be treated in a timely manner or my life hangs in jeopardy.
Blue Shield of California has denied my treatment for Hepatitis C, Genotype 2b with the combination treatment of Sofosbuvir and Daclatasvir for reason of medical necessity.
So I am 25 yrs old and I got Hep C in my teens due to IV drug use...
I was diagnosed when I was 18 because I went to doctor because I felt like crap. Loss of appetite, itchy, really, really, really tired, depressed, and no motivation. I literally thought I was dying. I haven't gone through any treatments but I feel like I should try Harvoni.
I'm not the same person I used to be. I've been 2 yrs clean off the dope so now I'm serious about treatment, because to this day I still wake up feeling awful. I’ve thought about offing myself a few times but couldn't go through with it. I stopped shooting dope and pretty much any drug you can inject because my liver failed on me and I went crazy (hepatic encephalopathy). I didn't know anything. I went into coma and almost died. They told my parents I had about a 2 percent chance of living, but here I am, Thanks God!!! But I just want the people to know that your liver does not feel. When you get aches there it’s probably cause your liver is swollen and pressing against you gallbladder or another organ (which do feel pain).
At my last checkup I was told my liver got a lot better and I believe it’s due to turmeric, lemons, green tea, and RAW honey, and milk thistle. I don't itch like crazy and my appetite has returned. I'm 6 foot 3 and went down to 135Lbs. I'm now a steady 165 muscular (I'm a carpenter) but I'm still very tired all the time so I'm think I'm gonna go THE treatment (HARVONI). I will update you guys and God bless you all…
I was diagnosed with Hep C in 2011 after a car accident. They did some routine tests and found out. It happened I think in 1985 after blood transfusions.
Did Interferon/Ribavirin/Victrelis treatment and I was cured after 48 weeks . The big problem is that I was not checked by my doctor when bad side effects happened and now I have autoimmune Hepatitis. It is very bad. I have had all the symptoms for a year now but my PD just sent me to banal tests like pillory tests and expensive HEPA tests. These did not have anything to do with Hep C treatment. In a few days I have my 2nd biopsy test. I have painful symptoms and I’m scared. I think everything is about medical business. Even if one PD has told me what can happen. One of my friends was diagnosed about the same time with Hep C. She hasn’t done anything yet and she is happy. No pain, no symptoms. Going on with her life. Me, I almost have liver cancer. Who knows what is next.
All of you who read this don't jump at all the treatments. Do your research and don't believe your doctors all the time. They have reasons sometimes to push some treatments without regard to the outcomes.
Just want to say to all Harvoni is the miracle we’ve all be waiting for.
7wks into the med. Non-detectable in the 4th wk. 1 more week and I can walk away from this sleeping giant after 40 yrs.
Please know that you too will be cured, just be patient. There is a God, and I was given the opportunity for a new beginning. So I say to you all, don’t give up I never did. I Believed, and prayed for this cure. God Bless you all. Love Jolliet :-x
My sister has Hep C. She is 22 and used to be hooked on drugs. She seeks a better life now. Please what can I do to save her life? She doesn't deserve this. I can't lose her! We don't have the money!
I am following up on my previous posts. I was diagnosed in 1992. I had been taking milk thistle and following a healthy diet. I did not have scarring of my liver, but I had been diagnosed with diabetes, high blood pressure, glaucoma, lichen planus, etc.
I started on Harvoni in January. After one month, my viral counts were negative; and they have been negative since then. The last labs I had done after six months were negative. My hematologist said I am cured. I will have to live with the secondary ailments.
I plan to advocate on behalf of untreated in order that treatment be made more affordable. $94,500 is too excessive an amount to pay for 84 pills.
I found out I had Hep C type 2 and did not know what that meant. I went to a support group at my hospital and was told they had only had one type 2 in years. That really scared me to death. Why was I different? I was finally told type 2 comes from overseas. I had 3 blood transfusions in 1967 in a free public health hospital.
I went to the doctor and he put me on the old drug Peginterferon and Ribavirin. After 2 months I was so sick I had to stop the treatment.
Now the new drug is out and I have been on it for 2 weeks. I’m starting my 3rd week tomorrow. I am taking Sovaldi and Ribavirin. I am having a little problem with the Ribavirin it is making my stomach very sick but I am doing real well otherwise. I was told to take Phenergen to stop the sickness.
I don't know how many people have Hep C type 2 but if there are any others out there please let me know how you are doing.
I had been sick for a long time by the time the rheumatologist said I needed to go to a liver specialist A.S.A.P.
I was in shock. I kept saying no I don’t. I was told that my viral load was so high they couldn’t understand how I was still alive working and raising two children. I should be dead. That caught my attention. Then they asked me if I was born in the 1960s because they didn't test back then. I felt like I was dying because there was so much pain and all my joints hurt.
So this was 2008, Feb 14th. I began interferon injections and the two pills that went with it. It was going to last a year… I lost my hair so bad I looked like a guy. Drs said some people are only sick three days after injection don't believe that. Make sure you have a psychiatrist to help you through this. Have someone check on you. I did this with no one but my shrink. God love her. I threw up all the time on it. I lost so much weight I aged 10 yrs in 6 months. People who saw me said I looked like the walking dead. They were right. I lived in Galveston, Texas and the night before hurricane Ike I looked at my bruised stomach. I put that shot in and I threw the syringe and said, no more! If I was going to die then so be it but not one more treatment.
Next morning I awoke floating on my air mattress and Ike wasn't there yet. I weighed 98 lbs, size 0. I typically wear size 9 and use to weigh 130-135. I had to escape the island but couldn't go to a shelter cause if a kid had chicken pox it could kill me. No immune system left. I went to doctor after the madness from the hurricane. I was apologetic about letting them down and not completing the year. My test results showed it worked my liver, viral load was gone.
Now, it’s lucky that there is a much better treatment. In TWO weeks time you’re done and it cures it! My treatment doesn't cure it. I always have to check liver every 3 months. I don't drink or do drugs. I love my liver and I don't want to ever repeat it. Since 2008 I have come down with debilitating illnesses that doctors can't figure out. I think it has residual effects but I'm no doctor. I'm glad I did it I'm alive and my liver is well. Would I do it again? Yes just not alone, it was a nightmare for me.
Go for this new treatment. I'm not cured I live an alcohol, drug free life because why go through all of this to risk everything I achieved to get better. Good luck just don't put it off. You need this new treatment if you want to live and cure Hep C. I am with you in this trust me JUST DO IT! CHOSE LIFE!
Hi, about 10 years ago I had a live function test. Got told it's a bit fatty. Did not know what that meant. I moved and found a new doctor who explained that I had a fatty liver. He said many people do, don't worry. But he re-did a liver function test he said your liver is a bit high. He left got a new doctor and explained to her my liver is a bit high, what does that mean? She did a test and, yes, it is a bit high. She wanted to know if I would like further tests. “Yes, of course!” I said.
It came back Hep C. I was embarrassed and upset. I felt dirty. I have never done drugs with sharing needles, never even smoked a bit of dope.
Anyway, I saw the specialist on 8-18-15. She scanned my liver with her machine and a ticket comes out tells how bad your liver is. It is scarred very badly now. Cirrhosis of the liver. There is a brand new medication out but $70.000 a course. I’m on disability for other health issues but she believes they might accept me for a trial for the new mess.
They think I've had it over 30 years from prison in the late 70s. I am drinking apple cider vinegar and lemons squirted in to water with milk thistle, kale, brussel sprouts, broccoli, and spinach in a blender once a day . No one told me I've just been reading what your liver likes. Please, can someone tell me that it does not have to become cancer? I've started a group on Facebook. Damaged livers could use some help. Please help by joining and sharing ideas. Please cirrhosis does not have to mean cancer!
I was diagnosed with Hep C when I was 27 it's completely in charge of my life...I'm now 36 don't really go anywhere or do much. 9 years ago my fiancé left me 24 weeks into my treatment. I did 48 weeks all together and if I weren't for my new fella and ma mam and sister I would of finish myself off....When I got all clear was best news... And since then I've gained something. I’ve got someone on my side. I've not an idea what triggers the fits but I think my life and illness getting gradually worse.....
Hello,
I would like to share my story in hopes to help people that might have similar issues with being denied treatment from their insurance companies. When I was first denied the medication Harvoni I was devastated. When I was denied I filed a grievance with my insurance company Anthem Blue Cross. I was denied again. I then filed a complaint with the Independent Medical Review Board and they granted me an expedited review which took them 7 days for them to overturn the insurance company's initial denial and I received my medication 3 days later. Please no matter what, do not take no for an answer. Do not give up. Anthem told me that it was not “medically necessary” basically saying that I was not sick enough. I told them that everybody has different symptoms and are at different stages of the disease. Because of Hepatitis C I had other health issues associated with this virus. So 3 out of 3 medical specialists said yes, it was medically necessary. Like I stated, please fight, fight, fight. Everybody should be treated for this virus regardless of what stage you have been determined by your doctor.
Having Hep C has changed my life dramatically. It was 1983 and I was living in L.A working in a recording studio around many celebrities and had my own band. I was pursuing a music career heavily that began at a very young age. I was getting very close to success and then started having pains in my liver area and feeling extreme fatigue. I flew home and had my mom make me an appointment with a liver specialist in Seattle. He was a very well known specialist and began to figure out what was wrong with me.
After exhausting medical visits and tests including a liver biopsy and getting no answers, l was told that my biopsy was clear and he agreed that the pain and fatigue was not “in my head”. After that I was determined to learn how to feel better on my own. After all, I knew this wasn't in my head. The symptoms, fatigue and pain were real. Please understand that this way, way before Hep C had a name.
I flew back to L.A. and began studying herbs and natural plant based medicine looking for anything that would ease what I was feeling. After a few more years of not feeling well I decided move back to my home town of Seattle to be with my family. I married and had two children, a girl and a boy of which neither thankfully had HCV. I was finally given a diagnosis or “name” of what I had when I was pregnant with my first child, my daughter in 1991. I did not do any treatment at that time because the success rates were very low and the side effects were disastrous.
I got to know the woman who headed the first Interferon Ribavirin trails at Harborview hospital in Seattle and followed the results they were having from trials for many years. I began an incredible journey that brought me lots of travel through the U.S and other countries learning of people that were cured of Hep c using very strange remedies. I tried many of them. I cooked up smelly roots and herbs on the kitchen stove and drank them with my nose plugged. My father worked for an international shipping company and had contacts in many countries. I had shark oil shipped from Indonesia. I had powdered clam extract shipped from Japan. I began learning about the liver and about the virus and how it worked to damage the liver. I talked to others and found out anything and everything that others experienced using natural protocols. I tried most of them. I did mega IV's with 50 grams of vitamin C as well as silver IV's.
I know all of this kept my liver from getting worse. It kept my liver from going to cirrhosis by using natural products that healed the liver faster than the virus could damage it. I am not gonna lie, I got into many arguments with practitioners angry that I refused treatments and trials. Honestly, when I reviewed the side effects, I was a mom and decided to take my chances with what I already knew how to deal with. I have lost friends to this disease. I also said that I knew one day someone would “crack the code” and if it took 30 years I would wait!
So, I started adding self help trainings; I studied personally with Anthony Robbins, Werner Erhardt and many other gurus searching to balance both my mental, physical and spiritual self. I understood that what I thought had a great impact on my health as well. I spent three years with a team doing research and came up with a self help course called Invisible Truth that helped me tremendously and also has helped thousands of others searching for health and well being. I began using my business skills combined with my knowledge of supplements and I began a career as a consultant and life coach. If I had not had this journey my life would have been much different.
I am not sure I would have the blessing of the two most important people in my life right now being my two children, both negative of HCV. I waited for the day a treatment would come like Harvoni and it did take some thirty years. Having HCV has been a tough and painful journey for sure. Lots of money spent searching and lots of days not feeling well but I have always kept my spirits up and kept moving! The course that we created on how to keep your mind positive called Invisible Truth became something where I was the first and biggest testimonial.
I just finished my 12 weeks Harvoni tx two and a half weeks ago! I could say so much more. I would just like to say to never give up! That if you have Hep C today chances are you have other issues that stemmed from it. Once the Hep C is gone your body will begin to work on itself in a far better way! Eat healthy live foods. Exercise and bring lots of Love into your life! I am a very thankful gal.
In 1982, on my way to work in West Africa I received what we believe was a tainted gamma globulin shot (however I was no saint and it could have come from “risky” 70's behavior. I have always participated in competitive sports and even today at age 59 I workout 2 hours per day, 6-7 times per week. I have been taking milk thistle and other herbs and vitamins for years (my regimen fills a sandwich baggy-I call it my trail mix lol) I also drink alcohol and more than your usual 2 drinks or less per day. In the late 90's I was diagnosed with Hep C, but a fairly mild viral road. I was on the low side for a clinical study, but got in at one being conducted at Emory. I think it was Schering Plough. It was the Pegilated Interferon/Ribavirin combo. 6 weeks. They had to reduce my dose during the study because I became anemic. It was the worst 6 weeks of my life. Because it was a clinical trial they could not treat me for the anemia. I became totally exhausted, abusive, suicidal and really, the worst 6 weeks of my life. When it was over, the Infection came back in a matter of months. The offered it again to me free of charge as a non responder. I declined. So for the next 10 years (and even today) never really changed my life style. I don't recall when but started following Gilead as a company and even bought their stock. When their drugs became more and more promising, I began visiting a specialist at Emory. I had the sonogram of my liver taken, remarkably perfect condition. As the new drugs began hitting the market I held off until, following my stocks I saw within a week that Harvoni had been approved by the FDA. I work with a great team at the Liver Center run by Dr Norman Gitlin. What a great team. They battled (and mean battled) with my insurance carrier to get approved (insurance company was pushing Sovaldi and Ribavirin). We won. Because I was a previous non responder I took the full 3 month protocol. I was fortunate enough to get a coupon from Gilead that covered my normal co-pay. Yes, total co-pay. After 6 weeks into the treatment I was virus free. Just had my 6-7 month tests. I am cured. The only side affect for me was a little “fogginess” that went away after a few weeks. Finally after Living with this thing in the back of my mind for 35 years, it's suddenly gone. Per various doctors if it wasn't for my dedication to working out and I am sure, the vitamins and supplements, I would be a transplant candidate or worse dead. Hard to express in words what a relief it is to be free of Hep C. If you can get the Harvoni go for it. You won't regret it.
I had Hep C for OVER 40 YEARS, which isn't all that unusual. From '95 thru '12 I went through 3 courses of interferon treatment, 24, 36, and 48 weeks, with Ribavirin and Incevik added to the latter treatments. No good, the virus just would not clear. My Hepatitis progressed to cirrhosis. I was itching like a lunatic, scratching myself to pieces, exhausted all the time, and could not think clearly, the result of good ole liver disease ”brain fog” .
Then I got the really bad news--liver cancer, which oddly enough turned out to be good news in a weird way, because it boosted me to first in line for a transplant. By incredible good fortune, I was only on the transplant list for 40 days. I got a new liver in November of 2014 and I've been doing very well ever since. When I awoke from the surgery the relentless itch was gone and hasn't returned, and my energy level has been improving steadily. I still had the virus, though, even after the surgery, but I started on Harvoni 2 months ago and cleared the virus in 4 weeks. For the first time since the early 70's I have no detectable Hep C virus and my outlook is very good, they tell me.
I heard all manner of encouraging words from people throughout all this, some of which was nonsense. But one thing someone said stuck with me because it's so true: “Where there's life, there's hope”. Yes, it's corny, but it's something I really hung my hat on. Never give up if you're still breathing. Modern medicine is a hair's breadth away from miraculous. Hep C can be a slow-moving freight train, and there's always the possibility that there's something that'll work for you just around the corner. You just don't know. I couldn't make it up a single flight of stairs without stopping to rest, and now I'm back to my 3 or 4 floor-minimum-elevator-use rule. So my point is this: hang in there. There's no need to be fatalistic like I was. Don't give in to worry--Hep-Cats should enjoy life just everyone else. Just nine months ago I was a cancer patient with barely enough energy to get out of bed. Now I am in very good shape and looking forward to retirement and a lot of other stuff. I'm fine.
DON'T GIVE UP!
25 years ago I was given some medication that required a liver blood test. I showed high liver enzymes. The Dr said, “Quit Drinking”. I only ever drank socially, maybe one time per month. He didn't believe me. I thought he was crazy??!!
About 8 years later in about '97 my GP saw high enzymes and said let's test for Hepatitis C (it was the new hot disease). She was almost giddy when it came back positive. She told me “it's like having AIDS” her exact words. So I go to the internet and read all the worst news available. Incurable, liver damage, Cancer and ultimately death. I looked at my 6 year old daughter and prayed to let me see her graduate from high school.
I was referred to an internist that was forming a line writing scripts for interferon treatment. I was given a video to watch on how to give myself shots and what to expect. He said one guy was a roofer. Hard work, but he actually was able to continue working. At this point I felt fine except for the thousand pound elephant placed on my back.
Rule one: get a second opinion. I did and he was NOT aggressive. Said they are making some progress in treatment, your enzymes are not bad. He said go live your life its ok. So I did with the goal of seeing my 6 year old graduate from HS.
Rule two: never drink alcohol with HCV. It's like gas on burning embers. Annual visits to my new infectious disease Dr showed enzymes that went up and down, as did the viral load.
Rule three: know YOUR numbers and what they mean. Viral load went up and down, that's typical of chronic hepatitis. Finally about 7 years ago I was typed for genotype and the news kept getting worse. You have 1a, one of the hardest to cure; turned out to be good news that NONE of us knew at the time. I had a biopsy on my liver...it was easy and painless. Came out at about not great, but not terrible. Some necrosis, no cirrhosis. Dr says let’s wait; treatment is getting shorter....still interferon. In the mean time my best friend from High School died from HCV turning into Liver Cancer. He was diagnosed before me and NEVER STOPPED DRINKING.....it was always 5o'clock somewhere for him. He paid the price.
Rule four: become a health nut. I took vitamins, and supplements and whey protein. I exercised daily, lost weight and generally got healthier and happier......I just felt better with HCV. If I had one year or 20, I was going to make the most of them.
December 2013 my conservative DR says it's time for me to go to a specialist. He referred me to a young DR that specialized in HCV and its treatment. He said I looked healthy enough, I told him I felt good. He said let's do a biopsy. I did, again it's easy!! When I went to discuss the results he said my liver was better than his. He is 35 :-)
My liver seemed to have actually gotten better (see rules one thru four. He said come back in a year, “Cures are close”.
During 2014 Harvoni was approved as was VieKira Pak. I return in January of '15 and the young DR says let's treat, it's time. He prescribes Harvoni. Blue Cross Blue Shield denies it as they use Express Scripts, which made a deal with Abbvie for Viekira Pak. I began a two time a day, 4 pill/day regime for 12 weeks. It was easier than a biopsy, which let me repeat is easy.
On April 15th, 2015, I took my last dosage and a week later was tested for HCV viral load, as well as enzymes. I asked the Dr to fax the report and he sent it and the report came in with his “scribble” across the bottom, “HCV undetectable, CURED”.
My ALT and AST were lower than I had ever seen them. So I am able to live my life, and the major difference is I don't have the HCV tape playing continuously in the background.
My 6 year old daughter graduated from HS in 2010, College in 2014, and gets married in August of this year. I have a one year old granddaughter and I now pray that I will live long enough to see her graduate from High School. You CAN survive HCV, but life is incurable. ;-)
I like so many people got caught up in the fast life of drugs, sex and all that comes with it. I started shooting Meth in 2004 while living in Atlanta. My lifestyle landed me in and out of jail. Finally the judge was sick of seeing me. I was sentenced to my first of three prison stays because of my drug addiction. While in prison they ran blood tests and on Thanksgiving Day the doctor brought me into a room where I was told I was HIV positive and Hep C positive. When I got out I went to the doctor again where I was then told I had full blown AIDS. Meth was now my demon, my demon that would always haunt me. My HIV was eventually controlled. My viral load became undetected, and CD4 went up, but my Hep C only got worse. I wanted treatment so bad, but I knew I had other issues to deal with first. I had my addiction to deal with.
Three years past and I fought; I relapsed and got up again. I was sick of being sick and tired. I maintained my sobriety and I started seeking help, while you’re in your addiction you can't do that. My doctor saw that I was ready and fought for me to get on the treatment for Hep C. Three months of Sovaldi and Ribavirin and now I'm undetectable.
I hope that whoever reads this wants to live as bad as I do. I hope if your suffering from the same demons you beat them as well. Good luck.
I had Cervical Cancer in 2000, had radical hysterectomy and radiation. Have been cancer free since then and even though I had dozens of tests for the cancer, I was never tested for Hep C. I was having terrible joint pain and had a hip transplant in 2008. Still, although I asked doctors, I was told I didn't have Hep C.
I used intravenous drugs in the 70's and some of the people I knew back then had passed away from Hep C, so I was pretty sure I hadn't escaped the bullet. I was diagnosed with rheumatoid arthritis in 2010 and not long after that, Hep C. Although I kind of knew I probably had it, it was still devastating news. Because of the arthritis, the interferon treatments were out of the question. So, I just figured that I would die with the disease.
Lately, I had a liver biopsy and two months after that, my insurance company called to say I was approved for Harvoni. It was as if I had won the lottery. I live in a small town in the mountains and have had so much trouble finding good doctors and such difficulty over the years with insurance companies that I was just astonished that they would approve me for such an expensive treatment without me having to borrow money or do tons of paper work.
I am on the third day of taking Harvoni. If it can do what they say it does will just be a miracle for me. I am in such pain daily from rheumatoid arthritis, that the joint pain from the Hep C just aggravates it. Also, both diseases cause fatigue and if that can be alleviated, maybe I can get some relief.
Good luck to everyone out there who also has this disease, I hoping for the best.
This is a different story, one of spontaneous healing.
I acquired Hep C through massive blood transfusions after an ectopic pregnancy that nearly killed me 46 years ago. 6 weeks after the transfusions I got very sick and was told I had severe Hepatitis. No A or B as they called it then. I was in bed for month and it took time to recover. I had a wonderful doctor who told me that if I stayed away from alcohol and meds and ate as healthy as I could (basically poultry, fish, eggs and meats sparingly, lots of fresh veggies and fruits and no added sugars, no sodas and plenty of plain water) I should not have too many problems. I lived by that and took Milk Thistle when I discovered that. In the last few years I have also taken Curcuma dissolved in organic coconut oil with black pepper (half a tsp twice a day). I have had every problem Hep C can give you. Terrible itches, sleep problems, severe muscle aches and pains, joint pains, foggy thinking, thyroid problems, Lichen Planus on arms and legs, my skin is completely freckled. You name it, I have had it.
It was not till 2001 that it was discovered that I had Hep C. I had a viral load of 1.600.000 and enzymes were totally out of whack. Had a liver biopsy, F 1 .My liver specialist advised against treatment because in his book the treatment was worse than the disease and having had the thyroid problems he was leery. Till just this summer I have gone through 3 monthly check ups religiously. In the meanwhile I have had some life threatening unrelated surgeries I have survived not without struggle and worries because of massive antibiotics and meds and long hospital stays. About 3 years ago my numbers started to decline. Last year I became just positive, and this year it has completely disappeared, NEGATIVE, they retested in 2 different labs. The same, it is gone from my RNA.
The Dr. has told me to come back in a year. We are over the moon as anybody can understand. I am conscious that this extremely rare but does happen. I am now 72 and very healthy in every sense.
God bless you all and good luck, with and without treatment.
I was diagnosed with Hep C in 2001. I had a blood transfusion in 1985. I remember having flu like symptoms after the transfusion. I remember having fatigue for years, which became more severe as the years went on.
I took the Interferon & Ribavirin treatment twice and was a non-responder. Last year I was diagnosed with autoimmune hepatitis & my Doctor recommended I go on Sovaldi & Olysio. I could feel a difference after the 2nd week on treatment - I had more energy, more than I'd had in 25 plus years! I was declared “Non-detectable” for Hep C in November of 2014! I now have my Life back!
Like many people who have HCV, I really cannot say how or when I contracted the virus, but my best guess is that I got it from a blood transfusion, which I have had on at least two separate occasions. This was back in the '80's when very little was known about how the virus could be transmitted. Naturally, I was alarmed once the doctor who found the virus after a routine examination told me what the disease actually was. What he told me about it at the time didn't seem to require immediate treatment since I was asymptomatic and believed, at the time, that there was no pressing need to do so. Besides, what I had heard about the virus was disturbing so when the opportunity to be treated arose, against my better judgment, I agreed. At the time, the regiment consisted of a weekly injection of Interferon and a daily dose of Ribavirin. It probably will not surprise anyone to learn that the symptoms were actually worse than the disease. I was able to cope with Ribavirin, but the side effects of Interferon were unpleasant in the extreme but I had resolved to see the treatment through regardless. Looking back on the experience, I think that my doctor misrepresented the facts, as he told me that I was guaranteed to be cured. As I was genotype 1, I was in that category of people for whom the treatment had only a moderate chance of working.
Somewhere around the middle of the treatment-- which was supposed to last for 48 weeks, my doctor decided to add the drug Victrelis to the mix. The addition of this third drug was nightmarish to me; worst of all, it exacerbated my symptoms and because my job was stressful and demanded long hours on my feet (I used to teach high school English), the pressure of the situation became so bad, that I decided to quit teaching at the end of the semester.
The blood tests that I had taken indicated that the viral load had diminished, but as it turned out, this was only temporary. The addition of Victrelis caused terrible mouth sores; so bad, in fact, that eating became torturous and only increased the number of pills I had to take on a daily basis. Although he was initially encouraged by the results, eventually my doctor agreed to stop the treatment as the side effects were making me utterly miserable and also effected a personality change that only made things worse. Looking back now, that was the worst year of my life, given the pressures of my job and the plethora of nasty side effects. This was back in 2011.
I retired from teaching at the end of that year, bringing a 30 year teaching career to a close. Once I went off the meds, I was depressed, feeling like the disease would be with me until I died and my only consolation was the fact that although I had contracted the disease in my early thirties, I was, thankfully, asymptomatic. Since then, I have retired and moved to a new state and had more or less abandoned the idea of seeking treatment.
However, after learning about Harvoni and the promising results it produced, I began to wonder if it might be worthwhile to try again. After all, the numbers were very encouraging and better still, people who were genotype one were responding well to the medication with minimal side effects. At the present time, I have not yet begun treatment but given the good results of Harvoni and other “miracle” drugs, it now seems like I might want to try it one more time. Given the fact that the treatment is well tolerated by most people and only needs 12 weeks to be completed, I wonder if it might be a good idea to try it again. Of course, due to the prohibitive cost of the treatment, it might not be so easy to deal with the exorbitant costs. After all, even a twelve week regimen can cost in excess of $80,000, I have no guarantee that my insurance will cover the expense.
My general health is good and knowing there is a fairly good chance of being cured, I have resolved to try the treatment one more, given the excellent results of the new drugs. I understand, however, that people who have undergone the failed treatment of Interferon & Ribavirin, may have less of a chance of being cured, but since the cure rate is somewhere between 96-99%, it might be worth a try. At the present time, however, I have not yet tried to initiate the new cure. My only reservation is that what if I am one of the few people who might not respond positively to this new treatment? I really would not wish to undergo this treatment unless I am fairly certain that it will work. I know that asking for an iron clad guarantee is unrealistic, but given the exorbitant cost of the drug I feel that this is a legitimate concern.
In the end, I will probably try the new treatment but even so, I have no idea how I will respond to Harvoni. However, I think that if I survived 40 weeks of Interferon, Ribavirin and Victrelis, I imagine that I will survive Harvoni too, but, as with many things, its still not what anyone would call “a sure thing”.
I found out I have Hepatitis C in 2014. I have taken meds for 6 months and I still have it. My doctor has put me on Harvoni for 3 months. I was so disappointed when she told me I still had it.
I had 2 units of blood in 1983 that’s how long I've had it. When I found out I had the antibodies for Hepatitis C I called my doctor and he said I would never have it so I wasn't checked again until my heart doctor tried to find out why I had a liter of fluid built up on the right side of my heart.
I have had pain today and it scares me.
I tried Interferon and Ribavirin but was a non-responder. Years later I endured eleven months of hell on Telapravir, Interferon and Ribavirin. I was so ill I just ended up telling myself that I could make it through one hour and then the next. I had so many side effects, skin eruptions and burning sensations, mouth just full of ulcers too painful to drink water, anemia -requiring blood transfusions, no appetite, breathing difficulties, hair loss, eye sight deterioration, severe concentration and memory loss, personality change and the darkest depression, also induced menopause, shingles; the list, believe me, goes on and on... . I endured and fought on and it “worked” and I am now free of Hepatitis.
It's now eight months since I finished the “treatment”. I am sincerely confused because I am still so sick; the treatment has left me a wreck. I took the treatment because I wanted my life back from fatigue and liver pain and I had F3 on Fibrosis scan and was frightened that I would get Cirrhosis. Boy, have I got more than fatigue now. Possibly I was really unlucky - and would I have taken the treatment knowing what I know now - it's a difficult call because you can't really comprehend how bad it can get and become. All I know is that I had a better life before the treatment than I have now and I was a lot stronger. I feel as though the things I enjoyed have now been taken away from me. I have been told that some people who get really sick like me can take a year to start feeling better; but I've been told a lot of things. I am still hoping that I will get better that these ”side effects” I'm left with will gradually fade away. The most distressing side effect is the feeling that you have been left with your brain and memory wiped clean and your living in a strangers broken body- believe me (for some?) this is no easy ride.
In May of 2015 I was diagnosed with Hepatitis C. The doctor told me I need to take this medicine. He said it was very expensive. Over $90,000 for Harvoni for three bottles. My insurance paid everything but $5 on each bottle. I went back for my 4 week blood work my blood level shows HCV “Not Detected”.
When I had my first blood work done my levels were very high. It was 566.850 iu. If you have it don't be scared to see a specialist because this medicine works really well. I haven't had any side effects other than a couple headaches during the first week. It worked really well for me so far. I have another 6 more weeks to go. They say this drug is a miracle drug and it really is.
My husband was diagnosed with HEP C Type 2 in 2008. He took Ultra Milk Thistle and SST recommended by our family doctor. We decided not to do Interferon & Ribavirin because the cure stats and side effects were not good. In 2008, his viral load was 1,050,000. In 2014, his viral load was 300,000. We believe that this drop in viral load is from SST & Ultra Milk Thistle & a good diet and lots of water. In May of this year, he started Solvaldi & Ribavarin and will be done end of July. His viral count is now undetectable.
Finally, after three treatments my Hep C is cured all do to the breakthrough drug Harvoni. All I had to do was take one pill a day for 12 weeks. A lot better than the previous two treatments of interferon which were a yr long and made me deathly ill. I was fortunate that my insurance paid the 32,000 dollar a month price considering most won’t approve it because of how expensive and new the treatment is. However, due to the fact that I have previously done two different treatments with negative results and without this one I would have died, my insurance reluctantly paid. Within a month I was cured of Hep C and my viral load was 15. My 12 weeks of treatment is over and somehow the pharmacy sent me an extra half month supply. So if someone is interested in Harvoni please let me know It was my miracle..who knows it could be yours too.
In 2005 I found out I had Hep C. My doctor convinced me to take interferon and ribavirin for 24 weeks. It was miserable I was tired and depressed. 2 months later the Hep C was back. I quit seeing my liver doctor and my family doc would always tell me I needed to see a specialist. In January 2014, I had emergency surgery for a ruptured appendix. It ruptured 2 1/2 weeks prior to the surgery. The surgeon told my wife I had cirrhosis. I was referred to another liver doctor who had me do 24 weeks of Harvoni and Ribavirin I finished that treatment in December 2014. From July 2012, I was feeling weak and tired and it was getting worse I was depressed lost any ambition I quit fishing, hunting and lost interest in life in general. I started to feel better after I took the last treatment my strength started to return but I don't know if the Hep C has returned or not I have pains in my liver I am depressed I believe the ribavirin has affected my moods and temperament . I am strongly against the interferon treatment it has changed me. My wife could go into great details how these medications have affected me. I just had my blood tested but no results yet. If the Hep C. Is gone then it's the cirrhosis that's making me feel bad. My bones ache, I itch a lot, I feel I'm getting weaker and weaker. I am through taking any more treatments. I can't believe my liver doctor he told me your liver has no pain. I have sharp stabbing pains, pulsating pain, burning sensations and dull aching pains. They all come and go. I'm tired of talking about it to doctors. It seems to me all the doctors want to do is sell me drugs. I wish I could go back in time and never take any of it
I got it from a transfusion as an infant. Got tested once the test was available, and was devastated. Even though I had no liver damage, back then they thought it was a death sentence. I was told I could lengthen my life by a few years if I consented to the torture known as Interferon - Ribavirin combo. Theory was, I would extend my life through the torture, and then maybe a cure would be invented.
I was too much of a pain in the ass to let some little virus win, so I did it. I asked to not be told about the side effects ahead of time so I wouldn't get them psychosomatically. I agreed to just tell them any new body sensations during checkups.
My entire body revolted. Week 1--started losing 1 pound per day even w/o decrease in caloric intake or increase in activity. Then came bad charley horses and joint pain, extreme nausea with a new bionic sense of smell, vomiting, complete loss of appetite, loss of sense of taste (everything tasted like wallpaper paste). Then came the psychiatric symptoms--insomnia for days at a time (I mean NO sleep), depression and confusion to the point that I couldn't function independently. Don't let anyone fool you--hair loss physically hurts as well--not the worst of these symptoms, but not nothing. Lost about 50% of my hair. Couldn't tolerate anyone touching me--skin hurt.
Began concealing my symptoms because my doc said she'd take me off the regimen if it got worse. And I thought that was a death sentence. Finally I had to stop because it was apparent it wasn't going to cure me. Took me 5 months to experience the sense of hunger and 1 year to feel ok.
It's years later and now I'm getting ready to have another round of tests. I hope I can come back here and say I'm cured!
Steve Q. and others, please keep sharing your stories. It does help, even if you don't have a happy happy joy joy one. We need to commiserate--it's very helpful. Thank you.
I was diagnosed in 2014 with Hep C geno 1a viral load 5 million. Likely contracted it in 1991. Thought my life was over. It was a stunning slap in the face with reality. I guess in the rear view mirror, I thought what an incredible time to find out.
I received Sovaldi and Olysio combination for 12weeks. Became Undetected for the virus from the first blood test till now. I take the 24 week post treatment blood work in two weeks. I have had some pretty severe side effects, but compared to interferon and Ribavirin, I am told it is a cake walk. It was not. I am still plagued with scary sides, but hope they will subside. Life without hepatitis far outweighs these things. Best wishes for your treatment journey. Blessings
I am a partner of someone who is going through the Hep C treatment...my question is has anyone had a bad reaction to giving themselves the injection in the leg? My partner said it hurt when he put it in the leg, which it has never done before. Now he has a gigantic pussy, ugly lump… it looks terrible. He went and saw his specialist and he gave penicillin antibiotics and it seems to be working.
Has anyone experienced the same? Oh and they said it was hard for the partners but I didn't think it would be this hard. :-(
I have had Hep C since I was 16 years of age. I joined the military when I turned that age. The military is where the disease was gotten I believe. I am now 59 years of age. The doctor recently told me I was stage two with my Hep. All I can say is don't drink and eat healthy. Do not let the Hep bother your mental thoughts.
Started using IV drugs 2010. First rehab in 2011. They took blood work at rehab negative for Hep C. relapsed soon after for the first time. I shared a syringe with someone they found out later and let me know they had Hep C. I went to rehab. I was negative for Hep C. I was very grateful but that did not stop me from using. I just did not share anything anymore.
I’ve been to 2 other rehabs after that last one. In October of 2014 I got tested. I even called to find out the blood work and they said if they didn't contact me everything was normal. Now I am 8 months sober and also 13 weeks pregnant. I went for blood work and my nurse calls me, accusing me, (because I was open about being in recovery first appointment) saying “Were you aware that you would come up positive with Hep C antibodies?” : (
I went for more blood work and tomorrow I go for my 13 week sonogram and Doctor appointment to find out viral loads. I have been so depressed no energy since this news. What are the chances I do not have the virus or the chances I can transmit to my baby and boyfriend? I am so ashamed. I accept that these are the consequences of drug use but worried about my baby and what others think of new just need someone to talk to and not judge me. : (
I was diagnosed with Hep C in 1992 when I went to give blood. I went to my PC Dr. He said no worries you're just a carrier and it will cause no HARM. In 2004 I saw an Internal Specialist and he told me my viral count is 10 million and I should start treatment for Hep C. I went into denial. I mean how could I get Hep C? I’ve been married for 25 years at this point and never used drugs and not into strange sex. How me? So now its 2010, I am sick, I read somewhere that Milk thistle will cure Hep C. After a year of this I know it's not working. Went back to Internal Specialist started Interferon and Ribavirin.
The blood tests and drugs were quickly cleaning out my bank accounts. So I switched to VA Medical to alleviate this problem. I ended up in hospital three separate times. I slept all the time took my drugs as I was told to (even though I knew I would be worse for a few days). I tried to eat and drink but had no appetite and I could only drink water. The hospital stays were for dehydration and malnutrition. Everybody kept telling “You have eat to live” so I ate what I could but everything tasted like cardboard. I went to the hospital once because I had too much ammonia on the brain. I could not remember my own name. It was bad man. But in my mind this monster could not kill me I was going to defeat it. After 12 weeks my viral count dropped to 8 million-good sign. Hope. Only 36 weeks to go now. I had lost about 40 pounds. I got gout in my feet was very painful and started losing some hair which was sad. But I can't stop now, I’ve got to win.
After 36 weeks viral count is at 1 Million thank God. I hit 48 weeks and the viral count undetectable and I am cured. I now weigh 147 pounds started at 305 pounds lost half my body weight but I was alive. Now 2012, time to start recovery. I was 57 when I started treatments. Recovery was slow for me. Muscles in my legs cramped all the time and my hands would tie up in knots. I couldn't stand up on my own. It was BAD. It took about 2 months to stand up and longer to walk any distance. It's now 2015, 4 years have gone by and I am working again as a Software Engineer. I still get tired easily. Legs are slowly getting stronger. But I am alive I and feel healthy. All I can say is when Your Are Standing in Front of the Gates of Hell YOU cannot back down. Treatments are hard but you must gut it out if you wish to live. Help is everywhere. You will be surprised how many people you do not even know help. You have to look. This is your LIFE.
I wrote about the treatment that my daughter and I went through on this post maybe a year ago. We used the Pegasys, Ribavirin and Incivik treatment that was available back then. We got a grant to pay for the treatment. Aside from the Anemia that we had and took Procrit for, the treatment was a breeze. My daughter got it through childbirth and I got it from finger sticks in a blood bank I worked in. But the odds of a cure I think were around 80% which is pretty good. We were both cured. If these newer drugs are so expensive they should still offer the Incivik if the insurance won't cover the new drugs. It worked for us.
So I’m back!
I wrote on May 19th that I was on Harvoni n came back detectable on week 5.. But I also said I knew it was working. Well blood work came back from week 10 and it is undetectable/ negative.. Praise God!!. I know now that at week 4 or 5 is just to check if the treatment is working, so even if your still detectable but your viral load has dropped or you’re detectable it is the lowest amount that is detectable. Odds are you will be undetectable after your full 12 week treatment..So hang in there stay positive because the "what ifs" almost did me in..
God Bless!!
I went through the 48 weeks of Sovaldi and Ribavirin.
It’s been three months since I have been off and they say I'm cured, however it was not a walk in the park. I had to take pain meds to get through it. I had flu like symptoms, bad headaches, joint pain and anxiety. I had anxiety even before treatment. Since I have completed the treatment I feel better now than I did.
I'm glad I went through it. It is hard everyone is different and reacts differently to the medications. I had to turn to my primary care doctor to give pain medicine so I could cope. If you have Hep C (I had genotype 3 which is harder to treat) don't be scared. If you need pain medication or something for the anxiety make sure your doctors are on board. Mine were not. I reached out for help and I’m done.
Good luck. It will pay off in the long run.
So over a year ago I went out with friends and had a great night with a glass of wine. The next day I was super itchy. Not just kind of itchy. Itchy all over, itchy. My hands and feet itched so badly that I was itching my body in my sleep. Thought I was allergic to something so took some Claritin. The itching went away. I stopped the Claritin but the itching came back with a vengeance. Called up the doctor and went in and had a ton of bloodwork done. Got a horrible phone message saying this Dr. So-n-So, we need you to come back in and have more blood taken. Went back in and filled 9 more vials of blood. Got another call from Dr and was told I had Hep C. What do you mean Hep C? How could I get it? Long story short, I have no clue how I got it and hate not knowing but there isn't anything I can do. We found out I had Hep C because my alt and ast levels were through the roof. In the 1500 range. I've been monitoring my levels for a year now and I've leveled out. I'm generally at 150 for alt and ast. So that probably means I had just gotten Hep C. Man that sucks but at least I know now. I'm hoping my next liver appt might include a talk of treatment. I will have to go on Valkira Pak because my insurance only covers that. Keeping my fingers crossed. But we might also not treat. I'm trying not to get my hopes up. My last viral load was 250,000 which is less than the 2.3 mil it was before. I have this deep seeded hope that I might be clearing the virus. With have to wait and see what the liver specialist says.
I'm 60 yr old. I think I've had Hep C for more that 45 yrs. I tried holistic treatments for 15 yrs when the virus was first confirmed by blood tests. Last 2 years my liver got very sick. I'm in stage 4 of Cirrhosis. I started Harvoni 5 weeks ago. After 2 weeks liver #'s were on high side of normal range for the first time in 40 yrs. After 4 weeks on meds liver #'s on the low side of normal. Also Viral load went from 4,000,000 (million) to 20. The Dr’s office called to tell me the virus is undetectable now after just 4 weeks!! I have several weeks of treatment to go. Very excited! No side effects, more energy and clarity of thinking. Ever Grateful!
I have had Hep C, Genotype 2 for approximately 40 years (blood transfusion in 1975 due to complications of child birth). It was detected in 1992 during a routine blood test. Now I also have significant cirrhosis but am not sure of the level. After extensive research, I decided not to go on Interferon/Ribavirin because of the horror stories regarding side effects. I even spoke to people who had gone that route and decided to wait. I really had no outward symptoms all this time. In 2014, I began the 12 week course of Sovaldi + Ribavirin. My virus went “undetectable”; after 6 weeks and I thought I had this virus beat. Unfortunately my 24 week blood test indicated I had relapsed, which was terribly discouraging. My doctors have been marvelous and very pro-active in my treatment, and at first we decided to wait for Gilead's new combination drug which probably won't be available until 2016 or 2017. For those of us with genotypes other than 1, the choices of drug therapies are limited. My doctor has been monitoring the data closely and attended a global conference this year. Finally there are a few case histories like mine where re-treatment with Sovaldi + Ribavirin for 24 weeks instead of 12 were proving successful. Because of my cirrhosis, we decided not to wait but will repeat the Sovaldi + Ribavirin for 24 weeks. I will begin this new treatment period shortly. I had zero side effects from the Sovaldi and a few from the Ribavirin, but nothing terribly debilitating, other than fatigue (anemia-caused). If this protocol doesn't eradicate my virus, then we'll look ahead to one of the new drugs currently going through FDA. I will beat this virus!
P.S.: My insurance company denied this second treatment, however through the experience of the Hepatitis C division of my medical group, I learned that there are many foundations out there who are willing to help you pay for your treatments. Some of the drug manufacturers are even willing to provide their drugs free of charge if you qualify. Don't give up, eat well, be sure you are getting the proper nutrients to support your liver and stay in constant contact with your Hepatologist!
I am a Hep C patient from Holland. I did the interferon/Ribavirin cure in 2005 and had to stop after 3 months, because there was no effect.
On April 8th, I started Daklinza/Sofosbufir(same as Harvoni in the USA) together with Riba, which I was very afraid of. I stopped with Riba after 3 weeks because of the side effects.
Here there are only virus load counts after 12-24-36 weeks.
But the asat/alat was showing good results after 3 weeks.
I am now on week 8 and the side effects are getting less. Side effects like cuffing,headache sleepless no appetite, are still there, but with the oil some are better. I have more of an appetite and I eat much better now, but the worst is the emotional rollercoaster.
I was a drug user in the 70’s & 80’s.
My liver stat’s are now normal for about 42 years!
I was young and dumb in Venice Beach, early 80s. I kept testing high in my liver counts back then but was told I had Hep C genotype 1b in 1995. I thought I would eventually succumb to it because there was no way I was getting on injections of Interferon, especially with my background. I thought the feeling of flu and the sight of needles would trigger me. I had biopsies done every 4-5 years and my viral load kept increasing. More and more fatigue. Twenty years later, in walks my miracle cure, Harvoni. This is what I was waiting for. I started 10 days ago. The swelling of energy is fantastic. It began happening 2-3 days ago. The whites of my eyes look whiter and my skin looks more even toned. My only complaint is I have to reprogram myself now. What do I do with this almost forgotten energy? It'll be interesting and exciting to find out. I'm finally looking forward to the future. Get treatment now, is my word of advice.
Well I found out I had Hep c genotype 1a in November 2007.. But I really have no way of knowing how long I have had it.. It’s been emotional nightmare for me..But God has certainly sustained me from having a mental breakdown from all the “what if’s”.. But actually there has been no real damage.. But the one awful thing that almost did me in, was the fatigue. It was like walking in cement. I was so physically drained. And my daughters and husband just didn’t understand it.. They just could not understand the depths of my tiredness. In March 2015 the doc’s office called to say I was approved for the new drug Harvoni. I’m on my 9th week. I had blood test 5 weeks in and it came back detectable.. But I knew the Harvoni was working because after 1 week my energy just came back that walking in cement feeling was gone.. I have had no side effects.. I’m feeling 100% percent better.. I’m so grateful and although I have 3 weeks to go I just know that the blood test will come back undetectable... But as I get better physically, my mind has not adjusted to my new energy.. I still say things like I need to rest for a lil' bit but really I’m not tired anymore.. It’s now out of routine.. I have been so tired for so long that I’m finding it hard to adjust to my new self..But I know I can get thru this. I thank God first and foremost and sites like this one who have help me by reading stories of others who have made it. And so very thankful for the researchers that found this new drug and all that made it possible for me to obtain it.. I’m so grateful!!! My life is being given back to me ...you all keep your head up and stay positive.. God Bless
My story starts 32 years ago, 1982. It's the year I was diagnosed with Hepatitis C, at the onset, I got very sick and weak, I spent over a week in the hospital recovering from the initial attack. I left the hospital feeling 100% better, however I still obviously had the disease.
At the time there were very little if any treatment options, I was told I just had to live with it, as many people live full lives carrying this disease. Jump to 30 years ahead, after all this time, I just felt myself feeling weaker and weaker, and I found it very hard to get motivated to do anything, I also noticed swelling in my belly area. I was at that point determined to do something about it, as I was hearing about new treatments that did not involve peg interferon. This got me very excited, but I was not going to start any treatment until a non peg interferon treatment was approved, even after a treatment of 3 different drugs was approved, the side effects were not something I wanted to deal with, so I waited until Harvoni was available and approved. This proved to be a very good decision, as I breezed through the treatment with absolutely no side effects at all. This was the treatment I had been waiting for, and it was well worth the wait.
I finished the 12 week regimen even after testing “undetectable” after 8 weeks, my doctor said it would be wise to do the full 12 weeks, so I did. I did the full 12 weeks, that was 3 months ago, I recently had a blood test and again tested “undetectable&”. I have 3 months to wait for my last blood test, and if I am still undetectable I will be considered cured. However a recent test showed F2 liver damage, not surprising after 32 years of having my Hepatitis C, but my doctor assured me that this is a mild form of damage, and if I treat my liver right, it should not get any worse, it isn't cirrhosis until you are an F4, so F2 is not too bad. I would recommend anyone whose insurance will cover this treatment to not hesitate, I am so lucky to have defeated this virus that's been plaguing me for so long. Good luck to you.
I'm 56 yrs old and was diagnosed with the Hep C virus 3 yrs ago. My Dr. found it thru a routine blood test. My liver enzymes were elevated. Another test showed HCV. I had genotype 2. I started treatment in the fall of 2012. I was on interferon and Ribavirin. I had a high viral load of 13 million. After 6 months of that treatment the viral load was down to 6 million. When I started the 2nd treatment the load was down to 4 1/2 million. I finished 3 months of Sovaldi with Ribavirin and just heard that the virus is gone!
I can honestly say that the whole ordeal was the worst thing I've ever been thru. I would advise against taking interferon if possible. It gave me huge panic episodes which were very frightening. I did get thru it with the help of my wonderful family. The Sovaldi & Ribavirin were much better and I'm glad I did it. Mainly fatigue, body aches, and nausea with that treatment.
It took time for me to feel like myself again after both treatments. I finished the 2nd treatment end of January and am feeling good now. I am careful to take care of myself- eat well, drink a lot of water, exercise and get plenty of sleep. I wish you well with your Hep C journey!
In 2011 I started treatment, Ribavirin and interferon. I did okay at first and then started to have severe skin irritation developed a skin reaction adverse and discomfort. First it was constant chapped lips. They were always cracked bloody and horrible to look at. Then the skin. I looked like I was infested with scabies. That's what the doctor actually thought and prescribed me a cream and a pill of some sort. That really caught up later I went to the dermatologist. I found out that it was a misdiagnosis by the doctor. That was a really weird situation… but that's a whole nother story. I'm just grateful that I am rid of the virus and that I just want to tell other people that they should go ahead and do treatment and this new treatment is incredible and they're so lucky that they get to do it. Just do it, live long, and love hard. I forgot 3 months in I was Anemic. I had to continue on Procrit which is a red blood cells stimulator and it was very expensive. For those who can get treatment, get this new treatment do it quickly. Live long and take care!
I started Harvoni on 4-26-15 and I can say so far I have no side affects.
I have just completed 60 weeks of combination Interferon, Ribavarin, and Beceprovir.
I have never felt so sick ever. I have lost 30 lbs. My hair lost all its strength. My teeth lost fillings. They came out. It was horrific. I got so ill and my bloods oxygen was so low that the nurse spoke with my consultant and decided to withdraw treatment but they gave me the final decision. As I was g1and 38 weeks in, I decided to tough it out. I'm glad I did as I was non-detectable at week 4 and completed 8 weeks ago non-detectable. I feel like a new man. I didn't think HCV affected my life until I cleared it and realized just how Ill I was. I get complements on how well I look. The only down side I have been left with patches of eczema on my back that Itch like crazy but it’s a small price.
I am a Hepatitis C patient from Nigeria and have treated it for 48 weeks. My treatment finished March of last year (2014) with the Viral Load of 6535 lu/ml coming to Below 43 lu/ml. My Genotype is 4 and the drugs I used was injection Interferon, Peg, and tablet Ribavirin 200mg. But unfortunately 5months after treatment I discovered that the Viral Load has gone up again to 89771 lu/ml and has continued to go up. The liver enzymes are also rising.
I understand that there is a new drug called Harvoni but very expensive. At this point, I do not know what to do because I cannot afford the treatment and need help.
Itchycoo Park- What did you do there? - I got high!
Man, the seventies ravaged many of us “Small Faces” who went to Itchycoo Park.
I was on 3 different treatments for Hep C -Geno#1. First 2 treatments didn't work. Tri Treatment worked! The one I was on was Telaprevir, Interferon, and Ribavirin. It kicked my butt, but it worked. Treatment was late in regards to developing Cirrhosis (compensated). Three months after 48 week treatment I had an ischemic stroke. Have right side deficiencies.
Hey, Rock Is (was) my life, and this is my song (B.T.O.) When the music was over many did not survive. I am very glad though that I survived, I have been SVR for 2 1/2 years now and the Cirrhosis is stable. Man, don't wait to get treated.
Hebrews 13:6 (NWT), be of good courage!
Be Altruistic, Get Treatment.
I have been diagnosed with Hep C 2 years ago. I don't know when l got this devil.
I finished treatment with Harvoni on April 5th. I did blood test to see if is positive or negative. It was positive. I did not check the viral load.
That means I am not cured? I am scared to go to the doctor. What can I do? Please help!
Hi everyone, I am a healthcare provider and I was just recently exposed to HCV from my mother.
As crazy as this may seem, I was popping an abscess on her back and a bit of pus squirted in my eye and caused mucous membrane exposure. I was overcome with anxiety because the pus probably contained blood and irrigated my eye consistently with a substantial amount of water. I was mostly upset with myself because being a healthcare provider I should have used goggles to avoid this situation from even happening. My mother contracted the Hep C virus after a blood transfusion after child birth. I also was born Hep C free even though my mother had the virus. Until this day my curiosity has led me to research as much as I can about HCV. I’m trying to find out how many reported exposures have been documented after mucous membrane exposure (eyes). I still have yet to find it. Also, I’ve been researching what cells other than red blood cells may contain the virus. My mother has often stated her case is minor. She has never had HCV medications prescribed to her and has yet to acquire liver damage from HCV. I have read everyone’s stories and I wish the best to everyone including myself. I plan on obtaining a blood test in the next 4 weeks to ensure I have not been infected. It’s a very scary and hard situation to deal with no matter how big or small.
Any insight anyone may have is well appreciated.
Best of luck to everyone who has HCV and many thanks for sharing your stories.
I was finally approved for three months treatment for Harvoni. I called the pharmacy to get my last refill and to my surprise I was denied. My treatment had been going super. A few side effects but a lot easier than expected. The insurance company said my gastro Dr did not send the right paperwork. Not really surprised. The things I wanted to know I researched on my own. I had no support from anyone in my Dr’s office.
Sorry to go off track. I went one week not taking Harvoni. I was very scared and worried about my treatment. After a week of pure hell I finally got my last refill. I am now finished. I feel worse maybe because of a week on phone listening to people passing the blame.
I was wondering if anyone out there has missed doses for any reason and if any did it cause any changes in treatment?
Thanks for any answers!
May God bless you!
In March of 2012 I signed up for a medical research study. The study was for 2000 volunteers who would be monitored for 10 years for cancer research. To participate I had to have a thorough medical so that they had a starting point for the study. During the extensive blood work, I was informed that I had Hep C Type 3. I was shocked to say the least. I had given blood at Thanksgiving in 2011 and now 6 months later I received this news. I did the 6 month treatment beginning in August of 2012. My blood count bottomed out in September but I held in there believing that I could make it even through the blood transfusions and being pretty much bed ridden. My hair fell out, weight dropped to under 100 lbs, blood pressure was hovering at 70 over 50. I was tested at 4 months and then again at the end of treatment. The last 4 weeks I cut my Riba down to half rather than quit but kept the Interferon dose as prescribed. I completed the treatment, tested clear and have been clear ever since. I still fear that it will return (I never really knew how I got) but have no scarring of my liver. My health before treatment was considered excellent but now I am constantly fatigued, on thyroid meds permanently and a suppressed immune system but I made it to the end. I am still in the research and think of how fate brought the silent killer into the open.
I am 57 yo female.
Feb '14 started throwing up blood, rushed to ER, cirrhosis and esophageal varices almost did me in. Found out I had Hep C Gen 1 from a blood transfusion in 1980 when my son was born. Never knew. Started Harvoni 8 weeks ago, my blood ct. was 14,550,000! Yesterday at follow up, I'm clean (0). NO side effects of med. Felt a little tired once in a while, that's it. All my liver labs are normal since taking Harvoni. But now I have to live with the damage it did. I'm healthy otherwise so hopefully I won't develop CA and my liver will regenerate enough for me to live out my life.
I got Hepatitis C around 4 months ago while injecting heroin. I stopped injecting heroin now and I don't know what to do; whether to start treatment. I don't know. Would anybody give me some advice?
Thank you
Alan
Hello
I am 71 years old from India. I have completed 48 injections of Interferon & Ribavirin tablet course on 20th Dec. 2014. I will be taking viral load test around last week of June2015 i.e. after completing six months time after stopping treatment. I have two questions:
01. If my result is positive then what should I do?
02. If my result is negative i.e. viral load < 15 then what should I do?
Eagerly awaiting your reply.
My story started in June of 1999. I was almost killed in a road crash. I was told had Geno 2 Hep C. My doctor said he will put me on treatment in December 2015 but really is too long to wait. No idea what to do. This illness has made me very sick.
John
Had a blood transfusion in the seventies.
This is how I contracted Hep C. In the eighties a blood test showed I had what medical community refers to as the non- A/non- B virus. In 1993 identified virus as Hep C.
I have had to deal no energy and just not feeling well although the Drs like to say most people don't even know they have it. I knew after that blood test. I've never felt well.
For 3 wks I'm taking Harvoni. The side effect is that I am extremely tired. After the 8 wk treatment will give a follow up report.
I am 55 yrs old. Contracted Hep C 1997 via a motorcycle accident. Person that hit us had used drugs. Hep C
I just finished Harvoni. I drank lots of water and coconut water. I would wait 2 hours after taking Meds to let my body get full effect. No food but drank 6 glasses of water in that time.
Never had any side effects. None
4 weeks into it, viral load went from 3 million down to 46. Liver Enzymes: 40 to 14 .
Progress . Yay ! !
8 weeks 46 to 12 ...and 14 to 12
Disappointed
And now I have hives on my back. Itchy as anything. Heat irritated more. Ie. Shower
Dr said I'm the second patient she saw now with this. I took Benadryl. (Children's, lol) only at night.
I'm am on no other Meds at all I do not drink alcohol never used any drugs.
Went for blood work three days ago. Just left Drs office. I still have it!!!
UGGH!!!
I have no history and no cirrhosis (before the pills) my liver aches now I don't get it. Going to another lab for blood work. Dr's orders. She is stunned also.
I will keep in touch.
I was diagnosed with Hep C back in 2000 and could have contracted it as early as 1980. I tried the Interferon therapy around 2005 and it did not work at all. It was dropping my white count and I was so sick I was taken off after 3 months. I have been waiting for a new drug that does not have the Interferon in it for years now.
I started Harvoni in Dec of 2014 and just finished in March of this year (2015). Prior to starting it I was getting quite sick. My weight was down to almost 110 on my 5'8 "; frame and I spent most days sleeping although I would still have days that were good and I would live life in fact even go out and sing with "the band "once in a while. Many people did not know I was sick but wondered why I was so thin and would remark that I "looked tired ". My viral load was 6 million and I have bridging fibrosis.
The good news is that I BEAT this sucker! My viral load is undetectable. After over a year of not being able to eat much of anything my appetite is back and I have gained 20 pounds! I have never been a drinker but will now celebrate with a very rare occasional glass of wine as I don't want to stress my liver. I am hoping the Harvoni can help with the cirrhosis as well as I have heard it can.
I am very optimistic that in 3 months when I have my recheck it will remain undetectable. This is a miracle drug and is worth taking in my opinion.
The best to you all as I know this is such a difficult journey not only physically but mentally and emotionally. There is a lot of stigma attached to this disease but we need to hold our heads high because we all deserve to benefit from the cure that is now offered from this drug to live our lives to the fullest. I know I was dying and now I am living Hep C FREE!
I just found put I have Hepatitis C last year and I am 31 years old, a little overweight and anemic but pretty healthy! I had an ultrasound and blood work done and I am not sure what strand I have but there is very little damage to my liver and it is very slightly enlarged! My liver enzymes are slightly elevated! I just got my health insurance from my job and my Hepatitis A and B vaccines! I am pretty sure my insurance will not cover any new and expensive medications so I will probably be on the dreaded interferon! I was on drugs for 8 years and clean for 3 years! I actually go to a clinic and am on Subutex! The way I figured it I have had this for about 6 years! After reading all of these horror stories I am pretty freaked out about starting treatment now lol! I already have thinning hair and have extremely low energy and high fatigue probably due to the Hepatitis C! I just want to know how bad everybody's side effects have been and what I should expect! I am also curious and hopeful about how long I will have to be on these meds? Hopefully no more than 6 months I was hoping since I am young and healthy it will not be too long! Is interferon a shot? Where do you do it at if so? Do you need counseling and constant monitoring and blood work while you are in treatment? The only symptom I think I had was SEVERE fatigue like my legs are made of cement and I cannot get out of bed and get tired even taking a shower!
In 1994, I noticed a lump in my throat. My doctor ordered blood work. The results showed that I was Hepatitis C positive, though that wasn't the cause of the lump.
I had never heard of Hep C. I was much more concerned with the lump. I put the news aside. The lump was on my thyroid. I had a partial thyroidectomy. I was relieved that the biopsy tested benign.
In 2000 a gastroenterologist prescribed the interferon/Ribavirin combination. I lasted on that therapy for 7 months. Then my blood count nosedived and I was taken off that therapy temporarily. My attempt to resume the therapy failed; My body simply would not tolerate it.
I tried peculated interferon about four years later. My body said no. I tried again two years after that and that attempt failed too. My current GP alerted me to the success of Olysio and referred me.
In November, 2014 I started on Harvoni.
I was diagnosed non-detectable for the Hepatitis C virus at the first blood test after starting with Harvoni, 4 weeks into the therapy. I am now in week #16 and non-detectable. The side effects have been negligible. Interferon/Ribavirin therapy was a nightmare. Harvoni is so mild it is hard to believe that it is working.
I am in awe. Harvoni has slight side effects. It works inconspicuously. I hope the result is permanent. If is a permanent cure, then Harvoni is a miracle drug.
I was diagnosed in 1993 after getting a horrible headache and stomach issues. At first I had three pos/neg then by 94 was properly diagnosed. I am not a drinker. I treated with everything I could find holistically with much research. I am an herbalist so doing these treatments has been hard to come to terms with! I am # 3 Geno and in the third stages. In 2001 I did the Peg with Rib for six months giving self injections 3-months into. My R/B count dangerously dropped. Dose was changed. I completed six months. Liver enzymes were almost nil but came back full force. I am 125 weight; 102 by end of treatment. I lost 3/4 of my hair but grew back thicker. I read a woman's post asking for feedback. Sense I have been riddled with body aches muscle spasms not in any one place, horrible stomach pain, fatigue, just in past 2 months my sleep patterns have been great. I was averaging 2-3 hours a night if I was lucky. So here I am after being told I have fibrosis two m/ ago and after six months of trying to get Sovaldi, Obamacare did not pay and I was turned down by two clinics that help people who fall thru the cracks. So yesterday my two week supply arrived. Today I started 400 mg Ribavirin at 9:00. Sovaldi at 6:00. 400 mg Rib 9:00.
I won't to live and watch my grandchildren grow up if I have any chance. I wish everyone a healing journey with the grace of God.
Cynthia
Age 54
Hi all,
I did treatment with Peg and Riba back in 2000 and did not respond. I then did treatment with Pegasys and Rebetol and ended up in looney ward. I then decided Peg/Riba was not for me and didn't want no nasty side effects from Incivek or Victrelis so I postponed treatment until now.
3 days ago I started Harvoni after a fierce fight with my insurance company, Support Path got me covered for free. The only side effect is a bit of nausea at night which I treat with ginger. I'm so happy to finally be taking a decent regimen but now I'm concerned about what someone mentioned in regards to mutation when one has geno 1a. I hope this isn't my case since I'm also co-inf with HIV. Other than that I'm optimistic and ecstatic.
I wish nothing but a cure for all my fellow heppers here. For the fellow with geno 1a perhaps Viekira Pak can be your chance at a cure. There's a lot more coming on the pipeline so don't lose hope. Beat the dragon!
I just feel this whole Hep C thing with me is getting SO old. Diagnosed 1996 - then in 2004 finally started the Pegasus 48-week series - I was 45.
First treatment: instant menopause.
Second month: heart palpitations (wearing monitor, etc)
Third month: OMG migraines!
Fourth month: WTF restless leg syndrome.
Can this get worse?....
Fifth month: started blowing up like a Thanksgiving turkey - Then the depression and fatigue, but YO! No 1a viral load - Whee.
So I lived through the 48 weeks - and then, guess what? 12 weeks later - IT'S BACK! But now I still had most of those side effects to contend with. I kinda gave up at that point - No new treatments available for awhile...Then the RA kicked in 3 years ago - first one foot, then the following summer, the other, now hands, hips, knees. Since I have Medicaid now, and have great reports from several friends about this new treatment - I'm going for it again because I HAVE NOTHING HEALTH-WISE LEFT TO LOSE. The biopsy was excruciating (liver) this time - terrified of the colonoscopy...and I keep thinkin': what's the point of this? What will be restored to my health? 57 now -
Just enjoyed my 60th Birthday with the Hep C I have had for over 40 years now. I am classed 1A, and yessir the disease does steal away your life, BUT awhile back when it was explained to me that I was somewhere around 10% liver function left working. I about pooped, and then I got smart about it. Tired of the Doctors drugs, and Interferon and Ribavirin after six months was doing nothing but increasing the viral load. I stopped it all, and I do mean I brought everything to a big screeching halt.
I knew it was time to seriously study what I could do myself to help myself.
I had blown up in weight to 4 pounds under weighing 400 lbs. I was having a lot of issues with breathing, and thought yeppers I am a dead man soon enough.
I stopped all the meds with my doctors monitoring me. It was certainly my call so I did it. I changed almost everything you could imagine that can be changed.
1. Diet was altered to just plain healthy vegetables, lean meats, NO alcohol of any sort, NO refined sugars, No Drugs, No garbage in- period. Meds have to be carefully selected as I refuse to harm my liver any further, or make it work any harder than I need to.
The weight loss was fantastic, and gave me tons of welcome energy. Caffeine is filtered mostly by the kidneys so a little xtra go-go juice helps when I feel totally exhausted, and I do get tired out pretty badly.
Through careful study and asking the medical world lots of questions I developed a program that works wonders for me. Here is what I take and do:
1. Two ibuprofen for the aches and hurts.
2. Two Acai berries twice a day to help as an anti-oxident.
3. One Zinc, (haven't had a cold in over twenty years now).
4. One Potassium
5. Two Magnesium
* I do take a liquid form of B12+ when I need to spend some serious energy doing something. Gives me energy for about 4 hours then it tapers off fairly quick.
I walk a lot, and keep a very positive mental attitude. Gall bladder had to go so that is now gone, so obviously fatty foods were out, but then I had already chopped them anyway, so not too big of a deal.
I have my down days, so I just simply rest as I can. After forty years with this disease, I still do not get the sores, nor have I turned jaundice yet.
My Dr once said to me that it is likely that someday I will pass from something other than the Hep C, and that it is possible to live with only 10 percent of my liver functioning. Guess what? I'm still here, and doing pretty good all things considered. I still chase my hobbies, and love those around me. Keeping a positive attitude is what I think helps the most, and then think and respond to your bodies needs in a most healthy way, and then enjoy life.
Perhaps a transplant might be in my future, either way I'm happy that I am in control. I will keep you all in my thoughts and prayers for healing, as well as for joy in your hearts.
Your Ol'Bud
Tomboy
P.s. Chase your dreams and make them happen, and if you have folks in your life that you adore and love then make certain that you tell them often.
I contracted Hep C about ten years ago. I was a drug user at the time, but I had never used needles. My boyfriend at the time did; however, and I assume I contracted the virus through him. I was diagnosed with genotype 1a and my Dr told me not to even bother with treatment. I was 19 and he said it would put me through hell and probably wouldn't help me at all.
This December my Gastro Dr told me about Harvoni. I was so excited. I have insurance through the VA and wasn't sure how it would work with the copays and so forth, but one of those Hep C programs picked up my copays up to $10,000 and I did not come out of pocket for any of the treatments.
I took the pill daily. The first two to three weeks I was completely exhausted, but I guess my body adjusted to the meds and I regained my energy. There were still some days, though; that I was unnaturally tired and would go to bed at 7:00, but that's a small price to pay for a potentially life-saving medication.
I was told the treatment would take 12 weeks and I would be doing blood work before starting, and then monthly until treatment completed, and follow up blood work three months after. I was told most patients would see a significant drop on their viral load after the eight week mark, so I was completely shocked at my four-week appointment when I was told Hep C was undetectable in my blood. I had to get up and look at the doctor's screen myself. I just couldn't believe it. I was beside myself. I have recently completed the final treatment and I'll have to do blood work again in three months to be sure the virus does not come back, which my doctor assures me it won't.
God is good. Every step of the way, He has helped me through this. I am so appreciative of my healing! I feel like I have a new start and a fresh chance at life! I want to be an organ donor! I want to donate blood! I want this healing to go beyond me and to reach others! There aren't words to describe the feeling of knowing the disease is beaten! It was always in the back of my mind gnawing away. I had gotten something on my hands once which turned part of my palms yellow and I thought I was dying and going through liver failure at the age of 28. I have feared so much and have been ashamed many times. I kept my diagnosis from many people, and now I want everyone to know! I have been telling people now of the diagnosis just so I can tell them about the victory!
My story:
Drinking alcohol is a No No.
Take only medicine that's needed.
Stay away from animal protein- complete vegetable diet if you can.
Juices at breakfast, lunch, and dinner.
Stay on top of your medical records.
Lab work- check for errors.
Compare previous blood work to the present.
Seek more information and don't use any drugs with acetaminophen, or Opioids.
The Hep C can damage your kidney and arteries.
I had hepatitis C of the worst kind. Genotype 1 and my count was 13000 when I got sick. I'm here to tell you I am 100 percent cured. It is gone.
Now this is my story and advice.
I went to a specialist in treating Hepatitis. Oh, and I took milk thistle. It helps your liver. So take milk thistle and do not take iron. It's in multi vitamins. They have them without iron. Do not take Tylenol or drink. I drank 8 glasses of water every day. Put Crystal Light in it. You must do this to recover. All advice from my specialist. Stay away from trials. Interferon is what works. Don't put your body on trial and expect results. I smoked pot for nausea and it worked for me. I felt like a sinner because I used on Christmas Eve and that is when I got Hep C. So I wanted forgiveness and believed God would forgive me. I never let my thoughts believe that I would not be healed. I knew that one year of suffering was worth saving my liver. No back and forth. Once I started the medication I kept taking it. Yes it was hard but somehow acceptance was what helped a lot. If you have the flu you accept it. This is no different. I tried to work for the first three months then I couldn't keep up so I gave myself permission to rest. How can I heal if I don't rest? Your body needs rest. I went to a church group once a week. So take one night or day to be around supportive people. Uplift your spirit. So important. Then I watched comedies to fight depression. It made me laugh, good medicine. So nutrition and HOPE. Do not doubt that you will get better. Claim it and don't fight being sick, accept it. What is a year compared to the option of having a liver? Why fight against it. I would not be here if I had given up. It's okay to be sick. If you will be healed. Faith one day at a time. Milk thistle, no Iron, Tylenol or alcohol. 8 full glasses of water. You can do it. I suffered but my liver is good. I hope this helps!! :-) :-)
l got infected 10 yrs ago through drug use. l was a heroin user [injecting] 5 times a day with crack in the mix. Now l am 12 weeks into the interferon + Riboflavin treatment with 12 weeks to go. It's really horrible. l can't sleep even with sleeping tablets, brain fog, l get tired easily, and l also get angry so quickly, l hope this treatment works and cures me coz l want 2 slay this ugly a**ed dragon!
The doctor has been telling me I have Hepatitis C.
I have severe pain and can't push on liver.
No treatment scared of it.
Well I'm 69.
Probably contracted Hep C some 30 yrs ago, or so. Last year did Olysio and Sovaldi.
Was "fortunate? ". Got the meds at no cost. Had an ultrasound and blood tests at the start. Ended 12 week program with undetectable viral load, started at 2mil+. Now 6 months, waiting for viral load results, but all else indicates no virus. BUT now my liver is hurting, tests show sclerosis, need to find out to what degree, F2-4.
MY QUESTION NOW IS DID THE MEDS SOMEHOW increase the "volume" of scar tissue?
I believe and try to live eating healthy, no drugs or alcohol. Now I am not sure if I rushed into the drug treatment, maybe should have tried a more holistic approach. I would like to hear back from Olysio/Sovaldi folks and how your liver is doing.
My dad told me before he died that once you step into the theater of conventional medicine there is no turning back, because the unknown side effects keep piping up.
My email: pjspartanrider@gmail.com
Started Harvoni and had no trouble getting meds. Never did I have a side effect. After less than 28 days on meds retook blood. No evidence of virus found. A miracle drug. Hope there will be no after effects years down the road but for now I feel and look like always but then again I never felt ill from Hep C. For those that have effects it may all be in your makeup to complain.
I am a 45 year old man who no longer has HPVC!
I just had my second 6 month check which is all good news! My Doctor told me again that I am a rare individual and very lucky. I wanted to share this as I believe I have been leaving with this disease for more than a decade before being diagnosed. I was a very heavy drinker up until I was diagnosed. I mean a lot. I quit pretty much on the spot and started researching the disease more. I have always been fairly active so I approached the mental game with fitness to help me sleep! I couldn't do this unless I fatigue the body first.
Second I stopped eating red meat (beef). I will only eat lean pork, chicken, turkey and fish with 5 servings a day of carrots, broccoli, and green leafy vegetables, raw not cooked or seasoned. Every morning I would eat honey nut Cheerios with a quarter cup of blueberries or some kind of berries every day. I dropped 40 lbs in less than two months and I have kept it off for 2.5 years! This is how long it took me to finally see the magic pill finally work and I have told myself it can't hurt!
I have a wife and two children with a good job were people have to count on me! I know other Hepatitis C victims and they all thought I am nuts. I only look at my liver and choose foods that were not hard on it or over worked to cause stress to it. My liver has a stage 2 liver damage almost a three and it does not ache or burn like it used to but I can never forget what caused it! I will keep living a healthier life style and I enjoy ice cream and Dr Pepper as my outs! Sometimes I over-indulge but I pay it back later!
I was diagnosed 25 years ago with Hep C just prior to my wedding when I did a blood test for life insurance. I was told by my first Gastroenterologist that I had a year to a year and a half to live. Well 2.5 courses of interferon later (couldn't tolerate Ribavirin) which appeared unsuccessful at the time. L
Last treatment and testing was 20 years ago.
I am still here and healthy. I am not a drinker or drug user and take reasonable care of my health. However, living with the Hep-C " the Sword of Damocles " hanging over my head has had perhaps a positive impact on the way I live and experience life. The 1st symptom I have that I feel is Hep-C related is constant fatigue. Because of this I went to a hospital here in Thailand for blood work re: genotype and viral load to see if I am a candidate for Harvoni. I will get the results next week and if I am still infected I will explore buying generic Harvoni in India.
WALKING MIRACLE. Contracted Hep-C in 1978 through blood transfusion. My life has definitely been a struggle. There are too many events with my physical decline to tell about..but here is my greatly consolidated timeline:
1984 - Identified Hep-C as GT1a.
Went through 3 different clinical trials within 6 years and no luck defeating virus. Always returned with a vengeance. No other trials available for someone with my history of failure to respond. Many years proved how Hep-C can ravage the body....no hope only depression and anguish over what my family had gone through watching my decline.
December 2010 - Liver cancer - 4 tumors - 6 months to live.
March 2011 - Liver transplant (within 13 days of being placed on transplant list).
2012 - Metastatic lung cancer. Successful radiation eliminated cancer in lung.
Feb. 2014 - Began Harvoni/Ribavarin to cure Hep-C
April 2014 - HEP-C VIRAL LOAD UND...!!!!! Hopefully remaining so for the next 6 months to be sure.
Sooooooooooooooooooo relieved after 36 years of my body and mind battling this disease, it's finally over and I WON.
Message to everyone...HANG IN THERE AND NEVER, EVER GIVE UP.
I need help badly. Co-infected 8 years ago.
Took 2 years of treatment with interferon to clear the virus. My treatment was a nightmare. Heavy depression. Now, 6 years post treatment, I still get severely depressed. I say it's chemical induced and the VA says it's a head issue.
Question: is it possible to suffer depression 6 years post?
I need help please.
I really need some support
I went through the Pegasus, Ribavirin, and even Victrelis, in 2013 and had 2 negative blood tests but about 1month later the blood test came back positive, so I still have it. I am geno type 1a and apparently the hardest to treat.
I have some questions:
1) What condition is my liver now after putting all those very strong medication in there?
2) they have discovered another new thing with people who are my strain, 1a, the reason the treatment did not work because some of us with this strain have a mutation ,as my specialist called it and when on treatment it hides and after the medication they come back. I live in Ontario, Canada and my blood has to be sent to British Columbia to see if I have that. Apparently they just discovered it last year, that is what I was told. Has anyone else been told this or knows anything about it?
I am terrified to take any more experimental drugs to find out years from now that it has caused something else.
THIS IS A NEW DISEASE AND I HAVE HAD IT SINCE OCT/85, but they only started testing in 1992. They have had such little time to study this disease and are still finding new things about it. Like the mutation that only some of us have, why?
I would think twice about getting treatment , find out , if you are geno type 1A then get your doctor to do the test for the mutation because u
You will go through 6 or 24 months of hell for nothing. Please listen I know because I am going through it now and do not want any medication till they tell me how my liver is now.
Things to talk to your doc about. I am at 30 years and this is when it supposedly goes bad, I already don't eat, but don't lose weight , I eat every night and I have to smoke a bit of pot to get me hungry which I do not get legally. Lucky charms with nuts and Smarties, everyday now for about 7 months but none of my docs seem to think it is a problem. I have lost all my taste for food, I will cook it but not eat it. Please is anyone else going through this or is it just me losing my mind?
I' m New Here and I Have Humana Medicare Advantage PPO in Virginia. On SSDI For Bipolar I + Psychosis and I Doubt My Liver Is Very Damaged At All Because I Contracted It So "Recently". I want Harvoni NOW-- BEFORE The Damage Happens!!What Do I Do!?!?
I have a Medicare advantage plan through Humana with Part D coverage--Humana Gold PPO. I live in Richmond, VA and I see a hepatologist at MCV/VCU medical center. I'm 35 years old, but you'd swear I was 22, and the child inside this man's body is scared sh*tless. I have Hepatitis C 1a. Through some insane brainstorming, me and my PCP pretty much narrowed it down to I probably caught in 2010. My AST is 66 and my ALT is 125, the test prior had my AST at 206 and ALT at 306!! My viral load is 8 million. I really love my doctor and I know he's going to do his best with his team to get me onto treatment ASAP. I trust him too--he did his Hepatology residency at the mayo clinic...so at least mentally I feel like I'm being well taken care of. I need more blood tests and a fibrosis scan he tells me before we can try to submit for insurance. I have no doubt he will be putting me on Harvoni--we spoke about it. I already suffer from severe bipolar type I depression with psychotic features, so interferon and Ribavirin are out of the picture right now anyway. Because of that condition I am on social security disability (SSDI) and I make less than $1200/month BEFORE any medical premium deductions. I'm hoping "mysupportpath" can get the monthly co-pays down to something I could handle. I'm not even sure they'll deal with me since I'm partially insured by the govt. (Medicare advantage) *shrugs*
Because of my income, I get from Medicare an addendum to my coverage what is called "extra help paying for prescription drugs" this makes it so any Medicare covered drug if generic is $2.65 and if brand name it'd be $6.95. Of course, I do not know how much Medicare "help" would pay for what is called, if Humana approves me, a "drug".
I'm wondering if anyone here has been in a similar situation and knows what would happen in such a scenario, or if anyone here knows anyone who's been through a situation identical to this, or maybe yourself. I would greatly appreciate any information. I just found out I was sick in December and, I have to admit--I'm just really scared. Have been doing lots of crying. My younger brother has cerebral palsy and my mother is just turning 60. I'm going to need to be here to be a caregiver to a certain degree at some point--I can't be suffering the physical and mental issues from chronic HCV--already feeling the "early" symptoms, albeit in my head they just may be. Hope so, I have killer anxiety and am already something of a hypochondriac.
Again, I live in Richmond, Virginia, btw. I don't know if that has any bearing on how Medicare and advantage and part d work in this region as opposed to any other, although I HAVE heard of the majority of patients being approved for Harvoni are with Humana, as their Right Source mail-order pharmacy made some small deal with Gilead; I believe Cigna did as well.
Anyway, sorry for my rambling. I'm just--as I said--scared. All I've been doing is sleeping, trying to forget I have 8 million little viral bastards trying to eat away at my liver and I can't do anything about it right now.
Luckily I hate alcohol, and I've been eating lots of greens and fruits, as well as milk thistle supplements and lots and lots of water. Always tired to the point of basically being comatose, never hungry, and dull empty pain in my gut. Maybe the physical symptoms are psychosomatic, but who knows? Probably a little bit of my body and the remainder in my head--anxiety for me takes mind over matter to an entirely new level--ESPECIALLY when it deals with my body. Any weird sensation or strange noise/gurgling--I'm online scaring myself almost to the ER.
I guess I'm just looking for some advice/info as far as dealing with insurance companies' Rx approval departments. And also, I guess, help dealing with being denied. I'm all new at this. I thought I was young and invincible. I'm neither and I could really use some kind words of experience and maybe some online like-situational acquaintances....josh. :-)
p.s. I guess the advice is vital, but the support and kindness is appreciated and will definitely be reciprocated.
35 years old
HCV 1a--likely contracted between 2007-2011
Viral load: 8 million
AST:66
ALT:125
(fibroscan on next visit--in about a month)
On day three of Harvoni, so far just tired but not sure if its daylight savings time. I have Hepatitis C, I have had a case of Ascites but fluid has been removed but on diuretics. Since starting Harvoni I have been going to the bathroom more. Not sure if it's the diuretic or the Harvoni adding to it.
I went thru the Hep C Interferon -Ribavirin- Incivik. My Hep C came back after 22 weeks. I then went on Sovaldi and Olysio for 12 weeks. It has been about 6 months and not a trace in my system. 12 is my viral count.
Hi. It is my deepest hope to find a miracle cure, something that will help me to recover from successful Hep C treatment!
Yes, I'm grateful to have finally cleared Hep C after the second attempt!
Seems though, that the 72-week-long course of Alpha Interferon/Ribavirin that it took to clear the virus left me with a body that's now wracked with chronic pain and fibromyalgia-like symptoms. (mainly widespread myofascial pain, brain fog, depression, insomnia, and mood swings.)
I strongly suspect that the symptoms I now experience are long-lasting (permanent? God, I hope not) effects of the course of treatment I did to eradicate Hep C. The pain, cognitive defects, and unstable mood are adversely affecting the quality of my life. I have goals and and dreams and things I want to do in life, and being debilitated and in pain is getting in the way!
If anyone has suggestions of where I might turn or a course of action I might pursue to find relief, I will be extremely grateful.
With Gratitude,
Jen
Like many I got out of the service with a drug problem that only got worse when I started using needles with other people. Before I knew it, my skin was yellow; my eyes were yellow, dark urine, very sick. Went to VA hosp back in 1972. There were no drugs or cure but rest and diet. After months I got better and for years I seemed to be ok. Now at 65 I feel like I'm having a relapse. Not full blown. Yellow eyes and very tired all the time. When I retired and lost my HMO insurance. I had to go to the VA and I tested positive for Hep C 41 yrs later. After reading that so many other people that have same problem I guess I will get tested again but after hearing of the side effects I'm not sure I want to take the new drugs that are out there now.
I did post before here stating I was denied Harvoni treatment for Hep C 1a because I wasn't sick enough. After I got a hold of my Senator and stated "Why do I have to become sick and liver damaged before I can get treatment?" Makes no sense. Well the VA sent me a letter saying I was approved. What a shocker, huh? I got the 12 wk treatment and within 30 days I tested 100% clean. I have had NO side effects. I'm on my last 10 days now. God I hope this works. By the way the VA has been great to me very caring. Maybe after the Senator was involved, lol. The decision as to who gets treated and who do not get treated are made by the people you don't see. But you still have to fit the treatment profile. No drinking, no drugs. I fit the profile from the very start. Good luck to everyone.
Hello,
I'm sure I got Hep C when I experimented with drugs when I was eighteen years old. I am now 62. I found out I had Hep C when I had a physical at 50 years old. So immediately I wanted this out of my body and tried the Interferon treatment with no success. But OH MY GOD! I have been beat up, run over by horses, broke both arms, left leg, nose and ribs so I thought I had felt pain before. The only way I can explain Interferon is like sitting with the devil. I am now on my eighth week of Harvoni. The virus was undetected at 4 weeks. The only effects I feel are a slight fogginess two hours after I take the Harvoni which goes way. Then about eight hours after I take Harvoni I will have a slight dull headache which is cured by a cup of tea with two teabags in it. Other than that, this is like eating my Granddaughters gummy bears compared to the Interferon. So to all of you that have to go through this, no worries, just take your pill and drink lots of water. I thank God to be given this second chance.
Hi, on day 7 of Harvoni and NO side effects at all! OMG, great!
Just a follow up.
Got some blood from operation in 1985. I think that's where I got Hep C but I was in Vietnam 1970 so... Anyway never had any idea. Drink tons. Went to VA for health benefits. Blood work showed Hep C, geno 1a, load 6 mil. I chose to wait since I had no problems.
I still drink heavy, as did my brother. I told him. He got tested had type 1a. He also never had issues. He got a biopsy, no damage. I chose not to. I don't like the idea of doing it. When Harvoni came out I signed up still had no problems. VA checked again before letting me have Harvoni. This time viral load was 3 million. I asked why it went down? The doc said my body was fighting it off. I really don't buy that. Cut in half? No. Then he told me to wait for 6 more weeks. Ohhh... so that's the way it is.
Anyway, since I am 100% SERVICE CONNECTED (Vietnam) I said I wanted to start treatment now, please.
Today is day 7 and no side effects at all. None.
I wish everyone good luck. May God bless us all, the USA, and most of all bless and take care of fighting MEN.
Howard H
I found out I contracted Hep C 3 years ago due to IV drug use. It was devastating to me emotionally and I was noticing the symptoms worsen liver pain, night sweats, and terrible bouts of fatigue. I am a veteran so I receive healthcare at the VA. They started me on the treatment called Harvoni for a 12 week cycle and after only one month I was showing undetectable for the virus I am now 2 months post treatment and I do blood test once a month and my last came back undetectable.
I am so thankful to have been given the chance to receive Harvoni treatment through the VA because I could not afford thus wonderful treatment otherwise. Stay strong and know you are not alone and there is hope don't beat yourself up like I did for my mistakes it is a beautiful world out there!
Please help.
I'm in my 8th week of Harvoni. I thought I was off to a great start, and then the rash started, and then blisters. Scratching to the point of bleeding everywhere but my face.
My doc says no one else has this. I haven't slept. I feel like wasps are stinging me. I've tried so many things. I'm afraid it's a sign my liver is shutting down.
I have stage 3 geno 1a.
I'm 60 years old. I was a bodybuilder and runner. In the last 4 months I've watched my muscles go away. Don't have a lot of family. Work as a realtor on commission so I've taken a minimum wage job to make sure income is coming in.
Please help me. 4 am- can't sleep my body is red and looks horrible I feel I'm being taught a lesson.
I don't want to be around people.
Thanks in advance.
Hi,
I have visited the clinic for a periodic checkup,
My HCV, showed positive and then the doctor did another test. It should non-reactive and the doctor told me that the percentage was 0.1555.
Can someone advise on this matter
Regards,
Ali
I was diagnosed with Hep C genotype 4b in 2014. Viral Load of 2000 mil/u.
I am on week 10 now on Rib and Reiferron. I have no side effects at all. I do not feel like I'm taking meds.
Can anyone help me, how long will it take to treat my Hep C?
I'm on week 7 of treatment. My hair is falling out. its long so I'm going to get it cut. I have an unbearable itch 24/7. I've been told its raised Bilirubin levels because of the pills. Anyone have any idea how to stop it? I'm going mad with it. Thanks.
Geri
I am a chronic sufferer of the Hepatitis C virus. I live in Central Africa, where people are not very open about this disease, or its effects on neither its sufferers nor their families. I went through the Ribavirin/Interferon combination treatment for 48 weeks April 2007 to February 2008. After the treatment the virus was undetectable, then 6 months later I tested, and the viral load was right where it was before the treatment. Today, I hear about this new treatment with Harvoni, and I am wondering whether at 57 years old, and the high cost of this new drug, if this is the right time to undergo another treatment? If it is, how long will this treatment last? Since the treatment, I regularly cleanse/detox my liver with weekly Robusta Coffee Enemas and I sometimes do a 60 ml Organic Castor Oil enema an hour before the coffee enema. My diet is more vegetarian to about 70%. I exercise for an hour 5-6 days a week, and for 5 of those days I add 30-45 minutes of Yoga, and 15 minute of meditation daily. I have not looked more radiant, not felt well in a very long time. My BMI is 24.2, and Green teas are my preferred hot drinks. I do drink 1-2 glasses of Red wine during meals very, very sparingly. Any advice from someone out there who understands exactly what I am talking about?
I was told that I had Hep C in 2003 and from that point on I attempted to treat myself with liver aids and vitamins and most of all remain drug and alcohol free. Which I have done up until a few months ago when I decided it was time to get the real facts and go to a doctor and have lab work done and low and behold my Hep C I was diagnosed with came back UNDETECTABLE!!! I ask why and was told my bodys immune system actually fought it and by not using drugs or booze and eating right helped out tremendously so all I can say that I was blessed. I know the treatment they have now is great because I have good friends being treated now and coming back undetected after 7 weeks! So get help!!
Hi there,
I am in my 3rd week of taking Harvoni and experience a headache every day, for about 5 hours after I take the pill. I realize that my side effects are nothing compared to those who were on the interferon, but these headaches are really getting to me. I only have to be on the Harvoni for 12 weeks so I am going to tough it out and with God's help, I will be cured of this darn Hep C.
Blessings and good luck to everyone.
I am the mother of a beautiful 29 year old daughter who contracted Hep C approx 2-3 years ago. We do not know how she got it, but here we are and well you know the story.
I want to tell you we have NOT done ANY conventional treatments at all. Because she was so sick and weak it would have killed her to do interferon and NOW we are waiting to see how the HARVONI treatments are turning out since it hasn't been on the market that long. For those of you who need to get the virus off of your liver fast. PLEASE WATCH THIS TESTIMONY OF WHAT WE DID...
TEST RESULTS INCLUDED. Still has virus but is off her liver...see below
https://www.youtube.com/watch?v=9L6ujhjUeeY
My daughter also had chrones and ulcerative colitis and this is how she got cured!! see below
https://www.youtube.com/watch?v=ooU68vTLwrQ
God Bless
Penny
In 1998, my wife and I donated at a blood drive in our neighborhood. We were contacted by the blood people we had Hep C. We researched and went to Dr. specializing in the disease. He misdiagnosed us as 1b, not his fault that was the limitations of testing back then. We are both 1a. Neither of us showed symptoms and seemed to tolerate the virus, so we denied the interferon treatments available at the time. They seemed worse than the disease. I did liver biopsy and stayed up to date on new drugs coming on-line. Through the years and annual check-ups, my glucose levels kept on climbing. Until last year I was at 180. When the Harvoni treatment was approved (2014), my Dr. applied to insurance company and we were denied. He would not appeal because he said it would do no good. When the Abvie, Viekira Pak was approved, I immediately applied and was approved for treatment for both of us. We have been on the Pak and Ribavirin four weeks. My wife, who had low counts about 1.2 million is progressing very well. Her Liver numbers are perfect and she feels great. I'm struggling a bit. My glucose has spiked to 292 and I have difficulty breathing. I am on a no carb diet and am forcing myself to exercise. So far that is helping. My counts were over 9mil. I am hopeful that ridding the virus in my body will allow the liver to process the sugars and work the way it's supposed to. We are very lucky to have the new cures that are available and that the prices are coming down. I still wish we could have gotten the Harvoni treatment. I believe it is the superior drug with fewer side effects.
I gave blood through church in 1988. My response was I had Hep B antibody, which is a good thing in a way as I could never get it again. Also had something else, which later turned out to be Hep C chronic. Must have gotten both when I received blood products in a base hospital when my husband was in service in 1953. I always had to work and had 2 children. Was tired always, but my husband convinced me I was an over achiever. Was diagnosed with Osteoarthritis at 35. Have worked out most of my life and it has not been easy. In 1990, I went to the University Of Chicago to be part of the testing to test for Hep C. Not long after that I learned that that was the other thing the expected when I gave blood in 1988. Had a liver biopsy and it showed minimal damage. Have elevated enzyme levels but have kept them stable. Went to a specialist, also joined the American Liver Foundation. Specialist released me to my doctor for yearly tests but before he did I learned my viral level was over a million and I do believe I am a geno type 2. Learned about all the vitamins and herbs that were good for me and took them faithfully. I was never a drinker so I never drank for many years. I will be 80 this summer and I would like to get the new pills that are out as I want to be free of this once and for all. I believe my vitamins, milk thistle and lipoid acid kept me going. Have Osteoporosis now, but still work out as best as I can. I believe my strong faith trusting God would lead me in the right direction. The only medication I take is for blood pressure. I still am tired all the time...also I have always had nausea, which I have taken papaya enzymes....which seem to help.
Hello, my name is Tamera I am 54 years old and have had Hep C for about 25 years. I was approved for Harvoni 12 week treatment 2 weeks ago, $0 co-pay and am on community health plan of Washington. I feel blessed and am very grateful since they tell me each pill costs $1,125. I couldn't even afford a co-pay if they asked. I am getting the headache every day and end up taking Tylenol for it but get very little relief. It's better than the side effects that the other cures cause but it is really getting to me. I have seen others going through the fatigue and nausea that the interferon caused so I realize that I don't have it too bad. I'm just a big whiner when it comes to being sick, sorry. I am grateful to God for providing me with this and I suggest that if you have Hep C, go get checked out ASAP! This is not something to mess around with. Harvoni is amazing and there are very few side effects. Remember to give thanks to the Savior Jesus Christ and ask him to bless the scientists for all their hard work and all the health care workers involved in getting this medication to us. Blessings to all.
I am 25 years old. I was diagnosed with Hep C in September 2014. I cannot pin point how I contracted it. I have experimented with lots of drugs (never with a needle though) and have gotten tattoos and piercings (at all reputable places), have been extremely promiscuous in the past but there is not one single incident I can blame because I truly don't know. I found out I had acute hepatitis after my liver started to fail. It was all very scary. I am waiting to be approved for the treatment, but so far, I have not heard anything back. I keep reading posts about how it's difficult to get treatment approved from insurance companies if you have a low viral load (which I do.) But I am trying to stay optimistic because I truly think that helps in healing. I got sober from drugs in October and my liver enzymes have since gotten back to normal. I am no longer having liver failure. My symptoms so far are anxiety, extreme fatigue, and having upper right pain. I have switched my diet to mostly healthy (I'll still have a piece of cake sometimes!) and have started to do yoga. I try not to focus on my disease and limitations at this moment in time, since I am in waiting approval/coverage limbo and there is nothing I can do in the meantime. It still consumes my thoughts though and I worry myself sick. Your stories help me confront mine, and comfort me at the same time; thank you.
Just finished my first week of Sovaldi plus Ribavirin 800 mg. 11 weeks to go. Side effects are not too bad so far - itchy, poor sleep. Already had those. I finally got old enough to start on Medicare. Age 65, geno. 2b, F2, vl 126,000. First got tested 10 years ago. Liver function tests have been in the normal range. Probably had this virus about 40 years. I feel grateful to finally be on treatment! Thanks Gilead! Looking forward to shorter treatment times, lower prices, and generic options, so everyone can get tested and treat.
My excellent hepatologist retired so I found a great nurse practitioner who has been treating lots of people. I did feel discouraged in November when she said that Medicare was only covering F3-4. I was thinking of possible ways to get the drugs, traveling out of country, etc. Had seen the movie Dallas Buyer's Club. I've been self-pay most of my life so I'm used to shopping around for drugs and lab tests. Found a friendly less expensive lab that usually has no one in the waiting room and I can go back in a few days and get copies of the results. I went ahead and got all the necessary labs drawn and went back to the medical office in January. Heard from the specialty pharmacy in 3 weeks that I was approved! Co-pay about $3900 (not sure if this is total or per month?) which I would have paid from savings, but the Patient Assistance Network (PAN) covered all of it. They didn't ask for any paper records like tax return, just asked me what my yearly income is. Humana transferred me to a different specialty pharmacy, and some of the necessary info wasn't transferred, but I was able to fix that and keep things moving with one phone call. So you need to be proactive, write everything down, who you talk to and when, keep a file with all copies of your labs, etc. Don't give up, keep the faith, perseverance furthers! Took about 5 weeks total after application to actually receive the drugs.
My best friend from high school who is still my best friend and who had geno3 cleared last year after 24 weeks of treatment. Another dear friend geno1 just did 12 weeks treatment thru the VA and the results are looking very good.
My little brother who had geno1 went through 48 weeks treatment in 2001 but relapsed. He never stopped drinking, even during treatment, and died from liver failure at age 51, 10 years ago. I was the only one with him in the hospital when he passed. Those last few months were bad, we were mad at each other and I felt like I was living in the movie The Shining at times. Due to the Encephalopathy he would sometimes forget that he was mad at me.
Eat lots of fresh fruits and vets and drink lots of water, take walks, do whatever you need to take care of yourself, and good luck to everyone!
I am in my fifth week of treatment with Harvoni and my lab results show I am negative for the Hepatitis C virus! I still have the remainder of the twelve weeks to go, but I am elated! After over 30 years! I haven't really been sick, other than a few headaches and feeling a little tired but not enough to slow me down.
I read that the cost for the generics will be so much less expensive, so soon most of us will be able to receive treatment. Thank God!
I stopped the new treatment in September with no detection in my blood work.
I've been very happy for 6 months. I have a blood test in March.
Can anyone tell me why my hair is falling out? It's all over the floor. I brush it and it comes out. 10 to 20 strands each time. I have lost more than half my hair!
I was 18 when I contacted full blown Hepatitis C through drug use. I had yellow stool and red eyes and rash on stomach. I was very ill for a couple of months. I've was given a Gamma Globulin shot and I would have symptoms a couple of times. Through the 20s and 30s I was not a heavy drinker so I stayed away from alcohol all these years and I never took over the counter pain meds or aspirin except when in bad pain. Then only 20 mg's at a time. Everyone said one won't hurt but if I drank or took Tylenol I would get the rash on belly. So I stayed away from it. When I was forty a blood test said I have it but the numbers were too low to treat with new drugs. That's great. I am now 61 and I had a test again. A Hep specific test that showed I am Hep C free. It is no longer in my body. My blood is free of it. I never received any treatment for it.
Hey,
I need to write this down and tell you honestly what this disease has done to my life.
I experimented with intravenous drugs when I was 15-16 and I also got a tattoo when I was 15 but I believe it doesn't matter how you got it, it just is what it is. No judgments. I found out in 2000 I was infected through a routine physical. By the way I was doing cocaine and drinking like a demon at the time. I ignored what I was told and when into serious denial. But I had to think of my children, I don't have the strength to help myself but for them I would do whatever I had to. I cleaned up my act and had my kids tested, both negative and to me that was a sign. My viral load was low at the time so they said to wait for a less hellish treatment. In 2010 my viral load went way up and it was time to treat. It was Ribavirin and interferon once a week. I started out well enough but when I look back now, I had completely lost my mind. I stopped being a compliant patient and started injecting Ritalin and morphine which I had never done in my life. I really believe I was very mentally ill but didn't tell a soul. My husband caught me and that was that. I would not lose him so I stopped. I had gone off injecting about 10 times when he found out. Needless to say I never cleared the virus and this was a very low point in my life.
So Doc said we would wait for Incivik to come to Canada and also to be funded by the government. This happened in 2013 so in September I went into round 2. I was very much more prepared and understood what I was in for. I asked my Dr for antidepressants and sleeping pills right off the bat and also for prescription antihistamines for the allergic reaction to Ribavirin. My husband also watched me take my injection and then got rid of the syringe so it would not be in my face or make me want to f*** up again. I did 48 weeks of pure hell!!! All my hair fell out and I had every symptom there was including blood transfusions. I am six months post treatment and clear of the virus. I appreciate life and have joy in my heart every day. I literally could not have done this just for me; I did it because of my husband, kids and 3 grandchildren who are the light of my life. Sometimes I still don't believe it's gone, I can't explain the feeling it's like you had something for so long and you can't quite believe you don't have it anymore.
I'm getting a tattoo on my leg next month which will have a dragon and a warrior looking woman with a sword. The script will say ''Dragon Slayer '' because that is what I am. With all my flaws and bad decisions in my life, I finally forgive me and feel like I deserve a second chance and so do all of you.
I send all of you healing and positive thoughts. I want the best for each one of you.
Loving life,
Maxine
Found out I had Hep C 2 years ago. I started taking Sovaldi/Ribavirin on 11/11/2014. No bad effects except sleeping on some days is difficult but I had retired a month before treatment (I'm a 62 year old male) and I'm able to make up the sleep during the day. Two months into the 3 month treatment I was told that I had cleared the virus.
Today, 2/2/2015, I took my last pill about 4 hrs ago. Good luck to everyone starting treatment.
I'm so afraid right now.
I was recently diagnosed with Hep C. I don't know how or why this is happening to me. I was so afraid and terrified I waited two days before I even told my boyfriend of eight years. Even then, I didn't tell him, he found my test results. The trust we shared is now gone because I didn't tell him right away. I can't fault him for his future actions in our relationship. How dare I not let him know what was going on with me right away? It has always been difficult for me to let others know what's going on with me. I would rather deal with it alone. It feels like I'm losing my best friend during the hardest time in my life.
You know I have tried three treatments and they all did not work.
I am taking the new drug Harvoni for three days now and my insurance said I was denied for the rest but my doctor said they do that. She said they will approve me. I get what they call county care. This is for people who can't afford insurance under Obama-Care, I think. I am 51 years old and after hearing some of your stories I wish I was able to see someone more deserving get the drug.
I have been sober for 12 years now and did not find out I had Hep C till I was five years sober but for me I have to remember I did this to myself and just try to be grateful for today. Today is what matters most to all your loved ones, believe me.
Hello fellow helpers, Nicole Cutler, and curious guest!! Thanks!
First diagnosis was in 2000 (found out by mishap. If I didn't I would have never known) .Geno 1a,Viral Load was sky high. Stage 0: loss of appetite. Weak. Fatigue. Tired every day.
Treatment #1(2009): 48 weeks of Pegasus /Ribavirin. Cleared. 3 Months post treatment -relapse
Treatment #2: 12 months of Interferon/Ribavirin. Cleared, again. 3 month post treatment -relapse
Treatment #3 (2014): 12 weeks of Sovaldi/Ribavirin. Cleared at week 2. Viral Load= 0. Treatment was discontinued @ wk #8 due to anemic issues (the Ribavirin did it). I was never ever anemic at any period in my life.
So back w I started, I was so close!!!!
Treatment #4: ,Viekera Pak with Ribavirin (modified dose). I start treatment March of 2015.
I found that I had Hep C during blood tests to get gastric bypass. My enzyme levels dropped just long enough for me to get the surgery but I started Prednisone for 6 months and then a daily long term regiment of Ursodial and Azaiothropine. The only symptoms I noticed with the disease, which tipped my doctor off, was a rash and itching on my arms and legs which occurred EVERY morning. I was diagnosed at stage 3 and am awaiting results of the first ultra sound that I have had in 3 years. Otherwise, my health is great and I'm feeling good.
I want to share my story today because I feel today is the first day of the rest of my life. Today I started my treatment with Harvoni. After reading many blogs and posts on this site, I am very encouraged there will be a positive outcome.
I turned 59 my last birthday, and just a year ago, never even suspected I had Hep C. My ex-husband passed away last year, and it was then, when my children told me what he had passed away from, cirrhosis of the liver, cancer in the stomach and lungs, due to heavy drinking and Hep C, which he did not know he had until just weeks before his death, that I was tested for Hep C - and, the test came back positive. I was then referred to a specialist and tests revealed I was type 1, level 1, with a 400 million count. I possibly have had this for as long as 40 years. I have lived my life, what I have always called, zapping out, meaning I wake up energized, start doing things, and suddenly I will stop in my tracks because I'm zapped - tired - time for a nap - I now think this could be tied to this disease, when I've always thought that's just me. It will be interesting to me if I see a change, a new way of living life, in the near future.
I feel, we need to educate, encourage, and promote the testing for Hep C, and not only for baby boomers, but for all. It saddens me to think it took the death of someone I had been so close to for more than half my life before I took that step.
In 1997, I was diagnosed with Hep C. Just the screen test. I chose to not do anything about it.
In 2012, I was then re-tested, and told yes, that I had it, but that I also needed to know the viral load, and genotype. So I found out then, that I had genotype 2B, and my load was over 8 mil. I was also diagnosed with stage 1 breast cancer. I did the treatment for the cancer, and then saw a gastro dr about the Hep C.
It took another year, because he suggested that I could wait. I stopped all drinking, even though I rarely drank.
Good thing that I did. I found out that I could treat with Sovaldi + Ribavirin. On Dec 29th, 2014, I started my treatment with Sovaldi + Ribavirin.
Two weeks into treatment, I took my first blood tests. I went to the Dr yesterday, and the results came back with 0 virus! I'm amazed!
Sovaldi + Ribavirin isn't a cakewalk, but, it's not that bad. I am getting nauseous, a little dizzy-headed, some diarrhea, tiredness, a little cranky, and melancholy. He prescribed Phenergan for the nausea, which also lets me sleep well.
I have nine weeks to go, and I'm feeling really excited to get rid of this dark cloud that has been hanging over my head for so many years. :D
Hep C is scary; I found out in 2010 I had Genotype 2 and probably have had for 30 years. I also found out I had Type 2 diabetes at the same time. I found all this out because I had a subarachnoid brain hemorrhage and lived to tell. Unbelievable, since then I have had many close friends die from SA Brain Hem. So I lived to only have to fight the Hep C and diabetes. There is Hope in Christ, I took Interferon, Ribavirin for 17 months and couldn't handle it anymore, no cure, second attempt was Interferon, Ribavirin and Sovaldi that did the trick, and I have been cured for 12 months. Working on controlling the diabetes. I have never felt better or enjoyed life so much as now. Never, never give up Hope. My love and concern to all that suffer these!
I had two blood transfusions in 1981. Two years later I had pancreatitis. I was diagnosed with hepatitis C in 1993 and was told by doctors I didn't have long.
I started a regimen of milk thistle and other homeopathic remedies and got better; however I continued to have slightly higher reading on lab tests. There has been no scarring. My doctor told me that I was healthy and to wait for a treatment that would not make me sick. I only had lab tests and a few liver biopsies.
I did develop diabetes 2 and high blood pressure, along with other secondary diseases. I was recently put on insulin because we could no longer control my diabetes with oral medications.
When I visited my GI doctor in October, he told me about the new advancements and referred me to a hepatologist.
I saw the hepatologist the beginning of January, and within a week, I was approved for Harvoni. I am on my fifth day and am doing well. I can feel that I have taken a strong medication and am slightly sluggish about an hour after taking Harvoni. The feeling lasts about an hour.
I noticed two days ago that my blood glucose readings have been lower, so I am keeping an eye on it. I will also check my blood pressure to see how that goes.
Since I am in week one of treatment, I don't know my status; but I will post after my labs and follow up with my doctor. I hope and pray that I make it through the twelve weeks.
Hello, my story is maybe typical. I'm 58. I started feeling like crap 8-10 yrs ago. Go to drs and they tell me I'm diabetic, type 2. So I start taking that stuff, watching my diet. Some friends of mine also have diabetes Type 2. When we talk about our blood sugar levels mine would be great and still felt like poop. I could not understand it. I met a wonderful woman that got me in the right direction to have blood test to see if it was Hep-C. There. Positive after all those yrs of feeling like crap. Finally went thru interferon/Ribavirin treatment. That was like a BAD ACID TRIP EVERY SECOND OF EVERYDAY. With her love and care made it thru. Now still have high viral load and have just started the Harvoni treatment. I feel hope again. No drinking and no smoking. I don't know if I can quit. Guess I 'm paying the price of being a wild teenager. I really never knew how I got it. No tattoos. I just hope this helps someone else somehow. Oh! Trying the milk thistle pills. Heck if they told me to eat the moon I d' do that. Lol
Good luck everybody. I know there are worse things going on in this old evil world. Peace. Imagine.
Found out a few years back I have Hep-C on a routine Doctor visit. I just finished Sovaldi, Olysio, and Ribavirin and I'm at 0. So I thank God its working. We will see in 3 months if it stays. Really missing a cold beer but I guess life is a little more important. :-) 51 years young
I have had Hep-C since 1975 (I was in Germany playing army when I was infected). I had two treatment cycles Pegasus with severe reaction (heart attack was the worse). I have taken the new treatment (real costly) but it was not too bad for side effects compared to the old treatment. I am three months out and my viral load is 0. So there hope of a cure for this God awful thing.
First of all I was diagnosed with non alcoholic cirrhosis in 2004. I drank somewhat but for depression and boredom. So it wasn't hard to lay the drink down for good. I received a liver transplant Aug. 2003 and almost died as my donor was allergic to Bactrim (as sulfa antiviral) and they couldn't find the cause of my platelets being hardly 2000. After 4 weeks, and after process of elimination, they found it was due to donor liver being allergic. I was also diagnosed with Hep-C and they said was at very low levels. Even after the transplant I received a liver biopsy every year for 7 years, for about a total of 10 in 9 yrs. I still have Genotype 1 and my transplant nurse said I was an ideal candidate for the Harvoni and Ribavirin. I started taking it 2 weeks ago. Headaches, metal taste (which faded), and my right side hurts. Would like to know how other post transplant patients faired with their treatment. I have 10 weeks to go. Pray for me. I get confused at times and very tired but I want rid of this disease. Let me know how you are and thank God for all who have been cured and for those about to be and for those who are waiting. I will be praying for you all.
I donated blood a lot back in the late 80,s early 90's, till one day I received a letter telling me I had Hep- C. I was young (in my early 20's) I was into drugs, tattoo's and reckless sex. So I never did or thought about it again.
Till I hit my thirties and that was because a friend freaked me out about it. So I started seeing a specialist By the way I am a gay female and the chances of passing the Hep-C sexually between two women are nil to none, it is a little higher if you use toys and share without washing but both of them have to be bleeding.
I have the genotype 11 Hep-C which is the hardest to cure. At the time I went on the Ribavirin treatment the chance of it not working was 98%, so I had a two percent chance of getting rid of it. I went through with the 1 year regimen.
Let me tell you it was no walk in the park. I felt like I was on chemo. You cannot drink alcohol or do any recreational drug usage. My body ached, I was lethargic, I didn't have enough energy to go to the mailbox, and get the mail, ON MY PORCH. My hair thinned. It was just a very crappy feeling to have all day everyday for a year!! You have to give yourself injections once a week. This will be difficult for anybody who uses, to do drugs intravenously. The thing I found most helpful (considering I have adult ADHD) was to think of a vacation or something you enjoy, reading a book anything to keep your mind from wondering down that road. Well down to the day of the year, I was so excited when they said that I was negative.
My next appt. (3 months later).
I tested positive again. I was bullshit. They did a biopsy at this time. (If I were you I would get the liver biopsy first) after the treatment, which in my racing head I thought wouldn't it have made more sense to biopsy my liver before the regimen. So I always have that question in the back of my head; did the regimen actually do the damage or the Hep- C. So my advice is to ask for a biopsy first. That was the last time I went to a doctor about my Hep- C. I have never had any kind of side effects from Hep- C. Since I got it. Oh yeah there are a few new regimens out now that are 3 month regimens that are a lot less debilitating.
I have also been very, very physically active since I got sober in my twenties. Exercising, weights, kickboxing. I was spending hours at the gym and training for kickboxing fights. Being healthy they say. Eating right and exercising helps keep you healthy? Which may or may not be. I only say that because my younger Brother by 3 years was diagnosed with the same genotype Hep- C as I was. He has had it about as long as I have, from sharing a needle! (not with me, with a friend). He on the other hand still drinks a lot of alcohol and eats crappy. He has never gone thru the regimen.
Nor does he exercise. He also does not show any side effects of having Hep- C.
I am 50 yrs old now and I still feel like I am in my mid thirties, and no side effects or abnormal sicknesses. Even though when they did my biopsy ( mind you I had been a huge alcoholic and drug user) on a scale 1-4, I was diagnosed with fibrosis 2. I still scratch my head. Did my alcohol drug use scar my liver or did their medication cause it?
My viral load is astronomically high, but my liver functions fine.
This is my story!
I just want to remind anyone who has or thinks they might have Hep- C, DO NOT share razors or tooth brushes and always inform a new partner of your condition.
Just wanted to share with you all I have Hep-C for 30 yrs now. I had a car wreck and had to have a blood transfusion. 10 yrs later I found out I had Hep-C. I'm 57 yrs old now the last 5 yrs have been really bad. I had to go on disability 3 yrs ago because of my heath issues. 2 years ago I was sent to UAB in Birmingham, AL because I was weak and my liver had gotten really bad. On February 14th, 2014, I was put on liver transplant list and on April 19th, 2014, I received a gift from a loving donor and God. A new liver. I have had no rejection at all. My doctors put me on Harvoni the new Hep-C med on November 22, 2014. I am now into 9 wks of Harvoni and my heath issues are a lot better, other than I have no energy. My viral lab work was 150,00000, after 3 weeks of taking Harvoni it came down to 1000. That's how fast its works now let's just hope after 4 more weeks of treatment I will be a 100% cured by the grace of God our Father.
I have Medicare and Humana Ins this medicine was $34,000.00 for a4 week supply. My co-pay after Insurance $4,000.00. I got on a patience assistance program to help with my co-pay, so my out of pocket cost for Harvoni was $0!!!! If I can be of any help to any of you please let me know. GOD BLESS AND WISH ALL THE BEST OF LUCK.
Pretty sure I got Hep C 30 years back when I was young and experimented with drugs (dumb!). I did not know, but for the last twenty years I suffered from fatigue and then 2011 things got bad with my health. Hep C attacks more than your liver. I developed many health issues and after two years I was finally tested and BAM!!! Suddenly I felt dirty disgusting and like a worthless human being. Degrading feeling to have a disease with a big stigma. Nurses treated me differently; my other Dr's cut my meds thinking I'm an addict (ridiculous!!!). I don't use drugs and haven't for twenty years so this stigma pissed me off. I was treated two years ago and will forever be different. Exhaustion is my main complaint and interferon/RIBA tanked my thyroid, so on meds for life! I am SVR and very outspoken about Hep C! It's nothing to be ashamed of even if you did make the mistake of using needles. I heard the new meds are better, so treat if you can!!! Don't wait till you're too sick. In my old support group, I lost quite a few and I also had a cousin pass from it. Please get treated, it's a horrible way to die!!!
I like many of the others on this site have been living with this God horrid bug for some 30 years now. I did the interferon which left me with 30+ nodules throughout my lungs; caused my thyroid to become hyper/hypo. It's progression has caused continual body pain, exhaustion and all the other lovely side effects caused by the virus, and of course the interferon and Ribavirin. Well I just got started on the new cure Harvoni from Gilead sciences. I'm on week 2, there are side effects but ''nothing ''; near interferon, just exhaustion, and an emotional roller coaster, but definitely bearable. The cure rate is 93 percent, please go with this drug, it'll give you your life back.
I found out I have Hep C in 2001 after I donated plasma! When I went to my primary care Dr, he didn't seem concerned. We did do tests every once in a while to see how it was going. In 2006 I went to a specialist and he wanted to do a liver biopsy, but I was afraid and put it off. Fast forward to 2014. I have never had any symptoms, but my ex-husband passed away from the disease in Feb. I started seeing billboards saying they had new treatments available and made up my mind to take care of it. Later I was going to a different doctor for something else and he said my liver count was abnormal (162) I don't know how bad that is, but he told me, they have new treatments now, you should get it checked out. I was referred to a specialist. After 14 vials of blood and all the tests he said I was a number 3 genotype, which is supposed to be easier to cure and from 1 thru 4 I was 3 leaning to cirrhosis. I am waiting and will know by January 19th 2015 if my Medicare/Medicaid will approve me for Sovaldi and Ribavirin for 6 months! He is confident it will cure me! I am excited, anxious and scared, but thankful I am getting a second chance at life!
I have had problems with alcohol off and on since I was 14, but quit that very day I got my results and treatment plan! I prayed to God to help me be strong to quit the alcohol. I haven't drank in a month now! Now I am just waiting for the insurance approval on Jan 19th. I haven't told my boyfriend of three years yet; I'm afraid he'll look at me as a burden or damaged goods. I am a little leery of the side effects of depression since I am already on antidepressants.
Just praying to stay strong and praying for others that have Hep C also! Don't delay and get it taken care of! Going to try to stay positive and I am so grateful I went when I did, before it advanced! Would love to hear from others that have had or is having the same treatment! Love hope and prayers to all of you!!!
I was in a car accident in 2000 and while in the hospital I found out I had hepatitis C. My wife and I were devastated.
In 2005 I began Pegus-interferon treatment. Was supposed to take it for 6 months however I was in jail in Idaho Falls, Idaho and the jail would not give my North Dakota doctor my blood tests so the doctor cut my treatment off after 3 months. After being shown where my liver was I self consciously felt pains that probably never came from my liver. Haha! 2010 I had a liver biopsy and was told there was nothing to treat and that the hepatitis C had rid my system. Being told no one can be cured of HCV I checked into the Dr's notes. It stated that there was in fact Hepatitis activity in my liver.
I asked a doctor in St. Cloud, MN last month to cure me with the new medication. Blood tests were done and again and I was informed she cannot treat me, but I was told this time that the levels were not high enough to treat.(come on, not high enough?) This concerns me because with it still there I can still die later from problems stemming from what's still in my liver. I know this is not reassuring but I'm very concerned. I hear there is a cure yet, I can't get treated because it's not at ''HIGH'' levels. Obviously, it's still in my liver.
If I were president of the United States, would I still be told there is no treatment with levels too low? This means I put my children at risk every day if I cut myself not noticing and a child does also. I bet my doctor would be very worried if her child were cut on the same piece of metal I was cut on.
I just need to know how I can get the new Medicine to cure it since there is still in fact hepatitis in my liver.
Do I have to wait until I develop cirrhosis in my system before there is something to treat? Well, at that point it will be too late.
Any answers please contact me at 218-731-7678.
Thank you.
Jerry
Hi, my name is Ivan. I have had Hep C for a long time. More than 20 years. I found it out in 1998 after a blood test. A year later the doctor told me you have very bad cirrhosis.
So they start checking me with cat scans every 6 months to see if I had any cancer tumors. So last summer the first cancer tumor appeared on my liver. When the doctor told me I was devastated. I was just thinking about my grandchildren and my family. Well to make the story short, they performed a Chemoembolization and thank God the tumor was gone. If you don't know what a Chemoembolization is you can look in Youtube to see what it is.
Unfortunately, I am not cancer free. I am in the Westchester Medical Center in Valhalla, NY on the transplant list. Okay.
Thank you all and God bless you and keep yourself healthy don't drink alcohol don't use drugs and you're gonna be all right. Bye
Well I'm still around, which I guess is good but don't know for how much longer.
Hep C GT 3a, stage 4 cirrhosis and type II diabetes. No transplant for me and no cure in sight, depending on the doc I talked to I have 1-3 years left. I fire every doc who gives me a timeframe but finding one who says we can fix you is rare. The last one that said that also said ''even if it kills you'', thinking I wouldn't hear him....FIRED.
I'm now on doc 12 in only 3 years. The only one who seems to give a dang is my PCP and she is just a LPN.
Do a lot of research on your own, if they won't help, find someone who will. I save a copy of all my work and spend a lot of time on Google seeing what it all means. I am my best doc. Never give up. DON'T drink. I quit as soon as I found out what was wrong with me,7 yrs. now and after a ct scan found a 11mm spot on liver, my PCP said wasn't cancer and my liver seemed to be improving so clean living will help. Even though I have been turned down by insurance for Sovaldi 3 times, I refuse to give up.
I guess what I'm saying is never quit, do lots of research, even though it makes some docs mad when you know more than them. Be nice to your liver, it may be the only one you will ever get.
I took interferon and Ribavirin in 2008. After 6 weeks I was undetectable. I finished a 6 month treatment. I am still in remission in 2015.
Praise the Lord Jesus Christ and my doctors and nurses.
ALMOST 50 YRS OF HEP C.....
My husband was in Vietnam and believes he contracted Hep C in a field hospital. Over the years it has taken a toll on his liver. He has cirrhosis and had a small tumor that thankfully was caught early and stopped. He tried the interferon/Ribavirin years ago, which was absolutely horrible and did not work. He went through ALL the tests for a liver transplant but, due to vascular disease and other health issues, they did not think he would survive it.
Thank GOD and lots of praying, his gastro doctor had him approved for Harvoni. He has been on it about a month and his viral load is sooo low! Almost undetectable! He must be on it for 6 months since he has cirrhosis and tried the prior treatment that did not work. We have already seen remarkable improvements in his health, i.e., gaining weight, more energy, low and consistent sugar levels (he is type 2 diabetic), no confusion/foggy brain, much better memory. He has not shown side effects or very little issues. Harvoni is TRULY a miracle drug! GOD Bless the researchers who developed this drug, the doctors that have been overseeing my husband's medical issues and family and friends who have stood by us through all the years of misery with this horrible disease! I pray that EVERYONE with Hep C has an opportunity to be cured. There are meds now that can do it and everyone deserves a chance for a better quality of life! The issue we are still concerned about is his very low platelets and enlarged spleen. Does anyone have this problem and, after successful treatment, will this improve? As Kristie H said on 1/23/14, I want to shout it from the roof tops, I have my husband back. We have a future and not pre-planning his funeral.
Wishing a Cure for everyone.
12/30/14
I was told about 19 years ago that I had come in contact with HCV. I asked doctors if I needed medication at that time they said no. So I went to a doctor that specializes in HCV and other internal diseases. My liver enzymes are being tested with blood tests there are no problems. Why didn't I get treatment?
50 years, Hep C Cured.
I had facial bone tumor at 12 years old in 1963. In the second surgery, I lost 2500cc blood and received 1500cc blood transfusion. Dr told me after blood transfusion I should not drink alcohol and avoid unnecessary medicine to protect my liver. Since then I felt tired all the time. First, I thought its anemia. However, I was never recovered like the way after the
First surgery. Early Hep infection evidence includes dark urine at age 19 and whole body skin rash after I drank two glasses of wine to thank my thesis adviser at age 25.
During college, I cannot concentrate in class rooms since there is not enough fresh air. I always went back to my dorm and read books myself. I knew my body has some problem. Therefore, I always worried about whether I am capable of any activities requiring more physical endurance. In 1992, I became very tired during daily work as an engineer. A blood test indicates I am a HCV carrier with geno type 1b. My enzyme level is around 200. After regular exercise, the enzyme level dropped to normal. In 1999, a new job requires 2 hours daily commute. This plus, the work stress lead to my enzyme level very unstable. I have seen enzyme levels like 500, 900, and even 2000. I had a liver biopsy which showed my liver has level 2 fibrosis.
I was treated with Pegasys (interferon) and Co-pegasys in 2003. After 48 weeks difficult treatment, my HCV was cleared. However, the virus came back 3 months later. My liver enzymes were normal from 2004 to 2006. Since 2007, my enzyme level raised to ~150, until October 2014. In January 2014, my Dr prescribed Sofobuvir and Ribavirin 24 weeks for me. I rejected since I had a problem with Ribavirin and the SVR rate is not that good. I started with Harvoni 12 week treatment since October 23, 2014.
After the first week, the virus count dropped from 6 million down to 70. I haven't seen my blood test result at the end of the 2nd week and the end of the 8th week. However, I knew the virus must be cleared. Before treatment, I can feel my heartbeat after climbing stairs for only two floors. Now, I can easily run 40 floors as my daily exercise. I feel the 12 year old me is back in me. I am 63 years old now.
I am a Christian. My faith helped me a lot. I received my PhD from a top college in southern California.
I authored several dozens of science and engineering technical papers. I had more than a dozen inventions, disclosures, and patents awards. I also received a US government medal from NASA for my contribution in planet exploration. I must say my life is very, very tough. I always felt I am not a good enough husband and father. However, I knew staying alive to see my three children grow up may already be a significant accomplishment.
I felt I had no choice but to fight the virus. Faith, positive thinking, Dr's help, healthy life style, and Hep C knowledge is my support in this fight.
I can overcome this virus, so you can do it too.
Was diagnosed with Hep C after an 8 month severe case of gallbladder and bile duct blockage which caused my liver to become inflamed from all the toxins, from all the drugs I used to use back then. After passing out in California Valley State Prison from the pain, they found out that the drug use caused me to contract HEP C. They gave me 10 years before it would start to affect me and my organs.
In 2009, the doctors at an ER told me I was at Stage 2 cancer of my liver. After doing 6 months of chemo it went into remission. But my Hep C Viral load started to rapidly increase in the past 6 months. My viral load was 50 million and after starting the Hep C treatment with Sovaldi and Ribasphere only 3 weeks ago, Dec. 7, 2014, my viral load is down to ONLY 76! The only side effects I have are a little fatigue and mood swings. Other than that I feel great.
This drug is amazing and I hope it does cure me and many more. This is a super cure. God Bless all the scientists and doctors and fund supporters and insurance companies for this medical breakthrough for this horrible disease that has killed so many before their time. May they all be remembered and to all that have the Hep C virus get treated ASAP. There is a cure and it works. Thank You again!! Thank You Jesus for this second chance to live.
I am 57 and have had Hep C since the 80's. I found out thru Red Cross after donating blood in 2008. At the time I was unemployed and did not seek treatment right away. Anyway, to make a long story short, I had a liver transplant last year. A liver was found for me just in time. I had to wait almost a year and I started the Sovaldi and Ribapak Oct 2014. So far other that profound fatigue, I am doing well. My latest blood test had the Hep C barely detectable. I am hoping with my next test it will be 0. I have to travel about 150 miles from my home to Atlanta for my treatment, but it has been well worth it.
There is hope. It is a fight and sometimes it is a struggle, but I keep on trucking. Wish the best for you all.
I have read the stories well here's mine. I was diagnosed with Non A/Non B by liver biopsy in 1977, after getting sick. I was in the Army as medic I was 19 at the time. After about six months I was feeling better. But I've had problems on and off ever since. I spent 16yrs in the Army and the whole time I was sick with minor health problems. In 1994, I was working as nurse and MD. I was living in L.A. and was tested for Hep C and diagnosed but no treatment. I moved to treatment in 1994. My husband was diagnosed with end stage liver disease in 1996 and placed on a transplant list. I was placed on interferon treatment because I became more concerned about my health and my husband's Dr pushed me to be more aggressive and concerned. By 2000, my husband had a transplant. My health started to decline from stress. I developed fibromyalgia, blood pressure problems, memory loss, brain fog, chronic fatigue syndrome, end stage liver disease. By 2005, I was getting MRIs, cat scans, and an endoscope of upper GIs every 6 months. In 2012, my husband died from complications of HEPATITIS C then I was diagnosed with liver cancer as result of HEPATITIS C. I received radiation treatment and placed on a transplant list. I still have HEPATITIS C and I am currently waiting to start the new treatment. I am still cancer free and waiting for a transplant. I am hoping that this will be soon I have two children that I am responsible for. A 17 and 21 year old.
I was diagnosed with Hepatitis C in 1997. In 1999, I was diagnosed with diabetes and my health has gotten progressively worse. From extreme weight gain to high blood pressure, severe nerve pain and nerve damage, arthritis, hair loss, depression and anxiety, you name it (yes! I was in bad shape.) I lost my job after 6 years of service (no fault of my own) and there went my health insurance and benefits. I was in bad shape, cried all the time, in pain most of the time and extremely depressed. I reached 327 pounds at 5 feet 7 inches and I cried every morning because I couldn't understand what was happening to me. I applied for disability and was approved in September 2014. God is so amazing! I automatically qualified for Medicare/Medicaid and that was more important to me than anything because now I could receive medical care outside of the county hospital where there is a budget and less then quality health care. All this time I had been comfortable with living with Hepatitis C because the doctors would always say my viral load was very low (888,000) and never suggested treatment nor shared with me the important functions of the liver nor did they tell me about the complications that develop from liver disease such as diabetes, high blood pressure, constipation (I've had 4 colonoscopies), Arthritis, Vitamin D deficiency, acid reflux just to name a few. I researched all this information on my own. Now they say after performing a fibroscan that I am in between stage 2 and stage 3 (there are only 4 stages and cirrhosis is the 4th stage.)
I prayed for a miracle. I prayed for my health and my prayers were answered. I began taking Harvoni December 4th 2014. It's now going on the 3rd week and I can tell my health is improving. Already I see the change in my blood sugar levels 110-180) which is a gigantic drop from sugar level numbers (235-380.) And my stomach has gone down tremendously. I have experienced a few side effects, actually the first 10-12 days were really rough and I contemplated whether or not I could continue, but I am determined to get well. I am very excited and can't wait to get my labs.
Lynn H., you and I have a lot in common. We are the same age, both drug and alcohol free and abstinent for the same amount of years. Medicare does cover treatment. Please don't get discouraged. Do extensive research. Ask a lot of questions and search for a gastrologist or hematologist who is genuine. Above all, don't give up. You deserve all there is to offer. I don't know if you will refer back to this link as you had posted 11/02/2014 but Bless You in Your endeavors.
I was diagnosed with Hep C in April 2014. I hear most people go to gastrointestinal doctors. I went to an infectious disease doctor. They specialize in this stuff. My viral load is 350 thousand. My doctor said that wasn't bad, that most people are in the millions! My insurance denied treatment with Harvoni at first, but my doctor somehow got it approved the second time. They approved me for 60 day treatment because my viral load count was low. I just started Harvoni yesterday, so far no side effects. I would advise people to go to an infectious diseases specialist. They seem to care more than gastrointestinal doctors. Good luck to everyone I hope this helps.
My Mom died from complications of Sovaldi & Olysio.
She was fine in April 2014 when her liver doctor put her on this new medicine Sovaldi & Olysio. Within 6 weeks of treatment, she became very ill. He continued her treatment and at 12 weeks, she couldn't get out of bed and needed a walker to walk. She started bleeding from the nose and mouth. Her liver doctor could not find anything wrong and dismissed her to other doctors. We sought help everywhere but no one could find out what was wrong. An oncologist got involved and she started to need platelets and plasmapheresis for her blood. She was extremely ill and was hospitalized in early August. She continued to need platelets. In October she was hospitalized again for thick blood, and she had a massive stroke to her brainstem. She died 7 days later.
No one wants to hear my story. I have been kicked off of almost every hepatitis forums including the one Lucinda Laporte runs. She personally kicked me off and will not let me back on. I don't understand why. I am just looking for answers. Please contact me at retz62@yahoo.com if you would like to hear more of my story.
I was diagnosed in 1999, although I suspect I contacted Hep C in the 80's.
I was told during a routine blood test for life insurance.
I was told in 1999 that my viral load was high. I was referred at that time to a GI doc. I just had blood work done every 6 months the make sure my liver functions were ok. After 7 years of that I went to blood work once a year. 3 years ago I was released to my primary care doc. I laid low until I started seeing 'hope for Hep C' ads. It got me thinking that I wanted this virus gone!
So... This fall I asked my doctor for a referral back to the GI specialist I saw back in 1999. That is how we got the ball rolling on the treatment!
After getting my genotype (2a) and my viral load (7 million) I got a liver biopsy. Stage 2 fibrosis Grade 3
Next came authorization from my insurance (Aetna)
I was approved! Began treatment Oct 10th, 2014. Blood work done on Nov 6th showed HCV was undetectable! Yay! Dec blood work shows low red blood cell count. Headaches subsided after 7 weeks. I was fatigued but this is a worthwhile treatment. I am 53 years old with grandbaby #3 on the way and I plan on being around for a long time. Stay positive and be proactive!!! Don't wait another minute. Side effects are minimal and you are worth it! Be well!
This disease is so hard, mentally, emotionally and physically! I'm amazed at the lack of education by the public and the physicians creating a stigma that only street people can get it, when in reality most contracted it through blood transfusions and operations before it was detectable in the blood banks. I also believe most of us believe our symptoms are age, lol. I also find that we feel or sound like hypochondriacs and are left thinking it's just the thyroids, anemia, diabetes, arthritis, low blood platelets, depression.... we look healthy so we must be ok, NOT. Inside you feel sick, tired, physically fatigued, mind fog, memory impairment and the mind games of wondering how everybody else does it and your struggling to make it through some days. The truth is most of the side effects are directly related to the Hep C and liver disease. I have seen diabetics, high blood pressure, etc... disappear when the treatment is successful. The trick is being aggressive, proactive and DON'T take no for an answer.
Here's my experience. I contracted Hep C May 2003, geno 1A. I learned there were 4 of us and I am the only 1 left to carry on. I am on my 3rd treatment. 2003- My 1st was Ribavirin and interferon, 0 response and I worked thru in denial and a lot of side effects. 2005- 2nd treatment was 1 year and I only worked for 1st 6 months, Pegasys and interferon which came back 5 months after completion of treatment and it also had a lot of side effects. 2014- 3rd treatment is only 3 months Sovaldi and Galexo with no side effects. We are at the 1/2 point and my viral load is at 0.
Have I mentioned I don't drink or do drugs, I exercise, eat right, live good and we have a successful business. I have only had this disease for 11 years and I already have stage 3 liver diseases, which means Cirrhosis has started, many blood clots, itchy, fever, rage, altered moods, nausea, edema weight loss.... The point is - a lot of Dr's will tell you your fine for 20-30 years or it won't kill, truth is, by then it's getting too late. 1st the disease needs to be eradicated, and then the damage needs to be addressed. Be pro-active about your disease, ask questions, don't give up, it's your life you're gambling with. What you feel and the situation now will be different in 10 years, 20 years and 30 years. Dr's are having a hard time keeping up with all the changes in the fields and population, also remember there only human, not gods.
I am in Canada and I am disheartened to learn that 250,000-300,000 are infected in 2014 but only 12-14 people will be covered by government and 20-25 people will be sponsored by pharmaceutical companies. Am I the only person that is scared by these numbers and let's not forget that only 2% of them have 3rd party medical insurance coverage that will pay for the new treatments. Don't get me started on the cost for liver transplants (it's cheaper to pay for the meds that cure us) and the devastation the family and patient goes thru dying or waiting for a match. I can't believe that most of the countries in the world offer this to their people and North America is suppose to be a wealthy evolved modern country with high taxes and people are dying because they can't afford the cure.
I'm sorry for rambling on but I have just cause! I contracted HEP C while serving in the military overseas at a dentist the military provided. Instead of fighting overseas, I should have been fighting for our people? I love my country but I'm not impressed. Point is don't give up hope, build a group, start a movement, keep trying, a lot like AIDs, don't be ignored. I went through a lot of Dr's till I found a Dr and support team that cares about us, the victims of this hidden disease (Thank you -Chris, Leslie and Courtney, along with my peers and support group) and of course my family that has been my main reason for getting up every morning.
I was diagnosed in 2007 with Hep C 2B. I was to be treated then and again in 2008 but since the side effects with the treatment available at that time were extreme from depression, etc, I decided not to be treated. Every year at my physical, I would have the viral load checked to keep track of it. During the years the only symptom I would get is tiredness. Other than that, nothing.
Now that I became older and wiser and with the arrival of the newer treatment of Sovaldi with Ribavirin combo, I was ready to start! I had to wait on approval for about a month and was afraid of having to pay a huge amount out of pocket. Thankfully for me, it wouldn't cost me anything.
Well, I started on Nov. 19, 2014 just about 4 weeks ago. I have been getting headaches which are one of the side effects. But nothing that I can't handle. Since I don't like taking meds to begin with (never did) I wait for it to go away on its own. But you can take Tylenol which is what my Dr told me. I want to also add that I never had the actual liver biopsy done where they take a small piece of your liver out. There is an alternative way and that's through a special type of blood work, can't recall the name. And that came out good. No signs of cirrhosis at all. This Thursday I go for blood work to see how treatment is working so far, to check if I have anemia because the meds may cause anemia, and also a pregnancy test. It was expressed to me that it is extremely important not to get pregnant during treatment because the baby may be deformed. How sad is that. Well, I hope for a cure in February when I am done. And I wish a cure for you all!
Stay positive. Hugs.
I have had Hep C since 1987. I now have Hep C cirrhosis stage 4. I am unable to take interferon. I am waiting for the 2nd drug to pass. I do not have $75,000.00 for this treatment. If you are new to Hep C do not wait. Seek medical help. Good luck to all.
I am 57 and contracted Hep C back in the 70's. I have known I had Hep C now for 22 years, accepted it and never dwelled on it until it started showing a worsening in my blood after 50. Kept track of it with my Doctor for many years, then tried the Interferon Therapy 10 years ago - unfortunately I was allergic to it and had to stop. Last year when my blood work seemed to show the disease was really making a statement, I started seeing a Johns Hopkins Doctor who specialized in Hep C. Fortunately Hopkins is at my back door. Best move ever, he actually ran most of the HCV trials for Hopkins. I started on Harvoni 40 days ago (it was very stressful waiting for this drug to be approved by the FDA, then by my Insurance Co.) My first blood tests look good but I don't see the Doctor till next month to discuss with him (yes I have learned over the years to interpret some of these blood tests) I am so excited! Since I have some cirrhosis I will be on this medicine for 6 months.
Only side effect right now is headaches, they come on strong but don't last very long. Used to suffer from migraines, so I can deal with this. I feel very lucky and that I am given a 2nd chance, but I also recognize I have to change my lifestyle to eat better, etc. to help my liver since damage is already there and permanent. There is hope.
I was diagnosed with hepatitis C in 1989, which was 26 years ago. I remember getting very sick in 1985 a couple of times but recovered quickly. I never thought anymore about it until I was diagnosed. I have never had any treatments and my liver in enzymes stay very, very low. I've never had any problems with my liver, I have been very fortunate. I'm 63 years old now and I just got diagnosed with type two Diabetes and I'm wondering if the Hep C could have caused it. My fasting blood glucose was 149 and my A1c is 7.9.
I have been free of the virus since completion of treatmrnt in 2009. I was treated interferon ribvarin combo. I am fortunate and gratfeful.
I was on treatment for 1 year. Medication side effects continue. My age (65) when I began treatment, may be the reason.
I have had Hep C 1b for 45 years. I have always gone the natural route. I take a lot of immune system herbs such as green tea, cilantro, dandelion etc. I take Immpower about 6 a day. I try to eat healthy food, stay away from sugars and things that feed virus and supplements such as digestive enzymes and probiotics.
Above all I believe what the Bible says that God is the healer of ALL of our diseases. I believe that He loves me and has a plan and a purpose for my life. I hope this can help some of you. Don't give up or get discouraged just pray, pray, pray, and ask for wisdom and look out you will get it.
Best to you.
: )
I am a 28 yr old female who recently contacted Hep C from iv drug use. I want everyone to know that you can get extremely sick from acute hepatitis. I have been hospitalized four times in the last month, my levels got as high as 2000, which is liver failure. My gallbladder was inflamed (cholecystitis), I suffer with all the classic symptoms, hot cold yellow achy frequent urination fatigue nausea vomitting severe pain itchy, just because the person you got it from didn't get sick doesn't mean you won't. It's a horrible virus, and they can't treat you if your acute.
Joanne C -
I appreciate your story. I have been through two courses of Pegalated Interferon with Riboviran and am anticipating the 12 week course.
I am grateful but terrified.
Thanks for sharing.
I was diagnosed with Hep C (1) 16 years ago. Although expect I have had it much longer… my docs say much scarring and severe cirrhoses has destroyed my liver. I am on transplant list at UNC N.C. which I really don't want to do. I have put this off for years waiting on a better way. I tried the interferon, Sovaldi and Ribovarin and ended up in hospital after 11 days due to side effects...blood counts fell and ended up with sepsis. Now along comes Harvoni which seems like the answer. Problem is my insurance isn’t paying for anyone....I had to go on Medicaid when this all started (they have helped me out till now) I am thankful. Not sure what to do now. My docs are fighting for me. I'm going downhill faster now. A transplant cost more than Harvoni...I don't get it.
Hi, I was diagnosed with Hep C. I did a year and a half treatment and they said I cleared it it felt good. Still kind of worried that it could come back...
I started taking Harvoni 9 days ago I allready feel much better. I have lost about 15 lbs. Still have the itching problems but somewhat better. I have a head ache and it feels like my skin is on fire and can't sleep good at night. Anyone else have any side effects like im having?
I was diagnosed 8 months ago with Hep C. I thought that's impossible. I don't use needles and I have not been in a romantic relationship in over 13 years. My youngest child is 24 years old and she is free of this disease I was referred to a Hep C specialist who said it would take 6 months to be seen. Then they called and cancelled the appt. just a day before and said it would be another month to be seen. My attitude was if they don't think it is such a big deal it must not be. Right?
My personal Physician has not brought it up, asked about it or prescribed anything for me to take or do. What's the big deal? Nobody else seems to think I am ill enough to be treated. My Dr. did not tell me what kind I have. I am in the dark. I am very tired and have some symptoms that I think are related, such as having a fever of 103.9 for nearly 3 weeks. I went to my Dr. and she said if I still a fever the next day (a Saturday) go to the ER. I went to the emergency room and they could not tell me why I had a fever and sent me home. I took some expired Amoxicillin I had from a dentist. About ten old ones and by the time they were gone my fever went away. No big deal right? I'm just too much of a problem to deal with.
Wrong type of insurance I suppose.
In 1983, while working as a transplant nurse at a transplant unit, on one one of my routine blood draws (because I worked in a high-risk area), I contracted non-A, non-B hepatitis and was followed by the transplant team. I went on bed rest for a month and my ALT went from over a thousand to a baseline level in the teens. I had fluctuations in my enzyme levels for a couple of years and then they leveled out. Back then, it was believed you were likely someone who cleared the virus if your enzyme levels were normal for a couple of years after the acute phase.
Fast forward, later in life (after leaving nursing for another career) I realized that I may have Hepatitis C and got tested. I did have Hepatitis C.
I am glad to report that I just recently found out that I am SVR (cured) after a three month treatment on Sovaldi and Ribavirin (I was genotype 2). My ribavirin had to be reduced during treatment at 2 weeks to 800 mg due to anemia, but, other than that, the treatment was very tolerable. I worked full time and exercised (though I needed to curb my cardio a bit) throughout treatment.
I am fortunate that I had minimal fibrosis (F0-F1) and have hope for complete reversal of any damage that I may have sustained over the years.
We are living in miraculous times.
I am 55 and live in Sydney. I contracted Hep C from dirty needles during a heroin addiction stage whilst using in India in the early 80's. I went to rehab in 91-93 and have been clean since. I have 1A for at least 30 years and the last few years it’s got pretty bad to the point I have Cirrhosis.
Two weeks ago I started on Peginterferon weekly injections and 6 Riba and one Sovaldi (Olysio) daily. It’s pretty hard going with extreme fatigue after the interferon shot and the appetite loss is a problem. I am 6 foot and weight 68kg. I am losing weight but take supplements. I am thankful I get the treatment for free and the team treating me are pretty good. I always suffer from anxiety and this has increased during treatment so I may need to medicate with Xanax etc to deal with this issue.
In general it is about what I was told to expect and I just hope my body starts to recognize the treatment and I get some tolerance to the treatment. It is sure better than a horrible death to Liver disease if I can beat it. Luckily I work for myself and can take time off when needed. I would imagine for many people work and treatment would be highly debilitating. All the best peeps, with your treatment.
My husband was diagnosed in 2004 and had Genotype 1a. At the time of diagnosis, he already had cirrhosis throughout his liver and his treatment options were limited to Interferon and Ribavirin with a very small hope for cure. He did like a lot of people and did nothing hoping to make the best of the time he had left.
Fast forward to 2014, we went in to see his hepatologist about possible treatment options with the new drugs and we were basically beyond the point of therapy. He gave us this grave look when my husband asked about hoping to live to see our children graduate in 2 years, and said I can't make any promises.
We had already been referred for transplant to Vanderbilt University and he was not eligible for a transplant or any other treatment options. We were then referred to Piedmont in Atlanta and the doctor immediately said your labs don't look that bad and we try you on the new Olysio and Sovaldi treatment, it is off label but we have been able to get it approved because of the high success rate. The Dr. from Piedmont wanted our local doctor to oversee treatment. Our local doctor refused because it was off label. The Dr. from Piedmont said no problem we will handle it from Atlanta. They did, they got the drugs approved in less than 1 week. They had a pharmacy in Atlanta handle shipping monthly Fed Ex shipments to us. After 2 weeks, his viral load had gone from almost 1,000,000 to 171. By week 4, his viral load was undetectable. He has had virtually no side effects and felt the virus leaving his body.
I think it is a crime that this combo of Olysio and Sovaldi only is not the standard treatment. He had a difficult genotype to treat, he had been deemed beyond treatment and now he has his life back. He went from a hospital bed and wheelchair to cooking dinner, going out, walking into appts and if we had not insisted on pushing for more treatment options or listened to his local doctor he would be dying still. I feel it is an injustice that everyone is not offered this little to no side effects treatment and is still being offered Interferon and Ribavirin that is so dangerous and filled with side effects.
To anyone considering Olysio and Sovaldi, there is nothing to fear and everything to gain. Don't take no for an answer. Find someone who will get the cure for you. We are week 8 of 12, still no side effects.
I want to shout it from the roof tops, I have my husband back. We have a future and not pre-planning his funeral. I can't say enough about this dual therapy.
Wishing a Cure for everyone.
If you can manage to be patient, I personally am waiting for the new Gilead patent with India for their generic manufacturing that will be done there to lesson costs of the cures. By the way, the same meds in India right now are 99% less. Also, who can afford over $94K for Harvoni, unless you can get help via the Patient Advocate program? Even with saving our life, most of us have responsibilities and family where we do not want to end up homeless for the price of saving ourselves. I never wanted to risk the IMPOSED upon Pg or Ribavirin, being stubborn regarding Pharmas, when I did not wish to be ill and lose everything, with no help in sight. I have had Hep probably over 40 years now, and am in my 50s, in decent health. Just have some fatigue. Found out I had Hep C by donating blood around 2001. Liver alts always normal all these years, but viral load in the mils. Since 2001, I have done Milk Thistle as the primary ingredient. I never drink the fluorinated water anymore, using a reverse osmosis that I swear by. A regimen using these healthy things helps you get new hope and often makes you feel better. Lately, I have done more of a vitamin/nutrition program to help keep the condition sustained awaiting the cure, a one with no or little side effects. And alas it is here. I am considering medical tourism or online medicine from reputable sources when the generic comes out. Please do not give up or move so quickly. Doctors are not God, God is God.......believe, look for positive things, get answers, research. I have seen a YouTube video of a guy doing the Sovaldi, but have heard it is not the best for Type 1a that I had, but that Harvoni is. And I have learned to never let them push the other "rat" poison with it. In clinical trials the products ending in "evir" such as teleprevir seemed to work just fine ON THEIR OWN. The development is great news and please do ask a pharmacist you trust. I value their knowledge above any Dr, about what is really going on. My liver specialist is blah.....no comment! I will not just go into nuking everything right off, just my 2c worth. These new medications are very, very promising with such a high success rate, and they are getting better and better all by themselves.
I was diagnosed with Hep C in the 1980's. I went thru 3 interferon and Ribavirin treatments to no avail. I am supposedly stage 4 according to my gastro Dr and my transplant surgeon. I have been going to them for 1 year. So far neither Dr has shown common courtesy or concern about me. The only they have done for me is when I start swelling is when it gets bad enough go to the ER. Ascites is completely controllable thru different medicine combinations. There also are shunts, catheters so you can drain the excess fluid anywhere or anytime. There is no reason it should take 2 to 3 wks to have the excess fluid drained. It causes kidney problems, internal bleeding when you have the pressure from swelling on you.
I hope you have better luck with your Dr's. If I was going to take the high dollar pills I would get them from Canada or Israel or anywhere other than the US. 10 times as expensive here for the exact medicine. Same manufacturer, just verify authenticity. Same as with a transplant. Compare costs and survival rates before getting a transplant. My hope is for everyone with Hep C is to be cured. I have made peace with whatever my outcome is. I have raised 3 sons and am proud of all of them. I have always received compliments on how polite and respectful they are. 2 are degreed professionals and 1 followed in my foot steps as a Master Electrician who takes pride in his work as a craftsman. Do not fear death. Meet it with pride. Only the physical body dies I truly believe that when our body dies our spirit lives. Be kind to nature and other people. Lend a helping hand. This might sound morbid but plan for death. Update your will, beneficiaries, talk to a financial planner because when your time comes the tax man comes faster. I am currently putting together statistics for liver transplant, what country is best, cost, life expectancy.
I am not a GOD or a DOCTOR. I would like to know the truth. I am willing to bet the answer money, power, and greed. That is what I think about Doctors. Question everything. Be as well informed about a question before you ask it. Maybe they won't step on you like a bug. If they get mad because you asked them a question or to explain something to you FIRE THEM ON THE SPOT. One thing to keep in mind DR's have a bad tendency to tell other Dr's you fired them. You will have a hard time getting another Dr to accept you as a patient. Always call prospective doctors with the problem's you are having and make sure they will take you as a patient.
Remember these have been my experiences and opinion only. I am going back to herbal medicines. There are too many side effects and contraindications is so called modern medicine. I have always felt better when I was taking them.
I am 57 years old and diagnosed with Hep C 3 years ago. My youngest child left for college, I thought I was suffering from empty nest syndrome. I knew I didn't feel well, thought I was depressed and went to my PCP for a prescription for antidepressants. She has known me for 30 years and said "Its not like you to be depressed. I want to do some tests I think you may have an illness". She put me on that antidepressant BUT SHE did about 1000 different blood tests as well and I found out my "feeling right" was Hep C.
I had a VERY HIGH viral load and I immediately went to a specialist and had a biopsy. I did have liver necrosis. Thankfully Sovaldi was just months away from becoming available. My wonderful doctor had me wait and I when it became available I went on Sovaldi, Interferon and Ribavirin. 12 weeks later I have a ZERO viral load! It was not an easy 12 weeks but worth every minute! I hope my story encourages others- I am now Hep C free! A true survivor!!
Hi, I'm a 45 year old female. I was diagnosed with Hepatitis C after a check up with blood panel done. It came back that I had Hep C and was referred to a Gastroenterologist specialist. They redid my blood work and apparently I've had it for about 15 years. I never had symptoms. Maybe two to three times a year I would have severe pain on my left side, which I now know was my spleen. When the doctor comes in he says I'm too sick for the treatments. I reply well what do I do just live with it? He came back with well no not too long. I'll never forget the look on my mother's face but the doctor suggested I come back in a month and recheck. I did and was able to do treatments. So they taught me how to do the shots and I started the treatments. The shots are more scary thinking about them than actually doing. I got used to them. I took the shot 3 times a week. I took them in my stomach and the pills as well daily. At first it wasn't too bad. I had a lot of complications with low platelets. So some weeks I went to the doctor every day as I continued the treatments. I began to get very sick to where I couldn't put my own shoes on I couldn't get myself something to drink. I couldn't walk up steps and then ended up having hospice come to my house every day. By this time I lost most of my hair and probably down to about 88 pounds. Neither I nor the doctors thought I would probably make it. My body hurt so bad I couldn't eat at all. I'd take a bite, maybe eat half a bite, and spit the rest out. I was put on morphine for the pain and Roxy thirties 4 times a day and they really gave me no relief. My electric blanket helped a whole lot. A lot of people turn yellow but not me I turned black. like I had went extremely overboard with the tanning bed or laying out in the Sun. a lot of people thought my older sister was my daughter. But even going through all this my levels were going down and I was determined I was going to make it. I wanted to see my daughter grow up I wanted to play with my grandbaby. The hospice nurse gave me a toilet paper roll to use for weights. At that time I was using a walker to walk. It was a slow process and a lot of people don't finish the treatments because of how sick it makes you but there was no way I was stopping just to start over. I wanted to increase my time to live.
It's been three years since my treatments my hair is back. My doctor said hair loss was from not eating. An old lady told me to use Downy as conditioner. That it would help my hair grow and thicken up and it did. I'm back to normal weight my aging went away. I do blood work and CAT scans every 3 to 6 months. I go to a pain clinic. Unfortunately my pain has never gone way my body hurts. I'm very tired I'm now. On disability but I do work part time 15 hours a week. I am Hep C free. It was hard and I truly thought I prayed my last prayer many nights but even with the pain I'd do it over for the peace of mind of knowing my daughter Isn't motherless at 17 & my granddaughter knows and loves me.
I hope my experience helps someone. You can do It don't give up.
I was on the Interferon/Ribavirin treatment in the past! Not once-but twice! It didn't work either time. I went through all of that misery for nothing! I'm now on week 8 of my 12 week triple therapy. My viral load was 33 million when I began this program. It was down to 30 after just 4 weeks. I find out on Dec. 30th if it's zero! I'm taking a combination of Ribavirin, Olysio, & Sovaldi. I'm pretty amazed. I've not experienced any of the harsh side effects as in the past. I go to work every day. By the way I'm Genotype 1.
I hope this story will encourage others to not give up! There's hope! Good Luck to all that get on one of these new treatments!
I was diagnosed in 2011. I have tried the interferon treatment and it failed. it has left me financially, mentally and physically disabled. I'm not sure when I can or if I can go back to work. I now have myalgias, my whole body aches from head to toes. Parts I didn't even know existed. There’s no sleep. What’s worse is no one can understand, family or friends, and now the medical system has basically kicked me to the curb. My thoughts each day and everyday is suicide. Please contact me if you want to talk because I could use a Hepatitis C friend.
I am 57 years old and was diagnosed with Hep C about four years ago. Accidentally. I was getting a physical and my PCP knew I had been a nurse (many needle sticks) for a long time so asked if I wanted to be checked for HIV and HCV. I said sure, why not?
I considered Ribavirin and Interferon but after reading up on it decided against it. My hepascore was low and liver enzymes not elevated. So I waited. I have also been on Coumadin, a blood thinner for about 15 years and I read in Europe they found it protects the liver from fibrosis. I was diagnosed with Lupus six months ago so my symptoms are adding up.
I continue to work at home as a case manager but it's very hard getting everything done. I plan on starting treatment with Ribavirin and Sovaldi this week. I am terrified. I don't like medications and know there are always risks. I hope I can continue working.
Please pray for me if you're the praying type. Thanks.
In 2003 I was diagnosed with the Hep C virus. I learned that because I had blood work done at a Methadone clinic and from there I was referred to my primary care doctor who did the test which came back positive. To make a long story short, I remained on the clinic but did nothing about the hepatitis, I just made believe I didn't have it and I never thought about it again. I knew the treatments at the time were terrible, I had heard all the stories and I didn't need to go through that so I went on my own meds like liver aid, milk thistle, and Riovibin. I stayed off any type of drug besides the methadone. I stopped the self medicating because it was expensive. Well now its 2014 and I started to hear about all the positive new treatments and talking to people who were doing them and it WAS WORKING. So I went and had a full blood work up done since I had no clue how bad I had it. Well yesterday I went to hear the bad news (from what I thought) since it doesn't just go away but IT CAME BACK UNDECTABLE!!! I cried since I was scared for a long time and I had grandkids since when I was first told I had it and that's why I knew I had to go get treated. I was told they didn't even need to do a viral load test since it came back they way it did, I asked how did this happen and I was really given no solid explanation besides that I was one of the fortunate ones that had my body fight it off somehow. So it can happen and I thank God that I will be able, God willing, to spend more time with my new grandkids since I would have short changed them (and me) if I didn't go for help. I wish everyone the best and if you have it the treatment now is like a CURE. So go get help. Ok?...I hope this pushes someone in that direction since I was never going to go but I couldn't look at my grandkids anymore knowing what I was doing by not getting help!
Started Harvoni yesterday, next dose tonight. 34 years old, genotype 1a, stage 3 or stage 4. Took interferon 3 times, year at a time. Feel pretty good on this there are not side effects with this, except that I am tired now, been going all day. Approved for 24 weeks. I wish and hope everyone gets a chance to get cured. Be proactive that's what you have to do. God will led you if you allow.
Has anyone started the new drug, Harvoni for genotype 1a? I am trying to get the meds now through my insurance. We are on the second appeal. I don't have liver damage yet but I'm scared the longer it goes I'll wind up with it. Any info about how Harvoni side effects would be greatly appreciated. Wish all a good day.
I relapsed in 2002, after 6 months of treatment with standard interferon and riba. I declined Victrelis in 2012. I was warehoused with stage 2-3 until 2014. In 2014, I completed Sovaldi Olysio in 12 weeks achieved svr! I was examined for a small lesion but it turned out negative. I'm very grateful for the quality and quantity of knowledge with the staff at the University of Miami Hepatology Center. Particularly Dr. Paul Martin. It's been a long and harrowing journey. I also need to thank Dr. Phillip Grossman, a hematologist in Miami, who led the way for me since 2000. I was genotype 1b.
Hi, can someone answer this question for me? My husband was diagnosed with hepatitis C two years ago and he did not know he was carrying the disease. Now, due to his ongoing drug use, he was just told it is too late for him to get any treatment. Even though we have been separated for almost a year we are still married and I just don't know what to expect. What is next? He recently completed rehab and is going for a second opinion for treatment of the Hep C. We do talk on the phone and he said that he feels good but I'm worried that the results may come back the same, that he is too late for treatment. What should I expect next?
I was treated back in 2003, 1B, only tolerated 9 months of treatment having ended up with neutropenia. Dr's now won't touch me with anything with interferon. It's time for a liver Biopsy. I've made a move & new Dr's. I see there are new drugs and want to try again but am on Medicare. I have also been diagnosed with Rheumatoid Arthritis & Osteo Arthritis. I am at a loss, no Dr's seem to take me seriously & now without a job drug coverage is impossible. How do I begin to start this journey again? I am female, just turned 60, abstinent 11 yrs and feel like a leper. It has me depressed as when I mention Hep C people automatically assume I'm a drug addict. I got Hep C from blood transfusions. I am alcohol and drug free & in pain with RA & OA. Try to live each day to the fullest & stay active. I'm at a healthy weight but have more bad days than good.
I had Hep C Gen type 3A. Went through the Interferon & Ribaviren in 2012. It worked at worst, but the disease came back 6 months later. I just finished 6 months of Solvaldi & Ribaviren. The test came back Non-detected. And again NON-Detected 3 months later! Thank you Gilead. Praying this is it. I am VERY, VERY thankful
I contracted Hep C through intravenous drug use. I found out in 2011-genotype 2b. Before treatment, I dealt with extreme fatigue, brain fog, body aches, and a constant state of deep depression. I'm 8 weeks into Sovaldi and Ribavirin treatment. The virus has been undetectable since week four of treatment. I can't be more grateful for this outcome. This is a second chance at life for me. Four years sober, and before treatment, I had a constant reminder of my shortcomings, and complete disgust with myself. I expect no sympathy. I brought this on to myself. Lots of people with this condition contracted hepatitis through terrible, terrible ways, like blood transfusions etc. To sum it all up these past 2 weeks I really feel like my old self, before the Hep. The fog has lifted, and I have my energy back. To anyone living with Hep C there are options available to getting cured now. If one can afford it get a decent plan through the Obama care. I have paid $2,500 for premiums, copays, and medication-while the total cost for Sovaldi alone is currently $86,000-for a 12 week supply. There are also foundations that help with the cost of Hep C medications. Don't wait until it's too late! Get cured now if you can! Best wishes to all living with Hep C!
I came down with Hep C in the late nineties either via a blood transfusion I had, or my mother who also had Hep C. I went through the interferon injections and literally thought it was gone until an abnormal blood test ten years later showed it had returned. At first they wanted to put me back on the injections and my response was not very enthusiastic, so they advised me of the magical pill coming out in January that was labeled a cure and recommended I wait for the drug. And wait I did, imagine my surprise when I finally got the script called in only to have it denied by my insurance company stating they would only approve me going back on the interferon. I was livid considering I had already done this and it returned, my mother had done this and it returned. I appealed their decision three times stating prior cases I had doctors letters recommending it. I had the print out from their approved drugs list showing Solvaldi was an approved medication and they just wouldn't budge. I really lost faith in our healthcare system at this point considering my thought was if I had $300,000 I could get cured. To add to this I lost my mother from the disease in February after watching her slowly decay and lose her mind. Her brain filled up with toxins and the confusion got so bad she didn't know who I was or what was going on the last month of her life. Then my luck improved when I got word my employer was switching over to Coventry Health Care. I resubmitted the pre authorization and it was approved finally 9 months later. I have started my first week of the Solvaldi/Ribavirin treatment. So far so good no major side effects other than anxiety, which makes me feel like a crazy person. But if this anxiety for 6 months can cure me of this shameful disease then it is worth it. I use the term shameful because nobody other than my father and my wife know I am sick. It's not something I advertise out of fear that I will automatically be labeled a drug user or any of the other labels that come with this disease. This disease has made me feel absolutely nuts at times with the brain fog. The inability to focus or think straight and the constant confusion is so very frustrating. I know I take it out on my wife, who is amazing, and tries to understand but I don't think she can. I don't think anybody who doesn't have can possible fathom what a brain fog is, or what confusion is, or the freaking fatigue.... I hate the fatigue I really am hoping that my energy returns to me. I have been trolling all the support forums and reading all the stories searching for hope that one day I will feel like I used to... I am absolutely positive when I tell my spouse about the issues she assumes I am exaggerating because of what I witnessed caring for my mother. It has caused me a great deal of confusion I.E. Are these symptoms real?, which fades in for about five minutes then immediately are dismissed as I know without a doubt how dirty and confused my mind feels. So again I am extremely hopeful this medication is what I have read about it and again I hope that these symptoms fade away with each week I am on the treatment fingers crossed...
Over 25 years with Hep C. Don't know how I'm still kick'n. Failed interferon / Ribavarin about 10 years ago. Slowed down on the partying considerably even though doc warned me to stop completely. Last couple years for some reason I developed a taste for bourbon.
I never really cared for hard liquor before, and mostly drank wine or beer, but for some reason I went to harder liquors like scotch & bourbon. I drank even though I know my liver was sick. Felt like Crap all the time, and just kinda gave up on life. Started feeling new things going on inside me and started losing my memory. Doc now says I have Cirrhosis. That's when I got really scared. Can't leave right now. Got 3 little kids. Anyway fast forward...Doc prescribed Harvoni 24 weeks, and I am so grateful that I've been given a second chance. I feel really good about taking this medication. I know it won't cure my cirrhosis but it'll remove the virus that's been attacking my liver for so many years. Between that and abstaining from booze... maybe my liver can finally catch a break and heal a bit. Yesterday was my first dose, today my second. So far so good. If anyone out there is on this trip too...I wish you much luck. We will beat this thing down and throw it out on it's a$$!
I just discovered I Hep C 1. I've felt like crap for so long and everyone thought it was all in my head. Well I guess it wasn't! I'm so pissed right now I don't give a rats a$$ anymore. I've told my Doctors that I don't want treatment. They tell you how bad it is and then they tell you these horrid things you'll have to do. Then they leave you hanging to think about it. Well screw that. I'm done. What will be will be. If I feel worse I'll take a long walk off a short pier. This is all such bull$hit!
I was diagnosed in 1993 and I don't know how I got it and who cares?
I think people spend too much time defending and worrying about how they got it. It's not easy to get; on the other hand, it's blood to blood and can survive for two weeks on a toothbrush...If you were drunk one night in college or wherever and used someone's toothbrush who has bleeding gums, you could have caught it, so focus on what you can do to manage or better yet, CURE IT. At that time, I was working and not sick so I didn't even think about getting any treatment mainly because I knew very little about it. Years pass and after a hysterectomy at age 51, I started having a lot of aches and pains and joined a HEP C support group and was on a little bit active on some online support groups. I have always been health conscious and decided that I didn’t really see that many people who seemed to be getting better with the interferon treatments available at the time and the people I met were not that interested in alternative treatments so I just went on with my life and tried various alternative treatments. Rife machine, acupuncture, food supplements, IV treatments, Essiac tea, diet, exercise… all this seemed to manage the illness as my liver enzymes were always within the normal ranges although my viral load would go up and down from a high of 99 million to a low of 10 million. About a month ago my liver enzymes went up and I saw a gastro MD who wants me to try the one of the new treatments like Olysio, Sovaldi or Harvoni but I'm not convinced as these have only recently come on the market and where's the proof of cure? I tried to read through all the stories but there doesn't seem to be anyone who has not also used interferon. Seems like only a handful who are actually cured but hard to tell. Reading one or two people's stories isn't enough to convince me that it will be lasting and not have dangerous side effects that I take very seriously after what I've gone through previously with some supposedly non-invasive surgeries which seemed to devastate my immune system. One thing I've taken randomly is colloidal silver but only when a friend gives it to me; I never get "sick" but he doesn't even know how many parts per million. Now I'm taking this more seriously and I am anxious to seriously use the colloidal silver as prescribed for this disease. I have done a Google search and there are people who claim to have “CURED THEIR HEPATITUS C JUST WITH COLLIDAL SILVER” and I want to try it as if you don't over do it, it's not dangerous as all. Don't be surprised that the FDA doesn't give it good reviews but look at all the pharmaceuticals they have approved and later had to eat crow so I'm pretty sure that I'm going to take my chances and buy my own kit (from Silver Lungs) and try this properly for about 6 months before I take the chance of a new pharmaceutical drug which EVEN MY Primary DOCTOR WAS UNABLE TO FIND ANY OF THE SIDE EFFECTS ON THE COMPUTER RIGHT IN FRONT OF ME! (All they admit to is fatigue, nausea and headaches but I want to know what is behind that). With the silver, I'm expecting fatigue from die off...not because it is doing damage to some other organ or whatever. If anyone has tried this, please contact me even if it didn't work for you. I promise to come back and share my experience with my Hep Central friends as we need to support each other. I'll try to keep a journal too as if it works. I want to be able to share what I actually am doing. Also, if the colloidal silver along with some Chinese herbs I'm also taking don't work to lower my viral load, I will be willing to take the new drugs as the bottom line is this is a SLOW MOVING DISEASE AND I DON'T WANT TO WAKE UP ONE DAY TO FIND OUT I HAVE PROGRESSED TO CYROSIS AND WORSE. I see a lot of you very afraid and want to give everyone a big hug and tell you to KEEP THE FAITH. Live your life to the fullest that you are able and don't live in fear. Yes, money would make life easier but it doesn't buy happiness. Having the energy and vitality to do what you want share with others fully is what brings us joy. In spite of the darkness thrown in our face on a daily basis, there is much in life to be thankful for and we must learn to look at the beauty and goodness that is also alive and well if you stay open to experience it. We can get through this...moment by moment, day by day, and tomorrow is another day.
I am on Day 4 of Sovaldi plus Pegetron Hep C treatment. 1 Sovaldi tablet daily with 6 Pegetron capsules (3 twice a day) and the Pegetron Injection once a week for 12 weeks.
It had taken me just under a year to arrange my insurance, testing, and Gilead and Merck discussions.
I live in Canada but these med's are not covered by Provincial Health Care (indirectly a very minimal amount). Fortunately, my wife's insurance covered the Sovaldi almost 100% and my work insurance covered the Pegetron almost 100%. There are small co-payments which will have cost me $330.00 in total while entire treatment is $66,000 for Sovaldi and $6,000 for Pegetron. All of my medical tests are covered by Provincial Health Care as well as the Liver Specialist.
I found out I had virus in 1997 and determined I had contracted it around 1975. I had the good fortune to curtail alcohol consumption since around 1990 when I started being healthier for my family’ sake even though I had no idea I was infected. Probably saved my life. On Day 1 I experienced many side effects but since then, I can't even tell I'm doing the treatment. In fact, I feel really good..?..
Does anyone know if this could be my body reacting to meds kicking the crap out of the virus..? I mean I cannot believe how good I am feeling both physically and mentally (Worst side effect is head foggy and memory). I am prepared for anything but if you've any knowledge on this, please post on this website.
Post it as Canada "C" please.
Thank you
RS
I contracted Hep C from a blood transfusion in 1974 after a car accident, 2 week coma, head injury and bunch of broken bones at 18years of age. As time went by I could tell my system had changed, bowel movements etc, lots of low resistance change , getting colds etc. I continued drinking, smoked marijuana.
I lived with the disease doing clinical trial with interferon in 2001 about age 46. I went to the doctor and they checked me for hep C at age 36. I lived with a horrible marriage and three wonderful girls from that. My body did not respond to the interferon so I was taken from the trial. Left with nothing.
I finally divorced my wife in 2006, my children were almost grown at this point. I married a wife with Hep C, who told me I should go on living and not give up. We had our ups and downs.
In 2011 on oct 23rd , I had an accident at work with compound fracture to arm, fracture to hip and pelvic bone and contracted MRSA from the hospital stay.
With my wife's help and my father's I got past all that and then in April 2012, I became dizzy, nauseated, my wife took me to ER and I had internal bleeding from Esophugus, apparently for some time since I had been on NSADS. After 4 to 5 pints of blood I came home. The nurses thought I had passed away. It was caused by the pressure from the Liver and the accident affected that along with the fact I have scoliosis of the spine with bruising, bulging, disc.
Dr. Ford at Emorey, started treating me and Dr. Sanjay Parihk in Atlanta Gastro, in Snellville, Ga. saved my life from internal bleeding.
Finally , medicare kicked in and at age 58 soon 59, I am HepC free due to Dr. Ford putting me on Olysio and the Solvidol Cure thats out. My wife is getting treatment soon. We are so excited just to be free of it. We are planning to sell our home and move near the beach where we both have always wanted to be. We have hopes that the confusion our family members experienced reguarding our illness and the separation out of fear will fade but if they can not do that we want to walk humbly with all thankfulness for being provided the priviledge of the cure. Our Hearts are so Grateful for Emory and all the staff and all the staff with Doctor Sanjay Parihk. We are thankful for our faith, our church, the prayers. We want to live out our lives what remains of it in Brightness and carry much Love and compassion to others.
I called Accredo with express scripts yesterday afternoon and I was told that my Harvoni was denied. I was told that my paperwork stated that I do not have Hep C and that I did not have a liver biopsy., crazy! I called my doctor's office and they were aware that it was denied. They told me they are going to appeal it. They said they would work on it Monday. I was told it could take up to 14 days to appeal it. I called GEHA, my health insurance and they were not able to help me. I told them you have all my paperwork stating I have Hep C and I had a liver biopsy. You paid to have all of this done! I was on prior treatment for 14 months, over 10 years ago with peg and co-peg. I called Accredo again, they are a speciality clinic for express scripts and I asked for the approval dept. I was told that my paperwork is still being processed for Harvoni. I am thinking that I am getting the run around with Accredo because Harvoni is very expensive. Home delivery is $87,898.21 for a 84 day supply. I pay $5 with my co-pay coupon. I think they are trying to push Gilead to lower the price. I was on the phone for over 3 hours yesterday evening trying to straighten all of this out. I can't understand what is calling on. I was so confused over this. Each person I would talk to would give me a different story! I was so excited, and now I am really bummed out. I don't no how long they are going to stall this, and when and if it will get approved! I have the second largest health insurance company, GEHA, with the federal government. I will keep you all posted.
I have a unique experience. Due to so many horror stories I was told I put off treatment when all they had was the Ribvarin and Interferon therapy. When Solvaldi came out and reduced treatment time to 12 weeks and with a 90% success rate I made the plunge. My physicians and many people I knew said the first month was the worse then your body should adjust. Well I had the reverse. First month and a half was a breeze hardly any side effects other than slight fatigue but the last 6 weeks beat me up a bit, but I was still functional, going to work etc. But I made it through,and now undetectable. So all of you putting it off, if you can get the treatment. Please. Please do not wait, twelve weeks is very do-able. New drugs coming 2015 will eliminate Interferon and a 30 day regime is in testing. I wish you all successful treatment.
Started Solvadi/Olysio yesterday, 10/10/14, for a 12 week treatment. I've had this virus for at least 26 years. Didn't clear on my last Interferon/Ribivirin treatment. But feeling positive about the outcome of this one after doing much research. Praying everyone finds great health through their treatments.
I have had hep C for many years. I suspect since 1978 from dental work. When I started to feel sick (extremely fatigue constant sore throat, body aches,muscle pain....).After visiting many doctors i was diagnosed with CFS (CHRONIC FATIGUE SYNDROME) and later Fibromyalgia. Only in 1997, when I was tested for Hepatitis C and it came positive, only then, I started to understand what is going up with me. In summer 2013 I was lucky enough to get into Gilead study with Sofosbuvir/Ledipasvir + Ribavirin. I felt sick before treatment, but I feel even sicker after, practically bedridden. I'm wondering if anybody, has same experience, or am I the only one.
I was first diagnosed with Hepatitis in 1976. I never became ill. I was alarmed when I noticed the whites of my eyes were yellow so I went to a hospital and was told I had hepatitis. I don't remember them stating whether it was A or B. Type C was not yet recognized. I was told to get lots of rest and to eat healthy and it would pass. I lived a wreckless lifestyle in my youth. I drank heavily and dabbled with intravenous drugs throughout the 80's.
In the mid 90's I was denied health insurance by my employer because a blood test revealed elevated liver enzymes. I simply attributed it to my high alcohol consumption. I began to hear PSA's on the radio about Hep C in the late 90's. I didn't get tested mainly because I did not have insurance. It's easy to deny your condition when you have no symptoms. In 2004 after a routine physical it was revealed that I had Hep C. A hepatoligist explained the treatment option at the time. Interferon and Ribivarin. He explained the nasty side effects and the success rate was only 40%. My wife and I didn't like the odds plus the cost. So we decided to ride it out. I still had no symptoms. By 2008 I noticed that I seem to get fatigued easily but I chalked it up the age. I was 53. In 2009 I began to get ill. I began to suffer from ascites which my doctor managed with Lasix. Next I began to suffer hepatic encephalopathy which I was prescribed Lactulose. I continued to work though it was difficult. Lactulose is a laxative and I constantly had to use the bathroom. I began wearing diapers. In June of 2010 I was finally forced to stop working when I suffered a varices. Fortunately the company I worked for had excellent health insurance and I was able to keep the insurance through COBRA. Thanks to my wife's foresight I was able to get on SS disability as soon as my long term disability was up. With financial help from my sister I was able to maintain my insurance. My hepatologist referred me to the Mayo Clinic which is in my hometown. I was accepted into their transplant program and placed on the transplant list sometime in 2011. I progressively became sicker. I was hospitalized several times for a week each time. I was finally hospitalized in late Nov.2011 for the last time. By January 2012 I was "circling the drain"; as the nurses say. I was transplanted on January 6th. I have responded well to the transplant. I spent a week in the hospital due to a CMV infection the first year out but it's been 2.5 years now and I haven't really had any problems although I still get fatigued pretty easily. I not sure if that's not a mental thing as opposed to physical. I have my blood tested monthly. I undergo a battery of tests annually at Mayo. I still have Hep C but up to now they have not suggested any treatment for it. I don't know if is because of my compromised immune system or not but I am relying on their expertise to make the call. I believe that by the time I was diagnosed no treatment would have helped me. I had seriously abused my liver for years and I'm sure I was too far gone. The treatments have improved significantly since I was diagnosed and if you even suspect you may have Hep C then by all means get on top of it. I don't know what the future holds for me. If this liver begins to fail I'm not sure if I won't to go through the experience again. I've lived my life, my children are grown and I think I would rather someone else get a liver instead. I thank God everyday for my wife who saw me through it all and I'm glad to be alive!
I was diagnosed with non specific hepatitis in 1977. I was a drug shooter. I continued in this way for the next 30 years. Getting weaker, and suffering from joint pain and pain in my right side of abdomen. I felt a sense of hopelessness and shame, and attempted suicide, because I was just so tired of the misery . A wonderful woman that I am now married to led me by example, to the church. Out of desperation, and wanting relief, I asked Jesus to help me change my life. I started to try and make a better, cleaner life for myself. I found hope because of the examples in the bible. I was finally drug free, and cigarette free. No more alcohol for me! After living a lifestyle based on cleanliness, and holiness, Romans 12:1-2, I was praying for God to settle the hepatitis problem in my body. Later that day I received a call from a hepatic specialist. I am diagnosed as hepatitis clear. No hepatitis in my body. Liver function normal. I am free of hepatitis after more than 40 years! I attribute the outcome to the lifestyle changes which included no alcohol . No illicit drug use. No cigarette smoking. And most of all prayers. .. Thank you Jesus!
Hello, over the summer I shared a weed pipe that belonged to a friend of mine several times. We got into a conversation on September 15th of this year and she told me she had Hep C. I freaked out and she said that I didn't have to worry about anything because it's not transmitted from saliva. I've been freaking out ever since. I tested on October 1st and came out negative but it's still early. I can't function a normal life. Please help.
I am so frustrated with the medical help I am receiving because of doctors still refusing to understand what is going on with me, and my symptoms. I am told Hep C does not cause those symptoms, and completely disregard it as me being hard to work with. I was diagnosed back in 98 with greater than a million viral level of Type 1a, with Cryoglobulinemia in the blood, and the specialist told the doctors specifically all my symptoms are coming from the combo of Hep C type 1a and Cryoglobulinemia. They still didn't believe. I went paralyzed on my left side and face and they took me off of the Rebetron combo therapy. The specialist put me right back on saying that was a mistake. The paralyzation is the virus fighting the therapy. The doc giving me the combo called the paralyzation Bells Palsy, even though my left side was paralyzed, LOL. I finally got a pain doc that had good contact with the specialist, and life was tolerable, because I was given the meds to help me, specifically Marinol for the inflammation, and pain meds. I was getting better and then the pain doc died. My iron clad records were lost because they didn't believe Hep C would cause my symptoms, LOL. Passed around like a hot potato because they thought I just wanted pain meds, obviously I am in pain and now irate because I can't get Marinol which really helps with inflammation and pain, and to boot, I fail drug tests for things I was not taking. That's the way they would get rid of me. Don't doctors take an oath to help the sick? So here I am now fighting for my life and docs still looking at my liver function saying there is nothing wrong with you, and Hep C is not the cause of your so called symptoms. My doc does know I am in pain, I know that, but to what extent and what is actually going on with me no, not a clue. I watch patients die because they follow the liver function panel and when It says bad liver it's too late for a replacement, and they die weeks or months later. Sad. Good people fighting and in pain because docs here do not believe Hep C has pain. Honestly, I don't know how I am still alive, I am in so much pain, bleeding, and just all over hurt, joints, sciatic nerve, sweating at night, high blood pressure which was not cured with high blood pressure medicine but instantly with cannabis. My doc realized this may help after 4 years of begging, but after about a year of use I got better was getting out and was so thankful. Every appointment I would thank him for this and explain how so many things were getting better including my blood pressure which he was amazed. I could sleep. I didn't pee thirty times a night. I didn't go through 5 shirts with sweat each night. The uncontrolled nerve jerks stopped, migraines went away. Left arm numbness and feet and toe pain went away. Ankle swelling went away. My spine and neck hurt so much less. My back bone didn't feel like it had spines poking out of it anymore, poking into my liver and kidneys. Liver lightning pain went away, my God I was able to have sex and actually got a girlfriend. Guess I was doing too well, he said I would not be tested for marijuana. I still don't know why he couldn't put me on Marinol that's what the specialist said I needed. Anyway, brain confusion and irritability got better. He put me on testosterone because of no testosterone on tests, and boom it was off the chart. So I get tested for marijuana and was told I failed a test, if I wanted methadone I would have to pass a test clean, but you told me I could use marijuana. Here comes the amnesia, no I didn't, I can't give you Marinol because you don't have cancer or aids, but I do have cirrhosis of the liver, doesn't matter, I really feel like I was set up and now made to look like a drug addict. Only given methadone, my kidneys are starting to hurt I know I need to get to a lower dose of methadone and back on Marinol to help. My veins even came back on my arms with eight months of marijuana use, and only a puff or too at night, to sleep, and occasionally to eat in the day. Had I used more I could of gotten off of the methadone. I was cut off cold turkey before and have no idea how I survived. A patient with Cryoglobulinemia should never be stressed, and should be given meds to ease the pain, and If there is something that helps so much, why aren't thet given it? I am not asking for something bad. I have inflammation that is painful, this helps. Now I have high blood pressure again and Lord knows what damage has been done with this stress. I was doing well and enjoying life once again but as soon as I start to do well I am hit with a test that I was told I would not be given. They do not understand what I am going through. When I try to educate them I am told I went to school for this did you? Yet they still rely on liver tests to determine what is going on with me. I am stuck now because I have a failed a drug test. No doctor will take me. Now he is free to do whatever he wants, which I guarantee means I will be taken off of methadone which is the only thing I can get anyone to give me to help with the pain. I am being made to look like a drug addict because they do not understand Cryoglobulinemia or Hep C which is mimicking MS and Crohn's with me, which is what the specialist said. Marinol helps greatly and is used as a inflammatory medicine. Also for nauseous and actually as an antidepressant. When did the doctors stop listening to the patients on what actually helps and what the specialist says I should be on? I was actually able to not get mad at everyone and that is a great feeling. The irritability that takes over. They think it is just me and I am not that person. A huge difference was noticed on cannabis and if I had the money I would of moved but I don't. I was on the way to doing something about that but now I can't. I am trapped and looked at like a drug addict instead of someone sick needing help and I see so many people in the same boat who go to street drugs for relief and don't last long. I am trying to do what is right and get help from my doctors but can't get it I will die and there will not be on second of thought about. If I had given him Marinol he would still be alive? No, I will be another addict who died and the world is a better place without me. I can still be someone who can benefit society only if given the tools so I can fight the terrible disease. I really don't understand WNC. It is such a beautiful place and people, but backwards in helping Hep C patients. Now If I had AIDS it would be different. But I am glad I don't. I do think my symptoms should allow me to be put on Marinol. A doctor has the legal right to allow me to use marijuana if he thinks it would benefit the quality of my life, yet, I am told his hands are tied. I know his job is more important than my life yet he could ask his boss for special help with a Hep C patient since I have Cryoglobulinemia in my blood and he has seen himself medically how Marinol would bring down my blood pressure and help me. Also cirrhosis of the liver should be enough to allow me. As well as the nausea, swelling of ankles and backbone, depression and irritability, night sweats, the list goes on and on.
I just had cataracts. I came in and said I can't see. The doc said "I don't see anything wrong but I will send you to an eye doctor anyway". 49, with cataracts. Probably because of Hep C but no, they don't think so. I am treated like a criminal. It just isn't right. I am not believed and that hurts. There should be some sort of patient's rights for Hep C here in WNC and I need help getting the respect understanding and medicine to live. When I start listing all the things I am diagnosed with I get laughed at. Shoot! Shouldn't inflammatory bowel disease be enough to get Marinol? And with a failed test, I am screwed. I will not be taken by another doctor. I am being used like a puppet. When I die it will be too late. They think I will go down slow but I will not. I have seen too many go through it yet still they have their belief. I was told Hep C is like the flu and you will get over it in a week or two. LOL! This was from a Gastroenterologist. LOL, my God. I was told I was faking the paralyzation, lol, and was yelled at by a nurse. I think I have been yelled at and not believed for so long there is no wonder I have a bad attitude and when I simply ask why am I being charged 12 dollars for two testosterone syringes, because I can buy them for 30 cents a peace down the road. I am called a trouble maker and was reported to my doctor. I am being pushed into a corner and really have no options but to either go to street drugs to live, which I will eventually die from or wait another 10 years for the laws to change, which they will but I don't have another ten years. If I were not dependent on the methadone I would have some choice words for them and I would medicate myself. I know I cannot go through another methadone withdrawal I don't know how I survived the first but it hurt me bad. I am being put in a situation to act a certain way. They count on it. My medical record is being destroyed making me look like an a$$hole and I have no idea why a profession person acts like this. I am not a professional. I don't have to act like it. I am sick, scared, in pain, and acting like I am. I thought I had a great doctor who understood. I was being manipulated only to make me look like a pot head. Yet the proof is it helped and they refuse to look at it.
I am 29, female. I had few blood transfers within 3 days after my birth. I found out I had HCV some time ago. The guy I am in love with disappeared within a week after I told him. What a heartbreak. I never did drugs, didn't like alcohol. Unfortunately, now I don't see a reason to fight. I don't like my life and I don't feel strength to change anything. My family is supportive, but they only annoy me with saying that my liver is ok, so I don't have to worry. My liver is fine but my soul and brain want to quit. How can I dream of love and babies when the bomb is ticking? It is the most stupid illness in the world. I didn't do anything wrong to get it, but I am ashamed of it and have to suffer quietly. No one feels really sorry, because they either judge you or say it's nothing to worry about. It's either a judgment or ignorance. Neither helps. I feel so sad and lonely :(
I'm a 50 year old male who was in a motorcycle accident on July 3, 1990. I lost a lot of blood so they gave me whole blood and packed cells. It happened in Bell Gardens, CA. I was torn up. I tried to stay employed but because of the accident and because of Hep C I've lost everything. I don't have a scooter. No more feeling free, just riding, especially at night during the summer. Hep C has been a horrible existence. I may be alive by doctor's standards but by mine it's a rough time especially when I see guys cruise on by me. I think for me that is the hardest part. I've finally gotten rid of, or should I say that I am what they call undetected with Hep C genotype 1. After Pegasus and Ribavirin I, interferon, Ribavirin then Infergen, and Ribavirin then 2 other types of treatments, I lost my teeth, my hair, and now I feel like I've lost myself as well. My hope is that if anyone reads this and they just found out that they're Hep C positive by all means follow your doctor's instructions. Take your meds get a strong support group be it friends or family. Sometimes talking to a stranger helps a lot because sometimes you don't want your loved ones to worry. If you have a strong support group behind you I would imagine it would be easier to cope with everything. Stay strong keep your faith in GOD or whatever you hold dear. To each and everyone out there who has contracted this horrible disease DON'T GIVE UP YOU WILL GET BETTER!
I am a 55 yr young married man and was infected at 22 yrs of age. I am lucky to be alive. I've studied to learn about Hep C and take every herb known to help the liver to FIGHT this nasty disease. My Genotype is 1A. It's been trying to kill me for many yrs. Anyway my health insurance company has made it a point not the cover my treatment, I've had over 5 appeals rejected. I've cried, prayed, and called everyone involved in the process of my Hep C treatment. Now FINALLY AFTER MONTHS! my Sovaldi and the other 2 meds will be sent by UPS to me tomorrow overnight. I am afraid that it won't work, So I have been a nervous wreck reading and looking for anything that I can do to up my chances for it to work. I stopped drinking yrs ago, and my liver is pretty good from what the tests show, not much scars. I am 5ft 9inches and about 195 lbs. I pray for anyone who wants help, don't give up, because I am going to fight for my life, and I HOPE that I can soon write on this forum about my new life without the virus. Oct 1, 2014 my meds should be here! Thanks for your time.
My mom was told she would die. Many of the people wondered if she would die but I am telling you I prayed day and night to God. Now the virus is gone. Someone special told me she would live 38 years from now. Trust in God. I swear there is nothing that can't be cured. It will be cured. God really hears you just believe in him for He is the one that can't be away from you no matter where you are.
I am 60 yrs old. I acquired Hep C during my drug use years when I was in my 20's. Been drug free for 25 years now. Good job. Live alone and loving it. I never did treatment. I feel great. I have geno type A. I was terrified at first when diagnosed. Thought I was dying. I have suffered from PTSD since childhood. The fear of having this disease kept me from experiencing any joy in life. Depression kicked in big time. Dr recommend treatment but I refused. I'm so glad I did. I am a very happy and active 60 yr old and I hardly ever think of Hep C anymore. I only came across this site because I was researching headaches with blurred vision. Migraine? Advanced Hep C? Not sure but I'm living a normal life and appreciate every day of it. We all have to die of something one day and whatever I die of, I will still be greatly for the long life I was granted.
The high cost of this treatment has caused my Insurance Company, Anthem Blue Cross to deny my treatment of Hepatitis C. While they paid for a Liver biopsy, they claim that I am healthy enough not to need treatment at this time. We (me and my doctor) went around 3 times and failed to meet the criteria. I am certain it is the high cost of Sovaldi. While 3rd world countries pay as little as $10.00 per pill, only in America do the drug companies feel they can take advantage of the Insurance Co. and patients. I had this disease for 45 yrs. and it has changed my immune system with so many complications that it is impossible to identify the exact cause. I believe that Hep C is responsible for my Diabetes type 1, and recently I have had infections that require antibiotics at least 4 x this year already. They say that this drug works best on livers that are healthiest. Unfortunately, I might never know. I have participated in many clinical trials and now I don't even get a chance to find out whether or not Sovaldi will work for me.
I know this sounds bitter, I had put the best face on this. I am 65, taking care of my mom (91) with dementia and active in dog rescues.
I remember the exact event 45 yrs ago when I caught this disease, the time I tried intravenous drugs. I got sick with Hep B. Nothing I am proud about, but I can't change it now. I lead a clean life and I am sure that has something to do with the condition of my liver. 4 liver biopsies over 20 yrs has shown little progression of the disease.
Good luck to all of you that had success with their treatment.
I was diagnosed with Hep C in 2001. I was in a recovery home at the time and began the interferon/ribo-pak treatment. I had to stop treatment after 5 mos (with no change to my viral load) due to the fact that the recovery program was a work based program and the fatigue/side effects were so intense that I was given the choice whether to stay clean and work and pay rent at the home or leave as I was in dire need to convalesce during the treatment. I could not hold down a job and do treatment. It was really to much for me. I stopped treatment then in 2001 and went back to work and got clean. I have been clean since then.
Which brings me to the present, after 14 years, my viral load counts were extremely high and I started treatment with the interferon, Ribo Pak and Sovaldi for 12 weeks. I showed "undetected" for the Hep C virus and for once in my life could not even fathom a life without thinking of Hep C virus in my body....it was amazing. I did not realize that ever so slowly I had been adjusting to my fatigue levels, migraines, rashes, and nausea and an assortment of other side effects that come and go with the Hep C virus. After completing treatment, the Dr. checked the viral load after 5 weeks as I began to have nausea and pains in the liver again. The Hep C had returned and my viral loads were already half of what they were when I had started! It can be an aggressive virus to be sure. My concern now is how can I undergo treatment again and convalesce? I have no income other than what I have brought in. Last treatment I was on emergency food stamps and food pantry food. My General relief ran out and the Dr. is pushing for more treatment. I have to pay rent where I live....trying for disability and SSI but to no avail.
I am running out of options as if I ignore the viral load I may run into complications later...
I am 55 years old and finding work as you get old is not easy....
I contracted Hep C due to a couple of drug fueled years in the 70's. I found out after giving blood in 1996 by way of a letter from the blood bank saying my donation was denied and that I needed to check in with my doctor.
The doctor told me I had Hep C and did not think treatment was necessary at that time. I was healthy and did not see a need or reason to pursue treatment either. Little did I know what was in store!
In 2008, I had a surgery that did not go well and it took 4 months to recover. I think that's when the Dragon decided to go in for the kill. I was so fatigued all the time. It was all I could do to get up, go to work, come home, and go back to bed. My new GI really wanted me to treat the Hep C then but I had no energy and knew I could not handle the interferon. I was also under a lot of financial stress and could not afford to be sick!
This year, I had a 5 year follow up check and the GI told me there were new drugs without interferon as part of the regiment. I knew it was time. I wanted to be free of this disease and all the reasons I had it in the first place.
Fortunately, I was a stage 1/2 fibrosis. I did a 12 week round of Sovaldi and Ribavirin. I did have side effects from the Riba, it was not pretty but it was doable. Had an incredible amount of itching, extra sensitive skin, and a big ugly depression that hit me on week 10. I am currently waiting on my 12 week post treatment blood work and hope to be SVR as I have been undetectable since week 4.
I encourage everyone who has Hep C not to wait for treatment. I lost about 5 years to fatigue. It's great to finally feel better and regain some quality of life!
God bless everyone and hang in there.
There is hope for a cure from this disease. I've had the virus since 1996 that I know of and have been through hell and back. Nobody was able to do anything for me until about 2 years ago. I finally met a doctor that was more interested in curing me than profiting from me with empty answers and useless appointments. He's a doctor with North Shore gastro, located in Gurnee, IL. I tried the treatment with Pegintron and Ribavirin for 6 months about two years ago now, but into the fifth month became very ill with symptoms of Pulmonary Fibrosis caused by medicine and was forced to stop treatment and wait for next available cure soon to be out, omitting the Pegatron all together. Finally Solvaldi became available and I was treated with that and Ribavirin without having to inject Pegatron. I had genotype 4 so it was harder to cure. Instead of taking the Solvaldi with Pegatron for the usual 12 weeks for results, I was elected to 24 weeks instead. Tonight is my last dose of Solvaldi along with Ribavirin and was found totally undetected and clear of Hep C virus about a month ago. It's funny but I could almost feel it leave me. This treatment was provided through Illinois Medicaid/ Medicare, and apparently I just made it under the wire as they have stopped paying for this outrageously expensive medicine. The Solvaldi was $1000.00 a pill and the Ribavirin was expensive too. A total of almost $250,000.00 was paid to treat me by taxpayer's money and I thank each and every one of you. There are new drugs even better and hopefully within people's price range and grasp. It's been a long road with so much loss of work, relationships (including marriage) and income. Today, right now as I write this post, I am officially clear of the virus and can salvage what's left of my life at 57 years old. Thank you God, thank you taxpayers, and especially, thank you to the people behind the scenes in Israel that developed this cure.
Hi everybody.
I was diagnosed with Hep C in 2000. I did do IV drugs in the early 80's and also went to a very "sketchy" tattoo shop; when I was young. I don't really know when I contracted it, but does it really matter? I'm so sick of people judging you for how you contracted it. Does it make me less of a person with feelings or people that care about me if I was an IV drug user??? I think not.
Anyway I had a very low viral load for many years but in 2010 it climbed into the millions. Time to treat. I went on the standard Interferon and Ribavirin for what I thought would be 48 weeks. NO LUCK. I never cleared the virus and after 4 months they told me to stop, it wasn't working. Then in 2013 Invicik was on the market and my insurance agreed to pay.
So in September of 2013 I began my journey. I cleared the virus after 15 weeks. I was on the Incivik for 12 weeks and the rest of the 48 weeks was interferon and Ribavirin. I have never been so sick in my life and I wouldn't wish this on my worst enemy. The pain, nausea and just general fatigue were more than I felt I could bear at times. My husband and children were my rocks. I couldn't bear to tell them that I wanted to stop, so I kept going. I finished treatment in August of this year and just found out I am clear of this hideous disease for now. I have hope again. I still don't completely feel like me but am hoping that I will. I am hoping the universe will grant me health. I'm not religious so I don't thank God, I thank my incredible doctor and myself for doing what I had to do.
I AM THE DRAGON SLAYER!!!!! .
Wishing everyone health and healing.
I must have got Hep-C 1a sometime in the early 80's. I never really had overwhelming symptoms except always being tired. Then a girl I used to party with found me on the internet ant told me she had it and also my ex-wife had it. I stayed in denial until my work had a blood drive so I donated blood this was 2006. About a month later the Red Cross sent me a letter telling me I had the antibody for Hep C. So long story short I ended up being sent to a very prominent liver doctor and he checked me out and said other than your Hep C you seem to be in good health. Would you be interested in being in a clinical trial? Lucky I did because I was laid off two months later so would have not been able to pay for the treatment but because I was part of the trials the pharmaceutical company was paying for everything. So I was taking the interferon shots once a week with another drug and the drug they were testing was the protease inhibitor. I had to go back every week for blood tests for the first 6 weeks. By my 3rd visit they had the results. From week 2 my viral levels were way down. At week 6 the virus was undetectable. After 3 months they took me off the protease inhibitor but kept me on the interferon for three more months. I would get a little sick after the shots and my hair turned all gray and a lot of it fell out but I did follow up tests for three years and I'm virus free. My hair came back. My friend, that first tipped me off, passed away the first month that I started my treatment and my ex still hasn't been treated. Lately I seem to be suffering from neuropathy in my legs.
This post has been a hard one for me to write. Today, I just had to share my story with all of you. So I have wrote a brief thing about my life the past two and half years.
Over the past two and a half years or so I have gone through a lot. While I was pregnant with my beautiful daughter, I found out that I had a life threatening disease. I was so worried that I would not be able to watch my daughter grow up. A month after she was born was holding her, I closed my eyes and said my first prayer in a very long time. Later that morning while she was napping, I got online and Googled studies on websites for my disease. The first one to come up was only about 5 miles from my house, so I called. A few weeks later, my life changed in more ways than one. Not only was I being treated, God had placed an amazing woman in my life. After 6 months of giving my self shots, taking nasty pills, and getting my blood drawn. I am proud to say that I am cured. The doctor at the study told Josh and I that I am a marginal case. Within 3 months of starting the study I was at a 0 virus load. Over that year of treatment I felt God with me every day. While I was still in treatment Josh and I begun to go to church. I know everything happens for a reason, if I had not have said a prayer that morning while holding my daughter, I may not be where I am today. I owe my life to God. I also owe a huge thank you to Jea for be such an amazing wonderful person. Most of all my wonderful husband for being there while I was going through my treatment, I could not have done it without you. I love u baby.
I just got home today from a GI specialist and she told me that I have a healthy normal liver.
I have been hiding this from everyone except my family and close friends. Now I am not going to hide anymore. I am proud to say I had Hepatitis C and I kicked it in its ASS!!!!!
Hello to all, I am a 59 year old female who has had HCV 1A that I also passed on to a daughter born in 1994. Up to that point I had worked in the same blood bank since I first started in 1976 as a Lab Tec. Back then we didn't wear gloves, and mouth pipetted blood. I had gotten numerous finger sticks and the disease was then called Non A non B. I handled many biohazard bloods that were contaminated with AIDS and HCV pos. So I don't know when I contacted it though I felt terrible in my 2nd pregnancy. After my daughter was born and when I drank I just felt awful which alcohol didn't bother me before. With fatigue and just feeling bad in general I had blood work done and found out I had HCV. I think I had it got it during pregnancy since I was so weak and had general pain in the liver area. The biggest change I noticed was terrible depression, heavy brain fog and a hopeless feeling. I remember looking back to the way I used to be and remembered what I was like- very frustrating. I went to a psychiatrist and being able to talk and take meds did help. He would use the analogy that I was able to maintain my life till the computer crashed which was partly true but the HCV was not asymptomatic. This went on for about 17 years till I tried the Riba and the Pegacys. A good responder. I had my hopes up but stopped the year a month early due to depression and relapsed. Once my daughter turned 18 a year ago we tried again together with the addition of Incivik to the mix. We were lucky to qualify for a grant which covered the drugs except for the Procrit we took for anemia. I tolerated it pretty well but poor Cindy dropped to 91lbs, was nauseous and weak to the point of being faint. We were fast responders and were on the meds 6 months and then waited 6 agonizing months to be tested. WE are both virus free. Now I read they are going to stop Incivic since there are better, newer drugs coming out. Good news for the next generation of users. Best of luck to all and my prayers.
Hi. I was diagnosed with Hep C in 2008. I was 18 yrs old. I'm now going to be 24 this year. I've gone 6 yrs without treatment of any kind. I need information on what lies ahead for me. I read I little about the biopsy but I do not want to do that. I will take the meds but where do I go from here. I'm lost in all this. If anyone can get back to me with answers please do so. Thanks, have a blessed day...
I started my journey January 1, 2013. It is now Aug 30, 2014. I am undetected of the virus. It was a battle from Incivek to Vectrilis. Then finally to Sovaldi. I thought it would never end. But I had a higher power that was taking care of my needs. My wife and my grandson helped me through my whole treatment. But for me God had to be there. My attitude was my only side effect. That's just me. I never once said I give up and I'm in AA but I could not surrender to this virus. I had to fight it with being positive and I keep myself busy. They say you can't hit a moving target, so off I went every day. I took my grandson and wife to the park, to the movies, anywhere they wanted to go we went. I stayed positive. I would say 60% of the time when I felt myself falling short I would grab the Baby and go to K-mart and buy him a big box of Legos the more pieces the better. I stayed busy. Made my Dr's appt. Did not give up as long as I was breathing. I was going to fight. I'm not saying it was fun but life is fun. I did not want to miss out on all the fun I had left to enjoy. CAT scan, needles, pills, Dr appt. It was my second job. There is help for anyone still suffering from this virus. Get it. Have your support group find your geno type. Find out how far along you are. Just don't give up. I have a lot more to say but for today I'm good. I pray every night for those who suffer from this disease. Do something. Do not wait. The time is now.
Hello I'm a 56 year old male, I contracted HVC in the late 80's or early 90's, from drug use. I wasn't diagnosed untill 2008 after a mining accident. I was in stage 3 ciros. treatment was not a option. My white platlet count was down to 700 so surgery was out too. I was lost, depression took over. I was told to get my affairs in order. I was a single father of a 1 year old. I found a great doctor that put me a program to raise my white platlet count. Infusion's and transfusions for 8 months, then I was approved a trial med called Nplate. My white platlet count went up right. When it got to 145000 I was put on a transplant list. I was very sick for the next 2 yrs. Fatigue, bad nose bleeds, lots of pain. Some very dark days. I made plan's for my young daughter's future. When all hope was lost I got a call 18 months later, at 3 am on 8/22/12 they found a liver. I'm 2yr post opt. on anti-reject meds. I just celbrated my daughter's fifth birthday. I'm still HVC pos. but starting a new treatment to put a end to this story. But just don't give up, keep the faith. Believe me it's long hard road but there is a light at the end of that tunnel. Find a good Dr and listen to him, mine saved life.
I learned of my hepatitis circa 2014. I've got medical insurance and because my load levels aren't high enough I do not qualify for treatment.
I have a new love of my life. He found out and still stuck by my side but we both yearn to have a child and I fear I cannot. Now I have to wait for a state hearing and that's all I can do. The doctors found a cure alright. They stick an IUD in and tell you they cannot help you. I don't know if I would be a fool to think "screw it" and have a child. In the mean time they say the odds have passing it to baby are 18% that's not bad odds. Someone please help. I'm open to suggestions.
I am about to start treatment and I am terrified. I have four kids. My son is one year old. Not sure I can do this. Does anyone have anything helpful? Maybe give me some insight? Please?
Hi there, I can say I am a survivor of Hep C. I was diagnosed in autumn 2003 in Romania, I never took drugs or played with needles or never had multiple partners. I use to go weekly to manicure and dentists and in 1994 I had blood transfusion-from there the specialists said I might have contracted the virus.
For 12 months I was on the treatment with Interferon and Ribavirin, and Thanks God it worked.
As someone said here, was difficult as single mom with 3 children to fight the disease and look after the house but I got an huge amount of support from my father (RIP). What helped me perhaps was everyday looking at my kids and realising that if I don't fight against the disease my kids would be lost- they needed me and I had to be there for them always and forever.
The treatment, yes, it can be difficult, all the bad symptoms of flu, depression and nausea 24 /24 7 days a week for 12 months. All those months I eat almost raw vegetables, especially carrots and cabage, and I had tried to eat as little as possible any meat, no coffees, no cigarets, nothing that would give me any burden.
There might have been days when I ate only oranges because I could not eat anything else. And, I was active, I did all the chores in the house, the first six months I was out of work but then after I started. working 14 hours 5 days a week. Was much, but I done it and again I will mention it is important to have the right moral support from family and friends.
I am ok at the moment, the viral units are not traceable and I don't know what internal damage had created the treatment-not yet.
Fingers crossed.
I wish to all of you stay optimistic and think positive, you will be the winner!
Got Hep C in 84 from drug needles. Off drugs since 85. In 2005 began drinking. Quickly escalated into black outs, DT's ....serious stuff. Became bedridden from alcohol, couldn't walk. In June 2007 blacked out 21 days. Body going into shock. Went to Rehab and quit drinking in 2008, havent drank since. Diagnosed with severe Bipolar and psychotic episodes. Became mandatory to take psych meds. Have been on 3 or 4 since 2009. Psych meds quickly overtaxed my liver. Now it gets quickly toxic over even a vitamin. Have serious myoclonus, chills/sweating and stutter if toxic. Need constant bowel flush to prevent toxic build up. Utterly exhausted for days but wonder if its Hep C or BIpolar?? Have almost no medical coverage. Learn most info online. Mind faded. Dizzy, trip, confused. Wonder constantly if after 30 yrs with Hep C do I now have Cirrhosis. Biggest question, "do I have Cirrhosis?"' MAy not have all symptoms but know I am rapidly getting worse.
I was born a jaundice baby in 1965 and had to get a blood transfusion. That is how I got hep c. I never felt well my whole life. Went from dr to dr and couldn't get any diagnosis. Fast forward to 2012, I was getting red blood spots all over my thighs and later on my stomach, then I had horrible charlie horses and severe pain. In Jan., 2014, the blood spots became bigger and bigger on my feet and ankles, soooo much pain! 19 Doctors later I was admitted to the hospital. I had cryglobemia vasculitis due to Hep C. I was immediately put on a 12 week sovaldi interferon/ribavarin treatment. My viral load was over 4,900,000 and after 3 weeks was already undetectable. I am now 5 weeks post treatment and still undetectable. The side affects were harsh for 2-4 days per week and I had very little energy. Now I have insomnia and gained 15 pounds so I'm guessing hormones are affected as well. I have also thinning hair from the treatment, lost taste and cannot stand certain things like touching cardboard, eating with a fork but I know it wil go away. God is so good!
Dear Fellow HCV Sufferers:
I want to share my story because I believe that I might be able to give others hope where they feel they are in a black cloud to despair.
I was diagnosed in 2003. I was shocked and floored. I could not believe something this horrible would happen to me. I felt my life was over for awhile. My imagination went wild. I felt like I had the plague. I felt like I was contagious and like I would never know close relationships again. I told nobody about my diagnosis. Not even my family. I was in a cocoon. I still have not shared my disease with anyone but my husband and others who have it. I am 58 years old. I was feeling tired. I also have diabetes so I was in for a double whammy in my eyes. I went to the Dr. and was placed on Interferon and Ribavirin. My viral load was at 13,000,000 and I had genotype 2b. Friends told me the trick was to drink as much water as possible to fight the nausea. I had rashes and hair fell out. I worked full time through the treatment. I took my shot on Friday night when I could rest. Whenever I felt nauseous I drank water very closely to fight the nausea. I got through the treatment and hardly suffered at all. I cleared the virus and have been undetectable for 8 years. If I had not cleared it I would have kept trying. They have better medicines today and better ways to clear the virus. I tell you this because I do not want to see any of you give up. I did not and I am living a normal life today. You can do it. I hope this helps some of you who are feeling isolated or alone or frightened. Godspeed to my fellow HCV sufferers.
Hep C for 50 years. Last bio stage two. Dual tx, starting late week 3 through end of tx, severe fatigue. Viral counts all negative, now 5 weeks end of tx still not detected. Some fatigue continues. Hopefully it will resolve. Now slight exercising. Within two weeks all chems normal, including over.100 point drops in alt ast. All in all, was tough at times, but not like the old feron/RIBA
Go for it.
I actually cried when I read the first story. Didn't even get through all of it really. Even so, here's mine: I'm a 52 yr. old Native American who caught Hep-C by way of a tattoo back in 94. Diagnosed in 2000 while getting a physical, I didn't take the news seriously because, I was a drinker not ready to quit. I never felt sick, never had anything really go wrong with me for a few years until about 2005. It was then that my right side starting aching from time to time. It went on like that until about 2009 when I came to the conclusion that this thing wasn't going away ever now. It was always there, 24/7. I knew what it was, but still I continued to drink my Ice beer. Then, on the 4th of July weekend of 2010, my son who was 21 at the time gave me a call. He asked me if I was drinking. I told him "yes", and he said, "I can tell." Right then and there, for some weird strange reason, I told myself I didn't want to do this anymore. I don't know why I did it, but I did. As the days went by, I felt no different. No ill effects at all. Actually started feeling better about a week in. After two weeks I felt GREAT. Side still hurt, but I felt fabulous otherwise, and this is coming from a HEAVY drinker of 10 years, daily. Anyway, in March of that following year, I visited my son who had a cold. I caught it, and that's when it hit. Like train, I was blindsided and I've never recovered. That cold almost killed me. I laid in my bed for 3 straight days never getting up. Not even to go to the bathroom. Didn't have to. When I came out of the room, my wife looked at me wide-eyed, hugged me, and then pulled away in horror like I was something unclean. She immediately took me by the hand into the bathroom, and dropped my towel robe. Everything seemed to stop for me at that very second. My life was no more. I didn't even recognize myself. For an instant, I thought it was some kind of trick she was playing on me. I can remember asking myself, "who's that? How did she do that?" I don't remember the rest of that day, nor the days to follow. You heard that right. My memory has never been the same. I don't remember the day before today that well anymore. So, a few days later someone mentioned Social Security, so I called an advocate. I was schooled that it wasn't the Hep-C that would win me a claim. No, it was the mental (why is it so freaking hard to spell world backwards? LOL!). This advocate sent me to a community clinic and that's where the nightmare really began. They threw everything at me including Oxycodone, all I wanted. Shrink pills, and pain-killers, the latter being for the pain in my side. Didn't help. What they really pushed was Diazepam. Anyway, after about 4 months, I went in and ask why I was taking these pills if they didn't help me. I was a thrown out for that one. Because I was concerned about these medications, I was given the boot. I went to my new PCP the very next day and told him. He made a few phone calls, found out what I was saying was true, and then proceeded to wean me off the valium. He didn't have to do anything about the Oxy's. I refused to take those anymore (Don't ever do this. It almost killed me.). Well, the weaning was for about 3 months, and as I know now, it didn't work. I was more anxious than ever. This crap just getting worse. I never had anything like it until stopping those valium back in 2012. Boy I was struggling. I finally found another shrink. She saw beyond doubt that I was a basket case not even being able to talk without crying. It was like I was waiting for a car wreck to happen 24/7. Stress like I never thought possible. No sleep, no eat, no sit, no nothing. I was too scared. Let me also top this off with Doctors, no matter who I went to, were telling me -- "You're fine. Your liver is only borderline, almost normal."-- BULL, I don't care what they say their tests showed. Something was not right and it was the source for my condition. Sure is hard trying to get a point across to Denial though. Now, I was still seeing the same Shrink who eventually threw her hands in the air and gave me another med that I hadn't taken before. Heard of it, just hadn't taken it before. The drug? Klonopin. After about 50 days or so, I started asking questions about that drug as well. They didn't help either. My answers came not by way of a Doc, but by researching. When I learned that Klonopin was also a Benzo, and what it could do upon re-introduction, I was floored (Ashton Manual). These Docs didn't know what they were doing. Not only do you not do that, but I have Hep C and I have to watch everything that goes in me. Yes, my education came quick. The more I read, the more danger I was in. Needless to say, I quit them cold turkey just like the Oxy's, telling no one. That was back in Oct. of last year. Those side effects are still with me. I still get anxiety from nowhere and it hangs around for days. I honestly live a life of car wreaks than I don't. I'm a textbook case of what not to do. How not to treat. Eventually I found a Doc back in Jan. who I thought took pity on me. Come to find out, he was disingenuous. I was a lab rat, still am. On February 21 of this year, I started Sovaldi and Riba. I have one day left for 6 months total (Genotype 3a). This treatment has been HELL. The anger I suffer from is not likable. Not even for me. I HATE MYSELF!!! For being the way I am, I despise it. I mean really! How do I tell my wife that I'm sorry? REALLY? Nothing can take away what I've put that woman through. NOTHING!!! Whoever said this crap is easy never had to take it themselves. There are physical effects, but they don't hold a candle to the mental part of it. It's pure torture. Never goes away. Try living with a splitting headache for 6 straight months. Have your weight fluctuate 20 lb.. for that long when you're also a cardiac patient. The COLD. OHHHH, THE COLD!!! So intolerant, and it can be 106 like it was a few days ago. Numbness. My hands aren't right anymore, nor are my feet. My ears also have pressure problems like high elevation, and it feels like little crawling bugs are trying to get out of them. I also get electrical pains behind each ear on that hard bone. When that comes everything stops, I don't care what I'm doing. It's like exposed nerve pain from a bad tooth. The kind you just can't stand. Everything turns green and then, darkness. Can't see anything for several minutes. Total Agony. These drugs I take are the cause of that one. Doc says it's my body's way of responding to trauma. Still though, it's the mental I can't get over. I don't think I ever will to tell you the truth. For those who are tired of being put off. For those who've been told that "you're fine". . . YOU'RE NOT!!! Don't let these unethical Docs fool you. If your wallet isn't large enough, "you're fine", get it? Earlier, I mentioned the Doc who's started me on Sovaldi. Well, that's only because of the end results. Think about it. Not even the VA could get this drug when I started it. They want to try it out on the poor first, and that means mentally impaired SSI recipients. Don't let anyone try and tell you different. Also, I don't care if it's a direct response to my story, I will never accept the so-called fact that I'm fine when I have an infection that will kill me young. NOT ME!!! If it wasn't for Sovaldi being brand new, and my mouth, I'd probably be dead right now. God only knows how much more harm these Doctors put my liver through giving me drug, after drug, after drug throwing caution to the wind. MOF, not one Doctor I've seen knew that starting in 97, Hep C kills more people than AIDS. Not One!!! Heck, I actually had my gall bladder removed in 2006 because of it. No tests, no X-rays. Just slice n dice with the promise that that's what the problem was. Don't be like me. Don't ignore this infection. Don't wait to educate yourself. If you haven't yet, the next time a Doc tells you that you're "not sick enough yet". . . get a new Doc.. Don't wait. Do it that very second. Just walk out, and never go back. That place will allow you to die. I mean, the entire point of medicine and its administration is to treat the condition BEFORE it gets worse with the caveat, if you have BANK. That's what they don't tell you. All those fairy-tales you've been told about the U.S. having the greatest medical care in the world is horse-hockey. It's the $$$ part they're leaving out which constitutes that statement as being a flat-out lie. I know because, I lived it. At the same time, I thank my Jesus that I did live it. Without Him, no-way I survive. No-Way!!! To give you a for instance of just how bad this healthcare system is, the Doc who made it possible for me to start taking Sovaldi now doesn't even want to see me after I'm done. I'm supposed to call for my end results 6 months after tomorrow. Yep!!! Call us. I truly wish I could hold all of you and make it better. I don't know you, but, I ache because I can't. I know what it is you run from. I know your pain, your cares and desires at your lowliest moments. Please don't let what I've said scare you. Better yet, let it prepare you. Prepare you for an absolute nightmare. . . if you want to live. That's the challenge. One day left. I very much Love You All. May my God, Jesus Christ, be with your spirits.
I was told that I have Hep C in April 2014. I was shocked, scared, embarrassed, and then depressed!! I just took my first dose of Osvaldo and Olysio today. I have been so tired and sick the last four months that I am scared of the side effects. Please pray for me and wish me luck like I am doing for all of you !
I'm a black female, 55, and was diagnostic w/hep b in 8/2000 after donating blood to the Red Cross. In my 20's, I was an IV drug user in the early 80's to 90's, and a heavy drinker. When the Red Cross contacted me about the results I brushed it off because I didn't share needles. I was always the first to take the shot. (At less I can remember it that way). So I blocked it out of my mind.
Now here it is 7/2014, after going to the doctors for a physical because I wasn't feeling very well and after waiting 15 days for the results which I had to call about (here it comes up again). Wow!!! So I got to thinking what the hell.... Still pondering the situation the Holy Spirit told me remember donating blood to Red Cross. So I got online to look up the number to call. They reminded me of the donation in 8/2000 and explain a lot of info to me more then I can say about my doctor and her staff. No call and I had to ask them to mail me my test results. On my follow up my Dr. explained that I have type b and c. And for me to make an appt for the GI doctor, plus took more blood work this time heatmax genotype reflex.
15 days go by and again no call or mailing of my results. So I called to have my blood work sent to the GI doctor and the nurse explained that my doctor hadn't read the test as of that time. 15 minutes later the nurse called me back to say that the results were faxed to the GI doctor and good news no hep c but still have hep b. Hallelujah!!!!. As I arrive to my GI appt the doctor explains to me that I have hep c geno type 1-b. WTH!!! ;(....
Now I need to get a ultrasound and a biopsy and then we can move further.
Looking online and Sovaldi costs $84,000. That sickens me. HELP!!!!
I was diagnosed with chronic Hep C genotype 4 in the beginning of January, because of insurance purposes I haven't done my treatment. Hoping to start my treatment sometime before end of this month. Thank you all for all your stories, it helps to read and know that there is hope. I am 48 years young with a kind and loving family..I thank God for my wife she is my rock:) I have 5 children with the youngest being 5yrs old, and grandchildren whom I want to be around long enough to enjoy life with them .. will keep everyone posted as I start treatment and hopefully I too will have a success story! God bless :))
I decided to get treatment. I do not know how I got this Hep C. I am going to start treatment tomorrow. I read all web sites and stories, I was scared to death. I finally talked to Walgreen's central pharmacists. My advise is stay off the internet it will make you crazy as it did me. After talking to the Walgreen specialists I feel so much better. Don't be scared talk to someone that has knowledge that has dealt with this for years. I am going into my treatment with such confidence. Just do it don't be afraid. Please. Good luck.
I contracted HepC in 1972 when I had a blood transfusion to save my life. I was 7 months pregnant and started hemorrhaging. badly. They had to take my baby and in the mean time replace almost all my blood. Thank God that all though they told me my baby would die, she will be 42 in Sept. i found out I had HepC in Nov. of 1999.and I have type 1A, although I didn't know that until may of this year. Everything seemed to be going well after 13 months of treatment with Interferon and ribavirin the side effects were horrendous, for me, not everyone has the same side effects. It was worth it to be stabilized. Because of the type 1A I was what is called non-responsive. They had done all they could.
Now I have 2 cancerous tumors in my liver and the Hep C is worse and some cirrhosis. The problem I have now is being approved for treatment by my insurance. I feel like they want me to be at death's door before they will help with getting the new treatment Sovaldi or the procedure for the cancer called IRE. seems like a perfect name. The insurance is the only thing holding it up. At first the Doctors thought I would need a liver transplant, but if I can't get these much cheaper treatments how the heck am I going to get on the list for a transplant. Why have I been paying insurance all these years if i can't get the help when I need it. It seems like nobody really cares, it's all about the money. My money. I feel like I don't matter as well as thousands of others.Ii know this should be just about the treatment and how it is helping or not helping me, but if I can't get treated for cancer or HepC I may not be around when the insurance company (Anthem BC) decides they might as well go ahead and approve the Sovaldi,. They should realize no other treatment has helped and now i have cancer caused by the HepC, oh that's right it is only stage 1. i guess I have to wait until I am stage 4 and cannot be helped at all before they will approve. Sorry folks. I just needed to talk about this, because I just got the second denial letter.
i hope things go better for all y'all
I'm a 62 year old female. Got HCV from a blood transfusion when I was in my mid 20's, I think. Discovered it when I applied for life insurance and they tested me. After learning about the treatment I chose not to have it. My regular doctor has been asking me to rethink my decision for about 10 years. I finallly went to talk about options again. I have 1a and a lot of it. Dr. Wants to do a scope of my stomach and a scan of the liver before recommending treatment. The treatments you guys have talked about sound horrific and I have to work every day, don't know how I can do it and keep my job. I don't want to tell anybody!
I really want to share my story to give hope to you all. I'm a 29 year old white female. I was diagnosed with Hep C when I turned 18. I wanted to be tested for all diseases before my insurance was discontinued. They told me there is no cure. "Eat healthy, live a healthy life style, hopefully you won't die from this horrible disease" pretty much. I was a thin pretty girl that never did drugs and got good grades. I told my mom. She got tested and realized she had Hep C too. She got liver cancer and died 4 years later. I prayed every night that I would not die from this. Then when I was 29 I got referred to Dr. Singh in OC, CA. He told me to do the triple Hep C treatment. It took 12 weeks. IT WASN'T horrible. The worst was being tired a lot. Well now I'm cured. Not one trace of the disease. Thank you savaldi! SAVALDI it's a miracle drug. Stay strong! You can do it everyone.
I had been diagnosed with Hepatitis C genotype 2 a year ago. I was told I had minimal liver scarring. My GI doctor treated me with Ribavirin and Interferon. It was a horrible experience during which I ended at the ER many times. The virus did not clear up. I saw another doctor specializing in Hep C for a second opinion. He told me to take a break and that we would wait for the better treatment they are working on for genotype 2. I am very scared to start the 2nd round of treatment.
Hep C changed my life. I believe that if I hadn't found out I had Hep C and did the treatment I wouldn't be here today. I have now been clear of the virus for 3 years and look forward to every day as a bonus. I was diagnosed with type 2 and after a biopsy they put my liver condition at stage 3- 3.5 4. The cirrhosis was a big wake up call and all my aches and pains suddenly had a cause. I used hard drugs in the 70s and was a heavy drinker so can only blame myself. I also lived in abusive relationships; I believe resentment manifests in the liver. I left my narcissistic husband of 21 years a week before my treatment finished, he was never supportive of me during treatment or even before.
I didn't realize how sick I was until I did treatment and had almost immediate response from my pains etc. it wasn't because I was getting old or trying to get attention or arthritic as as he always tried to tell me if I complained. I was so use to putting my health on hold because his was always worse... yeah right. I gave up drinking for 3 years, did the treatment, left my husband and have never looked back. I am sure letting go of the resentment and built-in anger and grief I felt for my life has helped in my recovery. I was becoming so angry, miserable and negative with my life, but now I wake each day happy to be alive, pain free, still single but no regrets or resentments just the pleasure of been a ive and living MY life for me.
Don't Give Up there is another side to life. If you can do the treatment do it.
I tried natural methods after my wild teen years and not having used hard drugs for over 30 odd years. I brought my family up on natural therapies, so it was hard for me to resign myself to do the interferon treatment, but so pleased I finally got my head around it. I'm now 56 and feel like I'm living my life over happy and painfree.
I know I have had Hep C for at least 15 years or more. I found out that I had it when I volunteered to donate blood through the Red Cross. I was devastated and ashamed. I wasn't sure when or how I became infected. I didn't tell anyone for fear they would shun me and not know how to deal with it. Some would assume that just with normal contact they would cause themselves to be exposed. Lack of knowledge can be a terrible thing. My husband never contracted it from me and I have yet to receive treatment for it. The VA says because my blood work is so good I am not in any danger. Having one partner is a plus along with staying away from the use of alcohol. If I were a drinker I would more than likely have major liver damage but thank God I do not. I am still waiting for them to treat me. The cured they have had in the past have no guarantee. In the meantime, I have educated myself about liver function and Hep C so I watch what I eat and drink. The liver processes sugars and the carbs so I do limit my intake. God is on my side of course and he takes care of me.
I was infected with type one geno Hep C 13 years ago. 12 months of tripple therapy recently failed to rid me of the virus. I was suicidal whilst on treatment so I gave up on my treatment. A year later I decided to try again I was shocked and happy to find I had rid the infection on my own and I am still negative to date.
I am a 69-year-old woman who was diagnosed with Hepatitis C almost 10 years ago. A few months before that I was diagnosed with breast cancer (2nd round with this disease), lost my job to outsourcing and was told that I had to have a mastectomy. I had the mastectomy, got my Hep C diagnosis, and fortunately was put on disability. Almost lost my house but, in the end did not.
Three years ago my only child, a daughter, died suddenly and unexpectedly. I have been quite sick from the Hep C for about 10 years and I am unable to do most of what I want to do. I continue to get sicker.
How have I survived the total change in my life and way of living, and the most difficult and painful event in my life in the death of my daughter? My faith in God. There have been many times when I have felt exactly like dying, I couldn't stand the pain and also felt that I did not deserve to be here. Every single one of us is meant to be here, even if we don't know the reason. Don't give up! Start learning to have some faith in yourself. The best way to do this is to grow in your relationship with God. He loves all of us and is always with us. I know--I have been there. Severe depression (still have and on meds for that), severe illnesses, extremely bad childhood abuse, everything going wrong in my life, etc. Yet, today I have peace in my life and trust God completely. God and I have a great relationship and I have learned that no matter what happens, He will take care of me; He loves me; I am special to Him (as we all are); and I may not know what it is but He wants me here for a while longer for a reason. I am letting Him show me day-by-day what that reason is. My story is part of that reason (maybe most of it).
So, please, those of you who want to give up and think you are worthless, don't give up. No one is worthless. God does not make worthless people. Pray and ask God to help you and show you the way. I promise you, if you pray this way every day, God will reveal it to you. Pray for faith and trust as well. Pour out your fears and problems and insecurities to God and He will give you the grace to get through whatever is going on in your life. Continue to nurture your relationship with God by praying everyday. He is your best friend whether you know it or not; we let ourselves down and beat ourselves up, but God never does!
My life is very painful a lot of the time (physically and emotionally), but I have developed a very close and personal relationship with my God, and amidst the pain there is a peace that only comes from God.
Don't ever put yourself down. Love yourself--God does!!
My husband has Genotype 1A and stage two he started his Sovaldi and Ribovirin treatment and just two weeks after starting, his blood results shows that the virus is undetectable. This truley is a miracle drug. Whoever has this virus I strongly recommend this treatment. Even if your insurance doesn't cover it, go through the makers of the drugs it takes a little while but it's so worth it. If anyone needs any info on how to do all that stuff feel free to email me thank you GOD BLESS.
I want to share a story of interest with you because it represents a problem as well. I took the Hep b injection series back in 97 and ever after I have showed up on every blood screening as positive for c. Recently I had a intensive scan done for blood pressure issues and they confirmed that I do not have Hep C. I had doctors re take my blood a couple of times over the years cause they would say they saw no signs of infection. I think........the lab people are not very hip about identifying the strain accurately and they have had me on pins and needles for over ten years.
I was diagnosed in 1999 with Hep C. I went on the Interferon Tx for a year, and after nine months they took me off from it, it wasnt working. My levels didn't go up or down until last year, then they went up so I tried the treatment again. I did the one shot a week and pills everyday. After four months, I developed a horrid rash all over my body, it looked like I had millions of boils, and it felt as if I had millions of red ants crawling under my skin biting me. I thought I was going to go crazy. I laid in my bed for a month, naked, itching, taking every anti itch med you can think of. Finally after contemplating suicide I went back to the emergency room one more time. Now during this time my Hep C Doctor said to continue the treatment, I took myself off of it, I knew that is what was causing it. I then started using all non chemical soaps, I did liver cleanse smoothies daily, everything I ate was organic. The ER finally gave me a series of shots and my rash started slowly leaving, it took another six weeks, and the scars are just now going away. I got my levels checked about a month after this and my doctor said the virus is non existent now. I plan on having my levels checked again in a month and I hope it is still gone.
My husband was diagnosed with Hep C, geno type 1A 10 years ago. Unfortunately, treatment was not started in time and he decompensated. 7 years later he was transplanted. The virus was dormant in his system for 2 1/2 years after transplant then came back with a vengeance. 5 months ago he started Hep C treatment with Sovaldi and ribavirin and interferon. 2 weeks later his test results showed no trace of the Hep C but treatment was affecting his new liver and he was sicker than he had been pre-transplant. After 3 months of that treatment the docs changed course and started him on Solvaldi with Olysio. He's been doing great ever since. Viral load is still undetectable. I had been stressing out about the copays, $2,500 a month and since he is on Medicare, the drug companies would not give him copay assistance. I found two companies that cover his complete copay. The first is The Patient Access Foundation. Once I depleted that, he got accepted at The Patient Advocate Foundation. They also cover the copay at 100%. If you really are determined to get treatment, you cannot use the "I can't afford it" excuse. ObamaCare is out there for people with pre existing conditions with little to no premiums, depending on your circumstances. Then you have Medicare and Medicaid and the two foundations listed above. I know too many people who have died from this disease but I was determined not to have my husband be in that category. It was a long hard road and some days I wanted to just crawl under a rock an die. This disease was killing me as well. Nothing worse in the world than seeing a once very active, fun and full of life man just wither away. Our lives were on hold all these years. Nobody said it would be easy but anything worth having is worth fighting for and there is nothing worth having more than your life.
Hiya. I'm 24 years old by a week white female. I've been a heorin addict for... well can't really remember how long but is round about since I was 16. I've now had Hep C for 7 yrs and have my first app on 28th July. I've had app in the past but never went. Problem is I drink at least 4 strong cans of lager a day and my health is terrible. I just hope that I can turn it around and be a healthy young woman again.
Getting ready to start Sovaldi and Olysio next week. Previously Page Intron and Ribavirin regimen. Did not respond to standard therapy. Side effects for me were brutal at times. Very sick while on the regimen but stuck with it for 12 weeks. Viral loading was still present, but significantly lower. Side effects lingered for a couple of weeks after stopping treatment. Looking forward the the new combination therapy.
I was diagnosed with Hep C in 2002 after I entered rehab for my cocaine addiction. I began using intravenously in November 2001. I tried to commit suicide in December. As a result DSS became involved as I was the mother of three children. I tried to fight my addiction. I began college and tried to push forward. Took drugs classes ordered by court. I finally decided I needed to get help. So I entered rehab. The news I received later would forever change the way I saw life. I was in denial for years before I returned to get further tests in 2007. At the time my viral load wasn't enough for treatment. I returned in 2010 as I was beginning to feel sick and tired all the time. I took Ribavirin and Interferon for one year. I was undetectable at the end of treatment. It was rough at first but I managed to continue to work throughout the treatment. I thought I was fine until March 2013 when I had a Doctor appointment with a Rheumatologist. My blood work came back with my liver enzymes being high. I went back to my Gastroenterologists and my worst fears were confirmed. My Hep C had returned. In august 2013 I began the three prong treatment which now included incivek. I now know that incevex is the equivalent of chemo. I was so sick. I was supposed to eat 20 grams of fat for each dose of two incivek three times a day. Whatever. I couldn't eat. I lost 55 lbs. I literally tore the flesh from my arms and legs from the meds. It felt as though it was coming out through my skin. Extreme itching. I looked like a meth head. I was not informed of this even happening. The itching finally subsided. I found myself throughout my treatment feeling like I was getting more tolerant of the treatment to only lapse further into darkness. I can't tell you what all happened during that time. I still cannot remember the day's events to this day. I began to color and watch cartoons. It was like I was back in my childhood. It was pure hell. I have felt like I've been rehabilitating since December 2014. I don't think I'll ever be the same mentally. I have become an agoraphobic. I have irrational fears of claustrophobia thinking of the worst possible situations. I'm so glad to finally find out that others are still affected like myself. I'm glad I'm cured but I didn't want to feel like an invalid the rest of my life. I'm miserable. No one understands. Everyone thinks because the treatment is over I'm fine. Even the Doctors think the same. They have no idea. I used to be so smart but now it's hard to even remember and stay on topic in conversations. I lose hours everyday. I get told things I do the day before. I'm just lost in this world now.
I think I became infected in the 60s fooling around with needles and the stuff that goes with them. I wasn't made aware of it until '95 when my blood count came back high after a good drunk. After several tests it was confirmed I had the virus. But I wasn't sick and have never been since the intial test, my blood counts have been normal but on the high side of normal. Recently my Doc recomeneded the new treatment since I would be a good candidate for success. I am a little scared since I have never been sick. The cost is a factor too. Is there any down side? I can afford it since insurance will pick up all but 10%. What should I do right now? I think I am going to go for it. Thanks
Hi all, I was first diagnosed in 2002, and started my research. The only treatment available had severe side affects and a 20% cure rate. With many new drugs on the horizon, I decided to wait, and chose an alternative medicine route. It did help for a while, however my platelets and WBC dropped. I was diagnosed with genotype 2, the magic number. I recently started the Sovaldi/RibaPak treatment. There have been some side affects, however within three weeks, my levels are normal. I will be continuing for eight weeks, totaling 12 weeks. Hang in there all.
I am writing in response to Sandy I.
Girl stop this--- I am soooo there with you. I do not know what it's like to lose a husband, other than through DIVORCE. But depression comes in many colors. I wanted to die over and over for TOO many years. All the while I was caring a secret. I had Hep C and too afraid to do anything about it. So I kept the lie inside me. I drank as much as I could, hoping the alcohol would kill me or I would run off a bridge and die. I have been married 3 times but my last husband, the only one I loved, left me with "THE FRIEND".
I argued with my adult children which some of them still do not forgive me for the things I've done and said. I moved in with a man that I've lived with for 10 years that really could care less if I'm here or gone. BUT I AM GETTING TREATMENT starting today. After my divorce 12 years ago, everyone that I had loved either wanted me locked up in jail or in a psychiatric unit. I knew I needed help. So I went to school and took drug and alcohol classes. I received the help I needed to make it through that part of my life it may not have been the conventional manor but it got the job done. Sandi, life is worth living please girlfriend; reach out to this wonderful man who must love you very much. BE UP CLOSE AND PERSONAL WITH HIM. TRUST HIM AND YOURSELF. I've had so many friends to either die or kill themselves, those of us who are left behind it's not fun! I know its hard. I had an 18 month old grandson (extended) murdered a few years ago. I thought I'd lose my mind. I did nothing but cry every where all the time for months. You can do this Sandi, I promise you. With God and you, it can happen. I know this pain must be great for you to reach out like this, hang in there. Look for the good and I promise you can get through this BUT 1ST you have to find a reason to do that. I wish you happiness. Robin
Hi, I'm 27 years old, from Romania. I found about HCV at the end of last year, in Nov 2013, when I did my first semester pregnancy tests. This wasw our first baby, very expected, so were veeery happy... It was like a thunder... I cannot understand why, how I could have gotten it...never had surgeries, never taken drugs, no tattoos, don't get manicures, only 2 dentists visits ever (probably one of them grave me this), never donated blood...just don't understand. Fortunately, all other analyses are ok, my liver is not affected. Yet, now I expect our baby girl to come any time now. It's a bit sad I won't be allowed to breastfeed her. Most important it' s for her to be healthy, and I hope That one day I will receive the new treatment for this virus...or maybe I can join an experiment, or find an association that helps people with HCV...In Romania, the triple therapy is not even allowed yet. And unfortunately, the disease must be much more advanced for someone to receive the treatment... : (
I was diagnosed at age 11. I found out I received it at birth by my mother. We did not know either of us had it until we were both tested. I did not receive treatment however, until I was 17 in the recent dreaded study with the triple treatment. I luckily, only had to take it for 6 months. I am 18 now 3 months done with treatment and cured. My hair is pretty much gone and destroyed, my energy is pretty much the same as before and my mood is still insane with rage and I can't control it. I've damaged my relationships as well as my grades in my senior year of highschool, and I'm still on other medication to keep me somewhat stable.
I was diagnosed with HCV in February 2014. I was shocked when the doctors told me I had it. Never had I done drugs that involved needles nor had I ever had a blood transfusion. I wondered and wondered where did I get this from.... why did I catch it? I cried for days and didnt eat when I first found out. Now that I have researched Hep C and its transmission I have more of an understanding of it.
I had previously been working in the healthcare field and had also gotten few tattoos a few months prior to learning I had this disease. Although I went to a professional tattoo artist each time, I see now that even in professional settings disease control is very important. I will never know where exactly I got this from as I took safety precautions as a medical staff and thought I was doing good by getting professional tattoos.
Im excited to start my treatment. Since I found out I have been very depressed and everyone around me is starting to see it. They keep saying Im not myself but nobody knows or understands why. I feel like I need to take this on all by myself because its so embaressing.
After my treatments are finished I hope to get my life back on track. Before I read about treatment options I had convinced myself I was meant for death and that I could never again fall in love or carry another child due to this.
Im hoping going through my treatment will provide me with stability I once had. Im not even 21 and this is really scary for me. I have my whole life ahead of me and now I feel secluded and alone. I miss not having to worry about spreading a serious disease to everyone I love. Id like to get back on my feet soon.
It's down to five days left of my 36 weeks triple therapy treatment for Hep C with Victrelis. It's rather hard to believe the end is so close. The old saying "bad days" is hardly applicable for this experience. There is just an seemly endless progression of days, with plenty of bad ones thrown in. Fortunately I now live in New Zealand. So there has been little finical burden in treatment, $30 for 9 months prescriptions and hospital visits free. Oddly my liver is normal after 20 years plus with this disease. I have drank plenty of alcohol, but as the good-ole-boys in Virginia use to tell me "don't let the drink lay on your liver sonny", meaning give yourself a break and don't drink daily. I like my own cooking and I've been told that's the key to this minimal damage of the liver, there is no other explanation frankly. And my eating habits have never been some crazy regiment of "healthy"; eating, surrendering to the whims of latest trends. Just a varied, sometimes greasy, sometimes fatty, diet cooked fresh.
I can honestly say that what's on offer in cures for Hep C are medieval. But at present its all we have and as awful as the side effects, it worth the effort.
If you have this disease do what you can to cure it and if your waiting and pondering; like your own cooking and give yourself a break sometimes from alcohol. Then worry about the #7 bus knocking you down in the crosswalk. . .
Old methadrine and heroin addict, Ray N, gave me Hepatitis C. I was 19 and he wanted to hook me on heroin so I would stay with him, continue to work my good job, and support him. He stole from me, my family, my friends, and pulled an armed robbery at my good job, stealing, forging and cashing $3K of my startup company's payroll checks and buying himself a fancy suit, more heroin, and a plane ticket from California back to his home town in B, Ohio back in 1969, where he was later arrested for more armed robberies and finally incarcerated. I dumped him when I was 21 and moved to France at 22 to rid myself of him, after paying off all the debts he left me with. My job, friends and awesome new French boyfriend saved me and showed me what life really could offer. I never became an addict, but he sure did try to make me one. I did end up with Hepatitis C though, thanks to Rain, Rainmaker, Ray (real name Melvin). May he receive the karma he deserves for all the innocent people he harmed (17 year old girlfriend he dumped in Ohio with his child (and lied to me about), little old lady whose purse he snatched when she answered her door, crippled boy and kids on welfare whose welfare food he stole and whose father he helped get heroin, and the countless innocents he robbed) in California in the late 60s. He wrote a book about it and people actually pat him on the back because now he is a christian and right-wing conservative against liberals whom he said "loved him to death" trying to help him in all the mental institutions and drug detox hospitals I helped get him into which were funded by the tax payers of CA. I regret ever having tried to help such a creep. I saved his life numerous times, like when he slit his wrists in my car because he said I did not love him, or when he faked suicide in my bathtub when I came home from work saying I needed to see if I REALLY loved him (or was ready to leave him... which I was). I worked so hard and got him into methadone clinics and programs for the mentally ill. He always came back out and stabbed me in the back. I got Hep C the first time he shot me up with one of his dirty needles. He repaid my saving his life by giving me this disease. I will never understand why horrible people like Ray N are allowed to live while good people die. The world is not fair. It favors the manipulators over the honest, hard-workers.
I got Hepatitis C in June of 1999 while working at a credit union from money covered in blood. I paper cut myself from the money trying to be extra careful. Even though I washed my hands immediately right afterwards. A few months down the road I started feeling fatigued and figured it was from working so much. Then after feeling nauseated for three weeks straight I made an appointment with my primary care doctor. He did a bunch of tests and it came back I had been exposed to Hep C but said my body would likely fight it off but we would test again in six months. Genotype 1B. In the next blood test I had gone from being exposed to to full blown. He sent me to a specialist since he really didn't know that much about it. The specialist put me on Pegylated Interferon and Ribavirin but after six months he stopped the treatment because he said I was not responding. He then told me to get all my affairs in order and I needed to be put on a transplant list and if I was lucky I might make it 5 years. Lucky for me my work changed insurance companies and he was not covered by the new insurance. I then started going to the Mayo. They said I should never have stopped the treatments, put me back on them and told me I was responding, that I was a slow responder. I continued to work while doing the treatments. My insurance did not cover much of the meds. I stayed negative for 3 months and then relapsed. So I tried the next treatment that was available and the next and the next and so on. Still I continued to work the whole time I was doing the treatments. I was afraid of losing my job and insurance. Most of the people I worked with did not know I had Hep C, only a few close friends and my boss only found out when she eaves dropped on my close friend and I while we were talking. Then, boy did they want me out of there. I told them they had nothing to worry about and the only way anyone could get this from me was through contact with my blood. As I continued to do treatments and work they would get on me because I was not chipper and smiling all the time. I told them I was not feeling well but that didn't matter. I was suffering from extreme fatigue, crying, unable to sleep, fever, flu like symptoms, joint pain, brain fog {I would literally forget how to do things I did on a daily basis}. Just plain not feeling good, feeling like I was burning up, hot flashes, even got lost a few times while driving on treatments, anxiety, depression, which I had never had before I got the Hep C. and anemia {had to have a couple of blood transfusions because of this} from the interferons and all the rest of the stuff that goes along with Hep C. You think about dying a lot, it's a reality check, you realize death is really just around the corner. They let me work 4 ten hour days and then let me have Wednesdays off for my blood work and Doctors appointments. Mind you, after every treatment I would relapse, but my liver did responded to them. I was getting ready to start a new treatment when we got a new manager who decided to take away my Wednesdays off and make me work six days a week and shorten my hours. She made it very clear I was not needed there. Fortunately for me when she told me this it was the day before my day off. So when I went to my Doctor appointment I told her what was happening and she put me on Family Medical Leave effective immediately. While on medical leave my work terminated me. Which I have to say was more of a relief than anything since I just couldn't do it anymore. The stress was just to much. I was very shocked and upset by some of the treatment I got from some people. Not wanting me to get near them, touch their children or even let me in their homes. It was a real eye opener. The treatments have been hell and I almost died during one treatment, got a bladder infection and I couldn't fight it, went down hill real fast and ended up in the hospital, I didn't care if I lived or died at that point. Spent a couple of weeks there and had to use a walker when I got out cause I was so weak and I still have the Hep C. I still feel like hell too. But I do still plan on trying the next treatment that is coming out that doesn't use the interferons. I have lost a lot of my fight though. They say you need to have a good support system in place but nobody wants to hear what you have to say about how you feel or whats going on. They just don't get it. They also say that one can have this for years and not have any symptoms, I don't buy that, they have symptoms, they just don't know what is going on but they know something isn't right. I want my life and health back. I was very healthily until I got this. I'm tired of feeling like this, just plain not feeling good. Nobody ever says if once they get rid of this stuff, do you actually feel better, does the fatigue go away, the fevers, aches and pains, are you able to get a good nights sleep and all the rest of the stuff that goes with Hep C?
I am a 62 year old female who contracted Hep C in 1972. I went through drug therapies 5 times over the years and was a non-responder. I had a hard time with the therapy and was quite sick but finally the virus has been cleared. I have had the symptoms from the disease and symptoms from the drugs, but my advice is to not give in to depression. On paper my story looks sad. I had to work and I was a single mom for a long time but my advice is to keep fighting for your life. Treat yourself kindly and learn to exercise gently (I do yoga), eat good healthy foods, keep moving and stay interested in life, your hobbies, friends and family. Don't smoke, don't take recreational drugs or drugs in general if you can avoid them, don't drink, and train yourself to be hopeful and helpful to others. I am so grateful for the life I have and what I have learned in the struggles. Someday they may be able to treat this disease without such damaging chemicals, but I am so thankful that I was able to make it through to the other side. I wish the same for you.
I have probably had the disease for 40 yrs My misspent youth. Didn't find out until almost 20 yrs ago after a blood test that showed elevated blood counts. Never had treatment never had symptoms Don't drink much a few beers a week maybe. I do like the 420. I am now considering treatment but I am not sure why I am 67 and not sick. I am fairly active and in decent shape I guess treatment will depend on cost. I can afford it but do a I want too? Thanks
I've had Hep C since Vietnam. I have cirrhosis as well. I've been on treatments since they first have been available, beginning with a single drug,'interferon'. I was on that for a year. And did well until I came off it, then the virus came back. I did it again for 6 months, and same thing. Since then, I have been on every known FDA approved treatment, including one you don't hear about often, Infergen. Long story short, I'm on Sovalid now with my old buddies, Riboviron and Interferon. I'm doing ok with them as far as toleration goes. I'm a bit tired but I just keep moving along and that makes a difference. For those of you lost in depression, you should seek help for that because it's very important to have a good mindset while you're on this stuff. Hang in there no matter what and thank the drug companies who have worked so hard to come up with this stuff. Everyone bashes them until they are dying of cancer or something and there's a drug that can save their lives. Then you don't hear complaining. And no, I do not work for a drug company.
58 year old male been diagnosed with hcv 1a 04/14. yeah did a lot of research on the subject. to all of you who had gone through the peg/rbv standard... God Bless You. You are my Heroes. my type contains 2 snps c/t, c/g. it was noted on the review that this was not responsive to peg/rbv treatment. "unfavorable outcome or decreased likelihood of svr." in all, my test results and abdomen ultrasnd look good. i am at 6,000,000 iu. thanks to my wife we eat and live well. i am considering some of the new treatments. perhaps be the guinea pig as trials are still going on. will try to keep you informed on any outcomes.
Hi, am suffering from hepatitis c type 4. is there any hope that i may get cured? what foods should i not eat or should i eat? I am from a poor background and a developing country, are there any good people/organizations who can support me to treatment? any advise is highly appreciated. thanks
I'm a 53 yr old male. I was diagnosed with hep b in 1984. I was intravenously using drugs. I had jaundice quite bad. 20yrs later I was checked to see if I still had it. In grown males hep b usually clears itself. The virus was almost clear but it was found that I had also contacted hep c as well.. my viral count was only 10.000 so it was thought that I hadn't had it for long. I was also genotype 1a the worst type of hep c to get rid of. I had been told all the horror stories and believed most of them. July last year (2013) I began interferon treatment with the new treatment protein inhibitors. I was on the new treatment for 12 weeks but continued with interferon and ribaviron for a further 48 weeks. The side effects weren't anywhere near as bad as people made out. Depression wasn't nice and small breathing problems and skin problems. Other people have worse problems than I had but others have less problems... But I am happy that I've completed the treatment and now waiting for the 6 month all clear. My hep nurse told me that if its still clear after 3 months its 96% that it wont come back.
There are other new treatments available now and others waiting to be licensed and one of the new drugs is just a 6 weeks course of tablets. Treatment has come a long way for hepatitis. My advice is to listen to your hep nurse and to do the treatment.
Carl lancaster.
My email is carllancaster39@gmail.com. If you would like to ask me any questions please do. Just email me and I will get back to you.
I am a 51 year old woman. I was in a car accident when I was 17 and 8 months pregnant. My husband was decapitated. A year and a few months later I got hepatitis c. Currently I am very depressed, also I am bipolar and a liver specialist would not treat me however he had a biopsy done my first 1 and told me I was genotype 1A he said the a is for awful thats how I remember my genotype....also that I was in stage 2-3....Today I am very depressed I am always fatiqued and do not sleep well, My ankles swell and they hurt so do my hands. I have a very bad back and I take 30mgs of oxycodone 4 times a day....along with my bipolar meds zoloft and tegratol. My primary care physician is too busy to check my viral load.
I feel like ending it all right now, I cry all the time.
I am also in menopause, was recently married to a wonderful man and I don't know why he married me.....I have dupytrens sydrome my hands hurt ,spinal stenosis....My gland is swollen in my neck, I am smoking more cigerettes then ever and I keep getting turned down for my ssi...I am sorry folks but I just don't see the sense in being alive anymore all I am doing is taking up space.......
Hi All!
I wanted to share my story in hopes it may help out others with questions. I am a 35 year old, white male and In June of 2013 I began feeling very ill and confused all the time, while also noticing I had very dark, almost brown urine was nauseous and itchy. This was about 4 weeks after obtaining a "home" done tattoo. I went to see a Gastroenterologist and in August of 2013 I was dx with Genotype 1A Hep C and after scheduling a liver biopsy it was confirmed that I had Grade 2 liver inflammation and a HCV Viral load of 130,000. My Gastroenterologist recommended starting HCV treatment.
I waited until March of 2014 to start because Sovaldi hit the market and since my count was so low as a recently infected individual, my Dr thought this would be best.
I had so many questions and with all the literature out on the internet I didn’t know what to make of it all. I was still very tired and had the "brain fog" and had daily pain to where it felt like someone was squeezing my liver tightly. So I started my treatment on 03/07/2014.
I noticed within a couple weeks that the pain was slowly fading away and I felt like I had more energy and actually caught myself smiling and laughing for the first time in months. My first viral load test 4 weeks post treatment with Sovaldi, Interferon (CoPegus) and Ribavirin, came back with no detectable viral infection. I was ecstatic. I am now into the 9th week of treatment and after I finish the next 3 weeks I was told I could come off the meds. My side effects have been tolerable and with the exception of nightly insomnia, occasional headaches, and aches...it has not been too bad.
I am fortunate that my infection correlated with these new breakthrough meds and haven’t suffered for as long as others. I wanted to say to everyone that I know what you are going through and if you have the option to go through this new Sovaldi triple therapy, do it! There are tons of assistance programs out there and your hepatologist or gastroenterologist can get you in touch with the right people and support groups.
I am what they are calling a quick responder and I am hoping to obtain SVR since this was caught early. I will be getting my last set of Labs done in three weeks before the 12 week "post treatment" Labs. Whether or not I am ultimately "Cured" is only something time will tell but to others who have failed treatment or who is starting treatment for the first time, talk to your Dr. about Sovaldi triple therapy. So far, it has been good for me with tolerable side effects and my prognosis is good.
All my love to you all and take care. God Bless.
I got the hcv dx in 1996 when I was 54. My second daughter was just starting high school. My pcp sent me to a GI specialist who did not help me at all. Then I tried another Dr., was prescribed Intron A, then he stopped it. I did everything possible then that was available to help myself. I was so sick and fatigued. My children's father was a heroin user (unknown to us), so either he infected me because he had hep b and died, or I caught it working in a lab where universal precautions were not taught to seasonal employees. I consulted one more Dr., worked another long year, went to another state for help. By 2002 I saw another specialist and in 2005 started Peginterferon/Ribavirin after working where I got insurance for it. They delivered vials, not pre filled syringes, anyway I was sick and fatigued and stopped.
I worked two more years. In 2012 I had an esophogeal bleed and almost died before an emergency panendoscopy. I had a previous trauma from a dentist and the Dr. I consulted before the incident would not prescribe beta blockers for me to relieve the portal vein pressure. I stress this to anyone recently diagnosed, get as much information as you can, understanding the risks and benefits of all tests recommended to you and the complications of hep c. The ascites is under control now, but I still take beta blockers and diuretics. I started the new off label meds, 2 pills per day and viral load dramatically decreased by day 13. I am halfway through the treatment and feel great, except for intermittent headaches and insomnia, changes in appetite. I am confident this treatment will work. It has been a long battle, and there are stigmas associated with it. I did not sue the lab where I worked, but should have. Good luck and get the best doctors you can who are compassionate and really care about getting you well.
Hips, Ow! My hips!
Had Pegasus and Ribavarin treatment for 4 months that didn't work. My hips hurt after that, but it healed after about a year.
Finished 11 months of triple therapy in July 2012 and was cured! Hooray! However I still have immense pain. In that time I have discovered that once I'm moving I'm ok. It's getting moving from a sedentary position that can be excruciating. I try to sit on kitchen chairs when I have to get up and down. It's easier to push off the table to get up and move.
If I stand or walk for any length of time my spine, lower back, legs and hips feel as if I'm going to collapse into myself. If I can sit for a while it's ok again.
I love walking with long strides. That is sure to punish me now. Invariably the next day my hips are throbbing.
There was a time that I would have attributed this to age, (60), but since the same thing happened right after the first treatment and I saw it happening again with the second I know that it's not my age.
My doctors at University Hospital claim that they've never heard of this and don't see how it would connect, but going on-line and seeing all of you have the very same issues and my seeing it comes on as I was further into therapy shows me the therapy is the cause.
I keep hoping that it will stop like it did after the first treatment (after a year), but it's been nearly two years... I'm still hoping..
The key is to get moving, but not too much. Getting out of bed, going up stairs or even into the truck can make me want to cry. Once I am moving I feel good, unless it's too much. Sigh... This is not easy.
I have started my vitamins again and Glucosamine joint juice. It may be actually helping or a placebo, but it does seem to help...
Once it's a little warmer I'll use the hot tub too - that's wonderful, floating pain free. No pressure on my hips.. However getting in the tub hurts and even getting dressed does..
I try to hide this from others. Hate to be thought of as 'that person' who is showing off her pain.. - which can make it worse, since people ask me to do little tasks for them, ie: run upstairs and grab this or that, etc.. OW!
If I say anything it's, "Oh my bones have locked again." I won't say, " Damn - This hurts like Hell and I want to Scream!!!", (like I'd like too :)
That's it. Guess I just needed to vent. Keep moving guys, and let me know if anything new comes up to help - thanks and Good luck!
Blood transfusion 1972. tattoos 1974, fool around a lot. 1995 hep c. Have never taken treatment. I am waiting for the latest meds without crazy side affects. I am now 60 yrs. old. i feel great, why ruin how i feel. I have geno 1b. New dr. wants to treat me. i am still not ready.
Hi there everyone, my story is a little bit different from others here, yet the same in many aspects.. I know.. confusing and contradictory, but here's why. I was diagnosed w/ chronic Hep C about 6yrs ago. Since then I've had the doctors tell me 'oh you've has Hep C for at least 30yrs' .. (they tell me this as soon as I tell them I think I contracted during a surgery, no blood transfusion thou).. I also have said to them.. Really? Well I find it strange that you say I've had Hep C 30yrs, because I gave whole blood and plasma far into the late 90's and NEVER have I been told that I have it! I've never had any blood test come back with evidence of Hep C.. nothing prior to that last surgery.
When I had that surgery, while I was in recovery, and having a routine blood draw done, afterwards they came flying into my recovery room white as ghosts, saying that the enzymes in my liver have shot up and we don't know why, but we need to do more blood tests. Oh and btw.. we didn't need to remove your gallbladder, turns out that you have a blocked pancreas and liver, you will need another surgery immediately, because they are both organs shutting down. Anyway after all was said and done, I wasn't informed that I'd contracted Hep C.. And I never got better after surgery either, instead I began to feel sicker and sicker as the months went by.
So I went to my primary (who worked the same office as my surgeon). My own primary doctor also hid his findings of Hep C from me. So unfortunately I didn't find out until 4yrs after his blood workups, and after I'd gotten another primary (I did this because I felt my doctor was hiding something from me).. turns out I was correct! He hid the results of a blood test that I had asked for. I told him I wasn't feeling well ever since my last surgery and that I wanted to know why. Well he did those blood workups, but informed me that I was fine, there wasn't anything wrong. I didn't believe him so I asked him for a copy of my workups, which he ignored. I decided it was time to find another primary. Sure enough she found a problem and sent me to a Gastroenterologist whom informed me, by saying to me 'I see by your med records that you have Chronic Hep C'.. in-which I said.. since when do I have Hep C? He told me that I was diagnosed 4yrs prior, by my old primary! That man never told me, too say the least I was angered by the news! Ever since then they keep trying to convince me that I've have had it all this time, but it didn't show up. My research has lead me to believe otherwise. Here is why I believe otherwise, a person can have Hep C and they're body can get rid of it on its own, but if there's ever been Hep C in the bloodstream there will still be evidence of having had Hep C carried in the bloodstream.. and its not that difficult to find it..so I'd like them to stop covering their butts and just admit that the hospital used dirty utensil on me! Enough is enough already! I know how strong the possibility of contracting diseases from this particular hospital is, because I know the person who used to fix the broken down equipment and surgery utensil washers. He used to complain about them always being inoperable and about how the hospital needed to invest in new machines. I am also friends with several nurses from this hospital. Some admit it is possible, others will not, but it makes no difference to me. I know where and when I contracted. I will never believe otherwise. Here's another reason why not. I have four children, 3 are negative. I have a set of twins. One has Hep C and the other is negative, everyone in my family is negative. He's been told that he has had his Hep C for less then 10yrs.. so yep docs.. try again!
So kind folks, let me wrap this up by saying, although at first I wanted to sue the pants off of that hospital I've complained about. I finally decided, after many months of anguish, that it just wasn't worth it anymore. I was only making myself sicker by living in it everyday, so I put it away, and moved on to live another day. I am now 55yrs. old and I suppose to be going into treatment. I am being offered the old regime with a newer med.(Victrelis) I am apprehensive. I also am hoping to hold out for the newest medication which has a higher cure rate and less side affects. My insurance won't pay for it and its expensive (that 1000 dollar pill).. well it means life to me, but how it will get paid for, and when it will be available is the question right now. Can I hold out? That is another question, but I am damn sure going to give it all I got! That's my story and I'm stickin to it! LOL! :D.. To all here.. I wish you the best, hold you in my prayers as I hope you will me in yours as well.
My boyfriend, is HCV position genotype 1a, diagnosed about around the time we started dating, 5 yrs ago. He's not 100% sure but believes he contracted the virus by being infected with un-sterilized dental tools sometime in the late 80's. I ran across this blog because I wanted to do some more research on the new drugs Sovaldi and Olysio. I really wish you all the best and hope that these new drugs (several more coming out in the market) will cure you from this disease. Please don't give up on getting help (either from your insurance or the drug company itself) to pay for the medicine.
I'd like to share this story: My boyfriend has BCBS as insurance. They initially declined to pay for it when he called them up. He appealed in writing. Then contacted his care provider (GI doctor) and his team contacted my boyfriend's insurance company. The company initially said no, then agreed to pay for the medicine over the phone. The copayment would have still have been in the $700's to several 1000's depending for the combined therapy (olysio and solvaldi). Well guess what, the merchant contacted my boyfriend and told him that he may contact the drug manufacturing company for some coupons (he thought he could get say a $5-10 coupon). To his surprise and after agreeing to, if requested, either in writing, or by appearing on commercials to support the medicine - the whole co-payment on one of the medicine's is $5.00 for a month's supply. The other is fully being picked up. So for those of you who think it is so expensive, please get up and make waves, because you won't know what is available to you if you don't try it. Don't give up. And this combined therapy is about 90% successful, there's another that is 99% successful. Please dont give up! I wish you all the best.
My name is Maria. I contacted hep c in the nineties using drugs with an infected needle. I was from the country was taken to the city to live with real mother. I was slow to city life and always felt like an outcast. Mom drank too much and so did the rest of the family. We were kids that ran wild. I grew up still feeling like an outcast. Chose all the wrong men that were out there and wanted them to accept me so I did what they did. What everyone did that was out there. You weren’t afraid when you were high. I never liked heroin but I did it because the man in my life did it. I liked to drink. I got away from heroin because each man I had died from it one way or the other the last one 2007. After that I gave up everything. Still I caught hep c. They have been wanting me to take medicine but I was afraid. I sure wasn’t when I was on the streets. Education sure is very important but at that time the only education I got was surviving the best way you can and taking drugs so as not to feel pain, cold, hunger, etc. If I can only go back with the knowledge I have now. So I am soon to start medication four different kinds. It feels like a death sentence because I don’t know how I will react on it. I was drunk before but I am five years sober now and scared. I guess if I’m going to have any courage I best muster some up now. I feel like the lion on the wizard of oz.
I am 51 years old. I was a passenger on a motorcycle in 1988 when struck by another car. Suffered multiple trauma and needed a blood transfusion. They did not screen the blood supply for HCV back then nor the plasma .
To date I have been through 50 surgeries. Many early on and then follow up's as life went on. I still need more surgeries and live in chronic pain everyday. As if HCV on it's own isn't bad enough because it is. To have these trauma's on top is just too much many times.
I was given a blood transfusion and plasma which i believe is where i contracted the HCV.
Being a non responder Geno type 1a to Interferon / Ribavarin therapy in 2000 I have been trying with everything I have to fight against this disease and constant pain from the motorcycle accident.
I am now at compensated stage 4 and living the roller coaster of hcv disease and stigmas that are associated with it.
I stay positive and keep a good attitude. Biggest problem is trying not to complain too much for many just do not want to hear it or who are understandably too busy with there own problems.
Currently there is new hope and new drugs on the market like Sovaldi if taken in conjunction with interferon / Ribavarin can give up to 90% SVR but at 1000 bucks a pill i will have to wait.
31 years i have been fighting this disease, trauma, pain and self esteem issues. I take very little pain med as it hurts the liver so i suffer.
Hope to all who are suffering to not give up and keep pushing on.
I had Hep C when I was 24. I am now 53. I went to the doctors and it was confirmed. For a solid month, I slept 20 hours a day, and I ate a couple of saltines, that I vomited back up. Eventually, I got better.
I recently brought this up to during my physical, because I saw commercials about new HEP C treatments. I had not had any symptoms since I was sick, decades ago.
The HEP C blood test my primary care doctor ordered, came back negative. Is this possible?
I thought once you had it, you had it forever. I was told, back then, that I was "not a carrier".
Thank you for a response, because I am wondering if he did not test correctly.
I got hep c in the 80s some time in the 90s a doctor said I tested pos for hep c, i did nothing because I knew I have it and now they tell me I don't have it, how is that?
I am 21 years old, and I have been clean from heroin for a little over a year. When I first got clean, that's when I discovered that I had HCV. I was uneducated about the virus. Therefore, I assumed there was no treatment and that I would be infected for the duration of my life, most likely eventually dying from HCV related complications. I made an appointment with a liver specialist, following directions from my PCP, and as I waited for my appointment, I fell into a deep depression. I eventually found out that I had Genotype 1 and that I would be on three different medications: incivek, ribavirin, and an interferon shot. I am in the last month of my treatment (24 weeks). The last two viral loads I had done came up negative. I am told by my doctors that the virus will most likely not come back. I am also told that after the treatment ends, I will continue to get blood work done for the following 6 months. Currently, I feel that I have overcome HCV, and I want other people reading this to know that if I can overcome it, so can you.
This part of my life has been extremely difficult for me. I had to take a medical leave from school and reduce my hours at work. Some days, especially after the shot, I cannot get out of bed. Also, I feel fatigued and lethargic almost 100% of the time. Being at the age I am, and having two different groups of friends, addicts and non addicts, I lost all of them. I separated myself from the addicts, and my non addict friends wanted nothing to do with me after my diagnosis. I already had been diagnosed with depression and anxiety at a very young age; this treatment made it much worse. I continued seeing my psychiatrist, went to weekly therapist sessions, and I also joined NA. If you are a recovering addict who will be undergoing HCV treatment, I cannot express to you how important it is to go to NA. Honestly, to me, it's not about going there everyday and telling a group of strangers how I feel. For me, it's finding those people that you can befriend, and they understand you completely, and will not judge you.
Even though I have a month or so of treatment left, I am finally seeing the light at the end of the tunnel. I have overcome drug addiction and HCV. These last four years of my life have made me into a strong person. Non addicts view me as weak, but they do not have the slightest clue what I (or any other recovering addict) has been through.
If you are looking to start treatment for your Hepatitis C, just know that if I can get through it (I grew up as a "spoiled" brat whose parents did anything for her), then so can you. This whole experience has changed my life for the better, and honestly, I am starting to be reluctantly happy that it occurred.
Well I wanted to inform anyone with hep C male and female seeing it can effect both. I had hep c I went to a detox and while in there was told all my Bloodwork is all good except my liver enzymes were real high but no hep a b c etc no stds sti's and thank god no HIV. I was told to go to my dr for Bloodwork as soon as I get out and I did they told me to come in the next day for it. So I told them that the reason I asked was bcuz of what I told u above oh btw I'll have 10 years off all drugs except soft 1s "weed mushrooms all kinda etc not the shit that caused this in the first place" it's well good ganja and very strong mushrooms a 1/4oz a person I've taken them alone and sat out on the hammock many times kept me from relapse. So my Bloodwork was done my dr told me he showed the specialist and was told from drugs detox his enzymes went up a very high amount he said he'd see me after had me start on the ribavirin and those shots peg intron. So I started like two days after. Go back in two weeks nothing. Enzymes rising go in a month. hep c finally came which at the time I felt so shitty I'm guessing the shot did it BECUZ I'd be so sick after I took it and day 6 I'd feel great then I had to do that FKN shot and knew when I woke I'd be almost in full on opiate opioid withdrawal meaning every joint bone muscle move hurt I remember half crying for someone to help me get out of bed to just go to bathroom. So that's how I meant opiate wd's . So it was found only for 6-7 weeks then gone I con't treatment for 9 months more and was told that hep c would only come back if I started doin dumbshit again my dr told me. Ok now I was told it was gone back in 2-4/2005 and now I'm at my physical my liver didn't suffer any damage some scarring that has self fixed on its own but anyway I had to see him for physical Bloodwork I ask for it every year for anything stds cancer low T etc and he was like oh lets do another liver work up i think ur good Mike but it could have been in remission my jaw dropped I said are you f'ing joking. He didn't flinch and said not at all. I'm like you told me it was gone as long as I was done doin dumb shit 10 yrs off coke dope oxys well any opioid opiate just good buds in mass it's all legal now and strong mushrooms dxm in small doses every year or two. So I wanted to also make everyone aware that do not take or take smaller amounts of VIAGRA in some studies has been shown to increase Viral Load by millions of times over patients took it fri and sat and had lil viral load then they took Viagra and this goes for females bcuz they make a women version as well they had not any significant viral load a lil high but not much and they took bloods fri am and that night and sat night they took Viagra and tues there viral load was millions of times over so use CIALIS it doesn't cause that and u can take one every 40 hours instead of 4 like Viagra levitra etc thanks for the ear and thanks a lot in general.
I felt i may have put myself at risk being hooked on drugs i had made the mistake of sharing a needle with my ex whom i had a child with and never had contracted. I immediately went to my doctor and requested a test. He told me never share a needle and sent me in for bloodwork. I had follow ups with him for other health care business and twice he assured me the test was negative i was fine. He later much later a year and a half was supposed to check my liver function for a medication i was taking and since he hadn't he figured he'd check from that old blood test which indicated i showed exposure. He told me i had more bloodwork which confirmed i am hep c positive with a ongoing virus high viral load and believed all this time i was negative. I feel he is a negligent doc and don't see him anymore, i do feel responsible for contracting it and my lifestyle choices led me here but still think he should've been more attentive.
I am 57 years old, and I first found I had had liver problems when I tried to donate to a Red Cross blood drive in 1986. At that time there the test for HCV had not been developed, but I was notified that my liver enzymes were elevated. In 1995 I tested positive for HCV and unsuccessfully completed a cycle of interferon therapy. Over the next several years I completed a cycle of consensus IFN and a cycle of PegIntron/RBN. In 2009 I decompensated and in 2011 I was fortunate enough to receive a new liver. The new liver was reinfected, and I went through another course of PEGIFN/RBN, but after around 35 weeks I was pan-cytopenic and had to stop treatment. The virus returned and I had severe ascites. I began my 5th round of therapy, this time adding Victrelis + PegIFN/RBN, and now I have been virus free for 9 months. Don't give up, and DO NOT procrastinate! Get treated now, do not wait. You do not want to go through what I have gone through, it is much harder than you can imagine.
I'm so thankful to be here..... Like many i was diagnosed with Hep c 4 years ago. I visited a doctor and got the diagnosis to have it tell me i was positive and that he was retiring and i'd have to go on a waiting list for another doctor. Took six months and then i had to go through the testing process a second time. Again told positive and that i'd be going on treatment the needle once a week and two pills a day. This was dreadful i dropped 70 lbs had high temps and somedays could not get out of bed. I have since been given the great news that there is no hep c in my system but i have cyrosis of the liver and it is not good.... i took a new look on life and do what i love doing and every minute is the most precious minute of my life... stay positive and enjoy life we all have a plan and mine is to survive!
I had a blood transfusion back in the early 90's. WHo knew the thing that saved my life was to doom my life. I wasnt diagnosed until 2011. My VL was over 4 million at that time, liver biopsy detected very mild scarring The doctor said I was not a canidate for TX, as he did tell the truth,, it was intense,, He was more worried about my fatty liver. He put me on Milk Thistle, Vitamins C D E, to boost immunity. I take care of myself, eat healthy, have a good attitude, exercise, drink tons of water, go organic. I do not smoke or drink alcohol.. I feel great , have never had any symptoms. the only thing that bothers me is the spot they did the biopsy as there is scar tissue, my most recent bloodwork showed EVERYTHING to be normal , VL was so low it was nearly undetectable..Lucky? maybe,, but I believe in the power of the mind and body to heal itself. Keep the faith.
First, I am 63 years old. I was diagnosed with Hep C in 2007 but believe I actually contracted it over 40 years ago through intravenous drug use as a very naive and foolish teenager. My gastoenterologist has pleaded with me to go on the standard pharmaceuticals for Hep C, but I refuse to because of the outrageous cost and nasty, debilitating side effects.
Instead, all I've pretty much ever done to keep my liver enzymes pretty much normal, is to take 4-5 TABLESPOONS of Virgin Organic Coconut oil every day, and its antiviral properties are so powerful that I've been able to avoid these pharmaceuticals.
Another VERY powerful medicine that I've used with great success is SILVER BIOTICS SILVER SOL. DO NOT MISTAKE THIS WITH COLLOIDAL SILVER -- THEY ARE NOT THE SAME!! And, using too much colloidal silver can actually make you turn BLUE -literally! I often take about 2 ounces per day in divided doses. You can order it through SWANSON VITAMINS in the USA, and their prices are very good!
My GP says to me that I DO NOT need to be on any pharmaceuticals and whatever I'm doing seems to be working! Again, my liver enzymes are pretty much normal. I must hasten to add here that I really do need to avoid any alcohol; indulgence in any amount, even small amounts, causes my liver enzymes do really go up.
I hope this is able to help someone.
P.S. -- Also very helpful are high quality
TURMERIC, and SELENIUM
I use these daily, too.
Hepatitis was always something I thought happened only to drug users and promiscuous people. Something that was deadly and nothing to be talked about. The only two celebrities I recalled having the virus were Pamela Anderson and Tommy Lee so it really reinforced my ignorant stereotypes of the people that get the virus.
I'm a professional model, from a good family, with a great education... And with a positive antibody test I now know I have Hepatitis C. Iit can happen to you too. I have never used drugs or had promiscuous or unsafe sex. I have never had any risks at all! But I did have a full blood transfusion at the age of 25 just a few years ago. It was a life-saving surgery that I never imagined could have any long term consequences. Testing for blood donations is much more prevalent now but it isn't unheard of to contract a disease from a blood transfusion.
Now I'm faced with the fear of getting the viral load test, not being able to get life insurance for myself and being a leper in the eyes of the medical community. Much like mental health issues, Hepatitis C is treated with such a stigma that can effect everything in your future. In my permanent medical file that anyone with access to medical records can look up is my name and my positive status in black and white. I'm horrified. Now I will have to worry about dating, or lack thereof. I think of all the life options I had that are no longer open to me. I feel dirty, not worthy of dating anymore Ivy League men and having children and a beautiful home out of a magazine.
All I can do is keep myself healthy, try to get insurance before things get worse and pray that the cure is finally released. But it's important to share my story. Rich people can get this disease as can the beautiful people in magazines and successful people. Smart, old, cautious, etc. Its not just the drug addicts and rock and rollers.
Thats all I can say is hang in there, I was on treatment for 76 weeks was worse than hell lost my hair lost all my weight and was getting blood every other week.I have been off interferon now 4 years I still dont work suffer from major depression (was never depressed) and I do nothing.I keep waiting to feel like my old self. I hope this will go away but atleast im still here to complain. If anyone wants to no anything about this treatment just ask.
I always stayed up on my health care as I have a family counting on me. I always had a yearly full medical exam. Well my tests at age 52, over 10 years ago now my doctor knocked my socks off by informing me the tests showed me positive for Hep C. I was directed to a GI doctor for treatment, he first did a liver biopsy to check the condition of my liver prior to discussing treatment processes. Well this doctor's personality just felt strange to my self, and my wife, as the doctors nurse kept calling me using scare type tactics to begin treatment right away. Well I planned on doing treatment, but not with this doctors office. My wife found another GI doctor, and we had a consultation with the new doctor. My wife and I both walked away feeling very pleased with the way the GI doctor, and his nurse approached this long 11 month commitment to follow their directed Hep C treatments all the way through. Well my prescribed treatment was interferon injection once a week administered by myself, and 2 (600mg.) white capsules taken twice daily, morning, and evening.
I was able to stay working full time at 40 hours a week at my job, missed only 1 days work during this whole 11 months of treatment. This treatment is a total drain on your whole bodies strength. You feel totally fatigued throughout the first 3 to 5 months, after this initial period it gets a bit less fatigue as the months roll along. One thing is the monthly check ups of blood work, so it's a lot of effort staying determined not to give up, and interrupt the treatment work best when completed without any interruptions, that's the kicker, as I watched many other patients dropping out, but I was on a mission, and getting very positive reports on my condition.
Today over 10 years after treatment completion my reports continue to show my Hep C as totally eradicated, not a trace of it in my body. Hep C is a very silent killer so I feel blessed it was found very early, and I stuck with the treatment, I beat this silent killer with the help of my wife's support, and great GI doctor's care. I continue to follow up with the GI doctor, and upon my check up this year, he said great Chuck, you're good, I'll see you next year, I say wow, thank you. I'm one of his success stories. This is way it makes me feel good to help others take on treatment for Hep C, yes it's a killer, but it can be beaten once you make up your mind. Please feel free to e-mail me if you have any questions about caring for this virus. Thank you for reading my story, Chuck
I was diagnosed 7 years ago hep c geno type 1. I have muscle aches tired but I refuse to let it take me down. I drank for 3 years now I've quit. My enzyme levels are high. I know I must have some liver damage but I don't want to see a doctor only to hear bad news and get my spirits down to where I'm stresed and worried. I take milk thistle and other vitamins high in antioxidants and drink a lot of lemon water to clean my liver. I feel pretty good besides the fatigue and muscle aches but I keep going every day. I work 5 nites a week 38 hrs a week. I'm 50 years old and I am a fighter. I do believe that milk thistle does help along with b12 for heart and your blood does help. If I live to 80 I would be grateful. A doctor told me you can live a full live with hep c if you take care of yourself so everyone out there keep fighting. Do what's right for your body. Your body has natural defenders, your imune system. Eat good lots of exercise fresh air keep your spirits up. Be positive.
My story, had hep c for over 20 yrs, went through treatment july 18 2013 to nov-2013. It was supposed to be 6 months but doctor said my hep-c was undectable and i could stop treatment...i said wow great, cause it was causing a lot of wicked mood swings. Ii thought i was going insane and i wanted to die..a lot times i wanted to go back into the drugs (i been sober 10 years, and still am)..so it was ok for me to say "great" maybe now i can breathe or be at peace. I was taking pegatron Anyways, i found out what they mean by the words undetectable. What it means is..the doctors or when you viral count comes back it wont read bad cells under 13. So i went from something like over 3 mill to under the 13 mark...after about i say..9 weeks after treatment. Ii wasnt feeling good, them dam same feelings came back. Fatigue and just feeling like shit. So i get blood taken and i call up 4 days later. Nurse says to me "DAN, SORRY TO SAY BUT HEP-C IS BACK"...i was like F this shit. But she told me that the medicine wasn't a 100 percent cure and the success rate was only 50-to 80 percent and she told me about this new meds coming out soon, Sovaldi ( i think that's the name. And it doesnt have interferon in it. A lot less side effects..it will require ribflavin pills tho which i hate because it caused me to have bad rashes on my legs, bad ones, i still have itches now I hope to god this works. I lost 2 brothers who both had hep c, but one died from AIDS (bad needles) and the other from drug overdose. I'm 51 now..if i can live 20 more years great. I dont care, but i want to feel peace. I do not go to meetings, but i love fishing and hiking and other stuff..
I was told I had Hep.C at age 22 after a life saving blood transfusion from a surgery were I not only lost my unborn child but got an unexpected hysterectomy. See due to having liver cancer already, I had just had a battery of scans for that, one of which included injecting me with radioactive dye, I did not know I was about 2 weeks pregnant give or take. Anyway I started bleeding and wound up in an emergency surgery hemmorging blood so bad that I died on the table and that's why my doctor did the unauthorized hysterectomy saving my life, I will always keep that doctor close to my heart and in my prayers for being so brave and doing what had to be done. Little did he know that the transfusion much needed as the surgery was had Hep.C in it. I've done interferon with the shots 3 times a week 2 times and then I did interferon with ribraviran also with the shots 3 times a week plus a lot of pills that went along with it the 3rd time for a year and I went to the Dr. last week to find out that my blood tests are not good.Which makes no sense to me because I am now 49 years old and every blood test I've had in the past 15 years or more has said my viral load is undetectable for HCV, and now there talking about fibrosis and I'm getting a fibroscan next to see if and how much liver damage I have and I don't even drink never really have maybe a few times after I turned 21 just cause I could but not since I was diagnosed with HCV. So I guess I will have to wait and see whats next for me. Good Luck to you all and to me. Sincerely, Carol C.
I am 26 years old. I received a blood transfusion sometime during the first 3 months of life in 1984. I discovered I had HCV genotype 4 when I was 16 and cleared the virus with interferon and ribavirin therapy. Around the age of 21 I became a regular IV drug user until the time I began recovery in 2010. A blood test confirmed a new infection of genotype 2. I have since been clean and sober for over 3 years and am scheduled to begin treatment next month. I was approved for assistance by the drug company genentech and have reached out to people in my local substance abuse recovery community who have successfully completed interferon and ribavirin therapy. I am feeling very hopeful.
Just had my biopsy after being diagnosed, hep c genotype 3. I'll find out results jan 30th. For those who don't have insurance or need any assistance with their insurance co, like me, contact 'support path', Sherrie's story touched me an I just wanted to put that out there for ya'll!!!!
I was informed by a blood donor agency that I was infected with the HCV in 1992 after a college blood drive. I was shocked to receive the notice, I did not do drugs or participate in any of the list they gave me, except, I did receive a life saving blood transfusion in 1986 during an operation were I received four units. This was before the blood bank testing for HIV or HCV had begun. I was depressed for many years and drank alcohol heavily until 2002 when I stopped drinking alcohol until now 2013 and went to be tested for HCV and did not find any trace in my antibodies or anywhere within me. I do not nor does the doctors understand why I no longer have the HCV. They say I cured myself my liver and my own antibodies and maybe not drinking alcohol helped..even though there is a cure recently found. Although, I ate lots of fatty foods took about 900mg of Aspirin a day I have virtually no HCL or bad cholesterol in my system..I do have hypertension that I am controlling because I am a little overweight but my heart is fine. So I am pretty healthy and no longer worry about HCV.
I am 69 years old and got Hep C in 1978 from a blood transfusion to treat Acute Myeloid Leukemia. Prognosis for AML was 1 year on average but I got lucky. The price I paid was to live with Hep C for the last 35 years which was a preferable outcome. I lived to see my children married, grandchildren, and many many more blessings I never expected to experience. Now today I read about the wonder drug Sovaldi just as my viral load is in the millions. I read Gilead will sell the drug for $1,000 per pill. I am on Medicare and it doesn't look promising that medicare will cover the drug. I am due for another liver biopsy in the coming weeks. Perhaps there will be a patient assistance program or another country available for treatment. We will have to see how it goes.
I am a rare case. I found out in summer of 2012 when I donated blood for the first time at the Red Cross. I am a 30 year old white female who has genotype 6. I have never done any Iv drugs, never had a blood or organ transfusion, and never been anywhere in Southeast Asia where genotype 6 is found. My father was in Vietnam where he had surgery to remove shrapnel from his face. My doctors believe I contracted the virus from birth by my mother who must have gotten it from my father. A very low chance normally. My mother passed away 5 years ago never knowing whether she had the virus. I have had a biopsy and all looks good so I am waiting to treat until shot-free therapy is available.
hello everyone,
I am 27 years old now and still going for the treatments. I was diagnosed with chronic hep c at 26 in the Navy. They discovered I was born with the virus due to my history record. Since I was born in Russia but I am also part North Korea and the rest I don't know because I am adopted. The blessing I had was that I was put on the Pegasus program and got accepted in for free. The downside is I was bed ridden entire time. I had to quit school and even work due to many side effects. Losing 85% of my hair, major weight loss, blood loss, and list goes on. With great support from family I am still battling it through. It has been over a year now and can't wait to be done with it. My dream is to finish my med school and rejoin the Navy. It is well worth the battle.
Diagnosed with hep c 1995, am still here by a grand design, call it luck, fate, or not my time. I call it a grand design bigger than all of us. I have been through the testings, physicians, clinics, and have decided it is in the big picture, that my today, tommorrow, and future is in a grander design, that is to incredible to still comphehend.
I found out when my son was 4 I was devastated my husband n son tested negative thank god
I went on treatment for a year first shot made me so sick I passed out but was fine after that I went to work everyday felt great responded quickly & started testing negative at 2 months it's now been over ten years I still test negative I had such great support thru pharmaceutical company nurse called weekly I'm so great full I encourage you to seek treatment it worked for me I'm very blessed
I found out I had Hep C about 11 years ago. I gave myself a shot each week for a year and a half. That was probably the worst thing I had ever experienced. I lost hair, weight, and was sick the whole time and even a short time after finishing the treatments. My poor family went thru hell right along with me. I still have blood work done to make sure I remain clean of the virus. There is no trace of it now. It takes a LOT of determination and positive thinking to get thru this and a lot of support from those around you. I worked the whole time. It was very hard to get up and go to work everyday but I couldn't give in to it. I had to quit drinking alcohol with my husband and friends. I dealt with that by drinking non-alcoholic beverages to help me stop drinking. I quit cold turkey. My life was more important than the alcohol. I wouldn't wish it upon anyone. I an very thankful I went thru the treatments now even tho it was a long process. DON'T GIVE UP!!!
3 treatments before it took! 24 wks,48 wks, stand tx! 3 doctors later, Incivek and another 48! (Fire in the hole) Geno 2 fights with insurance etc,etc! It works! I have been free from Hep C going on 2 years. Yes, its hell. I worked thu 3 tx came out the other side. Now, it's time to fight the cirrhosis. I would do it all again! 60 years old, still got fight. John T
Hello. I was recently diagnosed with "acute Hep. C." in Nov. 2013. I had felt very nauseous and tired to the bone for about a week. Suddenly my eyes and skin took on a yellowish-color. I work in a Doctor's office, so one of my co-workers encouraged me to see on of the health providers. She examined me, drew my blood and sent me for an U.S. Then they told me what I had. After my gastro Dr. took my history, he said that if he had to make an educated guess, I caught it from my last partner, who happened to be a gentleman I met at church (he was an ex-drug user - heroin). The Dr. said I am the first case he's seen in 15 yrs. of "acute" Hep. C. The Dr. wants to wait until 6 months out to determine if I am "chronic", and will decide at that time if I will need treatment. This website helps A LOT, there's tons of information and helps to know I'm not alone!!!! I enjoy all of your stories!
Greetings special people - my story is similar to many others. Diagnosed in 97 - at age 46 - notified by Red Cross following a blood donation. Likely infection gained when experimenting with IV drugs in my late teens. Am alcoholic and hard drinker for most of my adult life. I wanted treatment but Consulting Specialist advised against triple therapy saying it was bad news and I would be better off with a healthy life style and suggesting I could look forward to a life expectancy in mid 70's. I went into a deep depression and tried to hasten event by drinking myself to death. Finally gained ref to Liver Clinic in 2004 and inclusion on triple therapy program. Genotype 1a - scheduled for 52 week, suspended at 26 due to poor SVLR. Bad side effects with aneamia, weight loss and psych issues all combining to put stress on relationships and family. Tried all the natural therapies, milk thistle, juices etc but went into a spiral, straight back on the booze with aim of self destruction big time. In 2009, was offered a place on a trial of a new therapy - 52wks of interferon, ribaviron and an trial med. I had to make a decision - life or drink. I chose life. After 52 weeks - no sign of the bug. (Yeah!!) At 65 weeks the bug was back. (AArgh!!) What a roller coaster ride it's been. But I try and keep a positive outlook, keep up to date with new treatments and am holding out for another shot at redemption. I don't say anything to anybody about having Hepc. The ignorance of many people is astounding. I try and function normally,watch my diet and do hard physical work. Many days it is struggle to get out of bed but I put that down to my age and workload rather than effects of the virus. Thanks to the grace of God and the support of my wife, I have been sober for the last 4 and half years and will never drink again.
I found out two and half years ago I had hep c and a lot of medical issues. I finally got Medicaid to try to help me to get treatments, I do not work I am now having a lot of muscle aches and just feel so bad more than I feel good. I am so worried I wont be able to afford the treatments. I know there must be some kind of help that could help me get them so if anyone knows please let me know
Hi my name is Shane I recently completed treatment for hep c via pegasys/ribaviran and have tested negative! Awesome news right.. Well not exactly. After finishing treatment I have been left with a severe panic disorder. Now I have to be on high amount of Xanax just to survive. Has anyone else had this issue? Anyway I do beleive the treatment is very successful, but may leave you with other debilitating health problems.
Thanks :)
Shane
1999 diagnosed Hep C and Hep B they said had it for 25 years due to biopsy cirrhosis, no insurance no treatment, 2012 state insurane and drinking heavy for last 10 years, biopsy cirrhosis and varisies are larg so on betta blockers, blood teast Hep C GONE! dont know how but doc says 15 20% happens, but me, i had hep C for better than 30 years,,, Hep B still there take Viread started 2013 Nov. looks like med has great trials and cirrhosis regresses 3 points on average Ishak scale, so that sounds great looking forward to scarring to be "gone" look it up its true,,, So for someone like me to be infected since 18 and now 53 that has drank heavy around the clock sometimes THERE IS MORE THAN HOPE,, get rid of virus Cirrhosis REGRESSES SCIENTIFIC PROOF,,AND GET ON WITH LIVING ABOVE ALL THANK GOD AND MEAN IT IF YOU DO I PROMISE YOU HE WILL LISTEN<<<THANK GOD IMPRORTANT<<<AND MEAN IT!!!! PROMISE HE WILL LISTEN,,, I am average person not holy roller ,, I just need to tell you that he is there and it is true,,, I have alot of things that I am not proud of and so does everyone,, you are not unique,,,, I am at a point now I dont drink have a 9 year old doughter a wife ,, two dogs and GOD,, find him,, personal relationship,, talk to him,, talk to people the ones you feel that are of help and care,,, this comes with getting close to God,, WWisdom,, its Free and there for you,,, If you are reading this and feel emty scared hopless then I ma talking to you and hope that it is said right because I am speaking for the Almighty,,,,,I just seen this web site and writing now shooting from the hip,, so it just flowed out ,,,, Really Hope it Helps someone,,, Find God There You Will Find What You Need,, God Bless You,,,, Note look how many years I have live with Hep C and B and Drugs and drinking,,, I feel you are gong to stay around and only when your done God will call,,,S o Find Him !!!!!!!!! He knows where you are and is waiting
I am a survivor of Hep C. It has been about ten years since I finished over 14 months of treatment with Peg- interferon, ribavarin and procrit (I hope I spelled it correctly).
I was a single mother of three children young children with no family support when I was first diagnosed. I remember just before the diagnosis, I would load up my children in the car, drive to the local Walmart or grocery store, put the children in the shopping basket and make it to the front entrance before a wave of extreme exhaustion would come over me and I would have to go home without shopping.
I consider myself lucky as I was a newly graduated nurse and had insurance that covered treatment. I had sub type 1A and was told I had a 50 /50 chance of successfully recovering. I started immediately.... and Immediately thought I was dying from the side effects of the medicine! I am SURE I had every side effect that was listed... and then some, but I wanted to get cured. I went from 115 lbs down to 90lbs and suffered extreme nausea and fatigue, I lost the zest for life, my job and I thought I was dying. I even spoke to a religious family about adopting my children. That is how bad I felt, but I continued with treatment. I was determined. I stayed the course of treatment and am very glad I did. The Hep C cleared from my system. Towards the middle of my treatment, I met my future husband. I remember how worried I was about telling him that I was hep c positive and that we could be only friends because I had Hep C. ...what can I say... he was a doctor and married me a year after treatment.
It has been ten years now. I still suffer from fatigue but nothing like what I felt during the treatment. My husband believes that I might have some type of auto immune issue caused from the meds, but we are not sure. To me, the benefits are greater than the negatives.
Please, if you are Hep C positive, get medical treatment. I am so tired of people saying herbals and healthy eating will cure Hep C. It does not, although it is important to eat healthy, exercise and get plenty of rest.
Good luck to each and every one of you.
Hi my name is Mack and I have had Hep C since 2001. I am happy that I am still kicking, lol and doing well by the way. Anyway I have really been getting weak lately, and my liver is quivering. I also have very dry skin, does anyone have any feedback? Very appreciative.
Sincerely, M. Chancey :Minister of the gospel.
I was on triple therapy with the incivek, ribavirin, and peginterferon I went through the whole treatment while the side effects were bad, I failed, Doctors thought I would have a better chance since I was only 19. I contracted hep c from my mom through birth she cleared with the triple therapy and I did not, this is my 3 rd time trying treatment hopefully something new will work.
Well I was three months pregnant when I found out I was hep c positive and four months when I found out I was considered chronic. I had to see specialist during my pregnancy and when I thought of the fact I could transfer it to my child I was devastated. After my son was born I had him tested at 18mths and he was NEGATIVE! phew! I thought then I began treatment, on three different meds, incivik, interferon, & ribavirin. I was taking it for two months when I had to abruptly stop and move out of state. I was told never to stop mid-treatment but I had no choice. When I got settled in my new state, I went to a hep c specialist and told him everything. He decided to get blood work to check my viral load.. I got a letter in the mail stating "I have received your blood work results and I happy to inform you that your hep c viral load is below 43 which is considered normal. You no longer have hep c and need no further treatment." My hep c viral load seven months prior was in the millions! The reason for my story is to tell you to never give up hope I was told I had to do at least six months to a year of treatment and I beat it in two months. I never thought that was possible I thought I screwed up by stopping but I was wrong. There is light at the end of this tunnel.
I would just like to say to char that I am really happy ur undetectable......be mindful of what u write when it comes to the word "cure"...there is no cure for hep
Would you please help me regarding the stories i read one of them "Harry D" he told he used korean red ginseng from lizada herbal clinic...i wana have his help that how can i get approach to this kind of medicine...as i'm also suffering from Hep C since 10 years and I'm not taking any proper treatment. so i read his story and i got confidence that he is now in medical field and enjoying his work...please let me know about him so that i may contact that very person or tell some other alternative to get access to this medicine "korean red ginseng"
Sajid Ali.
Hi I found hep c positive in August 2013. I am taking treatment as well. i am taking invic.pegylisis inj and ribavirin tab. Before you start your treatment you need to find about your financial and who can look after you. you can not work during treatment but we are very lucky people can get rid of virus. it is no more life carrier. Thanks be positive.it is only short time of life is bad. we are going back to normal life again, like cooking, playing with kids, as normal as it was before.
I first noticed something wrong when I was told to give a urine sample as part of the intake process at a homeless shelter. It was 1997 going in to 1998. I had been feeling weak and nauseated for the prior week. When filling the specimen cup, the observer noticed it before me, saying "wow that doesn't look good at all" I'll always remember those words. A Tri-Cap volunteer drove me to the hospital ER. Another urine sample and some bloodwork confirmed only that hepatitis virus was in my body. What type took a few days to determine.The diagnosis was made in 1998, but I had been using heroin intravenously since 1974, before AIDS and addicts shared syringes routinely, if needed, so I have no idea when I actually caught the virus.
Time went by, I continued on as an addict doing intermediate jail/prison time. Each time I was paroled, I tried to stay clean but it never lasted more than a few months. This led to parole violations for dirty urines. Additional crimes led to even more I lived in NYC and following a parole from my newest offense I obtained permission from my PO to relocate here, in MN. I stayed clean for 8 years, relapsing in 1994 or so. More jail, continued use all the while, being monitored for Hep C and finding I still had the virus. In 2009 I got onto methadone maintenance therapy. I stopped using any drugs whatsoever.
In 2011, a guest speaker from Chicago came to the program for a lecture on Hep C. Subway sandwiches were provided, so the attendance was almost full. We were told about recent methods of Hep C testing.Two methods were discussed; Viral Load assessment and Genotyping afterwards. I gave some blood and urine samples at the hosspital. The results came back as: HVC not detected. But there were antibodies. Genotyping could not be done because there was NO virus to test! I couldn't believe it and went to another clinic that provided the same two types of testing for a minimal fee. No problem. When it was all said and done. The results were identical to the first tests. I was very happy. Unfortunately, I was diagnosed with prostate cancer following a finger wave as part of my yearly physical. My PSA was only 4.75. I was not an aggressive form and it had been caught early. Following surgery I've been cancer-free, with a PSA of zero at 3 follow-up visits. My next follow-up is scheduled for a year later.
Anyway, in discussing my "spontaneous remission" with lots of different people in the know some said it was rare, others said they had heard that 25-30% of patients experience 'spontaneous remission". What is the bottom line on those figures?
I was diagnosed with hep c 6 years ago! I did interferon ribavirin and also procrit. I became undetected after 6 weeks and I just tested again 6 years later and I'm still undetectable and negative for hep c! The treatment is hard but nothing's impossible with God. Jesus Christ and these medications saved my life! Be strong and courageous! I had a wonderful nurse who stood by me through it all, we are still friends today!!! Find someone you can confide in and cry out to and if not cry out to Jesus! Don't be Afraid the treatment is worth it :) I am only 30
My hub has hep c tried the treatment was allergic was acting insane. Finally got the transplant from our daughter living donor. He is still confused in lots of pain if he could redo if would not have had transplant. Ppl need to know drs don't tell truth.
Hello I was diagnosed with type 1 diabetes in 1998. My sugar levels un controllable with exceeding doses of insulin Dr.'s Scratching their heads 2 yrs. later my family Dr. Prescribes me meds.So with these pills she sends me for liver test. They come back showing elevated enzymes. She calls me back to her office and asks me personal questions so I told her I had used cocaine in the 80's by snorting it. she then tested me for Hep. C Positive double whammy. At first it was poor me, why me boo ho. Well that didn't last too long had to take a positive attitude. I immediately started treatment with Rebatron a interferon and pill combination for 6 months virus still remained unsuccessful it wasn't pleasant dealing with treatment and diabetes....13 yrs. later I'm still pluging on living a healthy lifestyle and praying for a cure for both of these awful diseases. By the way during these last 13 yrs. I have 5 beautiful grandchildren they surely keep my spirits soaring. Peter
I have spent years attempting to find a diagnosis for migraine headaches, debilitating fatigue, body aches etc. A rheumatologist sent me hep c test which I thought was a waste of time, but now that I'm diagnosed all the symptoms fit and make sense. Ive probably had it for 40+ years. I've been treating myself with Ultimate monolaurin, bio-fibrin and assorted herbs and feel my health starting to return. Being vegan for many years and not drinking or smoking helps too
After three gastro docs recommended interferon rx for my HepC I had for about 15 years, and against my better judgement, I battled (yes it was a fight) through 48 weeks on peg interferon and ribavarin. Immediately I noticed I was afflicted with just about every side affect but after the 2 month mark my HepC was going. Although I was in physical and emotional misery I elected to complete the treatment come hell or high water. I was determined to finish what I started and thought a life without HepC would be worth it. Oh how wrong I was. I wish I would have kept fighting and looked for alternative non poisonous treàtment alternatives. I wish I would have been warned that I would never be the same. I wish I would have known about the anxiety and panic depression and despair I would not be able to shake and which would only grow into the monster it has become. I can no longer work. I can barely leave my home, so odd for a woman once engaged and active in life. The body aches and nerve pain, the dizziness and inability to concentrate only adds to the daily challenge of mere survival. The love of my husband and family keeps me fighting to climb out if this hole the hope that I can somehow help others keeps me alive. I just pray you have the support you will need. I just pray your experience is better than mine. I pray we find an alternative to this poison. I pray those of us damaged and continuing to suffer will find the help and healing needed. If anyone hears of any class action lawsuits to stop the use if this ineffective and life destructing product which reimburses victims of this treatment, please let me know. I hope you keep researching alternatives because you do not want to take treatment only to have it make you feel worse than ever. I hope this helps somehow.
Got a letter from the red cross three days ago. Says I have hep c. I'm terrified out of my mind. I have two beautiful little girls, and have been married for almost 7 yrs. I haven't said a word to anyone yet. Every thought imaginable has been going through my head. Mourning for my girls and my husband. Where did I get it, how long have I had it, do they have it. Oh god I just don't know what to do. I called the dr to make an appointment, and don't even know what to say its for. I don't want to blurt out hep c, my husband is in the military. And I can already see from the stories the stigma this carries. I don't use drugs, don't drink, and was in the military myself. Shouldn't this have been found? At this point I'm just wishing I was dead. Idk what I'm gonna do.
I had hep c for 15 yrs until a doctor suggested that I try interferon. I did for 10 months. You will feel terrible. Flu like symptoms and so tired. I had to stop because my white blood count got dangerous. Well it worked. No active activity. But beware of the long term side affects from this treatment. I now have unexplainable aches and pains, no appetite, and not my old self. Terrible depression and I go to a pain clinic to treat my pain which is devestating. But no hep c. The choice is yours. Live longer with unexplainable side affects or die of liver disease. I think I made the right choice.
Hellow and Salaam to everyone i am 23 years old and live in pakistan i diagnosed with hcv genotype 3 in 2010 september , i go further for test hcv qulatitive and it was positive i started my treatment with peg inf and ribavirin for 6 motnhs after 4 injections i got my pcr qulatitive test negetive my doctor told me its RVR (RAPID VERLOGICAL REPONSE) then i completed my 6 months treatment but after treatment i did not get tested again because i was scared that if it will postive then i cant take injections anymore so i didnt , now after two years i didnt feel better , my stomach is upset , my skin color is getting yellow , i feel depressed all the time , anxiety disorder , weight loss , and not feel energetic ... i am not scarring u some peoples didnt notice these symptoms YOU JUST START UR TREATMENT TODAT GOD BLESS YOU TAKE CARE AND PRAY FOR ME
My husband has Hep C. He did two rounds of peg intron, ribavirin...etc. latest greatest, and no results...whaaaa wha! Ok so I said"you have to be vegetarian, no drinking, marijuana ok, and SPEND TIME WITH US!!" that's the one that he hates. being with his family. His personality has changed so bad..I hate him now..I hate that Hep C destroyed the man I fell in love with. He was kind, sensitive, funny. Now he is angry , competitive. and so full of hate. My daughter and I cry everyday..it is taking it's toll on us.
Hello.... My name is Cindy and I want you to know that there is hope for those with Hep C... I was diagnosed in 1996 with the virus... I waited for 10 years before I went into treatment at the Liver Center....The treatment was hard in the beginning in 2006 but I stuck it out for 2 years and finished treatment and went back to see my doctor in six months and got tested and he told me the virus was gone after the results from my blood work came in and that was in 2008...I was treated with Peg-interferon and ribavirin... I never went back after that... Now 5 years later 2013 I went and saw my doctor last week and was tested again and my results came in this morning and I was negative for Hepatitis C in my system.... I am so happy I just wanted to share this news with you... And I wanted to thank HepCentral for the support in the news letters of hope all these years.... I am 60 years old now and happy to be free... It does happen so never give up... Love and prayers to everyone...
Hi all,
I wrote back in June 2013 about my post treatment effects. Well, I thought I had begun to recover a little since then: I went back to the gym to workout; healthy diet etc. Today I am sitting writing this to you feeling weak; sore throat; autoimmune system is up the creek. Bruises are appearing mainly on my legs (some are really big). When I have a blood test my arm bruises badly. There is pressure in my head almost constantly. My weight has dropped by 15kg/140lbs. I am a vegan, but I ate Meat and dairy products to try to put weight on but continued to lose, so I returned to my vegan diet (much, much healthier!).
I am a Christian, so no matter what my life is like I give God the glory for all situations. Jesus Rules!!! AMEN.
But the point I would like to make is: a large number of people like myself feel that it would have been better to live with the hep c virus than to feel the way we do today.
I was looking on a vegan website for people with hep c. (I have hep c genotype 1a). And many good folk have found great results by following the vegan lifestyle. Some have become undetectable after 2 or so years. Others have had the virus reduced to a really low viral load that doesn't need treatment.
The strange thing with post effects of triple therapy (I had telaprevir) is that all my blood tests (I have had every test possible) return normal! I have had X-rays on my joints; abdominal scans/fibro scans and now they want me to have another liver biopsy. I don't seem to get any honest positive answers from the hep. specialists; they simply do not seem to know what's going on.
If you want good information about the after effects of treatment, go on line and look at the trials they have done in the past few years with telaprevir and boceprevir; you may be surprised at the results!
Keep on fighting my dear friends: and if you can possibly survive without treatment, then go for it!
I love you guy's for sharing your all.
May the Lord Jesus find His way into your hearts; when that happens, life is worth living and death is not something to fear.
Blessings to you all.
Malc S.
"For God so loved the world, that he gave his only begotten Son, that whosoever believeth in him should not perish, but have everlasting life."
"For God sent not his Son into the world to condemn the world; but that the world through him might be saved."
(John 3:16,17)
AMEN
I was infected through a blood transfusion when I was just a young kid. I went through two different Hep C treatments and was a non-responder each time. By age 45 I got a liver transplant. While recovering from this operation, things went really wrong. I am telling my story at mythicalpatient.com and you are welcome to come over and check it out, But if you scare easily, don't read.
I'm living normal life from the last 10 days I got head aches.I been to doctor he suggest me for lfts and U/S. After that I diagnosed elevated liver enzymes and Gall bladder stones. My Hep C is positive and I don't want to go the treatment I have hear about interferon and pegasys.
From the day I knew my life is like Miseralbe than ever everything seems to be ruined. Ifeel like im dying and no one is willing to support me at this time. My friends are gone with sympathic ways. I dnt know what to do I have no choice left, please suggest something
Hello, my name is Greg. I am 30 years old, and have had Hepatitis C for my entire life. I am 99.9 percent sure I contracted it at birth during a surgery at the age of nine months. No one tested for it at that time.
I didn't receive word of the HCV diagnosis until I was 17, after trying to donate blood for the first time. I was so excited to be able to donate. The American Red Cross sent me a letter stating never donate again.
So I looked up HCV, how its contracted and spread, and I went to the doctor. I didn't have a liver test, since I didn't feel any different...I thought it was a misdiagnosis. In my 20s, I was quite active with running marathons and eating well. I still try to run and eat well.
Fast-forward to age 29 and 30, in 2012 I started to feel more tired and had some reactions to substances, including alcohol, chocolate and caffeine. I was never a heavy drinker, more of a once every couple of weeks drinker.
One night at a bar, I ordered my usual -Guinness- and after the first sip, started to feel dizzy. I put the drink down and asked the bartender for a glass of water. My pulse started to increase and I left. I ate some food, drank more water and was surprised by this. I would experience rapid heart beat from small bits of chocolate, a sip of wine at church, you name it. Stimulants and I just don't go together anymore, including caffeine. I believe I now have a sulfite allergy.
I eventually saw a doctor, who confirmed I have Genotype 2a HCV, viral load of 1 million. I refuse to take the prescribed treatment. Instead, I take UltraThistle, B-Complex + Vit C, Calcium/Mag/D, and I juice daily (carrots, apples, cucumbers or grapes. I also add beet, sometimes.) In addition, I drink Dandelion root tea a couple of nights a week.
I've noticed I am feeling lighter and better, with more energy. I would advise people to try and avoid multivitamins, as Vitamins A+E can raise your viral load.
Here are my latest lab results (Aug 2013)
Iron: 96 (Range: 45-170)
TIBC 334 (Range: 250-425)
Transferrin Saturation (Range: 20-50)
Hepatic Function Panel
Protein, Total, Serum 7.3 (Range: 6.1-8.1)
Albumin 5.1 (Range: 3.6-5.1)
Globulin, Calculated: 2.2 (1.9-3.7)
A/G Ration: 2.3 (1.0-2.5)
Bilirubin, Total: 1.1 (0.2-1.2)
Bilirubin Direct: 0.3 (< = 0.2)
Alkaline Phosphatase: 52 (40-115)
AST: 49
ALT: 103
Bilirubin, Indirect: 0.8 (0.2-1.2)
Ferritin: 102 (20-345)
Ceruloplasmin: 21 (18-36)
Alpha-1-Antitrypsin: 122 (83-199)
ANA (Neg)
AMA Micochondrial AB (negative)
Mitochondrial AB: Neg
Mito Chond AB Titer: TNP
Smooth Muscle AB: Neg
Smooth Muscle AB Titer TNP
Alpha-Fetoprotein, Tumor 1.9 (<6.1)
HCV RNA 1802614 <43
HCV RNA QN PCR 6.26 <1.63
I was diagnose with Hepatitis C 2010 . inject myself with Pegasus interferon along with anti depressant medication required me to take. Now i am looking back try to put this disaster experience behind me and put my life back and start over. After three months of the treatment my mind was completely gone. I was having hallucination about killing myself all the negative thoughts at the time. After two and half years I still can't get over my depression, some days I feel better than the other but now completely over it.
I have resign from my job because I was not able to comprehend that job I was doing for 23 years , I could not function as a normal person everything and everyone was out to get me. I wish I did not take the treatment now , I wish my doctor would explain to me that it is the medication making me out of control , now my life pretty much destroy , no job no place to go .
I am a recovering I.v.drug user. I've been clean three years almost and recently finished my interferon treatment for hep c. The three medications in this particular treatment are a little ruff. It broke me out in a rash for months and messed with my mental stability causing the d.r. to put me on zoloft. Was it worth it to get treatment......Absolutely!!!!!!! Thank god for this treatment I hear the next one coming out is easier. Get treatment!!!!!
I became very sick in the mid 80's. Migraines, mood swings, depression, lack of energy, confusion, skin disorders, pains. Then I got chicken pox for the second time in my life, after i got shingles after i contacted anyone that had chicken pox, very painful. My doctor at the time decided I had chronic fatigue then Epstein Barr virus. I became allergic to most foods and petrochemicals. After I had a LFT in 1991 I found out had HCV. My doctor told me I may be dead within the year.
I had regular migraines and spent most days with my head over a bucket. My husband was shocked and unreasonable when I told him. He refused to sleep with me and it eventually cost my marriage. None of my past partners had the virus nor any of my family. However I found out that a group of friends that I had experimented with hard drugs in the mid seventies also had HCV. In 1995 I was part of the experimental interferon programme. However I reacted to the liver biopsy after 4 attempts to get a section of liver I was in agony. I also bled heavily and I had a mini heart attack so I refused to continue.
I joined a support group only to find later the founders died and everyone else was heading that way. I decided to treat myself. I studied and became a nurse and also studied many alternate therapies. Over the years I tried all sorts of diets and therapies. I had blood tests every 3 weeks so I was able to do a lot of experimenting with foods and the reaction on my ALT etc levels. I found stress and fried foods had the biggest negative results. In time I changed my diet to whole organic foods eating small amounts of organic chicken and fish. I discovered by chance one of the worst things was Fluoridated water especially if they overdosed the levels over 1.5 parts per million so we bought a 900 gallon s/s rain tank and filtered the water in carbon filter jug as well. My levels all dropped dramatically after this change.
In 2011 I decided I was going to get rid of the Hep C. I spent hours researching if it was an intercellular micro parasite and how it lived in the liver and multiplied. I went on the Gerson cancer diet for 40 days, green juice and regular coffee enemas to clean out my colon and eliminate the toxins in my liver. I then ate only organic whole food as well as taking Milk Thistle 600mg 2 x daily, N-Acetyl Cysteine 600mg 2 x a day, L-Methionine 500 mg 1 per day, L-Glutathione 500mg 2 x 2 daily, Coenzyme Q10 one a day, about an hour before I go to bed I take a tablespoon of organic Jalna yogurt and one 3 mg Melatonin capsule, I sleep like a baby.
I used to have a brick living in my liver that kept trying to get out during the night via my rib cage, at least it felt like it! First thing in the morning I have half a glass of water with abt half a teaspn of fresh lemon juice added then half an hour or so later I make green juice or carrot with 1/4 of a fresh organic beetroot added. I use one kilo of veggies. If I can get fresh turmeric I add about an inch in the juicer I also always add about half a glass of rainwater to the juice so it's not too strong on my kidneys. I slowly drink all the juice over the morning. I eat small amounts of food regularly rather than 3 large meals. I have 2 thin slices of sprouted Ezekiel 4:9 bread with tahini and org honeycomb wax & all every second day. I have genotype 1a, and my HCV Load has gone from 12,800,000 IU/ml in 2001 to-340,000 IU/ml in 2012 to 1,000 IU/ml last month. I believe this time next year I will no longer have HCV. I also now pray regularly thanking God I discovered how bad Fluoridation is for people with Kidney disease & HCV and giving me life.
I was horrified in 2010 to be told I had hep c as I had a transfusion in 1975 and felt I should have been screened 1990 but my hospital closed .and I was given no info. so I went on transplant list as I had a cancerous tumour. however my donor organ came in dec 2010. I had the gift of life. addenbrookes team saved my life. Will never forget them. It's a hard struggle at times .im on rib ratvan to treat hep c. i say a prayer each day . to my donor family . i have been so lucky god blessx
I was recently diagnosed with Hep C after a LCD insurance medical . Was annoyed that my family doctor had never tested me . I had blood transfusions in 1977 and 1984 after childbirth . I was tested for HIV back than and happy to be negative . I am geno 1a 52 years old with stags / liver damage mild . I want to start triple therapy ASAP there is a lot if talk about waiting but I want this virus out of me now !
Good news for Hep C infected people, my husband did the 3rd phase trial of Ab-Vie meds and is free from Hep C. In 2 weeks of starting his viral load went from 28 million to 425, by the 4th week it was undetected. He was on the meds for 3 months with no side effects. They do not expect it to return. The meds will be available next year.
As we were celebrating the success of the trial, I found out I'm infected. I was pretty bummed to have found out too late to be in the trial. So I am also anxiously awaiting the new cure.
I just finished my triple therapy treatment for 48 weeks, and I am so grateful to say that I went undetected back in December of 2012. There were times that I wanted to stop, but this was my life we were dealing with. I had tremendous support from family and friends and most importantly a God that carried me when I could not carry myself. This was one of the toughest roads I have had to travel, but it works! The best advice I can give on a personal level is to keep moving. I went to the gym when I was strong enough and rested when I was weak. Everyone reacts differently to the medications, so listen to your body. I drank a lot of water and chewed on ice chips for 48 weeks. It really helped with the nausea and kept me hydrated. I used Aveeno Lotion to help my ichy skin and Benedryl at night. Lastly, I never gave up hope that I would get better. Good Luck to anyone who needs this treatment!
Hi, I am a 50 year old woman who just ended the triple cocktail treatment for hepatitis C genotype one. I read some of the stories here and felt I needed to contribute. I was on interferon/rebitol/victrelis and it was the most horrible year of my life. From the beginning of my diagnosis and into treatment I was discriminated against, uneducated, ignored, brushed off, I could go on and on. This is a life threatenning condition that had reduced my quality of life to zero and on entering treatment I was told "it was no big deal" "you can work" blah blah blah. No one told me about nausea, mental problems, weakness. No one ever not even once told me to stay hydrated--I got dehydration headaches from the start. No one told me about teeth care from vomitting every day, no one told me anything about anything. I did not even really know much about Hep C cuz no one told me anything. I was forced to walk off my job after the first month of treatment cuz I spent most of the day vomiting in the bathroom and was totally out of it for the rest of the time, I could barely drive home from work. No one told me to stock up on saltines and soup and juice and gatorade and I am a single woman with no support network---I had nothing available to me at home and was too sick to shop. No one even offered me antinausea medicine I had to literally beg for something to help me from puking up all my meds.
When I asked my doctor about being put on a liver list in case I needed one he told me that "people like me don't deserve to be on that list" When I would call in and explain my symptoms while crying the nurse would tell me "if you can't handle the treatment then quit". When in my 3rd month when everything escalated and I started hearing voices and fell into a deep dark dangerous depression, no one told me a thing. To begin with the doctor didn't ask me any questions about my mental illnesses and I am bi-polar. No one told me this is dangerous for bipolar people. Then I started going manic and nuts and no one cared. No one believed me when I told them I couldnt sleep, couldnt think properly, no one cared at all. It wasnt until I started losing my eyesight and insisted I see a opthamoligist who, by the way, totally MISSED my diagnosis and dismissed me too and again I insisted I see someone to get help cuz I couldnt see. Finally I got into a neurologist who diagnosed me with neuropathy and optical neuropathy that I finally got some attention. My GI told me to stop treatment immediately cuz in rare cases people can go blind from this treatment. Well, NO ONE told me that either.
Then finaly my mental state was taken seriously and I was treated. In hindsight I am not saying dont do treatment but rather that the medical world and pharmaceutical world have a little compassion and be honest and forthcoming with INFORMATION so people can at least have a fighting chance to finish treatment with a successful outcome rather then failure. My viral load currently is zero but my chances of being successful greatly decreased due to stopping earlier than the recommended time. I was disappointed in my doctors treatment and the treatment I have received from the federal government in terms of getting disability assistance as well as the whole medical arena in general. I hope and pray there is a alternative treatment soon for Hep C and in particular geno type one since it requires an extended treatment time. Anyway, I hope this helps someone out there.
it was 1996 my brother-in-law had stage 4 liver problems. he took medicines to clense his liver had oxygen I cut myself he bleed throw his nose a lot I got it at his house I should not have used the toilet there should not have used one of his razors but I did not know I helped him keep his bills up. no one would help him so I did would I do it again yes I do not feel bad on how I got it
I don't know how I got Hep C. I don't have tatooes, never been a drug user, have no body piercings. However, I was diagnosed with Genotype 2. I was scared at first bc of side effects but went ahead with treatment anyway. I am on Interferon and Ribavirin. I haven't had any side effects except being tired off and on. My blood work is good. I feel as if I am not taking any medicine at all!! After a month of treatment so far, the virus is undetectable. If you are scared be brave and take the medicine. Everyone's body is different, it may not even affect you.
Hi everyone, I am 46 years old and for the first time since diagnosis(2002), I decided to read stories of how others are coping and was uplifted and wanted to share my story as I feel it is different from the others I have read.
While pregnant with our second daughter in 1999 my doctor kept mentioning excessive protein in my urine, it was attributed to pregnancy. uuummm that was not an issue 8 years prior with my other pregnancy but I just trusted the doctor and put it out of my mind. A year after having our second daughter there were still signs of protein, strange! We investigated and my ALT levels were elevated and my doc was convinced I have been drinking too much which I don't do. Scans showed that my liver was fine but my kidney was compromised, how, no idea whatsoever. I started seeing a nephrologist and continued for a while until the question came up about blood transfusion and my husband remembered that I had a blood transfusion with our first pregnancy/miscarriage in 1988. I was so out of it at the time, I had completely forgotten. In Canada there was the tainted blood scandal that was all over the news in the early 90s but I did not pay attention to it but it was after more investigating we discovered that I did receive tainted blood and subsequently HepC from the Canadian Blood Services in 1988. What a shock. The other shocker was that my liver was perfectly fine, the HepC virus had started destroying my kidney, VERY VERY RARE but also much more complicated as the liver could regenerate but the kidney does not, I was scared for life.
We immediately checked my husband and our two daughters who thankfully were both clean.
Because I was young and strong, I immediately did the Interferon treatment for 48 weeks and was successful and had a zero viral load at the end. Yes the treatment was horrible, had anemia had to get the shots, lost weight etc., but with positive thinking you get through it, I never one day thought the treatment would not work and that made a difference for those weekly injections that my daughter helped me with. She inspired me to be strong because I felt that her being born saved my life.
Thankfully the Canadian government provides compensation for loss of income, out of pocket expenses, dependant care, cost of care, etc., so it makes it easier not to worry about those issues while fighting for your life.
To this day, I still have zero viral load and have had no relapses but continues to live with renal failure not sure which is worst, but I am thankful that the medicine did work for me and as long as I keep my kidneys healthy I will live a long fairly healthy life.
Not many people link renal failure to HepC so I hope my post will cause them to think. HepC is not only liver, its kidney as well.
Take care everyone and keep positive!!!
Karen A
My husband started his battle with Hep C about five years ago. He did shot treatment and boy was it hard on him. He had like the flu and near the end of it he started doing crazy stuff. Sleep walking, wetting himself, falling alot, doing very odd stuff. He was going crazy so they took him off a couple months early. When they tested him it was all good. Well he has started feeling bad again and they did blood work and its back. Im so scared for,him and our family. He is the one who makes most of the money in our home we have two children 16 &13 .
Hello everyone.
I couldn't find an appropriate place for my question so I'm posting here.
I am going through a 1 year treatment with Interferon alpha 2b. And I've got two words for how I feel: "Living hell".
There aren't many personal stories about this medicine so I found your site. Can you guys please share your stories on how you have felt during your treatment?
Is there anything I can do to relieve nausea, fatigue, muscle ache and 50 other side effects that are annoying? Do you have these as well?
I am close to 4 months since the beginning of my therapy and I've already lost 14 pounds. It's just so frustrating! Why can't I eat?! It's like I feel really hungry but when I take just one bite I am full.
I would really love to talk with someone who went through this or is currently on medication like this one.
I am a nurse and have been for 26 years. I was stuck by a dirty needle 20 years ago before anyone was screening for Hepatitis C. I was getting a routine lab a year and a half ago and found out my platelets were low and liver enzymes elevated. After further testing I was diagnosed with stage 3+ beginning cirrhosis genotype 1a. I started triple threat immediately. I was on Incivek, Ribavirin, Pegasys for 48 weeks. I had to go the full length since I had cirrhosis. I wanted everyone to know that the treatment is hell (mainly the first 3 months) but I am undetected!!! I just had my 3 month after treatment lab and it is still undetected. I cannot say I am cured until after I get my 6 months lab. I was fortunate to have a lot of support, I had some of the many side effects but minor compared to others I read about. But do it people. I was tired, weak, nauseated, but I am cured!!!!
I HAVE HAD HEP C FOR, I DON'T KNOW HOW LONG. PROBABLY CLOSE TO 13 YEARS OR LONGER. I HAVE REFUSED THE INTERFERON SINCE THE BEGINNING BECAUSE, FRIENDS HAVE SAID, THAT THE TX IS LIKE KICKING HEROIN AND MEGA DOSE OF KEMO ALL WRAPED INTO ONE. THANX, BUT I'LL PASS!!!!!
A FEW YEARS AGO I WAS TOLD, AGAIN, THAT I SHOULD CONSIDER THIS TX WHEN A LIVE BIOPSY SHOWED THE START OF SOME CIRROHSIS. I STILL REFUSED AND MENTIONED WAY TO MANY TIMES THAT I WOULD NEVER CHANGE MY MIND ON THIS. I BELIEVE THAT YOUR LIVER WILL HEAL ITSELF IF GIVEN HALF A CHANCE.
WELL A COUPLE OF YEARS AGO, THEY SENT ME FOR A TRANSPLANT ASSESSMENT AT THE LIVER HOSPITAL IN PORTLAND OR. IT WAS THEN DECIDED THAT I WAS NOT A CANIDATE FOR INTERFERON AFTER ALL, BEACAUSE OF MY METHAMPHETAMINE INDUCED PSYCOSIS. I WAS PLEASED THAT THEY MIGHT JUST LEAVE ME BE AND LET ME TO DO MY HEALTH FOOD. MY NATURALPATHIC REMEDIES, OXYGENATED WATER AND MILK THISTLE. A COUPLE OF MONTHS AGO MY LIVER FUNCTIONS SPIKED AND EVERYONE BECAME CONCERNED.....I DID 'MY THING' AND THE LAST LIVER PANEL THAT WAS DONE MY DR. CALLED ME FROM HOME AND SAID 'CAT', I DON'T KNOW HOW YOU DO THIS, BUT YOUR TESTS ARE AMAZING, (ONCE AGAIN)!!!!!
A NEW ORAL REPLACEMENT FOR THE INTERFON, FROM GILLIAD, LEFT THE CLINICAL TRIALS IN APRIL AND IS NOW BEFORE THE FDA. I AM GOING TO BE COMPLETELY WELL SOMETIME IN THE NEW YEAR WITH THIS MIRACLE. THE CHEMICAL TRIP I LEFT BEHIND WHEN I GOT CLEAN. WORKS FOR SOME.......BUT I HOPE MY STORY GIVES HOPE WITHOUT IT ALMOST KILLING SOMEONE TRYING JUST TO GET WELL!!!!! MANY BLESSINGS TO ALL WHO READ THIS......ALONG WITH ABUNDANT, HEALTH HEALING AND IMMUNITY!!!!!!!
THE WILD AND CRAZY CAT
I was on peg, rib and bocep for 7 months. After 8 weeks and through the rest of treatment, the virus was undetectable. Yes, the side effects were pretty horrible, but I was warned that it was much like Chemo. I lost nearly 60 lbs. But here's the rub, I finished in 28 weeks because I met all criteria for short treatment. Now, just had my 6 month follow up, and IT'S BACK!
I knew something was up because I never really got an appetite back and I didn't feel as well as I thought I would after going through hell. I continue to lose weight, the only food I care to eat is sweets. I eat because I know I have to, but I could easily forget.
I'll be doing a whole new battery of tests because now my PA is concerned that I may be looking at cancer. I was diagnosed with bridging fibrosis III b, but theres no clear line where cirrhosis starts and cancer begins.
I'm pissed that it didn't work and now have to wait for a new treatment to be approved. Soooo, say yes to your treatment, but if they want you to stop early, say no. You'd rather be sure than wind up in my place. I'll update with the results of testing next month.
I want to share my experience about Hep C, to help people. I was diagnosed as a Hep C reactive when I had a medical exam to go abroad last Feb. 2013. The result is unfit to work because I have Hep C accourding to the clinic.
My mind was blocked on that time, I didn't know what to do. I'm so depressed, my future plan to my family was totally lost at that time. The doctor told me "you are a life time Hep C carrier."
Until now, no medicine for that. Oh my God what I will do?! I try to research about herbal medicines and I tried more but, no effect. Suddenly I read in the local news in my country that the Lizada Herbal Clinic can treat any kind of Hepatitis.
I went there to attend a free seminar and I bought there import product from Korea. The name Korean Red Ginseng. Six years planted then extract 100% pure Red Ginseng, I used it three times a day.
By the bleesing of almghty God within 25 days I did the test again and it came back negative and now I'm abroad and I'm fit to work...
My husband has hep C, type 1a. He is 52 yrs old and was diagnosed 7 yrs ago. He has been asymptomatic, liver biopsy normal. His viral count started climbing rapidly late last year and he decided to undergo treatment. He started early this year, he is in week 22. He is on the triple cocktail. I am writing this primarily for the family members that will be the caretakers during treatment. We were required to attend an hour and a half class before he began treatment. The class was presented by the drug company and required by the insurance company. The woman that conducted the class was,in my opinion, very disingenuous about the severity of the treatment. She really downplayed the side effects and said things like "take a walk" and "eat some yogurt". Yes, I am being a little sarcastic, but she did say those things in relation to managing the fatique and naseau. And more nonsense like that. We payed very close attention to all of the information presented and left feeling that the treatment would be manageable.
Oh, how we were deceived. It is horrific. I am not saying this to scare people away but rather to tell the truth that the doctors and drug companies don't seem to want you to know. The side effects are terrible. I am watching my husband waste away right in front of me. He has been bedridden for weeks; his anemia is so severe he is on Procrit. That's another thing we weren't told about; how bad the anemia could get. And Procrit is a very dangerous drug. As though the stuff he's taking for the hep C isn't bad enough. I had to go on Prozac about 2 months into his treatment. I am 56 yrs old and this is the first time in my life that I understood the definition of depression. NOT ONCE did the doctor or drug company say anything about the possible effects on the caregivers. I can't leave the house for fear he will fall. His weakness and dizziness is so bad he can't even shower by himself. He's planning on stopping treatment at week 24 instead of 28 because it's painfully clear that the drugs are doing more harm than good and his viral load has been at zero since week 4.
I'm writing my story because I feel that the caretakers have been completely left out of the equation in this treatment. Yet the effects on the patient are so severe that if you are lucky enough to have a caretaker, you need to know how bad it will be for them too. If you are a patient or potential caretaker, I strongly recommend talking to the doctor and demanding that they help with how you are going to manage this. Not everyone will need antidepressants, but trust me when I tell you, if you are the caretaker this will be hard on you in ways you can't even imagine yet. Try to be proactive about handling this. Don't do like I did and just trust the drug companies are telling you the truth about the severity of the treatment. THEY ARE NOT.
In 2013 in the month of February, I had done a liver function blood test for some of my symptoms like nausea, constipation, weight loss, weakness, insomnia, and the result came with an increased level of sgpt, sgot, bilirubin count. The local doctor prescribed me some medicines but they are of no use since I am taking them for 15 days. I go to another doctor and she told me to do a hepatitis blood test and it came back hepatitis b positive and hdseag positive. My doctor described it to me. I got so frustrated. They say I can't do anything with the virus. There is no medicines or cure for it. They only suggest medications when there are signs of liver damage. My usg was normal. Right now its July 16 2013 and my symptoms are still continuing. My weight reduces by 5kg and I am very weak. My life has become a hell and all of my dreams are shattered.I left my lover for this....
Blood transfusions after childbirth:
1972 = 10 units
1977 = 3 units
No indications of hep C virus for 40+ years. Viral load at 200,000,000. Hep C treatment not tolerated; treatment coordinator told me my reaction(s) to treatment were "normal". I conveyed my body was telling me something different; in my gut I knew I would die if I continued treatment. I discontinued treatment after 16 days...Subsequent barrage of medical tests; 1 ER visit; 1 medical procedure (camera); blood counts ultimately dropped from "normal" of 14.2 to 9; 4 days in hospital, 7 weeks later, still negatively impacted by hep C treatment. PLEASE listen to your patients! Don't discount their knowing and understanding of their own bodies!
For the last couple of year's I had been suffering with blisters on the back of my hands, eventually it was diagnosed as Porphyria Cutanea Tarda during blood tests for the PCT I was found to have Hep C. I am not really sure how I got it but think that I have possibly had it over 25 year's, as I have been married that long and my husband is clear, but before I got married I did have an ex who I later discovered did drugs. Other than the PCT I have had no symptoms what so ever. Luckily all my test results have come back fine... fibro scan.. no scarring. Ultrasound normal etc. Because of my age... 51... the doc's are pushing for treatment, and I do know, that the newer drugs are giving much better results. But I am so confused as to what to do, I keep thinking that as I have no damage and no symptoms from 25 years of the disease, that are the treatment side effects worth it, especially the long lasting effects which arise in some people. Then on the other hand, I think what if this thing decides to suddenly speed up. It is such an hard decision. But I have two months to make it as that's when I next see the treatment team. I will come back later and let you know what I decided.
I was diagnosed with chronic Hep C genotype 1a in 2009. In 2010, I had treatment with peginterferon/ribavirin, (null-responder). In 2013, I started triple therapy with telaprivir. Despite the fact that I was so ill, I completed the 12 weeks with telaprivir. Two weeks later I was just getting worse, so I decided to stop treatment.
Four weeks after finishing telaprivir I started to get a severe rash, which spread over the whole of my body. My tongue began to swell and my breathing was compromised. My wife is a nurse and phoned the emergency services. In 2 minutes a "First Responder Paramedic" arrived, and 5 minutes later an ambulance came. They gave me IV antihistamines, then rushed me to hospital. I was sent to the Emergency Observation Unit (EBU). They were concerned that I could go into "total body shut down." Fortunately, my vital signs returned to normal after more IV antihistamines and an IV corticosteroid pump. The next day I was seen by the Hepatology consultant and a dermatologist. They gave me prednisolone 30mg, and fexofenadine 180mg twice daily (which was double the licensed dose). And a topical cream, Elocon.
The Hepatology consultant said the rash was caused by the telaprivir.
So I feel it is important for fellow Hep C sufferer's to understand that even after the telaprivir has finished, there is still a risk, even after many weeks that a rash can appear; not only whilst on the drug. As I am sure, we are all warned before embarking on treatment the seriousness of any sign of a rash.
7 weeks on, I am still feeling really fatigued. I am anaemic, my Hb was 9.4
I know these new drugs work well for many people, so please do not think I am trying to scare you off.
My liver before treatment was in quite good condition, so I was given the choice of waiting 1 to 2 years for new drugs to be licenced in the UK. But, being impatient, I went for what was available at that time.
Best wishes to you all. God bless.
I want to finish by saying: if you can wait for the new drugs that shall soon be on the market, then please do wait. Even if successful, telaprivir in combination with inter/rib is a very aggressive treatment.
I was diagnosed with Hep C by the street outreach team in San Francisco when I was 20 years old. I was a long time IV drug user and almost everyone I knew had the disease. I did not really take it seriously and being homeless and hopeless, I did not really care. I am now 33 years old and have been sober for over 3 years. My doctor says that my liver enzymes are around 1.6 million, although I have few problems at this point. I really wish that I had taken this seriously from the beginning, but late is better than never. I have changed my diet and I am currently getting my dental work completed so that I may start treatment within the next year. I am a full-time student with no health insurance, so I am a little afraid of not being able to pay for treatments. But I do have faith that something will work out and that I will be able to beat this disease. Since finding a program of recovery and beginning my life anew, I have been focused and determined to make a better life for myself. I will one day be a nurse and will do everything I can to help people like me who struggled with addiction and found a new way to live.
I was diagnosed in 2007 with HCV. We found this in routine labs, my enzymes were high and went further to find out it was Hep C. I have been working in the operating room for the last 30 years and have no other risk factors so I attribute my contraction of this disease from a patient who had it via a blood splash or needle stick.
I did 48 weeks of of intereferon and Ribavirin. I was a mess, dropped over 50 lbs, and slept all day. I am a single parent and it was extremely hard to care for my kids; as I did not have a good support system. I lost my job, my house, and most of my so called friends faded away. I was no longer fun.. I didn't drink so they thought we had nothing in common. Hah.
I did get to an undetectable level but not for long. One year later it was back. I went to several specialists thinking I needed better care than a Gastroenterologist gave me, even went as far as Texas. I was told leave it alone, I went to another specialist in Florida and they wanted to treat again right away. I was torn.
I sought out a third Hepatologist and am with her today still. I found out going to this new doctor that I had already developed esophageal varices, stage 4 cirohsis, as well as the usually symptoms of fatigue depression etc.
I had a TIPSS procedure done as a preventative measure. That is a tranjugular intrahepatic porto systemic shunt. Basically deflating varices, and preventing me from having anymore so I would not have a GI bleed. I am on a round of Xiafaxin and lactulose for life but I would rather take a pill than be somewhere and have that risk of blowing a varices.
I had the TIPSS one year ago, I am doing fine, the procedure does have its risks as well but I have had no side effects and have monthly bloodwork to make sure I don't.
I am waiting for the big drug companies to quit fighting so people like us can get the treatment we need.
I just want to say also that since I was in the health care field for 30 years I know the stigma you can get from this disease. With the development of universal precautions we as healthcare workers are not supposed to be prejudice. But we are! I find that when I go into a facility I always get that "Oh No another scum bag feeling", but I quickly turn that around by telling them I was a healthcare worker and all of a sudden I get the sympathy and proper care. I think for those of you with this disease should make sure to tell your story and circumstances and see if you get different treatment.
Date: Mon, May 27, 2013 9:03 pm
There are many of you whom I have shared my story with regarding the 3 supplements I took for 10 years, for the claim made by a doctor online, that though he could never cure anyone of the virus. He could ensure that these supplements (which by the way, he doesnt sell, I buy them at Walmart}) could protect the liver so well as to reverse the liver damage
As some of you know I had a liver biopsy done last Jan.2013 where my liver which had been stage 2 to 3 with bridging fibrosis & scaring now looked perfectly normal with no scaring or fibrosis.
There were many who said a biopsy is not that reliable as it only takes from one small part of the liver... WELL IN MY CASE THEY TOOK FROM MULTIPLE PARTS. The pathologist told my doctor.."I would never have known she even had Hep C."
I just spoke to my doc today and she told me this. Take from this what you will, to me it is a miracle & a second chance at life.
I Thank You God with all my heart.
The supplements are & the way I take them: all before bed...
2000 mg Milk Thistle
400 mcg of Selenium (mcg not mg)
400 mg of Alpha Lipoic Acid
I was 15 When my mom got sick. I remembrr being so scared for her, and just praying that she didn't have Cancer. She had Hep C. My mother, before giving birth to me, was a drug user. Specifically, speed. She shared needles and ended up with Hep C. She went years without symptoms, and since she was a drug user for so long, they had no way of knowing when she contracted the virus.
I was tested, as well as my 5 siblings. I was the only one out of 6 who tested positive. At 15 I thought my life was over. Friends abandoned me, parents shunned me, as if I was dirty or had done something to deserve this. I had a youth leader tell me not to touch her baby. Since treatment for Hep C was never tested on children, I had to wait until 18 to start. In June of 2007, I started a 6 month battle. It was the worst 6 months of my life. But in December, I was what they call ''undetectable''. I'm now 25, married, with three beautiful children who have all been tested for Hep C. None of them have it. My viral load continues to stay undetectable. And those who love me accept me for who I am. If you have Hep C, don't give up. Don't get down. Keep your chin up and know that this is the begining of a new life, not the end!
I was diagnosed with Hep C in 1995. I evidently contracted it in 1963, when I had multiple blood transfusions from a bad pregnancy. I have never done iv drugs and had only my husband as a sex partner. I heard all the pros and cons of interferon and opted against it. I went on a no iron and no red meat diet. Also, I do not drink alcohol. I have rest 10 hours at night. I just had a liver biopsy 3 months ago and the doctor said there is no sign of Hep C in my liver!
I was diagnosed with hep C after undergoing testing for kidney disease. I was on a waiting list for a kidney transplant. Before they transplanted, the doctors wanted to rid my body of the virus. I had to undergo interferon and ribavirin treatments. Because of my kidney disease, my red blood cell count was low. Therefore, I could not do the full ribavirin treatment. The treatment was a living hell. Most days I spent in bed and as a result I was in a weakened state at the end of treatment. The treatment did not work. The treatment also caused memory loss and some loss of motor skills. One month after my last injection, I tripped over our dog and fractured my upper femur. Due to the treatments my recovery has been slow. 6 months after the fracture I am still in the hospital. I have applied and received compensation from OHCAP. They determined I received the virus from a blood transfusion when our child was born in 1981. I have also applied for the class action lawsuit in 2009 but I am still waiting. I need a kidney transplant but they won't do one because of my hep C infection. Because I trusted the government to keep me safe, my life now is a horrible nightmare.
In 2010 June I had a small surgery at the hospital. I came home the second day and I started to have abdominal pain and loss of appetite. I lost 30lbs in three months. My doctor ordered an x-ray,ultrasound, MRI etc. but could not diagnose what was wrong with me. By September his assistant ordered me to have a blood test for liver, kidney, and Hepatitis C. And there the result said I had Hepatitis C, but is already positive and inactive. I don't know I got it. My husband and I didn't have intimacy since June, so he tested Negative. I believe that I got it during the surgery, but don't know how. I wanted to discuss this with my doctor, but he just hushd up and said "you are lucky." I gained my weight back and eat healthy. The whole thing bothers me, I don't understand how I got it and how I got cured. Can anybody explain this to me?!
Thank you.
Anna
My wife has had two treatments for HCV. First time she got the injection of PEG INF 24. After one year the HCV came back. Then the doctor advised us to get the injection of PEGETRON 100. After 12 inj the PCR is negative. We complete the injectionsafter for 6 months and she has another PCR and that PCR is positive. I am not understanding....What can I do now???
Hi,
I have HCV and probably have had it 30 years. I did not find out until last year, although I certainly had signs of it for many years. I went to so many Dr's trying to figure out why I was fatigued and why my joints hurt all of the time. Because I had a couple of work injuries, I thought maybe the nerves from those areas just moved to my joints (I was wrong).
Starting July of last year, I treated with Interferon and Riba. Unfortunately, even though you are sick and it mimics Chemo, you are not equally treated as a cancer patient (I've been through both scenarios). HepC has one of the worst stigma's attached to it and if anyone hears you have it, then suddenly you become less than (to some not all). Let's face it, everyone has a skeleton or two in the closet, but that is why we "learn from our mistakes" and grow up (mature). I for one am nothing like I was in my wild days. Thankfully, I rarely drank alcohol over the last ten years, and my liver damage is minimal. Now that I have completed treatment and waiting for my 6 month post Viral Load test, I don't drink anything EVER! The way I see it, is the same as a smoker continuing to smoke if they are treating for lung cancer (it just doesn't make sense). Is it easy to be super straight- uh NOPE, but worth it YES!
If you have HCV and are thinking of treating, there are new meds arriving soon. Because of the horrible side effects to the current meds, I highly recommend waiting if you can. Also, if you have a drinking/drug problem, please to save your life, find a new addition (a healthy one), dying of liver cancer/failure is extremely painful; my cousin died from it and told me it was like parana's eating you from the inside out!! gross...but definately woke my butt up.
Anyways, if you choose to treat with the current meds, please please make sure you warn anyone you love that you WILL be moody and it will NOT be in your control. I am usually mild tempered and I had "road rage", "check out stand rage", and was basically an unreasonable nutt case! Now that I've been off treatment for a few months, I still have brain fog, my thyroid went from hyper to HYPO (or as I call it HIPPO) I gained a huge amount of weight (been skinny all my life til now) and I am treating my thyroid with Synthroid. I knew my TSH was out of wack during treatment but I did not want to stop. I can always lose weight, but treating to save my liver is a must. I also have depression now that I've not experienced before. My best friend gave me a tiny Maltese and he is my therapy (bless her heart for this precious gift)...
I am sorry for the long message, but no one was honest with me prior to, and many minimized what really happens, so I was blindsided and scared. I don't want anyone to be afraid and knowing ahead of time what can happen will help you prepare..
Best wishes to all my fellow heppers out there and may you obtain SVR (I sure hope I do)...
Hugs Poppy
Sir, hello I am Muhammad Saleem from Pakistan. I am a Hepatitis C patient, my Geno type is 3 and my PCR report 7711285. First I use Interferon in 2007 for 6 months, but the result is also positive. Then I take peg interferon 100ccg for 6 months after that my result is negative. Now after 4 years again it is active and PCR is 25523497. What is your suggestion and what is a diet plan now.Thanks.
I gave blood in 1991 and was given the news that I had a tested positive for Hep C after giving blood. At that time, it was considered a false/positive until proven different. I went to my family doctor and at that time they only checked liver functions and symptoms. At that time, they had no idea what treatment or test to run so he told me not to worry about it and I didn't. Every once in a while I would get extremely anxious about having the possibility of having Hepatitis. The doctor decided to do an anti-HCV test after many years which came back positive. I now was officially diagnosed with Hep C. My primary sent me to a liver specialist who ran a viral load test and for years it was low volume and treatment was not recommended. I went once a year to the liver doctor for 10 years without treatment due to the low virus count. I have Genotype 1B and had minimal symptoms for over 17 years (aches, anxiety, fatigued and depressed), I thought that was a normal female life. My liver functions were normal until around 2008.
I have had two biopsies, five years apart. The 2nd one showed some damage. The first biopsy was scary, they kept me awake and put a needle in my belly. It did not hurt, but I was awake. The 2nd one, they were a little more advanced and put me in a twilight sleep and it was less invasive. I was more nervous about the unknown after all said and done.
My primary noticed that my liver functions were out of range and sent me right away back to my gastroenterologist. He then decided to treat me with pegylated interferon and ribavirin for 48 weeks. I was a mental mess and went on antidepressants and was already taking Synthroid for hypothyroidism. 6 months into the treatment, my husband decides to divorce after twenty years of marriage (this was a blessing in disguise). I kept the Hep C secret from my friends, family and children since 1991. The only one I told was my husband back in 1991. I secretly tested my youngest daughter when she was five and told my son at 30 and he was tested too. All clear.
I decided that when my husband left me that I would tell my family. I was always under the fear that I would be judged and labeled. It was a good decision as everyone was cheering me on.
The treatment was a little rough; once a week injection and 6 pills a day for 48 weeks. My hair thinned, I lost over twenty pounds (good thing) and was weak and tired all the time. I stayed focused on me and getting through the treatment. One Day At a Time!
One thing I can say is that I kept my wits about me with not dwelling on it and keeping busy and to always rest when I could.
My manager at work started to notice that I was taking off from work due to being sick so I finally told her. Telling her took all the energy out of me. Fortunately, she was understanding and told me that she thought I was amazing that I held a full time job, family, going to school and dealing with the treatment all at the same time. I still have a job.
I forgot to mention that my mother and my brother (HEP C) passed away between 2004 and 2008. That's another story about my brother.
So now I am sitting here after 5 years with no signs of HCV. But I have to admit that every time my doctor sends me for lab work (once a year); I get a little nervous that the test will show a detection of HCV. I do drink a glass of wine a couple times a week and I know I shouldn't. I'm not perfect.
Every story is different and I know some of you out there have it worse. I do not take anything for granted. This is a little long of a story but if it can help anyone or if anyone has any questions, please ask and I will try to answer.
Hello my name is Maria and I am now 33 years old. I was diagnosed with Hep C in 2009 while pregnant with my 4th child. I was an intravenous drug user for 3 years from 2006 - 2009. I quit at the end of my pregnancy and after I had my daughter, I went into rehab and I was not tested again until 2010. I had relapsed in Dec of 2010 and my doctor wouldn't let me start treatment until I had a year clean. So in oct 20th of 2011 I started pegasys with Incivek and my blood drawn from Dec 12 2011 showed no sings of Hep C.
My treatment ended in April of 2012 and I had my final blood draw on April 18th 2013 and still no sign of it! I am blessed and hope each of you have the same results. Now it is a miracle, but dont get me wrong it was hell too. Like I said I am a single mother of four and also a full time college student since July 2010. Let me tell you when I started treatment in Oct and had to withdraw from classes in Dec I was too sick to do anything. I took my shots on Thursday because I had classe Mon and wed. I took them in Thurs in hopes of feeling better by Mon. It seemed to be ok for a minute, but I was too weak to continue. I have always had a full head of long rear end lenght hair. I ended up only washing it once a week becuase I would loose so much; it would come out in globs. I would have to clean out my hairbrush 3 times in one brushing. Needless to say, it didn't get brushed much.
The first Thursday that I took my shot, I thought I was gonna die. It was the worst feeling I had ever felt in my life. I thought I was dope sick with cotton fever. All at once it was horrible. I didn't get back to normal either until around Aug of 2012. After I was done with treatment in April of 2012, but would I do it again? Hell yes! It is a miracle! I am healthy, happy, and alive. I will live to see my kids grow and be happy healthy adults. It was hell, but it was well worth it. I graduate college this coming Aug. I love pegasys and I pray it works as well for all of you, as it did for me. The Incivek was the magical booster that I feel made it all happen. Thank you for letting me share and I hope it helps someone as your stories have helped me.
Hi I am Bob. I am currently under treatment for Hep C. This is my 2nd time now and on the three drugs. My viral ct was 53,000,000. Yes, 53 million! After 6- 9 weeks undetected ...it is a tough thing to go through. I am 63 years old. It is a mind game...Hang in there.
Hi,
I got Hep C in the early 80's also and treated for six months starting last July 13. I did not have a 1 and 3 month VL check, but will have one in JUly. I have no clue if I cleared. I am G2 but I have Positive ANA and RA with Lupus and graves, so clearing not as high as other type 2's. I pray IM SVR!!!!
I did work during treatment full time and missed only 3 days. This I do not recommend. I literally threw up in the bathroom and napped on breaks, but as a single mom, I had to. The key was drinking alot of water which I hate, taking 3 Advil, and heating pad for when joints hurt. I don't have much memory of when I worked and I think I operated on auto pilot.
My symptoms during treatment were..migraines, body aches, insomnia, mid grade rashes, BRAIN FOG, anger/rage, inflamation of the eyes a few times, breathing problems, and my thyroid went extreme HYPO because of a lot of weight gain.
Since my last dose December 28, I have had a rash and sores from hell. I had to take 3 different antibiotics for it. During treatment my rash was medium, so it is strange that after 6 months then quiting treatment it popped up. The first month I was more fatigued then during treatment, in fact it is almost as if I never treated, in otherwords the fatigue I had going in came back. Brain fog is finally lifting after 3 months, it only hits once in a while. My thyroid is back to Hyper (so hopefully I can lose again). Depression/Anxiety have increased so much and now I am on phsych meds to help with that. I am trying my hardest to focus on one positive thing that happened each day and not to think of my own mortality. My goal is to be back on track in one year (hopefully that is realistic)..I miss so much right now and I want to live life to the fullest.
If I had to do again, I would have waited for new drugs. I was just afraid of the economy and not having insurance if I were to be laid off.
Anyway, anyone who is thinking of treatment, please make sure you get on Anti-Depressents 1 month prior and have anti-anxiety meds on hand, migraine meds for if you get one, GOLD BOND extra strenth cream, cut your nails back so you don't itch, reduce how much you wash your hair, and use anti dandruff even if no dandruff..it relieves itchy scalp if you get the itchies all over like I did..
Anyways praying for all...this disease really s**ks but knowing there are others out there who understands makes it easier ....
Best of Luck
I have just been diagnosed with chronic Hepatitis C. I have been through all of the tests for liver damage. Because I have so much damage to my liver a lot of scaring they did an biopsy on my liver when I had my gallbladder out or I probably would have went into liver failure without knowing it. I had to have gotten it some 20 years ago. It is something they don't test for. The only symptoms I have is my urine about a year ago got real dark and had a real strong odor; also itching all over.I pray to god the treatment works, I am not ready to die yet. God bless everyone suffering with this.
Hey, I was diagnosed anti HCV positive in year-2007. I am repeating HCV by PCR qualititative RNA test which is still negative. The test is being repeated on an annual basis since 2007. Can the Anti HCV positive mean I have been caught by HCV and still have the infection or until HCV PCR is negative? Is there no HCV infection to me? Can I make Anti HCv Negative by getting treated medically?
My dad has hep c genotype 3. He uses peginterferon because he has a 33 thousand viral load. Every Monday he takes peginterferon injection after injection. He has severe headache, fever with shivering, body aches, and weakness. He also has to take a antidiabetic and antihypertensive drug 1 year before he took the treatment for hep c. After a six month course this disease appeared again. The Doctor's diagnosed him with diabetes. That is why his viral appeared again, because sometimes the virus can hide in the tissues. That's why, so please tell me what we should do, because he has a fever constantly ...with the fever should he take peginterferon injection or not?
I first found out I Hepatitis C in 1996. I couldn't recall how I could have received this but after backtracking, I figured it out. I've had this virus since the early 80's because I did use needles to shoot drugs. I know this is where it came from because another person I did this with is also Hep C positive. So this has been around for at least the last 30 or so years. After all these years I had started treatment for this virus. It has only been 3 days since starting and I am sick as a dog. I am dizzy, sick to my stomach, aches and pains throughout my body, and its just a rotten feeling. I can't work so I am pretty much in a bad situation, financially and physically, it sucks....Any suggestions for getting over these side effects cuz this is killing me.....
In 1998, I helped my brother-in-law he had Hep C and stage 4 liver damage. I took care of his bills and spent hours at his house. He was bleeding everywere and was very sick. I was not careful enough and found out I got it in 2012. I started treatment Oct. I got a severe rash and staff infection. The doctor at major hospital told me to stop taking the new medicine; the one you take for three months. I was already virus free. It's now month 6 and I am doing great! Six more to go, well take care!
I wanted to tell my story about 2 weeks ago, but I ended up in the hospital with brain seizures and have been overwhelmed by dealing with a loss of income, paperwork, doctor appointments and many side effects. I wanted to keep this short, but I feel alone and I know I'm not after reading the posts.
In the fall of 2011, my sister insisted on having full blood work (I'm 48) since I'd never been sick a day in my life (I have allergies instead). The first clue was my liver enzymes, ALT and AST, were unusually high, so further testing revealed I had Hep C, genotype 1A. It took almost a year to: get over the anger, guilt, embarrassment, and denial, get my husband tested (he does not have it!), keep my sister in the dark, get to a specialist and get more blood work. It was just a number on a piece of paper and being me, I needed proof. So, I got a liver biopsy and found out I was just past stage 2 of my liver failing and the virus was still very active.
I think I got it in the late 70's, early 80's when I used needles (not heroin) for 6 months, or was it all the wild sex, the coke straws? Who knows how and I'm over guessing, and just want to move on. The biopsy convinced me to start treatment. After 30 years of being symptom free, my viral load was only at 288,000. I've never been a drinker, only a pot smoker, so I drank like a fish one month before starting treatment. Of course they test your viral load before you start tx, and it had dropped to 88,000! Go figure! They said my immune system had kept the numbers from climbing. I live in BC, Canada, so the treatment is covered 100%, but ONLY IF my ALT and AST levels are 1 1/2 times normal. This is a $50,000 treatment, so I'm one of the lucky ones.
I started on Pegasys interferon injections and Ribavirin in January 2013, and was undetected at week 4! Yay! At week 4, they said if I'm undetected, I could start using this new drug called Boceprevir (Victrelis) that came out of clinical trials in 2012 that would cut the tx from one year to 6 months.
I was working for the first 4 weeks suffering from a red bumps on both legs, arms and back, hot, dizzy, and could not sleep. By week 3, I could not even do my simple Pilates routine, and my eyes became very blurry. After 4 days it was not safe to drive a car, so I was given eye drops, which solved that problem. It made sense, as everything seemed to be drying out, very thirsty all the time. Plus the pollen in the air was causing a problem for my allergies. I then lost my appetite and was smoking pot to make me hungry, and I gained 6 pounds.
Within 3 days of starting the Boceprevir everything went wrong. The first side effects were mood changes, I became argumentative, angry, crying for no reason, talking back to my husband and I almost blew up at my boss, which is not like me at all! So, I was given an anti-depressant, the Ribavirin dose lowered to 2 pills twice a day, and sent home for 2 weeks to "stabilize".
The next morning, I awoke with both hips on fire, writhing in pain. I tried to walk around the block but it made it worse. I could not stand/sit/walk, only lay with my legs in bed straight. I had extreme back pain, and at back of my head. A week later, after my next injection, my hips were on fire and my legs were wildly jerking by themselves. Diarrhea, white puss coming out of my eyes, excema on both elbows, eating salt burnt my mouth, open sores at both sides of my mouth, and my hands trembled.
The next week, I became very light and noise sensitive. I have tinnitus, but it got so bad my eardrums hurt. I developed insomnia, so sleeping became very difficult with the ringing in my ears. My husband got some white noise mixed with waves and crickets to help me when it got really bad and to go to sleep to.
I was told about side effects but, I had only read the stuff the liver specialist gave me. I did not go on the internet to read anymore. By this week 9, I had experienced all of the side effects due to this treatment (including hair loss), except for fever, vomiting and nausea. I expected some side effects but not in how it affected my mental state of mind. It became very hard for me to communicate with people. I could not receive verbal communication if it became too fast, my brain could only process one thought at a time and very slowly, if 2 or more people started talking at once I could not follow either and just zoned out. I could not watch television where the scenes were flashing at you; it was easier to watch the nature channel. I had what some are calling "foggy brain", where it would just turn off and I could think of nothing at all. I recall the Pink Floyd song, where they say "your lips move but I can't hear what you're saying." I felt like a mental retard.
The side effects kept getting stronger and stronger, until March 20th when I was rushed to the hospital. Because I'm keeping a diary, here is what happened:
-at approx 9:10pm my eyes were burning on fire, ran to flush with water/eye drops
- it felt like the drug was cursing through my brain, esp. at the back of my skull on the lower left and right sides (Cranial Nerve X ??)
-the pressure in my head became unbearable, pushing from the inside out, my eyes hurt, my eardrums hurt, my head felt squishy, my tinnitus was ringing so loud in my ears
-I stood up, couldn't speak/focus/think, legs shaky, had a white out, then felt my entire body started to shake uncontrollably
-The pressure in my head was unbearable, it felt like my head was going to explode, I couldn't get enough air to breathe
- I couldn't control my body as it was in a fit of tremors, coming and going every couple of minutes.
-Once in emergency, my entire body was shaking on the gurney, legs lifting off the bed, head shaking from side to side.
-The shaking subsided for a bit, then the convulsions started again, repeating about 3-4 times (not sure). I was fully aware of what was happening. My husband could not touch me or I would shake again. I could not lift my head to drink water, so my husband had to lift me up supporting my head. I was parched.
-They told me I had neutropenia (no white blood cells), and hemoglobin at 88
-I received 2 units of red blood and antibiotics, Percoset for pain and Ativan under the tongue
-As the pain slowly disappeared, the convulsions stopped, but the pain in my body took a while to go away
-I spent over 12 hours in emergency with 3 separate seizures maybe 15 minutes apart
-No one in emergency knew what to do with me. So I called my liver specialist and I had to make a decision right then and there to stay on the Boceprevir or not. He strongly suggested I stop, and I was glad, as I was afraid to take more pills.
I was sent home 2 days later, and within 7 hours my husband found me on the floor having another seizure, so he called 911. Within 24 hours of stopping Boceprevir, I had my taste buds and appetite back, and the pressure in my brain gone. Now I have to stay on the Pegasys and Ribavirin for 38 more weeks. Within 3 days, my white blood cells doubled from 1-2, and my hemoglobin was up to 113!
Fast-forward 2 weeks to the present, and I can almost walk again without a lot of pain. I now am adjusting to a new set of side effects. At present, my excema is gone, the rash has moved from my legs to arms, lips and tongue tingle and burn, mouth sores, rapid heartbeat, FATIGUE, nerves tremble in my back/arms/and left side of my head, left hand trembles, get cold chills, major back pain, and insomnia.
I am normally a very outgoing bubbly person who likes to talk. This drug made me an outspoken, irritable, argumentative, angry b***h that turned into a walking zombie. The one thing that annoys me the most is not being heard. My husband said I had become a obsessive whiner over the last 3 weeks. I've never been sick with a cold or flu a day in my life, so how do I know what I'll be like when I do get sick? The symptoms kept getting worse, and I was told that this was normal.
The good news? I finally told my sisters and it has brought us closer together, and I feel accepted and loved by them. For the most part, I appear normal but I'm not. I use meditation and watch Ellen to calm me down and lift my spirits. I hate that I have to worry about money and a job, when all I want to do is get better. Some of my friends get it, but most think you'll just snap out of it. It's hard to deal with people, even family, and I'm sick of explaining. I just want to stay home until this is over and hope it doesn't come back. I'm not shy to talk about it (read: obsessive) and I'm not embarrassed and don't feel guilty. I am undetected so far!
The bad news? The hospital diagnosis, get this, I had a sore neck and back, and that's it! Are you frigging serious? Now I have to get an MRI and EEG to prove I had brain seizures to get my disability claim! I am so pissed off, I have become a manic-depressed person. Also, after being the "best employee" at my place of business for 2 1/2 years, my own supervisor has not even called to inquire about me in over 6 weeks. Not one person has called from work except the HR lady just doing her job.
I agree with other posts about ensuring you are healthy. I started to develop an ulcer and found that I needed to take vitamin B and folic acid among other supplements. I also found out my liver is not converting folic acid to dihydrofolic acid, which according to Wiki, "low levels of folate can also lead to homocysteine accumulation whereby DNA synthesis and repair are impaired and this could lead to cancer development." He says either it's genetic or it's from the treatment and won't know until it's over. So I'm taking care of that with a 5-MTHF (made by Thorne) supplement from my naturopathic doctor. I also developed an allergy to milk. I drink lots of water, stretch and exercise if I can everyday. After my seizures, I found that I could not smoke pot anymore (another good thing) as it is causing me physical pain sensations in my brain and body.
One last thing is that I am a fighter, and I always look for the silver lining, but please, this is just too much for me sometimes. I am seeking help with a counselor, and I thank my husband of 22 years for supporting and putting up with me. We are both unemployed and I am grateful he has been with me everyday.
I also thank this website for letting me tell my story and good luck to everyone out there!
I had contracted Hep C through an operation I had (Terathoma)in 1982. At that time there was no kit to test for Hep C since it was unknown. In 2000, I had a blood test and it showed I had Hep C. I went on a 6 month interferon injection session experiencing the usual bad side effects. It was hard to handle as I was working hard traveling around factories in China for an American firm. The treatment failed at that time as there was only interferon on the market. In 2010, I had another blood test and it showed that the virus was very,very active so I went on the interferon (injections) + Ribavirin (tablets) treatment for 48 weeks adding to the treatment all the bad side effects. After 48 weeks I was clear but after 2 months the virus appeared again. So again I went on another 48 weeks of treatment with an increased dose and even worse side effects. I took antidepressant tabs which really helped me a whole lot. Strangely enough my Doc never suggested the latter to me. I only found this solution on the Hep C forums (very important to pick up ideas).
After 48 weeks, I stopped the treatment but, got a severe skin rash from head to toe. I could not wear clothes!!!! I had to urgently go on an immune suppression treatment for another 3 months. Now I am fine and my last 3 blood tests (6 month intervals) have shown neg. to Hep C. I thank my Doc, my wife, and son which were very patient with me as I often was in a retched mood. All the best to all who need to start or are on the treatment. It is worth it. I too could have chosen not to go for the treatment, but then I risked ending up needing a liver transplant in the space of 5 years.
I have waited until now to post this. I received the results of the lab work for one year after treatment. Virus negative! It feels strange not to have this death penalty hanging over my head. At 66 my health is otherwise excellent. I am slender, fit, eat right and get enough exercise. I haven't had a drink for over 20 years and quit the IV drugs that gave me the disease over 40 years ago. But... My doctor had originally diagnosed me as cirrhotic but since my panels are now at 9 and 17 (those of a healthy 10 year old!) I could not have possibly been cirrhotic. So much for biopsies! (Actually, the sample was small and somewhat inconclusive, but the pathologist found fibrosis, so....) I endured 6 months treatment, interferon, ribivarin and incivek. I drank HUGE quantities of water and just kept moving. I kept the side effects at bay, but you know it was still REALLY unpleasant. Finally, the peripheral neuropathy got the better of me. I was waking up with my hands on fire! And my hands and feet were pretty much numb and painful. My doctor wanted to continue treatment but with neuropathy you never know how much of the damage is permanent. Anyway, I got my hands back and the feet thing isn't so bad. I used to have trouble wearing most stylish shoes since they hurt my feet. Well, now I'm a crazy shoe shopper. Since my feet are pretty much numb, I can wear anything! Every day I have more energy. I know from the prior interferon and ribivarin treatment a few years ago that failed (early responder, relapser) I know it will take at least another year to recover from treatment. But, in the meantime, I feel pretty good and I just keep hoping that old virus stays gone!!!
My name is Paul, 69 years old. I guess I've had Hep C since 64. I was a dope fiend back in the day about 4 years. I remember when my friends came over, I had been clean for a while ...so I gave into the temptation. I noticed when we were hanging out that they were all yellow. I went to Day Top in 66 and haven't shot dope since. I drank for a while but gave it up in 72. I have been a vegetarian since 70. I'm a runner though that's questionable now. Had a 5 way by pass 2 years ago. Went for a colonoscopy last year noticed my liver enzymes were elevated. I was still in the beginning stages of hep c. Started treatment about a month ago and it is kicking my a**. Back pain, nausea, etc .It is an effort to run a half mile. I keep busy; it helps. I do and chi gung both help. I also have a friend that is almost done with the treatment, we council each other. This is the toughest thing I've ever done. Reading some of the testimonies has helped. Any advice is welcome. Hook a new brother up!
In 1979 I was due to deliver my first child in two more weeks, but I had stopped feeling movement. The doctor confirmed that Michael had died inside of me and I was in the hospital for 5 days while they tried to make my body deliver Michael. They finally did a C-Section to get him out. I developed a serious infection after the delivery, and I had to have blood transfusions for two days.
I went on to have two of my three children - one in 1980 and one in 1982. But during those years I got very sick off and on. I would have high fevers and the doctors could never explain what was wrong with me.
Years later (1994) I gave blood at a blood drive. I was notified by Red Cross that I had Hep C! They told me to get the whole family checked and asked me to be part of a study at NIH for people infected with Hep C.
My family tested negative and I enrolled in the NIH study. What they found was that I did indeed have the antibodies for Hep C, but that I had no active virus in my blood and my liver function was perfect. They said that I definitely contracted the Hep C in 1979 from the transfusions, and that the blood supply was not checked for Hep C or AIDS for a couple more years. The doctors at NIH said that I was one of 15% of people who rid their bodies of the disease.
I have a very unusual blood type - AB positive. I have wondered for a long time if my blood type helped me to rid the Hep C. Just a thought.
Anyway, that is my story. I think it is a real miracle that my first two kids were not infected with Hep C because they were conceived while my body was still fighting the disease. Thankfully, I had C-sections.
I am at my wit's end. I was diagnosed in early 2009 with the Virus but, for reasons unexplained it took a year for me to be offered treatment. Thank God for the people of UC at Westchester at Cinci., or who knows how much longer I would have had to wait.
That being said, I have to say that as I look back at it I am uncertain I would have pursued treatment. As Neil Young sang, "better to burn out than it is to" and that is what I feel like I am doing rusting away.
My joints ache constantly. I have had two operations in the 2 years since my SVR in order to address joint issues which I never had before. My muscles ache, I can't find any joy in anything and I don't know the person I have become. I don't recognize this man and furthermore I hate him.
I won't recommend or not recommend treatment. We all have to make our own choices but. for me I would have preferred to deal with the disease knowing the person I was then vs. the person I have become.
Wow! Who knew 33 years ago a motorcycle crash and a blood transfusion of two units would have me where im at today?!
After six months in the hosptal I was told I would not walk normal again. After years in the gym and cycling, I returned to normal as possible. About five years later,I was a full blown drinker. Quit for fifteen years and became a drinker once or twice a year. I would have a drink or not at all.
About seven months ago, the news said boomers should be tested and I was blessed with the positive news of hep c.I oppted to do the free treatment in three weeks. No signs of hep and yes, it has been no picnic. But, treatable and it is rough but worth it.Sometimes I thought, "why did I do this?" It is the toughest thing I have ever done besides learning to walk again and and buying a motorcycle after getting out of the hospital and crusing with my cruches on my back.
I firmly beleave in not giving up and visualizing the best outcome in any case. And it's my sincere hope that you believe in the greatest possible outcome for yourself. It's not how you got it, it's what you do with it that counts.
Yes, it is true. The frist three weeks are a pain and the next twenty plus weeks keep you guessing. It's not fun at all from the frist day to the last day.
Rember it is not you that's not losing. It is the effect of the meds you will see when you have your frist great day. It's like turning the clock back years! Try not to over do it, just enjoy it and take it easy.
REMBER ALL FOR ONE AND ONE FOR ALL!
I hope
Hi. I never knew I had Hep C until I got a blood test. I got tested because I was an IV heroin user. I am 25 years old and have been off heroin for 3 years. I have also been off pot for over a year. I drink about 3 beers every other month, but I have been on suboxone for 3 years and tapering off it now. Anyways, my blood test showed I had Hep C. It said I had so little it wasn't active. Just hanging out in the back, so I cried and all when I heard the news. I later got treatment. The virus was undectable after 2 weeks. My side effects were loss of appetite, weight loss and more naps. I stopped treatment at 5 months.. Should have done 6 months. I hope it stays away, but recently I have been nauseous. I think I am all a sudden lactose intolerant. I'm hoping that's that case. Getting the test done this week. Good luck to you all! My prayers are with you all.
Hi, I am from Macedonia and I have had Hepatitis over 6 years. I was a drug user and that is how i have it. Now I am on a treatmant of pegasu. When I start someone please tell me how bad is the medicine. Right now I feel very good. I don't now how I will feel after 6 months, but right now I'm in the middle of the treatment and I don't have any stressful situations; no depression. The doctors just told me to not make babies for 6 months.
I contacted Hep C from my husband who went through a period of drug use. I found out when I gave blood at work. I went to the doctor who confirmed it and said "not to worry" because they would monitor it. Sure enough they monitored it every year. Then, 10 yrs later, i was told my liver enzymes were high, they kept taking and then referred me to a hep c doctor. They did an ultrasound and determined I had fatty liver. The Hep-c doctor told me the only way to treated is to go on the meds and it's expensive. Now I am a single mom and barely making it. She told me to come back at the beginning of the year and see what the cost would be. I went on a saving plan at work to cover the expense. I found a different doctor and went to see him. He told me I needed an ultrasound and biopsy. The biopsy showed I was in stage 3 liver deteriotion. There are 4 stages then Cirrhosis. He said the only way to see how bad the it is, is to do a biopsy and I could have started treatment in the early stage and possibly be cured. I started treatment and at the end I was told it was gone, I was virus free. I still do blood tests to keep track and two months after the treatment ended I was told the virus is back. I really don't know what is going to happen now, if I do the treatment again or if I can't. I do know I am scared and nervous and hope that I can do the treatmnt again. I really hope I can get cured. I will leave it in God's hands and try my best to survive for my kids and grandkids,however, right now, I feel so alone and worried. Thanks for listening.
I have been in recovery from drugs and alcohol for over 4 years. I am a 34 year old male in pretty good shape. I was on a 6 month treatment for stage 2 chronic hep c. Honestly I did great on this treatment and cleared the virus in 3 months. I was able to work full time and I worked out 5 days a week. The only side effect I had was headache and slight fatigue after the day of the shot. I would recommend having some sober time under your belt and have some type of support system for a mental health check-in.
Hi everyone. I do not have Hepatitis C, but my father got diagnosed with it a year ago and my 24 year old brother got diagnosed with it a couple months ago, They were both iv users. My father is now going through treatment, it has been two weeks and he gets his shots every Friday and takes pills everyday. There's only a 50% chance it is curable, because of the type he has. I'm so happy that he was able to get the treatment. My brother is not going through treatment. I live on the other side of the country and my brother's moving out here with my mother this Thursday. He does not know that we know about him having Hepatitis C. Should I let him know that we know or what? I have a four year old son and I know my brother's so careless and I'm scared he's going to leave something around and my son's going to get it. My mother takes my son every Saturday to her house, so what do I do? I told mom that I don't want my son going there without me until I see what my brother's like and she got mad at me, I'm just looking out for my son that's all. My son got cut with my brother's shaver when he was one year old and I was scared for nine months that my son had something. Thank god my brother didn't have anything at that time. My son had to keep going for blood work...it was sad, he was just a baby. I don't know what to do. I'm sorry for you all, I was reading some of your stories and it breaks my heart. I wish you all the best. You are very strong people. Just remember to keep your heads up. And for the people that are not telling your family you really should so they can be there for you. You should not have to go through this by yourself. Take care everyone!
I am the wife of Tim, who while having gallbladder surgery did we find out in 2010 that he had cirrhosis and from there found out why. Other than some drinking alot back in the day but the most damage was caused by hep c. We were told if not treated he would not live long. After a long 48 weeks of treatment full of terrible side effects and feeling like he just cannot explain it. He is cured and he was able to use three meds for treatmen. The third being a new one with a high success rate. Although the post treatment side effects just keep getting worse and worse. Being chronic fatigue. He just doesn't feel he will ever be right again. His joints ache his legs, feet, and ankles swell when he tries to get somewhat mobile. There is no way he can work like this. Hope others have a better story to tell. Don't mean to be a downer its just the truth.... I wish it wasn't.
My name is Katalina and I am 19 years young. I got diagnosed with acute hepatitis September 2012. I am a former iv heroin addict. Since finding out turned into a "just about everything addict." Although I am no longer using intravenously, I have a very hard time with depression. I find myself turning back to drugs as an escape. I have very little knowledge about the disease. I know the basics and that's about it. I've been going to my doctor for about 5 months now. The Doctor says my liver levels are great and there is very little trace of the hepatitis in there. He Says there may still be some "hiding out", but other than that I'm doing well. He would like another test in about a month. This sounds great to me but, I still am very uneducated. (Doctor doesn't really explain stuff too well to me either). I still get very depressed and in a "rut" because I feel like I have an expiration date; and no one to talk to about this. I need some help and "motivational" words to get me to stop the moping. Please help.
-KC.
I WAS DIAGNOSED WITH HEPATITIS C 40 YEARS AGO. GOING BACK AND FORTH TO THE DOCTOR NEVER COMPLETING TREATMENT. FINALLY 2 YEARS AGO I STARTED ON MEDACATION. I HAVE BEEN FEELING BAD AND NOT TELLING ANYONE IN MY FAMILY. IT'S VERY HARD FOR ME TO LET MY FAMILY IN. I AVE TWO SONS; ONE IS IN HIS 40 AND THE OTHER JUST TURNED 28.SEVEN GRANDCHILDREN, TWO SISTERs, AND SIX BROTHERS... HOW DO I TELL THEM? I AM HAVING A HARD TIME ALWAYS COVERING UP THE WAY I AM FEELING. WHERE DO I START? I STARTED MY MEDICATION IN SEPTEMBER 2011 (PEGASYS ) (180) REBIA PAK CAP 60MG` TWICE A DAY, INCIVEX (375)MG TWO TABLET 3 TIMES A DAY ,LISINOPRIL HC17 125MG FOR PRESSURE. WORKING A FULL TIME JOB EVERYDAY. AFTER 6 MONTHS THE MED WAS A BIT TOO MUCH I HAD TO WORK TO TAKE THE MED . IT WAS VERY HARD AND MY BODY WENT THROUGH SO MANY DIFFERENT CHANGES THAT I COULD NOT HANDLE. RIGHT NOW I AM EXPERIENCING DESPRESSION AND LONEENESS. I REALLY DON'T WANT TO PUT MY PROBLEMS ON ANYONE ESLE.
Hello I'm 27, and I got Hep c through multiple blood transfusions when I was born so I have had this my whole life. We didn't find it until I was 14 yrs old. We tried the double treatment several years ago, but my platelet count bottomed out so we stopped treatment. Then they had to take my spleen out to get my count back up. After that they told me I would need a transplant, but I got denied for disability 3 times and without insurance I was stuck. I gave up hope for about 7 yrs. I have recently started the triple therapy been on it for about a month. It's going ok, really bad side effects.
1994 diagnosed. I know how I got it, but does that really matter? Hep C doesn't discriminate. Maybe it was a transfusion in the hospital or that boyfriends toothbrush I shared. Could it be the razor borrowed from someone so I could shave my legs....How about the nail salon I go to...Always Asians working there and it is a fact that Asia has the highest rates of Hep in the World. How do they clean their equipment???HMMMMM..Risky sex...that's a good one...Can't deny 5% of Hep C is sexually transmitted. SO GET TESTED...Don't risk someone else's life with your denial. Get over it and learn to live with it.
Flu like symptoms gave it away, got tested, found out. Discovered stress brought out the symptoms worse. Anger was no longer an option in my life because anger only made me sick. Plain & simple. Working in Hollywood studio industry didn't agree with my disease. Tried Peg Interferon w/Ribo, went a full 6 months before the Dr's pulled me off it. My thyroid went wacky and my viral load didn't get below a successful range, so....NOW WHAT? ....ok,,,years have passed. I have redefined my approach to this disease. I live, eat and work in a calm, healthy environment. I cope, the Hep sucks, my exhaustion is like an old friend and very familiar.. Dr's dont know for sure if I can go back onto treatment..
What I do know is if I don't eat crap and I eat right, stretch daily and become an active participant in my health, I feel emotionally fantastic & physically ok mostly (I have insane muscle/bone ache ever since treatment failure 6yrs ago)
If I want to wallow in self pity, eat crap, smoke my brains out, drink & pop pills....I deserve to feel like crap.
Get tested and act like you have a disease that you can spread to others. I've been reading the posts and no one mentions any of their lifelong precautions to be a responsible human being with a disease. I keep my disease status private. Don't like the weird looks I get in polite society. I take all precautions to the best of my ability. I feel like hazmat girl sometimes especially whenever I get a cut. But I get over it and know my attitude about life is all in my head...
Hope my sharp commentary helps..
Peace to all!
Hi. My spouse was diagnosed 3 years ago with hep c stage 2. The Dr. Told him if he did not go on the interferon he only had 3 years to live. Well you can imagine our reaction. Fear. Fear. Fear. We went to a military Dr. Who informed us that civilian doctors want money so fear is how to get it.
Well it's been over three years and nothing has changed with him. What I mean by that is his levels have dropped, there is no increase in damage to the liver. He is depressed still. He went from looking like he was at deaths door, dropped 30lbs, I swear I thought he was going to die right before my eyes, I was terrified and desperate to help him. He was ADVISED NOT TO GO ON INTERFURON by the military Doctors until something changes, escalates etc. because of how horrible the treatment is.
Well with the meds he is on he's put on weight (a bit too much)... It's still hard and a daily struggle. I wanted to share this with you because that Dr. Scared the hell out of us and sent my husband into a depression I could not get him out of, until I brought him a puppy. He has helped more than any medication, he is smiling again, and he gets a bit if excercise by walking his little buddy. Things are not great, they will never be the same as before we found out. I feel myself pulling away from him, to protect myself not from the hep c. I never got over the Dr. telling us he had three years. I'm in a fly or fight mode. I fight for him but I hide from him. It's not fair to him. I'm afraid, of him dying. So I'm pulling away so I won't be so hurt, which I know is ridiculous, but I can't get out of this mode. I would and have done anything and everything for him. But my fear is taking over regarding our relationship, I know he feels it, I know he sees it, I've never told anyone this. And as I type I feel selfish guilty and again scared. I love him. He's a wonderful person and my best friend. I think I need help too.
Good luck to all of you. Thanks for listening. Part of this should have gone in a different post. But he also has 2 other ailments, so I don't have time for me. I take care of him....
I have a history of IV drug addiction and mental health issues. I felt like I should say this first, because holding onto it like some shameful secret only keeps me sick.
The last few years of my life has been a rollercoaster of 12+ month stretches of abstinence, with short periods of relapse (1-2 months) back into addiction. I was exposed to HCV for the first time after an intense, chaotic and 1 month long relapse into addiction after moving interstate and scraping together 13 months clean. Prior I'd been using 10 years, from 17 to 27 years old. I've also had bipolar disorder from a young age, experienced many manic psychoses and depressive episodes, not surprisingly from 17 years old as well. My picking up drugs has always been in response to some kind of mental health crisis.
I knew the guy I was using with had Hep C, so I tried to pay careful attention to our using. But the nature of heroin addiction is messy, and in the chaos there must have been some kind of equipment swap that left me exposed.
I moved back interstate and got myself clean again, and got my bloods done a month later for some peace of mind, and to close the door on that episode. I came back negative for HCV-antigen, so I moved on with a clean bill of health, reconnected with family and returned to study for the first time in years. I'd noticed since my return a strange pain in my liver region, like someone was pressing their finger on it. But with negative test results I chose to ignore it, and moved on with my life.
Some months later as a part of a lithium blood test, my doctor included a full STD and Hep check. To this day I'm unsure why he included those tests. Next appointment I asked him about my lithium levels, and as I watch him scroll down the page on a grave and disconnected look appeared on his face. He asked me whether I was aware of any HCV status, I said no. The moment he asked that question, my concern about the liver pain flooded back and I knew exactly what was going on. He showed me the results on his screen, and I saw I was HCV+.
After the initial shock, the first thing I wanted was to get this nasty out of my body. Part of me was less concerned about my health, but more worried about the chances of giving the virus to my partner, or someone else. For someone who values himself less than others, the thought of passing it on to someone innocent was a nightmare.
I was referred to one of my cities more renowned liver and hepatitis clinics. In hindsight I was extremely lucky to be referred that soon, but my early diagnosis and acute Hep C status seemed to help the process. It was in this clinic I met an extremely supportive and positive gastroenterologist who would help me through the process to come. I tested positive for Geno 3a, my liver function tests were fluctuating, my viral load peaked at 1,300,000 (?) and at times my skin appeared swarthy, like a gypsy. For those that didn't know what was going on, it could pass as a slight tan in the winter. I wasn't too concerned about it. My greatest concern was giving it to my partner, and it didn't matter what my doctor said to allay that fear.
My doctor was extremely apprehensive about putting me on interferon. In his words, interferon was "a shit of a drug." I get the feeling he may have seen tragedy before by mixing it with mental health issues. I wasn't as cautious, and after nearly a year of being HCV positive, with it clearly passing to chronicity, I started my 6 month course of treatment.
Initially I entered a treatment "honeymoon period." It seemed to clear my HCV symptoms within the first week. No more moving around in bed trying to avoid the liver pain. Also, the fatigue I'd feel after a fatty meal seemed to disappear. I began to believe interferon / riba was a walk in the park.
4 weeks in the side-effects came out of the blue. This gruelling, dark depression came over me, and even after numerous anti-depressants, I still felt like I was pushing a huge boulder up a hill that was never ending. I got really bad psoriasis. I ended up shaving my head just to give my scalp some wind and sun. At one stage half way through treatment I experienced mania induced by the anti-depressant, though thankfully I managed to get medical help in time and stay on treatment. I also lost all interest in sex, which put some strain on our relationship.
I experienced no viral load at 4 weeks, or rapid virological response. Overall, treatment seemed to be going really well.
So I was heartbroken when 2 weeks after treatment the liver pain returned. I always associated the pain with HCV, so assumed I must have relapsed. However, blood tests showed I was still negative, so they put the pain down to the gall-bladder.
I achieved SVR at 6 months post-tx, and was so grateful and happy. I've held medicine in such high regard since this, and bought a gift for my doctor. I was so thankful, and thought myself incredibly lucky.
Fast forward 12 months later, before Christmas 2012 I experienced a relapse into bipolar depression. I felt suicidal, and started drinking to escape. Whilst drunk and walking downtown, I chose to use, and found two old faces near the bar I was drinking at and we went score.
Two days later I woke from that binge with marks on my arm, missing Christmas, missing all family events, feeling pretty sorry for myself and licking my wounds. Replaying in my mind was the image of her passing me a dirty spoon, and me carelessly wiping it with my t-shirt.
The thought that I may have reinfected myself is heartbreaking. I think of the people I'd have let down, my doctors especially, my family, my niece, and my now partner. I feel like I'd been given the chance of a lifetime, been given a miracle, and now I've potentially thrown it away. It's a week later and my appetite has gone AWOL. I really hope it's unrelated.
I've decided if I do test positive, I will shelve treatment for some time. I didn't give myself the chance to come to peace about having HCV the first time. Part of me never grasped what was going on. And I think that may have caused me to take it for granted?
All I can say is ... if you've been given the gift of a cure, don't take it for granted. Even if you're drunk and suicidal, think about the others who've believed in you, and all those who've tried to be cured but relapsed.
Take care...
RR
I got tested for Hepatitis c last year early last year, and was called in by my Doctor.He told me I was infected.I asked how this could have happened, he said if you could have picked it up 10 years ago. Then asked if I were gay, I said no. Then he asked if I did drugs with dirty needles - of course not. Then asked if I had a blood trasfussion. Yes, I was in the Hospital for plastic surgery,a broken nose,a splinter of bone in my nose was touching my brain. I Asked what should I do and I was told not to worry that this would not affect me for 10 years,and he proceeded to set up a liver biopsy, and was told it would be ready in 3 months. That was 4 months ago and I am still waiting for the results.
I called my doctor to check on my results and was told he was away on some educational thing. I phoned him again and was told he was on vacation. The secratary is very difficult to talk to and cuts you off very quickly,saying, "Sir we are very busy and will get back to you."
Now for the last month I am feeling like I have constant pains in my stomach and my vision is very blurry. Just feeling very bad all the time 24 hours a day, even my mind. I am thiking very strange things, evil thoughts that I would never do or contemplate before(paranoia). Problem is I am a Canadian and they do not treat you here unless you are deathly ill. There is a lady in Ontario that made the headlines in the news because she can`t get medication because she is not sick enough. I read this and it makes me feel worse My family tells me I am over exaggerating and you are not as sick as you profess to be. I am getting very deppressed over this and I feel I am being abandoned and no one understands or is listening. Just thought I would vent a little of my frustrations.
Sorry for being so negative.
Sincerely Robin
Hi, I was just told I have hep c in September of this year got all my blood work done but can't see a specialist til the middle of February. I think this waiting is making me sicker then the hep c I have never felt so helpless and confused in my life. I am 53 and have no idea how I contracted this I just don't know what to do or not to do and believe me my mind is in total confusion with all the stuff I've read on the computer. Oh well just had to vent.
I am 71, diagnosed a year ago with hep C and cirrhosis. I have never even tasted alcoholic beverage nor used drugs. I have been married since I was 16. The worst part of this is the stigma. At my age death is not a worry, but all I have is my name, and now I am shunned by family, friends, neighbors. I always assumed that in old age there would be the reward of peace, and the good things that come, like great- grandchildren. I feel so cheated. The anguish and loneliness is the worst. How do I find peace? I am a lifelong athiest (sorry) and can't be hypocritical by suddenly 'finding God' Sorry for the negative post but I have nobody else to talk to.
I shared needles with my partner. Once we broke up, I got on the road to recovery and during routine bloodwork, my doctor told me I was positive for hep c. The tests didn't show that it was still in my body, so he ordered more bloodwork to be done to find out. He told me that 20% of people who contracted hep c, sometimes their immune system gets rid of it. I later went for the tests and went back to my doctors office and he told me there was no hep c in my body. He was amazed. I guess I just got lucky.
December 3rd 2012. That's the day I found out I had hepatitis c. My days have gone from bad to worse. Worse news every day that passes since my birthday December 1st.
I foud out I was pregnant November 9th of 2012. Not bad news, just stressful for a recent 20 year old who is,already a single mother of a daughter who's 1 1/2.
Since I'm pregnant I cannot take the necessary medication to help prevent the virus from growing and me getting serious liver disease or cancer. I'm at a loss. I can only pray for the safety of my unborn child and pray that the Lord continues to bless me in other ways.
I'm not sure what to expect or how to feel but faithful. I pray for health and peace for you all going through this.
I'm not sure either how I received this virus, I didn't have it when I had my daughter but tested now for this pregnancy, its popped up. The only guess I have is a tattoo I recently got about six months ago. At a shop on Fort Worth, TX, but you never know.
Be well all and have STRENGTH.
Just started pegassus treatment had hepc went to prison finally got treated when I got home meds are really tough but hoping I can beat this.
I'm a 24 year old female, I've been living with Hepatitis C for 6 years and this is the first time that I've ever told anyone except for my mother that I have it, 8 years ago I started using heroine with my ex-boyfriend, I contracted hepatitis from using needles and dirty cottons after him. I've been clean now for two years and since then I've been able to recognize the symptoms that have accumulated from the disease. I live in much pain almost everyday and I'm terrified to tell my doctor that I have it. Since I've never been tested using my real name my medical files don't reflect it, I always refuse to give blood, when I got a letter from the health department when I got tested under another name I was devastated, I'm afraid to tell anyone close to me because I'm afraid they'll think of me differently, any advice??
I remember very well changes in my body feelings. I was getting ill feelings in my lower stomach.Felt like I always wanted to throw-up. Cancer. Well I said to myself, to see a physician. I went to county hospital and told the staff there of my concerns.
The hospital did a complete physical and three weeks later, or it may have been sooner, the results of my tests. WOW... The next thing was to treat this disease.THE MAIN CONCERN OF MIND WAS WHY? The California Department of Corrections, did not inform me of my condition, after all I was in their custody, care and management. I was serving a (3) three year sentence and they test EVERYONE'S blood upon arrival. Oh well.
I applied for SSI due to things that were happening to me. For example, tired all the time throwing out instead of throwing up. Having explosive bowel movements my feet began to swell along with soreness everywhere. A pain here, a pain there. Well, to make a long story longer I went through 3 therapies of peg-interferon alpha 2a and ribivirin. I was a fast responder and 48 wks later undetectecable, but the virus always returned.
In 2012 I tried triple therapy with Incivex that I was so sick that I only lasted 12 wks. After 12 wks it was non-detectable, I could not continue triple therapy so I stopped but I knew that it would return. Now I have asked my doctor if it was non-detectable back then and it's non-detectable now why can't we continue triple therapy now. There was no answer given and he could'nt explain why this is so... I am convinced that I was a pawn and was used to experiment on. Now I worry if the blood tests are truthful and since this information letter will hurt me in any way? I just don't know and I am not ready to pass on, I always wondered why the stories written about treatment never included the bad bad side EFFECTS???
Wow! What a long story. I have had hep c since 1987 after receiving a blood transfusion. I turned yellow and had no clue as to what really happened. Then I tested positive in 2001. At first I was shocked and scared to find that I was infected with this virus. I knew nothing about it. Depression and denial set in. I asked questions and read to educate myself.
As I read I realized that the future seemed pretty grim. Poor treatment results and the like. Especially for carriers of geno type 1a like me. I became a part time Herbalist and vitamin expert. I was convinced that I could clear this thing with Gods' help and the plants He created. Well it just didn't happen. With no blood tests to monitor my viral load, I was just groping in the dark for some miracle cure.
Fast forward to the present and I can tell you that I am extremely blessed to report that I am currently virus free thanks to Triple therapy Incivek. Tomorrow is the beginning of week 18 for me. This treatment is the very best thing that has ever happened to me. It was free through the Vertex GPS program for Incivek at 1-855-837-8394 and Merck Patient Assistance Program for free Peg-Intron and Ribavirin at 1-866-363-6379. You heard that right. All meds free. Get a doctor, do the biopsy, call Vertex and Merck. It was all very easy. Remember! Incivek Triple therapy is for geno type 1 only. This is now the happiest time in my life. I have found the treatment to be very good with limited side effects that are VERY manageable. Don't let the horror stories keep you from this once in a lifetime opportunity to become virus free at no out of pocket cost. I didn't.
I just found out today at 6:48 pm that I have hep C and I'm pretty much in a state of mind that is very "I don't know" about my future. I'm scared and don't know who to talk to or what to do. I have no family and my husband is taking it better than me but I just don't know what to think about the whole thing. I just need to know what to do. I am clueless about it and I'm freaking out. Sorry I'm scared. Thanks for listening and making me feel better by reading my thing here I needed to get it out of my head. I feel alone.
Just wanted to share my story along with the others.
My father has hepatitis c. My Mom was diagnosed with it in 2002 giving a blood donation. Then my father was checked and he came up positive as well. His liver was 90% consumed with the disease. He did the Interferon injections and boy was it horrific. The disease not only affects the victim but the victim's family as well. The thing that really sucks is, that it wasn't even his fault he got it in the first place. He was in a motorcycle accident in the 70s in a rural town and had to recieve a blood transfusion and that's the only thing we can really link it to. Neither one of my parents has any tattoos, nor have they been drug addicts. It's not 100% certain that's how he got it, but we're pretty sure. Anyways, he was "cured" (no trace of the disease) about a year later. He remarried. And had a child. YES I SAID HAD A CHILD. And by the grace of God himself, neither his newborn nor my sister nor my older brother nor his new wife have the disease! Well, all is well right? Wrong!
Recently (about 3 months ago) after a stressful temporary separation with him and his wife, the disease came back. We noticed, he had a lot of fatigue, couldn't work, wanted to sleep all the time, and had a bald spot on the side of his head the size of a golf ball. After several blood tests were done over a one month course the doctor told us he had to start the interferon injections again. Meanwhile, my father works for a union, but has no sick leave yet and the doctor will not declare him temporarily disabled, because he wants to go back to work when he has his strength.
Every day is a struggle for him. He's lost tons of weight. He's really depressed. The only thing that has actually helped was this wonder drug called "mirtazapine" which has given him some energy and helped his anxiety. I'm older now so I'm stepping up and helping him with injections when the wife is still at work. Today we had a HUGE scare. He had to start on his unused leg for the injections. And he thought he hit a vein, it was extremely painful, the injection site was hot and it started to swell. Pegasys always have nurses ready to talk to you on the phone and help you out. However, they can't tell you "oh honey you'll be fine don't go to the ER" if you may really need to. And for my dad, sitting in an ER with an awful headache, isn't going to happen.
He also started to get an abscessed tooth last week and I had to argue with the dentist to give him a perscription for the antibiotics because he doesn't have the strength to go to the doctor. That's after I had to sit on the phone with 3 different manufacturers to see if he'd have a reaction with any of his medication and the amoxcillin because the dentist didn't care to tell me. Oh, I first called the gastro. doc and the receptionist basically told me that the doctor wasn't there (labor day weekend) and that his teeth have nothing to do with his liver. I just feel like it's sooooo overwhelming and we have to fight for any answers!! What happens if you do hit a vein with the interferon (pegainterferon 1a) Can you die?? Good luck and God bless all those who are fighting this with me and my father!!!!
I was diagnosed with Hep C in 2007 after more than 30 years of heroin abuse. Because most of the people I had used with were positive I always suspected that I was positive too but I thought that if I didn't know I would be okay. I didn't have any symptoms so maybe I was lucky.
In 2007, 6 years after getting sober, I heard a woman share at an AA meeting about going through treatment successfully and after the meeting we talked and she suggested that I get tested. "Better to know" , she said.
I had also started to hear other people share about getting tested and treated. For some the treatment had been successful and others not. Some had used alternative medicine, herbs and exotic diet, etc.
Well finally I got the courage and the common sense to get tested and I got the result that I had suspected all along.
After more testing it was determined that I was genotype 1A. I was told that as an African American male I was least responsive to the standard treatment of Ribavirin and Interferon, something like 20% probability of cure. One doctor mentioned that there were several new drugs being tested and that because my liver functions were normal and my viral load was consistently low that maybe I should delay treatment.
A series of events delayed treatment for 5 years, including a bout with colon cancer.
I am now starting week 20 and I am blessed to say that the virus has been undetectable since 12 days into the treatment of Incivek, Ribavirin and Pegasus, the triple therapy.
During the first 12 weeks of treatment, when I was taking the Incivek, I had a terrible but I have learned to pace myself, eat better and get as much exercise as I can and the side effects have not been overwhelming.
As a recovering drug addict I would also suggest that those with similar problems have some people to talk to and DON'T ISOLATE.
12 step meetings work for me and I have sought out professional help.
Stay involved and try to live as normal a life as possible. Get tested because it is better to know no matter what you decide to do about treatment. I have been given a new lease on life and hopefully you will too.
I was diagnosed in 2000 with Hep c, genotype 1A. Could have gotten it from transfusions in 1994. Will never know. Went through interferon/ribavarin treatment in 2005 but relapsed soon afterwards. Started new treatment with Teleprevir in November, 2011 but got too sick to finish. Had to quit tx in February, 2012, due to extremely low hemoglobin count. Got test results August, 2012, which show I am undetectable. Very lucky guy.
I had hep c for 15yrs genotype 3. Done the combo therapy and have been clear for 7yrs. I infected by brother accidentally before I was treated(possible razor or toothbrush sharing?). I didn't have that much difficulty doing the 6mths treatment but when my brother found out he had it and went for the same treatment - Wow, What a difference.
He only had HCV for 5yrs tops and his liver had very little damage after biopsy. He had really bad side effects. Practically all of them. I only had a very low nutrafil and had to have 2 jabs to increase it every week but felt ok. My brother couldn't even stand up after 2wks treatment. We both got clear of HCV which is great but my brother got permanent problems from the combo therapy. He has post viral fatigue syndrome. He needs energy drinks all day to stay awake and is constantly tired and irritable. He wishes he just lived with the hep c as he didn't have any symptoms then. It's no picnic and can cause permanenet side effects. His hepatologist said it was all in his head for the first year after treatment. But now they have conceded that there are some people who get post viral fatigue. But I doubt hep c caused this and in my view the interferon alpha and ribavarin therapy caused this.
He was a normal healthy 40yr old before the treatment and had no symptoms whatsoever but wanted to get rid of the virus. He doesn't drink alcohol and never has. So all I'm trying to say is even though the treatment was great for me, it's not great for everyone.
My daughter was 16 when we found out she had hep c. She has been and still is a needle user. We went in to see specialist last year shes aid my daughter is at stage 3-4 and needs treatment. My daughter continues to use the needle, drink and other drugs. I'm dying inside. At a LOSE. What to do?
Hi everyone,
My name is Julie and am so happy to have had the opportunity to read some of your stories.
I was told that I had tested positive back in May 2000 for Hepatitis C. My reaction at that time was shock and numbness to hearing this news! "There must be some kind of mistake", I remember thinking to myself, there's no way it could happen to me! I had started using intravenous drugs late in life and this is how I must've contracted this Dis - ease. I was 28. Just yesterday with visiting my 54 year old aunt who is laying in a hospital bed, not well at all because of the effects Hep C has done to her body (not sure why she hasn't had a chance to get better??) was no one there to help her? or did she just not want to accept help? makes me sad to think that i have been given this chance and now, it may be too late for her.
Now at almost 40 years of age and living in denial for the years in between of my actual diagnosis, I had finally decided to start with the treatment. Not being able to function fully to the best of my ability, not only for my kids but myself, was a true annoyance! I wasn't able to hold a job down due to extreme fatigue and a lot of physical and mental anguish. Now that I'm 6 weeks in, I look forward to new outcomes and experiences. I want my life back! wait a minute!? have I even fully lived up to my full potential yet? Do I even know what life is like without drugs or alcohol yet? The answer is NO. I look forward to keeping everyone posted on my recovery from this awful disease and hope to be able to tell more of my story to you. I wish you all safe and happy recoveries and much hope for all of our futures.
Love and Light,
With much respect,
Julie F.
I know when I got it, how I got it, and was able to let my guyfriend know he had to get tested. We both wound up with it. I deserved it, always knew that it only took 3 days to get hooked again. forty yrs. in and out of the "dope" game... they don't call it that for nothing... went on the 48wk. Ribiviran and Interferon shots daily... nothing "detectable" in my blood after that... Had the audacity to do some more investigation with the drug... don't know where I stand now. I only know that with age, I am finding out about "BRAIN FOG" happening, caused from either the Hep C or the COPD. What a self-torturing way to have lived... Drugs, sex, and alcohol-free love... isn't that the way it was in the sixties and seventies? Oh well, I am still here, God loves me and has proven that to the extreme. Trouble is with humans, they never did. Found God now that I am on the down-hill slide of life... No more drugs and I am doing well in spite of having had a FAST life... ;-) Good luck to all, do what your doctor says, find the best in your area, and cool it with the drugs and alcohol... PEACE
I will first start out with the fact that I am hepatitis free for 15 years. I was a genotype 1a, viral count 33 million had mild portal fibrosis.
I was diagnosed with hepatitis C aprox. 25 years ago after giving blood. At that time the only treatment available was interferon. My family doctor advised me to wait till something better came along. 15 years ago I did 48 weeks of interferon (shots three times per week and ribavirin 5 pills per day). At that time the doses were not based on your weight. I was 115 lbs and taking the same dose as a person weighing 250lbs. At any rate, I cleared the virus in the first 3 months. I took my shots at the exact same time every day and in the liver area of my stomach and the pills two in the am and three in the pm every day at exact same time. I never varied.
I am a runner of over 20 years, weight train 5 days per week, female and now weigh 118lbs at 5'2" tall. I am 54 and have a complete blood work up and liver profile every year and so far, virus is still "non detectable". I feel great. I enjoy two or three miller lites (lowest in alcohol of all beers) on the weekends (my doctor approved that). I live a very normal life with loads of exercise and low fat diet. Good luck to all. It's a tough road. The treatments are very difficult.
I have had Hep C now for 42 years. I contracted the virus in the early 70's using infected needles. In 2002 I did 6 months of Rebetron and 6 months of Pegintron. No success. In 2006 I did 6 months of Pegasys and again no results.
I have been in Stage 4 cirrhosis for 6 years now. I just found out that I have two polyps on my liver, a cyst on my gallbladder and gallstones. See my liver specialist in Aug. 2012 to see what we are going to do about it. I currently take milk thistle, 15 grains of raw rice, turmeric and take a liver cleanse frequently.
I feel good, exercise four times a week and have competed in provincial bodybuilding the last two years. Effects of treatment for me - loss of short term memory and decreased sex drive.
I do believe that the treatment I have done has retarded the virus.
I was diagnosed with Hep C about five years ago. At that time most of my blood tests indicated that I was in fairly good shape however, with elevated liver enzymes. My doctor, an infectious disease specialist, said that I should not take interferon because according to him it was a poison that could potentially do more harm than good considering that I was in basically good shape. I was an avid snorkeler which kept me in good physical shape. Breathing as I learned later expels many of the toxins from our body (not necessarily viruses).
For over a year I tried alternative medicine and kept up a rather heavy physical exercise schedule that now looking back I should have lightened up on. Then for a year I tried acupuncture and Chinese medicine all the time my viral load slowly increased. Later I learned that viral load was not the way to determine health it was liver enzymes or ALT that was the most important gauge of health. I learned that one patient had a viral load of 2.5 million in the morning and 8 million by the afternoon... so viral loads vacillate considerably.
By the end of the third year after being diagnosed I began to go downhill, feeling crummy, no energy and anxiety was building. It is my belief that I had the virus for almost 40 years since I was 19... a rather unsanitary Tattoo was the most likely exposure. I decided that I was ready to try a clinical trial if I could qualify for one.
Reading online and keeping abreast of the latest trial is a must at clinicaltrials.gov. For years I had followed Pharmassett and their oral treatment possibility... BMS as well. A few things I found to be essential. Take baths and scrub the entire body, your skin is the largest organ and when dead skin cells are replaced they produce new T cells that kill bad stuff in your blood. I read the Art of Happiness by the Dalai Lama and broadened my spiritual awareness and tried to eliminate all negative thoughts (stress)... then I read other books by him and started practicing meditation and kept a positive attitude about life and death. I drank tons of water and worked up a sweat as much as I could, your skin is an organ that rids the body of toxins.
By the grace of God I was accepted in the first all oral trial for Hep C and by the grace of God I have been virus free for a year, six months after dosing still virus free. I still practice meditation, drink tons of water and now bicycle three times a week. There is a great deal to be learned from Chinese Medicine, from alternative medicine and from accepting the fact that a strong virus needs a strong medicine to kill it.
There is nothing that I would do any differently and would recommend anyone testing positive to take immediate steps to get treatment. I am now an advocate for Hepatitis C, writing Emails and letters to everyone that I think can make a difference. There is a stigma attached to Hep C just as there used to be a stigma attached to AIDS. It is up to all of us to come out of the closet and educate people about this terrible disease that is transmitted blood to blood in and out of the health care system. My recommendation to those who have tested positive is take action now to get cured and oh yes, I almost forgot, DO NOT DRINK ALCOHOL or take pills needlessly. Hepatitis C has broadened my appreciation for life and strengthened my spiritual awareness and for this I am, in a strange way, thankful.
Visited Dr. Carpenter's office on or about February 9, 2005. I saw Billie, his nurse, and she showed me how to use the redipen.
On February 14, 2005 I picked up my medication at CVS in Rincon, GA which was Ribavirin 200 mg capsule, also Peg-intron 120 pg/0.5 ml. The shots are for once a week; pills are three in the morning and two in the evening.
February 18, 2005 approximately 9 PM. I gave myself an injection and took 2 Ribavirin pills, took two Tylenol. Went to bed I woke up at 2 am with a headache. Could not go back to sleep. Dozed in and out of sleep. I had a headache all day. Saturday night took my three Ribavirin pills around 9 pm. At 11 pm I woke up with fever, headache, chills, stomach pain. Almost unbearable. Wanted to give up. I missed Saturday night two pills. I felt much better in the morning so I took my three morning pills. I am on my second week, second shot and have not missed any other pills. I had to take off work Saturday, Sunday, and Monday. Tuesday felt bad headache and a rundown feeling. But by Wednesday felt like a normal person again. All the way up to my next injections.
I had my first blood test February 25, 2005, CBC w/differential. Friday night 2/25/2005 I injected myself. Took my two pills. On or about 11pm woke up with a headache and felt very tired, all weekend felt tired on and off headache.
Here it is Monday, still feel rotten but not as bad as my first injection. Seem side effects ease up a bit. If not for headache and feeling run down I would feel good. Tylenol seems to ease the headache for a while but I do not want to take too much.
My third injection on March 4, 2005. It seems like it is getting better still very tired and still have headaches. Friday the 4 of March had another blood test.
Went to my appointment on March 9 to see nurse. She said my white blood cell count was down but not dangerously low so I was ok. For the feeling of being tired I started to take MDR Vitamins.
My fourth shot on March 11, 2005. Again not as bad as the first but still headache and feeling very tired. Again I took another blood test on March 11, 2005. I have to keep water next to my bed at night I get very thirsty. During the day I drink as much as possible. So far I do not have any of the serious side effects, such as depression, suicidal thoughts but I will have to watch my weight I have lost 8 pounds. Any more I will have to contact doctor to see what weight loss is too much.
On March 18 2005 I advised Dr. Carpenter I was sent to Mojave, California on a job. That same day he said I should stop therapy until I reach California to get another Doctor because my white blood cell count was very low.
On March 24, 2005 Doctor Taha Hamoui in Lancaster, California saw me. He sends me to have blood drawn on March 25 2005. On March 31, 2005 saw Doctor again. He said it was ok to start therapy again. I started again on April 1, 2005. But at a lower dose 80 pg. 0.5 ml Peg-in tron not 120 PG 0.5. The lower dose has less severe side effects. But still noticeable side effects. The pills did not change.
Dr. Taha Hamoui on my May 26, 2005 appointment stops my therapy again due to a throat infection. He gave me antibiotics.
On June 10 2005 I started my therapy again, hopefully I can go all the way this time. My weight is holding at 150 lb doctors scale says 160 lb I figure it is between 150 lb and 155 lb I have lost at least 10 pounds. I have a Doctor visit every two weeks and also a blood test every two weeks to monitor my blood cell count a CBC as they call it.
Saturday June 12 had headache all day up to 11pm and flu like feeling body aches. Stayed in bed all day. This usually happens when I stop therapy for two weeks due to my first episode of low blood count and then the second episode of throat infection. Today I feel much better a slight headache. Usually I feel some symptom up to Wednesday which is 5 days out of seven, two days feeling good. Then we have to start the cycle all over again with my shot on Friday nights. One thing I am grateful for, I have not had to work many weekends while here in California which is not unusual for the company I work for.
June 17, 2005 Friday night shot night hope I have a good day tomorrow and not a bad day like I had last weekend. But this week I did not feel too bad any day. I had all my pain last Saturday I guess if I could feel rotten one day a week it still would be worth the benefits. I will let you know how I made it through another weekend. One more thing Dr.Hamoui wants to see me in one month instead of every two weeks my cbc blood test have been fine since I went down to a lower dose of Peg-intron. Believe me I will be keeping a good watch on myself.
I had a better week the next week certain days I felt lousy especially on Monday and Tuesday Wednesday and Thursday were not so bad. We had hot temps 98 d for a few days it will only get worse in the Mojave Desert.
On June 24, 2005 I gave myself another shot. The only problem I have is the feeling of being tired and a headache, a little body ache. My throat starting bothering me again. I cough up a little blood and film. I guess I will wait until Monday if it continues I will have to call the Doctors office my throat infection might have returned, I hope not, that will mean stopping my shots for another two weeks . My problem is I hate to stop for two weeks because starting over is very hard normally I have to stay in bed all day with flu like problems, body aches, headache, really tired Dr. Homui is on Vacation I will have to talk to his assistant on Monday.
On July 21, 2005 I visited my Doctor again he gave me lotion for my leg he said it was a fungus on my leg, also gave me sinus medicine, nose spray and antibiotic.
One week later I still have the problem perhaps it will not go away until I get to a place with higher humidity. I will be calling the doctor again if I am not better by next week. He did not tell me to stop my medicine this time.
Friday July 1, 2005 injected my weekly shot, Saturday morning felt lousy and Sunday but not as bad. I decided not to call Dr. I will wait of Dr. Homui to return. The coughing up of blood - have not seen any. My throat still has cold in it. Especially in the morning. If it gets worse I will have to contact him. On my right leg I have what seems to be a rash of some kind. It appears to be healing over drying up it has been like this for approximately two weeks. I used Caladryl Lotion it helps with the itching. The temperature reach 101 last week that is hot I do not seem to have too much problems with the heat working as a construction, not yet any way.
The week of July 17 - On Monday the 18th it got very hot with a temperature of 110 in Mojave. It has been over 100 for a week and a half. 110, 108,106 102 and 110. I had a very hard day, usually that happens after my weekend shot lasting at least till next one Monday worse day, Tuesday little better, Wednesday even better, Thursday ok then guess what, Friday injection time again starting the cycle all over again. There is not a day goes by that I could say I feel good sometimes perhaps a few hours that is all I get. I think sometime on how I got this illness. Friday night I have a hard time sleeping it is usually that night only. The rash is clearing a bit but still have sore throat, sinus problems with drainage that is what causing sore throat I guess I will see what happens in next few days.
Went to Doctor on the 22 July, he said I had sinus problem due to the dry dusty climate He gave me sinus medicine, Friday July 5 and nose drops, not as bad but still have problems. I have an appointment on August 18, 2005 my birthday. By that day I will have a full 5 months of treatment would have been 6 months but I had to quit twice so far for four weeks. I will ask the Doctor can he order a Blood test to check my Viral count to see if this stuff is doing what it supposed to cure me that is.
I still have problems on Saturday, Sunday and Monday My worse days. Saturday night cannot sleep very well sometimes it goes into Monday I have to wait until Tuesday to have a good night sleep. I have not written anything in a while today is another Friday you know what that means a bad weekend again. This is September 2, 2005. Last weekend I was suppose to work Sunday could not make it.
October 7, 2005 some good news I receive my test results on viral count the virus is not there anymore it is working. But because I am type 1 I must continue my medication for the full year. Which I knew any way did not get my confidence to high before I saw doctor. At first when I found out I did not know whether to cry or jump up and down. Knowing that I was able to rid myself of this disease, which I caused from bad living habits knowing drugs and alcohol.
I have been working some Saturday which makes it bad for me because my side effects carry into Monday because I take my medication on Saturday after work instead of Friday always the following day I get headache all day, followed that night by Drinking water all night and up and down for bathroom breaks. Do not get much sleep the following night after injections.
On March 14, 2006 Finished My Meds. Wanted to give up many times but I was determined to stick with it and I am very grateful to god for helping me along. I hope I never have to go thought that year again of treatment again.
Thank the Lord I had insurance to pay for the some $30,000 the meds cost. I am finally getting my energy back it took about a week and a half.
April 18, 2006 I have my energy back feeling my old self again I lost 15 lbs. I gain 3 lb. So far it is a start. I find at work I have a short temper I am really trying to work on that.
I know what my wife went through for that year I was on medication I had a very short tempered I am happy she loved me enough to stick with me till the end. I don't know if I am so happy or she is happier than me.
I did not have many of the complications that I could have had. After a year of drinking water I seem to have to have it, I don't drink as much as I did.
June 18 I weigh in at 158 pounds. My weight is coming back it seems to be all in the stomach. July 16 2006 I weight 162. Feeling great. I always wondered why I had stomach pains basically after treatment the pains went away. I have had test done every now and then no sign of hep c.
This is July 2012 but they said still be careful they have no test saying it is not in your system still no giving up and let medical professional know you went under treatment for hep c. I was very happy I could keep working for my insurance I thank god I was able to keep working even in the Mojave desert This treatment cost insurance approximately $30,000 dollars.
Every now and then I get stomach pains again probably not from Hep C but it makes me think. Too bad my wife's sister could not be saved but she would not stop drinking. I got mine from drug use. I have been sober for 18 years. I hope my experience helps someone. I know my last entry was 6 years ago. Only pains I have now is average age pains. I will be 61 next month. Still working construction.
fisrt treated for hep c in 09, relapsed 3 months after finishing 48wk. therapy -peg+ riba.try again 2010. could not clear second time,i think the strain mutated. many new side effects, even w/o meds wanted to do incivek and figure three strikes and your out. doc said no, due to psych issues.makes no sense.
Hi, prayers for everyone, 52 years old knew I had hep c since 92 I think... I could have gotten this disease anywhere!!, drugs, tats, pierced ears, blood given to me after a really bad car wreck, sex. Sooo many different ways !! I did the interferon 6 months and I done great till last year. BOOM!! hit me like a bomb!! I stay so tired and moody. This disease is really making me feel like I'm crazy !! Can't remember things, really need help to do things in my home, it scares me to death to get in the shower!! cause more than once I have just fell out !! last month I laid in the shower all night and did not know it !! my nephew came in and found me, got me to hospital and all they said was my oxygen was low. I don't know what to tell anyone except I'm so scared!! Maybe talking will help. upsets me to talk right now maybe later i can slow my mind down long enough, sorry I just gotta stop for now.
I'm 53 post tx with recurrent hep c . I've been thru it all . After transplant the hep c started to eat my liver again. AFTER 3 years I was stage 3 fibrosis with elevated liver functions. I created an herbal/vitamin regimen from 25 years of experience and trial and error. Along with proper diet (important) and exercise. My recent elastography showed only stage 1 fibrosis (a reversal) and normalization of bloods. After 1 year on regimen. It's not a cure but it will protect your liver from further damage from hep c which will give us more time while waiting for a transplant or waiting for the next NON INTERFERON all pill regimen to cure us without torturing us. No BS I wouldn't do that to a fellow sufferer!
I was sick, and thought that some blood work could possibly narrow down just what the difficulty was. Never could I have guessed that for roughly 20 years I have unknowingly lived with hepatitis C. I am not a needle user. And with only a total of 4 sex partners in my whole life, I knew exactly where and when I contracted it, 1992, and yet under age, I would have done anything for a tattoo.
I was just 23 years old, and pregnant with my second child. I had Gestational Diabetes and a friend asked to use my meter, and after she was done, I was taking the needle off and got poked. I went in to my doctor and got tested for mine and my unborn baby's sake. Two days later I went into labor with my daughter and the next day my doctor walked in and told me that I was Hepatitis C positive. However it was not from that needle poke. I found out a few months later that my mother in law was infected and used my shaver. It just so happened that I used the same shaver and cut myself. My family was tested and my husband and son were ok. But my 10 month old daughter was positive. I was so devastated I blamed god and hated him. I started the treatment and it has been 7 years since the viral load has been undetected. My daughter's body was able to fight is off by the time she was two and is also free of the virus. I now see that god blessed me with my daughter to save my life and to give me strength in a dark time in my life. Even though I was sick and she was sick I think that she is what made me Stronger!
I was diagnosed with hep c 4 yrs ago but felt fine so opted to wait on treatment. I have a fear of needles so knew I couldn't do it quite yet as getting blood taken was a task in itself.
A few months ago I was offered a study drug needle free. I'm 12 weeks in and hep c is undetected. I take 4 pulls in the am and 3 in the pm. The only side effect I had was small rash which I got when I was in the sun a lot as its summer here. I was given a cream and it went away. Other patients in the study have experienced side effects but I think diet and daily routine have a lot to do with it as well. I'm into health much more now in my 30's so I wake up to fresh wheatgrass daily (2oz shot) followed by fresh juicing and lots of veggies and chicken during my meals. Rarely red meat, I do crave a burger occasionally so it happens. But I exercise and I stay active. So maybe that contributed to my lack of side effects. I do also experience fatigue but NOT nearly as close to what most people on here describe as fatigue. I yawn throughout the day so I contribute that to the meds since I know I'm not really tired.
Stay positive as this treatment REALLY works and will be on the market soon! End of 2012! No needles! It's amazing. I take the pills with food just like I do my vitamins and I forget I'm on treatment. By week 4 I actually had undetectable results. Crazy! I'm excited. Treatment is 24 weeks and I'm due back in 4 weeks. I'm past the halfway point. They will monitor me after the 24 weeks for another 24 weeks just to make sure nothing relapsed. I'm so thankful I waited for a safer treatment and that I was offered the study drug as I don't have insurance.
I live in Atlanta Georgia where one of the most renowned gastroenterologists works. Dr. Gitlin. He's a leader in liver disease. He's SO passionate about curing. And he's always involved in the leading studies as far as treatment goes for this disease so it's worth a move to get close to him for a study. He's very understanding as far as insurance and stuff goes. He will fit you in a study eventually. He cares so much.
Thanks for listening and stay positive!
Oh and I'm 33 now, people probably want those details. I'm a female, got hep c from a tattoo I had done at a home tattoo party I'm assuming since I never had a transfusion nor did needle type drugs. Smoked pot when I was in college a few times but that's it. I'm not a heavy drinker but I did have those college nights! I don't drink now aside from a glass of red wine occasionally. Once a month if that. Hope I covered everything. I'd give the name of the drug but they just label the bottle with numbers.
I was diagnosed in 2004 with HEP C after a routine blood test. It devastated me and I went into denial. At the time I was taking large amounts of acetaminophen and drinking. I had no history which could have caused HEP C what so ever. I decided to start seeing a doctor for treatment after 8 years of worry. I stopped drinking for the most part, NEVER took any meds but did start taking vitamins.
Doc says there is no signs of HEP C and I must have cleared it myself. I am and always have believed the tests are flawed if you drink heavily. I feel great and am 54 yrs. old.
I had Hep C and stopped drinking for over a year and was tested again last month and I no longer have Hep C. Alcohol kills in so many ways.
Am now 66 and cured? Yah, I'll say (cured).
Have (or had) hcv 1b and did 72 weeks of peg/riba. No dose reductions and had an easy time of it. I know that the ones that have a rough row to hoe might not like to hear it. Those that haven't started might have an easy time (or not). My advice is to (give it a chance to work). If you're anything like me the first week was the worst and after week twelve there was very little sides ant all. Only a slight tiredness form the low blood cells but the tx made me sleep better.
I wasn't quite undetectable at week twelve so we decided to go for 72 weeks because of the easy time I had.
Anyway, now I have been undetectable for 22 months post treatment. The last blood virus count was at 19 months and still svr. Yahhhya!
Hang in there and with new meds on the way there is a cure for most people.
The only problem I have post treatment is that I'm kinda bored because I looked at treatment as (a mission) and now the mission is over and I'm kinda missing it. Does that sound weird or what?
Anybody have the same feeling write me a note (Jamfer@live.com ) Bye. , Jim M.
Recently diagnosed with Hep C. Had MANY blood test done and redone. My doctor talked to a GI doctor and GI doctor said I was good candidate for interferon and ribovarin. I am going in a week to start medicine (pills and shots) No biopsy ultrasound etc was done on my liver. Doctor told me that Hep C is caused by tattoos, which I have but was very careful using sterile equipment. IV drug use, that is a no, piercings yes but done about 35 years ago, etc. I do not know anything about how my liver is just have Hep. Doctor poked and prodded on liver and he said he did not feel that it was enlarged and it did not hurt when he did it. I guess I am genotype 3, which is to be good for the meds I guess. Just awfully worried about side effects of drugs, and possible immediate reaction of death from drugs. Doctor told my mother that she might have hole in her heart so they did an angiogram on her. WELL there was nothing wrong with her heart except some VERY miniscule thing. BUT the kicker is that she died from the red dye that the stuff for angiogram was made of. I am going to start this but hope and pray to God, supreme being, mother earth , etc that this will not happen to me and the meds work. Just conflicting times, 24 weeks or 48 weeks. doc says one, the other is amount of meds are for 48. Just quite unsure of this now. If the reason for having Hep C is the ear piercing that was like 35 to 40 years ago.
Diagnosed in 1997 told I would be candidate for transplant within 10 years. Did a year of the old interferon shots (3 per wk) and became undetectable. New ribavirin and interferon double therapy in early part of 2000s. Same result.
Genotype 1 - how fortunate.
Anyway have treated all along with milk thistle and other antioxidants and made sure my physical condition was always excellent. Doc calls me an ”enigma” and can't really figure out why I'm the healthiest sick person in town.
Enter this great new 12 wk CURE! No longer healthy, in fact, went to work every day to try to keep mind busy; hate eating fat grams; so sick the whole time I really didn't know I was in the world. Then came the big rash! Made the whole 12 wks but found out that at 4 wks was still detectable; at 12 wks not. They wanted me to continue the other two until end of year. However #1 I don't think I received the attention I should have. They checked blood every 4 wks. I was getting really weak and disoriented for a long time and just thought it was that awful fat chewing stuff. Well hemoglobin went below 6 and they just said to come by for paperwork to take to the hospital where they would do type and crossmatch then go back next day for transfusion. I said I couldn't do all that - too weak - but would go pick up papers in am and not leave hospital without my transfusion, which turned out to be 2 units. I asked the nurse who typed and cross matched how low my hemo could have gone before I expired, to which she replied “honey, you're there”.
Next trip to doc, I asked the nurses which drug was eating all my red cells and they immediately responded the ribavirin. So why did they not watch me closer since they knew that. So anyway, two weeks ago I called complaining of being very weak again and hard to swallow throat so dry and hurts some. They responded that I should call family doc. Did so but could not be seen that day. I literally cried, begged, said I'd wait however long to see any one of the doctors in the practice. Guess what I was told? “every doctor here is totally booked with physicals and sick people but we can get you in tomorrow morning”.
Was so angry and disappointed it took all I had to go there the next morning. Doctor gave me amoxicillin just in case there really was a throat problem. I had to request that she take blood because I felt so weak. She had someone come in and draw blood, told me she would be gone until monday and would call me then with the results. Less than 4 hours later I get a call telling me my hemoglobin is dangerously low; paperwork already on its way to hep c doc and hospital and I was to be at hospital for transfusion first thing in am. but they were too booked with physicals and sick people to see me a few hours earlier.
Upshot of all this? I am no longer taking any of that poison and go to doc in am for visit. Already told nurses the other day that I was stopping the torture and that part of the reason was that I felt I did not get the proper attention and should not have needed those transfusions or at least been told ahead of time that the ribavirin would cause such trouble. Now, all of a sudden, they are very attentive. They've already left a message that I can call to find out my labs results. Thanx but I'll just wait til tomorrow at this point. Don't know what reactions I will be faced with tomorrow but I will say this (which I also said to the nurses) while on the ”triple therapy” I begged God to please take me away and stop the pain and suffering. He said “not now, it's not time yet” so after much thought and prayer and rivers of tears, I said to Him “ok ... if I have to stay here, I will stop the poison and you can just take care of all this. It is now officially your problem and that's that”.
So I am going back to training to get physically fit again; researching a couple of shaklee products that show promise; and return my attitude back to what it was before this newfound CURE came out. The rest of my life is beginning and I will no longer fret over this that I cannot really control and will pray my serenity prayer more often and earnestly and just stay away from it. I have officially taken my leap of faith and am no longer willing to be burdened with the outcome. I have lived with this crap for 15 years now and tried to cure it 3 times - no more poison, just good stuff. I do hope some folks will truly be cured but don't really think the cures last very much longer than 6 months to a year. This is a real beast to get rid of. I've decided that I'll fight it with good health and diet and attitude and supplements and probably do much better than those who still want to believe that the poison will cure.
Have also found out that it'll likely take over 6 months to get this ribavirin out of my system. More quality time wasted! I kind of cannot believe I was fool enough to believe this would really work and sacrifice quality time with my family (esp. precious 6 yr old grandson). Would rather have a few years to play with him and help him grow than to poison myself and not be able to enjoy his childhood and development. I'm almost 63 and have already lived a lot longer than predicted. I believe due to faith, staying in good physical shape, and taking supplements that help drive out the bad cells so the good ones can thrive and multiply. Besides, there is only one person who knows how long I'll be on earth and all he's telling me is keep the faith and live as well as you can and I'll let you know when it's time to go home. For now that's it. Not planning to chase any more cures ... just rainbows!
To those of you going through treatment: you can do this. Yes, it is hard. Yes, it can be painful. Yes, it is a miserable time and for 50% of you the therapy may not work. That said, the therapy is worth starting and completing. My history: Blood products in 1981 during a C-section gave me hepatitis C. By the time I knew it was 20 years later. My liver according to biopsy was one stage above cirrhosis. Geno type 1, I began treatment in 2001/02. I read information and pushed ahead expecting the very worst. I decided beforehand that I would own the illness and the treatment instead of the other way around.
When I was exhausted and couldn't breathe I rested briefly and made myself work even harder. I ate well, lost weight anyways, was in constant pain BUT continued to push forward. The worst I felt the harder I pushed myself. I took a multi vitamin every day. I played with my grandchildren and I crawled up the stairs to our second floor when I felt too weak to walk. I did this for 48 months. What I did differently was to mentally prepare for the worst. I was prepared to work through the side effects and did so. This was not easy. I did not expect it to be. I expected to poison my body and hope for a cure.
For me there was a cure. I am 9 years virus free. Not everyone was or is so lucky. Yes, it is tough. My alternative was to watch my life deteriorate into cirrhosis and possible liver failure. You can do this therapy. Be prepared for the worst. Walk every day. Get up and out of bed. Shower. You must. That is what will get you through. Only you can be the master of your illness.
The hideous side effects left within three or four months and when the fog lifted it was great. My liver, once huge, is now almost normal in size. Scar free areas of my liver are repaired. I would do this again no matter the pain.
As a matter of fact, I am about to take another journey to combat a very rare Mucinous Neoplasm of the Appendix. Wish me luck!
I was diagnosed with hepatitis C back in the early 80's. I made a mistake in my teens and shared a needle for a short time and that is how I contacted it. Was not a heavy drug user, it was just back in a day when most teens were doing drugs - speed. After only doing it like 3 times, I was done and quit drugs forever. The doctor gave me antibiotics back then and told me to rest up for a month and that I would never be able to give blood.
For the next 40 years I lived a very healthy vegan lifestyle. No red meats, skinless chicken, juicing really has helped. No major health issues, exercised, walked regularly, drank only an occasional glass of red wine.
This year 2012, I was diagnosed with a slightly enlarged liver, normal enzyme levels.
With the exception of slightly elevated cholesterol which is genetic, I am healthy.
My doctor is taking several tests before deciding on what treatment I should take.
I do have a question, can you die from the side effects of these drugs. I am a little thing, 5'2” 116 lbs and do not handle drugs well. Please advise!
I have genotype 1a stage 3 focal liver fibrosis. I'm 60 years old, have been treated twice. Lost virus both times relapsed both times. I'm black. I have had this virus for nearly 45years. Have had two biopsy's 7 years apart, no change in disease state, it didn't progress between biopsy's maybe the treatments help some. I was an IV drug user in the 60's and 70's. Don't drug or drink now. God has been good to me I'm a hep-c survivor from a small town in Georgia. The doctor's here know very little about this disease. My brother died from liver failure he had hep-c. I been studying and reading all I can for 10 years now. I'M not afraid as I was. The sad thing I worked on my job for 30 years, it ended up in Mexico. Now I have no job, no insurance and there are better drugs coming off the pipeline to benefit 1A'S GENOTYPES!! My pathologists said in 2009 after my last biopsy I had from 7 to 10 years to cirrhosis. My Dr. James Spivey at Emory University Atlanta, Georgia. I DO take milk thistle, Dandelion root, saw palmetto. Other than muscle aches here and there I'm fine. I RUN, exercise, work out. But I'm well aware of how this disease can change. I pray to god that well all can live a good quality life. It would be a blessing if I could get the opportunity to try some of the new drugs before cirrhosis set in. Good Luck my friends. This disease is not a death sentence.
My name is Melissa and I am 32 years old. I found out I was positive for hep c in 2006 when I was pregnant with my daughter. I had been an intravenous drug user a few years prior so it didn't shock me. My viral load was low so I didn't seek treatment. Two years later while pregnant with my son, my viral loads elevated. I still didn't seek treatment - I think I was in denial.
Anyway, last year, I decided to get tested and see what was happening. I had matured and started taking better care of my body. I was positive and had a viral load of 8,000,000. That was so scary to me as I have a five and three year old!
I started treatment the first week of February, 2012. My cousin had been on interferon and ribavivan and had pretty bad side effects. Her viral load had only been 1,000,000, so I was so concerned. I'll tell you what though. I prepared myself mentally and physically before I started treatment.
First, my doctors and drug company have been wonderful!!! They are just decent people and they have helped me understand my disease. Secondly, I started exercising, taking vitamins-including milk thistle-weeks before I started, and had support from my family and friends. I told myself to go in positive and just stay that say.
The first week was awful. I never felt so outside of myself. I got headaches, nausea, tired, vision problems, and depressed. Week two eased up, but still felt sick first few days, got a rash, and depressed. Week three however, really eased up. Only one or two days of not feeling so great but not nearly severe as the first two weeks. I got blood work done week two (should of been week four but doctor ordered it the wrong week) boy was I happy she did because the virus, after two weeks was undetectable in my blood!!! How awesome is that? Knowing that it was gone gave me strength to keep going! I went from 8 million to nothing so quickly. As the weeks go on it is easier and easier. Some weeks I am just fine, others I may get a headache or a little moody. Often I get tired but only after a few hours of really working hard. There have been so many days I wanted to give up and quit but I just keep thinking that if I don't do it now, I never will. My liver is functioning normally. I'm feeling strong and better as the weeks go on. I had type 3 and I'm on my tenth week now.
To anyone who is scared or going thru it with the meds...just stay strong. Stay positive because your mind is so powerful!!! Know that there are people out there who DO overcome this disease. Get informed, do research, prepare yourself and your family for what will happen. You will never regret it. If God gives you the opportunity to make yourself well, jump in and hold on. It's a bumpy road, but you can do it!!!
million to zero in under three weeks
I am 23, I dont know how long I have had hep c or from where I got it. I found out I had it when I was giving blood at work. Well,I waited about a year before actually doing anything about it.
I just started the treatment and am on my second week, so far i feel okay I have a good attitude b/c my doctor said my biopsy showed my liver looks great to start with (even though Ii drank a 12 pack a day for 3 years, but I haven't drank since i started treatment). I will know in 3 weeks if i still have the virus or if I need to continue the treatment, I will update my post when I find out.
I was having really bad heart burn on and off for about a year. Then the spider veins on my arms and chest slowly got worse and worse. I was drinking what Ii thought was a normal amount for a work hard, play hard, mind set. No spirits, just beer and the odd glass of red wine with food. So I went to that place which I have avoided most of my life the doctors. OK we will send you for some blood tests. Then after a week I received a letter to return to the doctors. BANG you have hep c geno type 3. WHAT WHERE WHO HOW WHEN. The questions from the doc were searching deep in to my soul. What is hep c? Did I catch it from a old flame? On holiday? Then he mentioned the words drug abuse. OK now let’s go back as far as I can remember as I am a 49yr old male who now is scared to take an aspirin. OK yeah I did take a little something in my late 20s. Surely not an old five pound note with someone else’s blood on which was used to hoover some speed up my nostril, was to blame WHY didn’t I see this . The rest as they say is history .
4 weeks into peg/rib, side effects wide awake most nights at first, vision erratic, bubbly butterflies in the chest, spaced out in random places, without warning, brain fog, name it what you want. Sometimes you just hold on. These have now started to vanish one by one and I feel like a million dollars/pounds. Got to see my liver doc next week, as I just had a 4wk test. I’m feeling positive, but I know what this virus is like. It has a little evil mind of its own. So I’m not counting any chickens either. Great web site with some very brave people telling their own battle with this nasty virus. Will drop on here again hopefully with good news . Keep fighting all of you.
Paul
My Story: James D
I am 61 y/o and was diagnosed with Hepatitis C type 1(b) in March 2001. I have never had a blood transfusion or tattoos. I managed to get out of Vietnam so no exposure to military immunization injection guns. It is possible I contracted this from exposure to blood products or improperly sterilized medical equipment as I did have several surgeries prior to 2001. However, I likely got it at age 20 (1970) after a maybe 10 times of IV drug use. This was back in the day before there was knowledge of this virus or the hazards of sharing needles - but at this point I guess it really doesn't matter.
I was initially asked to get a biopsy (Nov. 2001) after they discovered elevated liver enzymes. The liver biopsy indicated I was already at stage 4 (cirrhosis). My flaky GI doc went out of town on vacation for several weeks and never had anyone get back with me. I got impatient after two weeks of anticipation and decided to ask for a copy of the results. They later informed me that they had not gotten back as they thought I was changing doctors - yeah right! So I went several years not really understanding that I had cirrhosis or it's implications. The SOC at the time (pegylated interferon and ribavirn) offered a low outcome of success for me, and the 48 weeks seemed daunting. I had heard of the new protease inhibitor drugs being discovered and tested at the time. I thought I would try to hold out until FDA approval, which I had read was generally a 6 - 7 years process. It took 10 years for Incivek to finally get approved. My symptoms were initially very mild. I had my viral load - hepatic panel tested 2 - 3 times per year. I had a CT scan or MRI of my liver done every year. Never any sign of cancerous tumors, only mild scarring. My viral load ranged from 800,000 to 1.5 million over this 10 - year period. I quit smoking, stopped drinking, ate very healthy, did Yoga, bicycling, meditation, tried to keep physically active. Took various herbs, milk thistle and many others. I constantly researched the Web for new information on how to slow the progression, and even tried a few whack snake oil remedies (colloidal silver and MMS). My condition was slowly getting worse. I started having insomnia and itching, which could last a week or a month and would subside and return. I tried to figure out if it might be diet related but this virus is so unpredictable I could never fully understand why I felt great one day and crappy the next. I had a few scares from bad reactions to a few different medications during the last 5 years. I lost weight and went without sleep for days on several times. Finally the only thing that would conk me out was a few tokes of Mary Jane. It helped calm my mind and stimulate my appetite. I started to get a few lipoid fatty deposits in various places in my body. I was having more difficulty eating complex proteins. If I drank milk or ate cheese I would get all this mucous and be spitting and hocking the stuff up. In fact, I stopped eating most dairy foods, which seem to help some. My blood clotting ability was worsening as my red blood cells and platelets counts were decreasing. I started getting cramping in my fingers and toes. My muscles and joints began to ache more and more. I was fatigued a lot. All the typical stuff that so many of us with this dreaded virus experience. I kept waiting and waiting and continued to work hard at keeping my health and strength up.
Finally, back in May 2011 Incivek and Victrellis were approved. I was pumped and excited and ready to do battle with the dragon, no more time to waste or hesitate. I had not been able to work for several years due to insomnia, fatigue, and also a low back injury. I was able to get SSDI after years of no health care due to being self - employed and having a pre - existing condition. I was told by various insurers that they would give me coverage for only $1000 a month, but it would not cover anything related to my Hepatitis C for the first year - catch 22 - gotcha.
I knew I was fortunate to have won my SSDI claim and to no longer need to worry how I would pay for the $50,000 treatment and I would not need to work during treatment.
I had a Hepatologist with all the accolades and credentials. I had a colonoscopy and an endoscopy to test for esophageal verices, a CT scan, blood test and all the prepatory stuff. Everything looked good. The week before I started triple therapy I went on a 25 - mile bike ride. I was feeling pretty good all things considered. Lets Do It! I grabbed my lance, my horse, and put on my metal armor. Attack!!! Bonzai!!!! Attack the Dragon. I will be Victorious!!! Yes, and how ironic this is the Year of the Dragon. It all seemed so frickin good and with my positive attitude and fortitude I planned to prevail. My doctor was also impressed with how well compensated I was - all systems go. For some strange reason, just before I started treatment they did a hepatic panel and found that my VL was only 300,000. It had previously ranged from 850,000 to 1.5 million during the last 10 years. Wow, why the drop suddenly Doc? Just before starting treatment my VL was now 3 times lower than it had been? Of course, the doctor had no answer for this but chimed, "that's great because now there is that much less of the virus to eliminate from your system. Okay coolio.
I had read all the info on side effects, diet, the importance of taking the medications religiously as prescribed - and so on. I was prepped and informed, and knew what to expect, or so I thought.
Started triple therapy with Incivek on July 25, 2011.
Week 4 - no sign of the virus UD. Yeah!!!!! During these first four weeks this great new triple treatment kicked my ass and literally burned my ass in the land down under. Yes I used all the suggested stuff (analpram) etc., to keep this under control and I weathered through the worst of it. I had raging fevers of 101 - 103 all day long for several days and then a few days of no fever and feeling better. No way to predict from one day to the next. I had numerous nights of insomnia and itching. Fortunately no sever skin rash. I was constantly dehydrated despite drinking lots of water as told, making sure I had electrolytes in me from all the urination. I had mild thrush. I felt like I was being nuked from the inside out like a potato in a microwave. My skin felt like it was peeling, especially around my ears. I had terrible body aches. I went for a blood test around week 4 and an inexperienced phlebotomist punctured my vein, caused a bleed (hematoma) and now my right dominate hand and forearm were extremely swollen and all of my fingers curled under. I could not straighten them out. That only added to my misery. I live alone and was blessed to have family and friends coming over periodically with meals and to check on me and to help with grocery shopping. But now I could not open a jar, use the mouse on my keyboard, or even pinch my thumb and forefinger together to start my car or to grip the key to my house. I called the doctors and they were like "yeah that happens sometimes and you just need to apply moist heat and then ice it several times a day and give it 6 weeks". It took over eight weeks to finally straighten out all the fingers of my hand.
Week 8 - still UD. During this time period I continued to feel worse. Now I had some kind of bronchial chest congestion which my doctor later told me was yet another side effect of this treatment (thanks for letting me know now). I started to have severe anemia, which really scared me. I would lie in bed for 30 minutes just contemplating the act of getting up out of bed. My body hurt so badly. I was gasping for breath a lot. The doctor had mentioned procrit as a possible solution but the sides to this seemed scary as well. Other patients of his were requiring hospitalization for anemia. I did everything I could, wheatgrass, folic acid, B - 12, vitamins, probiotics, fresh juices, almond butters, forced myself to exercise despite the pain, and tried to be vigilante about eating the right amount of fat and protein when taking the meds. I felt like the old man down the road. My hair was thinning and I looked like hell warmed over. I had a few emotional breakdowns just from the pain and misery of it all. I wasn't depressed but I was in distress. I soldiered on. I was having low thyroid issues. My hands and feet were constantly cold and even my knee caps were freezing. I went and had a few massages, anything to try to keep the circulation moving and to deal with the cold in my body during the long gray winter here. There were weeks that just went by. Sun come up. Sun go down, huh, what day is it. This is not my beautiful life.
Week 12 - still UD - Halleluiah, no more Incivek. I had thought this triple therapy would be easier than the previous SOC (standard of care) - the only thing I think that may have been easier, based on accounts I have read by others that did Pegylated interferon and ribavirin for 48 weeks. The Doc and his staff really minimized the side effects from the start of treatment and in my opinion the whole thing seemed like an experiment for them as well. It seemed they were guessing at things and didn't have answers for some of my questions and symptoms. My memory and ability to concentrate were now toast. I could not focus to read a book, or a magazine without spacing out. Food tasted awful and metallic. Simple information that I have known escaped me. I was easily confused. Oh well, they tell me, it will come back just like my hair. Okay, great press on. The doctor is very encouraged. It looks like you have a very good chance of doing only 24 weeks he told me since I had responded so positively. Yep, no virus detected at the end of Incivek and now, just 12 more weeks of Interferon and Ribavirin. Keep on rollin', keep on keepin' on. Bite the bullet, suck it up, and don't stop now. Okay, I told my inner Sheriff, but it is easier said than done. All these other people are hanging tough I would tell myself, some of whom have gone through 48 weeks of the old treatment regime and failed - I am lucky, don't be a whiner, things could be worse. I continued to shed skin like a snake and itch at night around my ears and temporal lobes in particular.
Week 24 - My doctor had CBC's done at week 16 and 20 but I was told there would be no viral load/hepatic panel done until the end of week 24. I was barely hanging in there with anemia. I'm thinking, "I don't want get hospitalized, especially at that same crappy hospital where my Mother acquired a staph infection and died just 9 months earlier as a result of their incompetence. Who is going to take care of my animals, etc. Okay calm down, breath, relax, have faith hope and trust. Everything is going to be all right.
Drum roll please. I drive to the doctors office full of hope, anticipation, and anxiety.
My doctor acts surprised when he reviews my lab results. He informs me that unfortunately during these last 12 weeks while taking just the Peg & Riba that the virus has returned, and yes, I have had a viral breakthrough. I am in shock. You're done. Yeah, like well done with a fork in it. The doctor tells me, don't be hard on yourself, you did the best you could, etc. Perhaps in a year or two there will be an all - oral drug, like a polymerase inhibitor, but you can never do the protease inhibitor treatment again. So sorry, it's been nice knowing you. We'll follow up with you in a few months. I felt like a dropped nuked potato. The doc says, "if I hear of a clinical trial that would be appropriate for you I will let you know, but they never offer clinical trials here in Spokane so you will likely need to go to Seattle. Oh thanks doctor, you are so helpful. Yeah, just like you said, "I might have mild flu - like symptoms and a few other tolerable conditions - have you ever taken these medications Doc?
So yes, I finished this fantastic new triple treatment in early January. I now feel worse. I am gradually detoxing this stuff from my system. My liver is hurting more often now. I get indigestion more frequently. My body seems to be doing strange things. My digestion seems all confused. Food and drink just go right through me, my body is making weird and loud digestive sounds after I eat. I have flatulence a lot and it is socially awkward at times. My vision seems a bit worse. I went to the Dentist and I suddenly now have all these cavities. I have some soreness and swelling in both breast. I am told I have gynecomastia, likely due to cirrhosis and using marijuana. This soreness around both breasts started about a week after I began taking thyroid medication (week 20) of my treatment. I haven't smoked MJ for several months and stopped the thyroid medications as well, but the soreness is still there. This is embarrassing to talk about.
So now that I am done with this miracle treatment that costs $50,000 I still have Hep C, and perhaps a worse strain, who knows, maybe some new wild mutant form. My memory and concentration is gradually improving. I now have thin wispy hair. I suffered like hell and at times felt like I was going to die. I have fewer teeth in my mouth as several needed to be extracted, and I have swollen breasts. Plus, I have flatulence frequently. Hey, want to go on a date? Yes, I am being cynical and joking as a defense mechanism. I am trying to laugh at the absurdity of it all. I am of course extremely disappointed, worried, and angry.
All I can say is "Incivek" I am not impressed. This terrific triple treatment is not what it is cracked up to be, at least not for me. I don't mean or want to be discouraging to anyone. I know how I used to read various posts on this site during my treatment and the last thing I wanted to hear about was someone becoming "Detected". I know the difficulty of this treatment and how tough it is to keep going. This is my story and my experience. I would strongly suggest to anyone considering this treatment to at the very least try not to do it alone. Making meals, taking care of a house, bills, grocery shopping, keeping track of medications, etc. all become increasingly difficult to keep up with. I really hope and want everyone to get healed and cured. BUT this stuff does have a down side and maybe that needs to be talked about more. These are strong and very unpredictable medicines.
Love Light and Blessings to All of You - - - - - James D
I`m in my 9th month of interferon/ribo tx. I had a real bad 1st 6 months but i`m not as sick now. I did lose about 2/3 of my hair in the 6-7 months. Thank God i have some left!. For those who suffer from a sore mouth and gums i found an excellent remedy, warm salt water!. It has been like a miracle for me. I swish about 4-5 times a day and my mouth barely bothers me anymore. To those just starting tx, find a way to stay busy even when you don`t have any energy. I found out the hard way to not just sit around think. (thinking should be done in moderation!) It gets better, I promise. God bless!
I think I caught Hep C in 1989, when I was around 27 yrs, from drug abuse.
I ended up having a stillborn baby, when I was 9 months pregnant, and experienced lots of itching in my upper arms. I tested positive for it, the next yr, when they came out with the tset for it.
I continued to abuse drugs for 8 yrs after my diagnosis, but no alcohol. I then cleaned up my act, when I turned 38 yrs, and have been clean and sober for the last 13 yrs.
When I was 47 yrs, I started to feel like crap, on the hot days. I would get heat-stroke immediately, and could smell an ammonia smell, on my urine. I could tell my PH balance was off, in the heat, and wondered if I might even be going diabetic. I ate more healthy food, kept exercising, etc.
Last year, I decided to do one of the Research Studies, but was disqualified, becuz my ALT was 500, and my AST was around 400...that's RLY high! Before then they had been elevated, but only around 160, etc.
I then took a FibroSure test: a panel of blood tests, and it showed I had low platelettes. I was told by the Research Study nurse, that I had F4 cirrhosis! I was shocked, and horribly depressed.
I found a clinic which accepted my medical insurance, and finally had a biopsy, which I should've done, earlier! It showed that I only had fibrosis, whichis called "F4"...I had hope again!
I am now on the Triple Therapy treatment, which was, for me, a four week lead in, with Interferon(peg) and Ribaviron...which I tolerated well. But then the protease inhibitor was started: Boceprivir (Victrilis)...and as soon as I took the four hughe capsules, a terrible BITTER taste was in my mouth, on my tongue, gums, and now, my teeth taste like that.
In fact, my one tooth smelled so bad (like a dead animal, worse than poop) that my Hep Doctor just prescribed my Pennicillin VK on tuesday...that was three days ago, and I still have the decay taste, so I think I might need a different antibiotic....sigh.
I get this terrible feeling that I may lose a few teeth, during this tx, they were already getting bad, due to my hep c liver, I think.
Oh, by the way, when they tested my blood, after 2 weeks of the Interferon/Riba...my liver enzymes (ALT & AST) were back down to normal, yay! I havent gotten the results of my 4 week blood test, although at two weeks, my white blood cell count and red blood cell count, had already gone below normal, just barely.
All in all, I feel pretty good! I am still functioning,, from 7 am, to around 7 pm, but then I do get tired. I am being very anal retentive about taking my meds exactly every 8 hrs!!
My doctor is having tons of success, with peiople on triple therapy...I wuill keep you posted, with my next blood tests, and I'm hoping have this virus undetectable, by 8 weeks. This is the first time I have ever tried being treated, by the way.
If I clear at 8 weeks, I will only have to do triple therapy for half a year...but if I take longer, then a whole 48 weeks, which will surely render meoneof the toothless crowd, I feel~
Hip replacement. I had 3 blood transfusions and had no concern @ the time that was 1999. I have had other operations since and donated my own blood. It is 2012 and I have been on peg interferon and riboviran and today started victerlis. I have had some crying spells that do not last too long - blue days and sometimes after the injection I am quite tired and sleep alot. Terrible headaches. I had alot of problems with nausea but since I started treatment my stomach does not feel so bad. I also drink alot of water which helps. I would like to hear from other persons going thru treatment. I think it would help others and myself. My email is carladack@ymail.com. Thanks.
Hey... part of me is Hep C genotype 3 and I've just reached stage 3 Bridging Fibrosis on my liver. The rest of me is Susan and I'm a hundred per cent positive about this shit because I think negativity feeds the problem.
Yesterday was jab 9 in the 46 week cycle. Interferon makes you feel like shit, it makes you weep, it makes you crawl. And sometimes just want to die especially with anemia & depression. But when your bloods come back and the viral load at 4 weeks is RVR (rapid viral response) then it makes you whoop with glee. Mine just did that.
My positives......HEP C & Liver Fibrosis means my lifestyle has changed drastically. Food, sleep and I'm feeling better. My skin tone improves almost daily, no more multiple trips to the loo. For all the pounding I'm taking from the interferon I can feel the good its doing.
It looks like the HEP C is on its way out but the liver damage I've got that for the rest of my life. Which I personally have decided is going to be a long time in the future.
You need to work with this shit not fight it. Feed the body good fuel, the mind positive energy, seek out one beautiful thing every day (you'll see many once you look)........
I am 51 now i have hep c and went on a treat interferon/ribavirin everything seemed to going well till the last month the dr. calls me to stop the med. he would call me to come in to explan will that night I ended up in the emergency room with a heart attack. The doctor there said I will call your doctor to tell him what happen. He called while still in my room so I heard he never called me or came to see me it has been three years since this happen not a word from him.I have had three heart attacks since then so be careful ask questions good luck all
In 2009 my liver began to fail I was walking into my house and passed out. I was taken to our local hospital and was taken to a larger hospital via helicopter being told they didn't know what was wrong. Upon a very long stay in ICU I was diagnosed with Hepatitis C genome type 1.
It took me several weeks to figure out how I could have contracted it. Realizing that about a year before that I had responded to a one vehicle accident. I was a Paramedic. And there were several what some would call illegal aliens that had been critically injured and I had apparently become infected by one of them. It was the only time I can remember getting any large amount of blood on me.
I then began treatment for it with interpheron-alpha-2a and antivirus for 10months. I became so weak and ill I could no longer work and became very depressed. I am now feeling better but no longer have the stamina to do the job I loved so much. I am currently working on getting stronger hoping that I can some day rejoin the heroes I worked side by side with.
Hi
I am disable veteran, I was diagnose with hep C long time ago> I took all the treatmet, from Interferon and Pegasus, all over three times. My hep c is undetectable in blodd work. Does this means is gone? I am cure? Because I feel some days so tired that I can't get up from bed.
Anyone can help?
John
I found out over 20 years ago that I had hepatitis C though the donation of blood. My doctor at that time said there was nothing in the line of treatments. Well, I ran into a girl at my job over 10 years ago who had just gone through treatments. Long story short, She hooked me up with a great Dr. My genotype was 1a I can't remember the count, but he said if he had to stage me, it would be just at stage 1. I did 48 weeks of interferon (three shots per week) and ribavirin (5 pills per day). Took shot and pills at exact same time every time. Never varied and never skipped either of them, ever. It was very hard on me, but I did it. I have been cleared for 11 years. I have always been very athletic, ie weight training, running, biking, etc. Still do it. I am female and 54 and going strong. Get checked every year and always clear.
I found out in 1997 that i am infected with Hep c 1b.
My viral count has stayed in the 200.000 and ast/alt were only slightly elevated. my grade/stage were both at 2. So i was a relapser from my last journey with Int/riba. I dose reduced due to my enemia. This time my journey will be 36 weeks, with Victrelis,Interferon and Ribaviran. I am now at 29 weeks. Looking forward for this to be over. My hemoglobin is at 9.2 and holding for now. I have been taking half of an ambien to sleep. 1,000mg of riba daily , interferon injection once weekly 0.4
I am having shortness of breath and trying to take it easy. My fuse is very short these days and it does not take much to set me off.
i was diagnosed in 2000 and in spring 2012 will begin a 24week treatment.
i decided that i will blog about the process as things happen as much as i can.
read, comment, share.
www.fragilebirdgirl.wordpress.com
I got hep c as an iv drug user when I was about 19. I got clean and got tested right away and started treatment a few months later. I was on interferon and rebetron a (i think it was called). 3 shots a week and 5 pills a day for over a year. Luckily I had hardly any side effects apart from the occasional headache. I also completely quit drinking and drugs and started a raw food diet. The treatment was successful and I've continued to get tested over the past 10 years and I only show antibodies but not the active virus (from what I understand). It still freaks me out though. One of the hardest things about having it is dating. I was so young when I got it that out of fear of infecting anyone, i became pretty much celibate. I dont know how to tell someone that I have it. When I do, sometimes it goes well and other times I get dumped. But also since the virus isnt active, do I need to tell my potential partner that I had it? These are all tough questions for me. I'm 30 now and I want to settle down and meet a nice guy and have some kids, but this issue is really hanging over my head. But otherwise I'm happy and healthy and lead a completely normal life. I have more energy than most people and most of the time I'm absolutely fine, and the times I'm not, I dont think I can attribute to the hep c. My advice is to get treatment immediately because from what I've heard, the sooner the better. Also, eat healthier, exercise and dont touch alcohol or pills. I dont even take tylenol for a headache. Good luck to anyone who has it.
I was diagnosed with hep c about six years ago.I got it,I believe,through sharing needles and have battled the bottle all my life.I went through interferon treatment for a year,unsuccessfully,but it brought my count down from 30000000 to 300.(not sure exactly what this means,but it is a lot better.I have finally won the battle with the demon alcohol,which was a really bad addiction for me.My biggest worry was did i pass on the disease to my gf and daughter,but after they got tested negative it was a real relief for me.I am on anti-depressants now(the depression got really bad-I could not function at all)and would appeal to anyone who feels low all the time but cant pinpoint it to see their doctor.They really have given me a new lease on life.The fatigue hits in a bit,I usually have a nap once or twice a day.Thanks for the oppurtunity to share my experience,and if anyone wants to correspond have included my e-mail address. Ian-Ireland
I was first diagnosed with hep c back in 1993. A biopsy was taken and my liver was in permenant fibrotic bridging. I went through my first bout with interferon and it was a verry miserable 6 months. I never did stop working until 1998 when I went down hard. I was so sick that I had to move back in with my elderly parents. Everyone ran because they were afraid I was contageous. The doctors told me my liver was crashing and that they wanted to get me better so they could start dialating my blood. All I saw was the darkness around me. But somewhere in the back of my head a loud voice shouted for me to get moving. So I started eating only fresh veggies and some stri-fry. After about a year of eating this way and walking everyday, I realized that I didn't feel sick, just run down. At 55 I can understand an afternoon nap. So here I am, viral load is above 2 million and my enzymes are above 200, yet few know that I have HCV. Like any system that gets overloaded, other organs have started the inevitable crash. I found that the liver pain I had been experiencing was in actuality early stage pancreatitis. This makes sense as diabetes is much higher with HCBV patients than in the general population. Now here is the most interesting thing. I looked at the data in The China Study and have drastically altered my diet. So far the results are promising as my diabetes is under control by diet rather than the slew of pills and insulin injections I was on. Also my blood pressure has dropped and I am off most of my medication. I am not a fanatic, but if I feel this good after 3 weeks, I can only imagine. I have found that I have a choice, I choose life to the fullest.
Everyone with Hep C will go through different stages with this disease. Since we are all different, have different types of Hep and are at different stages, my best advise is to cherish life, have a positive attitude and don't give up. If you have started the combo treatment DRINK AS MUCH WATER AS YOU CAN. Seriously, it has helped me from getting rashes and itching since the water helps the drugs flush out of your system. I'm am at Stage 3 (out of 4 stages), take my meds religiously and will not stop them. No matter how sick you become it's not worth dying from liver disease. You can get your combo meds free of charge if you go to the manufacturer of the drugs. They send you an application, fill it out and send back to them. They will get the prescription from your Dr. I received my med's in less than a week. I'm writing from the USA. Hang in there! Take care, MN
I found out in 2009 that I have Hep C genotype 1. This all stirs from a blood transfusion when I had cancer as kid back in the 80's. I was in the hospital to have surgery back in 2008 when they did the blood workup and found the my ALT and AST were severely high. Then they sent me to a specialist. Found out my viral load was 24 million. My Dr. started me in march of 2009 on the Interferon and the Ribovarin for 48 weeks. I went undetectable after the first 6 weeks of treatment. Stayed that way the whole 48 weeks which was good. Didn't really have any side affects except the fact that my doctors let my WBC's and Hemogloblin get severely low which made me so sick. UGH! Now Jan of 2012 I found out that my viral load is 4 Million. And that I have esophageal varices and Mallory-Weiss Tear all caused from some kind of problem from my liver. ugh! Going up to Shands to get started on the new clinical trial...within the month. I've been told that this round is only 24 weeks long and includes the same 2 drugs as before (interferon and the ribovarin) plus Incivek. Incivek only for the first 3 months of treatment if I go undetectable for those 3 months and stay that way. If I don't then I have to stay on all 3 drugs for 12 months. Has anyone gone through this new treatment?? I am wondering what the success rate is. I want to do this ASAP and hope that it stays undetectable forever!!
Hello,
My name is Justin and i was just recently diagnosed with active hep C. I have no insurance so I wouldnt have even went in if it wasnt for my yellowing eyes and skin. i was also very tired and couldnt stay awake and i'd noticed mt urine was the color of whiskey. I am currently waiting to get in for a liver biopsy to see how bad it looks and what treatment i will be on. I am actually a lil scared and just hope i can get through this. Some dats i feel a lil better. Normally i get worse bour halfway through the day. And the yellowing has lightened up a lot from what it was. Im hoping this means its gone but from what I have read it seems unlikely. If ne1 has any advice or experienced these symptoms exsp. jaundice please let me knw what you went through. i dont knw what to xpect and i'm only 25. i wish u all luck and willpower.
Sincerely JUD
Starting treatment tomorrow and scared
I am a 42 year old woman with 4 kids. I was in an auto accident when I was 16 and I had multiple blood transfusions in the hospital. I experienced an unexplained fever, night sweats and nausea for weeks after I was released from the hospital. I was misdiagnosed with anorexia and sent for counseling. Looking back, we now now that was a classic Hep C sero-conversion illness.
I found out I had Hep C from a cord blood registry 17 years later, after I had my second child. I went ahead and had a liver biopsy and found I had very little, if any, scarring. My genotype is 1a and my doctor said since I had been largely asymptomatic all that time, the cure was probably worse than the disease.
I have not had any of my kids tested. I understand there is a small chance (about 5%) that I may have passed the disease to them during the birth process. I was advised not to have any of them tested now because it will just make them hard to insure and they wouldn't be treated as children even if they test positive. I make sure not to share tweezers, razors, toothbrushes or anything that could possibly transmit this disease. I have been open with my kids that I have a blood borne disease so that they understand.
I am upfront about my Hep C status with any medical professional or dental professional who comes into contact with me. I have only found one dental practice that made me feel unwelcome because of my disease. Other health care professionals are appreciative of my telling them and don't make me feel uncomfortable in the slightest. There are so many people out there with Hep C who are not drug addicts. Largely, there is no stigma attached to Hep C.
I'm still waiting for better odds before I try the therapy. I limit myself to drinking only a couple times a year on special occasions and I try to eat healthy and exercise regularly. I find that I sometimes go through periods of low energy but who's to say what's from the Hep C and what's from being a working mom and wife. Life is good and I have faith that a cure that will work for me is on the horizon.
I contracted the lovely Hep C type 1 some time in the late 70's early 80's when no one quite knew what exactly it was. It remained undetected till Feb 2006. Over the past 8 years I had been slowly getting more tired, putting on weight and feeling unwell when my new doctor decided to test me for HCV. After getting over the shock of the positive test I was sent to a liver specialist for the treatment with peginteron and ribavirin.
For 48 weeks I got just about every side effect there was, right down to hair loss and loose teeth. I lost 32 kg and became a stick person. I finished the treatment 4 years ago enjoying every day. Last week a blood test showed my liver function down for the first time since treatment so I am now waiting on results. If it turns out bad, I will do it all again but it's early days yet. To anyone thinking of trying the horror treatment, go for it. It's different for everyone. You might breeze through it and if you don't, what have you got to lose except a nasty disease.
If I have got hep c back, I will beg my specialist for another shot at killing it off. Good Luck all :)
HELLO EVERYONE,
MY NAME IS MILTON AND I WAS INFECTED WITH HEP A, B, AND C ALMOST 41 YEARS AGO. AT THAT TIME THERE WAS NO INFO ON HEP C, I BELIEVE. I GOT HEP C THROUGH SHARING A NEEDLE WITH 2 FRIENDS OF MINE AS A TEENAGER. THIS WAS DURING THE INTRODUCTION OF THE DRUG PLAGUE IN NYC, IN THE LATER 60'S AND EARLY 70'S. I EXPERIMENTED WITH DRUGS AND I HAD TO PAY THE PRICE.
I HAD GONE TO GET A CHECK UP 2-3 YEARS AGO, AND I FOUND OUT I HAD CIRRHOSIS, AND HEP C. WITH ENLARGEMENT OF THE LIVER. AT FIRST, I PUT OFF TREATMENT, BUT THEN, IN JUNE OF 2011, I DECIDED TO GO TO WESTCHESTER MED. CTR. IN VALHALLA, NY, TO THEIR SPECIALIZED HEP C RESEARCH DEPT (I HAD BEEN THERE 2 YEARS BEFORE, BUT INCIVEK WAS NOT OUT YET).
THEN, IN MAY OF 2011, INCIVEK HAD JUST BEEN APPROVED FOR TREATMENT IN COMBO WITH INTERFERON AND RIBAVIRIN. I OPTED TO DO THE TREATMENT AFTER MUCH PRAYER AND SOUL SEARCHING. THANK JESUS CHRIST THAT I DID. I STARTED ON JULY 11, 2011 AND I FINISH IN JUST 2 MORE DAYS, ON DECEMBER 25, 2011 OF ALL DAYS. TALK ABOUT A CHRISTMAS PRESENT FROM GOD. THAT WILL COMPLETE 24 WEEKS OF THE TRIPLE COCKTAIL.
MY VIRAL LOAD WAS 400,000 AND I WAS COMPLETELY CLEARED OF THE HEP C, IN ABOUT A WEEK TO A WEEK AND A DAY-AS SHOWN BY MY WEEKLY BLOOD LABS. I HAVE BEEN HEP C FREE THROUGHOUT THE 24 WEEK REGIMEN AND I HAVE BEEN ASSURED BY THE MEDICAL STAFF THAT I WILL STAY THAT WAY. I DO NOT SMOKE, DRINK, OR USE DRUGS, I JUST MADE MISTAKES OF DISOBEDIENCE AS A TEENAGER. I HAVE AN APPOINTMENT ON JAN 3, 2012, AND THEN IN 6 MONTHS. AFTER THAT, I WILL JUST TAKE MY USUAL ANNUAL PHYSICALS AND VISIT MY DR EVERY 6-12 MONTHS, WHICH I DO ANYWAY.
I DO NOT WANT ANYONE TO THINK THE TREATMENT WAS EASY, IT WAS NOT. THE SIDE EFFECTS ARE SOMETHING ELSE, AND YOU MUST FOLLOW THE MED REGIMEN AND YOUR MEDICAL PERSON'S COUNSEL, AT ALL COSTS. OF COURSE, THEY MUST BE COMPETENT AND IF HEP C IS THEIR SPECIALTY, DO AS YOU ARE TOLD!!! MY RESEARCH NURSE WAS SUCH A GREAT SUPPORT SYSTEM, THAT SHE WOULD RESPOND TO MY CALLS AND EMAILS ALMOST IMMEDIATELY. IT HELPED JUST TO HAVE A MEDICAL PERSON WHO GENUINELY CARED ABOUT WHETHER I LIVED OR DIED, TO BE IN MY CORNER. SHE WOULD EXPLAIN THE SIDE EFFECTS, MAKE APPTS. FOR ME, AND EVEN MADE SURE I RECEIVED MY MEDS MONTHLY BY U.P.S. I CANNOT SAY ENOUGH ABOUT MY NURSE. AT THE CORE OF MY STRENGTH WAS JESUS CHRIST, OF COURSE. MUCH PRAYER, BIBLE READING, CHURCH, AND HAVING OTHER CHRISTIANS AROUND JUST KEPT ME GOING.
JUST TO MENTION SOME OF THE SIDE EFFECTS I EXPERIENCED; (AND REMEMBER, AFTER TREATMENT, THESE SIDE EFFECTS LEAVE OR HAVE LEFT PRIOR, THEY HAPPEN PERIODICALLY-AND SOME PEOPLE DO NOT EXPERIENCE THEM)- WEAKNESS, NAUSEA, CHILLS, MUSCULAR PAIN, ITCHING, COUGHING, LOSS OF APPETITE, INSOMNIA, MINOR DEPRESSION, HEADACHES, MAYBE RASHES, VISION BLURS (NOT OFTEN), ETC. I COUNTERED EVERY SIDE EFFECT, WITH OVER-THE-COUNTER PRODUCTS. FOR COUGHING I JUST HAD COUGH LOZENGES, FOR ITCHING I JUST BOUGHT ANTI ITCHING CREMES, AND I DID ALSO BUY ELOCON®
brand of mometasone furoate cream Cream 0.1%, FOR THE ITCHING, BUT CHECK WITH YOUR DR FIRST, BEFORE USING ANYTHING. FOR OTHER SIDE EFFECTS JUST TALK TO YOUR DR AS TO WHAT TO GET AT THE PHARMACY OR STORE.
IN SPITE OF THE SIDE EFFECTS, YOU WILL ALSO FEEL VERY ALONE AT TIMES AND MAYBE EVEN SAD, BUT YOU CAN DO THE TREATMENT, JUST KEEP YOUR EYES ON THE PRIZE, YOUR NEW LIVER!!! YOU CAN ENDURE AND DO THIS, BECAUSE THE ONLY OTHER ALTERNATIVE COULD BE DEATH. THOUGH NOT EVERYONE WILL DIE FROM THE HEP C-BUT WHY TAKE THE CHANCE WITH YOUR LIFE? STOP PUTTING OFF THE CURE, NOW!!! LOOK AT THIS MEDICAL BREAKTHROUGH AS YOUR RESURRECTION AND HEALING. JUST BE SURE TO TAKE THE HEP C COCKTAIL WITH THE 3 MEDS. THERE ARE NEW MEDS ON THE HORIZON, SUCH AS vx-950 and xv-222, WHICH HAVE YET TO GET FDA APPROVAL, AS TRIALS ARE STILL UNDERWAY FOR THESE 2 NEW HEP C KILLERS.
MAY GOD BLESS YOU ALL AND I PRAY I HAVE BEEN ABLE TO HELP AND ENCOURAGE SOMEONE OUT THERE. AFTER ALL, THAT'S WHAT CHRIST DID!
MILTON R-HEALED AND FORMER HEP C PT.
I just found out May of 2010. I had been real ill, extreme fatigue, bones hurt, falling asleep driving. I do not pass-out, I pull over, have a pillow and blanket on hand. Can't think. Forget words, close friends' names even. Had a CT scan of organs. Spleen is enlarged. Liver is stage F2, Activity is @ A3. Have Geno 2b. With lots of Autoimmune problems.
I have my 1st Liver Biopsy coming up Dec. 22 2011 and endoscopy Jan 9 2012, to check my Portal vein. My Liver aches and BURNS. I am alone in a very small town. I told my few closest friends as soon as I found out and they all dumped me. I finally got the courage up to tell another person last week, and they are dumping me. I am so alone and scared. I have some friends some 250 miles away. They are in a bigger city, and educated. But I only get to see them randomly.
I am worried about my liver right now because it hurts.
I was mailed some info from Hep Central about filling out a new member form, so I can connect with others. I am not sure if this is the form. But I REALLY need to connect with others who understand what we go through. Thank you for reading. Z
Several years ago I was diagnosed with Hepatitis C. I have no idea how long I had had it at that point. I received a blood transfusion in 1987, but I was an intravenous drug user throughout much of the 1990's. Having no health insurance I applied for assistance and was placed on a waiting list at a well known learning hospital. I waited and waited. Meanwhile, I spoke with an old friend who stated that she had eradicated the virus from her system with the use of milk thistle, and other herbs.I had nothing to lose, so I immediately began using it daily, and I ate flax seed, and started juicing, eating very little red meat, and lots of good nutrition. I continued to drink alcohol daily.
Several months later, maybe a year later, I received an appt. at this hospital and after doing tests, I was told I no longer have Hepatitis C. They can see that I did have it, sinceI have developed the antibodies, which show up. The doctors said that it is highly unlikely it would ever recur, but that I should be tested in the future.
I am now experiencing bad joint pain throughout my body. I'm unsure if it is related to the Hep C virus and former damage that may have occurred or if it is something separate entirely. Still don't have health insurance, so I may never know until it's too late.
I was diagnosed with Hepatitis C 1a when I was 3 months pregnant. That was crazy, and hard to take in. They say the chances of my baby girl having it from me is 8% which is good, but it scares the shit out of me, as you could imagine. She won't be tested until she is 18 months old, she is almost 13 months.
As for my treatment, it totally freaks me out and I haven't started yet. My viral load is at 4 thousand but it went down to 238 at one point which is amazing. I am 21, the doc says I'm young and that helps.
I got hepatitis C when I was a heroin addict for the time I was 17 to 19. I shared needles with people. I don't even remember all of them. So stupid, I wish I could go back and tell myself, hey dumb ass, you're gonna have an awesome daughter one day - don't do this. Graduate, go to college, what's the fun in being dope sick more than you are high???; Then I'd slap myself a couple of times lol.
My whole life I watched my mom nod out and my dad drank and overdosed on heroin the first and only time he did it. I always wanted to be better than that, but surprise surprise. Now I am not on heroin. I found out I was pregnant and moved 4 hours away from all the junkies that I knew.
That's the best way to do it. Don't do drugs people. There are so many things that are so worth living for. I thought overdosing was my only fear, boy was I wrong..
Hi all,
My story starts back in 1987 when I was told I had developed some problems with my liver as shown by an increase in ALT anf SGPT levels, as well as an increase in my bili count. I was told if I didn't drink alcohol any more that I would most likely be fine for up to 5-20 years. At year five I had serious esophageal varices and it was downhill from there. The first interferon tx did not take. I ended up having a liver transplant in 1998 after several close calls with death.
I survived the transplant well but, started to develop fibrosis to stage 2. I started the cocktail of Ribovirin and Interferon and made it to month 9. My doctor wanted me to go a year. However, I started to have problems with low red cell counts as well as white cell counts and had to stop after 5 transfusions. It was not an easy treatment. I always felt very sick (like flu) and extremely weak. That was in 2006.
Today I am doing great, have beat the virus and am 13+ years out from transplant. I cannot say enough about the care I received. My message from all of this is if you have to go thru the treatment, please don't hesitate. Battle and perservere. Take your meds religously and try not to miss ANY doses. Both for the treatment and for post transplant drugs. God bless,
Dan R
I'm Billy, I have HepC geno type one. I have been treated twice with interferon and the virus goes undetectable, but returned both times, shortly after treatment.Tomorrow, I will begin treatment with interferon , peg and ribavarin and add a newly released drug victralless, probably spelled wrong. It is going to be a closely monitored course of treatment, apparently paying close attention to blood counts of white blood cells which makes me prone to infection.
I've noticed that as treatment gets into the mid to end stages, I could really feel the effect of the meds, but continue to push thru each day. Being more prepared this time and armed with a 6 day a week gym workout and a decent ever evolving diet and good blood pressure, important !! I am ready.
For the record, I am a recovering alcoholic and drug addict and attend regular meetings and have incorporated meditation and spirituality into my daily affairs! This in and of itself has provided me with strength and determination to persevere thru challenges, and given me a great inner strength and resolve. I am truly grateful, and can do anything one day at a time.
And so it begins 2m 9 am. I hope to be able to offer regular updates thru the next 20 to 50 weeks. Sincerely, Billy C. !!
Hi. I am a survival person who found out about year ago that I had Hep C. I was very angry and mad when I first found out. I thought I was going to die. The doc I saw said there is a cure for it so he sent me to a Hep C doctor. My Genotype was 3a which isn't that bad, thank God.
I took the interferon and ribiviron and at first it was hard. I did get sick the first week, but after that I was ok, just tired a lot, couldn't do much. But thanks to my family and friends, they really helped me get through it.
There were times when I wanted to give up. I was on it for 5 1/2 months. I had gotten an abscess on my back that turned into an infection, then to mersa. With the treatment I was getting it got worse so they stopped the treatment and now it is getting better.
They did a viral load in August and it was negative and they just did one in November and it came out negative. Now I have to wait for 6 months to see if it's negative. If it is, I am cured. I hope and pray that it is.
So see, if you have family and friends and a lot of support you can make it.
Lucy
I was diagnosed with hep C in 2000 during a routine life insurance screening. I was an IV drug user during the mid to late 70's and got clean and sober July 31, 1983 and I am still alcohol free today.
I am about to undergo treatment using interferon, ribaviron and a new drug similar to teleprivir that is seeking FDA approval. I have Genotype 1B and the other day had my first meeting with the team of doctors and nurses that will be monitoring me through the course of the study. I realized during our discussion how much of an impact this disease has had on my life. Even though I am 54 but really quite healthy, the stigma attached to the disease has been tough.
Oddly enough now that treatment is here I am feeling apprehensive, scared, lots of feelings I can't identify but I am determined to kick this and look forward to putting this behind me. I am fortunate that I have a girlfriend who is supportive and will be here to help me through it.
I am 49 years old and a mother of 3. I was told that I have Hep C through random bloodwork in 2006. I couldn't believe what I heard and was so devastated. Well, I don't smoke, drink and don't do drugs. I was just a typical housewife and mom taking care of my family. But I'm in denial. Anyway, in 2008 my kidney took a bad turn and my doctor (Nephrologist) wanted me to go on treatment. I sure would like to do that but then the kidney meds would help flare up my Hep C. By the way, I'm genotype 1A, the hardest to eliminate. So I had to do my Hep C treatment first, even though I didn't have any signs of liver disease yet.
It's not the easiest treatment one would want to undergo you know. So I started my Hep C treatment in June 2009. In a week I lost 5 lbs and couldn't eat and sleep. I had no energy at all and had to stop working. In 4 months of treatment I started losing some hair and that's when depression came so bad. I asked GOD why me?
In Jan. 2010 I had a blood transfusion because my Hemoglobin went as low as 5 something. To make my story short, I went through all the bad things of Hep C treatment but its worth it though, because in just 3 months of treatment the virus was undetected.
I completed my 1 year treatment and to this day, the Virus is still undetected. The only concern I have now is that there is no guarantee that it won't come back and my thyroid was also affected by the treatment.
I am very thankful to God for never leaving my side during the bad times and to my doctors and nurse friend who administered my shot twice a week and for my family and friends. I would never have made it without their support.
I taught aerobics and everyone at the health club gave blood regularly. I found out I was a high risk pregnancy since I was having twins and quit teaching aerobics a few months before the birth of my children. Several months after I had my children, twins, I started teaching again, there was another blood drive. I gave blood as I had regularly done in the past but this time, I got a letter in the mail that I have hep c. I was stunned. I found out later that in 1978 the hospitals were not testing the blood they gave for transfusions for Hep C. If I had known what I was going to go through -- now I would have gotten on the class action lawsuit.
I have no clue why but I pretty much got in denial over having Hep C, but 19 years later, a checkup had shown my liver enzymes had skyrocked. The doctor told me that I needed/had to get treatment. I had to go into this believing that if God opened the door for me to get this drug,with his healing word and a doc's help I would beat this ugly disease.
Commitment to care chose me to get the free drugs. I know I was fortunate. What I did not know was HOW tough the treatment is... the first injection I laid in bed like my back was going to break in half. chills... thank god for sleeping pills, I pretty much slept the weekend away. My girls, now 19, did not see much of me as I got further into the treatment, I lost ALOT of weight. My mouth was so dry I would wake up and my tongue was stuck on the roof of my mouth. Since I had Genotype 2, the doc tested me after 6 months. He said since I waited so long, it might be more resistant and I was really depressed. The antidepressants the doc had me on were so strong. I sometimes wonder how bad the treatment itself is, but the test came back that I still had the disease. I said I want to go longer. So the wonderfully kind physician, Dr. M. Troutman, who I would HIGHLY recommend if you live in Fort Worth, Tx said let's do it. He said my positive I am going to beat it attitude was delightful, but I felt like I was being poisoned. I could not function - literally tried to go to work but could not even drive to the store.... I could not pray, all I could manage to do was turn on the healing scripture tape my mother sent to me and get to the refrigerator to drink my 10th bottle of water... it was not fun!
At 7 months, my next test showed a -0 and I have been HEP C FREE FOR NOW three years....
I pray to God that it will never come back.
If you can get the treatment of Peginteferon/Ribavirin -- do it sooner than later, get a good support team... if you are on your own, find a family member to go live with. Your life is worth saving and remember the LONGER you stay on this harsh treatment, the better chances are that you can beat it... if you do not beat it one month - like me, you might beat it the next month... and believe me, any of us could take one more month if we heard our physician say, you no longer have Hep C.
God bless you and I pray God gives you his strength to overcome!
I am waiting on hep results and was looking for some positive hep success stories!!! Is there any?????????? :(
I discovered I had HCV Genotype 1b back in 2001. Liver biopsy revealed F2B 'Bridging fibrosis'. At the time of the biopsy I was a heavy alcohol abuser,had been for decades. Most likely the fibrosis was caused mostly from alcohol abuse 'alcohol fibrosis'and with HCV made even worse. I declined treatment at first out of ignorance about treatment. March 2010 I finaly started treatment. I achieved a ETR but was a slow responder during Tx. Relapsed in july 2011. The second biopsy before Tx revealed I still had F2B, Teetotaling booze must have helped me. Another thing, the extrahepatic manifestations I suffered all these years that I didn't know were caused from HCV have gone away- burning feet,toes,fingers,numbness,dizzyness,nausea and so on, it's all went away after treatment. So my liver must of had time to heal itself significantly when on tx. Begun the new tx triple combo on 8/12/2011- incivek,pegasis and RBV with a viral load of 13,500 iu/ml. If there are no tx resistant viral rna 'mutants' Things look pretty good. I'm hoping for a Rapid response to the new tx in 30 days and a extended response in 90 days. If this happens I will have a 90% plus chance of a SVR I'm told-6 months post tx. I heard that some docs stop tx at 90 days if this occurs. Take care everyone.
Doctor gave me 3 years to live if I did not quit alcohol. I went to rehab for 35 days, thank GOD every day. Sober for the last 18 months (one day at a time). During rehab, they found thatI had genotype 2 hep c
Started treatment, interferon and ribavirine. My viral load was 5 million.
My viral load is undetected after 3 months.Treatment is working but some of the side effects can kick you in the pants. Bad, bad headaches, chills, upset stomach, vision impairment and I have lost 30 pounds. Also had to take time off work because I could not handle operating heavy equipment (did not want to end up hurting someone because i was not 100%).
I have one injection a week and take 7 pills daily for 24 weeks. I prepare myself for the injection by taking 2 xtra strength Tylenol and 1 gravol about one hour before the injection. I find it helps to offset the flu like symptoms. After that, I will take a prescribed sleeping pill to help me get thru the night. I hope this helps someone, I know it helped me. THANKS
In 1973 I had a blood transfusion for anemia. In 1997 I tried to donate blood and it was then I found out that I was infected with Hep C. Throughout the following 13 years all my liver function tests were normal. In 2007 the Hep C society in Toronto advised me to obtain a liver specialist and get a liver biopsy. The specialist refused based on the normal LFT. Researchers discovered in 2008 that longevity studies showed that even with normal LFT the liver can still be damaged over time. In 2010 the Hep C nurse gave an inservice to the local Doctors to explain this development. My Doctor informed me and I had an immediate biopsy which showed Grade 3 of 4 in liver inflammation and Stage 2 of 4 in liver damage. I am now in week 20 of 24 for genotype 2. I take 200mg ribivarin tabs twice a day and an injection of peginterferon every Friday. The side effects are a roller coaster ride. It seems whatever is wrong with you in the first place comes on like gangbusters like depression, indigestion, propensity for skin problems etc. Sometimes I wake up hearing a strange sound and it's me crying. I'm short of breath and have to pace myself. I swear a lot. Depression was a big problem starting in week 8 but I do things now to abate it like make sure I go outside several times a day, even though I want to lie on the couch.When I start to feel poorly I review my water consumption. My Hep C nurse instructed me to drink 9 glasses of water per day and then phoned me when the hot weather came and upped it to 13 glasses. Difficult at first. Today I fainted twice at a luncheon because it was in the sun and I was talking and laughing too much. No evidence of the virus was in my blood at week 12 and I have every reason to believe it has been eradicated. My advice to people going through the treatment is to never give up, drink lots of water, avoid negative people, swear when you feel like it and feel lucky if you live by yourself. If you don't live by yourself, go to dinner once a week and say you are sorry for anything that you might say in the coming week. Good luck to everyone.
Hi. I was diagnosed in 2005 w/ Hep C.I am genotype 1. Biopsy showed minimal scarring, no fatty liver disease. I am now 48 yr old, healthy 130 lb, BMI of 23. Ultrasounds yearly show no liver issues. My enzymes are good, blood work is excellent, normal in every way. I excercise (bicycling, working out on total gym, horseback riding, team roping) am very active. No other health issues.
This year's checkup this past week, my Gastrologist says he wants me to start the new 3 treatments ! WOW was I shocked... SO I have been researching these treatments, and all I can determine is that after 24 weeks of this treatment I will be an unhealthy 49 yr old woman.
So why would I want to destroy my body w/ these meds only to have an 80% chance of cure? And to have abused my body in this horrible way when I feel so good now?
Can someone answer me if you have been where I am? Will look at all responses!
Thank You-
Tonda
I was told I have Hep C in 1988. It was just there sleeping. Then in May of this year I woke up vomiting blood, went to hospital next day. I had bleeding ulcers, was there 4 days. With no insurance, one doesn't have choices. Was told to follow up with on doc ASAP. At this crossroads, I left California for Texas to get treatment for Hep C which was causing water buildup, swollen stomach and insomnia. My wonderful sister-in-law got me a referral to a research institute. I don't know my Genotype, they're testing for that now. I pray that I'm gonna overcome this and I will pray for you all. I thank you for sharing your life story with me. I almost forgot I got Hep C from sharing needles back in the 70's. But this disease does not care how I got it and I don't care either. It's how to fight it with faith that matters.
It's been two months since I finished my six month treatment of interferon and ribavarin. Each week of treatment brought a new side effect. First early menopause, depression, nosebleeds, aches, etc. and finally psoriasis. The last one was the worst. Some days I was so sure I couldn't take another minute of this, but I knew if i didn't try I would not get well at all. Yes, the six months were hell, and I would do it all over again, now that I am healed. You won't want to do anything but you must force yourself to get out, walk, go to a show, anything to live as normal and productive a life as you can at this time. You will feel better if you do. Feeling strong and determined to win is as important as the medicine is in healing your body. Surround yourself with people who love you, they will understand when you're not your usual self. Never give up. It's not going to be easy but your life is worth doing what it takes and if you're a six month patient or it takes a year, it's such a short time compared to the rest of your life HEALTHY.
It started for me always wanting to help people. At the time I was a caregiver for the elderly. I loved my job but hated when they passed away. I went to my kids high school to donate blood and really hadn't been feeling myself so I pushed on as I always do. Well a couple weeks later I got the letter from the Red Cross telling me I tested positive for Hep C, went to my family doctor and sure enough all hell broke loose. Was sent to a gastro doc. I was on treatment for two years. If it wasn't for my daughter coming home and telling me she was pregnant, I told her I'd do anything to help her. Well she had twins, a boy and a girl. I felt truly blessed. They were born early. I watched them babies while my daughter got her nursing done and graduated. I was never so proud. I think God sent them to me at the lowest point in my life. Now I've lost both of my parents in two years but I still have my granbabies. They are keeping me going with my hepc geno 1-a fear I might be going back on chemo. I have a lot of pain with it. If anyone reads this, please take your meds, drink lots of water and know you are not alone in this fight. I think we should have a bracelet for surviving hep-c. Thank you for your time. Love and prayers to all.
I had major surgery in 1979, thru a blood transfusion I was given the Hep C virus.
I tried the treatment for days, and coud not tolerate it, this was around 2003. I am not taking anything for the disease, I do work on eliminating stress by perceiving life very positive, taking one moment, one day at a time.
I already have cirrhosis of the liver, I get very tired at times, and other symptoms but I do not let this disease get the best of me. My way of thinking is what makes a difference. I had a viral count where my load was high and it got lowered by my attitude.
On top of having Hep C, my blood pressure was high, because of my positive thinking and learning not to become stress my blood pressure is normal.
I figure I got Hep C between 1987-1989 when they called it non A or B. I've never had any symptons but my last viral load was 1.4 million. I'm geno type 1 the hardest to get rid of. I've been on treatment for 12 weeks. After 2 weeks my viral load dropped from 1.4 million to 308 and by week 4 I'm negitive!!!! The first shot of interferon was the worse flu like symptons but that was it. The side effects now are very mild for me. If anyone reading this is thinking about going on treatment please do it it's not as bad as people say.
I wish you all well...YOU CAN DO IT!!
Hi to everyone . I wanna share my problem regarding to my condition by the way im from philippines. I have hepatitis B i discovered this when i was in college im nursing student at that moment when i found out that i have hepa b i was so sad, all my dreams have gone. Now im still ok and i already accept it , live like normal. But theres one problem i cant find regular job.Im already 26 yr old but i cant find regular job because of my condition. i failed in medical . i really need to find regular job , i feel discriminated because of my condition. but i dont lose hope may be God have other purpose for me..Thank you
I was diagnosed with chronic HCV in October 2010. The acute infection was in 1977 so I have had HCV for 33 plus years. My viral load in October 2010 was 11.9 M/ml. After extensive research online, I discovered two integrative medicine doctors in London, one uses laser blood irradiation therapy and the other ozone autohemotherapy. Faced with the certainty of having to treat the HCV, I decided to have 10 treatments of each to see if they had any effect.
First, in November I had a red and green laser light exposed to my blood through an intraveneous fibre optic cable. Fifteen minutes of each colour every other day. I was shown a live blood analysis before and after treatment and could see visible changes in my red and white blood cell activity and characteristics.
After these 10 laser treatments, later in November, I had 10 ozone treatments, 2 per day every other day. Blood was drawn and mixed with ozone and then re-introduced back in to my vein.
All of these treatments were painless with no side effects. In fact, I had more energy then usual and felt terrific. The only other treatment was I self administered at least 1200mg of S-ame and took a multivitamin daily.
In the meantime I had a liver ultrasound. I returned to the liver clinic on the 2nd of February 2011 for follow-up blood tests and to discuss starting the more conventional interferon and ribavirin treatment. My liver scan was fine. What amazed me was that I just discovered that the blood results from the 2nd of February show that my viral load is down to 1.1 M/ml, so obviously the more unconventional approach to treatment had a great effect.
Unfortunately, in the UK the laser and ozone treatments are not funded by the National Health Service and so this cost me about £1600 ($2000). The more conventional interferon and ribaviron treatment is free on the health service.
I would like to continue with more laser and ozone treatments to see if I can completely eradicate the HCV through these unconventional approaches, saving myself from the chemical side effects associated with the more conventional approach to treatment.
My personal experience demonstrates that more research needs to be done on the use of ozone and blood irradiation therapy to treat HCV.
This may also be an approach to explore for those who have had a non-response to interferon and ribavirin treatment.
Letter was sent to Doctors Prescribing Medication
Created December 28, 2008
I was a patient of Dr. Allen Sinclair's over 5 years ago, and came to him with stomach problems. He ran several tests and found Hepatitis C. He told me after a liver biopsy that it would probably shave 5 years off of my life. He also told me there was a medication that could cure it in most patients. The doctor told me the effects would be severe while on the medication, but would go away shortly after ending the medication. He was right; the effects from the medication were severe. I felt terrible. But I was willing to endure 6 months of hell to lengthen my lifespan 5 years. Again, I was counting on just 6 months of hell, and nothing thereafter. The medication I was given was the Pegasus with Interferon injections once a week, and the Ribavirin tablets daily for six months. After the medication was done, my Hep C levels were down and said to be undetectable. The Hep C was dead. It was a success. But I still feel really sick with chronic fatigue, foggy and unclear thinking, visual impairment that affects my driving, slurred speech, more infections than usual that require antibiotics to get rid of, still no sex life at all(was active before the medication), and lack of creative thought processes.
I went back to Dr. Sinclair for 6 months complaining of all these symptoms, and he finally said there was nothing wrong with me, that it was “all in my head.†He said he had cured me of Hepatitis C, and I was a healthy 50 year old male. I quit going to the doctors for about a year until the symptoms became unbearable, and my family forced me to go see a medical professional. It is my family that forced me to go see a medical professional. It is not normal for a healthy 50 year old male to be feeling the way I felt, always in bed sleeping, and feeling ill constantly. I went to a different doctor, Dr Mary Beth Curtis, and she ran the tests all over and over again in an attempt to find out something. My insurance company and I have spent thousands of dollars trying to find out what is wrong with me. I visited Dr Mary Beth Curtis, and she ran the tests over and over again in an attempt to find out something. Over the next two years we tried so many different things to get to the bottom of what was going on, finally she said it was depression and I should try antidepressants. I tried 6 different kinds of antidepressants, yet still had the symptoms. She finally told me there was nothing wrong with me, so I became discouraged and gave up seeking medical counsel.
I am now about 5 years out from taking Interferon and Ribavarin, and I still feel sick. As a matter of fact, I am feeling less well as time goes on. I visited my local doctor, Dr. Pryor, here in Gooding, ID, to receive antibiotics to get rid of my infections, caused by my damaged immune system. He also ran some tests on me to see why I was sick so much, and was not able to find a cause. I had two bouts of Pneumonia within a 3 month period. The antibiotics on the second bout almost killed me, they were so strong. But I got over it, and got a pneumonia shot after recuperating, hoping it would keep me from getting it again. Dr. Pryor used all the tools available to him here in our small town of Gooding, trying to find a cause. He did get me started on rigid iron supplements everyday, and said I would probably have to take the supplements the rest of my life, as I am anemic most of the time. Again, after thousands of dollars spent on tests and medical equipment, we still come up with nothing. I am still sick on a regular basis, and now my job is in jeopardy.
With these effects getting worse with time, I am forced to look for a solution. I then started booking myself at the University of Utah to see if they could find something. I took three costly visits to the University. They ran more tests and performed some medical procedures, all costing more money for me and my insurance company. The doctors there were curious about my coma state of 36 hour to 48 hour power naps that I was having, and wanted to evaluate. They monitored me closely while I was in the coma state. Since these procedures, I have not returned, but I keep the lines of communication open. I have had power naps since then, I am not functional enough to get in a car, and my wife cannot just leave at a short notice with her job. So we have not been back yet. The doctors there did want me to get information on the Pegasys Interferon and Copegus Ribavirin medication that I took to send it to them. So I got on the internet, and stumbled on a site where hundreds of people were emailing back and forth, and putting information into a forum where people could see. I started reading through them, and just started crying, as these people have been using the same medication that I had for Hep C, and were having the exact symptoms that I had been having for over 5 years now. Some of these people were 10 to 17 years from the time they used the medication, and the symptoms were still there, and were gradually getting worse with time. They were helping one another with herbal medications and vitamins that may help, but would not cure the irreversible affects of the Interferon.
I was relieved for a couple of days just knowing what was wrong with me, and finding others having the exact same issues. After five years of searching for answers, I finally found the answer and reason I felt like I did. It was a huge weight lifted off of me, but after a couple of days I got really angry, because like other people, I was told the symptoms were temporary while on the medication. It seems the medical profession is totally unaware of the permanent side effects that can, and most certainly do, go along with the Interferon treatments. I was shocked. When I called Roche (the company that makes Pegasys), they told me they had no documentation of any lasting side effects. I don't know what the percentage is, but I would gladly take those 5 years off my lifetime, if I could be anything close to the way I was before I took the medication. My family says I am just not the same person, and I have to agree. Personality change is one of the symptoms these people mentioned online as well.
Now, there are vitamins and prescription drugs that can actually help the damaged neurotransmitters in the brain function a little better, but they are not a cure, and I know I will never be like I was. I am encouraged by the enthusiasm of Dr. Pryor here in Gooding. I have just started taking some of the medications from Dr. Pryor, and they do seem to help, so I am encouraged by that.
I believe without any reservations at all that the symptoms I am having in my life today were caused by the Pegasys medication I took over 5 years ago. I also believe that the symptoms I am having are irreversible, they are not going to get better over time.
Now with my hundreds of new found friends that are suffering from this like me, and all the information I have gathered from other people doctors have rejected, we want to be heard by the medical profession and the drug companies. We may have a problem here that is worse than we originally thought. More studies should be done immediately for the safety of future patients that may ruin their lives by taking this poison.
With the hundreds I have found out there, there has to be thousands more out there in hiding, in mental institutions, sick and not knowing why, or dead. Several spouses have written in for their loved ones who have committed suicide. These people had no history of mental illness, depression, or suicidal tendencies.
With all this said, patients getting ready to use this medication should be told of the great possibility that they may never be the same person after the treatments are over. They should have access to the former users of this product that had poor results. Or do we shove this aside and pay no attention to it, as it is just one person's opinion.
I don't expect any miracles here, but don't you owe the next person that uses these treatments all the information they can get on it? I wish someone would have stepped in before I started these treatments, and given me all the information-good and bad. I would not be where I am today.
I am available at any time and my contact information is listed below.
Craig Harris
1667 S. 1700 E.
Gooding ID 83330
Phone: 208-934-8218
Cell: 208-731-8218
Email: charri112003@yahoo.com
Work email craig_harris@dell.com
Hi. I am a 54 yr old female that in Aug 2011 found out I have Hepatitis C type 2. Loads were low. Dr said 12 to 24 month treatment pegas and rav. 1 shot a week and 2 pills twice a day. The side affects are hell. Sometimes a good day. After my 4th treatment the virus is not detectable so I am thinking only 12 week (because that is 8 more after virus gone).But now my Dr. is saying factory says at least 24 weeks.
What is up with that? Can anyone till me how long they kept taking the treatments after it is not detectable? Should I finish the whole 6 months or stop at 3 months? We are losing all we have because I am not able to work most of the time. Also, what are my chances of it coming back after cured?
My prayers go out for all doing treatments. I just want my mind back and to feel normal.
My story is on the net ....If you type in my name in google it shows up ...Sanjiv Syal Staying on Top of HCV and Heart Disease...Please feel free to share if you believe it will encourage / motivate the community
My name is Lance. My doctor thinks I contracted the virus some time in 1972. At that time i was admitted to the hospital with septa ciemia blood infection. During the operation they gave me tainted blood. I was not diagnosed till the autum of 2006.
I have been on the Pegasis program twice. doctors were very confident of clearing the virus, All my counts were dropping very fast and on time. But both times by week 16 the counts had spiked back up, and i was removed from the program.
At that time I was told there may be new drugs by 2012, with a response rate of 90%. I dont believe them anymore. I hope everyone has a better result with interferon and Ribavarin than i did.
I had all the bad symptoms, I thought the meds were going to kill me, and yes i would do it again in a heart beat. All you can do is keep on trying. Im 60 years old and I carried the virus for 34 years before it acted up. Im actualy very lucky. The biopsy came back bad .Its a very slow progression. Im going to be fine. I wish all of you Health.
Ps The operation in 72 saved my life regardless of what happens now.
hello everyone it is good to meet you all and to finally have an outlet in dealing with hep c. I don't know how I contracted hep c. I know God showed me in a dream while I was in prison back in 1983 that I would one day be faced with a deadly disease, i thought it was going to be aids but now i know it was hep c he was showing me.
In 1996 i and my now ex-wife gave blood at the blood bank and i was told my blood was no good because i was HIV positive. that was tuff news at a tuff time because i and my family was dealing with the death of my first cousin Ronald, he died of aids related complications, i remember sitting threw the funneral thinking how i was going to be next and how it would hit my family hard to lose another son {Ronald's bro died from the same thing} to the disease.
I was out of town at the funeral and said to myself i was going to get checked out when i got home to see where i stand and how to start my fight to live, cause i'm going to fight till i can't anymore.
When i got home i went to someone in health care and told the lady my blood bank visit story and how the lady just pulled me to the side in a room full of people and told me i was HIV positive and my blood was no good for donating. she gave me another test to check my T-cell count to get me started on treatment. The lab sent back my results along with a note saying the test i took was for people with HIV and it was a waste to use it on me, she said incase you missed it they are saying you are not hiv positive but you do have hepatitis c. I fell on my knees and gave God the praise. treatment hasn't worked for me and now after ten years wasted, being misinformed i need to learn every thing i can to live as healthy as i can so i can help my lady beat this cause she has it too. and sometimes i just need someone to talk to or talk at. an outlet, i hope hep c central is a new begining 4 me. Rodney v
well it all started when i was a chil.d i remember my grandma having hep c from using herion, then my mother was diagnosed some years ago. my grandmother passed away. And i know i should have known better but i got into the drugs and was using herion. i am 16 days clean today but yesterday i was diagnosed with hepatitis c and im only 23 years old. i have no children and i have my whole life ahead of me!! thats all i can write for now but i would love to share more of my story! Thank You
The Dragon
The Dragon hisses
Fire is breath
His relentless attack
He seeks my death
From deep within
I seek my calm
I fight him back
My sword is found
The Dragon persistent
He is made to kill
I'll always resist
I climb the hill
I do my best
To not fuel his fire
He forever temps
To make me a liar
Many look down
When they hear of the fight
They say I caused it
In the dark of the night
It may be true
We can't be sure
But it is a fight to death
There is no door
I'll either kill him
Or he'll take me home
Or I'll die in the fight
Of a fate unknown
I may slip and fall
I may loose my step
The relentlessness battle
This Dragon named Hep
I hear from some
There is help on the way
A faster sword
A brighter day
Yet today I am tired
My sword swings weary
The sun behind clouds
The light dims dreary
Today I could use
To hear from a friend
A little encouragement
Some hope to send
Whatever the case
I will swing away
I have no choice
I will fight till that day
When just for a moment
He glances away
The Dragon falls
My sword finds it's way
No matter the years
As they tick away
I'll fight this Dragon
Till my dying day
Hello my name is Michelle and i found out that i had hepatitis back in april of 2010 i could not accept what the docton told me so i ask that he test me again and the test came back positive for the second time how they found out because i got sick and went to the doctor because i was not feeling well. come to find out i was diganosed a daibetic and hepatitis geno type b1.
i am very angry with all this and i just dont know where to start. so after my doctor got the sugar under control she turned me over to a geneoligist who specialize in this feild of liver disease. so far they have been really great i haven taken a lot of tests. now i am going for an biospy next week but they will have to go through my neck to the liver instead of my side through the rib cage due to i am a dibetic. i am scared to death. they need to know the stage of my liver so they can further help. i am angry that i have this liver disease. i beat my self up a lot but then i bounce back. i live in cleveland ohio. i have no family here so my support is very limited. some times i feel like this is the end of my life. i am learning and grasping as much as i can about this disease. i will continue educating my self as much as possible. there are support groups out there also we as a whole has to hold on and dont give up. we may give out some times but we must not give up. god bless michelle
My first attempt to conquer Hep C I was a responder but at the end of treatment I relapsed within the 6 month period. Shortly after that the FDA was scheduled to release Peginterferon and I was put on a waiting list and given a lottery number and then waited for the call informing me that I could received the newly FDA released Peginterferon/Combo. I think I slept the next 48 weeks. I say I think because I don't remember much... as my memory and concentration were gone. I experienced fatigue and aches but that was it. I gave up all caffeinated products and no alchol beverages which I believe was the key to my success and being able to complete the treatment. On a few occassions I drank one beer and it enhanced the side effects tenfold! I am eight years post treatment and I am still virus free. My advice is to rest, no caffeinated or alchol products and don't give up!
I had a wild time at 15 yrs of age. Not until I was 37 years old did I find out that some stupid things I did would have a life long impact on myself and my family. The best thing I ever did was to quit eating red meat. This helped me feel much better and also (I believe) slowed the damage to my liver. I just finished an experimental treatment involving silver that did not work. I am now faced with the treatment I have been refusing...the interferon. No thanks is what i've been telling the doctor but I suppose it is time to face reality.
I was diagnosed in March of this year,2010. It was like a thunder bolt, I have not injected drugs etc, but since the early seventies was a Red Cross first aider, something I continued to do until 2008. It was not until the late eighties/early nineties that we were told to wear gloves, before that pressure was applied to a bleeding wound with your bare hand over a clean cloth!I am a retired great grand mother so you can imagine my horror when diagnosed, I insisted that my family were tested, believing that I must have infected all the dear ones that I loved. No one was, thank goodness! I have a viral load of 2,000,000 and genotype 3a, also fatty liver and mild fibrosis. I am due to start treatment within the next month and I am scared , to say the least! I have lots of family support and really want to complete the treatment. I will try to let you all know about my treatment and how I feel, once it starts.
I was diagnosed hepatitis C 3 yrs back, on a routine checkup, My friends and family encouraged me to start treatment, i am a health care provider, i read it myself and started treatment first four months went fine but after that i was just got empty, i had all kind of psychological symptoms, including suicidal ideations, but i tried to make myself work by starting meditation, and continuing treatment now i have completed my six month regimen and free of virus completely, my symptoms are getting better everyday,, now i wake up daily and find myself close to real me,
I AM 54 YRS. In 2007 i was diagnosed with hep c, after further testing it was found that i had end stage liver diease and needed a transplant. What shock because i actually felt pretty good. Needless to say it didn't last long.
By nov 2009 i was at mayo clinic rodchester mn. I was admitted with complications. I stayed there till feb 17 th. This was my last, i had less then 24hrs to live. We had been waiting all this time for donor, about 11pm my wife received a call that mayo had rec'd a donor and that they would try a transplant. By 8am i woke up back in my bed somewhat confused but knew i was alive. It is aug now and i am back home, up on 2 feet with my senses back.
I thank God for all my blessings evryday and think back about what myself my friends and all the unknown people that had helped in my sickness and recovery. I've had my bloodwork done wkly and have been back to mayo for my 6mos. ck-up. My bloodwork and testing has shown signs of Hep c showing up. Which we all knew that it probably would. To me Hep A B C should be right up there with Hiv & Aids as a slient killer. Any way this was my story, its the 1st time i've written about Hep c or transplant. I know that there are many others out there, that are going through some similar or have gone through the same. Praise God and cherish everyday.
At age 23 I had a hystorectomy after being diagnosed with cervical cancer in 1973, after loosing a lot of blood before and during surgery my physician orderded a blood transfusion in order to save my life. After my surgery I went for my 6 week check-up and advised the Doctor that I felt as though I developed a cold, flu or allergy symptoms, I asked if you can get an allergy from a transfusion and he said no. A few years later I was informed that I had contacted Hep-c via a blood test.
Hi, I was diagnosed with hep c genotype 2 in 1998. In 2000 I did the interferon-ribivirin. It was hell. Thank God It took the virus away for 8 yrs. NO TRACE....Until 2 yrs ago. It showed it's little head again.
My fear of the treatment again is horrible. BUT I WILL do it again. Yes,the headaches,the NO sleep. The sickness, But....the mental stuff. Oh MY GOD!!!!!!It took so long to get my brain back. THAT is the fear. Right now my liver enzymes are really low. I can't eat well. The doctors say low enzymes mean malnutrition and enemia. No one can answer why. I'm 49yrs old. Can I handle the treatment again? A BIG YES!!!!It gave me 8 yrs .If I get another 8 yrs It will be worth it. So...My friends....Keep trying.
Write me if you want .But OH, the mental screw....earthmom20@yahoo.com
I'm 31 yrs old and found out that I have Hep C. I found out by giving blood to a blood bank. Never would have thought that I would have Hep C. Never used needles or drugs. But I do Have tattoos. Going to the doc thurs to see what I need to do. Previous to all this I was vomiting out of the blue. I went to the doctor complaining of headaches and a pain on my left side but all she did were x-rays and some blood tests but none were for Hep C . Boy is she going to flip out when she sees me tommorrow was she ever wrong with her diagnosis. I just hope that some good can come out of this. Yes I haven't been a great healthy eater but I know this wake up call will set me in the right direction. I want my daughter to see her mother healthy and loving life as she should.
Well I just found out 4 days ago that I have hep c I do not know how bad it is. I am trying to stay positive I have 2 young beautiful girls and a very supportive family. I am an ex heroine i.v user clean now for 41 days. I go to the dr. tomorrow and am very scared i have been through and survived alot 4 a 28 yr old woman so theres no way I am going to let this bring me or my family down I will fight it 4 ever. I pray everyday 4 strength and so far i havent given up and dont plan on it so neither should u. u all r in my prayers. we will survive and come out stronger than ever. just believe! Have Faith god loves us all
I am 57 and got hepc when i was in late teens geno 1 i havent had a cold or flu in thirty years as long as i can remember i have worked as a roofer [torcher] for the last 23 i dont no why its taking so long to affect me but know they want to put me on interferon because iam getting older the only thing is iam very thin should have another 10 or 15 on me read some of the stories they realy made me think.thank you everyone.going to join a support group.good luck to evryone and god bless
Have had Hep C for over 30 years. Went through the treatment with no luck. 46 weeks of hell.
I have tried everything imaginable to relieve the pain from Neuropathy in my feet and legs. The swelling was terrible.
I stumbled onto something that has changed my life. No more inflammation swelling. Pain has reduced considerably.
I suggest you take them up on the free gift bottle. God has provided something to cure everything. This may not cure HepC but it sure gave me my life back.
Go to www.KaresCactusjuice.com Tell them Terry Eisler sent you please.
Hope this does not get stripped as it has given me my life back and Kare will explain how it has affected so many lives. God bless all of you and keep praying for a cure.
hello all.
i was diagnosed in 99 at the va hospital geno 1. treatment 2 times.neither worked,for long. Treatment seemed to make the dragon angry.got sicker.hospitalized few times because the ammonia levels. it was horrible, had to live on laxatives .in 2005 i was lucky to get a transplant at iu in indy. I was almost dead by then. these were life-changing times for me. i am healthy now. thank you holy father .hope they find a cure. i am now 51. what a life. peace be with you----- charlie
Ive had hep c for about 5yrs now and recently found out I will have to undergo the combination treatment. im g type 1. Im so scared cos of the side effects as im a single mum and need to be able to function for my kids but am terrified that if I dont have the treatment I wont be around to see them grow, Im 34. If anyone has any advise or their story to share i'd love to hear it.
I was diagnosed with hepatitis b in the early 70's. I was kind of sick for a month and oh so yellow. Then i was better. Blood tests for the following 30+ years showed only antibodies to the hep b and all doctors told me my body had fought off the virus.
Now, 33 years later I find out by accident that I am possitive for hepatitis c. I was shocked. I'm not sick at all. Additional blood tests show that i have an undetectable viral load and the doctor says no treatment is necessary. Seems that back in the 70's there was no test for hep c and i've probably had the hep c all along. It's strange, i feel different but not sick. Doctor says my immune system basically put the hep c in a neat little package and tucked it away. I can't find much on the internet as far as a story like mine. Anyone else ever heard of anything similar?
I am 38 years old, married, have 3 girls, ages 10, 9 and 3. I found out 6 days ago I tested positive for the anti-HCV virus. I was told by my doctor to take the RNA next. I did and I am awaiting the results.
I am scared out of my mind. I have been crying for these past few days and worried sick. Everything I read says people with this disease die a horrible death. I am scared for my children. I do not know what to do. I feel like I am in a bad dream and I want to desperately wake up. I am a bit angry because I have never used illegal drugs, although I had a few relationships before I was married, I don't think it was where I might have contracted this disease. I do have three tattoos and I think that one of them was the cause of this. When I was 21 years old, I had a friend who worked in the same restaurant I did. Everyone would shy away from him because he had been in prison and looked very mean (he was 24). He had tattoos all over his body up to his neck. I felt bad for him and befriended him. We hung out for a few months, and he being a tattoo artist, talked me into him giving me a "home made" tattoo. He did so, but in looking back, I am so angry because he used a regular needle, I guess the way he might have been taught in prison, and I doubt he took any precautions or sterilized his instruments. This is such a hard lesson for me.
My family believes whole heartedly that natural cures will cure my hepatitis, so I am doing some research and am looking to see a doctor that only deals with natural healing. What I have read gives me hope of a longer life. I have read a book by Manuel Lezaeta Acharan, entitled "La Medicina Natural al Alcance De Todos"--not sure it if you can find it in English. I also have started to read a book by Kevin Trudeau"Natural Cures They Don't Want You to Know About."
Other than in these reads, I have heard nothing but horrible news. I am so scared. I need to hear that there are people out there that have not died of this disease but rather of old age. I need to hear that this disease is not necessarily a death sentence.
I.G.
I just found out I have Hep C. I really don't know how I contracted, being that I have not had a blood transfusion, have never used drugs, I am stunned! I have to my knowledge been the most cautious person I know but not carefully enough huh?
The nurse stated that it may have been through a dentist in which I have had my share of visits there! I am not trying to blame anyone, I have accepted that this may very well be the roughest ride of my life but I know I have faith in God and he moves mountains and parts seas, even walks on that same water so I know he can heal a nation.
We have to keep our faith strong and block every tactic the devil has placed before us. I know it is difficult but I am speaking what I know and not what I have heard! There are a lot of issues we could have along with what we have contracted but so far we all have breath we all have a chance to prepare for the end whatever God has chosen that to be.
Never stop fighting never stop praying and never stop believing. Remain steadfast and stay focused on what is important: Love is the greatest of them all! Be of good courage and correct any wrongs, Love you all as God loves us all!
I am a 60 year old professional male, I was diagnosed with HC about 37 years ago. never in those years did give the necessary attention to my illnesss. Over those years was plenty drugs and alchool abuse to my already sick liver. In August of 2009 visit a liver doctor and after several tests (F3.5) was only one decision, HCV treatment or eventually a liver transplant.
It was hard for me to realize that I really was sick to that point and need immediate medical attention. (never, never cross my mind)
Start on February 2010 the Interferon/rivarvirin treatment I just completed my 15th week. In August of 2009 my viral count was 14,000,000 today is 0 (undectectable) These 15 weeks have been a nightmare, the medication is tough, the symptoms are tough, All the side effects predictables by the doctors and drug companies are real and did show during my first 15 weeks of treatment.
I need to say and strongly recommend to anybody that is going through this is, First as soon as you are diagnosed with HCV, confront the issue immediately, follow the doctors recommendation seriously, if you need to start a treatment, do not hesitate just do it!! it is not easy but you can do it, is your life, the life of your loved ones, you will feel proud of your self and the surronding people that they care about you too. the most important is "GET ASSOCIATED TO A SUPPORT GROUP" The help that we need will come from them NOT from doctors. Doctors will give you only medical assistance only and of course we all need that but also we need help in how to live every day this new life. Join a support group and you will find out how much easer is to go through these tough times of your life.
The silent dragon
Once there was a young man, some say he was a free spirit, yet others say he was a foolish man. He would sometimes attend great parties or just hang out with his friends. He always had a longing for nature and things natural and would go for long walks in the mountains around his home land. Exploring the forests, walking along rivers and streams, or sometimes he would just sit on a high place and look down on people in his village below. The people would scurry about doing things in their daily lives but to him they looked like ants moving about. Sometimes the young man would go on long journeys with his friends to see what life was like in other villages.
One night the young man left a party he was enjoying, perhaps a little too tipsy, but he had decided to go for one of his walks in nature. He thought about the party and how much fun he had, the merriment, the stories people told, the fine drink and other party favorites, young girls dancing around the fire. It was dark and the moon was hidden behind the clouds. The man walked along in the darkness unaware that there was a dragon lurking in the darkness. He was headed to a warm spring hid away in a canyon near by. There in the spring you could rest your bones, nobody would wear cloths so you could go to the spring and be as free as you wanted. But as he walked along, he took a step but the ground was gone and in the darkness he fell. He felt himself turning in the air but the fall took for ever he thought it was the end. A tree broke his fall, but as a tree limb broke it gouged his side deeply and he landed on the ground. With great effort, he struggled the rest of the way to the spring. That night the dragon drew near and breathed his horrible breath on the man.
The next morning he awoke, still bleeding he found the village doctor. The doctor said your life is running out of you and here is life from one of the other villagers. The doctor did not know the blood had came from a villager that had been bitten by the very dragon that had hunted the young man the night before. You see in those days, no one knew the dragon, the dragon was very silent and lurked around in the shadows of darkness. Little did the young man know that an evil ran though his veins or about the great grief it would one day cause him. You see the spirit of the dragon had entered the man.
As the man grew older he did many great and wonderful things as well as foolish things. But one day as he matured and the seasons had cycled 12 times he found himself growing weak and tired and found it very hard to get things he wanted to done. He was living in a different village at the time and the village doctor in this town, had knew about the silent dragon that this young man was afflicted with. He tried to treat this great illness but the treatment required torture and was too painful for the young man to bear and when the fatigue too great the village doctor stopped what he was doing. It seemed though, that all signs of the dragon had left this man and he ventured out into life and even found happiness in marring the woman of his dreams.
After several more seasons had passed and the man was nearing the middle of his life the dragon returned. At first the man did not know it was the dragon, for there were several other symptoms he was experiencing, his entire body was under attack, it stuck his mind, his heart, the village doctors were at a loss. But then they found the evil spirit of the dragon was once again upon this man. This time the man endured the horrible torture to ride him of the silent dragon and it nearly cost him his life. The torture this time left scars which caused him to have many other ailments. This story is still ongoing...
I wrote this story as fiction; but the truth is the story is about my own life or at least a part of my life. The silent dragon is a Virus called Hepatitis C. This is not a name that I gave it but one that was adopted by those afflicted with HCV. Even drugs used to treat the virus are given fictional names like Pegasus and Co-Pegasus; these drugs are also given to cancer patients, for some people these drugs are very hard to tolerate. The spring and cliff are near Glenwood springs, Colorado. While the doctors have told me that much of my illicit drug use during high school and the first part of the 1980's was not the cause, they think I got the virus from the blood transfusion. Someone asked me how come you have so many issues; this is why I have so many health issues.
So far since my last treatment, I have remained SVR, which means the virus is undetectable. Because of the amount of time I have entered the ranks of Dragon slayer. Does that mean I am cured? There is no cure for the virus, only time will tell if it comes back and wreaks havoc in my body. The main ongoing issues I have is well monetary for one, I have used up my retirement and money I saved to get me through the treatment. Medical bills and other bills are starting to pile up. Health wise, the treatment left me with scared bone marrow, my joints are deteriorating at a faster than normal rate. Because of the disk degeneration I am experiencing neurological damage. I have memory problems which were directly caused by the treatment, but usually go away after treatment in my case they persisted. These are just a few of my scars. I feel lucky that I have cleared the virus for now. I can never take the current treatment again though. I have friends that are not so lucky, I have watched people and friends wither and die from this virus and I have friends who cannot tolerate the treatment again getting worse, my heart is crushed knowing that they may not be on this planet with us, much longer.
I was diagnosed June 2009, I just went to my doctor for my checkup, her office called a day later said doctor wanted me to have a full panel of blood studies because my liver enzymes were elevated. I was shocked at my diagnosis, I have no idea where or how I contracted this virus. I then had a ultrasound and cat scan of my abdomen, they see a spot on my liver, I ended up in Oct 2009 having a liver resection.
I just completed the ribavirin and interferon drugs, they did not work, my nurse practitioner said the doctor said stop the drugs they are not working. I see my doctor this week to see what is going to be done next, it has been stressful dealing with this for almost a year now, I just pray and thank the lord for the days I feel good.
This disease hits closer to home than you might be aware of, All it takes is a blood test to be sure, KNOWLEDGE is power, I got tested and even though I am not infected does not mean that I am not affected...Forever supporting you MOM; I LOVE YOU xoxo
May is national hepatitis C month, please help me support those like my Mother who contracted this disease.
Affected but not infected, This disease is misinterpreted; It's not only a "druggie" disease; this silent epidemic has many ways of contracting it; unfortunately my mother received this disease through a blood transfusion that was supposed to save her life; now due to the hospitals negligence she obtained tainted blood and her life has been cut shorter.
My mom is in the later stages of Hepatitis C. She has cirrhosis of the liver, and treatments have been ineffective. She has no one else to turn to medically there is nothing no one can do for her. Pain killers are ineffective and not numbing the pain; leaving her with no comfort.
Day to day life for her includes chronic fatigue. There's days where her whole body just aches, and when her liver becomes inflamed, it's putting pressure on the other organs. Life with Hepatitis C - I don't wish it on anybody.
Where are the posters showing blood transfusions, tainted blood and or blood products? I feel people should be more informed about this disease. My Mother is a fighter, I envy her, she is in the last stages of this disease, which she received through a blood transfusion; bad unscreened blood, hospitals negligence that gave my mother this disease.
Her health is deteriorating, she has no family doctor and or health plan. I hope that people out there educate themselves about this disease and that the government step up and deliver on their promises to compensate all Hepatitis C individuals, You see I may not be infected, but I am affected by this disease and it hits me harder knowing that my daughter may not be blessed to know my Mother for a few more years, as she is now already attached to her!
Hepatitis C; A disease that my mother has been battling for years.
We have to be supportive, and just be there for her, understand her and love her, Like she was here for me, now I am repaying her for all she has done, She is dying and I have come to terms with that, while other family members may be in denial, My two brothers and I are there for her, and will make sure she is remembered in our children, and that this disease is known and people know what hepatitis C is all about. My daughter and I made a video as there was a contest we came in third place, I didn't do the video for the money, I did it to support my mother and to send a message out there to others to get tested, to educate themselves, that there are websites filled with information; hepcontario.ca is one of them and my video can be viewed on you tube "affected but not infected".
I was 48 in April of 2006 when I found out I had HepC. I had bought a motorcycle and decided maybe I should increase my life insurance. I found out by receiving a letter in the mail denying me coverage since I was diagnosed with a deadly disease. Imagine my despair and disbelief! How can this be I was the picture of health. I took care of myself!
I immediately sought a professional doctor in this area. I discovered I was a Type 3, one of the tougher types to respond to treatment. Well I had to wait over a year while new treatments were being perfected to become a candidate. During this period I continued my exercise routine and became more conscious of what I was eating. (more fish, veggies, fruit, no fried foods or red meat) Because how i felt depended on what I ate. Not that I had horrible habits before I just had to be more selective.
Ironically enough a year prior to being diagnosed I had stopped drinking alcohol because it just was not agreeing with me. I began to look at this disease as possibly a gift, (wake up call take better care of yourself) all the while having mixed emotions. Finally the day came for me to start combination therapy of interferon and ribavirin for 48 weeks. I began on Mother's day of May 2008 and ended on Easter Sunday April of 2009. Talk about divine intervention. I got a new start on life on Easter Sunday; how symbolic does it get!! Although this time period was one of the biggest tests to see what I was made of I some how got through it.
I admit there were days I wished I would just die but days kept coming. By the end of treatment your are pretty beaten down. Mentally and physically. Not trying to scare you just trying to prepare you for what you're in for if treatment is your option. For me, going through with the treatment has been all i could hope and pray for because the virus is now undetectable and damage to my liver has ceased. Also the liver is the only organ that can rejuvenate itself amazingly enough!
If I can be a inspiration to anyone who needs to go through with the treatment i say you can do it. You are not alone, reach out to those who have been through it they know what your enduring.(your support system is critical) And when your ready to start your new lease on life I'm sure you will discover you're not the same person you were, how could you be after what you've been through.(you're extraordinary) Remember to pamper and take good care of yourself you deserve it. Look at it as a gift otherwise you might end up damaged. Who gets a second chance at life? Not many. Last but not least remember to observe Hep C Awareness Day October 1 every year.
Hi I did the treatment 5 years ago geno type 1, Still have hep c, but I am glad I did the treatment My quality of life has improved Im back at work able to smile again.
I do have my bad days and still can be a crabby git.. But Im not convinced the treatment is the cause of that as apparently I was like that anyway.
I want to point out I know how hard a road this disease makes us travel. and Im not giving up as I will give any treatment a go that may cure this virus. :) Joss K
Don't give up on your liver
HCV and Cirrhosis have been the main focus of my life. In 1980 my mother was diagnosed with cirrhosis of the liver. In the early 90's they informed her that they had found a new strain of Hepatitis, it was called "C". They gave her interferon for a time, but it made her so sick she didn't want to take it anymore. I only wish that we would have understood what the outcome could bring by not treating this.
In 2004, my mother died of liver cancer. I stayed with her for two years, watching her slowing deteriorate . She had two surgeries, trying to remove the cancer, but it was too late, it had spread. This was the most painful time in my life, seeing the mother I have, that was always so full of life and extremely active, die in this way. Needless to say I was so depressed, couldn't get out of bed. Finally went to the doctor for my depression, and was informed that I had Hep C., since 2002. They had overlooked the test results. Talk about a BLOW! Losing my mother, then my other love, (my dog) and finding out I had Hep C, geno 1, all in the same month, sent me into the gloom of life. I told no one. Kept all my pain inside. The doctor told me that I needed to look into treatment, NOW! Of course, every doctor I went to irritated me because of, what seemed to be their lack of knowledge of the virus. One hospital said that they would treat me in a study, (of course, I wanted no part of being a lab rat). Anger was taking over my judgment, of what was real. I just wanted it to go away. Mentally knowing I had this and the thought of the same thing happening to me as did my mother, took me back to the doctor. This was 2007.
I went to a Gastro doctor, he put me on SOC. He also told me that he had not treated many with HCV. Another, "OH BOY" moment. I went ahead and started the SOC, with a good attitude, that I would get through this and not let myself feel bad. Well I gave it a good fight. After getting started, he checked me at 6 wks, I had over a 2 log drop. So I continued. At the 24 wk point, checked again, and was back up to 2 million. He kept me on the meds for the full 48 wks. At the end , he shook my hand and said, sorry, may-be within the next 5 years they will have a new treatment. I was a non responder.
I found out through my brother the next week that his boss had gone into clinical trial study. He had just got the results of his 6 month post tx. He was SVR!!! I immediately e-mailed the study, ( my luck had changed). I had gotten an e-mail back just after I sent it. They wanted me to send all paperwork. They accepted me into the boceprevir study. I was at ND, by wk 12, and stayed that way through the 48 wks. The sx where a little more intense this time around. I wasn't sure if it was because only a month before I had just went though 48 wks of SOC, now back in the fight, or if it was because of the boceprevir. The fatigue, of course, was there, pretty much all of the time. I also developed anemia. They had me on procrit shots, average, once a week. Finding out now, I was lucky in that respect too. I also had to take Neupogen, twice weekly for the last 3 months of the tx. All was doable though. I did lose about 60% of my hair.
I'm now at 3 wks post tx and waiting for my results of my 4 wk post labs. I have a great feeling about this. I know that there is a chance that I could be disappointed, but so far I feel very positive. I would tell anyone that they should never give up, stay in the fight, the best way you can. Don't give up on your liver. What this virus can do to it is nothing nice.
My thoughts and well wishes are for all that are fighting, or know someone fighting this battle.
Summer
I was diagnosed with Cirrhosis with Portal Hypertension after passing a kidney stone about 4 months ago. I went to a local doctor and he said it was because I was an alcoholic (I haven't drank in 20 years) and when I did it was for about 4 years from about 17-20 years old! After some labwork the doctor told me that it was HCV. Now that made more sense. The doctor said that it was because of drugs! But I never used needles! I told him that I was a nurse and had been for about 20 years! I have been exposed to blood on more than a dozen episodes where I came up on a wreck or when I was working as a EMT. I decided to get a second opinion and that is where I found out the truth! I have been on Interferon and Ribaviron therapy for going on 6 weeks. I do great from Monday to Thursday, but on Friday evening I take the shot and I feel like crap the rest of the weekend! Some weekends have been not so bad! While others are terrible! I try to exercise during the week and I play full court basketball 2-3 days during the week for about 1-2 hours each time. In the beginning I had a terrible bout of depression and felt like the world was coming to an end and I was taking Wellbutrin! The doctor raised my dose to 100 mg three times a day and that seemed to do the trick! I still get a little emotional at times and have to be careful about watching movies that can make me cry! LOL!
My wonderful wife and three daughters have been very supportive for me. I have two that are away to school (19yo, 21yo) and one left at home (16yo). I have a very supportive church family as well! I do not know what I would do if I did not have Jesus as my personal Savior and Lord! I found out this last week that my viral load was down significantly and the doctor is very excited at the progress of the eradication of ther virus! I am able to work and am thankful of having a flexible schedule! There are days that I wish that I would just die and am about to lose hope, but those are the days that I have to reach way down and pull myself up by the boot straps! Some time you have to just put on your big boy pants and just deal with it! I am 44 years old and have alot to live for! More importantly, I am not afraid to die since I know where I am going, I think that is what keeps me going! The only problem that I am having is that my platelets stay really low (thrombocytopenia)! And that does concern me! I just keep focused on God, family, work, and a hobby (I am building my own camper). One day at a time!
I was a dental assistant for 20 yrs. In those days (1983) Dentists very rarely wore gloves. I did and sterilized instruments the best way I knew how. The Hepatologist felt I got HCV while working there, about 1993. I also had a blood transfusion in 1976. I went through Peglyated interferon/Ribovirin with no success. I feel badly most days. So when I do have a good day I am overjoyed! God is my strength in this.
I recieved hep c from the tampa va hospital in may 2002, from bad blood that the blood bank messed up on and sent up too the surgery area. this dr came running in and called me every name in the book, and my wife was sitting there and it floored her also. needless too say that doctor no longer practices in any hospital that I know of today. The VA never said that they was sorry that it happened, but the VA did pay me a penison at 40% and now 8 years LATER THEY WANT TOO STOP PAYING ME FOR THEIR HEPC SCREWUP. I'm thinking about suing the VA.
Hi, My Name is Alice and I am 68yrs old and I think I am 18. I was told I had Chronic HepC and at the time I was 17yrs sober. After I was operated on for Colon Cancer 11 yrs ago. To be honest I didn't even know What HepC was. I just thought it was some kind of Virus. The Doctor told me I was not dealing with Hep and send me to therapy. Glad he did. I had alot of issues. The doctor said I should go on Interferon. I do not recommed this for everyone. In 2001 I was introduced to alternative medicine.
I did acupunture for 5yrs. I learned about the correct way to eat for the Virus. I had alot of anxiety so I do Yoga. I excercise 5 days a week in the gym and walk 3 miles the other two days. I keep a positive attitude and I read everything I can from Hep-Central and Natural-Wellness. Three months ago I started Maximum Milk Thristle and it lowered my ALT and AST levels. I think the most important thing for me is to stay positive and live life one day at a time and have fun.
I hope my story can help someone. Wishing you all a great day and hope you feel better. Alice
Hi Friends
I just found out about 3 days ago that i have hepatitis C. Not sure what type yet. I don't have support from many people except for my sister and my brother in law and of course my long time friend Jesse. My nephews help me alot too but they dont even know they are helping, they are only 5 years and 2 years old but they brighten up my day alot. I was scared at first but im not so much anymore. I will be turning 18 this saturday and just want to be a normal 18 year old again. I dont feel that way right now but im strong and i will soon. My biggest problem factor is my parents. They act like im dying right now and make me feel so guilty and helpless. I just want to enjoy my life and live exactly how i did last week. Stay strong. Mind over body
The way I tell it is like this...
You've heard of "Gitmo" the Naval Base where they send the "worst of the worst" terrorists? Well, in 1977 I worked as a corpsman at the Naval Hospital that was the Gitmo for microbes. I had an accident with a needle used to draw blood. At the time nobody knew what it was that was killing Vietnam Vets sent to us, just that it killed their livers just before it killed them. We guessed it was a virus, though other theories like chemicals from plastic IV equipment came up as well.
There were, of course, none of the extraordinary precautions used when handling blood that are standard today. But we knew it was serious when I got stuck.
I'm guessing I owe my life and current chances of survival today to my charge nurse that day who got me into the supply room to scrub the wound right away and down to the ER for a GG shot, (pretty ineffectual but something, at least). But most importantly for my welfare today, She made sure it was DOCUMENTED in my military health record.
So, I'd like to take this opportunity to thank you, LTCMDR D.
These days I get by. Thanks to that documentation I get social security disability though nothing from the VA. They offered the"death by lethal injection" treatment but I opted out from that. 6 month check ups were offered but that proved to be a waste of time.
The only thing that seems to help is the lifestyle changes I've made. I discovered by accident while trying to save money that shutting off the electricity in my cabin made me feel a lot better. I've since had the electric shut right off and so long as I stay there I feel pretty ok. But here at the Library where I'm on line and the electricity is flowing all around me, my liver is already singing the blues after only about an hour.
For my diet I read the labels on every package of everything I eat and anything that doesn't say something like.."whole wheat. Period...I don't eat it.
I avoid all medicines if possible, including herbals except that I found a lot of Indian Cup plant growing around my cabin and I find the boiled root very soothing.
That's it. Listen to your body. Mine tells me, in no uncertain terms, what works and what doesn't. mc.
I was diagnosed with 1a Hep C in 2000. I got it through sexual intercourse with a boyfriend after about 1 year. At the time he didn't know he had it. When he found out he tested positive so I got checked to find out I had it too. He started interferon and Ribiverian therapy. His side effects were just awful. That really frightened me from trying the medicine. I took milk thistle and some other herbs for 3 mos. since December and felt pretty good. Now all of a sudden since the doctor said my liver has almost expanded down to my hip I feel really brain foggy and little stabs of pain in my liver area. I am started to worry that my chances for recovery are getting slimmer. Even though I am afraid of how I will do, I don't see any other option. I hope I will be able to work and keep supporting myself and not go crazy or do anything I wouldn't normally do.
I figure I contracted hep c about 37 years ago. I was a heroin addict, not heavy but an addict on and off for a few years and quit 37 years ago. I was amazed to find out that I had hep c about 12 years ago. I live in northern Italy and have always adored red wine and I used to drink a fair amount of it-always good, natural and right from the country. I had taught English to a doc, internationally well known in the hepatitis field and so saw him. I had never had any symptoms but the blood tests were just prescribed by my gynecologist for some reason. Anyway the hep doc said no alcohol and to me that was a tragedy-I said I can give up salami, fatty foods, rich cheeses but please don't tell me to cut out the wine! Anyway I did cut out the wine and then did 6 months of interferon, mantadene I think and ribavirin. Went into serious apathy and so tired I could hardly hold my jaw closed. They took me off it-I am genotype 1b-generally not a good treatment responder. Did not kill the beast. I have been taking milk thistle for about 10 years, I practically never eat meat, I drink a herbal tea good for the liver, drink red wine moderately. Fortunately Italy is a land of good healthy food. I am 65 and my liver is in pretty good shape. One of the best things you can do is to feed your liver with healthy foods-there are some real liver lovers in the vegetable world, take milk thistle and live moderately and positively! Give your liver a pet name and take care of it as a pet you love!
Hope you all well. I knew by chance through a medical check-up that I contracted Hepatitis C. I was shocked but strange enough my strong religious belief made me accept the news and said to myself I will live my time as if I did not know about it as I am not suffering from any complications, but a friend doctor told me that I should seek medical help. I am on liver enzyme medication and as I am over sixty my doctor does not recommend antiviral treatment as my genotype is 1b and virus load is 16000. Another doctor recommend a low viral treatment for a month and then decide on going on or stopping. I think it is always a question that comes to a patient mind when one has a choice between 2 vital decisions. I am still hesitant as I am afraid of digging on and then suffer from the treatment side effects while now I am not complaining from any symptoms except some heartburn gushing. I am still hesitant about treatment hoping that something new with less side-effect would emerge before it is late for me. I change my lifestyle and I am following a more healthy diet with no red meat and plenty of seafood and vegi. Also I am taking some liver support. I hope that I will take the right decision by the end of the month. Pray for us all.
Feb.26, 2010
Dear Sir or Madam,
My name is Dennis Palmer and I am a retired serviceman. I retired in 1997 after almost 25 years of faithful and honorable service in the world's premier fighting force, the United States Marine Corps.
In 2003 I was diagnosed with Chronic Hepatitis C. After three years of self denial I opted to go through with treatment, so in July 2006 I started a 48 week journey to slay the dragon, consisting of Interferon and the highest dose of Ribavirin, 1200 mg. At the end of 48 weeks, in June 2007, I was left with a shell of the person I was before starting treatment. September 2007 I relapsed. To this day the side effects from treatment still linger and...I still have Chronic Hepatitis C.
Since first being diagnosed in 2003 I have racked my brain to try and figure out where I could have contracted the virus. With only two possible connections I decided to file a claim with the Veterans Administration in 2008. I knew from research that the jet guns used in vaccinations were a "plausible cause" (and that's how I received my inoculations when I went to San Diego for boot camp in 1971). I also came in contact with blood while serving in Haiti. So, based on that (and the information was sparse), I filed. The request came back in 2009 denied. They stated that I didn't explain the etiology well enough.
In February 2009 I lost my job to what I feel were the lingering side effects of my treatment in 2006-07.
In March of 2009 I ran across an article regarding tainted blood products in the 1980's and 90's. The article mentioned among other things, Intramuscular Immune Gamma Globulin (IGIM). Knowing that I've seen those initials somewhere before, I went through my medical record and discovered that in July of 1995 I had received an intramuscular immune gamma globulin inoculation prior to my deployment to Haiti. Noted in my medical record was the manufacturer Armour Pharmaceutical and the lot number was M8012. Using that data and other information regarding the possibility of Hepatitis C tainted blood products that I've come across in my research; I resubmitted an 87 page etiology to the VA in September 2009.
In the meantime, through the Freedom of Information Act, I requested from the Food and Drug Administration any information that they could provide regarding Armour Pharmaceutical and the lot number between 1995 and 1998. What I received from the FDA astounded me.
I knew from my research that Armour (now Centeon) had some serious issues with blood products. I knew of a consent decree with Centeon and the FDA in 1997 and I knew the FDA wasn't very good at policing the drug companies during that time frame. I also knew that the FDA asked the drug companies in 1994-95 to begin testing all their lots of IG products for the possibility of contamination of the Hepatitis C virus. In 1996 the FDA requested Centeon to test certain lots for Hepatitis C contamination. Centeon refused to test them and ordered their products off the market. What left me puzzled was the reason the FDA asked the drug companies to test their lots and why did Centeon refuse.
The letters I received from the FDA made it a little clearer, I think. In their typical bureaucratic lingo, in a letter dated June 13, 1996 from the FDA to Centeon, the FDA “requested†that Centeon implement new testing protocols using a newer version of the Polymerase Chain Reaction (PCR). The PCR2 was supposed to be more sensitive to the HCV RNA. They went on to further state that "Since January 1996, FDA has tested a number of lots of IG with both the original PCR protocol and the PCR2. A small percentage of lots that tested negative with the original protocol yielded positive results with the PCR". But, not to make anyone mad, they had to downplay a lot of their comments.
The response from Centeon was arrogant and full of "we can do no wrong" comments. In their letter to "Dear Healthcare Provider" dated June 24, 1996, it states, " Centeon L.L.C. has initiated a voluntary withdrawal of certain lots of its immune globulin products that were manufactured after December 27, 1994. The products being withdrawn bear an Armour Pharmaceutical label".
In addition to those letters I received from the FDA was a list of 19 lot numbers (M8012 included) that were "withdrawn". Lastly I have CBER FDA testing results for Lot M8012. It shows that by using the PCR1 method, the virus was undetected but, when they used the new PCR2 protocol, it clearly shows the presence of Hepatitis C. PCR1 was the standard by all pharmaceutical companies until the FDA ordered the new test implemented in 1996.
The information I received from the FDA was sent to the VA as additional information in support of my claim.
In an April 19, 1995 memorandum from the Assistant Secretary of Defense to the Surgeon General of the Army, Navy, and Air Force and referencing the Armed Forces Epidemiological Board memorandum of February 28, 1995, it directed the armed forces to begin using the newly licensed Hepatitis A vaccine in military personnel in lieu of the IG. My innoculation was given to me on July 20, 1995.
Besides the fact that I still have Chronic Hepatitis C, the side effects from the Interferon/Ribavirin cocktail still haunt me today. The worse is the fatigue, memory loss, and my ability to concentrate. I went from being an exceptional multitasker to one who has to make a grocery list for two items. The treatment destroyed my thyroid and I will be on medication the rest of my life. God was gracious enough to allow me to spend 35 years with my wife and we've been blessed with four beautiful grandchildren, the oldest being 8. But, will I live long enough to see them grow up? Will they remember me once I'm gone?
So, why was I given this death sentence? That's about the only question I haven't been able to find an answer to.
The intent of this letter is to bring awareness to the fact that many veterans may be infected with this insidious disease and not know about it. Not only veterans, but anyone who may have received inoculations from one of the 19 lots before they were withdrawn in 1996. Each lot contains approximately 17,000 vials. I am currently waiting for the VA to decide on my claim that was submitted in September 2009.
Sincerely,
Dennis Palmer
I found out in March 2009 that i had hep c, I felt very dirty and ashamed. My doctor referred me to a specialist and after many tests i started treatment in August 2009, I was very lucky to have very few side effects from treatment and found it quite easy, my biggest worry was transmitting the virus to my 7 year old daughter.Through out treatment I lived in denial alot of the time as if I didnt even have the disease, as I thoght that if I thought about it too much I'd have a nervous breakdown. I have just finished 6 months of treatment (I was geno type 3) and my test results show that there is no trace of the virus, which I'm very happy about (no more worries!), I'm very confident that it will not come back as the nurse explained to me this only happens in 0.0 per cent of cases. My advice to anyone considering treatment is go for it, in my experience the side effects sound alot more exagerated than what they actually were in my case, I only occasionally suffered cold and flu like symptoms and fatigue that can be eased with pain relief. Stay positive and get all the support you can get, the Hepatitis c council are great at offering support as well as the Hep C nurses at your hospital your being treated at.
My daughter was an alcoholic and was drinking very heavily right before her death. She felt like she had the flu so she was taking a lot of tylenol. Before we knew it she was in need of a liver transplant but didn't make it to ever receive the transplant. She died very young and very tragically and it is something I never want to see anyone go through again. I would love to share my story with everyone to prevent this from ever happening again.
I was given a blood transfusion when having a commisurotomy. I was diagnosed with Hep C after bout 30 yrs. I have been to counseling, meetings of people who had Hep c. Been through all treatments possible. When I Last saw my Infectious disease dr. was told no new treatments were available. My geno type is or was at last visit 1-B . Was told would have an early death at that time. BUT my faith and wanting to survive had kept me going. Feel talkin bout this and not giving but being a fighter & keep a positive attitude has helped me out alot. My viral count was over 50,000,000 Unfortunately back then they did not know bout it. I do have many health issues but still keep going. Have faith and also knowledge is the best help. I am now 59. Had this since about age 25.
i was diagnosed with hep c in 1999 and took it rather calmly realizing it had no cure only slow downs of its progression.well i decided to go clean for a while such as natural foods additive free foods and gave up pork .i began a regiment of thistle clover vit d ,e,b12 garlic,colloidol silver,and many other easy to find herbal remedies for liver health.6 weeks ago im glad to say that specialist tests found no trace of the virus anywhere but found anti bodies that protect me from getting it again.i guess im just saying once again that doctors lie and pharmacuetical companies reap profits from the lies they tell the doctors to say.i guess its more prudent to pay off thier med school debts this way rather than treat the real problems that cause hep c like pancreas health deficiencies.youll find that the pancreas is a remarkable toxin maker that can even eliminate cancer if its kept healthy but has anyone ever heard of ways to do that.....not from your doctor ill bet.if they let us know we could cure ourselves where would they be then!!!!!!!do some research .dont be a total slave to the doctors and the pharmacuetical companies that own them.all they do is mask and hide your symptoms but never treat the cause.remember symptons are the bodies way to say somethings wrong.a headache is a blood circulation problem so they give you aspirin or stronger to relieve it but never trat the cause for the headache so they slowly get worse till you find yourself on demerol or codiene or percocets or any number of other phoney aids that only fill the pockets of the owners of pharmacuetical companies.all at your expense.and drinking coffee could be a natural aid in the defeat of hep c as i used to drink 10 to 20 cups a day.who knows.......maybe i beaned it to death. lol
I contracted hep c in 1976. So I've had it a very long time eating away at my liver. I was diagnosed in 2000. Went thru the treatment twice with no success. It was only last year 2009 that I've started experiencing problems. I've got cirrhosis, portal hypertension, esophageal varices, enlarged spleen. But all in all I still feel fine. Just some fatigue, need to sleep a lot. I've just had my esophageal varices operated on and now that is under control. My liver looks so bad from the cirrhosis as seen in MRI and CT scans. I wish there were some true herbal remedies or clinics that specialized in this area.
Hello, my new family,
Today I found out I am positive for Hep c along with my oldest Son. Now I am worried about the rest of the family, due to various health reasons. It seems so overwhelming. I do know that I have lived thru the "crack wars" of the 90's and all that so I know God and my Angels will be here to help me through..
Hello.. I have geno2 hepc in week 10 right now. The side effects aren't the best (how many choices do we have?) I have anemia from the treatment and hospitalized 2 times in 2 wks for dehydration. My doc put me on epigon, my dose was reduced. I found new hope to follow through w/treatment after reading your stories. Thank You All
I have been living with Hep c geno typ1 since late 80's. I found out in the last 7yrs and was offered interferon as a trial, i declined, I am 50, overweight and no that my type is not as succesful to treat. More recently I have expeeinced pain under my left rib cage and swelling, have alot of headaches and feel quite isolated, I worry i wll get cancer and would lover to hear from others who have similar expereinces. I am a Mother of a 27yr son, have 4 grandchildren, and run my own business so am active and enjoy life. But I am scared, I do not get much medical intervention. Had biopsy several years ago showed scarring and was sugested to loose weight to improve health conditions, all blood tests have shown hight levels of virus,if you feel like me or can offer moral support love to hear from you.
Ann W
I had a blood transfusion in 1978 and contracted 'non a - non b' hepatitis. Thirty years later, I have routine blood work and my liver enzymes are elevated. I am not a drinker so I was referred to a specialist.
I started interferon/ribavirin treatment on March 27th for a 48 weeks therapy. I am genotype 1b. By my 12 week blood work, I was virus free after starting at 3 million viral load.
I have lost weight due to nausea/diarrhea/no taste for food and I have lost some hair. Fortunately, I had thick hair to begin with. I am anemic and consequently, I am tired. I am retired so I can monitor this at home but it is frustrating since I live alone to not be able to always do things for myself......or, I am very slow.
The worse part of it is that my 3 year boyfriend deserted me via email in late July........he still won't speak to me for some reason. He went to the doctor with me, encouraged me to start the treatment and said he would support me throughout the treatment.
Guess what........I am doing this on my own and what miserable symptoms there are seem worse after this.
I was diagnosed with hepc 2 yrs ago. Got it from transfusion at age 13. I was suppose to start treatment but was put off due to my moms cancer dr says not good time to start I am 46 yrs old. not sure when I will start treatment
I found out that I had Hep C before it was given a name. I was told I had some form of hepatitis and was told it was Non-A or Non-C.
I drank a lot and was asked not to drink for a month and my test results were still high.
I was seeing a Highly Recommended doctor for keeping tabs on a possible Heart disease. I have 3 brothers and 2 sisters who have all had to have surgery. So I saw this Doctor as a expiation to be the next with a heart attack. I was told I showed no heart illness, but he did find I had Hepatitis.
I did not follow up on this and continued to drink. Over 15 years I saw 2 close friends die with Hep C and one had two liver transports.
I lived as if I had no knowledge of my illness. I became very ill after losing all that I worked for in a disaster and I guess drank my hurt away.
Next thing I know I am at LSU Medical Center and being told I was on an emergency liver transport list.
When told this I chose not to have the transplant or the treatment that just came out of trial with about a 50 % rate of success. I was told without some actions taken soon I was given 7 months to live.
I chose to check my self out and gave up drinking. I did all the research I could and treated myself with herbs and diet.
It has been over 7 years since then. Symptoms seem to be getting worse and I expected this to happen.
My question is does anyone have experience with natural herbs or vitamins that may help me.
I am 30 years old and have Genotype 3 HCV. I had been a drug addict since I was 13, originally speed, then ecstasy, cocaine, marijuana and alcohol and in addition very high dose doctor prescribed benzodiazepines (valium) for my mental health issues (IE severe self harm), I was first prescribed valium at 11 and addicted by the time I was 14. This has been a dependence I have not been able to kick as yet, but I use doctor prescribed doses and never more (now). By 14 I could not attend school without a line a speed my mental health problems were such I felt I could not connect with others or function in the social context of normal life. I was expelled when I was 15 for taking my work experience in a chemist and stealing a large quantity of Temazepam.
In a lot of trouble I stuck to a curfew set by my parents, but my speed habit meant I could not sleep. I would stay up all night and study and managed to get 9 GCSE at A-C, despite not being at school for the last year. I was suffering from speed related psychosis by then and having schizophrenic episodes where I was not able to distinguish between my own delusions and the truth. Then at 16 my then boyfriend off 1 year died of a drug related overdose, instead of using this as a time to take stock, I went on overdrive. I was only a 16 year old girl but I took anything i could get my hands on and although I had been recruited to work on a magazine project in Brighton, this was also where i found heroin and the relief I had been looking for.
I met my partner and we moved together and quickly got a mortgage. He was kind caring and dare i say it, a little gullible. When he found out I was smoking heroin I persuaded him to try it, rather than berating me. He did and it sealed our fate. Now with a mortgage, a car and a £100 a day each for heroin and £50 for crack to find, it was only a matter of months before I was injecting. My ex worked to keep our outwardly normal life going, he paid our mortgage but we were to get into further trouble with £15,000 of unsecured debt and credit cards. It was then I decided that my low paying jobs a petty crime were not going to suffice to cover our habits and I decided to work as a high class escort and earn £500 an hour with the intention of covering the debts as well as our habits.
I did earn £500 pound and hour and I did that at least once a day often several, but instead of paying off debts our drug use escalated and soon our house was being reposed and I was being forced into rehab after being sectioned twice, for mental health problems and suicidal episodes. (I was diagnosed at the time with Bi-polar which runs in my family; as does alcoholism, drug addiction and general ill mental health).
Upon leaving rehab, things were at their worst, the flat was in the process of being sold to pay back the building society and our flat was more like a crack/smack den than a home. I had to visit more and more scary places to score drugs and on more than one occasion I was scared for my life and indeed kidnapped, punched in the face and thrown from a moving car.
We moved away when the flat was sold with the idea of getting clean, we never managed this but we held down respectable jobs, kept our use to about £40 a day each and I went to college to do A levels and on to university to do a degree in International Relations and Politics.
Had it not been for my deteriorating mental and psychical health, you probably would not have guessed I was a drug addict, I worked as the co-editor on a music magazine in digital format and as an insurance underwriter to bring in a little extra. I bathed and dressed well; we had an Audi and thousands of pounds of stereo equipment, to service my hobby of dj'ing. Despite this was the low level using and high level Methadone dependency - 130 mg with approximately a gram of heroin a day on top and a fast increasing Benzo addiction. My doctors provided me with ample amounts but I brought thousands of pills of the net making me erratic, have blackouts and eventually lead me to become once again sectioned.
My partner left me at this point no longer able to cope with my behaviour and deteriorating health; I had slept with my daughter's father behind his back and I didn't even know I had done it. I was in total blackout from the pills, had several infections, including two abscesses in my groin which was my injection site, I weighed 6 stone and the pills worsened my mental health as well. After he left I was homeless and began a career of petty crime while living in the local bail hostel, after 51 counts of shoplifting, handling and stealing from an employer the courts had had enough of me and sentenced me with a DTTO.
I was given a Drug Treatment and Testing Order (DTTO) this would later unbeknown to me be one of the factors that saved my life; as it would provide not just punishment but also help in the crisis points of my life, such as my poly addictions and proper care by the mental health team. Plus joined up multi agency help; that was to include health services and the police and probation, as well as rigorous drug testing, counselling and group therapy. This punishment was to serve much more useful to me than the many maintenance and detox programs I had been on, in patient rehab centres and In Patient mental health care.
In addition only months later came the point of change in my life being as I had clearly been at rock bottom for several years, to my salvation (and I honestly believe I would be dead now otherwise) I found out I was pregnant. This was despite not having a period for many years and having been told my changes of conception were unlikely, I was still in this homeless shelter, and even my family could no longer help and had many years previously turned away from me. The night I did the pregnancy test I threw my last gram of heroin down the toilet, unfortunately graces dad did not do the same and continued to use.
He had by this time (I was 3 months pregnant) got himself a Benzo habit too, I was no longer using illicit drugs and he was. He did an armed robbery on a chemist for pills and I was there but not involved, however we were both arrested for armed robbery and in the cells that night all I could think about was my unborn daughter. Next day the CPS downgraded my charges to handling and my DTTO was increased in length and time. Graces dad went to prison for 4 years and I slowly but surely turned my life around. Alone.
As part of the DTTO I had to give drugs tests (mouth swab DNA ones) 3 times a week, I never gave a positive one and adhered to the sentence to the letter knowing it was the only way I would keep my baby. And indeed the court quashed the order early due to complete compliance and recommendations from all the agencies involved in my care that pregnancy had changed me un-recognisably.
Before she was born I was adamant she would not be treated with drugs following her birth to ensure she did not suffer from withdrawal symptoms unless absolutely necessary. I researched and printed off American studies that showed babies need not be treated with morphine even if the mother is addicted to opiates if they are breastfed and the supply of breast milk is gradually reduced, much like a substitute withdrawal program. In my 'safe' second trimester I reduced from 130mg methadone to 30mg and got down to 30 mg of Valium with no illicit use at all.
My daughter was born a month premature, but had been very closely monitored, the doctors agreed to my breast milk reduction as I did want my daughter to start her first few hours in life high. It worked, she was not treated with drugs and we were allowed home after 6 weeks with no harm to baby or mother or any discernable signs of natal withdrawal. I then slowly reduced the breast milk she received until she was entirely formula fed at 6 months old still free from withdrawal symptoms.
When she was 6 months old, my parents who had retuned to my life now the drugs were absent, looked after her while I went cold turkey from the last of my methadone, and social services, not only kept Grace off the at risk register, they decided their involvement was not necessary. Since then I have been an excellent single mum to an intelligent, bright and happy young girl who is now 3.
So when did I find out I had hepatitis C. well last September following a year of unexplained health problems and terrible joint pain. I contracted two bouts of shingles, two hospitalizations for illnesses normally dealt with by anti-biotics in the community, then graces father called, informed me that he had been tested and was positive and he must have caught it from me, as he had often used my equipment after I had. I requested the test from a locum Doctor as mine was on holiday and 3 weeks later came the shock news that I was in fact positive and had a high viral load.
I know when i got the virus and that was a very desperate day, when I ripped open sharps bins and cooked up other peoples congealed blood as I was in withdrawal 10 years before, this would have been 1999. Being as I had been in the system I believe there were man occasions when an LFT or HCV test would have been a normal useful diagnostic tool of the health professionals treating me. My doctors were aware I was a practising injector of heroin and crack, i was involved in the drug services, I was hospitalised for abscesses in both sides of the groin the hospital could have tested but it took for me to request that test to finally find out I had the virus
I have genotype 3 and am nearly finished 6 months of combination treatment. My GP has been badly informed about the virus and treatment, and unwilling to deal with anything at all related to side effects or treatment and has been nervous about prescribing for secondary infection or non related illness as he is naive about drug interactions of HCV treatment and has on many occasions left me in pain and in unnecessary illness. My team are unhappy to prescribe for anything but treatment drugs; so in the case of low blood counts and WBC's and immunity against infection I have had little support. On one occasion I had a chest infection, the GP would not prescribe anti biotics despite my near dangerous Neutrophill levels and the hospital team were telling me to go back to my Primary Doctor. I ended up taking anti biotics prescribed for someone else, which cleared my infection.
I have certainly struggled with side effects of treatment; fatigue, hair loss, sickness, headaches, migraines on a weekly basis, rashes, secondary infections and fungal type infections and quite serious anaemia (which has reached the cut off level for rescue drugs, 0.75 however I have never been offered them, and critical anaemia along with bringing up a 3 yr old alone on treatment are not conducive to an easy treatment.. I have asked for print outs of all my blood work not having much faith in the health profession anymore, and I have used organisations like The British Liver Trust for practical advice and for social support internet groups such as hepcnomads.co.uk . As there are no support groups in my area, something I intend to rectify upon finishing and detoxing from the Interferon/Ribavirin cocktail.
Despite the crippling side effects, I have been campaigning for more awareness, increased testing, more information and support for the family's and careers of HCV patients, and am using my story to hopefully get others to relate and get tested, thus I am due to be featured in a major daily newspaper and my testimonial is printed on many sites. This is only the start I am writing an autobiography which I hope to get into the publishing process next year and intend to do more press/radio work.
I don't know yet if my 3-year-old daughter has HCV but i will have her tested as soon as the hospital can arrange it. This has been another source of frustration as I have now requested this test from 3 different health professionals on several occasions. It is things like this that make me lose faith in the health professionals desire to decrease anxiety, in what is a very anxiety producing disease. All the info and support I have needed has come from outside the NHS and my family have had no support at all. I know transmission from parent to child is low risk but both her parents were HCV positive when she was conceived and there is a possibility. In addition social services have not helped me as a single mum who is sick for at least 3 days a week and anaemic, tired, insomniac and with underlying mental health issues.
HCV is a time bomb for the NHS and it needs to act now before its money and resources are treating end stage liver disease and cancers of the many thousands of unknown infected. Hopefully this Strategy will be the start of some necessary change in the NHS in terms of awareness, testing, support and treatment. I am glad to have been able to offer my opinions on the matter and hope you have found them useful.
I caught it from my adult children. I'm terribly upset as you can imagine. I was raised around druggies and I left home at 15 and changed my life completely away from the emotional drug alcohol abuse I endured as a child. My hub and I worked hard and did all the right things for our 2 kids they are 28 and 22 now I didn't know they were abusing drugs prescription drugs. My daughter tells me she has it because she shared the water cup her and her bro shared when shooting up roxicontins and oxycontins Ii started to cry. I wonder how 2 educated kids could do this to themselves and myself and their dad now I have it. I guess my son was using my razor I didn't realize it I cut my self with it and have been feeling awful now for about six months, gonna lose my business I own a tattoo shop I'm so disgusted my son also works there we can’t do that kind of business with hepC... I never lived a high risk lifestyle and now forever my life will change I have other health problems which will complicate things I'm afraid and feel alone...
I was infected with Hep C from a blood transfusion 31 years ago. I was never much of a drinker and did not know I had the disease until I had a total knee replacement done. I am against the Ribavirin and Interferon. I am also 70 years old now. I take Milk Thistle, Alpha Lipoic Acid, lots of Vit C, Echinacea, and a multiple vitamin. I stay away from liquor entirely. I am still asymptomatic, and was never sick with it. My viral load started at 14.9 million, and is down to 6.92 million. I have faith in G-d, and I totally trust in my faith, staying away from liquor, and a healthy diet.
I had hepc for about 5 years before i started treatment. I was a 1 on the cirrhosis scale which was a little scarring. I started interferon injections with the Ribavirin pills. I did have a little bit of depression i think was associated with the treatment. I waited for the nausea and flu symptoms but they never came and what did come was very light. The Virus was undetectable after 3 months and has remained so far undetectable. It will be 5 months god willing in a few days. Other than a small relapse with my addiction, i will be drug free for a year and a half. I am not taking my second chance for granted and am determined to be drug free for the rest of my life. The interferon and Ribavirin along with a dedicated Dr. and nurse team has so far changed my life. It is great feeling hungry again and not waking up feeling sick everyday. I thank god and the combination therapy.
I was diagnosed with Hep C in 1998. I am a nurse and I received a needlestick from another nurse accidentally from a Hep C positive pt. Bad Luck!!!! I have Genotype 1a. The most difficult to treat. I have undergone 2 separate 48 week therapies (Combination and Pegylated Interferon) treatments. Both of which were unsuccessful... I am feeling fine but hoping a new and more effective treatment may be on the way. I take care of patients daily who are dying from chronic Hep C complications. It is a miserable end to a horrible disease!
Seven months into treatment, and I am still looking for answers. Anyone who is on this treatment can only feel for me and how I must feel. I'm too tired right now to tell about it in detail, I just wanted to touch base and let people know that there are people out there doing treatment every day and going to work and taking care of daily chores.
I can not believe that it is seven months and I still have my wits and more determination than ever. You need to have a goal to push you, as well as a very strong support from family and friends. My support comes from My Mom and my girlfriend. They don't bother me about my tired look or push food down my throat. They welcome any time that I have enough energy to go out with them and make us all laugh.
My side effects are greater than what I was hopping for.
I've already been to the hospital because of a serious rash. I got through it while on a one week vacation riding my motorcycle around the North in ontario. I could only ride a few hours a day but my girlfriend didn't say anything negative, she just enjoyed her time with her man. Waiting for the day when he will have all that energy back and than look out. I have a lot to do as say, when well and not sick like this I am so active I have no choice but to go go go. I usually don't sit down for long before i have an idea and I'm back at it.
Since my treatment I can not do much and i take so many stabs at it to complete any task its disheartening. I'm going to eat now since its noon time and I must eat on time to keep my energy up so I can go out on my bike and at least enjoy an hour of the week end.
Take care and think positive.
My name is Brenda. I received 2 pints of blood in 1984 after 20 years 2004 is when I found out I have Hep-c type 1 stage 3. I did the treatment shots and 6 pills a day. It worked but only when I was taking it. I went back to the Doctor 3 months later and I still had it. I go to U.N.C. in N.C. for my treatment or should I say M.R.I. and blood work every 6 months. I am now at stage 4 and I now have cirrhosis of the liver .The Doctors are watching a spot on my liver. I go back in oct. 2009 to U.N.C. I am 50 years old I lost my father in an auto accident when I was 11 years old. Then 10 months later I lost my mom, 2 sisters age 3 and 9, my aunt, her 2 kids age 9 and 12 and a friend killed in an auto accident dec.12,1971, then I lost my oldest daughter in an auto accident on sept.6, 2001. She was 26 years old and left behind 3 little girls that was 5 days before 9-11-2001. I thought the world was coming to an end. Then the next Sept.13, 2002 I lost my sister to heart failure at the age of 48. Then I find out I have hep.c now cirrhosis of the liver. Can you believe this life I have lived? I know everyone has their own story to tell so I am thankful for God, Jesus, and his holy spirit because without him I would have never made it this far I can see where I have been when I turn around but then when I look ahead I can see the finish line and I am no quitter. I did not go though everything that I have for no reason there is always a reason for the things we go though in Life. My life has made me realize that I can do nothing without the Lord in my life. But with the Lord I have crossed creeks, rivers, oceans, hills, mountains, valleys, stepped in quit a few holes, been though the woods but through it all I still can see the finish line and believe me I am going forward. I am not giving-up. I am not turning around because by the Grace of God I will wear a shining crown some day. Thank you for taking the time to read my life. God Bless you all Brenda
I am currently on tx for hep c, at week 9. I was ud and wk 12 still ud. I am geno 1a, tx has been really easy for me so far, just did shot 15 out of 48, side effects are not to bad to deal with. I walk 30 mins a day and live a healthy lifestyle thats about all one can do.
I have been on the treatments for hep. c for 6 months. My thyroid took a hit, and now I take 1 mil. of thyroid med, but recently found out my enzymes are back to a normal level. 4 more shots and then wait for 6 months and check my blood again. My Dr. says it looks good.
I was very young, working for a publisher and taking some college and the rest of my time was devoted to my art shows with area famous 3 day work shops. My own health issues would have to wait. Young-stupid-no fear. Was so devoted to my art instructor - my mentor. After 7 years under her, I tried to ignore the orange eyes and skin along with pee the color of Dr Pepper and stools like white chalk. My luck was running out. Not eating, just hours of sleeping. Well-next event placed me in the hospital for two weeks with Hep-B. The healing was slow due to the so tender liver. Years went by and married the publishers son. He has now passed away while waiting for liver transplant on his birthday. He had Hep-C. Sometime later, that feeling of tender liver came back. Was in remission for years. Test for Hep-C showed positive several. Then one test came back negative 6 years ago. NOW I am waiting on sonogram image of my liver area. Bloodwork showas normal....for liver functions. If that is correct...then why go see Hepatologist ? for a false positive? Has anyone has similiar flairups? These events started when I was 20 yrs old and I am now soon to be 60!!!!
Thank you for hearing me out, sick of it already. thanks bunches, Susan P
I was diagnosed with Chronic Hep C in May 2007. I must have received the virus through numerous blood transfusions I had due to surgeries before l992.
I have Hep-C for 16 years. I was told not to drink, but I didn't listen. This is when my life went upside down. I started when I left work one night. I started throwing up blood. I went to the hospital and stayed there for a few days. I keep drinking and was in the Hospital 5 times in 4 years. They had to put a shunt in my body to help the flow to my liver. Six years ago I fell down in my house. I was rushed to the Hospital. I was in a coma. I had my last rites. Two weeks later I got out of the coma. I could not talk, walk or remember my Family's faces. Now I am doing better. I have no ambition to drink. My Doctors saved my life. I thought I was like superman, and anything would happen to me. I was wrong I hope this will help others. Alan
I started on an experimental treatment August 2008 which included peginteron, ribavirin, and teleprevir (still a trial drug). The first week of treatment seemed to be going well but after that it all went to hell. I think I got every side effect possible, vision problems, severe depression, fatigue, low blood counts with multiple blood transfusions. My skin turned into scales, lost more than half of my hair, no energy, nausea and vomiting, constipation. My brain had deserted me, I could not think, didn't want to talk to anyone. I was off work for 5 1/2 months, couldn't drive. Frankly I wanted to die. But I made it with help from family and came off the drug at 6 months and found out that time I had been viral free since 4 weeks into the treatment. I guess I can say it was worth it but am still having some long term mental effects. My doctors say they will eventually go away and it usually takes at least 6 months after treatment has been stopped. Well I am hanging in there because I don't know what else to do. I do feel better each day. My advice is to hang in there, but have a good support system before you start treatment. The alternative is liver failure and that is a nasty way to go.
I was treated for hep c in 2000, I cleared the virus and relaped with three months. My doctor says its time to retreat again after a liver biopsy. I was already to start next week when my doctor office called and said that my insurance company will not pay to retreat me. The insurance company's reason for rejection my treatment was their was no PROOF that it will clear the virus this time. I was on a trial the first time, so they didn't pay for that one treatment either. My husband and I pay a LOT of money for insurance, and now when I need them they won't help me. I don't know what I will do as the meds cost between $2,500.00 -$3000.00 a month times 12 months. I have pain in my liver daily and I'm very scared!
I received blood during an operation back in 1987. In 1992, my doctor ran some tests and told me I had Hep C. I had a biopsy done, then I went through the Interferon treatment back then (3 shots a week) for six months. Another biopsy showed no improvement whatsoever. The doctor said there was nothing else to do but wait until it was bad enough to get on the transplant list. I never drank much alcohol anyway, but I quit completely. I made it a point to eat healthier and made water my main drink. I practically forgot about it and lived just fine.
Hello my name is Vicki. I BEAT IT. This is where it all began. I went with my boyfriend to one of his Va appointments and they were having a blood drive. I figured what the heck my blood might save a soldier's or someone else's life so I donated my blood to the American Red Cross and 2 weeks later I had received a letter back from them stating that I had Hep C.
My boyfriend had to go to work and all I could do was just cry because I was scared. About 30 mins later he walked back into the door and I asked him what he was doing home so early and he told me I'm more important than his job and immediately found the CDC website and he got all of the information he could and we started scheduling appointments. Even when we had no gas, we found ways to get to my appointments and back.
We fought it through a year and a half of treatment and then I went to the doctor not knowing it was my final time to see the doctor. That was a year and a half ago.
I got a letter back from my doctor and it said that there was no traces of Hep C in my blood system anymore and I feel like I have a new lease on life and I thank God every day.
The man that held me through the sickness and did everything he could to help me last year, on my birthday, took a knee after I blew out the candles on my cake. He asked me if I would marry him and I started crying after everything we have been through together and I said yes.
Now we are planning a wedding and preparing to buy a house and live the rest of our lives together. He was just a boyfriend then and now my fiance. Never underestimate the power of friends and family.
To those starting treatment, keep on your treatment and NEVER give up Hope.
